Text of US HB 5942 (2018)
Health Equity and Accountability Act of 2018
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As introduced
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I
115TH CONGRESS
2D SESSION
H. R. 5942
To improve the health of minority individuals, and for other purposes.
IN THE HOUSE OF REPRESENTATIVES
MAY 23, 2018
Ms. LEE (for herself, Mr. AGUILAR, Ms. BARRAGA´N, Ms. BASS, Ms.
BONAMICI, Ms. BORDALLO, Mr. BROWN of Maryland, Mr. CARBAJAL,
Mr. CA´RDENAS, Mr. CARSON of Indiana, Mr. CASTRO of Texas, Ms.
JUDY CHU of California, Ms. CLARKE of New York, Mr. CORREA, Mr.
DANNY K. DAVIS of Illinois, Mr. ELLISON, Ms. ESHOO, Mr. ESPAILLAT,
Ms. FUDGE, Mr. GALLEGO, Mr. GOMEZ, Mr. AL GREEN of Texas, Mr.
GRIJALVA, Mr. GUTIE´RREZ, Ms. HANABUSA, Mr. HASTINGS, Ms.
JAYAPAL, Ms. EDDIE BERNICE JOHNSON of Texas, Ms. KELLY of Illi-
nois, Mr. KHANNA, Mr. LEWIS of Georgia, Mr. TED LIEU of California,
Ms. LOFGREN, Mr. LOWENTHAL, Ms. MICHELLE LUJAN GRISHAM of
New Mexico, Ms. MATSUI, Mr. MEEKS, Ms. MENG, Mrs. NAPOLITANO,
Ms. NORTON, Mr. PAYNE, Mr. RASKIN, Mr. RICHMOND, Ms. ROYBAL-
ALLARD, Mr. RUSH, Mr. SABLAN, Ms. SA´NCHEZ, Mr. SCHIFF, Mr.
SCOTT of Virginia, Mr. SERRANO, Ms. SEWELL of Alabama, Mr.
SWALWELL of California, Mr. TAKANO, Mrs. TORRES, Ms. VELA´ZQUEZ,
Ms.
WILSON
of
Florida,
Mrs.
WATSON
COLEMAN,
and
Mr.
KRISHNAMOORTHI) introduced the following bill; which was referred to
the Committee on Energy and Commerce, and in addition to the Commit-
tees on Ways and Means, Agriculture, Education and the Workforce, the
Budget, the Judiciary, Veterans’ Affairs, Armed Services, and Natural
Resources, for a period to be subsequently determined by the Speaker,
in each case for consideration of such provisions as fall within the juris-
diction of the committee concerned
A BILL
To improve the health of minority individuals, and for other
purposes.
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•HR 5942 IH
Be it enacted by the Senate and House of Representa-
1
tives of the United States of America in Congress assembled,
2
SECTION 1. SHORT TITLE.
3
This Act may be cited as the ‘‘Health Equity and
4
Accountability Act of 2018’’.
5
SEC. 2. TABLE OF CONTENTS.
6
The table of contents of this Act is as follows:
7
Sec. 1. Short title.
Sec. 2. Table of contents.
Sec. 3. Findings.
TITLE I—DATA COLLECTION AND REPORTING
Sec. 101. Amendment to the Public Health Service Act.
Sec. 102. Elimination of prerequisite of direct appropriations for data collection
and analysis.
Sec. 103. Collection of race and ethnicity data by the Social Security Adminis-
tration.
Sec. 104. Revision of HIPAA claims standards.
Sec. 105. National Center for Health Statistics.
Sec. 106. Disparities data collected by the Federal Government.
Sec. 107. Data collection and analysis grants to minority-serving institutions.
Sec. 108. Standards for measuring sexual orientation and gender identity in
collection of health data.
Sec. 109. Standards for measuring socioeconomic status in collection of health
data.
Sec. 110. Safety and effectiveness of drugs with respect to racial and ethnic
background.
Sec. 111. Improving health data regarding Native Hawaiians and other Pacific
Islanders.
Sec. 112. Clarification of simplified administrative reporting requirement.
TITLE II—CULTURALLY AND LINGUISTICALLY APPROPRIATE
HEALTH AND HEALTH CARE
Sec. 201. Definitions.
Sec. 202. Amendment to the Public Health Service Act.
Sec. 203. Pilot program for improvement and development of State medical in-
terpreting services.
Sec. 204. Training tomorrow’s doctors for culturally and linguistically appro-
priate care: graduate medical education.
Sec. 205. Federal reimbursement for culturally and linguistically appropriate
services under the Medicare, Medicaid, and State Children’s
Health Insurance Programs.
Sec. 206. Increasing understanding of and improving health literacy.
Sec. 207. Assurances for receiving Federal funds.
Sec. 208. Report on Federal efforts to provide culturally and linguistically ap-
propriate health care services.
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Sec. 209. English for speakers of other languages.
Sec. 210. Implementation.
Sec. 211. Language access services.
TITLE III—HEALTH WORKFORCE DIVERSITY
Sec. 301. Amendment to the Public Health Service Act.
Sec. 302. Hispanic-serving health professions schools.
Sec. 303. Loan repayment program of Centers for Disease Control and Preven-
tion.
Sec. 304. Cooperative agreements for online degree programs at schools of pub-
lic health and schools of allied health.
Sec. 305. Sense of Congress on the mission of the National Health Care Work-
force Commission.
Sec. 306. Scholarship and fellowship programs.
Sec. 307. McNair Postbaccalaureate Achievement Program.
Sec. 308. Rules for determination of full-time equivalent residents for cost-re-
porting periods.
Sec. 309. Developing and implementing strategies for local health equity.
Sec. 310. Loan forgiveness for mental and behavioral health social workers.
Sec. 311. Health Professions Workforce Fund.
Sec. 312. Findings; sense of Congress relating to graduate medical education.
Sec. 313. Career support for skilled, internationally educated health profes-
sionals.
TITLE IV—IMPROVING HEALTH CARE ACCESS AND QUALITY
Subtitle A—Expansion of Coverage
Sec. 401. Amendment to the Public Health Service Act.
Sec. 402. Removing citizenship and immigration barriers to access to affordable
health care under ACA.
Sec. 403. Study on the uninsured.
Sec. 404. Medicaid in the territories.
Sec. 405. Extension of Medicare secondary payer.
Sec. 406. Border health grants.
Sec. 407. Removing Medicare barrier to health care.
Sec. 408. 100 percent FMAP for medical assistance provided by urban Indian
health centers.
Sec. 409. 100 percent FMAP for medical assistance provided to a Native Ha-
waiian through a federally qualified health center or a Native
Hawaiian health care system under the Medicaid program.
Subtitle B—Expansion of Access
Sec. 410. Protecting sensitive locations.
Sec. 411. Grants for racial and ethnic approaches to community health.
Sec. 412. Critical access hospital improvements.
Sec. 413. Establishment of Rural Community Hospital (RCH) Program.
Sec. 414. Medicare remote monitoring pilot projects.
Sec. 415. Rural health quality advisory commission and demonstration projects.
Sec. 416. Rural health care services.
Sec. 417. Community health center collaborative access expansion.
Sec. 418. Facilitating the provision of telehealth services across State lines.
Sec. 419. Scoring of preventive health savings.
Sec. 420. Sense of Congress on Maintenance of Effort Provisions Regarding
Children’s Health.
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•HR 5942 IH
Sec. 421. Repeal of requirement for documentation evidencing citizenship or
nationality under the Medicaid program.
Sec. 422. Protection of the HHS Offices of Minority Health.
Sec. 423. Office of Minority Health in Veterans Health Administration of De-
partment of Veterans Affairs.
Sec. 424. Indian defined in PPACA.
Sec. 425. Study of DSH payments to ensure hospital access for low-income pa-
tients.
Sec. 426. Assistant Secretary of the Indian Health Service.
Sec. 427. Reauthorization of the Native Hawaiian Health Care Improvement
Act.
Sec. 428. Availability of non-English language speaking providers.
Sec. 429. Access to essential community providers.
Sec. 430. Provider network adequacy in communities of color.
Sec. 431. Improving access to dental care.
Subtitle C—Advancing Health Equity Through Payment and Delivery Reform
Sec. 441. Sense of Congress.
Sec. 442. Centers for Medicare & Medicaid Services quality payment program.
Sec. 443. Development and testing of disparity reducing delivery and payment
models.
Sec. 444. Supporting safety net and community-based providers to compete in
value-based payment systems.
Subtitle D—Health Empowerment Zones
Sec. 451. Short title.
Sec. 452. Findings.
Sec. 453. Designation of health empowerment zones.
Sec. 454. Assistance to those seeking designation.
Sec. 455. Benefits of designation.
Sec. 456. Definition.
Sec. 457. Authorization of appropriations.
Subtitle E—At-Risk Community Coverage
Sec. 461. Medicaid coverage for citizens of Freely Associated States.
Sec. 462. At-risk youth Medicaid protection.
TITLE V—IMPROVING HEALTH OUTCOMES FOR WOMEN,
CHILDREN, AND FAMILIES
Subtitle A—In General
Sec. 501. Grants to promote health for underserved communities.
Sec. 502. Removing barriers to health care and nutrition assistance for chil-
dren, pregnant persons, and lawfully present individuals.
Sec. 503. Repeal of denial of benefits.
Sec. 504. Birth defects prevention, risk reduction, and awareness.
Sec. 505. Preventing maternal deaths.
Sec. 506. Eliminating disparities in maternity health outcomes.
Sec. 507. Decreasing the risk factors for sudden unexpected infant death and
sudden unexplained death in childhood.
Sec. 508. Reducing unintended teenage pregnancies.
Sec. 509. Gestational diabetes.
Sec. 510. Emergency contraception education and information programs.
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Sec. 511. Comprehensive sex education programs.
Sec. 512. Compassionate assistance for rape emergencies.
Sec. 513. Access to birth control duties of pharmacies to ensure provision of
FDA-approved contraception.
Sec. 514. Additional focus area for the Office on Women’s Health.
Sec. 515. Interagency coordinating committee on the promotion of optimal ma-
ternity outcomes.
Sec. 516. Consumer education campaign.
Sec. 517. Bibliographic database of systematic reviews for care of childbearing
individuals and newborns.
Sec. 518. Maternity care health professional shortage areas.
Sec. 519. Expansion of CDC prevention research centers program to include
centers on optimal maternity outcomes.
Sec. 520. Expanding models allowed to be tested by Center for Medicare &
Medicaid Innovation to include maternity care models.
Sec. 521. Development of interprofessional maternity care educational models
and tools.
Sec. 522. Including within inpatient hospital services under Medicare services
furnished by certain students, interns, and residents supervised
by certified nurse midwives.
Sec. 523. Grants to professional organizations to increase diversity in maternal,
reproductive, and sexual health professionals.
Sec. 524. Interagency update to the quality family planning guidelines.
Sec. 525. Dissemination of the quality family planning guidelines.
Subtitle B—Pregnancy Screening
Sec. 531. Pregnancy intention screening initiative demonstration program.
TITLE VI—MENTAL HEALTH
Sec. 601. Mental health findings.
Sec. 602. Coverage of marriage and family therapist services, mental health
counselor services, and substance abuse counselor services
under part B of the Medicare program.
Sec. 603. Integrated Health Care Demonstration Program.
Sec. 604. Addressing racial and ethnic minority mental health disparities re-
search gaps.
Sec. 605. Health professions competencies to address racial and ethnic minority
mental health disparities.
Sec. 606. Asian American, Native Hawaiian, and Pacific Islander behavioral
and mental health outreach and education strategies.
Sec. 607. Mental health in schools.
Sec. 608. Geo-access study.
TITLE VII—ADDRESSING HIGH IMPACT MINORITY DISEASES
Subtitle A—Cancer
Sec. 701. Lung cancer mortality reduction.
Sec. 702. Expanding prostate cancer research, outreach, screening, testing, ac-
cess, and treatment effectiveness.
Sec. 703. Improved Medicaid coverage for certain breast and cervical cancer pa-
tients in the territories.
Sec. 704. Cancer prevention and treatment demonstration for ethnic and racial
minorities.
Sec. 705. Reducing cancer disparities within Medicare.
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•HR 5942 IH
Subtitle B—Viral Hepatitis and Liver Cancer Control and Prevention
Sec. 711. Viral hepatitis and liver cancer control and prevention.
Subtitle C—Acquired Bone Marrow Failure Diseases
Sec. 721. Acquired bone marrow failure diseases.
Subtitle D—Cardiovascular Disease, Chronic Disease, and Other Disease
Issues
Sec. 731. Guidelines for disease screening for minority patients.
Sec. 732. CDC Wisewoman Screening Program.
Sec. 733. Report on cardiovascular care for women and minorities.
Sec. 734. Coverage of comprehensive tobacco cessation services in Medicaid and
private health insurance.
Sec. 735. Clinical research funding for oral health.
Sec. 736. Participation by Medicaid beneficiaries in approved clinical trials.
Subtitle E—HIV/AIDS
Sec. 741. Statement of policy.
Sec. 742. Findings.
Sec. 743. Additional funding for AIDS drug assistance program treatments.
Sec. 744. Enhancing the national HIV surveillance system.
Sec. 745. Evidence-based strategies for improving linkage to and retention in
appropriate care.
Sec. 746. Improving entry into and retention in care and antiretroviral adher-
ence for persons with HIV.
Sec. 747. Services to reduce HIV/AIDS in racial and ethnic minority commu-
nities.
Sec. 748. Minority AIDS initiative.
Sec. 749. Health care professionals treating individuals with HIV/AIDS.
Sec. 750. HIV/AIDS provider loan repayment program.
Sec. 751. Dental education loan repayment program.
Sec. 752. Reducing new HIV infections among injecting drug users.
Sec. 753. Report on impact of HIV/AIDS in vulnerable populations.
Sec. 754. National HIV/AIDS observance days.
Sec. 755. Review of all Federal and State laws, policies, and regulations regard-
ing the criminal prosecution of individuals for HIV-related of-
fenses.
Sec. 756. Expanding support for condoms in prisons.
Sec. 757. Automatic reinstatement or enrollment in Medicaid for people who
test positive for HIV before reentering communities.
Sec. 758. Stop AIDS in prison.
Sec. 759. Support data system review and indicators for monitoring HIV care.
Sec. 760. Transfer of funds for implementation of national HIV/AIDS strategy.
Sec. 761. Report on the implementation of goal 4 (improved coordination) of
the national HIV/AIDS strategy.
Subtitle F—Diabetes
Sec. 771. Research, treatment, and education.
Sec. 772. Research, education, and other activities.
Sec. 773. Research, education, and other activities.
Sec. 774. Research, education, and other activities.
Sec. 775. Updated report on health disparities.
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•HR 5942 IH
Subtitle G—Lung Disease
Sec. 776. Expansion of the National Asthma Education and Prevention Pro-
gram.
Sec. 777. Asthma-related activities of the Centers for Disease Control and Pre-
vention.
Sec. 778. Influenza and pneumonia vaccination campaign.
Sec. 779. Chronic obstructive pulmonary disease action plan.
Subtitle H—Tuberculosis
Sec. 781. Elimination of all forms of tuberculosis.
Sec. 782. Additional funding for States in combating and eliminating tuber-
culosis.
Sec. 783. Strengthening clinical research funding for tuberculosis.
Subtitle I—Osteoarthritis and Musculoskeletal Diseases
Sec. 785. Findings.
Sec. 786. Osteoarthritis and other musculoskeletal health-related activities of
the Centers for Disease Control and Prevention.
Sec. 787. Grants for comprehensive osteoarthritis and musculoskeletal disease
health education within health professions schools.
Subtitle J—Sleep and Circadian Rhythm Disorders
Sec. 791. Short title; findings.
Sec. 792. Sleep and circadian rhythm disorders research activities of the Na-
tional Institutes of Health.
Sec. 793. Sleep and circadian rhythm health disparities-related activities of the
Centers for Disease Control and Prevention.
Sec. 794. Grants for comprehensive sleep and circadian health education within
health professions schools.
Sec. 795. Report on impact of sleep and circadian health disorders in vulner-
able and racial/ethnic populations.
Subtitle K—Sickle Cell Disease Research, Surveillance, Prevention, and
Treatment
Sec. 796. Short title.
Sec. 796A. Sickle cell disease research.
Sec. 796B. Sickle cell disease surveillance.
Sec. 796C. Sickle cell disease prevention and treatment.
Sec. 796D. Collaboration with community-based entities.
TITLE VIII—HEALTH INFORMATION TECHNOLOGY
Sec. 800. Definitions.
Subtitle A—Reducing Health Disparities Through Health IT
Sec. 801. HRSA assistance to health centers for promotion of Health IT.
Sec. 802. Assessment of impact of Health IT on racial and ethnic minority
communities; outreach and adoption of Health IT in such com-
munities.
Subtitle B—Modifications To Achieve Parity in Existing Programs
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•HR 5942 IH
Sec. 811. Extending funding to strengthen the Health IT infrastructure in ra-
cial and ethnic minority communities.
Sec. 812. Extending competitive grants for the development of loan programs
to facilitate adoption of Certified Electronic Health Record
Technology by providers serving racial and ethnic minority
groups.
Sec. 813. Authorization of appropriations.
Subtitle C—Additional Research and Studies
Sec. 821. Data collection and assessments conducted in coordination with mi-
nority-serving institutions.
Sec. 822. Study of health information technology in medically underserved com-
munities.
Subtitle D—Closing Gaps in Funding To Adopt Certified EHRs
Sec. 831. Extending Medicaid EHR incentive payments to rehabilitation facili-
ties, long-term care facilities, and home health agencies.
Sec. 832. Extending physician assistant eligibility for Medicaid electronic health
record incentive payments.
TITLE IX—ACCOUNTABILITY AND EVALUATION
Sec. 901. Prohibition on discrimination in Federal assisted health care services
and research programs on the basis of sex, race, color, national
origin, marital status, familial status, sexual orientation, gen-
der identity, or disability status.
Sec. 902. Treatment of Medicare payments under title VI of the Civil Rights
Act of 1964.
Sec. 903. Accountability and transparency within the Department of Health
and Human Services.
Sec. 904. United States Commission on Civil Rights.
Sec. 905. Sense of Congress concerning full funding of activities to eliminate
racial and ethnic health disparities.
Sec. 906. GAO and NIH reports.
TITLE X—ADDRESSING SOCIAL DETERMINANTS AND IMPROVING
ENVIRONMENTAL JUSTICE
Subtitle A—In General
Sec. 1001. Definitions.
Sec. 1002. Findings.
Sec. 1003. Health impact assessments.
Sec. 1004. Implementation of recommendations by Environmental Protection
Agency.
Sec. 1005. Grant program to conduct environmental health improvement activi-
ties and to improve social determinants of health.
Sec. 1006. Additional research on the relationship between the built environ-
ment and the health of community residents.
Sec. 1007. Environment and public health restoration.
Sec. 1008. GAO report on health effects of Deepwater Horizon oil rig explosion
in the Gulf Coast.
Subtitle B—Gun Violence
Sec. 1011. Findings.
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•HR 5942 IH
Sec. 1012. Reaffirming research authority of the Centers for Disease Control
and Prevention.
Sec. 1013. National violent death reporting system.
Sec. 1014. Report on effects of gun violence on public health.
Sec. 1015. Report on effects of gun violence on mental health in minority com-
munities.
SEC. 3. FINDINGS.
1
The Congress finds as follows:
2
(1) The population of racial and ethnic minori-
3
ties is expected to increase over the next few dec-
4
ades, yet racial and ethnic minorities have the poor-
5
est health status and face substantial cultural, so-
6
cial, and economic barriers to obtaining quality
7
health care.
8
(2) Health disparities are a function of not only
9
access to health care, but also the social deter-
10
minants of health—including the environment, the
11
physical structure of communities, nutrition and
12
food options, educational attainment, employment,
13
race, ethnicity, sex, geography, language preference,
14
immigrant or citizenship status, sexual orientation,
15
gender identity, socioeconomic status, or disability
16
status—that directly and indirectly affect the health,
17
health care, and wellness of individuals and commu-
18
nities.
19
(3) By 2020, the Nation will face a shortage of
20
health care providers and allied health workers and
21
this shortage disproportionately affects health pro-
22
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•HR 5942 IH
fessional shortage areas where many racial and eth-
1
nic minority populations reside.
2
(4) All efforts to reduce health disparities and
3
barriers to quality health services require better and
4
more consistent data.
5
(5) A full range of culturally and linguistically
6
appropriate health care and public health services
7
must be available and accessible in every community.
8
(6) Racial and ethnic minorities and under-
9
served populations must be included early and equi-
10
tably in health reform innovations.
11
(7) Efforts to improve minority health have
12
been limited by inadequate resources in funding,
13
staffing, stewardship, and accountability. Targeted
14
investments that are focused on disparities elimi-
15
nation must be made in providing care and services
16
that are community-based, including prevention and
17
policies addressing social determinants of health.
18
(8) In 2011, the Department of Health and
19
Human Services developed the HHS Action Plan to
20
Reduce Racial and Ethnic Health Disparities and
21
the National Stakeholder Strategy for Achieving
22
Health Equity, two strategic plans that represent
23
the country’s first coordinated roadmap to reducing
24
health disparities. Along with the National Preven-
25
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•HR 5942 IH
tion Strategy, Healthy People 2020, and the Na-
1
tional Health Care Quality Strategy, as well as crit-
2
ical resources such as the 2012 National Healthcare
3
Quality and Disparities Reports, these comprehen-
4
sive plans will work to increase the number of Amer-
5
icans who are healthy at every stage of life.
6
(9) The Department of Health and Human
7
Services has also reviewed and advanced updated
8
clinical guidelines and developed other strategic
9
planning documents—
10
(A) to combat health disparities with a
11
high impact on minority populations including
12
the National HIV/AIDS Strategy, the Action
13
Plan for the Prevention, Care, and Treatment
14
of Viral Hepatitis; and
15
(B) to provide high-quality family planning
16
services including recommendations of the Cen-
17
ters for Disease Control and Prevention and the
18
Office of Population Affairs.
19
(10) The Patient Protection and Affordable
20
Care Act, as amended by the Health Care and Edu-
21
cation Reconciliation Act, represents the biggest ad-
22
vancement for minority health in the last 40 years.
23
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•HR 5942 IH
TITLE I—DATA COLLECTION
1
AND REPORTING
2
SEC. 101. AMENDMENT TO THE PUBLIC HEALTH SERVICE
3
ACT.
4
(a) PURPOSE.—It is the purpose of this section to
5
promote data collection, analysis, and reporting by race,
6
ethnicity, sex, primary language, sexual orientation, dis-
7
ability status, gender identity, and socioeconomic status
8
among federally supported health programs.
9
(b) AMENDMENT.—Title XXXIV of the Public
10
Health Service Act, as added by titles II and III of this
11
Act, is further amended by inserting after subtitle A the
12
following:
13
‘‘Subtitle
B—Strengthening
Data
14
Collection,
Improving
Data
15
Analysis, and Expanding Data
16
Reporting
17
‘‘SEC. 3431. HEALTH DISPARITY DATA.
18
‘‘(a) REQUIREMENTS.—
19
‘‘(1) IN
GENERAL.—Each health-related pro-
20
gram operated by or that receives funding or reim-
21
bursement, in whole or in part, either directly or in-
22
directly from the Department of Health and Human
23
Services shall—
24
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•HR 5942 IH
‘‘(A) require the collection, by the agency
1
or program involved, of data on the race, eth-
2
nicity, sex, primary language, sexual orienta-
3
tion, disability status, gender identity, and so-
4
cioeconomic status of each applicant for and re-
5
cipient of health-related assistance under such
6
program—
7
‘‘(i) using, at a minimum, standards
8
for data collection on race, ethnicity, sex,
9
primary language, sexual orientation, dis-
10
ability status, gender identity, and socio-
11
economic status developed under section
12
3101;
13
‘‘(ii) collecting data for additional
14
population groups if such groups can be
15
aggregated into the race and ethnicity cat-
16
egories outlined by standards developed
17
under section 3101;
18
‘‘(iii) additionally referring, where
19
practicable, to the standards developed by
20
the Institute of Medicine in ‘Race, Eth-
21
nicity, and Language Data: Standardiza-
22
tion for Health Care Quality Improve-
23
ment’; and
24
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•HR 5942 IH
‘‘(iv) where practicable, through self-
1
reporting;
2
‘‘(B) with respect to the collection of the
3
data described in subparagraph (A), for appli-
4
cants and recipients who are minors, require
5
communication assistance in speech or writing,
6
and for applicants and recipients who are other-
7
wise legally incapacitated, require that—
8
‘‘(i) such data be collected from the
9
parent or legal guardian of such an appli-
10
cant or recipient; and
11
‘‘(ii) the primary language of the par-
12
ent or legal guardian of such an applicant
13
or recipient be collected;
14
‘‘(C) systematically analyze such data
15
using the smallest appropriate units of analysis
16
feasible to detect racial and ethnic disparities,
17
as well as disparities along the lines of primary
18
language, sex, disability status, sexual orienta-
19
tion, gender identity, and socioeconomic status
20
in health and health care, and report the results
21
of such analysis to the Secretary, the Director
22
of the Office for Civil Rights, each agency listed
23
in section 3101(c)(1), the Committee on
24
Health, Education, Labor, and Pensions and
25
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•HR 5942 IH
the Committee on Finance of the Senate, and
1
the Committee on Energy and Commerce and
2
the Committee on Ways and Means of the
3
House of Representatives;
4
‘‘(D) provide such data to the Secretary on
5
at least an annual basis; and
6
‘‘(E) ensure that the provision of assist-
7
ance to an applicant or recipient of assistance
8
is not denied or otherwise adversely affected be-
9
cause of the failure of the applicant or recipient
10
to provide race, ethnicity, primary language,
11
sex, sexual orientation, disability status, gender
12
identity, and socioeconomic status data.
13
‘‘(2) RULES
OF
CONSTRUCTION.—Nothing in
14
this subsection shall be construed to—
15
‘‘(A) permit the use of information col-
16
lected under this subsection in a manner that
17
would adversely affect any individual providing
18
any such information; or
19
‘‘(B) diminish existing or future require-
20
ments on health care providers to collect data.
21
‘‘(3) NO COMPELLED DISCLOSURE OF DATA.—
22
This title does not authorize any health care pro-
23
vider, Federal official, or other entity to compel the
24
disclosure of any data collected under this title. The
25
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•HR 5942 IH
disclosure of any such data by an individual pursu-
1
ant to this title shall be strictly voluntary.
2
‘‘(b) PROTECTION OF DATA.—The Secretary shall
3
ensure (through the promulgation of regulations or other-
4
wise) that all data collected pursuant to subsection (a) are
5
protected—
6
‘‘(1) under the same privacy protections as the
7
Secretary applies to other health data under the reg-
8
ulations promulgated under section 264(c) of the
9
Health Insurance Portability and Accountability Act
10
of 1996 (Public Law 104–191; 110 Stat. 2033) re-
11
lating to the privacy of individually identifiable
12
health information and other protections; and
13
‘‘(2) from all inappropriate internal use by any
14
entity that collects, stores, or receives the data, in-
15
cluding use of such data in determinations of eligi-
16
bility (or continued eligibility) in health plans, and
17
from other inappropriate uses, as defined by the
18
Secretary.
19
‘‘(c) NATIONAL PLAN OF THE DATA COUNCIL.—The
20
Secretary shall develop and implement a national plan to
21
ensure the collection of data in a culturally appropriate
22
and competent manner, to improve the collection, analysis,
23
and reporting of racial, ethnic, sex, primary language, sex-
24
ual orientation, disability status, gender identity, and so-
25
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•HR 5942 IH
cioeconomic status data at the Federal, State, territorial,
1
Tribal, and local levels, including data to be collected
2
under subsection (a), and to ensure that data collection
3
activities carried out under this section are in compliance
4
with standards developed under section 3101. The Data
5
Council of the Department of Health and Human Serv-
6
ices, in consultation with the National Committee on Vital
7
Health Statistics, the Office of Minority Health, Office on
8
Women’s Health, and other appropriate public and private
9
entities, shall make recommendations to the Secretary
10
concerning the development, implementation, and revision
11
of the national plan. Such plan shall include recommenda-
12
tions on how to—
13
‘‘(1) implement subsection (a) while minimizing
14
the cost and administrative burdens of data collec-
15
tion and reporting;
16
‘‘(2) expand knowledge among Federal agen-
17
cies, States, territories, Indian Tribes, counties, mu-
18
nicipalities, health providers, health plans, and the
19
general public that data collection, analysis, and re-
20
porting by race, ethnicity, primary language, sexual
21
orientation, disability status, gender identity, and so-
22
cioeconomic status is legal and necessary to assure
23
equity and nondiscrimination in the quality of health
24
care services;
25
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‘‘(3) ensure that future patient record systems
1
follow Federal standards promulgated under the
2
HITECH Act for the collection and meaningful use
3
of electronic health data on race, ethnicity, primary
4
language, sexual orientation, disability status, gen-
5
der identity, and socioeconomic status;
6
‘‘(4) improve health and health care data collec-
7
tion and analysis for more population groups if such
8
groups can be aggregated into the minimum race
9
and ethnicity categories, including exploring the fea-
10
sibility of enhancing collection efforts in States,
11
counties, and municipalities for racial and ethnic
12
groups that comprise a significant proportion of the
13
population of the State, county, or municipality;
14
‘‘(5) provide researchers with greater access to
15
racial, ethnic, primary language, sexual orientation,
16
disability status, gender identity, and socioeconomic
17
status data, subject to privacy and confidentiality
18
regulations; and
19
‘‘(6) safeguard and prevent the misuse of data
20
collected under subsection (a).
21
‘‘(d) COMPLIANCE WITH STANDARDS.—Data col-
22
lected under subsection (a) shall be obtained, maintained,
23
and presented (including for reporting purposes) in ac-
24
cordance with standards developed under section 3101.
25
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‘‘(e) ANALYSIS OF HEALTH DISPARITY DATA.—The
1
Secretary, acting through the Director of the Agency for
2
Healthcare Research and Quality and in coordination with
3
the Assistant Secretary for Planning and Evaluation, Ad-
4
ministrator of the Centers for Medicare & Medicaid Serv-
5
ices, the Director of the National Center for Health Statis-
6
tics, and the Director of the National Institutes of Health,
7
shall provide technical assistance to agencies of the De-
8
partment of Health and Human Services in meeting Fed-
9
eral standards for health disparity data collection and for
10
analysis of racial, ethnic, and other disparities in health
11
and health care in public programs by—
12
‘‘(1) identifying appropriate quality assurance
13
mechanisms to monitor for health disparities;
14
‘‘(2) specifying the clinical, diagnostic, or thera-
15
peutic measures which should be monitored;
16
‘‘(3) developing new quality measures relating
17
to racial and ethnic disparities and their overlap
18
with other disparity factors in health and health
19
care;
20
‘‘(4) identifying the level at which data analysis
21
should be conducted; and
22
‘‘(5) sharing data with external organizations
23
for research and quality improvement purposes.
24
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•HR 5942 IH
‘‘(f) PRIMARY LANGUAGE.—References in this sec-
1
tion—
2
‘‘(1) to primary language data, include spoken
3
and written primary language data; and
4
‘‘(2) to primary language data collection activi-
5
ties, include identifying, collecting, storing, tracking,
6
and analyzing primary language data and informa-
7
tion on the methods used to meet the language ac-
8
cess needs of limited-English-proficient individuals.
9
‘‘(g) DEFINITION.—In this section, the term ‘health-
10
related program’ mean a program—
11
‘‘(1) under the Social Security Act (42 U.S.C.
12
301 et seq.) that pays for health care and services;
13
and
14
‘‘(2) under this Act that provides Federal finan-
15
cial assistance for health care, biomedical research,
16
or health services research and or is designed to im-
17
prove the public’s health.
18
‘‘(h) AUTHORIZATION OF APPROPRIATIONS.—There
19
are authorized to be appropriated to carry out this section
20
such sums as may be necessary for each of fiscal years
21
2019 through 2024.
22
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•HR 5942 IH
‘‘SEC. 3432. ESTABLISHING GRANTS FOR DATA COLLECTION
1
IMPROVEMENT ACTIVITIES.
2
‘‘(a) IN GENERAL.—The Secretary, acting through
3
the Director of the Agency for Healthcare Research and
4
Quality and in consultation with the Deputy Assistant
5
Secretary for Minority Health, the Director of the Na-
6
tional Institutes of Health, the Assistant Secretary for
7
Planning and Evaluation, and the Director of the National
8
Center for Health Statistics, shall establish a technical as-
9
sistance program under which the Secretary provides
10
grants to eligible entities to assist such entities in com-
11
plying with section 3431.
12
‘‘(b) TYPES OF ASSISTANCE.—Grants provided under
13
this section may include grants to—
14
‘‘(1) enhance or upgrade computer technology
15
that will facilitate racial, ethnic, primary language,
16
sexual orientation, disability status, gender identity,
17
and socioeconomic status data collection, analysis,
18
and reporting;
19
‘‘(2) improve methods for health data collection
20
and analysis, including additional population groups
21
if such groups can be aggregated into the race and
22
ethnicity categories outlined by standards developed
23
under section 3101;
24
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•HR 5942 IH
‘‘(3) develop mechanisms for submitting col-
1
lected data subject to existing privacy and confiden-
2
tiality regulations; and
3
‘‘(4) develop educational programs to inform
4
health plans, health providers, health-related agen-
5
cies, and the general public that data collection and
6
reporting by race, ethnicity, primary language, sex-
7
ual orientation, disability status, gender identity,
8
and socioeconomic status are legal and essential for
9
eliminating health and health care disparities.
10
‘‘(c) ELIGIBLE ENTITY.—To be eligible for grants
11
under this section, an entity shall be a State, territory,
12
Indian Tribe, municipality, county, health provider, health
13
care organization, or health plan making a demonstrated
14
effort to bring data collections into compliance with sec-
15
tion 3431.
16
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There
17
are authorized to be appropriated to carry out this section
18
such sums as may be necessary for each of fiscal years
19
2019 through 2024.
20
‘‘SEC.
3433.
OVERSAMPLING
OF
UNDERREPRESENTED
21
GROUPS IN FEDERAL HEALTH SURVEYS.
22
‘‘(a) NATIONAL STRATEGY.—
23
‘‘(1) IN GENERAL.—The Secretary of Health
24
and Human Services, acting through the Director of
25
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•HR 5942 IH
the National Center for Health Statistics of the Cen-
1
ters for Disease Control and Prevention, and other
2
agencies within the Department of Health and
3
Human Services as the Secretary determines appro-
4
priate, shall develop and implement an ongoing and
5
sustainable national strategy for oversampling
6
underrepresented populations within the categories
7
of race, ethnicity, sex, primary language, sexual ori-
8
entation, disability status, gender identity, and socio-
9
economic status as determined appropriate by the
10
Secretary in Federal health surveys and program
11
data collections. Such national strategy shall include
12
a strategy for oversampling of Asian Americans, Na-
13
tive Hawaiians and Pacific Islanders.
14
‘‘(2) CONSULTATION.—In developing and imple-
15
menting a national strategy, as described in para-
16
graph (1), not later than 180 days after the date of
17
the enactment of the this section, the Secretary
18
shall—
19
‘‘(A) consult with representatives of com-
20
munity groups, nonprofit organizations, non-
21
governmental organizations, and government
22
agencies working with underrepresented popu-
23
lations;
24
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24
•HR 5942 IH
‘‘(B) solicit the participation of representa-
1
tives from other Federal departments and agen-
2
cies, including subagencies of the Department
3
of Health and Human Services; and
4
‘‘(C) consult on, and use as models, the
5
2014 National Health Interview Survey over-
6
sample of Native Hawaiian and Pacific Islander
7
populations and the 2017 Behavioral Risk Fac-
8
tor Surveillance System oversample of American
9
Indian and Alaska Native communities.
10
‘‘(b) PROGRESS REPORT.—Not later than 2 years
11
after the date of the enactment of this section, the Sec-
12
retary shall submit to the Congress a progress report,
13
which shall include the national strategy described in sub-
14
section (a)(1).
15
‘‘(c) AUTHORIZATION
OF
APPROPRIATIONS.—To
16
carry out this section, there are authorized to be appro-
17
priated such sums as may be necessary for fiscal years
18
2019 through 2024.’’.
19
SEC. 102. ELIMINATION OF PREREQUISITE OF DIRECT AP-
20
PROPRIATIONS FOR DATA COLLECTION AND
21
ANALYSIS.
22
Section 3101 of the Public Health Service Act (42
23
U.S.C. 300kk) is amended—
24
(1) by striking subsection (h); and
25
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•HR 5942 IH
(2) by redesignating subsection (i) as subsection
1
(h).
2
SEC. 103. COLLECTION OF RACE AND ETHNICITY DATA BY
3
THE SOCIAL SECURITY ADMINISTRATION.
4
Part A of title XI of the Social Security Act (42
5
U.S.C. 1301 et seq.) is amended by adding at the end
6
the following:
7
‘‘COLLECTION OF RACE AND ETHNICITY DATA BY THE
8
SOCIAL SECURITY ADMINISTRATION
9
‘‘SEC. 1150C. (a) REQUIREMENT.—The Commis-
10
sioner of Social Security, in consultation with the Admin-
11
istrator of the Centers for Medicare & Medicaid Services,
12
shall—
13
‘‘(1) require the collection of data on the race,
14
ethnicity, primary language, and disability status of
15
all applicants for Social Security account numbers or
16
benefits under title II or part A of title XVIII and
17
all individuals with respect to whom the Commis-
18
sioner maintains records of wages and self-employ-
19
ment income in accordance with reports received by
20
the Commissioner or the Secretary of the Treas-
21
ury—
22
‘‘(A) using, at a minimum, standards for
23
data collection on race, ethnicity, primary lan-
24
guage, and disability status developed under
25
section 3101 of the Public Health Service Act;
26
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•HR 5942 IH
‘‘(B) where practicable, collecting data for
1
additional population groups if such groups can
2
be aggregated into the race and ethnicity cat-
3
egories outlined by standards developed under
4
section 3101 of the Public Health Service Act;
5
and
6
‘‘(C) additionally referring, where prac-
7
ticable, to the standards developed by the Insti-
8
tute of Medicine in ‘Race, Ethnicity, and Lan-
9
guage Data: Standardization for Health Care
10
Quality Improvement’ (released August 31,
11
2009);
12
‘‘(2) with respect to the collection of the data
13
described in paragraph (1) for applicants who are
14
under 18 years of age or otherwise legally incapaci-
15
tated, require that—
16
‘‘(A) such data be collected from the par-
17
ent or legal guardian of such an applicant; and
18
‘‘(B) the primary language of the parent
19
or legal guardian of such an applicant or recipi-
20
ent be used in collecting the data;
21
‘‘(3) require that such data be uniformly ana-
22
lyzed and reported at least annually to the Commis-
23
sioner of Social Security;
24
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•HR 5942 IH
‘‘(4) be responsible for storing the data re-
1
ported under paragraph (3);
2
‘‘(5) ensure transmission to the Centers for
3
Medicare & Medicaid Services and other Federal
4
health agencies;
5
‘‘(6) provide such data to the Secretary on at
6
least an annual basis; and
7
‘‘(7) ensure that the provision of assistance to
8
an applicant is not denied or otherwise adversely af-
9
fected because of the failure of the applicant to pro-
10
vide race, ethnicity, primary language, and disability
11
status data.
12
‘‘(b) PROTECTION OF DATA.—The Commissioner of
13
Social Security shall ensure (through the promulgation of
14
regulations or otherwise) that all data collected pursuant
15
to subsection (a) are protected—
16
‘‘(1) under the same privacy protections as the
17
Secretary applies to health data under the regula-
18
tions promulgated under section 264(c) of the
19
Health Insurance Portability and Accountability Act
20
of 1996 (Public Law 104–191; 110 Stat. 2033) re-
21
lating to the privacy of individually identifiable
22
health information and other protections; and
23
‘‘(2) from all inappropriate internal use by any
24
entity that collects, stores, or receives the data, in-
25
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•HR 5942 IH
cluding use of such data in determinations of eligi-
1
bility (or continued eligibility) in health plans, and
2
from other inappropriate uses, as defined by the
3
Secretary.
4
‘‘(c) RULE OF CONSTRUCTION.—Nothing in this sec-
5
tion shall be construed to permit the use of information
6
collected under this section in a manner that would ad-
7
versely affect any individual providing any such informa-
8
tion.
9
‘‘(d) TECHNICAL ASSISTANCE.—The Secretary may,
10
either directly or by grant or contract, provide technical
11
assistance to enable any health entity to comply with the
12
requirements of this section.
13
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—There
14
are authorized to be appropriated to carry out this section
15
such sums as may be necessary for each of fiscal years
16
2019 through 2024.’’.
17
SEC. 104. REVISION OF HIPAA CLAIMS STANDARDS.
18
(a) IN GENERAL.—Not later than 1 year after the
19
date of enactment of this Act, the Secretary of Health and
20
Human Services shall revise the regulations promulgated
21
under part C of title XI of the Social Security Act (42
22
U.S.C. 1320d et seq.), relating to the collection of data
23
on race, ethnicity, and primary language in a health-re-
24
lated transaction, to require—
25
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•HR 5942 IH
(1) the use, at a minimum, of standards for
1
data collection on race, ethnicity, primary language,
2
disability, sex, sexual orientation, and gender iden-
3
tity developed under section 3101 of the Public
4
Health Service Act (42 U.S.C. 300kk); and
5
(2) in consultation with the Office of the Na-
6
tional Coordinator for Health Information Tech-
7
nology, the designation of the appropriate racial,
8
ethnic, primary language, disability, sex, and other
9
code sets as required for claims and enrollment data.
10
(b) DISSEMINATION.—The Secretary of Health and
11
Human Services shall disseminate the new standards de-
12
veloped under subsection (a) to all health entities that are
13
subject to the regulations described in such subsection and
14
provide technical assistance with respect to the collection
15
of the data involved.
16
(c) COMPLIANCE.—The Secretary of Health and
17
Human Services shall require that health entities comply
18
with the new standards developed under subsection (a) not
19
later than 2 years after the final promulgation of such
20
standards.
21
SEC. 105. NATIONAL CENTER FOR HEALTH STATISTICS.
22
Section 306(n) of the Public Health Service Act (42
23
U.S.C. 242k(n)) is amended—
24
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•HR 5942 IH
(1) in paragraph (1), by striking ‘‘2003’’ and
1
inserting ‘‘2022’’;
2
(2) in paragraph (2), in the first sentence, by
3
striking ‘‘2003’’ and inserting ‘‘2022’’; and
4
(3) in paragraph (3), by striking ‘‘2002’’ and
5
inserting ‘‘2022’’.
6
SEC. 106. DISPARITIES DATA COLLECTED BY THE FEDERAL
7
GOVERNMENT.
8
(a) COLLECTION; SUBMISSION.—Not later than 180
9
days after the date of the enactment of this Act, and Jan-
10
uary 31 of each year thereafter, each department, agency,
11
and office of the Federal Government that has collected
12
data on race, ethnicity, sex, primary language, sexual ori-
13
entation, disability status, gender identity, or socio-
14
economic status during the preceding calendar year shall
15
submit such data to a centralized electronic repository of
16
Government data on factors related to the health and well-
17
being of the American population.
18
(b) ANALYSIS; PUBLIC AVAILABILITY; REPORTING.—
19
Not later than April 30, 2018, and each April 30 there-
20
after, the Secretary of Health and Human Services, acting
21
through the Assistant Secretary for Planning and Evalua-
22
tion, the Assistant Secretary for Health, the Director of
23
the Agency for Healthcare Research and Quality, the Di-
24
rector of the National Center for Health Statistics, the
25
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•HR 5942 IH
Administrator of the Centers for Medicare & Medicaid
1
Services, the Director of the National Institute on Minor-
2
ity Health and Health Disparities, and the Deputy Assist-
3
ant Secretary for Minority Health, shall—
4
(1) prepare and make available datasets for
5
public use that relate to disparities in health status,
6
health care access, health care quality, health out-
7
comes, public health, and other areas of health and
8
well-being by factors that include race, ethnicity,
9
sex, primary language, sexual orientation, disability
10
status, gender identity, and socioeconomic status;
11
(2) ensure that these data sets are publicly
12
identified on a centralized electronic repository of
13
Government data as ‘‘disparities’’ data; and
14
(3) submit a report to the Congress on the
15
availability and use of such data by public stake-
16
holders.
17
SEC. 107. DATA COLLECTION AND ANALYSIS GRANTS TO MI-
18
NORITY-SERVING INSTITUTIONS.
19
(a) AUTHORITY.—The Secretary of Health and
20
Human Services, acting through the National Institute on
21
Minority Health and Health Disparities and the Deputy
22
Assistant Secretary for Minority Health, shall award
23
grants to access and analyze racial and ethnic, and where
24
possible other health disparity data, to monitor and report
25
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•HR 5942 IH
on progress to reduce and eliminate disparities in health
1
and health care.
2
(b) ELIGIBLE ENTITY.—In this section, the term ‘‘el-
3
igible entity’’ means a historically Black college or univer-
4
sity, a Hispanic-serving institution, a Tribal college or uni-
5
versity, or an Asian American, Native American, or Pacific
6
Islander-serving institution with an accredited public
7
health, health policy, or health services research program.
8
(c) AUTHORIZATION OF APPROPRIATIONS.—To carry
9
out this section, there are authorized to be appropriated
10
such sums as may be necessary for fiscal years 2019
11
through 2024.
12
SEC. 108. STANDARDS FOR MEASURING SEXUAL ORIENTA-
13
TION AND GENDER IDENTITY IN COLLECTION
14
OF HEALTH DATA.
15
Section 3101(a) of the Public Health Service Act (42
16
U.S.C. 300kk(a)) is amended—
17
(1) in paragraph (1)(A), by inserting ‘‘sexual
18
orientation, gender identity,’’ before ‘‘and disability
19
status’’;
20
(2) in paragraph (1)(C), by inserting ‘‘sexual
21
orientation, gender identity,’’ before ‘‘and disability
22
status’’; and
23
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33
•HR 5942 IH
(3) in paragraph (2)(B), by inserting ‘‘sexual
1
orientation, gender identity,’’ before ‘‘and disability
2
status’’.
3
SEC. 109. STANDARDS FOR MEASURING SOCIOECONOMIC
4
STATUS IN COLLECTION OF HEALTH DATA.
5
Section 3101(a) of the Public Health Service Act (42
6
U.S.C. 300kk(a)), as amended, is amended—
7
(1) in paragraph (1)(A), by inserting ‘‘socio-
8
economic status,’’ before ‘‘and disability status’’;
9
(2) in paragraph (1)(C), by inserting ‘‘socio-
10
economic status,’’ before ‘‘and disability status’’; and
11
(3) in paragraph (2)(B), by inserting ‘‘socio-
12
economic status,’’ before ‘‘and disability status’’.
13
SEC. 110. SAFETY AND EFFECTIVENESS OF DRUGS WITH
14
RESPECT TO RACIAL AND ETHNIC BACK-
15
GROUND.
16
(a) IN GENERAL.—Chapter V of the Federal Food,
17
Drug, and Cosmetic Act (21 U.S.C. 351 et seq.) is amend-
18
ed by adding after section 505F the following:
19
‘‘SEC. 505G. SAFETY AND EFFECTIVENESS OF DRUGS WITH
20
RESPECT TO RACIAL AND ETHNIC BACK-
21
GROUND.
22
‘‘(a) PREAPPROVAL STUDIES.—If there is evidence
23
that there may be a disparity on the basis of racial or
24
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•HR 5942 IH
ethnic background as to the safety or effectiveness of a
1
drug, then—
2
‘‘(1)(A) the investigations required under sec-
3
tion 505(b)(1)(A) shall include adequate and well-
4
controlled investigations of the disparity; or
5
‘‘(B) the evidence required under section 351(a)
6
of the Public Health Service Act for approval of a
7
biologics license application for the drug shall in-
8
clude adequate and well-controlled investigations of
9
the disparity; and
10
‘‘(2) if the investigations confirm that there is
11
a disparity, the labeling of the drug shall include ap-
12
propriate information about the disparity.
13
‘‘(b) POSTMARKET STUDIES.—
14
‘‘(1) IN GENERAL.—If there is evidence that
15
there may be a disparity on the basis of racial or
16
ethnic background as to the safety or effectiveness
17
of a drug for which there is an approved application
18
under section 505 or a license under section 351 of
19
the Public Health Service Act, the Secretary may by
20
order require the holder of the approved application
21
or license to conduct, by a date specified by the Sec-
22
retary, postmarketing studies to investigate the dis-
23
parity.
24
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‘‘(2) LABELING.—If the Secretary determines
1
that the postmarket studies confirm that there is a
2
disparity described in paragraph (1), the labeling of
3
the drug shall include appropriate information about
4
the disparity.
5
‘‘(3) STUDY
DESIGN.—The Secretary may
6
specify all aspects of study design, including the
7
number of studies and study participants, and the
8
other demographic characteristics of study partici-
9
pants included, in the order requiring postmarket
10
studies of the drug.
11
‘‘(4) MODIFICATIONS OF STUDY DESIGN.—The
12
Secretary may by order modify any aspect of the
13
study design as necessary after issuing an order
14
under paragraph (1).
15
‘‘(5) STUDY RESULTS.—The results from stud-
16
ies required under paragraph (1) shall be submitted
17
to the Secretary as supplements to the drug applica-
18
tion or biological license application.
19
‘‘(c) DISPARITY.—The term ‘evidence that there may
20
be a disparity on the basis of racial or ethnic background
21
for adult and pediatric populations as to the safety or ef-
22
fectiveness of a drug’ includes—
23
‘‘(1) evidence that there is a disparity on the
24
basis of racial or ethnic background as to safety or
25
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•HR 5942 IH
effectiveness of a drug in the same chemical class as
1
the drug;
2
‘‘(2) evidence that there is a disparity on the
3
basis of racial or ethnic background in the way the
4
drug is metabolized; and
5
‘‘(3) other evidence as the Secretary may deter-
6
mine.
7
‘‘(d) APPLICATIONS UNDER SECTIONS 505(b)(2)
8
AND 505(j).—
9
‘‘(1) IN GENERAL.—A drug for which an appli-
10
cation has been submitted or approved under section
11
505(j) shall not be considered ineligible for approval
12
under that section or misbranded under section 502
13
on the basis that the labeling of the drug omits in-
14
formation relating to a disparity on the basis of ra-
15
cial or ethnic background as to the safety or effec-
16
tiveness of the drug, whether derived from investiga-
17
tions or studies required under this section or de-
18
rived from other sources, when the omitted informa-
19
tion is protected by patent or by exclusivity under
20
clause (iii) or (iv) of section 505(j)(5)(B).
21
‘‘(2) LABELING.—Notwithstanding clauses (iii)
22
and (iv) of section 505(j)(5)(B), the Secretary may
23
require that the labeling of a drug approved under
24
section 505(j) that omits information relating to a
25
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•HR 5942 IH
disparity on the basis of racial or ethnic background
1
as to the safety or effectiveness of the drug include
2
a statement of any appropriate contraindications,
3
warnings, or precautions related to the disparity
4
that the Secretary considers necessary.’’.
5
(b) ENFORCEMENT.—Section 502 of the Federal
6
Food, Drug, and Cosmetic Act (21 U.S.C. 352) is amend-
7
ed by adding at the end the following:
8
‘‘(ee) If it is a drug and the holder of the approved
9
application under section 505 or license under section 351
10
of the Public Health Service Act for the drug has failed
11
to complete the investigations or studies, or comply with
12
any other requirement, of section 505G.’’.
13
(c) DRUG FEES.—Section 736(a)(1)(A)(ii) of the
14
Federal Food, Drug, and Cosmetic Act (21 U.S.C. 379h)
15
is amended by adding after ‘‘are required’’ the following:
16
‘‘, including supplements required under section 505G’’.
17
SEC. 111. IMPROVING HEALTH DATA REGARDING NATIVE
18
HAWAIIANS AND OTHER PACIFIC ISLANDERS.
19
Part B of title III of the Public Health Service Act
20
(42 U.S.C. 243 et seq.) is amended by inserting after sec-
21
tion 317U, as added, the following:
22
‘‘SEC. 317V. NATIVE HAWAIIAN AND OTHER PACIFIC IS-
23
LANDER HEALTH DATA.
24
‘‘(a) DEFINITIONS.—In this section:
25
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•HR 5942 IH
‘‘(1) COMMUNITY GROUP.—The term ‘commu-
1
nity group’ means a group of NHOPI who are orga-
2
nized at the community level, and may include a
3
church group, social service group, national advocacy
4
organization, or cultural group.
5
‘‘(2) NONPROFIT, NONGOVERNMENTAL ORGANI-
6
ZATION.—The term ‘nonprofit, nongovernmental or-
7
ganization’ means a group of NHOPI with a dem-
8
onstrated history of addressing NHOPI issues, in-
9
cluding a NHOPI coalition.
10
‘‘(3) DESIGNATED
ORGANIZATION.—The term
11
‘designated organization’ means an entity estab-
12
lished to represent NHOPI populations and which
13
has statutory responsibilities to provide, or has com-
14
munity support for providing, health care.
15
‘‘(4) GOVERNMENT
REPRESENTATIVES.—The
16
term ‘government representatives’ means representa-
17
tives from Hawaii, American Samoa, the Common-
18
wealth of the Northern Mariana Islands, the Fed-
19
erated States of Micronesia, Guam, the Republic of
20
Palau, and the Republic of the Marshall Islands.
21
‘‘(5) NATIVE HAWAIIANS AND OTHER PACIFIC
22
ISLANDERS (NHOPI).—The term ‘Native Hawaiians
23
and Other Pacific Islanders’ or ‘NHOPI’ means peo-
24
ple having origins in any of the original peoples of
25
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•HR 5942 IH
American Samoa, the Commonwealth of the North-
1
ern Mariana Islands, the Federated States of Micro-
2
nesia, Guam, Hawaii, the Republic of the Marshall
3
Islands, the Republic of Palau, or any other Pacific
4
island.
5
‘‘(6) INSULAR AREA.—The term ‘insular area’
6
means Guam, the Commonwealth of Northern Mar-
7
iana Islands, American Samoa, the United States
8
Virgin Islands, the Federated States of Micronesia,
9
the Republic of Palau, or the Republic of the Mar-
10
shall Islands.
11
‘‘(b) NATIONAL STRATEGY.—
12
‘‘(1) IN
GENERAL.—The Secretary, acting
13
through the Director of the National Center for
14
Health Statistics (referred to in this section as
15
‘NCHS’) of the Centers for Disease Control and
16
Prevention, and other agencies within the Depart-
17
ment of Health and Human Services as the Sec-
18
retary determines appropriate, shall develop and im-
19
plement an ongoing and sustainable national strat-
20
egy for identifying and evaluating the health status
21
and health care needs of NHOPI populations living
22
in the continental United States, Hawaii, American
23
Samoa, the Commonwealth of the Northern Mariana
24
Islands, the Federated States of Micronesia, Guam,
25
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•HR 5942 IH
the Republic of Palau, and the Republic of the Mar-
1
shall Islands.
2
‘‘(2) CONSULTATION.—In developing and imple-
3
menting a national strategy, as described in para-
4
graph (1), not later than 180 days after the date of
5
enactment of the Health Equity and Accountability
6
Act of 2018, the Secretary—
7
‘‘(A) shall consult with representatives of
8
community groups, designated organizations,
9
and nonprofit, nongovernmental organizations
10
and with government representatives of NHOPI
11
populations; and
12
‘‘(B) may solicit the participation of rep-
13
resentatives from other Federal departments.
14
‘‘(c) PRELIMINARY HEALTH SURVEY.—
15
‘‘(1) IN
GENERAL.—The Secretary, acting
16
through the Director of NCHS, shall conduct a pre-
17
liminary health survey in order to identify the major
18
areas and regions in the continental United States,
19
Hawaii, American Samoa, the Commonwealth of the
20
Northern Mariana Islands, the Federated States of
21
Micronesia, Guam, the Republic of Palau, and the
22
Republic of the Marshall Islands in which NHOPI
23
people reside.
24
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•HR 5942 IH
‘‘(2) CONTENTS.—The health survey described
1
in paragraph (1) shall include health data and any
2
other data the Secretary determines to be—
3
‘‘(A) useful in determining health status
4
and health care needs; or
5
‘‘(B) required for developing or imple-
6
menting a national strategy.
7
‘‘(3) METHODOLOGY.—Methodology for the
8
health survey described in paragraph (1), including
9
plans for designing questions, implementation, sam-
10
pling, and analysis, shall be developed in consulta-
11
tion with community groups, designated organiza-
12
tions, nonprofit, nongovernmental organizations, and
13
government representatives of NHOPI populations,
14
as determined by the Secretary.
15
‘‘(4) TIMEFRAME.—The survey required under
16
this subsection shall be completed not later than 18
17
months after the date of enactment of the Health
18
Equity and Accountability Act of 2018.
19
‘‘(d) PROGRESS REPORT.—Not later than 2 years
20
after the date of enactment of the Health Equity and Ac-
21
countability Act of 2018, the Secretary shall submit to
22
Congress a progress report, which shall include the na-
23
tional strategy described in subsection (b)(1).
24
‘‘(e) STUDY AND REPORT BY THE IOM.—
25
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•HR 5942 IH
‘‘(1) IN GENERAL.—The Secretary shall enter
1
into an agreement with the Institute of Medicine
2
(IOM) to conduct a study, with input from stake-
3
holders in insular areas, on the following:
4
‘‘(A) The standards and definitions of
5
health care applied to health care systems in in-
6
sular areas and the appropriateness of such
7
standards and definitions.
8
‘‘(B) The status and performance of health
9
care systems in insular areas, evaluated based
10
upon standards and definitions, as the Sec-
11
retary determines.
12
‘‘(C) The effectiveness of donor aid in ad-
13
dressing health care needs and priorities in in-
14
sular areas.
15
‘‘(D) The progress toward implementation
16
of recommendations of the Committee on
17
Health Care Services in the United States—As-
18
sociated Pacific Basin of the Institute of Medi-
19
cine that are set forth in the 1998 report, ‘Pa-
20
cific Partnerships for Health: Charting a New
21
Course for the 21st Century’.
22
‘‘(2) REPORT.—An agreement described in
23
paragraph (1) shall require the Institute of Medicine
24
to submit to the Secretary and to Congress, not
25
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•HR 5942 IH
later than 2 years after the date of the enactment
1
of the Health Equity and Accountability Act of
2
2018, a report containing a description of the results
3
of the study conducted under paragraph (1), includ-
4
ing the conclusions and recommendations of the In-
5
stitute of Medicine for each of the items described
6
in subparagraphs (A) through (D) of such para-
7
graph.
8
‘‘(f) AUTHORIZATION
OF
APPROPRIATIONS.—To
9
carry out this section, there are authorized to be appro-
10
priated such sums as may be necessary for fiscal years
11
2019 through 2024.’’.
12
SEC. 112. CLARIFICATION OF SIMPLIFIED ADMINISTRATIVE
13
REPORTING REQUIREMENT.
14
Section 11(a) of the Food and Nutrition Act of 2008
15
(7 U.S.C. 2020(a)) is amended by adding at the end the
16
following:
17
‘‘(5) SIMPLIFIED ADMINISTRATIVE REPORTING
18
REQUIREMENT.—The administrative notification re-
19
quirement under section 421(e)(2) of the Personal
20
Responsibility and Work Opportunity Reconciliation
21
Act of 1996 (8 U.S.C. 1631(e)(2)) shall be satisfied
22
by the submission by an agency of a report on the
23
aggregate number of exceptions granted under such
24
section by such agency in each year.’’.
25
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•HR 5942 IH
TITLE II—CULTURALLY AND LIN-
1
GUISTICALLY
APPROPRIATE
2
HEALTH AND HEALTH CARE
3
SEC. 201. DEFINITIONS.
4
In this title, the definitions contained in section 3400
5
of the Public Health Service Act, as added by section 202,
6
shall apply.
7
SEC. 202. AMENDMENT TO THE PUBLIC HEALTH SERVICE
8
ACT.
9
(a) FINDINGS.—Congress finds the following:
10
(1) Effective communication is essential to
11
meaningful access to quality physical and mental
12
health care.
13
(2) Research indicates that the lack of appro-
14
priate language services creates language barriers
15
that result in increased risk of misdiagnosis, ineffec-
16
tive treatment plans and poor health outcomes for
17
limited-English-proficient individuals and individuals
18
with communication disabilities such as hearing, vi-
19
sion, or print impairments.
20
(3) The number of limited-English-speaking
21
residents in the United States who speak English
22
less than very well and, therefore, cannot effectively
23
communicate with health and social service providers
24
continues to increase significantly.
25
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•HR 5942 IH
(4) The responsibility to fund language services
1
in the provision of health care and health-care-re-
2
lated services to limited-English-proficient individ-
3
uals and individuals with communication disabilities
4
such as hearing, vision, or print impairments is a so-
5
cietal one that cannot fairly be visited solely upon
6
the health care, public health, or social services com-
7
munity.
8
(5) Title VI of the Civil Rights Act of 1964
9
prohibits discrimination based on the grounds of
10
race, color, or national origin by any entity receiving
11
Federal financial assistance. In order to avoid dis-
12
crimination on the grounds of national origin, all
13
programs or activities administered by the Depart-
14
ment must take adequate steps to ensure that their
15
policies and procedures do not deny or have the ef-
16
fect of denying limited-English-proficient individuals
17
with equal access to benefits and services for which
18
such persons qualify.
19
(6) Both the Americans with Disabilities Act
20
and the Rehabilitation Act of 1973 prohibit discrimi-
21
nation on the basis of disability and require the pro-
22
vision of appropriate auxiliary aids and services nec-
23
essary to ensure effective communication with indi-
24
viduals with disabilities. The type of auxiliary aid or
25
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•HR 5942 IH
service necessary to ensure effective communication
1
will vary in accordance with the method of commu-
2
nication used by the individual; the nature, length,
3
and complexity of the communication involved; and
4
the context in which the communication is taking
5
place. A public accommodation should consult with
6
individuals with disabilities whenever possible to de-
7
termine what type of auxiliary aid is needed to en-
8
sure effective communication, but the ultimate deci-
9
sion as to what measures to take rests with the pub-
10
lic accommodation, provided that the method chosen
11
results in effective communication. In order to be ef-
12
fective, auxiliary aids and services must be provided
13
in accessible formats, in a timely manner, and in
14
such a way as to protect the privacy and independ-
15
ence of the individual with a disability.
16
(7) Linguistic diversity in the health care and
17
health-care-related-services workforce is important
18
for providing all patients the environment most con-
19
ducive to positive health outcomes.
20
(8) All members of the health care and health-
21
care-related-services community should continue to
22
educate their staff and constituents about limited-
23
English-proficient
and
disability
communication
24
issues and help them identify resources to improve
25
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•HR 5942 IH
access to quality care for limited-English-proficient
1
individuals and individuals with communication dis-
2
abilities such as hearing, vision, or print impair-
3
ments.
4
(9) Access to English as a second language, and
5
sign language instructions, readers, and other auxil-
6
iary aids and services, are essential to ensure effec-
7
tive communication and eliminate the language bar-
8
riers that impede access to health care.
9
(10) Competent language services in health care
10
settings should be available as a matter of course.
11
(b) AMENDMENT.—The Public Health Service Act
12
(42 U.S.C. 201 et seq.) is amended by adding at the end
13
the following:
14
‘‘TITLE
XXXIV—CULTURALLY
15
AND LINGUISTICALLY APPRO-
16
PRIATE HEALTH CARE
17
‘‘SEC. 3400. DEFINITIONS.
18
‘‘In this title:
19
‘‘(1) BILINGUAL.—The term ‘bilingual’ with re-
20
spect to an individual means a person who has suffi-
21
cient degree of proficiency in two languages.
22
‘‘(2) CULTURAL COMPETENCE.—The term ‘cul-
23
tural competence’ means a set of congruent behav-
24
iors, attitudes, and policies that come together in a
25
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•HR 5942 IH
system, agency, or among professionals that enables
1
effective work in cross-cultural situations. In the
2
preceding sentence—
3
‘‘(A) the term ‘cultural’ refers to inte-
4
grated patterns of human behavior that include
5
the language, thoughts, communications, ac-
6
tions, customs, beliefs, values, and institutions
7
of racial, ethnic, religious, or social groups, in-
8
cluding lesbian, gay, bisexual, transgender,
9
queer, and questioning individuals, and individ-
10
uals with physical and mental disabilities; and
11
‘‘(B) the term ‘competence’ implies having
12
the capacity to function effectively as an indi-
13
vidual and an organization within the context of
14
the cultural beliefs, behaviors, and needs pre-
15
sented by consumers and their communities.
16
‘‘(3) EFFECTIVE COMMUNICATION.—The term
17
‘effective communication’ means an exchange of in-
18
formation between the provider of health care or
19
health-care-related services and the recipient of such
20
services who is limited in English proficiency, or has
21
a communication impairment such as a hearing, vi-
22
sion, speaking, or learning impairment, that enables
23
access, understanding, and benefit from health care
24
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•HR 5942 IH
or health-care-related services, and full participation
1
in the development of their treatment plan.
2
‘‘(4) GRIEVANCE RESOLUTION PROCESS.—The
3
term ‘grievance resolution process’ means all aspects
4
of dispute resolution including filing complaints,
5
grievance and appeal procedures, and court action.
6
‘‘(5) HEALTH CARE GROUP.—The term ‘health
7
care group’ means a group of physicians organized,
8
at least in part, for the purposes of providing physi-
9
cians’ services under the Medicaid, SCHIP, or Medi-
10
care programs and may include a hospital and any
11
other individual or entity furnishing services covered
12
under the Medicaid, SCHIP, or Medicare programs
13
that is affiliated with the health care group.
14
‘‘(6) HEALTH
EDUCATOR.—The term ‘health
15
educator’ includes a baccalaureate prepared profes-
16
sional responsible for designing, implementing, and
17
evaluating individual and population health pro-
18
motion and chronic disease prevention programs.
19
‘‘(7) HEALTH
CARE
SERVICES.—The term
20
‘health care services’ means services that address
21
physical as well as mental health conditions in all
22
care settings.
23
‘‘(8) HEALTH-CARE-RELATED
SERVICES.—The
24
term ‘health-care-related services’ means human or
25
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•HR 5942 IH
social services programs or activities that provide ac-
1
cess, referrals or links to health care.
2
‘‘(9) INDIAN TRIBE.—The term ‘Indian Tribe’
3
means any Indian Tribe, band, nation, or other or-
4
ganized group or community, including any Alaska
5
Native village or group or regional or village cor-
6
poration as defined in or established pursuant to the
7
Alaska Native Claims Settlement Act (85 Stat. 688)
8
(43 U.S.C. 1601 et seq.), which is recognized as eli-
9
gible for the special programs and services provided
10
by the United States to Indians because of their sta-
11
tus as Indians.
12
‘‘(10) INTEGRATED
HEALTH
CARE
DELIVERY
13
SYSTEM.—The term ‘integrated health care delivery
14
system’ means an interdisciplinary system that
15
brings together providers from the primary health,
16
mental health, substance use and related disciplines
17
to improve the health outcomes of an individual.
18
Providers may include but are not limited to hos-
19
pitals, health, mental health or substance use clinics
20
and providers, home health agencies, ambulatory
21
surgery centers, skilled nursing facilities, rehabilita-
22
tion centers, and employed, independent, or con-
23
tracted physicians.
24
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‘‘(11) INDIVIDUAL
WITH
A
DISABILITY.—The
1
term ‘individual with a disability’ means any indi-
2
vidual who has a disability as defined for the pur-
3
pose of section 504 of the Rehabilitation Act of
4
1973. Where this title references regulatory provi-
5
sions applicable to a ‘handicapped individual’, the
6
term ‘handicapped individual’ in such provisions
7
shall be treated to have the same meaning as the
8
term ‘individual with a disability’ as defined in this
9
section.
10
‘‘(12) INDIVIDUAL
WITH
LIMITED-ENGLISH
11
PROFICIENCY.—The term ‘individual with limited-
12
English proficiency’ means an individual whose pri-
13
mary language for communication is not English
14
and who has a limited ability to read, write, speak,
15
or understand English.
16
‘‘(13) INTERPRETING; INTERPRETATION.—The
17
terms ‘interpreting’ and ‘interpretation’ mean the
18
transmission of a spoken, written, or signed message
19
from one language or format into another, faithfully,
20
accurately, and objectively.
21
‘‘(14) LANGUAGE ACCESS.—The term ‘language
22
access’ means the provision of language services to
23
an individual with limited-English proficiency or an
24
individual with communication disabilities designed
25
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•HR 5942 IH
to enhance that individual’s access to, understanding
1
of, or benefit from health care or health-care-related
2
services.
3
‘‘(15) LANGUAGE ASSISTANCE SERVICES.—The
4
term ‘language assistance services’ includes—
5
‘‘(A) oral language assistance, including in-
6
terpretation in non-English languages provided
7
in-person or remotely by a qualified interpreter
8
for an individual with limited-English pro-
9
ficiency, and the use of qualified bilingual or
10
multilingual staff to communicate directly with
11
individuals with limited-English proficiency;
12
‘‘(B) written translation, performed by a
13
qualified translator, of written content in paper
14
or electronic form into languages other than
15
English; and
16
‘‘(C) taglines.
17
‘‘(16) MEDICARE, MEDICAID, AND SCHIP.—The
18
terms ‘Medicare’, ‘Medicaid’, and ‘SCHIP’ mean the
19
respective programs under titles XVIII, XIX, and
20
XXI of the Social Security Act.
21
‘‘(17) MINORITY.—
22
‘‘(A) IN GENERAL.—The terms ‘minority’
23
and ‘minorities’ refer to individuals from a mi-
24
nority group.
25
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‘‘(B) POPULATIONS.—The term ‘minority’,
1
with respect to populations, refers to racial and
2
ethnic minority groups, members of sexual and
3
gender minority groups, and individuals with a
4
disability.
5
‘‘(18) MINORITY GROUP.—The term ‘minority
6
group’ has the meaning given the term ‘racial and
7
ethnic minority group’.
8
‘‘(19) QUALIFIED INTERPRETER FOR AN INDI-
9
VIDUAL
WITH
LIMITED-ENGLISH
PROFICIENCY.—
10
The term ‘qualified interpreter for an individual with
11
limited-English proficiency’ means an interpreter
12
who via a remote interpreting service or an on-site
13
appearance—
14
‘‘(A) adheres to generally accepted inter-
15
preter ethics principles, including client con-
16
fidentiality;
17
‘‘(B) has demonstrated proficiency in
18
speaking
and
understanding
both
spoken
19
English and one or more other spoken lan-
20
guages; and
21
‘‘(C) is able to interpret effectively, accu-
22
rately, and impartially, both receptively and ex-
23
pressly, to and from such languages and
24
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•HR 5942 IH
English, using any necessary specialized vocab-
1
ulary, terminology, and phraseology.
2
‘‘(20) QUALIFIED
TRANSLATOR.—The term
3
‘qualified translator’ means a translator who—
4
‘‘(A) adheres to generally accepted trans-
5
lator ethics principles, including client confiden-
6
tiality;
7
‘‘(B) has demonstrated proficiency in writ-
8
ing and understanding both written English
9
and one or more other written non-English lan-
10
guages; and
11
‘‘(C) is able to translate effectively, accu-
12
rately, and impartially to and from such lan-
13
guages and English, using any necessary spe-
14
cialized vocabulary, terminology, and phrase-
15
ology.
16
‘‘(21) RACIAL AND ETHNIC MINORITY GROUP.—
17
The term ‘racial and ethnic minority group’ means
18
American Indians and Alaska Natives, African
19
Americans (including Caribbean Blacks, Africans,
20
and other Blacks), Asian Americans, Hispanics (in-
21
cluding Latinos), and Native Hawaiians and other
22
Pacific Islanders.
23
‘‘(22)
SEXUAL
AND
GENDER
MINORITY
24
GROUP.—The term ‘sexual and gender minority
25
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•HR 5942 IH
group’ encompasses lesbian, gay, bisexual, and
1
transgender populations, as well as those whose sex-
2
ual orientation, gender identity and expression, or
3
reproductive development varies from traditional, so-
4
cietal, cultural, or physiological norms.
5
‘‘(23) ONSITE
INTERPRETATION.—The term
6
‘onsite interpretation’ means a method of inter-
7
preting or interpretation for which the interpreter is
8
in the physical presence of the provider of health
9
care or health-care-related services and the recipient
10
of such services who is limited in English proficiency
11
or has a communication impairment such as hear-
12
ing, vision, or learning.
13
‘‘(24)
SECRETARY.—The
term
‘Secretary’
14
means the Secretary of Health and Human Services.
15
‘‘(25) SIGHT TRANSLATION.—The term ‘sight
16
translation’ means the transmission of a written
17
message in one language into a spoken or signed
18
message in another language, or an alternative for-
19
mat in English or another language.
20
‘‘(26) STATE.—The term ‘State’ means each of
21
the several States, the District of Columbia, the
22
Commonwealth of Puerto Rico, the Indian Tribes,
23
the United States Virgin Islands, Guam, American
24
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•HR 5942 IH
Samoa, and the Commonwealth of the Northern
1
Mariana Islands.
2
‘‘(27)
TELEPHONIC
INTERPRETATION.—The
3
term ‘telephonic interpretation’ (also known as over
4
the phone interpretation or OPI) means a method of
5
interpretation for which the interpreter is not in the
6
physical presence of the provider of health care or
7
related services and the limited-English-proficient re-
8
cipient of such services but is connected via tele-
9
phone.
10
‘‘(28) TRANSLATION.—The term ‘translation’
11
means the transmission of a written message in one
12
language into a written or signed message in an-
13
other language, and includes translation into an-
14
other language or alternative format, such as large
15
print font, Braille, audio recording, or CD.
16
‘‘(29) VIDEO
REMOTE
INTERPRETING
SERV-
17
ICES.—The term ‘video remote interpreting services’
18
means the provision, through a qualified interpreter
19
for an individual with limited-English proficiency, of
20
video remote interpreting services in health pro-
21
grams and activities.
22
‘‘(A) in real-time, full-motion video, and
23
audio over a dedicated high-speed, wide-band-
24
width video connection or wireless connection
25
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•HR 5942 IH
that delivers high quality video images that do
1
not produce lags, choppy, blurry, or grainy im-
2
ages, or irregular pauses in communication; and
3
‘‘(B) in a sharply delineated image that is
4
large enough to display.
5
‘‘(30) VITAL DOCUMENT.—The term ‘vital doc-
6
ument’ includes but is not limited to applications for
7
government programs that provide health care serv-
8
ices, medical or financial consent forms, financial as-
9
sistance documents, letters containing important in-
10
formation regarding patient instructions (such as
11
prescriptions, referrals to other providers, and dis-
12
charge plans) and participation in a program (such
13
as a Medicaid managed care program), notices per-
14
taining to the reduction, denial, or termination of
15
services or benefits, notices of the right to appeal
16
such actions, and notices advising limited-English-
17
proficient individuals and individuals with commu-
18
nication disabilities of the availability of free lan-
19
guage services, alternative formats, and other out-
20
reach materials.
21
‘‘SEC. 3401. IMPROVING ACCESS TO SERVICES FOR INDIVID-
22
UALS WITH LIMITED-ENGLISH PROFICIENCY.
23
‘‘(a) PURPOSE.—As provided in Executive Order
24
13166, it is the purpose of this section—
25
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•HR 5942 IH
‘‘(1) to improve Federal agency performance re-
1
garding access to federally conducted and federally
2
assisted programs and activities for individuals who
3
are limited in their English proficiency;
4
‘‘(2) to require each Federal agency to examine
5
the services it provides and develop and implement
6
a system by which limited-English-proficient individ-
7
uals can obtain cultural competence and meaningful
8
access to those services consistent with, and without
9
substantially burdening, the fundamental mission of
10
the agency;
11
‘‘(3) to require each Federal agency to ensure
12
that recipients of Federal financial assistance pro-
13
vide cultural competence and meaningful access to
14
their limited-English-proficient applicants and bene-
15
ficiaries;
16
‘‘(4) to ensure that recipients of Federal finan-
17
cial assistance take reasonable steps, consistent with
18
the guidelines set forth in the limited-English pro-
19
ficient Guidance of the Department of Justice (as
20
issued on June 12, 2002), to ensure cultural com-
21
petence and meaningful access to their programs
22
and activities by limited-English-proficient individ-
23
uals; and
24
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•HR 5942 IH
‘‘(5) to ensure compliance with title VI of the
1
Civil Rights Act of 1964 and that health care pro-
2
viders and organizations do not discriminate in the
3
provision of services.
4
‘‘(b) FEDERALLY CONDUCTED PROGRAMS AND AC-
5
TIVITIES.—
6
‘‘(1) IN GENERAL.—Not later than 120 days
7
after the date of enactment of this title, each Fed-
8
eral agency that carries out health-care-related ac-
9
tivities shall prepare a plan to improve access cul-
10
tural competence to the federally conducted, health-
11
care-related programs and activities of the agency by
12
limited-English-proficient individuals. Not later than
13
one year after the date of enactment of this title,
14
each such Federal agency shall ensure that such
15
plan is fully implemented.
16
‘‘(2) PLAN REQUIREMENT.—Each plan under
17
paragraph (1) shall include—
18
‘‘(A) the steps the agency will take to en-
19
sure that limited-English-proficient individuals
20
have access to the agency’s federally conducted
21
health care and health-care-related programs
22
and activities;
23
‘‘(B) the policies and procedures for identi-
24
fying, assessing, and meeting the language
25
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•HR 5942 IH
needs and cultural competence needs of its lim-
1
ited-English-proficient beneficiaries served by
2
federally conducted programs and activities;
3
‘‘(C) the steps the agency will take for its
4
federally conducted programs and activities to
5
improve cultural competence to provide a range
6
of language assistance options, notice to lim-
7
ited-English-proficient individuals of the right
8
to competent language services, periodic train-
9
ing of staff, monitoring and quality assessment
10
of the language services and, in appropriate cir-
11
cumstances, the translation of written mate-
12
rials;
13
‘‘(D) the steps the agency will take to en-
14
sure that applications, forms, and other rel-
15
evant documents for its federally conducted pro-
16
grams and activities are competently translated
17
into the primary language of a limited-English-
18
proficient client where such materials are need-
19
ed to improve access to federally conducted and
20
federally assisted programs and activities for
21
such a limited-English-proficient individual;
22
‘‘(E) the resources the agency will provide
23
to improve cultural competence to assist recipi-
24
ents of Federal funds to improve access to
25
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•HR 5942 IH
health care or health-care-related programs and
1
activities for limited-English-proficient individ-
2
uals;
3
‘‘(F) the resources the agency will provide
4
to ensure that competent language assistance is
5
provided to limited-English-proficient patients
6
by interpreters or trained bilingual staff; and
7
‘‘(G) the resources the agency will provide
8
to ensure that family, particularly minor chil-
9
dren, and friends are not used to provide inter-
10
pretation services, except—
11
‘‘(i) in the case of a medical emer-
12
gency where delay directly associated with
13
obtaining a competent interpreter would
14
jeopardize the health of the patient; or
15
‘‘(ii) on request of the patient, who
16
has been informed in his or her preferred
17
language of the availability of free inter-
18
pretation services, if the health care serv-
19
ices provider has determined that the fam-
20
ily or friend can provide competent inter-
21
preter services as defined in section 3400.
22
‘‘(3) SUBMISSION
OF
PLAN
TO
DOJ.—Each
23
agency that is required to prepare a plan under
24
paragraph (1) shall send a copy of such plan to the
25
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•HR 5942 IH
Department of Justice, which shall serve as the cen-
1
tral repository of such plans.
2
‘‘(4) RULE
OF
CONSTRUCTION.—Paragraph
3
(2)(G)(i) shall not be construed to mean that emer-
4
gency rooms or similar entities that regularly pro-
5
vide health care services in medical emergencies are
6
exempt from legal or regulatory requirements related
7
to competent interpreter services.
8
‘‘(c) FEDERALLY ASSISTED PROGRAMS AND ACTIVI-
9
TIES.—
10
‘‘(1) IN GENERAL.—Not later than 120 days
11
after the date of enactment of this title, each Fed-
12
eral agency providing health-care-related Federal fi-
13
nancial assistance shall ensure that the guidance for
14
recipients of Federal financial assistance developed
15
by the agency to ensure compliance with title VI of
16
the Civil Rights Act of 1964 (42 U.S.C. 2000d et
17
seq.) is specifically tailored to the recipients of such
18
assistance. Each agency shall send a copy of such
19
guidance to the Department of Justice which shall
20
serve as the central repository of the agency’s plans.
21
After approval by the Department of Justice, each
22
agency shall publish its guidance document in the
23
Federal Register for public comment.
24
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•HR 5942 IH
‘‘(2)
REQUIREMENTS.—The
agency-specific
1
guidance developed under paragraph (1) shall take
2
into account the types of health care services pro-
3
vided by the recipients, the individuals served by the
4
recipients, and other factors set out in such stand-
5
ards.
6
‘‘(3) EXISTING GUIDANCES.—A Federal agency
7
that has developed a guidance for purposes of title
8
VI of the Civil Rights Act of 1964 shall examine
9
such existing guidance, as well as the programs and
10
activities to which such guidance applies, to deter-
11
mine if modification of such guidance is necessary to
12
comply with this subsection.
13
‘‘(4) CONSULTATION.—Each Federal agency
14
shall consult with the Department of Justice in es-
15
tablishing the guidances under this subsection.
16
‘‘(d) CONSULTATIONS.—
17
‘‘(1) IN GENERAL.—In carrying out this sec-
18
tion, each Federal agency that carriers out health
19
care and health-care-related activities shall ensure
20
that stakeholders, such as limited-English-proficient
21
individuals and their representative organizations,
22
recipients of Federal assistance, and other appro-
23
priate individuals or entities, have an adequate op-
24
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•HR 5942 IH
portunity to provide input with respect to the actions
1
of the agency.
2
‘‘(2) EVALUATION.—Each Federal agency de-
3
scribed in paragraph (1) shall evaluate the—
4
‘‘(A) particular needs of the limited-
5
English-proficient individuals served by the
6
agency;
7
‘‘(B) particular needs of the limited-
8
English-proficient individuals served by the
9
agency’s recipients of Federal financial assist-
10
ance; and
11
‘‘(C) burdens of compliance with the agen-
12
cy guidance and this section for the agency and
13
its recipients.
14
‘‘SEC. 3402. NATIONAL STANDARDS FOR CULTURALLY AND
15
LINGUISTICALLY APPROPRIATE SERVICES IN
16
HEALTH CARE.
17
‘‘(a) APPLICABILITY.—This section applies to any
18
health program or activity, any part of which is receiving
19
Federal financial assistance, including credits, subsidies,
20
or contracts of insurance, or any program or activity that
21
is administered by an executive agency or any entity estab-
22
lished under title I of the Patient Protection and Afford-
23
able Care Act (or amendments made thereby), as such
24
programs, activities, agencies, and entities are described
25
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65
•HR 5942 IH
in section 1557(a) of the Patient Protection and Afford-
1
able Care Act.
2
‘‘(b) STANDARDS.—The programs, activities, agen-
3
cies, and entities described in subsection (a)—
4
‘‘(1) shall implement strategies to recruit, re-
5
tain, and promote individuals at all levels to main-
6
tain a diverse staff and leadership that can provide
7
culturally and linguistically appropriate health care
8
to patient populations of the service area of the pro-
9
grams, activities, agencies, and entities;
10
‘‘(2) shall educate and train governance, leader-
11
ship, and workforce at all levels and across all dis-
12
ciplines of the programs, activities, agencies, and en-
13
tities in culturally and linguistically appropriate poli-
14
cies and practices on an ongoing basis;
15
‘‘(3) shall offer and provide language assist-
16
ance, including trained bilingual staff and inter-
17
preter services, to individuals who have limited-
18
English proficiency or other communication needs,
19
at no cost to them at all points of contact, and dur-
20
ing all hours of operation, to facilitate timely access
21
to all health care and services;
22
‘‘(4) shall notify patients, in a culturally appro-
23
priate manner, of their right to receive language as-
24
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sistance services in their primary language, verbally
1
and in writing;
2
‘‘(5) shall not—
3
‘‘(A) require an individual with limited-
4
English proficiency to provide his or her own
5
interpreter;
6
‘‘(B) rely on an adult accompanying an in-
7
dividual with limited-English proficiency to in-
8
terpret or facilitate communication, except—
9
‘‘(i) in an emergency involving an im-
10
minent threat to the safety or welfare of
11
an individual or the public where there is
12
no qualified interpreter for the individual
13
with limited-English proficiency imme-
14
diately available; or
15
‘‘(ii) where the individual with limited-
16
English proficiency specifically requests
17
that the accompanying adult interpret or
18
facilitate
communication,
the
accom-
19
panying adult agrees to provide such as-
20
sistance, and reliance on that adult for
21
such assistance is appropriate under the
22
circumstances;
23
‘‘(C) rely on a minor child to interpret or
24
facilitate communication, except in an emer-
25
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gency involving an imminent threat to the safe-
1
ty or welfare of an individual or the public
2
where there is no qualified interpreter for the
3
individual with limited-English proficiency im-
4
mediately available; or
5
‘‘(D) rely on staff other than qualified bi-
6
lingual or multilingual staff to communicate di-
7
rectly with individuals;
8
‘‘(6) shall for each eligible LEP language group
9
that constitutes 5 percent or 500 individuals, which-
10
ever is less, of the population of persons eligible to
11
be served or likely to be affected or encountered in
12
the service area of the organization, make avail-
13
able—
14
‘‘(A) easily understood patient-related ma-
15
terials, including print and multimedia mate-
16
rials;
17
‘‘(B) information or notices about termi-
18
nation of benefits; and
19
‘‘(C) signage;
20
‘‘(7) shall develop and implement clear goals,
21
policies, operational plans, and management, ac-
22
countability, and oversight mechanisms to provide
23
culturally and linguistically appropriate services and
24
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infuse them throughout the organization’s planning
1
and operations;
2
‘‘(8) shall conduct initial and ongoing organiza-
3
tional assessments of culturally and linguistically ap-
4
propriate services-related activities and integrate
5
valid linguistic, competence-related National Stand-
6
ards for Culturally and Linguistically Appropriate
7
Services (CLAS) measures into the internal audits,
8
performance improvement programs, patient satis-
9
faction assessments, continuous quality improvement
10
activities, and outcomes-based evaluations of the or-
11
ganization and develop ways to standardize the as-
12
sessments;
13
‘‘(9) shall ensure that, consistent with the pri-
14
vacy protections provided for under the regulations
15
promulgated under section 264(c) of the Health In-
16
surance Portability and Accountability Act of 1996,
17
data on an individual required to be collected pursu-
18
ant to section 3101, including the individual’s alter-
19
native format preferences and policy modification
20
needs, are—
21
‘‘(A) collected in health records;
22
‘‘(B) integrated into the organization’s
23
management information systems; and
24
‘‘(C) periodically updated;
25
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‘‘(10) shall maintain a current demographic,
1
cultural, and epidemiological profile of the commu-
2
nity, conduct regular assessments of community
3
health assets and needs, and use the results to accu-
4
rately plan for and implement services that respond
5
to the cultural and linguistic characteristics of the
6
service area of the organization;
7
‘‘(11) shall develop participatory, collaborative
8
partnerships with communities and utilize a variety
9
of formal and informal mechanisms to facilitate
10
community and patient involvement in designing,
11
implementing, and evaluating policies and practices
12
to ensure culturally and linguistically appropriate
13
service-related activities;
14
‘‘(12) shall ensure that conflict and grievance
15
resolution processes are culturally and linguistically
16
sensitive and capable of identifying, preventing, and
17
resolving cross-cultural conflicts or complaints by
18
patients;
19
‘‘(13) shall regularly make available to the pub-
20
lic information about their progress and successful
21
innovations in implementing the standards under
22
this section and provide public notice in their com-
23
munities about the availability of this information;
24
and
25
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‘‘(14) shall, if requested, regularly make avail-
1
able to the head of each Federal entity from which
2
Federal funds are received, information about their
3
progress and successful innovations in implementing
4
the standards under this section as required by the
5
head of such entity.
6
‘‘SEC. 3403. ROBERT T. MATSUI CENTER FOR CULTURAL
7
AND LINGUISTIC COMPETENCE IN HEALTH
8
CARE.
9
‘‘(a)
ESTABLISHMENT.—The
Secretary,
acting
10
through the Director of the Agency for Healthcare Re-
11
search and Quality, shall establish and support a center
12
to be known as the ‘Robert T. Matsui Center for Cultural
13
and Linguistic Competence in Health Care’ (referred to
14
in this section as the ‘Center’) to carry out the following
15
activities:
16
‘‘(1) INTERPRETATION SERVICES.—The Center
17
shall provide resources via the internet to identify
18
and link health care providers to competent inter-
19
preter and translation services.
20
‘‘(2) TRANSLATION OF WRITTEN MATERIAL.—
21
‘‘(A) The Center shall provide, directly or
22
through contract, vital documents from com-
23
petent translation services for providers of
24
health care and health-care-related services at
25
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no cost to such providers. Materials may be
1
submitted for translation into non-English lan-
2
guages. Translation services shall be provided
3
in a timely and reasonable manner. The quality
4
of such translation services shall be monitored
5
and reported publicly.
6
‘‘(B) For each form developed or revised
7
by the Secretary that will be used by LEP indi-
8
viduals in health care or health-care-related set-
9
tings, the Center shall translate the form, at a
10
minimum, into the top 15 non-English lan-
11
guages in the United States according to the
12
most recent data from the American Commu-
13
nity Survey or its replacement. The translation
14
must be completed within 45 days of the Sec-
15
retary receiving final approval of the form from
16
the Office of Management and Budget.
17
‘‘(3) TOLL-FREE
CUSTOMER
SERVICE
TELE-
18
PHONE
NUMBER.—The
Center
shall
provide,
19
through a toll-free number, a customer service line
20
for LEP individuals—
21
‘‘(A) to obtain information about federally
22
conducted or funded health programs, including
23
Medicare, Medicaid, and SCHIP;
24
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‘‘(B) to obtain assistance with applying for
1
or accessing these programs and understanding
2
Federal notices written in English; and
3
‘‘(C) to learn how to access language serv-
4
ices.
5
‘‘(4)
HEALTH
INFORMATION
CLEARING-
6
HOUSE.—
7
‘‘(A) IN GENERAL.—The Center shall de-
8
velop and maintain an information clearing-
9
house to facilitate the provision of language
10
services by providers of health care and health-
11
care-related services to reduce medical errors,
12
improve medical outcomes, to improve cultural
13
competence, reduce health care costs caused by
14
miscommunication with individuals with lim-
15
ited-English proficiency, and reduce or elimi-
16
nate the duplication of effort to translate mate-
17
rials. The clearinghouse shall make such infor-
18
mation available on the internet and in print.
19
Such information shall include the information
20
described in the succeeding provisions of this
21
paragraph.
22
‘‘(B) DOCUMENT TEMPLATES.—The Cen-
23
ter shall collect and evaluate for accuracy, de-
24
velop, and make available templates for stand-
25
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ard documents that are necessary for patients
1
and consumers to access and make educated de-
2
cisions about their health care, including the
3
following:
4
‘‘(i) Administrative and legal docu-
5
ments, including—
6
‘‘(I) intake forms;
7
‘‘(II) Medicare, Medicaid, and
8
SCHIP forms, including eligibility in-
9
formation;
10
‘‘(III) forms informing patient of
11
HIPAA compliance and consent; and
12
‘‘(IV) documents concerning in-
13
formed consent, advanced directives,
14
and waivers of rights.
15
‘‘(ii) Clinical information, such as how
16
to take medications, how to prevent trans-
17
mission of a contagious disease, and other
18
prevention and treatment instructions.
19
‘‘(iii) Public health, patient education,
20
and outreach materials, such as immuniza-
21
tion notices, health warnings, or screening
22
notices.
23
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•HR 5942 IH
‘‘(iv) Additional health or health-care-
1
related materials as determined appro-
2
priate by the Director of the Center.
3
‘‘(C) STRUCTURE
OF
FORMS.—In oper-
4
ating the clearinghouse, the Center shall—
5
‘‘(i) ensure that the documents posted
6
in English and non-English languages are
7
culturally appropriate;
8
‘‘(ii) allow public review of the docu-
9
ments before dissemination in order to en-
10
sure that the documents are understand-
11
able and culturally appropriate for the tar-
12
get populations;
13
‘‘(iii) allow health care providers to
14
customize the documents for their use;
15
‘‘(iv) facilitate access to these docu-
16
ments;
17
‘‘(v) provide technical assistance with
18
respect to the access and use of such infor-
19
mation; and
20
‘‘(vi) carry out any other activities the
21
Secretary determines to be useful to fulfill
22
the purposes of the clearinghouse.
23
‘‘(D)
LANGUAGE
ASSISTANCE
PRO-
24
GRAMS.—The Center shall provide for the col-
25
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•HR 5942 IH
lection and dissemination of information on cur-
1
rent examples of language assistance programs
2
and strategies to improve language services for
3
LEP individuals, including case studies using
4
de-identified patient information, program sum-
5
maries, and program evaluations.
6
‘‘(E) CULTURAL
AND
LINGUISTIC
COM-
7
PETENCE MATERIALS.—The Center shall pro-
8
vide information relating to culturally and lin-
9
guistically competent health care for minority
10
populations residing in the United States to all
11
health care providers and health-care-related
12
services at no cost. Such information shall in-
13
clude—
14
‘‘(i) tenets of culturally and linguis-
15
tically competent care;
16
‘‘(ii) cultural and linguistic com-
17
petence self-assessment tools;
18
‘‘(iii) cultural and linguistic com-
19
petence training tools;
20
‘‘(iv) strategic plans to increase cul-
21
tural and linguistic competence in different
22
types of providers of health care and
23
health-care-related services, including re-
24
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•HR 5942 IH
gional collaborations among health care or-
1
ganizations; and
2
‘‘(v) cultural and linguistic com-
3
petence information for educators, practi-
4
tioners, and researchers.
5
‘‘(F) INFORMATION
ABOUT
PROGRESS.—
6
The Center shall regularly collect and make
7
publicly
available
information
about
the
8
progress of entities receiving grants under sec-
9
tion 3404 regarding successful innovations in
10
implementing the obligations under this sub-
11
section and provide public notice in the entities’
12
communities about the availability of this infor-
13
mation.
14
‘‘(b) DIRECTOR.—The Center shall be headed by a
15
Director who shall be appointed by, and who shall report
16
to, the Director of the Agency for Healthcare Research
17
and Quality.
18
‘‘(c) AVAILABILITY OF LANGUAGE ACCESS.—The Di-
19
rector shall collaborate with the Deputy Assistant Sec-
20
retary for Minority Health, the Administrator of the Cen-
21
ters for Medicare & Medicaid Services, and the Adminis-
22
trator of the Health Resources and Services Administra-
23
tion to notify health care providers and health care organi-
24
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•HR 5942 IH
zations about the availability of language access services
1
by the Center.
2
‘‘(d)
EDUCATION.—The
Secretary,
directly
or
3
through contract, shall undertake a national education
4
campaign to inform providers, LEP individuals, health
5
professionals, graduate schools, and community health
6
centers about—
7
‘‘(1) Federal and State laws and guidelines gov-
8
erning access to language services;
9
‘‘(2) the value of using trained interpreters and
10
the risks associated with using family members,
11
friends, minors, and untrained bilingual staff;
12
‘‘(3) funding sources for developing and imple-
13
menting language services; and
14
‘‘(4) promising practices to effectively provide
15
language services.
16
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—In ad-
17
dition to the amounts authorized under subsection
18
(e)(8)(F), there are authorized to be appropriated to carry
19
out this section $5,000,000 for each of fiscal years 2019
20
through 2023.
21
‘‘SEC. 3404. INNOVATIONS IN CULTURAL AND LINGUISTIC
22
COMPETENCE GRANTS.
23
‘‘(a) IN GENERAL.—The Secretary, acting through
24
the Director of the Agency for Healthcare Research and
25
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•HR 5942 IH
Quality, shall award grants to eligible entities to enable
1
such entities to design, implement, and evaluate innova-
2
tive, cost-effective programs to improve cultural com-
3
petence and language access in health care for individuals
4
with limited-English proficiency. The Director of the
5
Agency for Healthcare Research and Quality shall coordi-
6
nate with, and ensure the participation of, other agencies
7
including the Health Resources and Services Administra-
8
tion, the Center on Minority Health and Health Dispari-
9
ties at the National Institutes of Health, and the Office
10
of Minority Health, regarding the design and evaluation
11
of the grants program.
12
‘‘(b) ELIGIBILITY.—To be eligible to receive a grant
13
under subsection (a) an entity shall—
14
‘‘(1) be—
15
‘‘(A) a city, county, Indian Tribe, State,
16
territory, or subdivision thereof;
17
‘‘(B) an organization described in section
18
501(c)(3) of the Internal Revenue Code of 1986
19
and exempt from tax under section 501(a) of
20
such Code;
21
‘‘(C) a community health, mental health,
22
or substance use center or clinic;
23
‘‘(D) a solo or group physician practice;
24
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•HR 5942 IH
‘‘(E) an integrated health care delivery
1
system;
2
‘‘(F) a public hospital;
3
‘‘(G) a health care group, university, or
4
college; or
5
‘‘(H) other entity designated by the Sec-
6
retary; and
7
‘‘(2) prepare and submit to the Secretary an
8
application, at such time, in such manner, and ac-
9
companied by such additional information as the
10
Secretary may require.
11
‘‘(c) USE OF FUNDS.—An entity shall use funds re-
12
ceived under a grant under this section to—
13
‘‘(1) develop, implement, and evaluate models of
14
providing competent interpretation services through
15
onsite interpretation, telephonic interpretation, or
16
video interpretation;
17
‘‘(2) implement strategies to recruit, retain, and
18
promote individuals at all levels of the organization
19
to maintain a diverse staff and leadership that can
20
promote and provide language services to patient
21
populations of the service area of the organization;
22
‘‘(3) develop and maintain a needs assessment
23
that identifies the current demographic, cultural,
24
and epidemiological profile of the community to ac-
25
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•HR 5942 IH
curately plan for and implement language services
1
needed in service area of the organization;
2
‘‘(4) develop a strategic plan to implement lan-
3
guage services;
4
‘‘(5) develop participatory, collaborative part-
5
nerships with communities encompassing the LEP
6
patient populations being served to gain input in de-
7
signing and implementing language services;
8
‘‘(6) develop and implement grievance resolu-
9
tion processes that are culturally and linguistically
10
sensitive and capable of identifying, preventing, and
11
resolving complaints by LEP individuals;
12
‘‘(7) develop short-term medical mental health
13
interpretation training courses and incentives for bi-
14
lingual health care staff who are asked to interpret
15
in the workplace;
16
‘‘(8) develop formal training programs, includ-
17
ing continued professional development and edu-
18
cation programs as well as supervision, for individ-
19
uals interested in becoming dedicated health care in-
20
terpreters and culturally competent providers;
21
‘‘(9) provide staff language training instruction,
22
which shall include information on the practical limi-
23
tations of such instruction for nonnative speakers;
24
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‘‘(10) develop policies that address compensa-
1
tion in salary for staff who receive training to be-
2
come either a staff interpreter or bilingual provider;
3
‘‘(11) develop other language assistance services
4
as determined appropriate by the Secretary;
5
‘‘(12) develop, implement, and evaluate models
6
of improving cultural competence, including cultural
7
competence programs for community health workers;
8
and
9
‘‘(13) ensure that, consistent with the privacy
10
protections provided for under the regulations pro-
11
mulgated under section 264(c) of the Health Insur-
12
ance Portability and Accountability Act of 1996 (42
13
U.S.C. 1320d–2 note) and any applicable State pri-
14
vacy laws, data on the individual patient or recipi-
15
ent’s race, ethnicity, and primary language are col-
16
lected (and periodically updated) in health records
17
and integrated into the organization’s information
18
management systems or any similar system used to
19
store and retrieve data.
20
‘‘(d) PRIORITY.—In awarding grants under this sec-
21
tion, the Secretary shall give priority to entities that pri-
22
marily engage in providing direct care and that have devel-
23
oped partnerships with community organizations or with
24
agencies with experience in improving language access.
25
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‘‘(e) EVALUATION.—
1
‘‘(1) BY GRANTEES.—An entity that receives a
2
grant under this section shall submit to the Sec-
3
retary an evaluation that describes, in the manner
4
and to the extent required by the Secretary, the ac-
5
tivities carried out with funds received under the
6
grant, and how such activities improved access to
7
health and health-care-related services and the qual-
8
ity of health care for individuals with limited-English
9
proficiency. Such evaluation shall be collected and
10
disseminated through the Robert T. Matsui Center
11
for Cultural and Linguistic Competence in Health
12
Care established under section 3403. The Director
13
of the Agency for Healthcare Research and Quality
14
shall notify grantees of the availability of technical
15
assistance for the evaluation and provide such assist-
16
ance upon request.
17
‘‘(2) BY
SECRETARY.—The Director of the
18
Agency for Healthcare Research and Quality shall
19
evaluate or arrange with other individuals or organi-
20
zations to evaluate projects funded under this sec-
21
tion.
22
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There
23
is authorized to be appropriated to carry out this section,
24
$5,000,000 for each of fiscal years 2019 through 2023.
25
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‘‘SEC. 3405. RESEARCH ON CULTURAL AND LANGUAGE COM-
1
PETENCE.
2
‘‘(a) IN GENERAL.—The Secretary, acting through
3
the Director of the Agency for Healthcare Research and
4
Quality, shall expand research concerning language access
5
in the provision of health care.
6
‘‘(b) ELIGIBILITY.—The Director of the Agency for
7
Healthcare Research and Quality may conduct the re-
8
search described in subsection (a) or enter into contracts
9
with other individuals or organizations to do so.
10
‘‘(c) USE OF FUNDS.—Research under this section
11
shall be designed to do one or more of the following:
12
‘‘(1) To identify the barriers to mental and be-
13
havioral services that are faced by LEP individuals.
14
‘‘(2) To identify health care providers’ and
15
health administrators’ attitudes, knowledge, and
16
awareness of the barriers to quality health care serv-
17
ices that are faced by LEP individuals.
18
‘‘(3) To identify optimal approaches for deliv-
19
ering language access.
20
‘‘(4) To identify best practices for data collec-
21
tion, including—
22
‘‘(A) the collection by providers of health
23
care and health-care-related services of data on
24
the race, ethnicity, and primary language of re-
25
cipients of such services, taking into account ex-
26
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isting research conducted by the Government or
1
private sector;
2
‘‘(B) the development and implementation
3
of data collection and reporting systems; and
4
‘‘(C) effective privacy safeguards for col-
5
lected data.
6
‘‘(5) To develop a minimum data collection set
7
for primary language.
8
‘‘(6) To evaluate the most effective ways in
9
which the Department can create or coordinate, and
10
then subsidize or otherwise fund telephonic interpre-
11
tation providers for health care providers, taking
12
into consideration, among other factors, the flexi-
13
bility necessary for such a system to accommodate
14
variations in—
15
‘‘(A) provider type;
16
‘‘(B) languages needed and their frequency
17
of use;
18
‘‘(C) type of encounter;
19
‘‘(D) time of encounter, including regular
20
business hours and after hours; and
21
‘‘(E) location of encounter.
22
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There
23
are authorized to be appropriated to carry out this section
24
$5,000,000 for each of fiscal years 2019 through 2023.’’.
25
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SEC. 203. PILOT PROGRAM FOR IMPROVEMENT AND DE-
1
VELOPMENT
OF
STATE
MEDICAL
INTER-
2
PRETING SERVICES.
3
(a) GRANTS
AUTHORIZED.—The Secretary shall
4
award one grant in accordance with this section to each
5
of three States to assist each such State in designing, im-
6
plementing, and evaluating a statewide program to provide
7
onsite interpreter services under Medicaid.
8
(b) GRANT PERIOD.—A grant awarded under this
9
section is authorized for a period of three fiscal years be-
10
ginning on October 1, 2019.
11
(c) PREFERENCE.—In awarding a grant under this
12
section, the Secretary shall give preference to a State—
13
(1) that has a high proportion of qualified LEP
14
enrollees, as determined by the Secretary;
15
(2) that has a large number of qualified LEP
16
enrollees, as determined by the Secretary;
17
(3) that has a high growth rate of the popu-
18
lation of LEP individuals, as determined by the Sec-
19
retary; and
20
(4) that has a population of qualified LEP en-
21
rollees that is linguistically diverse, requiring inter-
22
preter services in at least 200 non-English lan-
23
guages.
24
(d) USE OF FUNDS.—A State receiving a grant under
25
this section shall use the grant funds to—
26
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•HR 5942 IH
(1) ensure that all health care providers in the
1
State participating in the State plan under Medicaid
2
have access to onsite interpreter services, for the
3
purpose of enabling effective communication between
4
such providers and qualified LEP enrollees during
5
the furnishing of items and services and administra-
6
tive interactions;
7
(2) establish, expand, procure, or contract for—
8
(A) a statewide health care information
9
technology system that is designed to achieve
10
efficiencies and economies of scale with respect
11
to onsite interpreter services provided to health
12
care providers in the State participating in the
13
State plan under Medicaid; and
14
(B) an entity to administer such system,
15
the duties of which shall include—
16
(i) procuring and scheduling inter-
17
preter services for qualified LEP enrollees;
18
(ii) procuring and scheduling inter-
19
preter services for LEP individuals seeking
20
to enroll in the State plan under Medicaid;
21
(iii) ensuring that interpreters receive
22
payment for interpreter services rendered
23
under the system; and
24
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•HR 5942 IH
(iv) consulting regularly with organi-
1
zations
representing
consumers,
inter-
2
preters, and health care providers; and
3
(3) develop mechanisms to establish, improve,
4
and strengthen the competency of the medical inter-
5
pretation workforce that serves qualified LEP enroll-
6
ees in the State, including a national certification
7
process that is valid, credible, and vendor-neutral.
8
(e) APPLICATION.—To receive a grant under this sec-
9
tion, a State shall submit an application at such time and
10
containing such information as the Secretary may require,
11
which shall include the following:
12
(1) A description of the language access needs
13
of individuals in the State enrolled in the State plan
14
under Medicaid.
15
(2) A description of the extent to which the
16
program will—
17
(A) use the grant funds for the purposes
18
described in subsection (d);
19
(B) meet the health care needs of rural
20
populations of the State; and
21
(C) collect information that accurately
22
tracks the language services requested by con-
23
sumers as compared to the language services
24
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provided by health care providers in the State
1
participating in the State plan under Medicaid.
2
(3) A description of how the program will be
3
evaluated, including a proposal for collaboration with
4
organizations representing interpreters, consumers,
5
and LEP individuals.
6
(f) DEFINITIONS.—In this section:
7
(1) QUALIFIED
LEP
ENROLLEE.—The term
8
‘‘qualified LEP enrollee’’ means an individual—
9
(A) who is limited-English proficient; and
10
(B) who is enrolled in a State plan under
11
Medicaid.
12
(2) STATE.—The term ‘‘State’’ has the mean-
13
ing given the term in section 1101(a)(1) of the So-
14
cial Security Act (42 U.S.C. 1301(a)(1)), for pur-
15
poses of title XIX of such Act.
16
(3)
UNITED
STATES.—The
term
‘‘United
17
States’’ has the meaning given the term in section
18
1101(a)(2) of the Social Security Act (42 U.S.C.
19
1301(a)(2)), for purposes of title XIX of such Act.
20
(g) FUNDING.—
21
(1) AUTHORIZATION
OF
APPROPRIATIONS.—
22
There is authorized to be appropriated $5,000,000
23
to carry out this section.
24
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(2) AVAILABILITY OF FUNDS.—The funds au-
1
thorized by paragraph (1) shall be available without
2
fiscal year limitation.
3
(3) INCREASED FEDERAL FINANCIAL PARTICI-
4
PATION.—Section 1903(a)(2)(E) of the Social Secu-
5
rity Act (42 U.S.C. 1396b(a)(2)(E)), as amended by
6
section 205(d)(1) of this Act, is further amended by
7
inserting ‘‘(or, in the case of a State receiving a
8
grant under section 203 of the Health Equity and
9
Accountability Act of 2018, 100 percent for each
10
quarter occurring during the grant period)’’ after
11
‘‘90 percent’’.
12
(h) LIMITATION.—No Federal funds under this sec-
13
tion may be used to provide interpreter services from a
14
location outside the United States.
15
SEC. 204. TRAINING TOMORROW’S DOCTORS FOR CUL-
16
TURALLY
AND
LINGUISTICALLY
APPRO-
17
PRIATE CARE: GRADUATE MEDICAL EDU-
18
CATION.
19
(a) DIRECT GRADUATE MEDICAL EDUCATION.—Sec-
20
tion 1886(h)(4) of the Social Security Act (42 U.S.C.
21
1395ww(h)(4)) is amended by adding at the end the fol-
22
lowing new subparagraph:
23
‘‘(L) TREATMENT OF CULTURALLY COM-
24
PETENCY
TRAINING.—In determining a hos-
25
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•HR 5942 IH
pital’s number of full-time equivalent residents
1
for purposes of this subsection, all the time that
2
is spent by an intern or resident in an approved
3
medical residency training program for edu-
4
cation and training in cultural competency and
5
linguistically appropriate service delivery shall
6
be counted toward the determination of full-
7
time equivalency.’’.
8
(b)
INDIRECT
MEDICAL
EDUCATION.—Section
9
1886(d)(5)(B) of the Social Security Act (42 U.S.C.
10
1395ww(d)(5)(B)) is amended—
11
(1) by redesignating the clause (x) added by
12
section 5505(b) of the Patient Protection and Af-
13
fordable Care Act as clause (xi); and
14
(2) by adding at the end the following new
15
clause:
16
‘‘(xii) The provisions of subparagraph (L) of
17
subsection (h)(4) shall apply under this subpara-
18
graph in the same manner as they apply under such
19
subsection.’’.
20
(c) EFFECTIVE DATE.—The amendments made by
21
subsections (a) and (b) shall apply with respect to pay-
22
ments made to hospitals on or after the date that is one
23
year after the date of the enactment of this Act.
24
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SEC. 205. FEDERAL REIMBURSEMENT FOR CULTURALLY
1
AND LINGUISTICALLY APPROPRIATE SERV-
2
ICES UNDER THE MEDICARE, MEDICAID, AND
3
STATE
CHILDREN’S
HEALTH
INSURANCE
4
PROGRAMS.
5
(a) LANGUAGE ACCESS GRANTS
FOR MEDICARE
6
PROVIDERS.—
7
(1) ESTABLISHMENT.—
8
(A) IN
GENERAL.—Not later than 6
9
months after the date of the enactment of this
10
Act, the Secretary of Health and Human Serv-
11
ices, acting through the Centers for Medicare &
12
Medicaid Services and in consultation with the
13
Center for Medicare and Medicaid Innovation,
14
shall establish a demonstration program under
15
which the Secretary shall award grants to eligi-
16
ble Medicare service providers to improve com-
17
munication between such providers and Medi-
18
care beneficiaries who are English learners, in-
19
cluding beneficiaries who live in diverse and un-
20
derserved communities.
21
(B)
APPLICATION
OF
INNOVATION
22
RULES.—The demonstration project under sub-
23
paragraph (A) shall be conducted in a manner
24
that is consistent with the applicable provisions
25
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•HR 5942 IH
of subsections (b), (c), and (d) of section 1115A
1
of the Social Security Act (42 U.S.C. 1315a).
2
(C) NUMBER OF GRANTS.—To the extent
3
practicable, the Secretary shall award not less
4
than 24 grants under this subsection.
5
(D) GRANT PERIOD.—Except as provided
6
under paragraph (2)(D), each grant awarded
7
under this subsection shall be for a 3-year pe-
8
riod.
9
(2) ELIGIBILITY REQUIREMENTS.—To be eligi-
10
ble for a grant under this subsection, an entity must
11
meet the following requirements:
12
(A) MEDICARE
PROVIDER.—The entity
13
must be—
14
(i) a provider of services under part A
15
of title XVIII of the Social Security Act;
16
(ii) a provider of services under part
17
B of such title;
18
(iii) a Medicare Advantage organiza-
19
tion offering a Medicare Advantage plan
20
under part C of such title; or
21
(iv) a PDP sponsor offering a pre-
22
scription drug plan under part D of such
23
title.
24
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(B) UNDERSERVED
COMMUNITIES.—The
1
entity must serve a community that, with re-
2
spect to necessary language services for improv-
3
ing access and utilization of health care among
4
English learners, is disproportionally under-
5
served.
6
(C) APPLICATION.—The entity must pre-
7
pare and submit to the Secretary an applica-
8
tion, at such time, in such manner, and accom-
9
panied by such additional information as the
10
Secretary may require.
11
(D) REPORTING.—In the case of a grantee
12
that received a grant under this subsection in
13
a previous year, such grantee is only eligible for
14
continued payments under a grant under this
15
subsection if the grantee met the reporting re-
16
quirements under paragraph (9) for such year.
17
If a grantee fails to meet the requirement of
18
such paragraph for the first year of a grant, the
19
Secretary may terminate the grant and solicit
20
applications from new grantees to participate in
21
the demonstration program.
22
(3) DISTRIBUTION.—To the extent feasible, the
23
Secretary shall award—
24
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•HR 5942 IH
(A) at least 6 grants to providers of serv-
1
ices described in paragraph (2)(A)(i);
2
(B) at least 6 grants to service providers
3
described in paragraph (2)(A)(ii);
4
(C) at least 6 grants to organizations de-
5
scribed in paragraph (2)(A)(iii); and
6
(D) at least 6 grants to sponsors described
7
in paragraph (2)(A)(iv).
8
(4) CONSIDERATIONS IN AWARDING GRANTS.—
9
(A) VARIATION IN GRANTEES.—In award-
10
ing grants under this subsection, the Secretary
11
shall select grantees to ensure the following:
12
(i) The grantees provide many dif-
13
ferent types of language services.
14
(ii) The grantees serve Medicare bene-
15
ficiaries who speak different languages,
16
and who, as a population, have differing
17
needs for language services.
18
(iii) The grantees serve Medicare
19
beneficiaries in both urban and rural set-
20
tings.
21
(iv) The grantees serve Medicare
22
beneficiaries in at least two geographic re-
23
gions, as defined by the Secretary.
24
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•HR 5942 IH
(v) The grantees serve Medicare bene-
1
ficiaries in at least two large metropolitan
2
statistical areas with racial, ethnic, sexual,
3
gender, disability, and economically diverse
4
populations.
5
(B) PRIORITY
FOR
PARTNERSHIPS
WITH
6
COMMUNITY ORGANIZATIONS AND AGENCIES.—
7
In awarding grants under this subsection, the
8
Secretary shall give priority to eligible entities
9
that have a partnership with—
10
(i) a community organization; or
11
(ii) a consortia of community organi-
12
zations, State agencies, and local agencies,
13
that has experience in providing language serv-
14
ices.
15
(5) USE OF FUNDS FOR COMPETENT LANGUAGE
16
SERVICES.—
17
(A) IN
GENERAL.—Subject to subpara-
18
graph (E), a grantee may only use grant funds
19
received under this subsection to pay for the
20
provision of competent language services to
21
Medicare beneficiaries who are English learn-
22
ers.
23
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•HR 5942 IH
(B) COMPETENT LANGUAGE SERVICES DE-
1
FINED.—For purposes of this subsection, the
2
term ‘‘competent language services’’ means—
3
(i) interpreter and translation services
4
that—
5
(I) subject to the exceptions
6
under subparagraph (C)—
7
(aa) if the grantee operates
8
in a State that has statewide
9
health care interpreter standards,
10
meet the State standards cur-
11
rently in effect; or
12
(bb) if the grantee operates
13
in a State that does not have
14
statewide health care interpreter
15
standards, utilizes competent in-
16
terpreters who follow the Na-
17
tional Council on Interpreting in
18
Health Care’s Code of Ethics and
19
Standards of Practice; and
20
(II) that, in the case of inter-
21
preter
services,
are
provided
22
through—
23
(aa) onsite interpretation;
24
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•HR 5942 IH
(bb) telephonic interpreta-
1
tion; or
2
(cc)
video
interpretation;
3
and
4
(ii) the direct provision of health care
5
or health-care-related services by a com-
6
petent bilingual health care provider.
7
(C) EXCEPTIONS.—The requirements of
8
subparagraph (B)(i)(I) do not apply, with re-
9
spect to interpreter and translation services and
10
a grantee—
11
(i) in the case of a Medicare bene-
12
ficiary who is an English learner if—
13
(I) such beneficiary has been in-
14
formed, in the beneficiary’s primary
15
language, of the availability of free in-
16
terpreter and translation services and
17
the beneficiary instead requests that a
18
family member, friend, or other per-
19
son provide such services; and
20
(II) the grantee documents such
21
request in the beneficiary’s medical
22
record; or
23
(ii) in the case of a medical emergency
24
where the delay directly associated with ob-
25
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98
•HR 5942 IH
taining a competent interpreter or trans-
1
lation services would jeopardize the health
2
of the patient.
3
Clause (ii) shall not be construed to exempt
4
emergency rooms or similar entities that regu-
5
larly provide health care services in medical
6
emergencies to patients who are English learn-
7
ers from any applicable legal or regulatory re-
8
quirements related to providing competent in-
9
terpreter and translation services without undue
10
delay.
11
(D) MEDICARE
ADVANTAGE
ORGANIZA-
12
TIONS AND PDP SPONSORS.—If a grantee is a
13
Medicare Advantage organization offering a
14
Medicare Advantage plan under part C of title
15
XVIII of the Social Security Act or a PDP
16
sponsor offering a prescription drug plan under
17
part D of such title, such entity must provide
18
at least 50 percent of the grant funds that the
19
entity receives under this subsection directly to
20
the entity’s network providers (including all
21
health providers and pharmacists) for the pur-
22
pose of providing support for such providers to
23
provide competent language services to Medi-
24
care beneficiaries who are English learners.
25
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•HR 5942 IH
(E) ADMINISTRATIVE
AND
REPORTING
1
COSTS.—A grantee may use up to 10 percent of
2
the grant funds to pay for administrative costs
3
associated with the provision of competent lan-
4
guage services and for reporting required under
5
paragraph (9).
6
(6) DETERMINATION
OF
AMOUNT
OF
GRANT
7
PAYMENTS.—
8
(A) IN GENERAL.—Payments to grantees
9
under this subsection shall be calculated based
10
on the estimated numbers of Medicare bene-
11
ficiaries who are English learners in a grantee’s
12
service area utilizing—
13
(i) data on the numbers of English
14
learners who speak English less than ‘‘very
15
well’’ from the most recently available data
16
from the Bureau of the Census or other
17
State-based study the Secretary determines
18
likely to yield accurate data regarding the
19
number of such individuals in such service
20
area; or
21
(ii) data provided by the grantee, if
22
the grantee routinely collects data on the
23
primary language of the Medicare bene-
24
ficiaries that the grantee serves and the
25
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100
•HR 5942 IH
Secretary determines that the data is accu-
1
rate and shows a greater number of
2
English learners than would be estimated
3
using the data under clause (i).
4
(B) DISCRETION OF SECRETARY.—Subject
5
to subparagraph (C), the amount of payment
6
made to a grantee under this subsection may be
7
modified annually at the discretion of the Sec-
8
retary, based on changes in the data under sub-
9
paragraph (A) with respect to the service area
10
of a grantee for the year.
11
(C)
LIMITATION
ON
AMOUNT.—The
12
amount of a grant made under this subsection
13
to a grantee may not exceed $500,000 for the
14
period under paragraph (1)(D).
15
(7) ASSURANCES.—Grantees under this sub-
16
section shall, as a condition of receiving a grant
17
under this subsection—
18
(A) ensure that clinical and support staff
19
receive appropriate ongoing education and
20
training in linguistically appropriate service de-
21
livery;
22
(B) ensure the linguistic competence of bi-
23
lingual providers;
24
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101
•HR 5942 IH
(C) offer and provide appropriate language
1
services at no additional charge to each patient
2
who is an English learner for all points of con-
3
tact between the patient and the grantee, in a
4
timely manner during all hours of operation;
5
(D) notify Medicare beneficiaries of their
6
right to receive language services in their pri-
7
mary language;
8
(E) post signage in the primary languages
9
commonly used by the patient population in the
10
service area of the organization; and
11
(F) ensure that—
12
(i) primary language data are col-
13
lected for recipients of language services
14
and such data are consistent with stand-
15
ards developed under title XXXIV of the
16
Public Health Service Act, as added by
17
section 202 of this Act, to the extent such
18
standards are available upon the initiation
19
of the demonstration program; and
20
(ii) consistent with the privacy protec-
21
tions provided under the regulations pro-
22
mulgated pursuant to section 264(c) of the
23
Health Insurance Portability and Account-
24
ability Act of 1996 (42 U.S.C. 1320d–2
25
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102
•HR 5942 IH
note), if the recipient of language services
1
is a minor or is incapacitated, primary lan-
2
guage data are collected on the parent or
3
legal guardian of such recipient.
4
(8) NO COST SHARING.—Medicare beneficiaries
5
who are English learners shall not have to pay cost
6
sharing or co-payments for competent language serv-
7
ices provided under this demonstration program.
8
(9) REPORTING
REQUIREMENTS
FOR
GRANT-
9
EES.—Not later than the end of each calendar year,
10
a grantee that receives funds under this subsection
11
in such year shall submit to the Secretary a report
12
that includes the following information:
13
(A) The number of Medicare beneficiaries
14
to whom competent language services are pro-
15
vided.
16
(B) The primary languages of those Medi-
17
care beneficiaries.
18
(C) The types of language services pro-
19
vided to such beneficiaries.
20
(D) Whether such language services were
21
provided by employees of the grantee or
22
through a contract with external contractors or
23
agencies.
24
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•HR 5942 IH
(E) The types of interpretation services
1
provided to such beneficiaries, and the approxi-
2
mate length of time such service is provided to
3
such beneficiaries.
4
(F) The costs of providing competent lan-
5
guage services.
6
(G) An account of the training or accredi-
7
tation of bilingual staff, interpreters, and trans-
8
lators providing services funded by the grant
9
under this subsection.
10
(10) EVALUATION
AND
REPORT
TO
CON-
11
GRESS.—Not later than 1 year after the completion
12
of a 3-year grant under this subsection, the Sec-
13
retary shall conduct an evaluation of the demonstra-
14
tion program under this subsection and shall submit
15
to the Congress a report that includes the following:
16
(A) An analysis of the patient outcomes
17
and the costs of furnishing care to the Medicare
18
beneficiaries who are English learners partici-
19
pating in the project as compared to such out-
20
comes and costs for such Medicare beneficiaries
21
not participating, based on the data provided
22
under paragraph (9) and any other information
23
available to the Secretary.
24
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•HR 5942 IH
(B) The effect of delivering language serv-
1
ices on—
2
(i) Medicare beneficiary access to care
3
and utilization of services;
4
(ii) the efficiency and cost effective-
5
ness of health care delivery;
6
(iii) patient satisfaction;
7
(iv) health outcomes; and
8
(v) the provision of culturally appro-
9
priate services provided to such bene-
10
ficiaries.
11
(C) The extent to which bilingual staff, in-
12
terpreters, and translators providing services
13
under such demonstration were trained or ac-
14
credited and the nature of accreditation or
15
training needed by type of provider, service, or
16
other category as determined by the Secretary
17
to ensure the provision of high-quality interpre-
18
tation, translation, or other language services to
19
Medicare beneficiaries if such services are ex-
20
panded pursuant to subsection (c) of section
21
1907 of this Act.
22
(D) Recommendations, if any, regarding
23
the extension of such project to the entire Medi-
24
care Program, subject to the provisions of sec-
25
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105
•HR 5942 IH
tion 1115A(c) of the Social Security Act (42
1
U.S.C. 1315a(c)).
2
(11) APPROPRIATIONS.—There is appropriated
3
to carry out this subsection, in equal parts from the
4
Federal Hospital Insurance Trust Fund under sec-
5
tion 1817 of the Social Security Act (42 U.S.C.
6
1395i) and the Federal Supplementary Medical In-
7
surance Trust Fund under section 1841 of such Act
8
(42 U.S.C. 1395t), $16,000,000 for each fiscal year
9
of the demonstration program.
10
(12) ENGLISH
LEARNER
DEFINED.—In this
11
subsection, the term ‘‘English learner’’ has the
12
meaning given such term in section 8101(20) of the
13
Elementary and Secondary Education Act of 1965,
14
except that subparagraphs (A), (B), and (D) of such
15
section shall not apply.
16
(b) LANGUAGE SERVICES UNDER THE MEDICARE
17
PROGRAM.—
18
(1) INCLUSION
AS
RURAL
HEALTH
CLINIC
19
SERVICES.—Section 1861 of the Social Security Act
20
(42 U.S.C. 1395x) is amended—
21
(A) in subsection (aa)(1)—
22
(i) in subparagraph (B), by striking
23
‘‘and’’ at the end;
24
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106
•HR 5942 IH
(ii) by adding ‘‘and’’ at the end of
1
subparagraph (C); and
2
(iii) by inserting after subparagraph
3
(C) the following new subparagraph:
4
‘‘(D) language assistance services as defined in
5
subsection (iii)(1),’’; and
6
(B) by adding at the end the following new
7
subsection:
8
‘‘Language Assistance Services and Related Terms
9
‘‘(iii)(1) The term ‘language assistance services’ has
10
the same meaning given the term ‘language or language
11
assistance services’ in section 3400 of the Public Health
12
Service Act.
13
‘‘(2) The term ‘interpreter services’ has the meaning
14
given the term ‘qualified interpreter for an individual with
15
limited-English proficiency’ in section 3400(3) of the Pub-
16
lic Health Service Act.
17
‘‘(3) The term ‘qualified interpreter for an individual
18
with limited-English proficiency’ means an interpreter who
19
via a remote interpreting service or an onsite appear-
20
ance—
21
‘‘(A) adheres to generally accepted interpreter
22
ethics principles, including client confidentiality;
23
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•HR 5942 IH
‘‘(B) has demonstrated proficiency in speaking
1
and understanding both spoken English and at least
2
one other spoken language; and
3
‘‘(C) is able to interpret effectively, accurately,
4
and impartially and in a culturally competent man-
5
ner, both receptively and expressly, to and from such
6
language(s) and English, using any necessary spe-
7
cialized vocabulary, terminology, and phraseology.
8
‘‘(4) The term ‘qualified translator’ means a trans-
9
lator who—
10
‘‘(A) adheres to generally accepted translator
11
ethics principles, including client confidentiality;
12
‘‘(B) has demonstrated proficiency in writing
13
and understanding both written English and at least
14
one other written non-English language; and
15
‘‘(C) is able to translate effectively, accurately,
16
and impartially to and from such language(s) and
17
English, using any necessary specialized vocabulary,
18
terminology, and phraseology.
19
‘‘(5) The term ‘English learner’ has the meaning
20
given such term in section 8101(20) of the Elementary
21
and Secondary Education Act of 1965, except that sub-
22
paragraphs (A), (B), and (D) of such section shall not
23
apply.’’.
24
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•HR 5942 IH
(2) COVERAGE.—Section 1832(a)(2) of the So-
1
cial Security Act (42 U.S.C. 1395k(a)(2)) is amend-
2
ed—
3
(A) by striking ‘‘and’’ at the end of sub-
4
paragraph (I);
5
(B) by striking the period at the end of
6
subparagraph (J) and inserting ‘‘; and’’; and
7
(C) by adding at the end the following new
8
subparagraph:
9
‘‘(K) language services (as defined in para-
10
graph (1) of section 1861(iii)) furnished by an
11
interpreter (as defined in paragraph (3) of such
12
section) or translator.’’.
13
(3) PAYMENT.—Section 1833(a) of the Social
14
Security Act (42 U.S.C. 1395l(a)) is amended—
15
(A) by striking ‘‘and’’ at the end of para-
16
graph (8);
17
(B) by striking the period at the end of
18
paragraph (9) and inserting ‘‘; and’’; and
19
(C) by inserting after paragraph (9) the
20
following new paragraph:
21
‘‘(10) in the case of language services described
22
in section 1861(iii)(1), 100 percent of the reasonable
23
charges for such services, as determined in consulta-
24
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109
•HR 5942 IH
tion with the Medicare Payment Advisory Commis-
1
sion; and’’.
2
(4) WAIVER
OF
BUDGET
NEUTRALITY.—For
3
the 3-year period beginning on the date of enact-
4
ment of this section, the budget neutrality provision
5
of section 1848(c)(2)(B)(ii) of the Social Security
6
Act (42 U.S.C. 1395w–4(c)(2)(B)(ii)) shall not
7
apply with respect to language services (as such
8
term is defined in section 1861(iii)(1) of such Act).
9
(c) MEDICARE PARTS C AND D.—
10
(1) IN GENERAL.—Medicare Advantage plans
11
under part C of the Social Security Act and pre-
12
scription drug plans under part D of such Act shall
13
comply with title VI of the Civil Rights Act of 1964
14
and section 1557 of the Patient Protection and Af-
15
fordable Care Act (42 U.S.C. 18116) to provide ef-
16
fective language services to enrollees of such plans.
17
(2) MEDICARE
ADVANTAGE
PLANS
AND
PRE-
18
SCRIPTION
DRUG
PLANS
REPORTING
REQUIRE-
19
MENT.—Section 1857(e) of the Social Security Act
20
(42 U.S.C. 1395w–27(e)) is amended by adding at
21
the end the following new paragraph:
22
‘‘(5) REPORTING REQUIREMENTS RELATING TO
23
EFFECTIVE LANGUAGE SERVICES.—A contract under
24
this part shall require a Medicare Advantage organi-
25
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110
•HR 5942 IH
zation (and, through application of section 1860D–
1
12(b)(3)(D), a contract under section 1860D–12
2
shall require a PDP sponsor) to annually submit
3
(for each year of the contract) a report that contains
4
information on the plan’s internal policies and proce-
5
dures related to recruitment and retention efforts di-
6
rected to workforce diversity and linguistically and
7
culturally appropriate provision of services in each of
8
the following contexts:
9
‘‘(A) The collection of data in a manner
10
that meets the requirements of title I of the
11
Health Equity and Accountability Act of 2018,
12
regarding the enrollee population.
13
‘‘(B) Education of staff and contractors
14
who have routine contact with enrollees regard-
15
ing the various needs of the diverse enrollee
16
population.
17
‘‘(C) Evaluation of the health plan’s lan-
18
guage services programs and services with re-
19
spect to the plan’s enrollee population, such as
20
through analysis of complaints or satisfaction
21
survey results.
22
‘‘(D) Methods by which the plan provides
23
to the Secretary information regarding the eth-
24
nic diversity of the plan’s enrollee population.
25
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•HR 5942 IH
‘‘(E) The periodic provision of educational
1
information to plan enrollees on the plan’s lan-
2
guage services and programs.’’.
3
(d) IMPROVING LANGUAGE SERVICES IN MEDICAID
4
AND CHIP.—
5
(1)
PAYMENTS
TO
STATES.—Section
6
1903(a)(2)(E) of the Social Security Act (42 U.S.C.
7
1396b(a)(2)(E)) is amended by—
8
(A) striking ‘‘75’’ and inserting ‘‘90’’;
9
(B) striking ‘‘translation or interpretation
10
services’’ and inserting ‘‘language services’’;
11
and
12
(C) striking ‘‘children of families’’ and in-
13
serting ‘‘individuals’’.
14
(2) STATE
PLAN
REQUIREMENTS.—Section
15
1902(a)(10)(A) of the Social Security Act (42
16
U.S.C. 1396a(a)(10)(A)) is amended by striking
17
‘‘and (28)’’ and inserting ‘‘(28), and (29)’’.
18
(3) DEFINITION
OF
MEDICAL
ASSISTANCE.—
19
Section 1905(a) of the Social Security Act (42
20
U.S.C. 1396d(a)) is amended by—
21
(A) in paragraph (28), by striking ‘‘and’’
22
at the end;
23
(B) by redesignating paragraph (29) as
24
paragraph (30); and
25
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112
•HR 5942 IH
(C) by inserting after paragraph (28) the
1
following new paragraph:
2
‘‘(29) language services, as such term is defined
3
in section 1861(iii)(1), provided in a timely manner
4
to
English
learners
(as
defined
in
section
5
1861(iii)(5)) who need such services; and’’.
6
(4) USE
OF
DEDUCTIONS
AND
COST
SHAR-
7
ING.—Section 1916(a)(2) of the Social Security Act
8
(42 U.S.C. 1396o(2)) is amended by—
9
(A) by striking ‘‘or’’ at the end of subpara-
10
graph (D);
11
(B) by striking ‘‘; and’’ at the end of sub-
12
paragraph (E) and inserting ‘‘, or’’; and
13
(C) by adding at the end the following new
14
subparagraph:
15
‘‘(F) language services described in section
16
1905(a)(29); and’’.
17
(5) CHIP COVERAGE REQUIREMENTS.—Section
18
2103 of the Social Security Act (42 U.S.C. 1397cc)
19
is amended—
20
(A) in subsection (a), in the matter before
21
paragraph (1), by striking ‘‘and (7)’’ and in-
22
serting ‘‘(7), and (9)’’; and
23
(B) in subsection (c), by adding at the end
24
the following new paragraph:
25
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•HR 5942 IH
‘‘(9) LANGUAGE SERVICES.—The child health
1
assistance provided to a targeted low-income child
2
shall include coverage of language services, as such
3
term is defined in section 1861(iii)(1), provided in a
4
timely manner to English learners (as defined in
5
section 1861(iii)(5)) who need such services.’’; and
6
(C) in subsection (e)(2)—
7
(i) in the heading, by striking ‘‘PRE-
8
VENTIVE’’ and inserting ‘‘CERTAIN’’; and
9
(ii) by inserting ‘‘or subsection (c)(9)’’
10
after ‘‘subsection (c)(1)(D)’’.
11
(6) DEFINITION
OF
CHILD
HEALTH
ASSIST-
12
ANCE.—Section 2110(a)(27) of the Social Security
13
Act (42 U.S.C. 1397jj) is amended by striking
14
‘‘translation’’ and inserting ‘‘language services as
15
described in section 2103(c)(9)’’.
16
(7) STATE
DATA
COLLECTION.—Pursuant to
17
the reporting requirement described in section
18
2107(b)(1) of the Social Security Act (42 U.S.C.
19
1397gg(b)(1)), the Secretary of Health and Human
20
Services shall require that States collect data on—
21
(A) the primary language of individuals re-
22
ceiving child health assistance under title XXI
23
of the Social Security Act; and
24
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•HR 5942 IH
(B) in the case of such individuals who are
1
minors or incapacitated, the primary language
2
of the individual’s parent or guardian.
3
(8) CHIP PAYMENTS
TO
STATES.—Section
4
2105 of the Social Security Act (42 U.S.C.
5
1397ee(c)) is amended—
6
(A) in subsection (a)(1), by striking ‘‘75’’
7
and inserting ‘‘90’’; and
8
(B) in subsection (c)(2)(A), by inserting
9
before the period at the end the following: ‘‘,
10
except that expenditures pursuant to clause (iv)
11
of subparagraph (D) of such paragraph shall
12
not count towards this total’’.
13
(e) FUNDING LANGUAGE SERVICES FURNISHED BY
14
PROVIDERS OF HEALTH CARE AND HEALTH-CARE-RE-
15
LATED SERVICES THAT SERVE HIGH RATES OF UNIN-
16
SURED LEP INDIVIDUALS.—
17
(1) PAYMENT OF COSTS.—
18
(A) IN
GENERAL.—Subject to subpara-
19
graph (B), the Secretary of Health and Human
20
Services shall make payments (on a quarterly
21
basis) directly to eligible entities to support the
22
provision of language services to English learn-
23
ers in an amount equal to an eligible entity’s el-
24
igible costs for such services for the quarter.
25
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•HR 5942 IH
(B) FUNDING.—Out of any funds in the
1
Treasury not otherwise appropriated, there are
2
appropriated to the Secretary of Health and
3
Human Services such sums as may be nec-
4
essary for each of fiscal years 2017 through
5
2021.
6
(C) RELATION TO MEDICAID DSH.—Pay-
7
ments under this subsection shall not offset or
8
reduce payments under section 1923 of the So-
9
cial Security Act, nor shall payments under
10
such section be considered when determining
11
uncompensated costs associated with the provi-
12
sion of language services.
13
(2)
METHODOLOGY
FOR
PAYMENT
OF
14
CLAIMS.—
15
(A) IN GENERAL.—The Secretary shall es-
16
tablish a methodology to determine the average
17
per person cost of language services.
18
(B)
DIFFERENT
ENTITIES.—In
estab-
19
lishing such methodology, the Secretary may es-
20
tablish different methodologies for different
21
types of eligible entities.
22
(C) NO
INDIVIDUAL
CLAIMS.—The Sec-
23
retary may not require eligible entities to sub-
24
mit individual claims for language services for
25
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116
•HR 5942 IH
individual patients as a requirement for pay-
1
ment under this subsection.
2
(3) DATA COLLECTION INSTRUMENT.—For pur-
3
poses of this subsection, the Secretary shall create a
4
standard data collection instrument that is con-
5
sistent with any existing reporting requirements by
6
the Secretary or relevant accrediting organizations
7
regarding the number of individuals to whom lan-
8
guage access are provided.
9
(4) GUIDELINES.—Not later than 6 months
10
after the date of enactment of this Act, the Sec-
11
retary of Health and Human Services shall establish
12
and distribute guidelines concerning the implementa-
13
tion of this subsection.
14
(5) REPORTING REQUIREMENTS.—
15
(A) REPORT TO SECRETARY.—Entities re-
16
ceiving payment under this subsection shall pro-
17
vide the Secretary with a quarterly report on
18
how the entity used such funds. Such report
19
shall contain aggregate (and may not contain
20
individualized) data collected using the instru-
21
ment under paragraph (3) and shall otherwise
22
be in a form and manner determined by the
23
Secretary.
24
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•HR 5942 IH
(B) REPORT
TO
CONGRESS.—Not later
1
than 2 years after the date of enactment of this
2
Act, and every 2 years thereafter, the Secretary
3
shall submit a report to Congress concerning
4
the implementation of this subsection.
5
(6) DEFINITIONS.—In this subsection:
6
(A) ELIGIBLE COSTS.—The term ‘‘eligible
7
costs’’ means, with respect to an eligible entity
8
that provides language services to English
9
learners, the product of—
10
(i) the average per person cost of lan-
11
guage services, determined according to
12
the methodology devised under paragraph
13
(2); and
14
(ii) the number of English learners
15
who are provided language services by the
16
entity and for whom no reimbursement is
17
available for such services under the
18
amendments made by subsections (a), (b),
19
(c), or (d) or by private health insurance.
20
(B) ELIGIBLE ENTITY.—The term ‘‘eligible
21
entity’’ means an entity that—
22
(i) is a Medicaid provider that is—
23
(I) a physician;
24
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•HR 5942 IH
(II) a hospital with a low-income
1
utilization rate (as defined in section
2
1923(b)(3) of the Social Security Act
3
(42 U.S.C. 1396r–4(b)(3))) of greater
4
than 25 percent; or
5
(III) a federally qualified health
6
center
(as
defined
in
section
7
1905(l)(2)(B) of the Social Security
8
Act (42 U.S.C. 1396d(l)(2)(B)));
9
(ii) provide language services to at
10
least 8 percent of the entity’s total number
11
of patients, not later than 6 months after
12
the date of the enactment of the Act; and
13
(iii) prepare and submit an applica-
14
tion to the Secretary, at such time, in such
15
manner, and accompanied by such infor-
16
mation as the Secretary may require to as-
17
certain the entity’s eligibility for funding
18
under this subsection.
19
(C)
ENGLISH
LEARNER.—The
term
20
‘‘English learner’’ has the meaning given such
21
term in section 8101(20) of the Elementary
22
and Secondary Education Act of 1965, except
23
that subparagraphs (A), (B), and (D) of such
24
section shall not apply.
25
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119
•HR 5942 IH
(D)
LANGUAGE
SERVICES.—The
term
1
‘‘language services’’ has the meaning given such
2
term in section 1861(iii)(1) of the Social Secu-
3
rity Act.
4
(f) APPLICATION OF CIVIL RIGHTS ACT OF 1964 AND
5
OTHER LAWS.—Nothing in this section shall be construed
6
to limit otherwise existing obligations of recipients of Fed-
7
eral financial assistance under title VI of the Civil Rights
8
Act of 1964 (42 U.S.C. 2000(d) et seq.) or other laws
9
that protect the civil rights of individuals.
10
(g) EFFECTIVE DATE.—
11
(1) IN
GENERAL.—Except as otherwise pro-
12
vided and subject to paragraph (2), the amendments
13
made by this section shall take effect on January 1,
14
2017.
15
(2) EXCEPTION
IF
STATE
LEGISLATION
RE-
16
QUIRED.—In the case of a State plan for medical as-
17
sistance under title XIX of the Social Security Act
18
which the Secretary of Health and Human Services
19
determines requires State legislation (other than leg-
20
islation appropriating funds) in order for the plan to
21
meet the additional requirement imposed by the
22
amendments made by this section, the State plan
23
shall not be regarded as failing to comply with the
24
requirements of such title solely on the basis of its
25
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•HR 5942 IH
failure to meet this additional requirement before
1
the first day of the first calendar quarter beginning
2
after the close of the first regular session of the
3
State legislature that begins after the date of the en-
4
actment of this Act. For purposes of the previous
5
sentence, in the case of a State that has a 2-year
6
legislative session, each year of such session shall be
7
deemed to be a separate regular session of the State
8
legislature.
9
SEC. 206. INCREASING UNDERSTANDING OF AND IMPROV-
10
ING HEALTH LITERACY.
11
(a) IN GENERAL.—The Secretary, acting through the
12
Director of the Agency for Healthcare Research and Qual-
13
ity and the Administrator of the Health Resources and
14
Services Administration, in consultation with the Director
15
of the National Institute on Minority Health and Health
16
Disparities and the Deputy Assistant Secretary for Minor-
17
ity Health, shall award grants to eligible entities to im-
18
prove health care for patient populations that have low
19
functional health literacy.
20
(b) ELIGIBILITY.—To be eligible to receive a grant
21
under subsection (a), an entity shall—
22
(1) be a hospital, health center or clinic, health
23
plan, or other health entity (including a nonprofit
24
minority health organization or association); and
25
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•HR 5942 IH
(2) prepare and submit to the Secretary an ap-
1
plication at such time, in such manner, and con-
2
taining such information as the Secretary may re-
3
quire.
4
(c) USE OF FUNDS.—
5
(1) AGENCY FOR HEALTHCARE RESEARCH AND
6
QUALITY.—Grants awarded under subsection (a)
7
through the Agency for Healthcare Research and
8
Quality shall be used—
9
(A) to define and increase the under-
10
standing of health literacy;
11
(B) to investigate the correlation between
12
low health literacy and health and health care;
13
(C) to clarify which aspects of health lit-
14
eracy have an effect on health outcomes; and
15
(D) for any other activity determined ap-
16
propriate by the Director of the Agency.
17
(2) HEALTH RESOURCES AND SERVICES ADMIN-
18
ISTRATION.—Grants awarded under subsection (a)
19
through the Health Resources and Services Adminis-
20
tration shall be used to conduct demonstration
21
projects for interventions for patients with low
22
health literacy that may include—
23
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•HR 5942 IH
(A) the development of new disease man-
1
agement programs for patients with low health
2
literacy;
3
(B) the tailoring of existing disease man-
4
agement programs addressing mental, physical,
5
oral, and behavioral health conditions for pa-
6
tients with low health literacy;
7
(C) the translation of written health mate-
8
rials for patients with low health literacy;
9
(D) the identification, implementation, and
10
testing of low health literacy screening tools;
11
(E) the conduct of educational campaigns
12
for patients and providers about low health lit-
13
eracy; and
14
(F) other activities determined appropriate
15
by the Administrator of the Health Resources
16
and Services Administration.
17
(d) DEFINITIONS.—In this section, the term ‘‘low
18
health literacy’’ means the inability of an individual to ob-
19
tain, process, and understand basic health information
20
and services needed to make appropriate health decisions.
21
(e) AUTHORIZATION
OF APPROPRIATIONS.—There
22
are authorized to be appropriated to carry out this section,
23
such sums as may be necessary for each of fiscal years
24
2019 through 2023.
25
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SEC. 207. ASSURANCES FOR RECEIVING FEDERAL FUNDS.
1
(a) IN GENERAL.—Any health program or activity,
2
any part of which is receiving Federal financial assistance,
3
including credits, subsidies, or contracts of insurance, and
4
any program or activity that is administered by an execu-
5
tive agency or any entity established under title I of the
6
Patient Protection and Affordable Care Act (or amend-
7
ments made thereby), as such programs, activities, agen-
8
cies, and entities are described in section 1557(a) of the
9
Patient Protection and Affordable Care Act (42 U.S.C.
10
18116), in order to ensure the right of LEP individuals
11
to receive access to quality health care, shall—
12
(1) ensure that appropriate clinical and support
13
staff receive ongoing education and training in lin-
14
guistically appropriate service delivery;
15
(2) offer and provide appropriate language as-
16
sistance services at no additional charge to each pa-
17
tient with limited-English-proficiency at all points of
18
contact, in a timely manner during all hours of oper-
19
ation;
20
(3) notify patients of their right to receive lan-
21
guage services in their primary language; and
22
(4) utilize only qualified interpreters for an in-
23
dividual with limited-English proficiency or qualified
24
translators, as defined in section 3400 of the Public
25
Health Service Act.
26
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•HR 5942 IH
(b) EXEMPTIONS.—The requirements of subsection
1
(a)(4) shall not apply as follows:
2
(1) When a patient (who has been informed in
3
his or her primary language of the availability of
4
free interpreter and translation services) requests
5
the use of family, friends, or other persons untrained
6
in interpretation or translation if the following con-
7
ditions are met:
8
(A) The interpreter requested by the pa-
9
tient is over the age of 18.
10
(B) The recipient informs the patient that
11
he or she has the option of having the recipient
12
provide an interpreter for him or her without
13
charge, or of using his or her own interpreter.
14
(C) The recipient informs the patient that
15
the recipient may not require an LEP person to
16
use a family member or friend as an inter-
17
preter.
18
(D) The recipient evaluates whether the
19
person the patient wishes to use as an inter-
20
preter is competent. If the recipient has reason
21
to believe that the interpreter is not competent,
22
the recipient provides the recipient’s own inter-
23
preter to protect the recipient from liability if
24
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125
•HR 5942 IH
the patient’s interpreter is later found not com-
1
petent.
2
(E) If the recipient has reason to believe
3
that there is a conflict of interest between the
4
interpreter and patient, the recipient may not
5
use the patient’s interpreter.
6
(F) The recipient has the patient sign a
7
waiver, witnessed by at least 1 individual not
8
related to the patient, that includes the infor-
9
mation stated in subparagraphs (A) through
10
(E) and is translated into the patient’s lan-
11
guage.
12
(2) When a medical emergency exists and the
13
delay directly associated with obtaining competent
14
interpreter or translation services would jeopardize
15
the health of the patient, but only until a competent
16
interpreter or translation service is available.
17
(c) RULE
OF CONSTRUCTION.—Subsection (b)(2)
18
shall not be construed to mean that emergency rooms or
19
similar entities that regularly provide health care services
20
in medical emergencies are exempt from legal or regu-
21
latory requirements related to competent interpreter serv-
22
ices.
23
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•HR 5942 IH
SEC. 208. REPORT ON FEDERAL EFFORTS TO PROVIDE CUL-
1
TURALLY
AND
LINGUISTICALLY
APPRO-
2
PRIATE HEALTH CARE SERVICES.
3
(a) REPORT.—Not later than 1 year after the date
4
of enactment of this Act and annually thereafter, the Sec-
5
retary of Health and Human Services shall enter into a
6
contract with the National Academy of Medicine for the
7
preparation and publication of a report that describes
8
Federal efforts to ensure that all individuals with limited-
9
English proficiency have meaningful access culturally com-
10
petent to health care and health-care-related services.
11
Such report shall include—
12
(1) a description and evaluation of the activities
13
carried out under this Act;
14
(2) a description and analysis of best practices,
15
model programs, guidelines, and other effective
16
strategies for providing access to culturally and lin-
17
guistically appropriate health care services;
18
(3) recommendations on the development and
19
implementation of policies and practices by providers
20
of health care and health-care-related services for
21
limited-English-proficient individuals;
22
(4) recommend guidelines or standards for
23
health literacy and plain language, informed consent,
24
discharge instructions, and written communications,
25
and for improvement of health care access;
26
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•HR 5942 IH
(5) a description of the effect of providing lan-
1
guage services on quality of health care and access
2
to care; and
3
(6) a description of the costs associated with or
4
savings related to the provision of language services.
5
(b) AUTHORIZATION
OF APPROPRIATIONS.—There
6
are authorized to be appropriated to carry out this section
7
such sums as may be necessary for each of fiscal years
8
2019 through 2023.
9
SEC. 209. ENGLISH FOR SPEAKERS OF OTHER LANGUAGES.
10
(a) GRANTS AUTHORIZED.—The Secretary of Edu-
11
cation is authorized to provide grants to eligible entities
12
for the provision of English as a second language (in this
13
section referred to ‘‘ESL’’) instruction and shall deter-
14
mine, after consultation with appropriate stakeholders, the
15
mechanism for administering and distributing such
16
grants.
17
(b) ELIGIBLE ENTITY DEFINED.—For purposes of
18
this section, the term ‘‘eligible entity’’ means a State or
19
community-based organization that employs, and serves,
20
minority populations.
21
(c) APPLICATION.—An eligible entity may apply for
22
a grant under this section by submitting such information
23
as the Secretary may require and in such form and man-
24
ner as the Secretary may require.
25
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•HR 5942 IH
(d) USE OF GRANT.—As a condition of receiving a
1
grant under this section, an eligible entity shall—
2
(1) develop and implement a plan for assuring
3
the availability of ESL instruction that effectively
4
integrates information about the nature of the
5
United States health care system, how to access
6
care, and any special language skills that may be re-
7
quired for them to access and regularly negotiate the
8
system effectively;
9
(2) develop a plan, including, where appro-
10
priate, public-private partnerships, for making ESL
11
instruction progressively available to all individuals
12
seeking instruction; and
13
(3) maintain current ESL instruction efforts by
14
using the additional funds to supplement rather
15
than supplant any funds expended for ESL instruc-
16
tion in the State as of January 1, 2019.
17
(e) ADDITIONAL DUTIES OF THE SECRETARY.—The
18
Secretary of Education shall—
19
(1) collect and publicize annual data on how
20
much Federal, State, and local governments spend
21
on ESL instruction;
22
(2) collect data from State and local govern-
23
ments to identify the unmet needs of English lan-
24
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129
•HR 5942 IH
guage learners for appropriate ESL instruction, in-
1
cluding—
2
(A) the preferred written and spoken lan-
3
guage of such English language learners;
4
(B) the extent of waiting lists including
5
how many programs maintain waiting lists and,
6
for programs that do not have waiting lists, the
7
reasons why not;
8
(C) the availability of programs to geo-
9
graphically isolated communities;
10
(D) the impact of course enrollment poli-
11
cies, including open enrollment, on the avail-
12
ability of ESL instruction;
13
(E) the number individuals in the State
14
and each participating locality;
15
(F) the effectiveness of the instruction in
16
meeting the needs of individuals receiving in-
17
struction and those needing instruction;
18
(G) as assessment of the need for pro-
19
grams that integrate job training and ESL in-
20
struction, to assist individuals to obtain better
21
jobs; and
22
(H) the availability of ESL slots by State
23
and locality;
24
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•HR 5942 IH
(3) determine the cost and most appropriate
1
methods of making ESL instruction available to all
2
English language learners seeking instruction; and
3
(4) not later than 1 year after the date of en-
4
actment of this Act, issue a report to Congress that
5
assesses the information collected in paragraphs (1),
6
(2), and (3) and makes recommendations on steps
7
that should be taken to progressively realize the goal
8
of making ESL instruction available to all English
9
language learners seeking instruction.
10
(f) AUTHORIZATION
OF APPROPRIATIONS.—There
11
are authorized to be appropriated to the Secretary of Edu-
12
cation $250,000,000 for each of fiscal years 2019 through
13
2022 to carry out this section.
14
SEC. 210. IMPLEMENTATION.
15
(a) GENERAL PROVISIONS.—
16
(1) A State shall not be immune under the
17
Eleventh Amendment of the Constitution of the
18
United States from suit in Federal court for failing
19
to provide the language access funded pursuant to
20
this title.
21
(2) In a suit against a State for a violation of
22
this title, remedies (including remedies at both at
23
law and in equity) are available for such a violation
24
to the same extent as such remedies are available for
25
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131
•HR 5942 IH
such a violation in the suit against any public or pri-
1
vate entity other than a State.
2
(b) RULE OF CONSTRUCTION.—Nothing in this title
3
shall be construed to limit otherwise existing obligations
4
of recipients of Federal financial assistance under title VI
5
of the Civil Rights Act of 1964 (42 U.S.C. 2000(d) et
6
seq.) or any other statute.
7
SEC. 211. LANGUAGE ACCESS SERVICES.
8
(a) ESSENTIAL BENEFITS.—Section 1302(b)(1) of
9
the Patient Protection and Affordable Care Act (42
10
U.S.C. 18022(b)(1)) is amended by adding at the end the
11
following:
12
‘‘(K) Language access services, including
13
oral interpretation and written translations.’’.
14
(b) EMPLOYER-SPONSORED MINIMUM ESSENTIAL
15
COVERAGE.—
16
(1) IN GENERAL.—Section 36B(c)(2)(C) of the
17
Internal Revenue Code of 1986 is amended by redes-
18
ignating clauses (iii) and (iv) as clauses (iv) and (v),
19
respectively, and by inserting after clause (ii) the fol-
20
lowing new clause:
21
‘‘(iii) COVERAGE MUST INCLUDE LAN-
22
GUAGE ACCESS AND SERVICES.—Except as
23
provided in clause (iv), an employee shall
24
not be treated as eligible for minimum es-
25
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132
•HR 5942 IH
sential coverage if such coverage consists
1
of an eligible employer-sponsored plan (as
2
defined in section 5000A(f)(2)) and the
3
plan does not provide coverage for lan-
4
guage access services, including oral inter-
5
pretation and written translations.’’.
6
(2) CONFORMING AMENDMENTS.—
7
(A) Section 36B(c)(2)(C) of such Code is
8
amended by striking ‘‘clause (iii)’’ each place it
9
appears in clauses (i) and (ii) and inserting
10
‘‘clause (iv)’’.
11
(B) Section 36B(c)(2)(C)(iv) of such Code,
12
as redesignated by this subsection, is amended
13
by striking ‘‘(i) and (ii)’’ and inserting ‘‘(i), (ii),
14
and (iii)’’.
15
(c) QUALITY REPORTING.—Section 2717(a)(1) of the
16
Public Health Service Act (42 U.S.C. 300gg–17(a)(1)) is
17
amended—
18
(1) by striking ‘‘and’’ at the end of subpara-
19
graph (C);
20
(2) by striking the period at the end of sub-
21
paragraph (D) and inserting ‘‘; and’’; and
22
(3) by adding at the end the following new sub-
23
paragraph:
24
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•HR 5942 IH
‘‘(E) reduce health disparities through the
1
provision of language access services, including
2
oral interpretation and written translations.’’.
3
(d) REGULATIONS REGARDING INTERNAL CLAIMS
4
AND APPEALS AND EXTERNAL REVIEW PROCESSES FOR
5
HEALTH PLANS AND HEALTH INSURANCE ISSUERS.—
6
The Secretary of the Treasury, the Secretary of Labor,
7
and the Secretary of Health and Human Services shall
8
amend the regulations in section 54.9815–2719T(e) of
9
title 26, Code of Federal Regulations, section 2590.715–
10
2719(e) of title 29, Code of Federal Regulations, and sec-
11
tion 147.136(e) of title 45, Code of Federal Regulations,
12
respectively, to require group health plans and health in-
13
surance issuers offering group or individual health insur-
14
ance coverage to which such sections apply—
15
(1) to provide oral interpretation services with-
16
out any threshold requirements;
17
(2) to provide in the English versions of all no-
18
tices a statement prominently displayed in not less
19
than 15 non-English languages clearly indicating
20
how to access the language services provided by the
21
plan or issuer; and
22
(3) with respect to written translations of no-
23
tices, to apply a threshold that 5 percent of the pop-
24
ulation or at least 500 individuals per service area
25
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•HR 5942 IH
are literate only in the same non-English language
1
in lieu of 10 percent or more residing in a county.
2
(e) DATA COLLECTION AND REPORTING.—The Sec-
3
retary of Health and Human Services shall—
4
(1) amend the single streamlined application
5
form developed pursuant to section 1413 of the Pa-
6
tient Protection and Affordable Care Act (42 U.S.C.
7
18083) to collect the preferred spoken and written
8
language for each household member applying for
9
coverage under a qualified health plan through an
10
Exchange under title I of the Patient Protection and
11
Affordable Care Act;
12
(2) require navigators, certified application
13
counselors, and other enrollment assisters to collect
14
and report requests for language assistance; and
15
(3) require the Federal and State call centers
16
established pursuant to section 1311(d)(4)(b) of the
17
Patient Protection and Affordable Care Act (42
18
U.S.C. 18031(d)(4)(b)) to submit an annual report
19
documenting the number of language assistance re-
20
quests, the types of languages requested, the range
21
and average wait time for a consumer to speak with
22
an interpreter, and any steps the call center and lan-
23
guage line have taken to actively address some of
24
the consumer complaints.
25
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•HR 5942 IH
(f) EFFECTIVE DATE.—The amendments made by
1
this section shall apply to plan years beginning after the
2
date of the enactment of this Act.
3
TITLE III—HEALTH WORKFORCE
4
DIVERSITY
5
SEC. 301. AMENDMENT TO THE PUBLIC HEALTH SERVICE
6
ACT.
7
Title XXXIV of the Public Health Service Act, as
8
added by section 202, is amended by adding at the end
9
the following:
10
‘‘Subtitle A—Diversifying the
11
Health Care Workplace
12
‘‘SEC. 3411. NATIONAL WORKING GROUP ON WORKFORCE
13
DIVERSITY.
14
‘‘(a) IN GENERAL.—The Secretary, acting through
15
the Bureau of Health Workforce within the Health Re-
16
sources and Services Administration, shall award a grant
17
to an entity determined appropriate by the Secretary for
18
the establishment of a national working group on work-
19
force diversity.
20
‘‘(b) REPRESENTATION.—In establishing the national
21
working group under subsection (a):
22
‘‘(1) The grantee shall ensure that the group
23
has representatives of the following:
24
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•HR 5942 IH
‘‘(A) The Health Resources and Services
1
Administration.
2
‘‘(B) The Department of Health and
3
Human Services Data Council.
4
‘‘(C) The Office of Minority Health of the
5
Department of Health and Human Services.
6
‘‘(D) The Substance Abuse and Mental
7
Health Services Administration.
8
‘‘(E) The Bureau of Labor Statistics of
9
the Department of Labor.
10
‘‘(F) The Public Health Practice Program
11
Office—Office of Workforce Policy and Plan-
12
ning.
13
‘‘(G) The National Institute on Minority
14
Health and Health Disparities.
15
‘‘(H) The Agency for Healthcare Research
16
and Quality.
17
‘‘(I) The Institute of Medicine Study Com-
18
mittee for the 2004 workforce diversity report.
19
‘‘(J) The Indian Health Service.
20
‘‘(K) The Department of Education.
21
‘‘(L) Minority-serving academic institu-
22
tions.
23
‘‘(M) Consumer organizations.
24
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137
•HR 5942 IH
‘‘(N) Health professional associations, in-
1
cluding those that represent underrepresented
2
minority populations.
3
‘‘(O) Researchers in the area of health
4
workforce.
5
‘‘(P) Health workforce accreditation enti-
6
ties.
7
‘‘(Q) Private (including nonprofit) founda-
8
tions that have sponsored workforce diversity
9
initiatives.
10
‘‘(R) Local and State health departments.
11
‘‘(S) Representatives of community mem-
12
bers to be included on admissions committees
13
for health profession schools pursuant to sub-
14
section (c)(8).
15
‘‘(T) National community-based organiza-
16
tions that serve as a national intermediary to
17
their urban affiliate members and have dem-
18
onstrated capacity to train health care profes-
19
sionals.
20
‘‘(U) Other entities determined appropriate
21
by the Secretary.
22
‘‘(V) The Veterans Health Administration.
23
‘‘(2) The grantee shall ensure that, in addition
24
to the representatives under paragraph (1), the
25
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•HR 5942 IH
group has not less than 5 health professions stu-
1
dents representing various health profession fields
2
and levels of training.
3
‘‘(c) ACTIVITIES.—The working group established
4
under subsection (a) shall convene at least twice each year
5
to complete the following activities:
6
‘‘(1) Review current public and private health
7
workforce diversity initiatives.
8
‘‘(2) Identify successful health workforce diver-
9
sity programs and practices.
10
‘‘(3) Examine challenges relating to the devel-
11
opment and implementation of health workforce di-
12
versity initiatives.
13
‘‘(4) Draft a national strategic work plan for
14
health workforce diversity, including recommenda-
15
tions for public and private sector initiatives.
16
‘‘(5) Develop a framework and methods for the
17
evaluation of current and future health workforce di-
18
versity initiatives.
19
‘‘(6) Develop recommended standards for work-
20
force diversity that could be applicable to all health
21
professions programs and programs funded under
22
this Act.
23
‘‘(7) Develop guidelines to train health profes-
24
sionals to care for a diverse population.
25
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‘‘(8) Develop a workforce data collection or
1
tracking system to identify where racial and ethnic
2
minority health professionals practice.
3
‘‘(9) Develop a strategy for the inclusion of
4
community members on admissions committees for
5
health profession schools.
6
‘‘(10) Helping with monitoring and implementa-
7
tion of standards for diversity, equity, and inclusion.
8
‘‘(11) Other activities determined appropriate
9
by the Secretary.
10
‘‘(d) ANNUAL REPORT.—Not later than 1 year after
11
the establishment of the working group under subsection
12
(a), and annually thereafter, the working group shall pre-
13
pare and make available to the general public for com-
14
ment, an annual report on the activities of the working
15
group. Such report shall include the recommendations of
16
the working group for improving health workforce diver-
17
sity.
18
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—There
19
is authorized to be appropriated to carry out this section
20
such sums as may be necessary for each of fiscal years
21
2019 through 2024.
22
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‘‘SEC. 3412. TECHNICAL CLEARINGHOUSE FOR HEALTH
1
WORKFORCE DIVERSITY.
2
‘‘(a) IN GENERAL.—The Secretary, acting through
3
the Deputy Assistant Secretary for Minority Health, and
4
in collaboration with the Bureau of Health Workforce
5
within the Health Resources and Services Administration,
6
the National Institute on Minority Health and Health Dis-
7
parities, shall establish a technical clearinghouse on health
8
workforce diversity within the Office of Minority Health
9
and coordinate current and future clearinghouses.
10
‘‘(b) INFORMATION AND SERVICES.—The clearing-
11
house established under subsection (a) shall offer the fol-
12
lowing information and services:
13
‘‘(1) Information on the importance of health
14
workforce diversity.
15
‘‘(2) Statistical information relating to under-
16
represented minority representation in health and al-
17
lied health professions and occupations.
18
‘‘(3) Model health workforce diversity practices
19
and programs, including integrated models of care.
20
‘‘(4) Admissions policies that promote health
21
workforce diversity and are in compliance with Fed-
22
eral and State laws.
23
‘‘(5) Retainment policies that promote comple-
24
tion of health profession degrees for underserved
25
populations.
26
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‘‘(6) Lists of scholarship, loan repayment, and
1
loan cancellation grants as well as fellowship infor-
2
mation for underserved populations for health pro-
3
fessions schools.
4
‘‘(7) Foundation and other large organizational
5
initiatives relating to health workforce diversity.
6
‘‘(c) CONSULTATION.—In carrying out this section,
7
the Secretary shall consult with non-Federal entities which
8
may include minority health professional associations and
9
minority sections of major health professional associations
10
to ensure the adequacy and accuracy of information.
11
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There
12
is authorized to be appropriated to carry out this section
13
such sums as may be necessary for each of fiscal years
14
2019 through 2024.
15
‘‘SEC. 3413. SUPPORT FOR INSTITUTIONS COMMITTED TO
16
WORKFORCE DIVERSITY, EQUITY, AND IN-
17
CLUSION.
18
‘‘(a) IN GENERAL.—The Secretary, acting through
19
the Administrator of the Health Resources and Services
20
Administration and the Centers for Disease Control and
21
Prevention, shall award grants to eligible entities that
22
demonstrate a commitment to health workforce diversity.
23
‘‘(b) ELIGIBILITY.—To be eligible to receive a grant
24
under subsection (a), an entity shall—
25
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‘‘(1) be an educational institution or entity that
1
historically produces or trains meaningful numbers
2
of underrepresented minority health professionals,
3
including—
4
‘‘(A) historically Black colleges and univer-
5
sities;
6
‘‘(B) Hispanic-serving health professions
7
schools;
8
‘‘(C) Hispanic-serving institutions;
9
‘‘(D) Tribal colleges and universities;
10
‘‘(E) Asian-American, Native American,
11
and Pacific Islander-serving institutions;
12
‘‘(F) institutions that have programs to re-
13
cruit and retain underrepresented minority
14
health professionals, in which a significant
15
number of the enrolled participants are under-
16
represented minorities;
17
‘‘(G)
health
professional
associations,
18
which may include underrepresented minority
19
health professional associations; and
20
‘‘(H) institutions, including national and
21
regional community-based organizations with
22
demonstrated commitment to a diversified
23
workforce—
24
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•HR 5942 IH
‘‘(i) located in communities with pre-
1
dominantly underrepresented minority pop-
2
ulations;
3
‘‘(ii) with whom partnerships have
4
been formed for the purpose of increasing
5
workforce diversity; and
6
‘‘(iii) in which at least 20 percent of
7
the enrolled participants are underrep-
8
resented minorities; and
9
‘‘(2) submit to the Secretary an application at
10
such time, in such manner, and containing such in-
11
formation as the Secretary may require.
12
‘‘(c) USE OF FUNDS.—Amounts received under a
13
grant under subsection (a) shall be used to expand existing
14
workforce diversity programs, implement new workforce
15
diversity programs, or evaluate existing or new workforce
16
diversity programs, including with respect to mental
17
health care professions. Such programs shall enhance di-
18
versity by considering minority status as part of an indi-
19
vidualized consideration of qualifications. Possible activi-
20
ties may include—
21
‘‘(1) educational outreach programs relating to
22
opportunities in the health professions;
23
‘‘(2) scholarship, fellowship, grant, loan repay-
24
ment, and loan cancellation programs;
25
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•HR 5942 IH
‘‘(3) postbaccalaureate programs;
1
‘‘(4) academic enrichment programs, particu-
2
larly targeting those who would not be competitive
3
for health professions schools;
4
‘‘(5) kindergarten through 12th grade and
5
other health pipeline programs;
6
‘‘(6) mentoring programs;
7
‘‘(7) internship or rotation programs involving
8
hospitals, health systems, health plans, and other
9
health entities;
10
‘‘(8) community partnership development for
11
purposes relating to workforce diversity; or
12
‘‘(9) leadership training.
13
‘‘(d) REPORTS.—Not later than 1 year after receiving
14
a grant under this section, and annually for the term of
15
the grant, a grantee shall submit to the Secretary a report
16
that summarizes and evaluates all activities conducted
17
under the grant.
18
‘‘(e) DEFINITION.—In this section, the term ‘Asian-
19
American, Native American, and Pacific Islander-serving
20
institutions’ has the same meaning as the term ‘Asian
21
American and Native American Pacific Islander-serving
22
institution’ as defined in section 371(c) of the Higher
23
Education Act of 1965 (20 U.S.C. 1067q(c)).
24
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‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There
1
is authorized to be appropriated to carry out this section,
2
such sums as may be necessary for each of fiscal years
3
2019 through 2024.
4
‘‘SEC. 3414. CAREER DEVELOPMENT FOR SCIENTISTS AND
5
RESEARCHERS.
6
‘‘(a) IN GENERAL.—The Secretary, acting through
7
the Director of the National Institutes of Health, the Di-
8
rector of the Centers for Disease Control and Prevention,
9
the Commissioner of Food and Drugs, the Director of the
10
Agency for Healthcare Research and Quality, and the Ad-
11
ministrator of the Health Resources and Services Admin-
12
istration, shall award grants that expand existing opportu-
13
nities for scientists and researchers and promote the inclu-
14
sion of underrepresented minorities in the health profes-
15
sions.
16
‘‘(b) RESEARCH FUNDING.—The head of each entity
17
within the Department of Health and Human Services
18
shall establish or expand existing programs to provide re-
19
search funding to scientists and researchers in training.
20
Under such programs, the head of each such entity shall
21
give priority in allocating research funding to support
22
health research in traditionally underserved communities,
23
including underrepresented minority communities, and re-
24
search classified as community or participatory.
25
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•HR 5942 IH
‘‘(c) DATA COLLECTION.—The head of each entity
1
within the Department of Health and Human Services
2
shall collect data on the number (expressed as an absolute
3
number and a percentage) of underrepresented minority
4
and nonminority applicants who receive and are denied
5
agency funding at every stage of review. Such data shall
6
be reported annually to the Secretary and the appropriate
7
committees of Congress.
8
‘‘(d) STUDENT LOAN REIMBURSEMENT.—The Sec-
9
retary shall establish a student loan reimbursement pro-
10
gram to provide student loan reimbursement assistance to
11
researchers who focus on racial and ethnic disparities in
12
health. The Secretary shall promulgate regulations to de-
13
fine the scope and procedures for the program under this
14
subsection.
15
‘‘(e) STUDENT LOAN CANCELLATION.—The Sec-
16
retary shall establish a student loan cancellation program
17
to provide student loan cancellation assistance to research-
18
ers who focus on racial and ethnic disparities in health.
19
Students participating in the program shall make a min-
20
imum 5-year commitment to work at an accredited health
21
profession school. The Secretary shall promulgate addi-
22
tional regulations to define the scope and procedures for
23
the program under this subsection.
24
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‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There
1
is authorized to be appropriated to carry out this section,
2
such sums as may be necessary for each of fiscal years
3
2019 through 2024.
4
‘‘SEC. 3415. CAREER SUPPORT FOR NONRESEARCH HEALTH
5
PROFESSIONALS.
6
‘‘(a) IN GENERAL.—The Secretary, acting through
7
the Director of the Centers for Disease Control and Pre-
8
vention, the Administrator of the Substance Abuse and
9
Mental Health Services Administration, the Administrator
10
of the Health Resources and Services Administration, and
11
the Administrator of the Centers for Medicare & Medicaid
12
Services, shall establish a program to award grants to eli-
13
gible individuals for career support in nonresearch-related
14
health and wellness professions.
15
‘‘(b) ELIGIBILITY.—To be eligible to receive a grant
16
under subsection (a), an individual shall—
17
‘‘(1) be a student in a health professions school,
18
a graduate of such a school who is working in a
19
health profession, an individual working in a health
20
or wellness profession (including mental and behav-
21
ioral health), or a faculty member of such a school;
22
and
23
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•HR 5942 IH
‘‘(2) submit to the Secretary an application at
1
such time, in such manner, and containing such in-
2
formation as the Secretary may require.
3
‘‘(c) USE
OF
FUNDS.—An individual shall use
4
amounts received under a grant under this section to—
5
‘‘(1) support the individual’s health activities or
6
projects that involve underserved communities, in-
7
cluding racial and ethnic minority communities;
8
‘‘(2) support health-related career advancement
9
activities;
10
‘‘(3) to pay, or as reimbursement for payments
11
of, student loans or training or credentialing costs
12
for individuals who are health professionals and are
13
focused on health issues affecting underserved com-
14
munities, including racial and ethnic minority com-
15
munities; and
16
‘‘(4) to establish and promote leadership train-
17
ing programs to decrease health disparities and to
18
increase cultural competence with the goal of in-
19
creasing diversity in leadership positions.
20
‘‘(d) DEFINITION.—In this section, the term ‘career
21
in nonresearch-related health and wellness professions’
22
means employment or intended employment in the field
23
of public health, health policy, health management, health
24
administration, medicine, nursing, pharmacy, psychology,
25
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•HR 5942 IH
social work, psychiatry, other mental and behavioral
1
health, allied health, community health, social work, or
2
other fields determined appropriate by the Secretary,
3
other than in a position that involves research.
4
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—There
5
is authorized to be appropriated to carry out this section
6
such sums as may be necessary for each of fiscal years
7
2019 through 2024.
8
‘‘SEC. 3416. RESEARCH ON THE EFFECT OF WORKFORCE DI-
9
VERSITY ON QUALITY.
10
‘‘(a) IN GENERAL.—The Director of the Agency for
11
Healthcare Research and Quality, in collaboration with
12
the Deputy Assistant Secretary for Minority Health and
13
the Director of the National Institute on Minority Health
14
and Health Disparities, shall award grants to eligible enti-
15
ties to expand research on the link between health work-
16
force diversity and quality health care.
17
‘‘(b) ELIGIBILITY.—To be eligible to receive a grant
18
under subsection (a), an entity shall—
19
‘‘(1) be a clinical, public health, or health serv-
20
ices research entity or other entity determined ap-
21
propriate by the Director; and
22
‘‘(2) submit to the Secretary an application at
23
such time, in such manner, and containing such in-
24
formation as the Secretary may require.
25
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‘‘(c) USE OF FUNDS.—Amounts received under a
1
grant awarded under subsection (a) shall be used to sup-
2
port research that investigates the effect of health work-
3
force diversity on—
4
‘‘(1) language access;
5
‘‘(2) cultural competence;
6
‘‘(3) patient satisfaction;
7
‘‘(4) timeliness of care;
8
‘‘(5) safety of care;
9
‘‘(6) effectiveness of care;
10
‘‘(7) efficiency of care;
11
‘‘(8) patient outcomes;
12
‘‘(9) community engagement;
13
‘‘(10) resource allocation;
14
‘‘(11) organizational structure;
15
‘‘(12) compliance of care; or
16
‘‘(13) other topics determined appropriate by
17
the Director.
18
‘‘(d) PRIORITY.—In awarding grants under sub-
19
section (a), the Director shall give individualized consider-
20
ation to all relevant aspects of the applicant’s background.
21
Consideration of prior research experience involving the
22
health of underserved communities shall be such a factor.
23
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—There
24
is authorized to be appropriated to carry out this section
25
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•HR 5942 IH
such sums as may be necessary for each of fiscal years
1
2019 through 2024.
2
‘‘SEC. 3417. HEALTH DISPARITIES EDUCATION PROGRAM.
3
‘‘(a)
ESTABLISHMENT.—The
Secretary,
acting
4
through the National Institute on Minority Health and
5
Health Disparities and in collaboration with the Office of
6
Minority Health, the Office for Civil Rights, the Centers
7
for Disease Control and Prevention, the Centers for Medi-
8
care & Medicaid Services, the Health Resources and Serv-
9
ices Administration, and other appropriate public and pri-
10
vate entities, shall establish and coordinate a health and
11
health care disparities education program to support, de-
12
velop, and implement educational initiatives and outreach
13
strategies that inform health care professionals and the
14
public about the existence of and methods to reduce racial
15
and ethnic disparities in health and health care.
16
‘‘(b) ACTIVITIES.—The Secretary, through the edu-
17
cation program established under subsection (a), shall,
18
through the use of public awareness and outreach cam-
19
paigns targeting the general public and the medical com-
20
munity at large—
21
‘‘(1) disseminate scientific evidence for the ex-
22
istence and extent of racial and ethnic disparities in
23
health care, including disparities that are not other-
24
wise attributable to known factors such as access to
25
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•HR 5942 IH
care, patient preferences, or appropriateness of
1
intervention, as described in the 2002 Institute of
2
Medicine Report entitled ‘Unequal Treatment: Con-
3
fronting Racial and Ethnic Disparities in Health
4
Care’, as well as the impact of disparities related to
5
age, disability status, socioeconomic status, sex, gen-
6
der identity, and sexual orientation on racial and
7
ethnic minorities;
8
‘‘(2) disseminate new research findings to
9
health care providers and patients to assist them in
10
understanding, reducing, and eliminating health and
11
health care disparities;
12
‘‘(3) disseminate information about the impact
13
of linguistic and cultural barriers on health care
14
quality and the obligation of health providers who
15
receive Federal financial assistance to ensure that
16
people with limited-English proficiency have access
17
to language access services;
18
‘‘(4) disseminate information about the impor-
19
tance and legality of racial, ethnic, disability status,
20
socioeconomic status, sex, gender identity, and sex-
21
ual orientation, and primary language data collec-
22
tion, analysis, and reporting;
23
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‘‘(5) design and implement specific educational
1
initiatives to health care providers relating to health
2
and health care disparities;
3
‘‘(6) assess the impact of the programs estab-
4
lished under this section in raising awareness of
5
health and health care disparities and providing in-
6
formation on available resources; and
7
‘‘(7) design and implement specific educational
8
initiatives to educate the health care workforce relat-
9
ing to unconscious bias.
10
‘‘(c) AUTHORIZATION OF APPROPRIATIONS.—There
11
is authorized to be appropriated to carry out this section
12
such sums as may be necessary for each of fiscal years
13
2019 through 2024.’’.
14
SEC.
302.
HISPANIC-SERVING
HEALTH
PROFESSIONS
15
SCHOOLS.
16
Part B of title VII of the Public Health Service Act
17
(42 U.S.C. 293 et seq.) is amended by adding at the end
18
the following:
19
‘‘SEC. 742. HISPANIC-SERVING INSTITUTIONS, HISTORI-
20
CALLY BLACK COLLEGES & UNIVERSITIES,
21
AND TRIBAL COLLEGES.
22
‘‘(a) IN GENERAL.—The Secretary, acting through
23
the Administrator of the Health and Human Resources
24
and Services Administration, shall establish grants from
25
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•HR 5942 IH
the Department of Education to Hispanic-serving Institu-
1
tions, Historically Black Colleges & Universities, and Trib-
2
al Colleges, including Regional community based organiza-
3
tions and national minority medical associations, for schol-
4
arships and counseling services to prepare underrep-
5
resented minority individuals to enroll in and graduate
6
from health professional schools and to increase services
7
for qualified students, including—
8
‘‘(1) mentoring with underrepresented health
9
professionals; and
10
‘‘(2) providing financial assistance information
11
for continued education and applications to health
12
professional schools.
13
‘‘(b) ELIGIBILITY.—In subsection (a), the term ‘His-
14
panic-serving Institutions’ means an entity that—
15
‘‘(1) is a school or program under section
16
799B;
17
‘‘(2) has an enrollment of full-time equivalent
18
students that is made up of at least 9 percent His-
19
panic students;
20
‘‘(3) has been effective in carrying out pro-
21
grams to recruit Hispanic individuals to enroll in
22
and graduate from the school;
23
‘‘(4) has been effective in recruiting and retain-
24
ing Hispanic faculty members;
25
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‘‘(5) has a significant number of graduates who
1
are providing health services to medically under-
2
served populations or to individuals in health profes-
3
sional shortage areas; and
4
‘‘(6) is a Regional Hispanic Center of Excel-
5
lence.
6
‘‘(c) CERTAIN LOAN REPAYMENT PROGRAMS.—In
7
carrying out the National Health Service Corps loan re-
8
payment program and loan repayment programs of the
9
Centers for Disease Control and Prevention, the Secretary
10
shall ensure that loan repayments of not less than $50,000
11
per year are awarded for repayment of loans incurred for
12
enrollment or participation in schools and programs de-
13
scribed in this section.’’.
14
SEC. 303. LOAN REPAYMENT PROGRAM OF CENTERS FOR
15
DISEASE CONTROL AND PREVENTION.
16
Section 317F(c) of the Public Health Service Act (42
17
U.S.C. 247b–7(c)) is amended—
18
(1) by striking ‘‘and’’ after ‘‘1994,’’; and
19
(2) by inserting before the period at the end the
20
following: ‘‘, $750,000 for fiscal year 2019, and such
21
sums as may be necessary for each of the fiscal
22
years 2020 through 2024’’.
23
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SEC. 304. COOPERATIVE AGREEMENTS FOR ONLINE DE-
1
GREE PROGRAMS AT SCHOOLS OF PUBLIC
2
HEALTH AND SCHOOLS OF ALLIED HEALTH.
3
Part B of title VII of the Public Health Service Act
4
(42 U.S.C. 293 et seq.), as amended by section 302, is
5
further amended by adding at the end the following:
6
‘‘SEC. 743. COOPERATIVE AGREEMENTS FOR ONLINE DE-
7
GREE PROGRAMS.
8
‘‘(a) COOPERATIVE AGREEMENTS.—The Secretary,
9
acting through the Administrator of the Health Resources
10
and Services Administration, in consultation with the Di-
11
rector of the Centers for Disease Control and Prevention,
12
the Director of the Agency for Healthcare Research and
13
Quality, and the Deputy Assistant Secretary for Minority
14
Health, shall award cooperative agreements to schools of
15
public health and schools of allied health to design and
16
implement online degree programs.
17
‘‘(b) PRIORITY.—In awarding cooperative agreements
18
under this section, the Secretary shall give priority to any
19
school of public health or school of allied health that has
20
an established track record of serving medically under-
21
served communities.
22
‘‘(c) REQUIREMENTS.—Recipients of cooperative
23
agreements under this section shall design and implement
24
an online degree program that meets the following restric-
25
tions:
26
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‘‘(1) Enrollment of individuals who have ob-
1
tained a secondary school diploma or its recognized
2
equivalent.
3
‘‘(2) Maintaining a significant enrollment of
4
underrepresented minority or disadvantaged stu-
5
dents.
6
‘‘(3) Achieving a high completion rate of en-
7
rolled underrepresented minority or disadvantaged
8
students.
9
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There
10
are authorized to be appropriated to carry out this section
11
such sums as may be necessary for each of fiscal years
12
2019 through 2024.’’.
13
SEC. 305. SENSE OF CONGRESS ON THE MISSION OF THE
14
NATIONAL HEALTH CARE WORKFORCE COM-
15
MISSION.
16
It is the sense of Congress that the National Health
17
Care Workforce Commission established by section 5101
18
of the Patient Protection and Affordable Care Act (42
19
U.S.C. 294q) should, in carrying out its assigned duties
20
under that section, give attention to the needs of racial
21
and ethnic minorities, individuals with lower socio-
22
economic status, individuals with mental, developmental,
23
and
physical
disabilities,
lesbian,
gay,
bisexual,
24
transgender, queer, and questioning populations, and indi-
25
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158
•HR 5942 IH
viduals who are members of multiple minority or special
1
population groups.
2
SEC. 306. SCHOLARSHIP AND FELLOWSHIP PROGRAMS.
3
Subtitle A of title XXXIV of the Public Health Serv-
4
ice Act, as added by section 301, is further amended by
5
inserting after section 3417 the following:
6
‘‘SEC. 3418. DAVID SATCHER PUBLIC HEALTH AND HEALTH
7
SERVICES CORPS.
8
‘‘(a) IN GENERAL.—The Administrator of the Health
9
Resources and Services Administration and the Director
10
of the Centers for Disease Control and Prevention, in col-
11
laboration with the Deputy Assistant Secretary for Minor-
12
ity Health, shall award grants to eligible entities to in-
13
crease awareness among postprimary and postsecondary
14
students of career opportunities in the health professions.
15
‘‘(b) ELIGIBILITY.—To be eligible to receive a grant
16
under subsection (a), an entity shall—
17
‘‘(1) be a clinical, public health, or health serv-
18
ices organization, community-based or nonprofit en-
19
tity, or other entity determined appropriate by the
20
Director of the Centers for Disease Control and Pre-
21
vention;
22
‘‘(2) serve a health professional shortage area,
23
as determined by the Secretary;
24
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•HR 5942 IH
‘‘(3) work with students, including those from
1
racial and ethnic minority backgrounds, that have
2
expressed an interest in the health professions; and
3
‘‘(4) submit to the Secretary an application at
4
such time, in such manner, and containing such in-
5
formation as the Secretary may require.
6
‘‘(c) USE
OF FUNDS.—Grant awards under sub-
7
section (a) shall be used to support internships that will
8
increase awareness among students of non-research-based,
9
career opportunities in the following health professions:
10
‘‘(1) Medicine.
11
‘‘(2) Nursing.
12
‘‘(3) Public Health.
13
‘‘(4) Pharmacy.
14
‘‘(5) Health administration and management.
15
‘‘(6) Health policy.
16
‘‘(7) Psychology.
17
‘‘(8) Dentistry.
18
‘‘(9) International health.
19
‘‘(10) Social work.
20
‘‘(11) Allied health.
21
‘‘(12) Psychiatry.
22
‘‘(13) Hospice care.
23
‘‘(14) Community health, patient navigation,
24
and peer support.
25
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•HR 5942 IH
‘‘(15) Other professions deemed appropriate by
1
the Director of the Centers for Disease Control and
2
Prevention.
3
‘‘(d) PRIORITY.—In awarding grants under sub-
4
section (a), the Director of the Centers for Disease Con-
5
trol and Prevention shall give priority to those entities
6
that—
7
‘‘(1) serve a high proportion of individuals from
8
disadvantaged backgrounds;
9
‘‘(2) have experience in health disparity elimi-
10
nation programs;
11
‘‘(3) facilitate the entry of disadvantaged indi-
12
viduals into institutions of higher education; and
13
‘‘(4) provide counseling or other services de-
14
signed to assist disadvantaged individuals in success-
15
fully completing their education at the postsecondary
16
level.
17
‘‘(e) STIPENDS.—The Secretary may approve sti-
18
pends under this section for individuals for any period of
19
education in student-enhancement programs (other than
20
regular courses) at health professions schools, programs,
21
or entities, except that such a stipend may not be provided
22
to an individual for more than 6 months, and such a sti-
23
pend may not exceed $20 per day (notwithstanding any
24
other provision of law regarding the amount of stipends).
25
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•HR 5942 IH
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There
1
is authorized to be appropriated to carry out this section
2
such sums as may be necessary for each of fiscal years
3
2019 through 2024.
4
‘‘SEC. 3419. LOUIS STOKES PUBLIC HEALTH SCHOLARS
5
PROGRAM.
6
‘‘(a) IN GENERAL.—The Director of the Centers for
7
Disease Control and Prevention, in collaboration with the
8
Deputy Assistant Secretary for Minority Health, shall
9
award scholarships to postsecondary students who seek a
10
career in public health.
11
‘‘(b) ELIGIBILITY.—To be eligible to receive a schol-
12
arship under subsection (a), an individual shall—
13
‘‘(1) have interest, knowledge, or skill in public
14
health research or public health practice, or other
15
health professions as determined appropriate by the
16
Director of the Centers for Disease Control and Pre-
17
vention;
18
‘‘(2) reside in a health professional shortage
19
area as determined by the Secretary;
20
‘‘(3) demonstrate promise for becoming a leader
21
in public health;
22
‘‘(4) secure admission to a 4-year institution of
23
higher education;
24
‘‘(5) comply with subsection (e); and
25
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•HR 5942 IH
‘‘(6) submit to the Secretary an application at
1
such time, in such manner, and containing such in-
2
formation as the Secretary may require.
3
‘‘(c) USE OF FUNDS.—Amounts received under an
4
award under subsection (a) shall be used to support oppor-
5
tunities for students to become public health professionals.
6
‘‘(d) PRIORITY.—In awarding grants under sub-
7
section (a), the Director shall give priority to those stu-
8
dents that—
9
‘‘(1) are from disadvantaged backgrounds;
10
‘‘(2) have secured admissions to a minority-
11
serving institution; and
12
‘‘(3) have identified a health professional as a
13
mentor at their school or institution and an aca-
14
demic advisor to assist in the completion of their
15
baccalaureate degree.
16
‘‘(e) SCHOLARSHIPS.—The Secretary may approve
17
payment of scholarships under this section for such indi-
18
viduals for any period of education in student under-
19
graduate tenure, except that such a scholarship may not
20
be provided to an individual for more than 4 years, and
21
such scholarships may not exceed $10,000 per academic
22
year (notwithstanding any other provision of law regard-
23
ing the amount of scholarship).
24
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•HR 5942 IH
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There
1
is authorized to be appropriated to carry out this section
2
such sums as may be necessary for each of fiscal years
3
2019 through 2024.
4
‘‘SEC. 3420. PATSY MINK HEALTH AND GENDER RESEARCH
5
FELLOWSHIP PROGRAM.
6
‘‘(a) IN GENERAL.—The Director of the Centers for
7
Disease Control and Prevention, in collaboration with the
8
Deputy Assistant Secretary for Minority Health, the Ad-
9
ministrator of the Substance Abuse and Mental Health
10
Services Administration, and the Director of the Indian
11
Health Services, shall award research fellowships to post-
12
baccalaureate students to conduct research that will exam-
13
ine gender and health disparities and to pursue a career
14
in the health professions.
15
‘‘(b) ELIGIBILITY.—To be eligible to receive a fellow-
16
ship under subsection (a) an individual shall—
17
‘‘(1) have experience in health research or pub-
18
lic health practice;
19
‘‘(2) reside in a health professional shortage
20
area as determined by the Secretary;
21
‘‘(3) have expressed an interest in the health
22
professions;
23
‘‘(4) demonstrate promise for becoming a leader
24
in the field of women’s health;
25
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•HR 5942 IH
‘‘(5) secure admission to a health professions
1
school or graduate program with an emphasis in
2
gender studies;
3
‘‘(6) comply with subsection (f); and
4
‘‘(7) submit to the Secretary an application at
5
such time, in such manner, and containing such in-
6
formation as the Secretary may require.
7
‘‘(c) USE OF FUNDS.—Amounts received under an
8
award under subsection (a) shall be used to support oppor-
9
tunities for students to become researchers and advance
10
the research base on the intersection between gender and
11
health.
12
‘‘(d) PRIORITY.—In awarding grants under sub-
13
section (a), the Director of the Centers for Disease Con-
14
trol and Prevention shall give priority to those applicants
15
that—
16
‘‘(1) are from disadvantaged backgrounds; and
17
‘‘(2) have identified a mentor and academic ad-
18
visor who will assist in the completion of their grad-
19
uate or professional degree and have secured a re-
20
search assistant position with a researcher working
21
in the area of gender and health.
22
‘‘(e) FELLOWSHIPS.—The Director of the Centers for
23
Disease Control and Prevention may approve fellowships
24
for individuals under this section for any period of edu-
25
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•HR 5942 IH
cation in the student’s graduate or health profession ten-
1
ure, except that such a fellowship may not be provided
2
to an individual for more than 3 years, and such a fellow-
3
ship may not exceed $18,000 per academic year (notwith-
4
standing any other provision of law regarding the amount
5
of fellowship).
6
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There
7
is authorized to be appropriated to carry out this section
8
such sums as may be necessary for each of fiscal years
9
2019 through 2024.
10
‘‘SEC. 3420A. PAUL DAVID WELLSTONE INTERNATIONAL
11
HEALTH FELLOWSHIP PROGRAM.
12
‘‘(a) IN GENERAL.—The Director of the Agency for
13
Healthcare Research and Quality, in collaboration with
14
the Deputy Assistant Secretary for Minority Health, shall
15
award research fellowships to college students or recent
16
graduates to advance their understanding of international
17
health.
18
‘‘(b) ELIGIBILITY.—To be eligible to receive a fellow-
19
ship under subsection (a) an individual shall—
20
‘‘(1) have educational experience in the field of
21
international health;
22
‘‘(2) reside in a health professional shortage
23
area as determined by the Secretary;
24
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•HR 5942 IH
‘‘(3) demonstrate promise for becoming a leader
1
in the field of international health;
2
‘‘(4) be a college senior or recent graduate of
3
a four-year higher education institution;
4
‘‘(5) comply with subsection (e); and
5
‘‘(6) submit to the Secretary an application at
6
such time, in such manner, and containing such in-
7
formation as the Secretary may require.
8
‘‘(c) USE OF FUNDS.—Amounts received under an
9
award under subsection (a) shall be used to support oppor-
10
tunities for students to become health professionals and
11
to advance their knowledge about international issues re-
12
lating to health care access and quality.
13
‘‘(d) PRIORITY.—In awarding grants under sub-
14
section (a), the Director shall give priority to those appli-
15
cants that—
16
‘‘(1) are from a disadvantaged background; and
17
‘‘(2) have identified a mentor at a health pro-
18
fessions school or institution, an academic advisor to
19
assist in the completion of their graduate or profes-
20
sional degree, and an advisor from an international
21
health non-governmental organization, private volun-
22
teer organization, or other international institution
23
or program that focuses on increasing health care
24
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•HR 5942 IH
access and quality for residents in developing coun-
1
tries.
2
‘‘(e) FELLOWSHIPS.—The Secretary shall approve
3
fellowships for college seniors or recent graduates, except
4
that such a fellowship may not be provided to an indi-
5
vidual for more than 6 months, may not be awarded to
6
a graduate that has not been enrolled in school for more
7
than 1 year, and may not exceed $4,000 per academic year
8
(notwithstanding any other provision of law regarding the
9
amount of fellowship).
10
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There
11
is authorized to be appropriated to carry out this section,
12
such sums as may be necessary for each of fiscal years
13
2019 through 2024.
14
‘‘SEC. 3420B. EDWARD R. ROYBAL HEALTH SCHOLAR PRO-
15
GRAM.
16
‘‘(a) IN GENERAL.—The Director of the Agency for
17
Healthcare Research and Quality, the Director of the Cen-
18
ters for Medicare and Medicaid Services, and the Adminis-
19
trator for Health Resources and Services Administration,
20
in collaboration with the Deputy Assistant Secretary for
21
Minority Health, shall award grants to eligible entities to
22
expose entering graduate students to the health profes-
23
sions.
24
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‘‘(b) ELIGIBILITY.—To be eligible to receive a grant
1
under subsection (a), an entity shall—
2
‘‘(1) be a clinical, public health, or health serv-
3
ices organization, community-based, academic, or
4
nonprofit entity, or other entity determined appro-
5
priate by the Director of the Agency for Healthcare
6
Research and Quality;
7
‘‘(2) serve in a health professional shortage
8
area as determined by the Secretary;
9
‘‘(3) work with students obtaining a degree in
10
the health professions; and
11
‘‘(4) submit to the Secretary an application at
12
such time, in such manner, and containing such in-
13
formation as the Secretary may require.
14
‘‘(c) USE OF FUNDS.—Amounts received under a
15
grant awarded under subsection (a) shall be used to sup-
16
port opportunities that expose students to non-research-
17
based health professions, including—
18
‘‘(1) public health policy;
19
‘‘(2) health care and pharmaceutical policy;
20
‘‘(3) health care administration and manage-
21
ment;
22
‘‘(4) health economics; and
23
‘‘(5) other professions determined appropriate
24
by the Director of the Agency for Healthcare Re-
25
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•HR 5942 IH
search and Quality, the Director of the Centers for
1
Medicare and Medicaid Services, and the Adminis-
2
trator for Health Resources and Services Adminis-
3
tration.
4
‘‘(d) PRIORITY.—In awarding grants under sub-
5
section (a), the Director of the Agency for Healthcare Re-
6
search and Quality shall give priority to those entities
7
that—
8
‘‘(1) have experience with health disparity elimi-
9
nation programs;
10
‘‘(2) facilitate training in the fields described in
11
subsection (c); and
12
‘‘(3) provide counseling or other services de-
13
signed to assist such individuals in successfully com-
14
pleting their education at the postsecondary level.
15
‘‘(e) STIPENDS.—The Secretary may approve the
16
payment of stipends for individuals under this section for
17
any period of education in student-enhancement programs
18
(other than regular courses) at health professions schools
19
or entities, except that such a stipend may not be provided
20
to an individual for more than 2 months, and such a sti-
21
pend may not exceed $100 per day (notwithstanding any
22
other provision of law regarding the amount of stipends).
23
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There
24
is authorized to be appropriated to carry out this section
25
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•HR 5942 IH
such sums as may be necessary for each of fiscal years
1
2019 through 2024.
2
‘‘SEC. 3420C. LEADERSHIP FELLOWSHIP PROGRAMS.
3
‘‘The Secretary of Health and Human Services shall
4
award grants to entities to develop leadership fellowship
5
programs for underrepresented health professionals to be-
6
come future leaders in public health and health care deliv-
7
ery institutions.’’.
8
SEC. 307. MCNAIR POSTBACCALAUREATE ACHIEVEMENT
9
PROGRAM.
10
Section 402E of the Higher Education Act of 1965
11
(20 U.S.C. 1070a–15) is amended by striking subsection
12
(g) and inserting the following:
13
‘‘(g) COLLABORATION IN HEALTH PROFESSION DI-
14
VERSITY TRAINING PROGRAMS.—The Secretary shall co-
15
ordinate with the Secretary of Health and Human Serv-
16
ices to ensure that there is collaboration between the goals
17
of the program under this section and programs of the
18
Health Resources and Services Administration that pro-
19
mote health workforce diversity. The Secretary of Edu-
20
cation shall take such measures as may be necessary to
21
encourage students participating in projects assisted
22
under this section to consider health profession careers.
23
‘‘(h) FUNDING.—From amounts appropriated pursu-
24
ant to the authority of section 402A(g), the Secretary
25
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•HR 5942 IH
shall, to the extent practicable, allocate funds for projects
1
authorized by this section in an amount which is not less
2
than $31,000,000 for each of the fiscal years 2019
3
through 2025.’’.
4
SEC. 308. RULES FOR DETERMINATION OF FULL-TIME
5
EQUIVALENT RESIDENTS FOR COST-REPORT-
6
ING PERIODS.
7
(a) DGME DETERMINATIONS.—Section 1886(h)(4)
8
of the Social Security Act (42 U.S.C. 1395ww(h)(4)), as
9
amended by section 204(a), is amended—
10
(1) in subparagraph (E), by striking ‘‘Subject
11
to subparagraphs (J) and (K), such rules’’ and in-
12
serting ‘‘Subject to subparagraphs (J), (K), and
13
(M), such rules’’;
14
(2) in subparagraph (J), by striking ‘‘Such
15
rules’’ and inserting ‘‘Subject to subparagraph (M),
16
such rules’’;
17
(3) in subparagraph (K), by striking ‘‘In deter-
18
mining’’ and inserting ‘‘Subject to subparagraph
19
(M), in determining’’; and
20
(4) by adding at the end the following new sub-
21
paragraph:
22
‘‘(M) TREATMENT OF CERTAIN RESIDENTS
23
AND INTERNS.—For purposes of cost-reporting
24
periods beginning on or after October 1, 2016,
25
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in determining the hospital’s number of full-
1
time equivalent residents for purposes of this
2
paragraph, all the time spent by an intern or
3
resident in an approved medical residency train-
4
ing program shall be counted toward the deter-
5
mination of full-time equivalency if the hos-
6
pital—
7
‘‘(i) is recognized as a subsection (d)
8
hospital;
9
‘‘(ii) is recognized as a subsection (d)
10
Puerto Rico hospital;
11
‘‘(iii) is reimbursed under a reim-
12
bursement system authorized under section
13
1814(b)(3); or
14
‘‘(iv) is a provider-based hospital out-
15
patient department.’’.
16
(b)
IME
DETERMINATIONS.—Section
17
1886(d)(5)(B)(x) of the Social Security Act (42 U.S.C.
18
1395ww(d)(5)(B)(x)) is amended—
19
(1) in subclause (II), by striking ‘‘In deter-
20
mining’’ and inserting ‘‘Subject to subclause (IV), in
21
determining’’;
22
(2) in subclause (III), by striking ‘‘In deter-
23
mining’’ and inserting ‘‘Subject to subclause (IV), in
24
determining’’; and
25
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•HR 5942 IH
(3) by inserting after subclause (III) the fol-
1
lowing new subclause:
2
‘‘(IV) The provisions of subparagraph (L)
3
of subsection (h)(4) shall apply under this sub-
4
paragraph in the same manner as they apply
5
under such subsection.’’.
6
SEC. 309. DEVELOPING AND IMPLEMENTING STRATEGIES
7
FOR LOCAL HEALTH EQUITY.
8
(a) GRANTS.—The Secretaries of Health and Human
9
Services, Education, and Labor, acting jointly, shall make
10
grants to academic institutions for the purposes of—
11
(1) in accordance with subsection (b), devel-
12
oping capacity—
13
(A) to build an evidence base for successful
14
strategies for increasing local health equity; and
15
(B) to serve as national models of driving
16
local health equity;
17
(2) in accordance with subsection (c), devel-
18
oping a strategic partnership with the community in
19
which the academic institution is located; and
20
(3) collecting data on, and periodically evalu-
21
ating, the effectiveness of the institution’s programs
22
funded through this section to enable the institution
23
to adapt accordingly for maximum efficiency and
24
success.
25
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•HR 5942 IH
(b) DEVELOPING CAPACITY FOR INCREASING LOCAL
1
HEALTH EQUITY.—As a condition on receipt of a grant
2
under subsection (a), an academic institution shall agree
3
to use the grant to build an evidence base for successful
4
strategies for increasing local health equity, and to serve
5
as a national model of driving local health equity, by sup-
6
porting—
7
(1) resources to strengthen institutional metrics
8
and capacity to execute institutionwide health work-
9
force goals that can serve as models for increasing
10
health equity in communities across the country;
11
(2) collaborations among a cohort of institu-
12
tions in implementing systemic change, partnership
13
development, and programmatic efforts supportive of
14
health equity goals across disciplines and popu-
15
lations; and
16
(3) enhanced or newly developed data systems
17
and research infrastructure capable of informing
18
current and future workforce efforts and building a
19
foundation for a broader research agenda targeting
20
urban health disparities.
21
(c) STRATEGIC PARTNERSHIPS.—As a condition on
22
receipt of a grant under subsection (a), an academic insti-
23
tution shall agree to use the grant to develop a strategic
24
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•HR 5942 IH
partnership with the community in which the institution
1
is located for the purposes of—
2
(1) strengthening connections between the insti-
3
tution and the community—
4
(A) to improve evaluation of and address
5
the community’s health and health workforce
6
needs; and
7
(B) to engage the community in health
8
workforce development;
9
(2) developing, enhancing, or accelerating inno-
10
vative undergraduate and graduate programs in the
11
biomedical sciences and health professions; and
12
(3) strengthening pipeline programs in the bio-
13
medical sciences and health professions, including by
14
developing partnerships between institutions of high-
15
er education and elementary and secondary schools
16
to recruit the next generation of health professionals
17
earlier in the pipeline to a health care career.
18
SEC. 310. LOAN FORGIVENESS FOR MENTAL AND BEHAV-
19
IORAL HEALTH SOCIAL WORKERS.
20
Section 455 of the Higher Education Act of 1965 (20
21
U.S.C. 1087e) is amended by adding at the end the fol-
22
lowing new subsection:
23
‘‘(r) REPAYMENT PLAN FOR MENTAL AND BEHAV-
24
IORAL HEALTH SOCIAL WORKERS.—
25
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•HR 5942 IH
‘‘(1) IN GENERAL.—The Secretary shall cancel
1
the balance of interest and principal due on any eli-
2
gible Federal Direct Loan not in default for a bor-
3
rower who—
4
‘‘(A) has made 120 monthly payments on
5
the eligible Federal Direct Loan after October
6
1, 2016, pursuant to any one or a combination
7
of the following—
8
‘‘(i) payments under an income-based
9
repayment plan under section 493C;
10
‘‘(ii) payments under a standard re-
11
payment plan under subsection (d)(1)(A),
12
based on a 10-year repayment period;
13
‘‘(iii) monthly payments under a re-
14
payment plan under subsection (d)(1) or
15
(g) of not less than the monthly amount
16
calculated
under
subsection
(d)(1)(A),
17
based on a 10-year repayment period; or
18
‘‘(iv) payments under an income con-
19
tingent repayment plan under subsection
20
(d)(1)(D); and
21
‘‘(B)(i) is employed as a mental health or
22
behavioral health social worker, as defined by
23
the Secretary by regulation, at the time of such
24
forgiveness; and
25
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•HR 5942 IH
‘‘(ii) has been employed as such a mental
1
health or behavioral health social worker during
2
the period in which the borrower makes each of
3
the 120 payments as described in subparagraph
4
(A).
5
‘‘(2) LOAN CANCELLATION AMOUNT.—After the
6
conclusion of the employment period described in
7
paragraph (1), the Secretary shall cancel the obliga-
8
tion to repay the balance of principal and interest
9
due as of the time of such cancellation, on the eligi-
10
ble Federal Direct Loans made to the borrower
11
under this part.
12
‘‘(3) INELIGIBILITY FOR DOUBLE BENEFITS.—
13
No borrower may, for the same employment as a
14
mental health or behavioral health social worker, re-
15
ceive a reduction of loan obligations under both this
16
subsection and subsection (m), 428J, 428K, 428L,
17
or 460.
18
‘‘(4) DEFINITION
OF
ELIGIBLE
FEDERAL
DI-
19
RECT LOAN.—In this subsection, the term ‘eligible
20
Federal Direct Loan’ means a Federal Direct Staf-
21
ford Loan, Federal Direct PLUS Loan, Federal Di-
22
rect Unsubsidized Stafford Loan, or a Federal Di-
23
rect Consolidation Loan.’’.
24
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SEC. 311. HEALTH PROFESSIONS WORKFORCE FUND.
1
(a) PURPOSE.—It is the purpose of this section to
2
establish a Health Professions Workforce Fund to be ad-
3
ministered through the Health Resources and Services Ad-
4
ministration within the Department of Health and Human
5
Services to provide for expanded and sustained national
6
investment in the health professions and nursing work-
7
force development programs under title VII and title VIII
8
of the Public Health Service Act.
9
(b) ESTABLISHING
THE
HEALTH
PROFESSIONS
10
WORKFORCE FUND.—There is authorized to be appro-
11
priated, and there is appropriated, out of any monies in
12
the Treasury not otherwise appropriated, to the Health
13
Professions Workforce Fund—
14
(1) $355,000,000 for fiscal year 2019;
15
(2) $375,000,000 for fiscal year 2020;
16
(3) $392,000,000 for fiscal year 2021;
17
(4) $412,000,000 for fiscal year 2022;
18
(5) $432,000,000 for fiscal year 2023;
19
(6) $454,000,000 for fiscal year 2024;
20
(7) $476,000,000 for fiscal year 2025;
21
(8) $500,000,000 for fiscal year 2026;
22
(9) $525,000,000 for fiscal year 2027; and
23
(10) $552,000,000 for fiscal year 2028.
24
(c) FUNDING.—
25
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•HR 5942 IH
(1) For the purpose of carrying out health pro-
1
fessions education programs authorized under title
2
VII of the Public Health Service Act, in addition to
3
any other amounts authorized to be appropriated for
4
such purpose, there is authorized to be appropriated
5
out of any monies in the Health Professions Work-
6
force Fund, the following:
7
(A) $240,000,000 for fiscal year 2019.
8
(B) $253,000,000 for fiscal year 2020.
9
(C) $265,000,000 for fiscal year 2021.
10
(D) $278,000,000 for fiscal year 2022.
11
(E) $292,000,000 for fiscal year 2023.
12
(F) $307,000,000 for fiscal year 2024.
13
(G) $322,000,000 for fiscal year 2025.
14
(H) $338,000,000 for fiscal year 2026.
15
(I) $355,000,000 for fiscal year 2027.
16
(J) $373,000,000 for fiscal year 2028.
17
(2) For the purpose of carrying out nursing
18
workforce development programs authorized under
19
Title VIII of the Public Health Service Act, in addi-
20
tion to any other amounts authorized to be appro-
21
priated for such purpose, there is authorized to be
22
appropriated out of any monies in the Health Pro-
23
fessions Workforce Fund, the following:
24
(A) $115,000,000 for fiscal year 2019.
25
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•HR 5942 IH
(B) $122,000,000 for fiscal year 2020.
1
(C) $127,000,000 for fiscal year 2021.
2
(D) $134,000,000 for fiscal year 2022.
3
(E) $140,000,000 for fiscal year 2023.
4
(F) $147,000,000 for fiscal year 2024.
5
(G) $154,000,000 for fiscal year 2025.
6
(H) $162,000,000 for fiscal year 2026.
7
(I) $170,000,000 for fiscal year 2027.
8
(J) $179,000,000 for fiscal year 2028.
9
SEC. 312. FINDINGS; SENSE OF CONGRESS RELATING TO
10
GRADUATE MEDICAL EDUCATION.
11
(a) FINDINGS.—Congress finds the following:
12
(1) Projections by the Association of American
13
Medical Colleges (AAMC) and other expert entities,
14
such as the Health Resources and Services Adminis-
15
tration (HRSA), have indicated a nationwide short-
16
age of up to 104,900 physicians, split evenly be-
17
tween primary care and specialists, by 2030.
18
(2) Primarily due to the growing and aging
19
population, over the next decade, physician demand
20
is expected to grow up to 17 percent.
21
(3) The United States Census Bureau estimates
22
that the United States population will grow from
23
321 million in 2015 to 347 million in 2025. Further,
24
the number of Medicare beneficiaries is estimated to
25
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•HR 5942 IH
increase from 47.8 million in 2015 to approximately
1
66 million in 2025.
2
(4) Approximately 36 percent of practicing phy-
3
sicians are over the age of 55 and are likely to retire
4
within the next decade.
5
(5) A nationwide physician shortage will result
6
in many Americans waiting longer and traveling far-
7
ther for health care; seeking nonemergent care in
8
emergency departments; and delaying treatment
9
until their health care needs become more serious,
10
complex, and costly.
11
(6) Changing demographics (such as an aging
12
population), new health care delivery models (such
13
as medical homes), and other factors (such as dis-
14
aster preparedness) are contributing to a shortage of
15
both generalist and specialist physicians.
16
(7) These shortages will have the most severe
17
impact on vulnerable and underserved populations,
18
including racial/ethnic minorities and the approxi-
19
mately 20 percent of Americans who live in rural or
20
inner-city locations designated as health professional
21
shortage areas.
22
(8) The AAMC’s Health Care Utilization Eq-
23
uity model estimates that if racial and ethnic minori-
24
ties and individuals from rural areas utilized health
25
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•HR 5942 IH
care in a similar way to their Caucasian counter-
1
parts living in metropolitan areas, the physician
2
shortage would require an additional 96,000 physi-
3
cians.
4
(9) To address the physician shortage, medical
5
education and training need to be accessible for stu-
6
dents and physicians from all backgrounds. Inter-
7
national graduates play an important role in U.S.
8
health care, representing roughly 25 percent of the
9
health care workforce. Immigration pathways like
10
student, exchange-visitor, and employment visas, and
11
programs like the National Interest Waiver and
12
Conrad 30 J–1 Visa Waiver, help improve health ac-
13
cess across the country.
14
(10) United States medical schools have com-
15
mitted to and have initiated a 30 percent increase
16
in enrollment by 2017 to help reduce the Nation’s
17
shortage of quality physicians.
18
(11) An increase in United States medical
19
school graduates must be accompanied by an in-
20
crease of 4,000 graduate medical education (GME)
21
training positions each year.
22
(12) Graduate medical education programs and
23
teaching hospitals provide venues in which the next
24
generation of physicians learns to work collabo-
25
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183
•HR 5942 IH
ratively with other physicians and health profes-
1
sionals, adopt more efficient care delivery models
2
(such as care coordination and medical homes), in-
3
corporate health information technology and elec-
4
tronic health records in every aspect of their work,
5
apply new methods of assuring quality and safety,
6
and participate in groundbreaking clinical and public
7
health research.
8
(13) The Medicare Program under title XVIII
9
of the Social Security Act (having more beneficiaries
10
than any other health care program), supports its
11
‘‘fair share’’ of the costs associated with graduate
12
medical education (GME).
13
(14) In general, the level of support of graduate
14
medical education by the Medicare Program has
15
been capped since 1997 and has not been increased
16
to support the expansion of graduate medical edu-
17
cation programs needed to avert the projected physi-
18
cian shortage or to accommodate the increase in
19
United States medical school graduates.
20
(b) SENSE OF CONGRESS.—It is the sense of Con-
21
gress that eliminating the limit of the number of residency
22
positions that receive some level of Medicare support
23
under section 1886(h) of the Social Security Act (42
24
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•HR 5942 IH
U.S.C. 1395ww(h)), also referred to as the Medical grad-
1
uate medical education cap, is critical to—
2
(1) ensuring an appropriate supply of physi-
3
cians to meet the Nation’s health care needs;
4
(2) facilitating equitable access for all who seek
5
health care; and
6
(3) mitigating disparities in health and health
7
care.
8
SEC. 313. CAREER SUPPORT FOR SKILLED, INTERNATION-
9
ALLY EDUCATED HEALTH PROFESSIONALS.
10
(a) FINDINGS.—Congress finds the following:
11
(1) According to the Association of Schools of
12
Public Health, projections indicate a nationwide
13
shortage of up to 250,000 public health workers
14
needed by 2020.
15
(2) Similar trends are projected for other health
16
professions indicating shortages across disciplines,
17
including within the fields of nursing (500,000 by
18
2025), dentistry (15,000 by 2025), pharmacy
19
(38,000 by 2030), mental and behavioral health, pri-
20
mary care (46,000 by 2025), and community and al-
21
lied health.
22
(3) A nationwide health workforce shortage will
23
result in serious health threats and more severe and
24
costly health care needs, due to, in part, a delayed
25
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•HR 5942 IH
response to food-borne outbreaks, emerging infec-
1
tious diseases, natural disasters, fewer cancer
2
screenings, and delayed treatment.
3
(4) Vulnerable and underserved populations and
4
health professional shortage areas will be most se-
5
verely impacted by the health workforce shortage.
6
(5) According to the Migration Policy Institute,
7
over 2,000,000 college-educated immigrants in the
8
United States today are unemployed or under-
9
employed in low- or semi-skilled jobs that fail to
10
draw on their education and expertise.
11
(6) Approximately 2 out of every 5 internation-
12
ally educated immigrants are unemployed or under-
13
employed.
14
(7) According to Drexel University Center for
15
Labor Markets and Policy, underemployment for
16
internationally educated immigrant women is 28 per-
17
cent higher than for their male counterparts.
18
(8) According to the Drexel University Center
19
for labor markets and policy, the mean annual earn-
20
ings of underemployed immigrants were $32,000, or
21
43 percent less than United States born college
22
graduates employed in the college labor market.
23
(9) According to Upwardly Global and the Wel-
24
come Back Initiative, with proper guidance and sup-
25
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•HR 5942 IH
port, underemployed skilled immigrants typically in-
1
crease their income by 215 percent to 900 percent.
2
(10) According to the Brookings Institution and
3
the Partnership for a New American Economy, im-
4
migrants working in the health workforce are, on av-
5
erage, better educated than United States-born
6
workers in the health workforce.
7
(b) GRANTS TO ELIGIBLE ENTITIES.—
8
(1) AUTHORITY
TO
PROVIDE
GRANTS.—The
9
Secretary of Health and Human Services acting
10
through the Bureau of Health Workforce within the
11
Health Resources and Services Administration, the
12
National Institute on Minority Health and Health
13
Disparities, or the Office of Minority Health (in this
14
section referred to as the ‘‘Secretary’’) may award
15
grants to eligible entities to carry out activities de-
16
scribed in subsection (c).
17
(2) ELIGIBILITY.—To be eligible to receive a
18
grant under this section, an entity shall—
19
(A) be a clinical, public health, or health
20
services organization, a community-based or
21
nonprofit entity, an academic institution, a
22
faith-based organization, a State, county, or
23
local government, an Area Health Education
24
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•HR 5942 IH
Center, or another entity determined appro-
1
priate by the Secretary; and
2
(B) submit to the Secretary an application
3
at such time, in such manner, and containing
4
such information as the Secretary may require.
5
(c) AUTHORIZED ACTIVITIES.—A grant awarded
6
under this section shall be used—
7
(1) to provide services to assist unemployed and
8
underemployed skilled immigrants, residing in the
9
United States, who have legal, permanent work au-
10
thorization and who are internationally educated
11
health professionals, enter into the American health
12
workforce with employment matching their health
13
professional skills and education, and advance in em-
14
ployment to positions that better match their health
15
professional education and expertise;
16
(2) to provide training opportunities to reduce
17
barriers to entry and advancement in the health
18
workforce for skilled, internationally educated immi-
19
grants;
20
(3) to educate employers regarding the abilities
21
and capacities of internationally educated health
22
professionals;
23
(4) to assist in the evaluation of foreign creden-
24
tials;
25
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•HR 5942 IH
(5) to support preceptorships for international
1
medical graduates in hospital primary care training;
2
and
3
(6) to facilitate access to contextualized and ac-
4
celerated courses on English as a second language.
5
TITLE IV—IMPROVING HEALTH
6
CARE ACCESS AND QUALITY
7
Subtitle A—Expansion of Coverage
8
SEC. 401. AMENDMENT TO THE PUBLIC HEALTH SERVICE
9
ACT.
10
Title XXXIV of the Public Health Service Act, as
11
amended by titles I, II, III, and IX of this Act, is further
12
amended by inserting after subtitle C the following:
13
‘‘Subtitle
D—Reconstruction
and
14
Improvement Grants for Public
15
Health Care Facilities Serving
16
Pacific Islanders and the Insu-
17
lar Areas
18
‘‘SEC. 3451. GRANT SUPPORT FOR QUALITY IMPROVEMENT
19
INITIATIVES.
20
‘‘(a) IN GENERAL.—The Secretary, in collaboration
21
with the Administrator of the Health Resources and Serv-
22
ices Administration, the Director of the Agency for
23
Healthcare Research and Quality, and the Administrator
24
of the Centers for Medicare & Medicaid Services, shall
25
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•HR 5942 IH
award grants to eligible entities for the conduct of dem-
1
onstration projects to improve the quality of and access
2
to health care.
3
‘‘(b) ELIGIBILITY.—To be eligible to receive a grant
4
under subsection (a), an entity shall—
5
‘‘(1) be a health center, hospital, health plan,
6
health system, community clinic. or other health en-
7
tity determined appropriate by the Secretary—
8
‘‘(A) that, by legal mandate or explicitly
9
adopted mission, provides patients with access
10
to services regardless of their ability to pay;
11
‘‘(B) that provides care or treatment for a
12
substantial number of patients who are unin-
13
sured, are receiving assistance under a State
14
program under title XIX of the Social Security
15
Act, or are members of vulnerable populations,
16
as determined by the Secretary; and
17
‘‘(C)(i) with respect to which, not less than
18
50 percent of the entity’s patient population is
19
made up of racial and ethnic minorities; or
20
‘‘(ii) that—
21
‘‘(I) serves a disproportionate percent-
22
age of local, minority racial and ethnic pa-
23
tients, or that has a patient population, at
24
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•HR 5942 IH
least 50 percent of which is limited-
1
English-proficient; and
2
‘‘(II) provides an assurance that
3
amounts received under the grant will be
4
used only to support quality improvement
5
activities in the racial and ethnic popu-
6
lation served; and
7
‘‘(2) prepare and submit to the Secretary an
8
application at such time, in such manner, and con-
9
taining such information as the Secretary may re-
10
quire.
11
‘‘(c) PRIORITY.—In awarding grants under sub-
12
section (a), the Secretary shall give priority to applicants
13
under subsection (b)(2) that—
14
‘‘(1) demonstrate an intent to operate as part
15
of a health care partnership, network, collaborative,
16
coalition, or alliance where each member entity con-
17
tributes to the design, implementation, and evalua-
18
tion of the proposed intervention; or
19
‘‘(2) intend to use funds to carry out system-
20
wide changes with respect to health care quality im-
21
provement, including—
22
‘‘(A) improved systems for data collection
23
and reporting;
24
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‘‘(B) innovative collaborative or similar
1
processes;
2
‘‘(C) group programs with behavioral or
3
self-management interventions;
4
‘‘(D) case management services;
5
‘‘(E) physician or patient reminder sys-
6
tems;
7
‘‘(F) educational interventions; or
8
‘‘(G) other activities determined appro-
9
priate by the Secretary.
10
‘‘(d) USE OF FUNDS.—An entity shall use amounts
11
received under a grant under subsection (a) to support
12
the implementation and evaluation of health care quality
13
improvement activities or minority health and health care
14
disparity reduction activities that include—
15
‘‘(1) with respect to health care systems, activi-
16
ties relating to improving—
17
‘‘(A) patient safety;
18
‘‘(B) timeliness of care;
19
‘‘(C) effectiveness of care;
20
‘‘(D) efficiency of care;
21
‘‘(E) patient centeredness; and
22
‘‘(F) health information technology; and
23
‘‘(2) with respect to patients, activities relating
24
to—
25
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•HR 5942 IH
‘‘(A) staying healthy;
1
‘‘(B) getting well, mentally and physically;
2
‘‘(C) living effectively with illness or dis-
3
ability;
4
‘‘(D) coping with end-of-life issues; and
5
‘‘(E) shared decisionmaking.
6
‘‘(e) COMMON DATA SYSTEMS.—The Secretary shall
7
provide financial and other technical assistance to grant-
8
ees under this section for the development of common data
9
systems.
10
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There
11
are authorized to be appropriated to carry out this section
12
such sums as may be necessary for each of fiscal years
13
2019 through 2024.
14
‘‘SEC. 3452. CENTERS OF EXCELLENCE.
15
‘‘(a) IN GENERAL.—The Secretary, acting through
16
the Administrator of the Health Resources and Services
17
Administration, shall designate centers of excellence at
18
public hospitals, and other health systems serving large
19
numbers of minority patients, that—
20
‘‘(1)
meet
the
requirements
of
section
21
3451(b)(1);
22
‘‘(2) demonstrate excellence in providing care to
23
minority populations; and
24
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•HR 5942 IH
‘‘(3) demonstrate excellence in reducing dispari-
1
ties in health and health care.
2
‘‘(b) REQUIREMENTS.—A hospital or health system
3
that serves as a center of excellence under subsection (a)
4
shall—
5
‘‘(1) design, implement, and evaluate programs
6
and policies relating to the delivery of care in ra-
7
cially, ethnically, and linguistically diverse popu-
8
lations;
9
‘‘(2) provide training and technical assistance
10
to other hospitals and health systems relating to the
11
provision of quality health care to minority popu-
12
lations; and
13
‘‘(3) develop activities for graduate or con-
14
tinuing medical education that institutionalize a
15
focus on cultural competence training for health care
16
providers.
17
‘‘(c) AUTHORIZATION OF APPROPRIATIONS.—There
18
are authorized to be appropriated to carry out this section,
19
such sums as may be necessary for each of fiscal years
20
2019 through 2024.
21
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‘‘SEC. 3453. RECONSTRUCTION AND IMPROVEMENT GRANTS
1
FOR PUBLIC HEALTH CARE FACILITIES SERV-
2
ING PACIFIC ISLANDERS AND THE INSULAR
3
AREAS.
4
‘‘(a) IN GENERAL.—The Secretary shall provide di-
5
rect financial assistance to designated health care pro-
6
viders and community health centers in American Samoa,
7
Guam, the Commonwealth of the Northern Mariana Is-
8
lands, the United States Virgin Islands, Puerto Rico, and
9
Hawaii for the purposes of reconstructing and improving
10
health care facilities and services in a culturally competent
11
and sustainable manner.
12
‘‘(b) ELIGIBILITY.—To be eligible to receive direct fi-
13
nancial assistance under subsection (a), an entity shall be
14
a public health facility or community health center located
15
in American Samoa, Guam, the Commonwealth of the
16
Northern Mariana Islands, the United States Virgin Is-
17
lands, Puerto Rico, or Hawaii that—
18
‘‘(1) is owned or operated by—
19
‘‘(A) the Government of American Samoa,
20
Guam, the Commonwealth of the Northern
21
Mariana Islands, the United States Virgin Is-
22
lands, Puerto Rico, or Hawaii or a unit of local
23
government; or
24
‘‘(B) a nonprofit organization; and
25
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•HR 5942 IH
‘‘(2)(A) provides care or treatment for a sub-
1
stantial number of patients who are uninsured, re-
2
ceiving assistance under a State program under a
3
title XVIII of the Social Security Act, or a State
4
program under title XIX of such Act, or who are
5
members of a vulnerable population, as determined
6
by the Secretary; or
7
‘‘(B) serves a disproportionate percentage of
8
local, minority racial and ethnic patients.
9
‘‘(c) REPORT.—Not later than 180 days after the
10
date of enactment of this title and annually thereafter, the
11
Secretary shall submit to the Congress and the President
12
a report that includes an assessment of health resources
13
and facilities serving populations in American Samoa,
14
Guam, the Commonwealth of the Northern Mariana Is-
15
lands, the United States Virgin Islands, Puerto Rico, and
16
Hawaii. In preparing such report, the Secretary shall—
17
‘‘(1) consult with and obtain information on all
18
health care facilities needs from the entities de-
19
scribed in subsection (b);
20
‘‘(2) include all amounts of Federal assistance
21
received by each entity in the preceding fiscal year;
22
‘‘(3) review the total unmet needs of each juris-
23
diction for health care facilities, including needs for
24
renovation and expansion of existing facilities;
25
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•HR 5942 IH
‘‘(4) include a strategic plan for addressing the
1
needs of each jurisdiction identified in the report;
2
and
3
‘‘(5) evaluate the effectiveness of the care pro-
4
vided by measuring patient outcomes and cost meas-
5
ures.
6
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There
7
are authorized to be appropriated such sums as necessary
8
to carry out this section.’’.
9
SEC. 402. REMOVING CITIZENSHIP AND IMMIGRATION BAR-
10
RIERS TO ACCESS TO AFFORDABLE HEALTH
11
CARE UNDER ACA.
12
(a) IN GENERAL.—
13
(1) PREMIUM TAX CREDITS.—Section 36B of
14
the Internal Revenue Code of 1986 is amended—
15
(A) in subsection (c)(1)(B)—
16
(i) by amending the heading to read
17
as follows: ‘‘SPECIAL RULE FOR CERTAIN
18
INDIVIDUALS
INELIGIBLE
FOR
MEDICAID
19
DUE TO STATUS’’, and
20
(ii) in clause (ii), by striking ‘‘lawfully
21
present in the United States, but’’ and in-
22
serting ‘‘who’’, and
23
(B) by striking subsection (e).
24
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(2) COST-SHARING REDUCTIONS.—Section 1402
1
of the Patient Protection and Affordable Care Act
2
(42 U.S.C. 18071) is amended by striking sub-
3
section (e).
4
(3) BASIC
HEALTH
PROGRAM
ELIGIBILITY.—
5
Section 1331(e)(1)(B) of the Patient Protection and
6
Affordable Care Act (42 U.S.C. 18051(e)(1)(B)) is
7
amended by striking ‘‘lawfully present in the United
8
States’’.
9
(4) RESTRICTIONS ON FEDERAL PAYMENTS.—
10
Section 1412 of the Patient Protection and Afford-
11
able Care Act (42 U.S.C. 18082) is amended by
12
striking subsection (d).
13
(5) REQUIREMENT TO MAINTAIN MINIMUM ES-
14
SENTIAL COVERAGE.—Section 5000A(d) of the In-
15
ternal Revenue Code of 1986 is amended by striking
16
paragraph (3) and by redesignating paragraph (4)
17
as paragraph (3).
18
(b) CONFORMING AMENDMENTS.—
19
(1) Section 1411(a) of the Patient Protection
20
and Affordable Care Act (42 U.S.C. 18081(a)) is
21
amended by striking paragraph (1) and redesig-
22
nating paragraphs (2), (3), and (4) as paragraphs
23
(1), (2), and (3), respectively.
24
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•HR 5942 IH
(2) Section 1312(f) of the Patient Protection
1
and Affordable Care Act (42 U.S.C. 18032(f)) is
2
amended—
3
(A) in the heading, by striking ‘‘; ACCESS
4
LIMITED
TO CITIZENS
AND LAWFUL RESI-
5
DENTS’’; and
6
(B) by striking paragraph (3).
7
SEC. 403. STUDY ON THE UNINSURED.
8
(a) IN GENERAL.—The Secretary of Health and
9
Human Services (in this section referred to as the ‘‘Sec-
10
retary’’) shall—
11
(1) conduct a study, in accordance with the
12
standards under section 3101 of the Public Health
13
Service Act (42 U.S.C. 300kk), on the demographic
14
characteristics of the population of individuals who
15
do not have health insurance coverage or oral health
16
coverage; and
17
(2) predict, based on such study, the demo-
18
graphic characteristics of the population of individ-
19
uals who would remain without health insurance cov-
20
erage after the end of any annual open enrollment
21
or any special enrollment period or upon enactment
22
and implementation of any legislative changes to the
23
Patient Protection and Affordable Care Act that af-
24
fect the number of persons eligible for coverage.
25
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•HR 5942 IH
(b) REPORTING REQUIREMENTS.—
1
(1) IN GENERAL.—Not later than 12 months
2
after the date of the enactment of this Act, the Sec-
3
retary shall submit to the Congress the results of
4
the study under subsection (a)(1) and the prediction
5
made under subsection (a)(2).
6
(2) REPORTING OF DEMOGRAPHIC CHARACTER-
7
ISTICS.—The Secretary shall—
8
(A) report the demographic characteristics
9
under paragraphs (1) and (2) of subsection (a)
10
on the basis of racial and ethnic group, and
11
shall stratify the reporting on each racial and
12
ethnic group by other demographic characteris-
13
tics that can impact access to health insurance
14
coverage, such as sexual orientation, gender
15
identity, primary language, disability status,
16
sex, socioeconomic status, age group, and citi-
17
zenship and immigration status, in a manner
18
consistent with title I of this Act; and
19
(B) not use such report to engage in or an-
20
ticipate any deportation or immigration related
21
enforcement action by any entity, including the
22
Department of Homeland Security.
23
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•HR 5942 IH
SEC. 404. MEDICAID IN THE TERRITORIES.
1
(a) ELIMINATION OF GENERAL MEDICAID FUNDING
2
LIMITATIONS (‘‘CAP’’) FOR TERRITORIES.—
3
(1) IN GENERAL.—Section 1108 of the Social
4
Security Act (42 U.S.C. 1308) is amended—
5
(A) in subsection (f), in the matter before
6
paragraph (1), by striking ‘‘subsection (g)’’ and
7
inserting ‘‘subsections (g) and (h)’’;
8
(B) in subsection (g)(2), in the matter be-
9
fore subparagraph (A), by inserting ‘‘and sub-
10
section (h)’’ after ‘‘paragraphs (3) and (5)’’;
11
and
12
(C) by adding at the end the following new
13
subsection:
14
‘‘(h) SUNSET OF MEDICAID FUNDING LIMITATIONS
15
FOR PUERTO RICO, THE VIRGIN ISLANDS
OF
THE
16
UNITED STATES, GUAM, THE NORTHERN MARIANA IS-
17
LANDS, AND AMERICAN SAMOA.—Subsections (f) and (g)
18
shall not apply to Puerto Rico, the Virgin Islands of the
19
United States, Guam, the Northern Mariana Islands, and
20
American Samoa beginning with fiscal year 2019.’’.
21
(2) CONFORMING AMENDMENTS.—
22
(A) Section 1902(j) of the Social Security
23
Act (42 U.S.C. 1396a(j)) is amended by strik-
24
ing ‘‘, the limitation in section 1108(f),’’.
25
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•HR 5942 IH
(B) Section 1903(u) of the Social Security
1
Act (42 U.S.C. 1396b(u)) is amended by strik-
2
ing paragraph (4).
3
(C) Section 1323(c)(1) of the Patient Pro-
4
tection and Affordable Care Act (42 U.S.C.
5
18043(c)(1)) is amended by striking ‘‘2019’’
6
and inserting ‘‘2018’’.
7
(3) EFFECTIVE DATE.—The amendments made
8
by this section shall apply beginning with fiscal year
9
2019.
10
(b) ELIMINATION OF SPECIFIC FEDERAL MEDICAL
11
ASSISTANCE PERCENTAGE (FMAP) LIMITATION
FOR
12
TERRITORIES.—Section 1905(b) of the Social Security
13
Act (42 U.S.C. 1396d(b)) is amended, in clause (2), by
14
inserting ‘‘for fiscal years before fiscal year 2019’’ after
15
‘‘American Samoa’’.
16
(c) APPLICATION OF MEDICAID WAIVER AUTHORITY
17
TO ALL OF THE TERRITORIES.—
18
(1) IN GENERAL.—Section 1902(j) of the Social
19
Security Act (42 U.S.C. 1396a(j)) is amended—
20
(A) by striking ‘‘American Samoa and the
21
Northern Mariana Islands’’ and inserting
22
‘‘Puerto Rico, the Virgin Islands of the United
23
States, Guam, the Northern Mariana Islands,
24
and American Samoa’’;
25
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•HR 5942 IH
(B) by striking ‘‘American Samoa or the
1
Northern Mariana Islands’’ and inserting
2
‘‘Puerto Rico, the Virgin Islands of the United
3
States, Guam, the Northern Mariana Islands,
4
or American Samoa’’;
5
(C) by inserting ‘‘(1)’’ after ‘‘(j)’’;
6
(D) by inserting ‘‘except as otherwise pro-
7
vided in this subsection,’’ after ‘‘Notwith-
8
standing any other requirement of this title’’;
9
and
10
(E) by adding at the end the following:
11
‘‘(2) The Secretary may not waive under this sub-
12
section the requirement of subsection (a)(10)(A)(i)(IX)
13
(relating to coverage of adults formerly under foster care)
14
with respect to any territory.’’.
15
(2) EFFECTIVE DATE.—The amendments made
16
by this section shall apply beginning October 1,
17
2018.
18
(d) PERMITTING MEDICAID DSH ALLOTMENTS FOR
19
TERRITORIES.—Section 1923(f) of the Social Security Act
20
(42 U.S.C. 1396) is amended—
21
(1) in paragraph (6), by adding at the end the
22
following new subparagraph:
23
‘‘(C) TERRITORIES.—
24
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•HR 5942 IH
‘‘(i) FISCAL
YEAR
2019.—For fiscal
1
year 2019, the DSH allotment for Puerto
2
Rico, the Virgin Islands of the United
3
States, Guam, the Northern Mariana Is-
4
lands, and American Samoa shall bear the
5
same ratio to $150,000,000 as the ratio of
6
the number of individuals who are low-in-
7
come or uninsured and residing in such re-
8
spective territory (as estimated from time
9
to time by the Secretary) bears to the
10
sums of the number of such individuals re-
11
siding in all of the territories.
12
‘‘(ii) SUBSEQUENT
FISCAL
YEAR.—
13
For each subsequent fiscal year, the DSH
14
allotment for each such territory is subject
15
to an increase in accordance with para-
16
graph (2).’’; and
17
(2) in paragraph (9), by inserting before the pe-
18
riod at the end the following: ‘‘, and includes, begin-
19
ning with fiscal year 2019, Puerto Rico, the Virgin
20
Islands of the United States, Guam, the Northern
21
Mariana Islands, and American Samoa’’.
22
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•HR 5942 IH
SEC. 405. EXTENSION OF MEDICARE SECONDARY PAYER.
1
(a) IN GENERAL.—Section 1862(b)(1)(C) of the So-
2
cial Security Act (42 U.S.C. 1395y(b)(1)(C)) is amend-
3
ed—
4
(1) in the last sentence, by inserting ‘‘, and be-
5
fore January 1, 2019’’ after ‘‘prior to such date)’’;
6
and
7
(2) by adding at the end the following new sen-
8
tence: ‘‘Effective for items and services furnished on
9
or after January 1, 2019 (with respect to periods
10
beginning on or after the date that is 42 months
11
prior to such date), clauses (i) and (ii) shall be ap-
12
plied by substituting ‘42-month’ for ‘12-month’ each
13
place it appears in the first sentence.’’.
14
(b) EFFECTIVE DATE.—The amendments made by
15
this section shall take effect on the date of enactment of
16
this Act. For purposes of determining an individual’s sta-
17
tus under section 1862(b)(1)(C) of the Social Security Act
18
(42 U.S.C. 1395y(b)(1)(C)), as amended by subsection
19
(a), an individual who is within the coordinating period
20
as of the date of enactment of this Act shall have that
21
period extended to the full 42 months described in the last
22
sentence of such section, as added by the amendment
23
made by subsection (a)(2).
24
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•HR 5942 IH
SEC. 406. BORDER HEALTH GRANTS.
1
(a) ELIGIBLE ENTITY DEFINED.—In this section,
2
the term ‘‘eligible entity’’ means a State, public institution
3
of higher education, local government, Tribal government,
4
nonprofit health organization, community health center, or
5
community clinic receiving assistance under section 330
6
of the Public Health Service Act (42 U.S.C. 254b), that
7
is located in the border area.
8
(b) AUTHORIZATION.—From funds appropriated
9
under subsection (f), the Secretary of Health and Human
10
Services (in this section referred to as the ‘‘Secretary’’),
11
acting through the United States members of the United
12
States-Mexico Border Health Commission, shall award
13
grants to eligible entities to address priorities and rec-
14
ommendations to improve the health of border area resi-
15
dents that are established by—
16
(1) the United States members of the United
17
States-Mexico Border Health Commission;
18
(2) the State border health offices; and
19
(3) the Secretary.
20
(c) APPLICATION.—An eligible entity that desires a
21
grant under subsection (b) shall submit an application to
22
the Secretary at such time, in such manner, and con-
23
taining such information as the Secretary may require.
24
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(d) USE OF FUNDS.—An eligible entity that receives
1
a grant under subsection (b) shall use the grant funds
2
for—
3
(1) programs relating to—
4
(A) maternal and child health;
5
(B) primary care and preventative health;
6
(C) public health and public health infra-
7
structure;
8
(D) musculoskeletal health and obesity;
9
(E) health education and promotion;
10
(F) oral health;
11
(G) mental and behavioral health;
12
(H) substance abuse;
13
(I) health conditions that have a high prev-
14
alence in the border area;
15
(J) medical and health services research;
16
(K) workforce training and development;
17
(L) community health workers, patient
18
navigators, and promotoras;
19
(M) health care infrastructure problems in
20
the border area (including planning and con-
21
struction grants);
22
(N) health disparities in the border area;
23
(O) environmental health; and
24
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(P) outreach and enrollment services with
1
respect to Federal programs (including pro-
2
grams authorized under titles XIX and XXI of
3
the Social Security Act (42 U.S.C. 1396 and
4
1397aa)); and
5
(2) other programs determined appropriate by
6
the Secretary.
7
(e) SUPPLEMENT, NOT SUPPLANT.—Amounts pro-
8
vided to an eligible entity awarded a grant under sub-
9
section (b) shall be used to supplement and not supplant
10
other funds available to the eligible entity to carry out the
11
activities described in subsection (d).
12
(f) AUTHORIZATION
OF APPROPRIATIONS.—There
13
are authorized to be appropriated to carry out this section,
14
$200,000,000 for fiscal year 2019, and such sums as may
15
be necessary for each succeeding fiscal year.
16
SEC. 407. REMOVING MEDICARE BARRIER TO HEALTH
17
CARE.
18
(a) PART A.—Section 1818(a)(3) of the Social Secu-
19
rity Act (42 U.S.C. 1395i–2(a)(3)) is amended by striking
20
‘‘an alien’’ and all that follows through ‘‘under this sec-
21
tion’’ and inserting ‘‘an individual who is lawfully present
22
in the United States’’.
23
(b) PART B.—Section 1836(2) of the Social Security
24
Act (42 U.S.C. 1395o(2)) is amended by striking ‘‘an
25
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•HR 5942 IH
alien’’ and all that follows through ‘‘under this part’’ and
1
inserting ‘‘an individual who is lawfully present in the
2
United States’’.
3
SEC. 408. 100 PERCENT FMAP FOR MEDICAL ASSISTANCE
4
PROVIDED BY URBAN INDIAN HEALTH CEN-
5
TERS.
6
(a) IN GENERAL.—The third sentence of section
7
1905(b) of the Social Security Act (42 U.S.C. 1396(b))
8
is amended by inserting ‘‘or are received through a pro-
9
gram operated by an urban Indian organization through
10
a grant or contract under title V of such Act’’ after ‘‘(as
11
defined in section 4 of the Indian Health Care Improve-
12
ment Act)’’.
13
(b) EFFECTIVE DATE.—The amendment made by
14
this section shall apply to medical assistance provided on
15
or after the date of enactment of this Act.
16
SEC. 409. 100 PERCENT FMAP FOR MEDICAL ASSISTANCE
17
PROVIDED TO A NATIVE HAWAIIAN THROUGH
18
A FEDERALLY QUALIFIED HEALTH CENTER
19
OR A NATIVE HAWAIIAN HEALTH CARE SYS-
20
TEM UNDER THE MEDICAID PROGRAM.
21
(a) IN GENERAL.—The third sentence of section
22
1905(b) of the Social Security Act (42 U.S.C. 1396d(b)),
23
as amended by section 418(a), is amended by inserting
24
before the period the following: ‘‘; and, with respect to
25
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•HR 5942 IH
medical assistance provided to a Native Hawaiian (as de-
1
fined in section 12(2) of the Native Hawaiian Health Care
2
Improvement Act) through a federally qualified health
3
center or a Native Hawaiian health care system (as de-
4
fined in section 12(6) of such Act), whether directly, by
5
referral, or under contract or other arrangement between
6
such federally qualified health center or Native Hawaiian
7
health care system and another health care provider’’.
8
(b) EFFECTIVE DATE.—The amendment made by
9
this section shall apply to medical assistance provided on
10
or after the date of enactment of this Act.
11
Subtitle B—Expansion of Access
12
SEC. 410. PROTECTING SENSITIVE LOCATIONS.
13
Section 287 of the Immigration and Nationality Act
14
(8 U.S.C. 1357) is amended by adding at the end the fol-
15
lowing:
16
‘‘(i)(1) In this subsection:
17
‘‘(A) The term ‘appropriate committees of Con-
18
gress’ means—
19
‘‘(i) the Committee on Homeland Security
20
and Governmental Affairs of the Senate;
21
‘‘(ii) the Committee on the Judiciary of the
22
Senate;
23
‘‘(iii) the Committee on Homeland Security
24
of the House of Representatives; and
25
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•HR 5942 IH
‘‘(iv) the Committee on the Judiciary of
1
the House of Representatives.
2
‘‘(B) The term ‘enforcement action’—
3
‘‘(i) means an apprehension, arrest, inter-
4
view, request for identification, search, or sur-
5
veillance for the purposes of immigration en-
6
forcement; and
7
‘‘(ii) includes an enforcement action at, or
8
focused on, a sensitive location that is part of
9
a joint case led by another law enforcement
10
agency.
11
‘‘(C) The term ‘exigent circumstances’ means a
12
situation involving—
13
‘‘(i) the imminent risk of death, violence,
14
or physical harm to any person or property, in-
15
cluding a situation implicating terrorism or the
16
national security of the United States;
17
‘‘(ii) the immediate arrest or pursuit of a
18
dangerous felon, terrorist suspect, or other indi-
19
vidual presenting an imminent danger; or
20
‘‘(iii) the imminent risk of destruction of
21
evidence that is material to an ongoing criminal
22
case.
23
‘‘(D) The term ‘prior approval’ means—
24
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•HR 5942 IH
‘‘(i) in the case of officers and agents of
1
U.S. Immigration and Customs Enforcement,
2
prior written approval to carry out an enforce-
3
ment action involving a specific individual or in-
4
dividuals authorized by—
5
‘‘(I) the Assistant Director of Oper-
6
ations, Homeland Security Investigations;
7
‘‘(II) the Executive Associate Director
8
of Homeland Security Investigations;
9
‘‘(III) the Assistant Director for Field
10
Operations, Enforcement and Removal Op-
11
erations; or
12
‘‘(IV) the Executive Associate Direc-
13
tor for Field Operations, Enforcement and
14
Removal Operations;
15
‘‘(ii) in the case of officers and agents of
16
U.S. Customs and Border Protection, prior
17
written approval to carry out an enforcement
18
action involving a specific individual or individ-
19
uals authorized by—
20
‘‘(I) a Chief Patrol Agent;
21
‘‘(II) the Director of Field Operations;
22
‘‘(III) the Director of Air and Marine
23
Operations; or
24
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•HR 5942 IH
‘‘(IV) the Internal Affairs Special
1
Agent in Charge; and
2
‘‘(iii) in the case of other Federal, State,
3
or local law enforcement officers, to carry out
4
an enforcement action involving a specific indi-
5
vidual or individuals authorized by—
6
‘‘(I) the head of the Federal agency
7
carrying out the enforcement action; or
8
‘‘(II) the head of the State or local
9
law enforcement agency carrying out the
10
enforcement action.
11
‘‘(E) The term ‘sensitive location’ includes all of
12
the physical space located within 1,000 feet of—
13
‘‘(i) any medical treatment or health care
14
facility, including any hospital, doctor’s office,
15
accredited health clinic, alcohol or drug treat-
16
ment center, or emergent or urgent care facil-
17
ity;
18
‘‘(ii) any public or private school, including
19
any known and licensed day care facility, pre-
20
school, other early learning program facility,
21
primary school, secondary school, postsecondary
22
school (including colleges and universities), or
23
other institution of learning (including voca-
24
tional or trade schools);
25
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•HR 5942 IH
‘‘(iii) any scholastic or education-related
1
activity or event, including field trips and inter-
2
scholastic events;
3
‘‘(iv) any school bus or school bus stop
4
during periods when school children are present
5
on the bus or at the stop;
6
‘‘(v) any organization that—
7
‘‘(I) assists children, pregnant women,
8
victims of crime or abuse, or individuals
9
with significant mental or physical disabil-
10
ities; or
11
‘‘(II) provides disaster or emergency
12
social services and assistance;
13
‘‘(vi) any church, synagogue, mosque, or
14
other place of worship, including buildings
15
rented for the purpose of religious services, re-
16
treats, counseling, workshops, instruction, and
17
education;
18
‘‘(vii) any Federal, State, or local court-
19
house, including the office of an individual’s
20
legal counsel or representative, and a probation,
21
parole, or supervised release office;
22
‘‘(viii) the site of a funeral, wedding, or
23
other religious ceremony or observance;
24
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•HR 5942 IH
‘‘(ix) any public demonstration, such as a
1
march, rally, or parade;
2
‘‘(x) any domestic violence shelter, rape
3
crisis center, supervised visitation center, family
4
justice center, or victim services provider; or
5
‘‘(xi) any other location specified by the
6
Secretary of Homeland Security for purposes of
7
this subsection.
8
‘‘(2)(A) An enforcement action may not take place
9
at, or be focused on, a sensitive location unless—
10
‘‘(i) the action involves exigent circumstances;
11
and
12
‘‘(ii) prior approval for the enforcement action
13
was obtained from the appropriate official.
14
‘‘(B) If an enforcement action is initiated pursuant
15
to subparagraph (A) and the exigent circumstances per-
16
mitting the enforcement action cease, the enforcement ac-
17
tion shall be discontinued until such exigent circumstances
18
reemerge.
19
‘‘(C) If an enforcement action is carried out in viola-
20
tion of this subsection—
21
‘‘(i) no information resulting from the enforce-
22
ment action may be entered into the record or re-
23
ceived into evidence in a removal proceeding result-
24
ing from the enforcement action; and
25
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•HR 5942 IH
‘‘(ii) the alien who is the subject of such re-
1
moval proceeding may file a motion for the imme-
2
diate termination of the removal proceeding.
3
‘‘(3)(A) This subsection shall apply to any enforce-
4
ment action by officers or agents of the Department of
5
Homeland Security, including—
6
‘‘(i) officers or agents of U.S. Immigration and
7
Customs Enforcement;
8
‘‘(ii) officers or agents of U.S. Customs and
9
Border Protection; and
10
‘‘(iii) any individual designated to perform im-
11
migration enforcement functions pursuant to sub-
12
section (g).
13
‘‘(B) While carrying out an enforcement action at a
14
sensitive location, officers and agents referred to in sub-
15
paragraph (A) shall make every effort—
16
‘‘(i) to limit the time spent at the sensitive loca-
17
tion;
18
‘‘(ii) to limit the enforcement action at the sen-
19
sitive location to the person or persons for whom
20
prior approval was obtained; and
21
‘‘(iii) to conduct themselves discreetly.
22
‘‘(C) If, while carrying out an enforcement action
23
that is not initiated at or focused on a sensitive location,
24
officers or agents are led to a sensitive location, and no
25
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•HR 5942 IH
exigent circumstance and prior approval with respect to
1
the sensitive location exists, such officers or agents shall—
2
‘‘(i) cease before taking any further enforce-
3
ment action;
4
‘‘(ii) conduct themselves in a discreet manner;
5
‘‘(iii) maintain surveillance; and
6
‘‘(iv) immediately consult their supervisor in
7
order to determine whether such enforcement action
8
should be discontinued.
9
‘‘(D) The limitations under this paragraph shall not
10
apply to the transportation of an individual apprehended
11
at or near a land or sea border to a hospital or health
12
care provider for the purpose of providing medical care
13
to such individual.
14
‘‘(4)(A) Each official specified in subparagraph (B)
15
shall ensure that the employees under his or her super-
16
vision receive annual training on compliance with—
17
‘‘(i) the requirements under this subsection in
18
enforcement actions at or focused on sensitive loca-
19
tions and enforcement actions that lead officers or
20
agents to a sensitive location; and
21
‘‘(ii) the requirements under section 239 of this
22
Act and section 384 of the Illegal Immigration Re-
23
form and Immigrant Responsibility Act of 1996 (8
24
U.S.C. 1367).
25
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‘‘(B) The officials specified in this subparagraph
1
are—
2
‘‘(i) the Chief Counsel of U.S. Immigration and
3
Customs Enforcement;
4
‘‘(ii) the Field Office Directors of U.S. Immi-
5
gration and Customs Enforcement;
6
‘‘(iii) each Special Agent in Charge of U.S. Im-
7
migration and Customs Enforcement;
8
‘‘(iv) each Chief Patrol Agent of U.S. Customs
9
and Border Protection;
10
‘‘(v) the Director of Field Operations of U.S.
11
Customs and Border Protection;
12
‘‘(vi) the Director of Air and Marine Operations
13
of U.S. Customs and Border Protection;
14
‘‘(vii) the Internal Affairs Special Agent in
15
Charge of U.S. Customs and Border Protection; and
16
‘‘(viii) the chief law enforcement officer of each
17
State or local law enforcement agency that enters
18
into a written agreement with the Department of
19
Homeland Security pursuant to subsection (g).
20
‘‘(5) The Secretary of Homeland Security shall mod-
21
ify the Notice to Appear form (I–862)—
22
‘‘(A) to provide the subjects of an enforcement
23
action with information, written in plain language,
24
summarizing the restrictions against enforcement
25
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•HR 5942 IH
actions at sensitive locations set forth in this sub-
1
section and the remedies available to the alien if
2
such action violates such restrictions;
3
‘‘(B) so that the information described in sub-
4
paragraph (A) is accessible to individuals with lim-
5
ited-English proficiency; and
6
‘‘(C) so that subjects of an enforcement action
7
are not permitted to verify that the officers or
8
agents that carried out such action complied with
9
the restrictions set forth in this subsection.
10
‘‘(6)(A) The Director of U.S. Immigration and Cus-
11
toms Enforcement and the Commissioner of U.S. Customs
12
and Border Protection shall each submit an annual report
13
to the appropriate committees of Congress that includes
14
the information set forth in subparagraph (B) with respect
15
to the respective agency.
16
‘‘(B) Each report submitted under subparagraph (A)
17
shall include, with respect to the submitting agency during
18
the reporting period—
19
‘‘(i) the number of enforcement actions that
20
were carried out at, or focused on, a sensitive loca-
21
tion;
22
‘‘(ii) the number of enforcement actions in
23
which officers or agents were subsequently led to a
24
sensitive location; and
25
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•HR 5942 IH
‘‘(iii) for each enforcement action described in
1
clause (i) or (ii)—
2
‘‘(I) the date on which it occurred;
3
‘‘(II) the specific site, city, county, and
4
State in which it occurred;
5
‘‘(III) the components of the agency in-
6
volved in the enforcement action;
7
‘‘(IV) a description of the enforcement ac-
8
tion, including the nature of the criminal activ-
9
ity of its intended target;
10
‘‘(V) the number of individuals, if any, ar-
11
rested or taken into custody;
12
‘‘(VI) the number of collateral arrests, if
13
any, and the reasons for each such arrest;
14
‘‘(VII) a certification whether the location
15
administrator was contacted before, during, or
16
after the enforcement action; and
17
‘‘(VIII) the percentage of all of the staff
18
members and supervisors reporting to the offi-
19
cials listed in paragraph (4)(B) who completed
20
the training required under paragraph (4)(A).
21
‘‘(7) Nothing in the subsection may be construed—
22
‘‘(A) to affect the authority of Federal, State,
23
or local law enforcement agencies—
24
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•HR 5942 IH
‘‘(i) to enforce generally applicable Federal
1
or State criminal laws unrelated to immigra-
2
tion; or
3
‘‘(ii) to protect residents from imminent
4
threats to public safety; or
5
‘‘(B) to limit or override the protections pro-
6
vided in—
7
‘‘(i) section 239; or
8
‘‘(ii) section 384 of the Illegal Immigration
9
Reform and Immigrant Responsibility Act of
10
1996 (8 U.S.C. 1367).’’.
11
SEC. 411. GRANTS FOR RACIAL AND ETHNIC APPROACHES
12
TO COMMUNITY HEALTH.
13
(a) PURPOSE.—It is the purpose of this section to
14
provide for the awarding of grants to assist communities
15
in mobilizing and organizing resources in support of effec-
16
tive and sustainable programs that will reduce or eliminate
17
disparities in health and health care experienced by racial
18
and ethnic minority individuals.
19
(b) AUTHORITY TO AWARD GRANTS.—The Secretary
20
of Health and Human Services, acting through the Ad-
21
ministrator of the Health Resources and Services Admin-
22
istration, shall award grants to eligible entities to assist
23
in designing, implementing, and evaluating culturally and
24
linguistically appropriate, science-based, and community-
25
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•HR 5942 IH
driven sustainable strategies to eliminate racial and ethnic
1
health and health care disparities.
2
(c) ELIGIBLE ENTITIES.—To be eligible to receive a
3
grant under this section, an entity shall—
4
(1) represent a coalition—
5
(A) whose principal purpose is to develop
6
and implement interventions to reduce or elimi-
7
nate a health or health care disparity in a tar-
8
geted racial or ethnic minority group in the
9
community served by the coalition; and
10
(B) that includes—
11
(i) members selected from among—
12
(I) public health departments;
13
(II) community-based organiza-
14
tions;
15
(III) university and research or-
16
ganizations;
17
(IV) American Indian Tribal or-
18
ganizations, national American Indian
19
organizations, Indian Health Service,
20
or organizations serving Alaska Na-
21
tives; and
22
(V) interested public or private
23
health care providers or organizations
24
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•HR 5942 IH
as deemed appropriate by the Sec-
1
retary; and
2
(ii) at least 1 member from a commu-
3
nity-based organization that represents the
4
targeted racial or ethnic minority group;
5
and
6
(2) submit to the Secretary an application at
7
such time, in such manner, and containing such in-
8
formation as the Secretary may require, which shall
9
include—
10
(A) a description of the targeted racial or
11
ethnic populations in the community to be
12
served under the grant;
13
(B) a description of at least 1 health dis-
14
parity that exists in the racial or ethnic tar-
15
geted populations, including health issues such
16
as infant mortality, breast and cervical cancer
17
screening and management, musculoskeletal
18
diseases and obesity, prostate cancer screening
19
and management, cardiovascular disease, diabe-
20
tes, child and adult immunization levels, oral
21
disease, or other health priority areas as des-
22
ignated by the Secretary; and
23
(C) a demonstration of a proven record of
24
accomplishment of the coalition members in
25
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•HR 5942 IH
serving and working with the targeted commu-
1
nity.
2
(d) SUSTAINABILITY.—The Secretary shall give pri-
3
ority to an eligible entity under this section if the entity
4
agrees that, with respect to the costs to be incurred by
5
the entity in carrying out the activities for which the grant
6
was awarded, the entity (and each of the participating
7
partners in the coalition represented by the entity) will
8
maintain its expenditures of non-Federal funds for such
9
activities at a level that is not less than the level of such
10
expenditures during the fiscal year immediately preceding
11
the first fiscal year for which the grant is awarded.
12
(e) NONDUPLICATION.—Funds provided through this
13
grant program should supplement, not supplant, existing
14
Federal funding, and the funds should not be used to du-
15
plicate the activities of the other health disparity grant
16
programs in this Act.
17
(f) TECHNICAL ASSISTANCE.—The Secretary may,
18
either directly or by grant or contract, provide any entity
19
that receives a grant under this section with technical and
20
other nonfinancial assistance necessary to meet the re-
21
quirements of this section.
22
(g) DISSEMINATION.—The Secretary shall encourage
23
and enable grantees to share best practices, evaluation re-
24
sults, and reports with communities not affiliated with
25
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224
•HR 5942 IH
grantees using the Internet, conferences, and other perti-
1
nent information regarding the projects funded by this
2
section, including the outreach efforts of the Office of Mi-
3
nority Health and Health Disparity Elimination and the
4
Centers for Disease Control and Prevention.
5
(h) ADMINISTRATIVE
BURDENS.—The Secretary
6
shall make every effort to minimize duplicative or unneces-
7
sary administrative burdens on grantees.
8
(i) DEFINITION.—In this section, the term ‘‘Sec-
9
retary’’ means the Secretary of Health and Human Serv-
10
ices.
11
(j) AUTHORIZATION
OF APPROPRIATIONS.—There
12
are authorized to be appropriated such sums as may be
13
necessary to carry out this section.
14
SEC. 412. CRITICAL ACCESS HOSPITAL IMPROVEMENTS.
15
(a) ELIMINATION OF ISOLATION TEST FOR COST-
16
BASED AMBULANCE REIMBURSEMENT.—
17
(1) IN
GENERAL.—Section 1834(l)(8) of the
18
Social Security Act (42 U.S.C. 1395m(l)(8)) is
19
amended—
20
(A) in subparagraph (B)—
21
(i) by striking ‘‘owned and’’; and
22
(ii) by inserting ‘‘(including when
23
such services are provided by the entity
24
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225
•HR 5942 IH
under an arrangement with the hospital)’’
1
after ‘‘hospital’’; and
2
(B) by striking the comma at the end of
3
subparagraph (B) and all that follows and in-
4
serting a period.
5
(2) EFFECTIVE DATE.—The amendments made
6
by this subsection shall apply to services furnished
7
on or after January 1, 2015.
8
(b) PROVISION OF A MORE FLEXIBLE ALTERNATIVE
9
TO THE CAH DESIGNATION 25 INPATIENT BED LIMIT
10
REQUIREMENT.—
11
(1) IN
GENERAL.—Section 1820(c)(2) of the
12
Social Security Act (42 U.S.C. 1395i–4(c)(2)) is
13
amended—
14
(A) in subparagraph (B)(iii), by striking
15
‘‘provides not more than’’ and inserting ‘‘sub-
16
ject to subparagraph (F), provides not more
17
than’’; and
18
(B) by adding at the end the following new
19
subparagraph:
20
‘‘(F) ALTERNATIVE TO 25 INPATIENT BED
21
LIMIT REQUIREMENT.—
22
‘‘(i) IN GENERAL.—A State may elect
23
to treat a facility, with respect to the des-
24
ignation of the facility for a cost-reporting
25
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•HR 5942 IH
period, as satisfying the requirement of
1
subparagraph (B)(iii) relating to a max-
2
imum number of acute care inpatient beds
3
if the facility elects, in accordance with a
4
method specified by the Secretary and be-
5
fore the beginning of the cost reporting pe-
6
riod, to meet the requirement under clause
7
(ii).
8
‘‘(ii) ALTERNATE
REQUIREMENT.—
9
The requirement under this clause, with
10
respect to a facility and a cost-reporting
11
period, is that the total number of inpa-
12
tient bed days described in subparagraph
13
(B)(iii) during such period will not exceed
14
7,300. For purposes of this subparagraph,
15
an individual who is an inpatient in a bed
16
in the facility for a single day shall be
17
counted as one inpatient bed day.
18
‘‘(iii) WITHDRAWAL OF ELECTION.—
19
The option described in clause (i) shall not
20
apply to a facility for a cost-reporting pe-
21
riod if the facility (for any two consecutive
22
cost-reporting periods during the previous
23
5 cost-reporting periods) was treated under
24
such option and had a total number of in-
25
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•HR 5942 IH
patient bed days for each of such two cost-
1
reporting periods that exceeded the num-
2
ber specified in such clause.’’.
3
(2) EFFECTIVE DATE.—The amendments made
4
by paragraph (1) shall apply to cost-reporting peri-
5
ods beginning on or after the date of the enactment
6
of this Act.
7
SEC. 413. ESTABLISHMENT OF RURAL COMMUNITY HOS-
8
PITAL (RCH) PROGRAM.
9
(a) IN GENERAL.—Section 1861 of the Social Secu-
10
rity Act (42 U.S.C. 1395x), as amended by section
11
205(b)(1), is amended by adding at the end of the fol-
12
lowing new subsection:
13
‘‘Rural Community Hospital; Rural Community Hospital
14
Services
15
‘‘(jjj)(1) The term ‘rural community hospital’ means
16
a hospital (as defined in subsection (e)) that—
17
‘‘(A) is located in a rural area (as defined in
18
section 1886(d)(2)(D)) or treated as being so lo-
19
cated pursuant to section 1886(d)(8)(E);
20
‘‘(B) subject to paragraph (2), has less than 51
21
acute care inpatient beds, as reported in its most re-
22
cent cost report;
23
‘‘(C) makes available 24-hour emergency care
24
services;
25
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•HR 5942 IH
‘‘(D) subject to paragraph (3), has a provider
1
agreement in effect with the Secretary and is open
2
to the public as of January 1, 2010; and
3
‘‘(E) applies to the Secretary for such designa-
4
tion.
5
‘‘(2) For purposes of paragraph (1)(B), beds in a
6
psychiatric or rehabilitation unit of the hospital which is
7
a distinct part of the hospital shall not be counted.
8
‘‘(3) Paragraph (1)(D) shall not be construed to pro-
9
hibit any of the following from qualifying as a rural com-
10
munity hospital:
11
‘‘(A) A replacement facility (as defined by the
12
Secretary in regulations in effect on January 1,
13
2012) with the same service area (as defined by the
14
Secretary in regulations in effect on such date).
15
‘‘(B) A facility obtaining a new provider num-
16
ber pursuant to a change of ownership.
17
‘‘(C) A facility which has a binding written
18
agreement with an outside, unrelated party for the
19
construction, reconstruction, lease, rental, or financ-
20
ing of a building as of January 1, 2012.
21
‘‘(4) Nothing in this subsection shall be construed as
22
prohibiting a critical access hospital from qualifying as a
23
rural community hospital if the critical access hospital
24
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•HR 5942 IH
meets the conditions otherwise applicable to hospitals
1
under subsection (e) and section 1866.
2
‘‘(5) Nothing in this subsection shall be construed as
3
prohibiting a rural community hospital participating in
4
the demonstration program under section 410A of the
5
Medicare Prescription Drug, Improvement, and Mod-
6
ernization Act of 2003 (Public Law 108–173; 117 Stat.
7
2313) from qualifying as a rural community hospital if
8
the rural community hospital meets the conditions other-
9
wise applicable to hospitals under subsection (e) and sec-
10
tion 1866.’’.
11
(b) PAYMENT.—
12
(1) INPATIENT
HOSPITAL
SERVICES.—Section
13
1814 of the Social Security Act (42 U.S.C. 1395f)
14
is amended by adding at the end the following new
15
subsection:
16
‘‘Payment for Inpatient Services Furnished in Rural
17
Community Hospitals
18
‘‘(m) The amount of payment under this part for in-
19
patient hospital services furnished in a rural community
20
hospital, other than such services furnished in a psy-
21
chiatric or rehabilitation unit of the hospital which is a
22
distinct part, is, at the election of the hospital in the appli-
23
cation referred to in section 1861(jjj)(1)(E)—
24
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•HR 5942 IH
‘‘(1) 101 percent of the reasonable costs of pro-
1
viding such services, without regard to the amount
2
of the customary or other charge, or
3
‘‘(2) the amount of payment provided for under
4
the prospective payment system for inpatient hos-
5
pital services under section 1886(d).’’.
6
(2) OUTPATIENT SERVICES.—Section 1834 of
7
such Act (42 U.S.C. 1395m) is amended by adding
8
at the end the following new subsection:
9
‘‘(p) PAYMENT FOR OUTPATIENT SERVICES FUR-
10
NISHED
IN
RURAL
COMMUNITY
HOSPITALS.—The
11
amount of payment under this part for outpatient services
12
furnished in a rural community hospital is, at the election
13
of the hospital in the application referred to in section
14
1861(jjj)(1)(E)—
15
‘‘(1) 101 percent of the reasonable costs of pro-
16
viding such services, without regard to the amount
17
of the customary or other charge and any limitation
18
under section 1861(v)(1)(U), or
19
‘‘(2) the amount of payment provided for under
20
the prospective payment system for covered OPD
21
services under section 1833(t).’’.
22
(3) EXEMPTION FROM 30-PERCENT REDUCTION
23
IN
REIMBURSEMENT
FOR
BAD
DEBT.—Section
24
1861(v)(1)(T)
of
such
Act
(42
U.S.C.
25
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231
•HR 5942 IH
1395x(v)(1)(T)) is amended by inserting ‘‘(other
1
than for a rural community hospital)’’ after ‘‘In de-
2
termining such reasonable costs for hospitals’’.
3
(c) BENEFICIARY COST-SHARING FOR OUTPATIENT
4
SERVICES.—Section 1834(p) of such Act (as added by
5
subsection (b)(2)) is amended—
6
(1) by redesignating paragraphs (1) and (2) as
7
subparagraphs (A) and (B), respectively;
8
(2) by inserting ‘‘(1)’’ after ‘‘(p)’’; and
9
(3) by adding at the end the following:
10
‘‘(2) The amounts of beneficiary cost-sharing for out-
11
patient services furnished in a rural community hospital
12
under this part shall be as follows:
13
‘‘(A) For items and services that would have
14
been paid under section 1833(t) if provided by a
15
hospital, the amount of cost-sharing determined
16
under paragraph (8) of such section.
17
‘‘(B) For items and services that would have
18
been paid under section 1833(h) if furnished by a
19
provider or supplier, no cost-sharing shall apply.
20
‘‘(C) For all other items and services, the
21
amount of cost-sharing that would apply to the item
22
or service under the methodology that would be used
23
to determine payment for such item or service if pro-
24
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232
•HR 5942 IH
vided by a physician, provider, or supplier, as the
1
case may be.’’.
2
(d) CONFORMING AMENDMENTS.—
3
(1) PART
A
PAYMENT.—Section 1814(b) of
4
such Act (42 U.S.C. 1395f(b)) is amended in the
5
matter preceding paragraph (1) by inserting ‘‘other
6
than inpatient hospital services furnished by a rural
7
community hospital,’’ after ‘‘critical access hospital
8
services,’’.
9
(2) PART
B
PAYMENT.—Section 1833(a) of
10
such Act (42 U.S.C. 1395l(a)), as amended by sec-
11
tion 205(b)(3), is amended—
12
(A) in paragraph (2), in the matter before
13
subparagraph (A), by striking ‘‘and (I)’’ and in-
14
serting ‘‘(I), and (K)’’;
15
(B) by striking ‘‘and’’ at the end of para-
16
graph (9);
17
(C) by striking the period at the end of
18
paragraph (10) and inserting ‘‘; and’’; and
19
(D) by adding at the end the following:
20
‘‘(11) in the case of outpatient services fur-
21
nished by a rural community hospital, the amounts
22
described in section 1834(p).’’.
23
(3) TECHNICAL AMENDMENTS.—
24
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•HR 5942 IH
(A) CONSULTATION
WITH
STATE
AGEN-
1
CIES.—Section 1863 of such Act (42 U.S.C.
2
1395z) is amended by striking ‘‘and (dd)(2)’’
3
and inserting ‘‘(dd)(2), (mm)(1), and (jjj)(1)’’.
4
(B)
PROVIDER
AGREEMENTS.—Section
5
1866(a)(2)(A)
of
such
Act
(42
U.S.C.
6
1395cc(a)(2)(A)) is amended by inserting ‘‘sec-
7
tion 1834(p)(2),’’ after ‘‘section 1833(b),’’.
8
(e) EFFECTIVE DATE.—The amendments made by
9
this section shall apply to items and services furnished on
10
or after October 1, 2016.
11
SEC.
414.
MEDICARE
REMOTE
MONITORING
PILOT
12
PROJECTS.
13
(a) PILOT PROJECTS.—
14
(1) IN
GENERAL.—Not later than 9 months
15
after the date of enactment of this Act, the Sec-
16
retary of Health and Human Services (in this sec-
17
tion referred to as the ‘‘Secretary’’) shall conduct
18
pilot projects under title XVIII of the Social Secu-
19
rity Act for the purpose of providing incentives to
20
home health agencies to utilize home monitoring and
21
communications technologies that—
22
(A) enhance health outcomes for Medicare
23
beneficiaries; and
24
(B) reduce expenditures under such title.
25
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•HR 5942 IH
(2) SITE REQUIREMENTS.—
1
(A) URBAN AND RURAL.—The Secretary
2
shall conduct the pilot projects under this sec-
3
tion in both urban and rural areas.
4
(B) SITE IN A SMALL STATE.—The Sec-
5
retary shall conduct at least 3 of the pilot
6
projects in a State with a population of less
7
than 1,000,000.
8
(3) DEFINITION OF HOME HEALTH AGENCY.—
9
In this section, the term ‘‘home health agency’’ has
10
the meaning given that term in section 1861(o) of
11
the Social Security Act (42 U.S.C. 1395x(o)).
12
(b) MEDICARE BENEFICIARIES WITHIN THE SCOPE
13
OF PROJECTS.—The Secretary shall specify the criteria
14
for identifying those Medicare beneficiaries who shall be
15
considered within the scope of the pilot projects under this
16
section for purposes of the application of subsection (c)
17
and for the assessment of the effectiveness of the home
18
health agency in achieving the objectives of this section.
19
Such criteria may provide for the inclusion in the projects
20
of Medicare beneficiaries who begin receiving home health
21
services under title XVIII of the Social Security Act after
22
the date of the implementation of the projects.
23
(c) INCENTIVES.—
24
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•HR 5942 IH
(1) PERFORMANCE
TARGETS.—The Secretary
1
shall establish for each home health agency partici-
2
pating in a pilot project under this section a per-
3
formance target using one of the following meth-
4
odologies, as determined appropriate by the Sec-
5
retary:
6
(A) ADJUSTED HISTORICAL PERFORMANCE
7
TARGET.—The Secretary shall establish for the
8
agency—
9
(i) a base expenditure amount equal
10
to the average total payments made to the
11
agency under parts A and B of title XVIII
12
of the Social Security Act for Medicare
13
beneficiaries determined to be within the
14
scope of the pilot project in a base period
15
determined by the Secretary; and
16
(ii) an annual per capita expenditure
17
target for such beneficiaries, reflecting the
18
base expenditure amount adjusted for risk
19
and adjusted growth rates.
20
(B) COMPARATIVE
PERFORMANCE
TAR-
21
GET.—The Secretary shall establish for the
22
agency a comparative performance target equal
23
to the average total payments under such parts
24
A and B during the pilot project for comparable
25
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236
•HR 5942 IH
individuals in the same geographic area that
1
are not determined to be within the scope of the
2
pilot project.
3
(2) INCENTIVE.—Subject to paragraph (3), the
4
Secretary shall pay to each participating home care
5
agency an incentive payment for each year under the
6
pilot project equal to a portion of the Medicare sav-
7
ings realized for such year relative to the perform-
8
ance target under paragraph (1).
9
(3) LIMITATION ON EXPENDITURES.—The Sec-
10
retary shall limit incentive payments under this sec-
11
tion in order to ensure that the aggregate expendi-
12
tures under title XVIII of the Social Security Act
13
(including incentive payments under this subsection)
14
do not exceed the amount that the Secretary esti-
15
mates would have been expended if the pilot projects
16
under this section had not been implemented.
17
(d) WAIVER AUTHORITY.—The Secretary may waive
18
such provisions of titles XI and XVIII of the Social Secu-
19
rity Act as the Secretary determines to be appropriate for
20
the conduct of the pilot projects under this section.
21
(e) REPORT TO CONGRESS.—Not later than 5 years
22
after the date that the first pilot project under this section
23
is implemented, the Secretary shall submit to Congress a
24
report on the pilot projects. Such report shall contain a
25
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•HR 5942 IH
detailed description of issues related to the expansion of
1
the projects under subsection (f) and recommendations for
2
such legislation and administrative actions as the Sec-
3
retary considers appropriate.
4
(f) EXPANSION.—If the Secretary determines that
5
any of the pilot projects under this section enhance health
6
outcomes for Medicare beneficiaries and reduce expendi-
7
tures under title XVIII of the Social Security Act, the Sec-
8
retary may initiate comparable projects in additional
9
areas.
10
(g) INCENTIVE PAYMENTS HAVE NO EFFECT ON
11
OTHER MEDICARE PAYMENTS TO AGENCIES.—An incen-
12
tive payment under this section—
13
(1) shall be in addition to the payments that a
14
home health agency would otherwise receive under
15
title XVIII of the Social Security Act for the provi-
16
sion of home health services; and
17
(2) shall have no effect on the amount of such
18
payments.
19
SEC. 415. RURAL HEALTH QUALITY ADVISORY COMMISSION
20
AND DEMONSTRATION PROJECTS.
21
(a) RURAL HEALTH QUALITY ADVISORY COMMIS-
22
SION.—
23
(1)
ESTABLISHMENT.—Not
later
than
6
24
months after the date of the enactment of this sec-
25
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•HR 5942 IH
tion, the Secretary of Health and Human Services
1
(in this section referred to as the ‘‘Secretary’’) shall
2
establish a commission to be known as the Rural
3
Health Quality Advisory Commission (in this section
4
referred to as the ‘‘Commission’’).
5
(2) DUTIES OF COMMISSION.—
6
(A) NATIONAL
PLAN.—The Commission
7
shall develop, coordinate, and facilitate imple-
8
mentation of a national plan for rural health
9
quality improvement. The national plan shall—
10
(i) identify objectives for rural health
11
quality improvement;
12
(ii) identify strategies to eliminate
13
known gaps in rural health system capacity
14
and improve rural health quality; and
15
(iii) provide for Federal programs to
16
identify opportunities for strengthening
17
and aligning policies and programs to im-
18
prove rural health quality.
19
(B)
DEMONSTRATION
PROJECTS.—The
20
Commission shall design demonstration projects
21
to test alternative models for rural health qual-
22
ity improvement, including with respect to both
23
personal and population health.
24
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•HR 5942 IH
(C) MONITORING.—The Commission shall
1
monitor progress toward the objectives identi-
2
fied pursuant to paragraph (1)(A).
3
(3) MEMBERSHIP.—
4
(A) NUMBER.—The Commission shall be
5
composed of 11 members appointed by the Sec-
6
retary.
7
(B) SELECTION.—The Secretary shall se-
8
lect the members of the Commission from
9
among individuals with significant rural health
10
care and health care quality expertise, including
11
expertise in clinical health care, health care
12
quality research, population or public health, or
13
purchaser organizations.
14
(4) CONTRACTING AUTHORITY.—Subject to the
15
availability of funds, the Commission may enter into
16
contracts and make other arrangements, as may be
17
necessary to carry out the duties described in para-
18
graph (2).
19
(5) STAFF.—Upon the request of the Commis-
20
sion, the Secretary may detail, on a reimbursable
21
basis, any of the personnel of the Office of Rural
22
Health Policy of the Health Resources and Services
23
Administration, the Agency for Healthcare Quality
24
and Research, or the Centers for Medicare & Med-
25
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240
•HR 5942 IH
icaid Services to the Commission to assist in car-
1
rying out this subsection.
2
(6) REPORTS TO CONGRESS.—Not later than 1
3
year after the establishment of the Commission, and
4
annually thereafter, the Commission shall submit a
5
report to the Congress on rural health quality. Each
6
such report shall include the following:
7
(A) An inventory of relevant programs and
8
recommendations for improved coordination and
9
integration of policy and programs.
10
(B) An assessment of achievement of the
11
objectives identified in the national plan devel-
12
oped under paragraph (2) and recommenda-
13
tions for realizing such objectives.
14
(C) Recommendations on Federal legisla-
15
tion, regulations, or administrative policies to
16
enhance rural health quality and outcomes.
17
(b) RURAL
HEALTH
QUALITY
DEMONSTRATION
18
PROJECTS.—
19
(1) IN
GENERAL.—Not later than 270 days
20
after the date of the enactment of this section, the
21
Secretary, in consultation with the Rural Health
22
Quality Advisory Commission, the Office of Rural
23
Health Policy of the Health Resources and Services
24
Administration, the Agency for Healthcare Research
25
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•HR 5942 IH
and Quality, and the Centers for Medicare & Med-
1
icaid Services, shall make grants to eligible entities
2
for 5 demonstration projects to implement and
3
evaluate methods for improving the quality of health
4
care in rural communities. Each such demonstration
5
project shall include—
6
(A) alternative community models that—
7
(i) will achieve greater integration of
8
personal and population health services;
9
and
10
(ii)
address
safety,
effectiveness,
11
patient- or community-centeredness, timeli-
12
ness, efficiency, and equity (the 6 aims
13
identified by the Institute of Medicine of
14
the National Academies in its report enti-
15
tled ‘‘Crossing the Quality Chasm: A New
16
Health System for the 21st Century’’ re-
17
leased on March 1, 2001);
18
(B) innovative approaches to the financing
19
and delivery of health services to achieve rural
20
health quality goals; and
21
(C) development of quality improvement
22
support structures to assist rural health sys-
23
tems and professionals (such as workforce sup-
24
port structures, quality monitoring and report-
25
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•HR 5942 IH
ing, clinical care protocols, and information
1
technology applications).
2
(2) ELIGIBLE
ENTITIES.—In this subsection,
3
the term ‘‘eligible entity’’ means a consortium
4
that—
5
(A) shall include—
6
(i) at least one health care provider or
7
health care delivery system located in a
8
rural area; and
9
(ii) at least one organization rep-
10
resenting multiple community stakeholders;
11
and
12
(B) may include other partners such as
13
rural research centers.
14
(3) CONSULTATION.—In developing the pro-
15
gram for awarding grants under this subsection, the
16
Secretary shall consult with the Administrator of the
17
Agency for Healthcare Research and Quality, rural
18
health care providers, rural health care researchers,
19
and private and nonprofit groups (including national
20
associations) which are undertaking similar efforts.
21
(4) EXPEDITED WAIVERS.—The Secretary shall
22
expedite the processing of any waiver that—
23
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•HR 5942 IH
(A) is authorized under title XVIII or XIX
1
of the Social Security Act (42 U.S.C. 1395 et
2
seq.); and
3
(B) is necessary to carry out a demonstra-
4
tion project under this subsection.
5
(5) DEMONSTRATION
PROJECT
SITES.—The
6
Secretary shall ensure that the 5 demonstration
7
projects funded under this subsection are conducted
8
at a variety of sites representing the diversity of
9
rural communities in the Nation.
10
(6) DURATION.—Each demonstration project
11
under this subsection shall be for a period of 4
12
years.
13
(7) INDEPENDENT
EVALUATION.—The Sec-
14
retary shall enter into an arrangement with an enti-
15
ty that has experience working directly with rural
16
health systems for the conduct of an independent
17
evaluation of the program carried out under this
18
subsection.
19
(8) REPORT.—Not later than 1 year after the
20
conclusion of all of the demonstration projects fund-
21
ed under this subsection, the Secretary shall submit
22
a report to the Congress on the results of such
23
projects. The report shall include—
24
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•HR 5942 IH
(A) an evaluation of patient access to care,
1
patient outcomes, and an analysis of the cost
2
effectiveness of each such project; and
3
(B) recommendations on Federal legisla-
4
tion, regulations, or administrative policies to
5
enhance rural health quality and outcomes.
6
(c) APPROPRIATION.—
7
(1) IN GENERAL.—Out of funds in the Treas-
8
ury not otherwise appropriated, there are appro-
9
priated to the Secretary to carry out this section
10
$30,000,000 for the period of fiscal years 2019
11
through 2023.
12
(2) AVAILABILITY.—
13
(A) IN
GENERAL.—Funds appropriated
14
under paragraph (1) shall remain available for
15
expenditure through fiscal year 2023.
16
(B) REPORT.—For purposes of carrying
17
out subsection (b)(8), funds appropriated under
18
paragraph (1) shall remain available for ex-
19
penditure through fiscal year 2024.
20
(3) RESERVATION.—Of the amount appro-
21
priated under paragraph (1), the Secretary shall re-
22
serve—
23
(A) $5,000,000 to carry out subsection (a);
24
and
25
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•HR 5942 IH
(B) $25,000,000 to carry out subsection
1
(b), of which—
2
(i) 2 percent shall be for the provision
3
of technical assistance to grant recipients;
4
and
5
(ii) 5 percent shall be for independent
6
evaluation under subsection (b)(7).
7
SEC. 416. RURAL HEALTH CARE SERVICES.
8
Section 330A of the Public Health Service Act (42
9
U.S.C. 254c) is amended to read as follows:
10
‘‘SEC. 330A. RURAL HEALTH CARE SERVICES OUTREACH,
11
RURAL HEALTH NETWORK DEVELOPMENT,
12
DELTA RURAL DISPARITIES AND HEALTH
13
SYSTEMS DEVELOPMENT, AND SMALL RURAL
14
HEALTH CARE PROVIDER QUALITY IMPROVE-
15
MENT GRANT PROGRAMS.
16
‘‘(a) PURPOSE.—The purpose of this section is to
17
provide for grants—
18
‘‘(1) under subsection (b), to promote rural
19
health care services outreach;
20
‘‘(2) under subsection (c), to provide for the
21
planning and implementation of integrated health
22
care networks in rural areas;
23
‘‘(3) under subsection (d), to assist rural com-
24
munities in the Delta Region to reduce health dis-
25
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•HR 5942 IH
parities and to promote and enhance health system
1
development; and
2
‘‘(4) under subsection (e), to provide for the
3
planning and implementation of small rural health
4
care provider quality improvement activities.
5
‘‘(b) RURAL HEALTH CARE SERVICES OUTREACH
6
GRANTS.—
7
‘‘(1) GRANTS.—The Director of the Office of
8
Rural Health Policy of the Health Resources and
9
Services Administration may award grants to eligible
10
entities to promote rural health care services out-
11
reach by expanding the delivery of health care serv-
12
ices to include new and enhanced services in rural
13
areas. The Director may award the grants for peri-
14
ods of not more than 3 years.
15
‘‘(2) ELIGIBILITY.—To be eligible to receive a
16
grant under this subsection for a project, an enti-
17
ty—
18
‘‘(A) shall be a rural public or rural non-
19
profit private entity, a facility that qualifies as
20
a rural health clinic under title XVIII of the
21
Social Security Act, a public or nonprofit entity
22
existing exclusively to provide services to mi-
23
grant and seasonal farm workers in rural areas,
24
or a Tribal government whose grant-funded ac-
25
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•HR 5942 IH
tivities will be conducted within federally recog-
1
nized Tribal areas;
2
‘‘(B) shall represent a consortium com-
3
posed of members—
4
‘‘(i) that include 3 or more independ-
5
ently owned health care entities; and
6
‘‘(ii) that may be nonprofit or for-
7
profit entities; and
8
‘‘(C) shall not previously have received a
9
grant under this subsection for the same or a
10
similar project, unless the entity is proposing to
11
expand the scope of the project or the area that
12
will be served through the project.
13
‘‘(3) APPLICATIONS.—To be eligible to receive a
14
grant under this subsection, an eligible entity shall
15
prepare and submit to the Director an application at
16
such time, in such manner, and containing such in-
17
formation as the Director may require, including—
18
‘‘(A) a description of the project that the
19
eligible entity will carry out using the funds
20
provided under the grant;
21
‘‘(B) a description of the manner in which
22
the project funded under the grant will meet
23
the health care needs of rural populations in
24
the local community or region to be served;
25
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•HR 5942 IH
‘‘(C) a plan for quantifying how health
1
care needs will be met through identification of
2
the target population and benchmarks of service
3
delivery or health status, such as—
4
‘‘(i) quantifiable measurements of
5
health status improvement for projects fo-
6
cusing on health promotion; or
7
‘‘(ii) benchmarks of increased access
8
to primary care, including tracking factors
9
such as the number and type of primary
10
care visits, identification of a medical
11
home, or other general measures of such
12
access;
13
‘‘(D) a description of how the local com-
14
munity or region to be served will be involved
15
in the development and ongoing operations of
16
the project;
17
‘‘(E) a plan for sustaining the project after
18
Federal support for the project has ended;
19
‘‘(F) a description of how the project will
20
be evaluated;
21
‘‘(G) the administrative capacity to submit
22
annual performance data electronically as speci-
23
fied by the Director; and
24
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•HR 5942 IH
‘‘(H) other such information as the Direc-
1
tor determines to be appropriate.
2
‘‘(c) RURAL
HEALTH
NETWORK
DEVELOPMENT
3
GRANTS.—
4
‘‘(1) GRANTS.—
5
‘‘(A) IN
GENERAL.—The Director may
6
award rural health network development grants
7
to eligible entities to promote, through planning
8
and implementation, the development of inte-
9
grated health care networks that have combined
10
the functions of the entities participating in the
11
networks in order to—
12
‘‘(i) achieve efficiencies and economies
13
of scale;
14
‘‘(ii) expand access to, coordinate, and
15
improve the quality of the health care de-
16
livery system through development of orga-
17
nizational efficiencies;
18
‘‘(iii) implement health information
19
technology to achieve efficiencies, reduce
20
medical errors, and improve quality;
21
‘‘(iv) coordinate care and manage
22
chronic illness; and
23
‘‘(v) strengthen the rural health care
24
system as a whole in such a manner as to
25
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•HR 5942 IH
show a quantifiable return on investment
1
to the participants in the network.
2
‘‘(B) GRANT PERIODS.—The Director may
3
award such a rural health network development
4
grant—
5
‘‘(i) for a period of 3 years for imple-
6
mentation activities; or
7
‘‘(ii) for a period of 1 year for plan-
8
ning activities to assist in the initial devel-
9
opment of an integrated health care net-
10
work, if the proposed participants in the
11
network do not have a history of collabo-
12
rative efforts and a 3-year grant would be
13
inappropriate.
14
‘‘(2) ELIGIBILITY.—To be eligible to receive a
15
grant under this subsection, an entity—
16
‘‘(A) shall be a rural public or rural non-
17
profit private entity, a facility that qualifies as
18
a rural health clinic under title XVIII of the
19
Social Security Act, a public or nonprofit entity
20
existing exclusively to provide services to mi-
21
grant and seasonal farm workers in rural areas,
22
or a Tribal government whose grant-funded ac-
23
tivities will be conducted within federally recog-
24
nized Tribal areas;
25
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•HR 5942 IH
‘‘(B) shall represent a network composed
1
of participants—
2
‘‘(i) that include 3 or more independ-
3
ently owned health care entities; and
4
‘‘(ii) that may be nonprofit or for-
5
profit entities; and
6
‘‘(C) shall not previously have received a
7
grant under this subsection (other than a 1-
8
year grant for planning activities) for the same
9
or a similar project.
10
‘‘(3) APPLICATIONS.—To be eligible to receive a
11
grant under this subsection, an eligible entity, in
12
consultation with the appropriate State office of
13
rural health or another appropriate State entity,
14
shall prepare and submit to the Director an applica-
15
tion at such time, in such manner, and containing
16
such information as the Director may require, in-
17
cluding—
18
‘‘(A) a description of the project that the
19
eligible entity will carry out using the funds
20
provided under the grant;
21
‘‘(B) an explanation of the reasons why
22
Federal assistance is required to carry out the
23
project;
24
‘‘(C) a description of—
25
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•HR 5942 IH
‘‘(i) the history of collaborative activi-
1
ties carried out by the participants in the
2
network;
3
‘‘(ii) the degree to which the partici-
4
pants are ready to integrate their func-
5
tions; and
6
‘‘(iii) how the local community or re-
7
gion to be served will benefit from and be
8
involved in the activities carried out by the
9
network;
10
‘‘(D) a description of how the local com-
11
munity or region to be served will experience in-
12
creased access to quality health care services
13
across the continuum of care as a result of the
14
integration activities carried out by the net-
15
work, including a description of—
16
‘‘(i) return on investment for the com-
17
munity and the network members; and
18
‘‘(ii) other quantifiable performance
19
measures that show the benefit of the net-
20
work activities;
21
‘‘(E) a plan for sustaining the project after
22
Federal support for the project has ended;
23
‘‘(F) a description of how the project will
24
be evaluated;
25
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•HR 5942 IH
‘‘(G) the administrative capacity to submit
1
annual performance data electronically as speci-
2
fied by the Director; and
3
‘‘(H) other such information as the Direc-
4
tor determines to be appropriate.
5
‘‘(d) DELTA RURAL DISPARITIES AND HEALTH SYS-
6
TEMS DEVELOPMENT GRANTS.—
7
‘‘(1) GRANTS.—The Director may award grants
8
to eligible entities to support reduction of health dis-
9
parities, improve access to health care, and enhance
10
rural health system development in the Delta Re-
11
gion.
12
‘‘(2) ELIGIBILITY.—To be eligible to receive a
13
grant under this subsection, an entity shall be a
14
rural public or rural nonprofit private entity, a facil-
15
ity that qualifies as a rural health clinic under title
16
XVIII of the Social Security Act, a public or non-
17
profit entity existing exclusively to provide services
18
to migrant and seasonal farm workers in rural
19
areas, or a Tribal government whose grant-funded
20
activities will be conducted within federally recog-
21
nized Tribal areas.
22
‘‘(3) APPLICATIONS.—To be eligible to receive a
23
grant under this subsection, an eligible entity shall
24
prepare and submit to the Director an application at
25
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•HR 5942 IH
such time, in such manner, and containing such in-
1
formation as the Director may require, including—
2
‘‘(A) a description of the project that the
3
eligible entity will carry out using the funds
4
provided under the grant;
5
‘‘(B) an explanation of the reasons why
6
Federal assistance is required to carry out the
7
project;
8
‘‘(C) a description of the manner in which
9
the project funded under the grant will meet
10
the health care needs of the Delta Region;
11
‘‘(D) a description of how the local com-
12
munity or region to be served will experience in-
13
creased access to quality health care services as
14
a result of the activities carried out by the enti-
15
ty;
16
‘‘(E) a description of how health dispari-
17
ties will be reduced or the health system will be
18
improved;
19
‘‘(F) a plan for sustaining the project after
20
Federal support for the project has ended;
21
‘‘(G) a description of how the project will
22
be evaluated including process and outcome
23
measures related to the quality of care provided
24
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•HR 5942 IH
or how the health care system improves its per-
1
formance;
2
‘‘(H) a description of how the grantee will
3
develop an advisory group made up of rep-
4
resentatives of the communities to be served to
5
provide guidance to the grantee to best meet
6
community need; and
7
‘‘(I) other such information as the Director
8
determines to be appropriate.
9
‘‘(e) SMALL RURAL HEALTH CARE PROVIDER QUAL-
10
ITY IMPROVEMENT GRANTS.—
11
‘‘(1) GRANTS.—The Director may award grants
12
to provide for the planning and implementation of
13
small rural health care provider quality improvement
14
activities. The Director may award the grants for
15
periods of 1 to 3 years.
16
‘‘(2) ELIGIBILITY.—To be eligible for a grant
17
under this subsection, an entity—
18
‘‘(A) shall be—
19
‘‘(i) a rural public or rural nonprofit
20
private health care provider or provider of
21
health care services, such as a rural health
22
clinic; or
23
‘‘(ii) another rural provider or net-
24
work of small rural providers identified by
25
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256
•HR 5942 IH
the Director as a key source of local care;
1
and
2
‘‘(B) shall not previously have received a
3
grant under this subsection for the same or a
4
similar project.
5
‘‘(3) PREFERENCE.—In awarding grants under
6
this subsection, the Director shall give preference to
7
facilities that qualify as rural health clinics under
8
title XVIII of the Social Security Act.
9
‘‘(4) APPLICATIONS.—To be eligible to receive a
10
grant under this subsection, an eligible entity shall
11
prepare and submit to the Director an application at
12
such time, in such manner, and containing such in-
13
formation as the Director may require, including—
14
‘‘(A) a description of the project that the
15
eligible entity will carry out using the funds
16
provided under the grant;
17
‘‘(B) an explanation of the reasons why
18
Federal assistance is required to carry out the
19
project;
20
‘‘(C) a description of the manner in which
21
the project funded under the grant will assure
22
continuous quality improvement in the provision
23
of services by the entity;
24
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•HR 5942 IH
‘‘(D) a description of how the local com-
1
munity or region to be served will experience in-
2
creased access to quality health care services as
3
a result of the activities carried out by the enti-
4
ty;
5
‘‘(E) a plan for sustaining the project after
6
Federal support for the project has ended;
7
‘‘(F) a description of how the project will
8
be evaluated including process and outcome
9
measures related to the quality of care pro-
10
vided; and
11
‘‘(G) other such information as the Direc-
12
tor determines to be appropriate.
13
‘‘(f) GENERAL REQUIREMENTS.—
14
‘‘(1) PROHIBITED USES OF FUNDS.—An entity
15
that receives a grant under this section may not use
16
funds provided through the grant—
17
‘‘(A) to build or acquire real property; or
18
‘‘(B) for construction.
19
‘‘(2) COORDINATION WITH OTHER AGENCIES.—
20
The Director shall coordinate activities carried out
21
under grant programs described in this section, to
22
the extent practicable, with Federal and State agen-
23
cies and nonprofit organizations that are operating
24
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•HR 5942 IH
similar grant programs, to maximize the effect of
1
public dollars in funding meritorious proposals.
2
‘‘(g) REPORT.—Not later than September 30, 2020,
3
the Secretary shall prepare and submit to the appropriate
4
committees of Congress a report on the progress and ac-
5
complishments of the grant programs described in sub-
6
sections (b), (c), (d), and (e).
7
‘‘(h) DEFINITIONS.—In this section:
8
‘‘(1) The term ‘Delta Region’ has the meaning
9
given to the term ‘region’ in section 382A of the
10
Consolidated Farm and Rural Development Act (7
11
U.S.C. 2009aa).
12
‘‘(2) The term ‘Director’ means the Director of
13
the Office of Rural Health Policy of the Health Re-
14
sources and Services Administration.
15
‘‘(i) AUTHORIZATION OF APPROPRIATIONS.—There
16
are authorized to be appropriated to carry out this section
17
$40,000,000 for fiscal year 2019, and such sums as may
18
be necessary for each of fiscal years 2020 through 2023.’’.
19
SEC. 417. COMMUNITY HEALTH CENTER COLLABORATIVE
20
ACCESS EXPANSION.
21
Section 330 of the Public Health Service Act (42
22
U.S.C. 254b) is amended by adding at the end the fol-
23
lowing:
24
‘‘(s) MISCELLANEOUS PROVISIONS.—
25
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•HR 5942 IH
‘‘(1) RULE OF CONSTRUCTION WITH RESPECT
1
TO RURAL HEALTH CLINICS.—Nothing in this sec-
2
tion shall be construed to prevent a community
3
health center from contracting with a federally cer-
4
tified rural health clinic (as defined by section
5
1861(aa)(2) of the Social Security Act) for the deliv-
6
ery of primary health care and other mental, dental,
7
and physical health services that are available at the
8
rural health clinic to individuals who would other-
9
wise be eligible for free or reduced cost care if that
10
individual were able to obtain that care at the com-
11
munity health center. Such services may be limited
12
in scope to those primary health care and other
13
mental, dental, and physical health services available
14
in that rural health clinic.
15
‘‘(2) ENABLING SERVICES.—To the extent pos-
16
sible, enabling services such as transportation and
17
language assistance (including translation and inter-
18
pretation) shall be provided by rural health clinics
19
described in paragraph (1).
20
‘‘(3) ASSURANCES.—In order for a rural health
21
clinic to receive funds under this section through a
22
contract with a community health center for the de-
23
livery of primary health care and other services de-
24
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scribed in paragraph (1), such rural health clinic
1
shall establish policies to ensure—
2
‘‘(A) nondiscrimination based upon the
3
ability of a patient to pay;
4
‘‘(B) the establishment of a sliding fee
5
scale for low-income patients; and
6
‘‘(C) any such services should be subject to
7
full reimbursement according to the Prospective
8
Payment System scale.’’.
9
SEC. 418. FACILITATING THE PROVISION OF TELEHEALTH
10
SERVICES ACROSS STATE LINES.
11
(a) IN GENERAL.—For purposes of expediting the
12
provision of telehealth services, for which payment is made
13
under the Medicare Program, across State lines, the Sec-
14
retary of Health and Human Services shall, in consulta-
15
tion with representatives of States, physicians, health care
16
practitioners, and patient advocates, encourage and facili-
17
tate the adoption of provisions allowing for multistate
18
practitioner practice across State lines.
19
(b) DEFINITIONS.—In subsection (a):
20
(1) TELEHEALTH
SERVICE.—The term ‘‘tele-
21
health service’’ has the meaning given that term in
22
subparagraph (F) of section 1834(m)(4) of the So-
23
cial Security Act (42 U.S.C. 1395m(m)(4)).
24
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(2) PHYSICIAN,
PRACTITIONER.—The terms
1
‘‘physician’’ and ‘‘practitioner’’ have the meaning
2
given those terms in subparagraphs (D) and (E), re-
3
spectively, of such section.
4
(3) MEDICARE PROGRAM.—The term ‘‘Medicare
5
Program’’ means the program of health insurance
6
administered by the Secretary of Health and Human
7
Services under title XVIII of the Social Security Act
8
(42 U.S.C. 1395 et seq.).
9
SEC. 419. SCORING OF PREVENTIVE HEALTH SAVINGS.
10
Section 202 of the Congressional Budget and Im-
11
poundment Control Act of 1974 (2 U.S.C. 602) is amend-
12
ed by adding at the end the following new subsection:
13
‘‘(h) SCORING OF PREVENTIVE HEALTH SAVINGS.—
14
‘‘(1) DETERMINATION
BY
THE
DIRECTOR.—
15
Upon a request by the chairman or ranking minority
16
member of the Committee on the Budget of the Sen-
17
ate, or by the chairman or ranking minority member
18
of the Committee on the Budget of the House of
19
Representatives, the Director shall determine if a
20
proposed measure would result in reductions in
21
budget outlays in budgetary outyears through the
22
use of preventive health and preventive health serv-
23
ices.
24
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‘‘(2) PROJECTIONS.—If the Director determines
1
that a measure would result in substantial reduc-
2
tions in budget outlays as described in paragraph
3
(1), the Director—
4
‘‘(A) shall include, in any projection pre-
5
pared by the Director, a description and esti-
6
mate of the reductions in budget outlays in the
7
budgetary outyears and a description of the
8
basis for such conclusions; and
9
‘‘(B) may prepare a budget projection that
10
includes some or all of the budgetary outyears,
11
notwithstanding the time periods for projections
12
described in subsection (e) and sections 308,
13
402, and 424.
14
‘‘(3) DEFINITIONS.—As used in this sub-
15
section—
16
‘‘(A) the term ‘preventive health’ means an
17
action that focuses on the health of the public,
18
individuals, and defined populations in order to
19
protect, promote, and maintain health, wellness,
20
and functional ability, and prevent disease, dis-
21
ability, and premature death that is dem-
22
onstrated by credible and publicly available epi-
23
demiological projection models, incorporating
24
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clinical trials or observational studies in hu-
1
mans, to avoid future health care costs; and
2
‘‘(B) the term ‘budgetary outyears’ means
3
the 2 consecutive 10-year periods beginning
4
with the first fiscal year that is 10 years after
5
the budget year provided for in the most re-
6
cently agreed to concurrent resolution on the
7
budget.’’.
8
SEC. 420. SENSE OF CONGRESS ON MAINTENANCE OF EF-
9
FORT PROVISIONS REGARDING CHILDREN’S
10
HEALTH.
11
It is the sense of the Congress that—
12
(1) the maintenance of effort provisions added
13
to sections 1902 and 2105(d) of the Social Security
14
Act by sections 2001(b) and 2101(b) of the Patient
15
Protection and Affordable Care Act were written to
16
maintain the eligibility standards for the Medicaid
17
program under title XIX of the Social Security Act
18
and Children’s Health Insurance Program under
19
title XXI of such Act until the American Health
20
Benefit Exchanges in the States are fully oper-
21
ational;
22
(2) it is imperative that the maintenance of ef-
23
fort provisions are enforced to the strict standard in-
24
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•HR 5942 IH
tended by the Congress through September 30,
1
2022;
2
(3) waiving the maintenance of effort provisions
3
should not be permitted, except in the case of a re-
4
quest for a waiver that meets the explicit non-
5
application requirements;
6
(4) the maintenance of effort provisions ensure
7
the continued success of the Medicaid program and
8
Children’s Health Insurance Program and were writ-
9
ten deliberately to specifically protect vulnerable and
10
disabled individuals, children, and senior citizens,
11
many of whom are also members of communities of
12
color; and
13
(5) the maintenance of effort provisions must
14
be strictly enforced and proposals to weaken the
15
maintenance of effort provisions must not be consid-
16
ered.
17
SEC. 421. REPEAL OF REQUIREMENT FOR DOCUMENTA-
18
TION EVIDENCING CITIZENSHIP OR NATION-
19
ALITY UNDER THE MEDICAID PROGRAM.
20
(a) REPEAL.—Subsections (i)(22) and (x) of section
21
1903 of the Social Security Act (42 U.S.C. 1396b) are
22
each repealed.
23
(b) CONFORMING AMENDMENTS.—
24
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(1) Section 1902 of the Social Security Act (42
1
U.S.C. 1396a) is amended—
2
(A) by amending paragraph (46) of sub-
3
section (a) to read as follows:
4
‘‘(46) provide that information is requested and
5
exchanged for purposes of income and eligibility
6
verification in accordance with a State system which
7
meets the requirements of section 1137 of this
8
Act;’’;
9
(B) in subsection (e)(13)(A)(i)—
10
(i) in the matter preceding subclause
11
(I), by striking ‘‘sections 1902(a)(46)(B)
12
and 1137(d)’’ and inserting ‘‘section
13
1137(d)’’; and
14
(ii) in subclause (IV), by striking
15
‘‘1902(a)(46)(B) or’’; and
16
(C) by striking subsection (ee).
17
(2) Section 1903 of the Social Security Act (42
18
U.S.C. 1396b) is amended—
19
(A) in subsection (i), by redesignating
20
paragraphs (23) through (26) as paragraphs
21
(22) through (25), respectively; and
22
(B) by redesignating subsections (y) and
23
(z) as subsections (x) and (y), respectively.
24
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(3) Subsection (c) of section 6036 of the Deficit
1
Reduction Act of 2005 (42 U.S.C. 1396b note) is re-
2
pealed.
3
(c) EFFECTIVE DATE.—The repeals and amend-
4
ments made by this section shall take effect as if included
5
in the enactment of the Deficit Reduction Act of 2005.
6
SEC. 422. PROTECTION OF THE HHS OFFICES OF MINORITY
7
HEALTH.
8
(a) IN GENERAL.—Pursuant to the Patient Protec-
9
tion and Affordable Care Act (Public Law 111–148), the
10
Offices of Minority Health established within the Centers
11
for Disease Control and Prevention, the Health Resources
12
and Services Administration, the Substance Abuse and
13
Mental Health Services Administration, the Agency for
14
Healthcare Research and Quality, the Food and Drug Ad-
15
ministration, and the Centers for Medicare & Medicaid
16
Services, are offices that, regardless of change in the
17
structure of the Department of Health and Human Serv-
18
ices, shall report to the Secretary of Health and Human
19
Services.
20
(b) SENSE OF CONGRESS.—It is the sense of the
21
Congress that any effort to eliminate or consolidate such
22
Offices of Minority Health undermines the progress
23
achieved so far.
24
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SEC. 423. OFFICE OF MINORITY HEALTH IN VETERANS
1
HEALTH ADMINISTRATION OF DEPARTMENT
2
OF VETERANS AFFAIRS.
3
(a) ESTABLISHMENT AND FUNCTIONS.—Subchapter
4
I of chapter 73 of title 38, United States Code, is amended
5
by adding at the end the following new section:
6
‘‘§ 7310. Office of Minority Health
7
‘‘(a) ESTABLISHMENT.—There is established in the
8
Department within the Office of the Under Secretary for
9
Health an office to be known as the ‘Office of Minority
10
Health’ (in this section referred to as the ‘Office’).
11
‘‘(b) HEAD.—The Director of the Office of Minority
12
Health shall be the head of the Office. The Director of
13
the Office of Minority Health shall be appointed by the
14
Under Secretary of Health from among individuals quali-
15
fied to perform the duties of the position.
16
‘‘(c) FUNCTIONS.—The functions of the Office are as
17
follows:
18
‘‘(1) To establish short-range and long-range
19
goals and objectives and coordinate all other activi-
20
ties within the Veterans Health Administration that
21
relate to disease prevention, health promotion, health
22
care services delivery, and health care research con-
23
cerning veterans who are members of a racial or eth-
24
nic minority group.
25
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•HR 5942 IH
‘‘(2) To support research, demonstrations, and
1
evaluations to test new and innovative models for
2
the discharge of activities described in paragraph
3
(1).
4
‘‘(3) To increase knowledge and understanding
5
of health risk factors for veterans who are members
6
of a racial or ethnic minority group.
7
‘‘(4) To develop mechanisms that support bet-
8
ter health care information dissemination, education,
9
prevention, and services delivery to veterans from
10
disadvantaged backgrounds, including veterans who
11
are members of a racial or ethnic minority group.
12
‘‘(5) To enter into contracts or agreements with
13
appropriate public and nonprofit private entities to
14
develop and carry out programs to provide bilingual
15
or interpretive services to assist veterans who are
16
members of a racial or ethnic minority group and
17
who lack proficiency in speaking the English lan-
18
guage in accessing and receiving health care services
19
through the Veterans Health Administration.
20
‘‘(6) To carry out programs to improve access
21
to health care services through the Veterans Health
22
Administration for veterans with limited proficiency
23
in speaking the English language, including the de-
24
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•HR 5942 IH
velopment and evaluation of demonstration and pilot
1
projects for that purpose.
2
‘‘(7) To advise the Under Secretary of Health
3
on matters relating to the development, implementa-
4
tion, and evaluation of health professions education
5
in decreasing disparities in health care outcomes be-
6
tween veterans who are members of a racial or eth-
7
nic minority group and other veterans, including cul-
8
tural competency as a method of eliminating such
9
health disparities.
10
‘‘(8) To perform such other functions and du-
11
ties as the Secretary or the Under Secretary for
12
Health considers appropriate.
13
‘‘(d) DEFINITIONS.—In this section:
14
‘‘(1) The term ‘racial or ethnic minority group’
15
means any of the following:
16
‘‘(A) American Indians (including Alaska
17
Natives, Eskimos, and Aleuts).
18
‘‘(B) Asian Americans.
19
‘‘(C) Native Hawaiians and other Pacific
20
Islanders.
21
‘‘(D) Blacks.
22
‘‘(E) Hispanics.
23
‘‘(2) The term ‘Hispanic’ means individuals
24
whose origin is Mexican, Puerto Rican, Cuban, Cen-
25
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•HR 5942 IH
tral or South American, or any other Spanish-speak-
1
ing country.’’.
2
(b) CLERICAL AMENDMENT.—The table of sections
3
at the beginning of such chapter is amended by inserting
4
after the item relating to section 7309A the following new
5
item:
6
‘‘7310. Office of Minority Health.’’.
SEC. 424. INDIAN DEFINED IN PPACA.
7
(a) DEFINITION OF INDIAN.—Section 1304 of the
8
Patient Protection and Affordable Care Act (42 U.S.C.
9
18024) is amended by adding at the end the following:
10
‘‘(f) INDIAN.—
11
‘‘(1) IN GENERAL.—In this title, the term ‘In-
12
dian’ means any individual—
13
‘‘(A) described in paragraph (13) or (28)
14
of section 4 of the Indian Health Care Improve-
15
ment Act (25 U.S.C. 1603);
16
‘‘(B) who is eligible for health services pro-
17
vided by the Indian Health Service under sec-
18
tion 809 of the Indian Health Care Improve-
19
ment Act (25 U.S.C. 1679);
20
‘‘(C) who is of Indian descent and belongs
21
to the Indian community served by the local fa-
22
cilities and program of the Indian Health Serv-
23
ice; or
24
‘‘(D) who is described in paragraph (2).
25
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‘‘(2) INCLUDED
INDIVIDUALS.—The following
1
individuals shall be considered to be an ‘Indian’:
2
‘‘(A) A member of a federally recognized
3
Indian Tribe.
4
‘‘(B) A resident of an urban center who
5
meets 1 or more of the following 4 criteria:
6
‘‘(i) Membership in a Tribe, band, or
7
other organized group of Indians, including
8
those Tribes, bands, or groups terminated
9
since 1940 and those recognized as of the
10
date of enactment of the Health Equity
11
and Accountability Act of 2018 or later by
12
the State in which they reside, or being a
13
descendant, in the first or second degree,
14
of any such member.
15
‘‘(ii) Is an Eskimo or Aleut or other
16
Alaska Native.
17
‘‘(iii) Is considered by the Secretary of
18
the Interior to be an Indian for any pur-
19
pose.
20
‘‘(iv) Is determined to be an Indian
21
under regulations promulgated by the Sec-
22
retary.
23
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•HR 5942 IH
‘‘(C) An individual who is considered by
1
the Secretary of the Interior to be an Indian for
2
any purpose.
3
‘‘(D) An individual who is considered by
4
the Secretary to be an Indian for purposes of
5
eligibility for Indian health care services, includ-
6
ing as a California Indian, Eskimo, Aleut, or
7
other Alaska Native.’’.
8
(b) CONFORMING AMENDMENTS.—
9
(1) AFFORDABLE
CHOICES
HEALTH
BENEFIT
10
PLANS.—Section 1311(c)(6)(D) of the Patient Pro-
11
tection and Affordable Care Act (42 U.S.C.
12
18031(c)(6)(D)) is amended by striking ‘‘section 4
13
of the Indian Health Care Improvement Act’’ and
14
inserting ‘‘section 1304(f)’’.
15
(2) REDUCED COST-SHARING FOR INDIVIDUALS
16
ENROLLING IN QUALIFIED HEALTH PLANS.—Section
17
1402(d) of the Patient Protection and Affordable
18
Care Act (42 U.S.C. 18071(d)) is amended—
19
(A) in paragraph (1), in the matter pre-
20
ceding subparagraph (A), by striking ‘‘section
21
4(d) of the Indian Self-Determination and Edu-
22
cation Assistance Act (25 U.S.C. 450b(d))’’ and
23
inserting ‘‘section 1304(f)’’; and
24
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•HR 5942 IH
(B) in paragraph (2), in the matter pre-
1
ceding subparagraph (A), by striking ‘‘(as so
2
defined)’’ and inserting ‘‘(as defined in section
3
1304(f))’’.
4
(3) EXEMPTION
FROM
PENALTY
FOR
NOT
5
MAINTAINING
MINIMUM
ESSENTIAL
COVERAGE.—
6
Section 5000A(e) of the Internal Revenue Code of
7
1986 is amended by striking paragraph (3) and in-
8
serting the following:
9
‘‘(3) INDIANS.—Any applicable individual who
10
is an Indian (as defined in section 1304(f) of the
11
Patient Protection and Affordable Care Act).’’.
12
SEC. 425. STUDY OF DSH PAYMENTS TO ENSURE HOSPITAL
13
ACCESS FOR LOW-INCOME PATIENTS.
14
(a) IN GENERAL.—Not later than January 1, 2019,
15
the Comptroller General of the United States shall con-
16
duct a study on how certain amendments made by the Pa-
17
tient Protection and Affordable Care Act (Public Law
18
111–148) to titles XVIII and XIX of the Social Security
19
Act affect the timely access to health care services for low-
20
income patients. Such study shall—
21
(1) evaluate and examine whether States elect-
22
ing to make medical assistance available under sec-
23
tion 1902(a)(10)(A)(i)(VIII) of the Social Security
24
Act (42 U.S.C. 1396a(a)(10)(A)(i)(VIII)) (including
25
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•HR 5942 IH
States making such an election through a waiver of
1
the State plan) to individuals described in such sec-
2
tion mitigates the need for payments to dispropor-
3
tionate share hospitals under section 1886(d)(5)(F)
4
of
the
Social
Security
Act
(42
U.S.C.
5
1395ww(d)(5)(F)) and section 1923 of such Act (42
6
U.S.C. 1396r–4), including the impact of such
7
States electing to make medical assistance available
8
to such individuals on—
9
(A) the number of individuals in the
10
United States who are without health insurance
11
and the distribution of such individuals in rela-
12
tion to areas primarily served by dispropor-
13
tionate share hospitals; and
14
(B) the low-income utilization rate of such
15
hospitals and the resulting fiscal sustainability
16
of such hospitals;
17
(2) evaluate the appropriate level and distribu-
18
tion of such payments among disproportionate hos-
19
pitals for purposes of—
20
(A) sufficiently accounting for the level of
21
uncompensated care provided by such hospitals
22
to low-income patients; and
23
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•HR 5942 IH
(B) providing timely access to health serv-
1
ices for individuals in medically underserved
2
areas; and
3
(3) assess, with respect to disproportionate hos-
4
pitals—
5
(A) the role played by such hospitals in
6
providing critical access to emergency, inpa-
7
tient, and outpatient health services, as well as
8
the location of such hospitals in relation to
9
medically underserved areas; and
10
(B) the extent to which such hospitals sat-
11
isfy the requirements established for charitable
12
hospital organizations under section 501(r) of
13
the Internal Revenue Code of 1986 with respect
14
to community health needs assessments, finan-
15
cial assistance policy requirements, limitations
16
on charges, and billing and collection require-
17
ments.
18
(b) REPORTS.—
19
(1) REPORT
TO
CONGRESS.—Not later than
20
180 days after the date on which the study under
21
subsection (a) is completed, the Comptroller General
22
of the United States shall submit to the Committee
23
on Energy and Commerce of the House of Rep-
24
resentatives and the Committee on Health, Edu-
25
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•HR 5942 IH
cation, Labor, and Pensions of the Senate a report
1
that contains—
2
(A) the results of the study;
3
(B) recommendations to Congress for any
4
legislative changes to the payments to dis-
5
proportionate share hospitals under section
6
1886(d)(5)(F) of the Social Security Act (42
7
U.S.C. 1395ww(d)(5)(F)) and section 1923 of
8
such Act (42 U.S.C. 1396r–4) that are needed
9
to ensure access to health services for low-in-
10
come patients that—
11
(i) are based on the number of indi-
12
viduals without health insurance, the
13
amount of uncompensated care provided by
14
such hospitals, and the impact of reduced
15
payments levels on low-income commu-
16
nities; and
17
(ii) takes into account any reports
18
submitted by the Secretary of the Treas-
19
ury, in consultation with the Secretary of
20
Health and Human Services, to Congres-
21
sional committees regarding the costs in-
22
curred by charitable hospital organizations
23
for charity care, bad debt, nonreimbursed
24
expenses for services provided to individ-
25
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•HR 5942 IH
uals under the Medicare Program under
1
title XVIII of the Social Security Act and
2
the Medicaid Program under title XIX of
3
such Act, and any community benefit ac-
4
tivities provided by such organizations.
5
(2) REPORT TO THE SECRETARY OF HEALTH
6
AND HUMAN SERVICES.—Not later than 180 days
7
after the date on which the study under subsection
8
(a) is completed, the Comptroller General of the
9
United States shall submit to the Secretary of
10
Health and Human Services a report that con-
11
tains—
12
(A) the results of the study; and
13
(B) any recommendations for purposes of
14
assisting in the development of the methodology
15
for the adjustment of payments to dispropor-
16
tionate share hospitals, as required under sec-
17
tion 1886(r) of the Social Security Act (42
18
U.S.C. 1395ww(r)) and the reduction of such
19
payments section 1923(f)(7) of such Act (42
20
U.S.C. 1396r–4(f)(7)), taking into account the
21
reports referred to in paragraph (1)(B)(ii).
22
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SEC. 426. ASSISTANT SECRETARY OF THE INDIAN HEALTH
1
SERVICE.
2
(a) REFERENCES.—Any reference in a law, regula-
3
tion, document, paper, or other record of the United
4
States to the Director of the Indian Health Service shall
5
be deemed to be a reference to the Assistant Secretary
6
of the Indian Health Service.
7
(b) EXECUTIVE SCHEDULE.—Section 5315 of title 5,
8
United States Code, is amended in the matter relating to
9
the Assistant Secretaries of Health and Human Services
10
by striking ‘‘(6)’’ and inserting ‘‘(7), 1 of whom shall be
11
the Assistant Secretary of the Indian Health Service’’.
12
(c) CONFORMING AMENDMENT.—Section 5316 of
13
title 5, United States Code, is amended by striking ‘‘Direc-
14
tor, Indian Health Service, Department of Health and
15
Human Services.’’.
16
SEC. 427. REAUTHORIZATION OF THE NATIVE HAWAIIAN
17
HEALTH CARE IMPROVEMENT ACT.
18
(a) NATIVE HAWAIIAN HEALTH CARE SYSTEMS.—
19
Section 6(h)(1) of the Native Hawaiian Health Care Im-
20
provement Act (42 U.S.C. 11705(h)(1)) is amended by
21
striking ‘‘may be necessary for fiscal years 1993 through
22
2019’’ and inserting ‘‘are necessary’’.
23
(b) ADMINISTRATIVE
GRANT
FOR
PAPA
OLA
24
LOKAHI.—Section 7(b) of the Native Hawaiian Health
25
Care Improvement Act (42 U.S.C. 11706(b)) is amended
26
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•HR 5942 IH
by striking ‘‘may be necessary for fiscal years 1993
1
through 2019’’ and inserting ‘‘are necessary’’.
2
(c) NATIVE HAWAIIAN HEALTH SCHOLARSHIPS.—
3
Section 10(c) of the Native Hawaiian Health Care Im-
4
provement Act (42 U.S.C. 11709(c)) is amended by strik-
5
ing ‘‘may be necessary for fiscal years 1993 through
6
2019’’ and inserting ‘‘are necessary’’.
7
SEC. 428. AVAILABILITY OF NON-ENGLISH LANGUAGE
8
SPEAKING PROVIDERS.
9
(a) IN GENERAL.—Section 1311(c)(1)(B) of the Pa-
10
tient Protection and Affordable Care Act (42 U.S.C.
11
18031(c)(1)(B)) is amended by inserting before the semi-
12
colon the following: ‘‘and, with respect to such providers,
13
a provider’s ability to provide care in a language other
14
than English either through the provider speaking such
15
language or by the provider having a trained medical in-
16
terpreter, as defined in subsection (b) of this section, who
17
speaks such language available during office hours’’.
18
(b) QUALIFIED INTERPRETER FOR AN INDIVIDUAL
19
WITH LIMITED-ENGLISH PROFICIENCY, DEFINED.—The
20
term ‘‘Qualified interpreter for an individual with limited-
21
English proficiency’’ means an interpreter who via a re-
22
mote interpreting service or an on-site appearance—
23
(1) adheres to generally accepted interpreter
24
ethics principles, including client confidentiality;
25
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•HR 5942 IH
(2) has demonstrated proficiency in speaking
1
and understanding both spoken English and at least
2
one other spoken language; and
3
(3) is able to interpret effectively, accurately,
4
and impartially, both receptively and expressly, to
5
and from such language(s) and English, using any
6
necessary specialized vocabulary, terminology and
7
phraseology.
8
(c) EFFECTIVE DATE.—The amendment made by
9
subsection (a) shall apply for plan years beginning more
10
than 1 year after the date of the enactment of this Act.
11
SEC. 429. ACCESS TO ESSENTIAL COMMUNITY PROVIDERS.
12
(a) ESSENTIAL COMMUNITY PROVIDERS.—Section
13
1311(c)(1)(C) of the Patient Protection and Affordable
14
Care Act (42 U.S.C. 18031(c)(1)(C)) is amended—
15
(1) by inserting ‘‘(i)’’ after ‘‘(C)’’; and
16
(2) by adding at the end the following new
17
clauses:
18
‘‘(ii) not later than 2018, increase the per-
19
centage of essential community providers in-
20
cluded in its network by 10 percent annually
21
(based on the level in the plan for 2016) until
22
90 percent of all federally qualified health cen-
23
ters and 75 percent of all other essential com-
24
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•HR 5942 IH
munity providers in the contract service area
1
are in-network; and
2
‘‘(iii) include one of each type of essential
3
community provider in network in each county
4
in their service area, where available;’’.
5
(b)
REPORTING
REQUIREMENTS.—Section
6
1311(e)(3) of the Patient Protection and Affordable Care
7
Act (42 U.S.C. 18031(e)(3)(A)) is amended by adding at
8
the end the following new subparagraph:
9
‘‘(E) DATA
ON
ESSENTIAL
COMMUNITY
10
PROVIDERS.—The Secretary shall require quali-
11
fied health plans to submit annually to the Sec-
12
retary data on the percentage of essential com-
13
munity providers, by county, that contract with
14
each qualified health plan offered in that county
15
and the percentage of essential community pro-
16
viders, by type, that contract with each quali-
17
fied health plan offered in that county. Data so
18
submitted shall be made available to the general
19
public’’.
20
(c) ESSENTIAL COMMUNITY PROVIDER PROVISIONS
21
APPLIED UNDER MEDICARE AND MEDICAID.—
22
(1) MEDICARE.—Section 1852(d)(1) of the So-
23
cial Security Act (42 U.S.C.1395w–22(d)(1)) is
24
amended—
25
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•HR 5942 IH
(A) by striking ‘‘and’’ at the end of sub-
1
paragraph (D);
2
(B) by striking the period at the end of
3
subparagraph (E) and inserting ‘‘; and’’; and
4
(C) by adding at the end the following new
5
subparagraph:
6
‘‘(F) the plan meets the requirements of
7
clauses (ii) and (iii) of section 1311(c)(1)(C) of
8
the Patient Protection and Affordable Care Act
9
(relating to inclusion in networks of essential
10
community providers).’’.
11
(2) MEDICAID.—Section 1932(b)(5) of the So-
12
cial Security Act (42 U.S.C. 1396u–2(b)(5)) is
13
amended—
14
(A) by striking ‘‘and’’ at the end of sub-
15
paragraph (A);
16
(B) by striking the period at the end of
17
subparagraph (B) and inserting ‘‘; and’’; and
18
(C) by adding at the end the following new
19
subparagraph:
20
‘‘(C) the plan meets the requirements of
21
clauses (ii) and (iii) of section 1311(c)(1)(C) of
22
the Patient Protection and Affordable Care Act
23
(relating to inclusion in networks of essential
24
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•HR 5942 IH
community providers) with respect to services
1
offered in the service area involved.’’.
2
SEC. 430. PROVIDER NETWORK ADEQUACY IN COMMU-
3
NITIES OF COLOR.
4
(a) IN GENERAL.—Section 1311(c)(1)(B) of the Pa-
5
tient Protection and Affordable Care Act (42 U.S.C.
6
18031(c)(1)(B)) is amended—
7
(1) by inserting ‘‘(i)’’ after ‘‘(B)’’; and
8
(2) by adding at the end the following the fol-
9
lowing new clauses:
10
‘‘(ii) meet such network adequacy
11
standards as the Secretary may establish
12
with regard to—
13
‘‘(I) appointment wait time;
14
‘‘(II) travel time and distance to
15
health care provider facilities and pro-
16
viders by public and private transit;
17
‘‘(III) hours of operation to ac-
18
commodate individuals who cannot
19
come to provider appointments during
20
standard business hours; and
21
‘‘(IV) other network adequacy
22
standards to ensure that care through
23
these plans is accessible to diverse
24
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•HR 5942 IH
communities, including those who are
1
limited-English proficient; and
2
‘‘(iii) provide coverage for services for
3
enrollees through out-of-network providers
4
at no additional cost to the enrollees in
5
cases where in-network providers are un-
6
able to comply with the standards estab-
7
lished under clause subclause (III) or (IV)
8
of clause (ii) for such services and the out-
9
of-network providers can deliver such serv-
10
ices in compliance with such standards.
11
‘‘(b) EFFECTIVE DATE.—The amendments made by
12
subsection (a) shall apply to plan years beginning more
13
than 1 year after the date of the enactment of this Act.’’.
14
SEC. 431. IMPROVING ACCESS TO DENTAL CARE.
15
(a) REPORTS TO CONGRESS.—
16
(1) GAO REPORT ON DENTAL THERAPIST PRO-
17
GRAMS.—Not later than 1 year after the date of the
18
enactment of this Act, the Comptroller General of
19
the United States shall submit to Congress a report
20
on the Alaska Dental Health Aide Therapists Pro-
21
gram and the Dental Therapist and Advanced Den-
22
tal Therapist programs in Minnesota, to assess den-
23
tal therapists’ effectiveness in—
24
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•HR 5942 IH
(A) improving access to timely dental care
1
among communities of color;
2
(B) providing high quality care; and
3
(C) providing culturally competent care.
4
(2) GAO REPORT
OF
EXPANDING
SCOPE
OF
5
CERTAIN PRACTICES.—The GAO shall also report on
6
state variations in use of dental hygienists and as-
7
sess the effectiveness of expanding the scope of prac-
8
tice for hygienists in—
9
(A) improving access to timely dental care
10
among communities of color;
11
(B) providing high quality care; and
12
(C) providing culturally competent care.
13
(3) HRSA REPORT
ON
DENTAL
SHORTAGE
14
AREAS.—Not later than 1 year after the date of the
15
enactment of this Act, the Secretary, acting through
16
the Administrator of the Health Resources Service
17
Administration, shall submit to Congress a report
18
which details geographic dental access shortages and
19
the preparedness of dental providers to offer cul-
20
turally and linguistically appropriate, affordable, ac-
21
cessible, and timely services.
22
(b) EXPANSION OF DENTAL HEALTH AID THERA-
23
PISTS IN TRIBAL COMMUNITIES.—Section 119(d) of the
24
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•HR 5942 IH
Indian Health Care Improvement Act ( U.S.C. 1616l(d))
1
is amended—
2
(1) in paragraph (2), by striking ‘‘Subject to’’
3
and all that follows and inserting ‘‘Subject to para-
4
graph (3), in establishing a national program under
5
paragraph (1), the Secretary shall not reduce the
6
amounts provided for the Community Health Aide
7
Program described in subsections (a) and (b).’’;
8
(2) by striking paragraph (3); and
9
(3) by redesignating paragraph (4) as para-
10
graph (3).
11
(c) COVERAGE OF DENTAL SERVICES UNDER THE
12
MEDICARE PROGRAM.—
13
(1) COVERAGE.—Section 1861(s)(2) of the So-
14
cial Security Act (42 U.S.C. 1395x(s)(2)) is amend-
15
ed—
16
(A) in subparagraph (EE), by striking
17
‘‘and’’ after the semicolon at the end;
18
(B) in subparagraph (FF), by adding
19
‘‘and’’ after the semicolon at the end; and
20
(C) by adding at the end the following new
21
subparagraph:
22
‘‘(GG) oral health services (as defined in
23
subsection (kkk);’’.
24
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•HR 5942 IH
(2) ORAL HEALTH SERVICES DEFINED.—Sec-
1
tion 1861 of the Social Security Act (42 U.S.C.
2
1395x), as amended by sections 205(b) and 433(a),
3
is amended by adding at the end the following new
4
subsection:
5
‘‘Oral Health Services
6
‘‘(kkk)(1) The term ‘oral health services’ means serv-
7
ices (as defined by the Secretary) that are necessary to
8
prevent disease and promote oral health, restore oral
9
structures to health and function, and treat emergency
10
conditions.
11
‘‘(2) For purposes of paragraph (1), such term shall
12
include mobile and portable oral health services (as de-
13
fined by the Secretary) that—
14
‘‘(A) are provided for the purpose of over-
15
coming mobility, transportation, and access barriers
16
for individuals; and
17
‘‘(B) satisfy the standards and certification re-
18
quirements established under section 1902(a)(82)(B)
19
for the State in which the services are provided.’’.
20
(3) PAYMENT
AND
COINSURANCE.—Section
21
1833(a)(1) of the Social Security Act (42 U.S.C.
22
1395l(a)(1)) is amended—
23
(A) by striking ‘‘and’’ before ‘‘(Z)’’; and
24
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•HR 5942 IH
(B) by inserting before the semicolon at
1
the end the following: ‘‘, and (AA) with respect
2
to oral health services (as defined in section
3
1861(kkk)), the amount paid shall be (i) in the
4
case of such services that are preventive, 100
5
percent of the lesser of the actual charge for
6
the services or the amount determined under
7
the payment basis determined under section
8
1848, and (ii) in the case of all other such serv-
9
ices, 80 percent of the lesser of the actual
10
charge for the services or the amount deter-
11
mined under the payment basis determined
12
under section 1848’’.
13
(4) PAYMENT UNDER PHYSICIAN FEE SCHED-
14
ULE.—Section 1848(j)(3) of the Social Security Act
15
(42 U.S.C. 1395w–4(j)(3)) is amended by inserting
16
‘‘(2)(GG),’’ after ‘‘risk assessment),’’.
17
(5) DENTURES.—Section 1861(s)(8) of the So-
18
cial Security Act (42 U.S.C. 1395x(s)(8)) is amend-
19
ed—
20
(A) by striking ‘‘(other than dental)’’ and
21
inserting ‘‘(including dentures)’’; and
22
(B) by striking ‘‘internal body’’.
23
(6) REPEAL
OF
GROUND
FOR
EXCLUSION.—
24
Section 1862(a) of the Social Security Act (42
25
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289
•HR 5942 IH
U.S.C. 1395y) is amended by striking paragraph
1
(12).
2
(7) EFFECTIVE DATE.—The amendments made
3
by this section shall apply to services furnished on
4
or after January 1, 2019.
5
(d) COVERAGE OF DENTAL SERVICES UNDER THE
6
MEDICAID PROGRAM.—
7
(1) IN GENERAL.—Section 1905 of the Social
8
Security Act (42 U.S.C. 1396d) is amended—
9
(A) in subsection (a)(10), by striking ‘‘den-
10
tal services’’ and inserting ‘‘oral health services
11
(as defined in subsection (ee)(1))’’; and
12
(B) by adding at the end the following new
13
subsection:
14
‘‘(ee)(1) Subject to paragraphs (2) and (3), for pur-
15
poses of this title, the term ‘oral health services’ means
16
services (as defined by the Secretary) that are necessary
17
to prevent disease and promote oral health, restore oral
18
structures to health and function, and treat emergency
19
conditions. These services shall include, in the case of
20
pregnant or postpartum women, such services as are nec-
21
essary to address oral health conditions that exist or are
22
exacerbated by pregnancy or childbirth or which, if left
23
untreated, could adversely affect fetal or child develop-
24
ment.
25
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•HR 5942 IH
‘‘(2) For purposes of paragraph (1), such term shall
1
include—
2
‘‘(A) dentures; and
3
‘‘(B) mobile and portable oral health services
4
(as defined by the Secretary) that—
5
‘‘(i) are provided for the purpose of over-
6
coming mobility, transportation, and access bar-
7
riers for individuals; and
8
‘‘(ii) satisfy the standards and certification
9
requirements
established
under
section
10
1902(a)(82)(C) for the State in which the serv-
11
ices are provided.
12
‘‘(3) For purposes of paragraph (1), such term shall
13
not apply to dental care or services provided to individuals
14
under the age of 21 under subsection (r)(3).’’.
15
(2) CONFORMING AMENDMENTS.—
16
(A) STATE PLAN REQUIREMENTS.—Section
17
1902(a) of the Social Security Act (42 U.S.C.
18
1396a(a)) is amended—
19
(i) in paragraph (10)(A), in the mat-
20
ter preceding clause (i), by inserting
21
‘‘(10),’’ after ‘‘(5),’’;
22
(ii) in paragraph (80), by striking
23
‘‘and’’ at the end;
24
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•HR 5942 IH
(iii) in paragraph (81), by striking the
1
period at the end and inserting ‘‘; and’’;
2
and
3
(iv) by inserting after paragraph (81)
4
the following:
5
‘‘(82) provide for—
6
‘‘(A) informing, in writing, all individuals
7
who have been determined to be eligible for
8
medical assistance of the availability of oral
9
health services (as defined in section 1905(ee));
10
‘‘(B) conducting targeted outreach to preg-
11
nant women who have been determined to be el-
12
igible for medical assistance about the avail-
13
ability of medical assistance for such dental
14
services and the importance of receiving dental
15
care while pregnant; and
16
‘‘(C) establishing and maintaining stand-
17
ards for and certification of mobile and portable
18
oral health services (as described in subsections
19
(r)(3)(C) and (ee)(2)(B) of section 1905).’’.
20
(B) DEFINITION
OF
MEDICAL
ASSIST-
21
ANCE.—Section 1905(a)(12) of the Social Secu-
22
rity Act (42 U.S.C. 1396d(a)(12)) is amended
23
by striking ‘‘, dentures,’’.
24
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•HR 5942 IH
(3) MOBILE
AND
PORTABLE
ORAL
HEALTH
1
SERVICES UNDER EPSDT.—Section 1905(r)(3) of the
2
Social Security Act (42 U.S.C. 1396d(r)(3)) is
3
amended—
4
(A) in subparagraph (A)(ii), by striking ‘‘;
5
and’’ and inserting a semicolon;
6
(B) in subparagraph (B), by striking the
7
period at the end and inserting ‘‘; and’’; and
8
(C) by adding at the end the following new
9
subparagraph:
10
‘‘(C) which shall include mobile and port-
11
able oral health services (as defined by the Sec-
12
retary) that—
13
‘‘(i) are provided for the purpose of
14
overcoming mobility, transportation, or ac-
15
cess barriers for children; and
16
‘‘(ii) satisfy the standards and certifi-
17
cation requirements established under sec-
18
tion 1902(a)(82)(C) for the State in which
19
the services are provided.’’.
20
(e) ORAL HEALTH SERVICES
AS
AN ESSENTIAL
21
HEALTH BENEFIT.—Section 1302(b) of the Patient Pro-
22
tection and Affordable Care Act (42 U.S.C. 18022(b)) is
23
amended—
24
(1) in paragraph (1)—
25
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•HR 5942 IH
(A) in subparagraph (J), by striking ‘‘oral
1
and’’; and
2
(B) by adding at the end the following:
3
‘‘(K) Oral health services for children and
4
adults.’’; and
5
(2) by adding at the end the following:
6
‘‘(6) ORAL HEALTH SERVICES.—For purposes
7
of paragraph (1)(K), the term ‘oral health services’
8
means services (as defined by the Secretary), that
9
are necessary to prevent disease and promote oral
10
health, restore oral structures to health and func-
11
tion, and treat emergency conditions.’’.
12
(f) DEMONSTRATION PROGRAM ON TRAINING AND
13
EMPLOYMENT OF ALTERNATIVE DENTAL HEALTH CARE
14
PROVIDERS FOR DENTAL HEALTH CARE SERVICES FOR
15
VETERANS IN RURAL AND OTHER UNDERSERVED COM-
16
MUNITIES.—
17
(1) DEMONSTRATION PROGRAM AUTHORIZED.—
18
The Secretary of Veterans Affairs may carry out a
19
demonstration program to establish programs to
20
train and employ alternative dental health care pro-
21
viders in order to increase access to dental health
22
care services for veterans who are entitled to such
23
services from the Department of Veterans Affairs
24
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•HR 5942 IH
and reside in rural and other underserved commu-
1
nities.
2
(2) TELEHEALTH.—For purposes of alternative
3
dental health care providers and other dental care
4
providers who are licensed to provide clinical care,
5
dental services provided under the demonstration
6
program under this section may be administered by
7
such providers through telehealth-enabled collabora-
8
tion and supervision when appropriate and feasible.
9
(3) ALTERNATIVE DENTAL HEALTH CARE PRO-
10
VIDERS DEFINED.—In this section, the term ‘‘alter-
11
native dental health care providers’’ has the meaning
12
given that term in section 340G–1(a)(2) of the Pub-
13
lic Health Service Act (42 U.S.C. 256g–1(a)(2)).
14
(4) AUTHORIZATION
OF
APPROPRIATIONS.—
15
There are authorized to be appropriated such sums
16
as are necessary to carry out the demonstration pro-
17
gram under this subsection.
18
(g) DEMONSTRATION PROGRAM ON TRAINING AND
19
EMPLOYMENT OF ALTERNATIVE DENTAL HEALTH CARE
20
PROVIDERS FOR DENTAL HEALTH CARE SERVICES FOR
21
MEMBERS OF THE ARMED FORCES AND DEPENDENTS
22
LACKING READY ACCESS TO SUCH SERVICES.—
23
(1) DEMONSTRATION PROGRAM AUTHORIZED.—
24
The Secretary of Defense may carry out a dem-
25
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onstration program to establish programs to train
1
and employ alternative dental health care providers
2
in order to increase access to dental health care
3
services for members of the Armed Forces and their
4
dependents who lack ready access to such services,
5
including the following:
6
(A) Members and dependents who reside in
7
rural areas or areas otherwise underserved by
8
dental health care providers.
9
(B) Members of the National Guard and
10
Reserves in active status who are potentially
11
deployable.
12
(2) TELEHEALTH.—For purposes of alternative
13
dental health care providers and other dental care
14
providers who are licensed to provide clinical care,
15
dental services provided under the demonstration
16
program under this section may be administered by
17
such providers through telehealth-enabled collabora-
18
tion and supervision when appropriate and feasible.
19
(3) ALTERNATIVE DENTAL HEALTH CARE PRO-
20
VIDERS DEFINED.—In this section, the term ‘‘alter-
21
native dental health care providers’’ has the meaning
22
given that term in section 340G–1(a)(2) of the Pub-
23
lic Health Service Act (42 U.S.C. 256g–1(a)(2)).
24
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(4) AUTHORIZATION
OF
APPROPRIATIONS.—
1
There are authorized to be appropriated such sums
2
as are necessary to carry out the demonstration pro-
3
gram under this subsection.
4
(h) DEMONSTRATION PROGRAM ON TRAINING AND
5
EMPLOYMENT OF ALTERNATIVE DENTAL HEALTH CARE
6
PROVIDERS FOR DENTAL HEALTH CARE SERVICES FOR
7
PRISONERS WITHIN THE CUSTODY OF THE BUREAU OF
8
PRISONS.—
9
(1) DEMONSTRATION PROGRAM AUTHORIZED.—
10
The Attorney General, acting through the Director
11
of the Bureau of Prisons, may carry out a dem-
12
onstration program to establish programs to train
13
and employ alternative dental health care providers
14
in order to increase access to dental health services
15
for prisoners within the custody of the Bureau of
16
Prisons.
17
(2) TELEHEALTH.—For purposes of alternative
18
dental health care providers and any other dental
19
care providers who are licensed to provide clinical
20
care, dental services provided under the demonstra-
21
tion program under this section may be administered
22
by such providers through telehealth-enabled collabo-
23
ration and supervision when deemed appropriate and
24
feasible.
25
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(3) ALTERNATIVE DENTAL HEALTH CARE PRO-
1
VIDERS DEFINED.—In this section, the term ‘‘alter-
2
native dental health care providers’’ has the meaning
3
given that term in section 340G–1(a)(2) of the Pub-
4
lic Health Service Act (42 U.S.C. 256g–1(a)(2)).
5
(4) AUTHORIZATION
OF
APPROPRIATIONS.—
6
There are authorized to be appropriated such sums
7
as are necessary to carry out the demonstration pro-
8
gram under this subsection.
9
(i) DEMONSTRATION PROGRAM ON TRAINING AND
10
EMPLOYMENT OF ALTERNATIVE DENTAL HEALTH CARE
11
PROVIDERS
FOR
DENTAL
HEALTH
CARE
SERVICES
12
UNDER THE INDIAN HEALTH SERVICE.—
13
(1) DEMONSTRATION PROGRAM AUTHORIZED.—
14
The Secretary of Health and Human Services, act-
15
ing through the Indian Health Service, may carry
16
out a demonstration program to establish programs
17
to train and employ alternative dental health care
18
providers in order to help eliminate oral health dis-
19
parities and increase access to dental services
20
through health programs operated by the Indian
21
Health Service, Indian Tribes, Tribal organizations,
22
and urban Indian organizations (as those terms are
23
defined in section 4 of the Indian Health Care Im-
24
provement Act (25 U.S.C. 1603)).
25
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(2) TELEHEALTH.—For purposes of alternative
1
dental health care providers and any other dental
2
care providers who are licensed to provide clinical
3
care, dental services provided under the demonstra-
4
tion program under this section may be administered
5
by such providers through telehealth-enabled collabo-
6
ration and supervision when deemed appropriate and
7
feasible.
8
(3) ALTERNATIVE DENTAL HEALTH CARE PRO-
9
VIDERS DEFINED.—In this section, the term ‘‘alter-
10
native dental health care providers’’ has the meaning
11
given that term in section 340G–1(a)(2) of the Pub-
12
lic Health Service Act (42 U.S.C. 256g–1(a)(2)).
13
(4) AUTHORIZATION
OF
APPROPRIATIONS.—
14
There are authorized to be appropriated such sums
15
as are necessary to carry out the demonstration pro-
16
gram under this subsection.
17
Subtitle C—Advancing Health Eq-
18
uity Through Payment and De-
19
livery Reform
20
SEC. 441. SENSE OF CONGRESS.
21
It is the Sense of Congress that the sustainability of
22
the U.S. health care system hinges on restructuring how
23
health care is paid for, shifting away from paying for the
24
volume of services provided to the value the services pro-
25
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vide. High value care is care that provides higher quality
1
care more efficiently, achieving greater health improve-
2
ment and better health outcomes at lower cost (per patient
3
and overall). A high value health care system must deliver
4
timely, accessible, well-coordinated, high quality, culturally
5
centered, and language appropriate care to everyone.
6
Therefore, eliminating health disparities and achieving
7
health equity must be central to efforts to achieve a high
8
value health care system. This will require tailored inter-
9
ventions and targeted investments to address inequities in
10
health and health care to make sure that health care deliv-
11
ery and payment efforts are responsive to and inclusive
12
of the needs of communities of color and other commu-
13
nities experiencing disparities. New models of value-based
14
payment and care delivery should consider the holistic
15
needs of the patient population, including social deter-
16
minants of health and behavioral health needs.
17
SEC. 442. CENTERS FOR MEDICARE & MEDICAID SERVICES
18
QUALITY PAYMENT PROGRAM.
19
(a) IN GENERAL.—The Centers for Medicare & Med-
20
icaid Services Quality Payment Program, developed
21
through implementation of the Medicare Access and CHIP
22
Reauthorization Act of 2015, should explicitly integrate
23
‘‘achieving health equity’’ across all measures and activi-
24
ties, including the Merit-based Payment Incentive System
25
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and Alternative Payment Models. In addition, CMS should
1
identify limited-English proficient (LEP) persons as a spe-
2
cific underserved group within the program and give high
3
weight to providing language services for non-English
4
speakers. Clinicians can demonstrate performance in this
5
category by developing language assistance plans, pro-
6
viding oral interpretation services, and providing trans-
7
lated documents for the population served or eligible to
8
be served.
9
(b) STRATIFIED DATA.—CMS should include an ex-
10
plicit reference that data stratification and reporting is
11
one way of working to achieve health equity. CMS should
12
require that in reporting this measure, clinicians should
13
stratify clinical quality measures by disparity variables, in-
14
cluding race, ethnicity, preferred language, disability sta-
15
tus, sexual orientation, and gender identity, psychological
16
and behavioral status. Clinicians can use existing demo-
17
graphic data collection fields in CEHRT to do this. Strati-
18
fied data can help clinicians identify and distinguish ef-
19
forts to improve quality from efforts to reduce disparities,
20
which may not correlate without dedicated work. All par-
21
ticipating entities in the Quality Payment Program should
22
adopt 2015 Certified Electronic Health Records Tech-
23
nology as a condition of participating in the program.
24
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(c) QUALITY IMPROVEMENT ACTIVITIES.—Further,
1
CMS, upon yearly review of the Quality Payment Pro-
2
gram, should add quality improvement activities that im-
3
plement the Culturally and Linguistically Accessible
4
Standards (CLAS) standards as Improvement Activities.
5
SEC. 443. DEVELOPMENT AND TESTING OF DISPARITY RE-
6
DUCING DELIVERY AND PAYMENT MODELS.
7
(a) IN GENERAL.—The Center for Medicaid and
8
Medicare Innovation (CMMI) will establish a dedicated
9
fund to identify, pilot, evaluate and scale delivery and pay-
10
ment models that target health disparities among racial
11
and ethnic minorities, including models that support high-
12
value non-medical services that address socially-deter-
13
mined barriers to health including: English proficiency,
14
health literacy, case management, transportation and en-
15
rollment assistance which will help to reduce disparities
16
and impact the overall cost of care.
17
(b) PILOT PROGRAMS.—Pilot and demonstration pro-
18
grams that include partnerships with entities including
19
community based organizations or other non-profit entities
20
to help address socially determined barriers to health and
21
health care will be given priority.
22
(c) ALTERNATIVES.—Require all CMMI funded alter-
23
native delivery and payment models to include measures
24
to assess and track their impact on health disparities,
25
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using existing measures such as, but not limited to, the
1
National Quality Forum Healthcare Disparities and Cul-
2
tural Competency Measures, and stratified by race, eth-
3
nicity, English proficiency, gender identity, sexual orienta-
4
tion, and disability status.
5
SEC. 444. SUPPORTING SAFETY NET AND COMMUNITY-
6
BASED PROVIDERS TO COMPETE IN VALUE-
7
BASED PAYMENT SYSTEMS.
8
(a) IN GENERAL.—All proposed pay for performance
9
and alternative payment models, developed and tested by
10
CMMI, or any other HHS agency should be assessed for
11
potential impact on safety net, community based, and crit-
12
ical access providers, including federally qualified health
13
centers.
14
(b) NEW MODELS.—The rollout of new payment
15
models should include training and additional up front re-
16
sources for community based and safety net providers to
17
enable them to participate in them.
18
Subtitle D—Health Empowerment
19
Zones
20
SEC. 451. SHORT TITLE.
21
This subtitle may be cited as the ‘‘Health Empower-
22
ment Zone Act of 2018’’.
23
SEC. 452. FINDINGS.
24
The Congress finds the following:
25
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(1) Numerous studies and reports, including
1
the 2015 National Healthcare Disparities Report of
2
the Administration on Healthcare Research and
3
Quality and the 2002 Unequal Treatment Report of
4
the Institute of Medicine, document the extensive-
5
ness to which health disparities exist across the
6
country.
7
(2) These studies have found that, on average,
8
racial and ethnic minorities are disproportionately
9
afflicted with chronic and acute conditions—such as
10
cancer, diabetes, musculoskeletal disease, obesity,
11
and hypertension—and suffer worse health out-
12
comes, worse health status, and higher mortality
13
rates than their White counterparts.
14
(3) Several recent studies also show that health
15
disparities are a function of not only access to health
16
care, but also the social determinants of health—in-
17
cluding the environment, the physical structure of
18
communities, nutrition and food options, educational
19
attainment and health literacy, employment, race,
20
ethnicity, immigration status, geography, and lan-
21
guage preference—that directly and indirectly affect
22
the health, health care, and wellness of individuals
23
and communities.
24
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(4) Integrally involving and fully supporting the
1
communities most affected by health inequities in
2
the assessment, planning, launch, and evaluation of
3
health disparity elimination efforts are among the
4
leading recommendations made to adequately ad-
5
dress and ultimately reduce health disparities.
6
(5) Recommendations also include supporting
7
the efforts of community stakeholders from a broad
8
cross section—including, but not limited to local
9
businesses, local departments of commerce, edu-
10
cation, labor, urban planning, and transportation,
11
and community-based and other nonprofit organiza-
12
tions, including national and regional intermediaries
13
with demonstrated capacity to serve low-income
14
urban communities—to find areas of common
15
ground around health disparity elimination and col-
16
laborate to improve the overall health and wellness
17
of a community and its residents.
18
SEC.
453.
DESIGNATION
OF
HEALTH
EMPOWERMENT
19
ZONES.
20
(a) IN GENERAL.—At the request of an eligible com-
21
munity partnership, the Secretary may designate an eligi-
22
ble area as a health empowerment zone.
23
(b) ELIGIBILITY CRITERIA.—
24
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(1) ELIGIBLE
COMMUNITY
PARTNERSHIP.—A
1
community partnership is eligible to submit a re-
2
quest under this section if the partnership—
3
(A) demonstrates widespread public sup-
4
port from key individuals and entities in the eli-
5
gible area, including members of the target
6
community, State and local governments, non-
7
profit organizations including national and re-
8
gional intermediaries with demonstrated capac-
9
ity to serve low-income urban communities, and
10
community and industry leaders, for designa-
11
tion of the eligible area as a health empower-
12
ment zone; and
13
(B) includes representatives of—
14
(i) a broad cross section of stake-
15
holders and residents from communities in
16
the eligible area experiencing dispropor-
17
tionate disparities in health status and
18
health care; and
19
(ii) organizations, facilities, and insti-
20
tutions that have a history of working
21
within and serving such communities.
22
(2) ELIGIBLE AREA.—An area is eligible to be
23
designated as a health empowerment zone under this
24
section if one or more communities in the area expe-
25
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rience disproportionate disparities in health status
1
and health care. In determining whether a commu-
2
nity experiences such disparities, the Secretary shall
3
consider the data collected by the Department of
4
Health and Human Services focusing on the fol-
5
lowing areas:
6
(A) Access to affordable, high-quality
7
health services.
8
(B) The prevalence of disproportionate
9
rates of certain illnesses or diseases including
10
the following:
11
(i) Arthritis, osteoporosis, chronic
12
back conditions, and other musculoskeletal
13
diseases.
14
(ii) Cancer.
15
(iii) Chronic kidney disease.
16
(iv) Diabetes.
17
(v) Injury (intentional and uninten-
18
tional).
19
(vi) Violence (intimate and non-
20
intimate).
21
(vii) Maternal and paternal illnesses
22
and diseases.
23
(viii) Infant mortality.
24
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(ix) Mental illness and other disabil-
1
ities.
2
(x) Substance abuse treatment and
3
prevention, including underage drinking.
4
(xi) Nutrition, obesity, and overweight
5
conditions.
6
(xii) Heart disease.
7
(xiii) Hypertension.
8
(xiv)
Cerebrovascular
disease
or
9
stroke.
10
(xv) Tuberculosis.
11
(xvi) HIV/AIDS and other sexually
12
transmitted infections.
13
(xvii) Viral hepatitis.
14
(xviii) Asthma.
15
(xix) Tooth decay and other oral
16
health issues.
17
(C) Within the target community, the his-
18
torical and persistent presence of conditions
19
that have been found to contribute to health
20
disparities including any such conditions re-
21
specting the following:
22
(i) Poverty.
23
(ii) Educational status and the quality
24
of community schools.
25
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(iii) Income.
1
(iv) Access to high-quality affordable
2
health care.
3
(v) Work and work environment.
4
(vi) Environmental conditions in the
5
community, including with respect to clean
6
water, clean air, and the presence or ab-
7
sence of pollutants.
8
(vii) Language and English pro-
9
ficiency.
10
(viii) Access to affordable healthy
11
food.
12
(ix) Access to ethnically and culturally
13
diverse health and human service providers
14
and practitioners.
15
(x) Access to culturally and linguis-
16
tically competent health and human serv-
17
ices and health and human service pro-
18
viders.
19
(xi) Health-supporting infrastructure.
20
(xii) Health insurance that is ade-
21
quate and affordable.
22
(xiii) Race, racism, and bigotry (con-
23
scious and unconscious).
24
(xiv) Sexual orientation.
25
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(xv) Health literacy.
1
(xvi) Place of residence (such as
2
urban areas, rural areas, and Tribal res-
3
ervations).
4
(xvii) Stress.
5
(c) PROCEDURE.—
6
(1) REQUEST.—A request under subsection (a)
7
shall—
8
(A) describe the bounds of the area to be
9
designated as a health empowerment zone and
10
the process used to select those bounds;
11
(B) demonstrate that the partnership sub-
12
mitting the request is an eligible community
13
partnership described in subsection (b)(1);
14
(C) demonstrate that the area is an eligible
15
area described in subsection (b)(2);
16
(D) include a comprehensive assessment of
17
disparities in health status and health care ex-
18
perience by one or more communities in the
19
area;
20
(E) set forth—
21
(i) a vision and a set of values for the
22
area; and
23
(ii) a comprehensive and holistic set of
24
goals to be achieved in the area through
25
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designation as a health empowerment zone;
1
and
2
(F) include a strategic plan and an action
3
plan for achieving the goals described in sub-
4
paragraph (E)(ii).
5
(2) APPROVAL.—Not later than 60 days after
6
the receipt of a request for designation of an area
7
as a health empowerment zone under this section,
8
the Secretary shall approve or disapprove the re-
9
quest.
10
(d) MINIMUM NUMBER.—The Secretary—
11
(1) shall designate not more than 110 health
12
empowerment zones under this section; and
13
(2) shall designate at least one health empower-
14
ment zone in each of the several States, the District
15
of Columbia, and each territory or possession of the
16
United States.
17
SEC. 454. ASSISTANCE TO THOSE SEEKING DESIGNATION.
18
At the request of any organization or entity seeking
19
to submit a request under section 453(a), the Secretary
20
shall provide technical assistance, and may award a grant,
21
to assist such organization or entity—
22
(1) to form an eligible community partnership
23
described in section 453(b)(1);
24
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(2) to complete a health assessment, including
1
an assessment of health disparities under section
2
453(c)(1)(D); or
3
(3) to prepare and submit a request, including
4
a strategic plan, in accordance with section 453.
5
SEC. 455. BENEFITS OF DESIGNATION.
6
(a) PRIORITY.—In awarding any competitive grant,
7
a Federal official shall give priority to any applicant
8
that—
9
(1) meets the eligibility criteria for the grant;
10
(2) proposes to use the grant for activities in a
11
health empowerment zone; and
12
(3) demonstrates that such activities will di-
13
rectly and significantly further the goals of the stra-
14
tegic plan approved for such zone under section 453.
15
(b) GRANTS
FOR INITIAL IMPLEMENTATION
OF
16
STRATEGIC PLAN.—
17
(1) IN GENERAL.—Upon designating an eligible
18
area as a health empowerment zone at the request
19
of an eligible community partnership, the Secretary
20
shall, subject to the availability of appropriations,
21
make a grant to the community partnership for im-
22
plementation of the strategic plan for such zone.
23
(2) GRANT PERIOD.—A grant under paragraph
24
(1) for a health empowerment zone shall be for a pe-
25
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riod of 2 years and may be renewed, except that the
1
total period of grants under paragraph (1) for such
2
zone may not exceed 10 years.
3
(3) LIMITATION.—In awarding grants under
4
this subsection, the Secretary shall not give less pri-
5
ority to an applicant or reduce the amount of a
6
grant because the Secretary rendered technical as-
7
sistance or made a grant to the same applicant
8
under section 454.
9
(4) REPORTING.—The Secretary shall establish
10
metrics for measuring the progress of grantees
11
under this subsection and, based on such metrics,
12
require each such grantee to report to the Secretary
13
not less than every 6 months on the progress in im-
14
plementing the strategic plan for the health em-
15
powerment zone.
16
SEC. 456. DEFINITION.
17
In this subtitle, the term ‘‘Secretary’’ means the Sec-
18
retary of Health and Human Services, acting through the
19
Administrator of the Health Resources and Services Ad-
20
ministration and the Deputy Assistant Secretary for Mi-
21
nority Health, and in cooperation with the Director of the
22
Office of Community Services and the Director of the Na-
23
tional Institute for Minority Health and Health Dispari-
24
ties.
25
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SEC. 457. AUTHORIZATION OF APPROPRIATIONS.
1
To carry out this subtitle, there is authorized to be
2
appropriated $100,000,000 for fiscal year 2019.
3
Subtitle E—At-Risk Community
4
Coverage
5
SEC. 461. MEDICAID COVERAGE FOR CITIZENS OF FREELY
6
ASSOCIATED STATES.
7
(a) IN GENERAL.—Section 402(b)(2) of the Personal
8
Responsibility and Work Opportunity Reconciliation Act
9
of 1996 (8 U.S.C. 1612(b)(2)) is amended by adding at
10
the end the following new subparagraph:
11
‘‘(G) MEDICAID EXCEPTION FOR CITIZENS
12
OF FREELY ASSOCIATED STATES.—With respect
13
to eligibility for benefits for the designated Fed-
14
eral program defined in paragraph (3)(C) (re-
15
lating to the Medicaid program), section 401(a)
16
and paragraph (1) shall not apply to any indi-
17
vidual who lawfully resides in 1 of the 50 States
18
or the District of Columbia in accordance with
19
the Compacts of Free Association between the
20
Government of the United States and the Gov-
21
ernments of the Federated States of Micro-
22
nesia, the Republic of the Marshall Islands, and
23
the Republic of Palau and shall not apply, at
24
the option of the Governor of Puerto Rico, the
25
Virgin Islands, Guam, the Northern Mariana
26
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•HR 5942 IH
Islands, or American Samoa as communicated
1
to the Secretary of Health and Human Services
2
in writing, to any individual who lawfully re-
3
sides in the respective territory in accordance
4
with such Compacts.’’.
5
(b) EXCEPTION TO 5-YEAR LIMITED ELIGIBILITY.—
6
Section 403(d) of such Act (8 U.S.C. 1613(d)) is amend-
7
ed—
8
(1) in paragraph (1), by striking ‘‘or’’ at the
9
end;
10
(2) in paragraph (2), by striking the period at
11
the end and inserting ‘‘; or’’; and
12
(3) by adding at the end the following new
13
paragraph:
14
‘‘(3)
an
individual
described
in
section
15
402(b)(2)(G), but only with respect to the des-
16
ignated
Federal
program
defined
in
section
17
402(b)(3)(C).’’.
18
(c) DEFINITION
OF QUALIFIED ALIEN.—Section
19
431(b) of such Act (8 U.S.C. 1641(b)) is amended—
20
(1) in paragraph (6), by striking ‘‘; or’’ at the
21
end and inserting a comma;
22
(2) in paragraph (7), by striking the period at
23
the end and inserting ‘‘, or’’; and
24
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•HR 5942 IH
(3) by adding at the end the following new
1
paragraph:
2
‘‘(8) an individual who lawfully resides in the
3
United States in accordance with a Compact of Free
4
Association referred to in section 402(b)(2)(G), but
5
only with respect to the designated Federal program
6
defined in section 402(b)(3)(C) (relating to the Med-
7
icaid program).’’.
8
(d) CONFORMING AMENDMENTS.—Section 1108 of
9
the Social Security Act (42 U.S.C. 1308) is amended—
10
(1) in subsection (f), in the matter preceding
11
paragraph (1), by striking ‘‘subsection (g)’’ and in-
12
serting ‘‘subsections (g) and (h)’’; and
13
(2) by adding at the end the following:
14
‘‘(h) Expenditures for medical assistance provided to
15
an individual described in section 431(b)(8) of the Per-
16
sonal Responsibility and Work Opportunity Reconciliation
17
Act of 1996 shall not be taken into account for purposes
18
of applying payment limits under subsections (f) and
19
(g).’’.
20
(e) EFFECTIVE DATE.—The amendments made by
21
this section shall apply to benefits for items and services
22
furnished on or after the date of the enactment of this
23
Act.
24
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SEC. 462. AT-RISK YOUTH MEDICAID PROTECTION.
1
(a) IN GENERAL.—Section 1902 of the Social Secu-
2
rity Act (42 U.S.C. 1396a) is amended—
3
(1) in subsection (a)—
4
(A) by striking ‘‘and’’ at the end of para-
5
graph (82);
6
(B) by striking the period at the end of
7
paragraph (83) and inserting ‘‘; and’’; and
8
(C) by inserting after paragraph (83) the
9
following new paragraph:
10
‘‘(84) provide that—
11
‘‘(A) the State shall not terminate eligi-
12
bility for medical assistance under a State plan
13
for an individual who is an eligible juvenile (as
14
defined in subsection (nn)(2)) because the juve-
15
nile is an inmate of a public institution (as de-
16
fined in subsection (nn)(3)), but may suspend
17
coverage during the period the juvenile is such
18
an inmate;
19
‘‘(B) the State shall restore coverage for
20
such medical assistance to such an individual
21
upon the individual’s release from any such
22
public institution, without requiring a new ap-
23
plication from the individual, unless (and until
24
such date as) there is a determination that the
25
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•HR 5942 IH
individual no longer meets the eligibility re-
1
quirements for such medical assistance; and
2
‘‘(C) the State shall process any applica-
3
tion for medical assistance submitted by, or on
4
behalf of, a juvenile who is an inmate of a pub-
5
lic institution notwithstanding that the juvenile
6
is such an inmate.’’; and
7
(2) by adding at the end the following new sub-
8
section:
9
‘‘(nn) JUVENILE; ELIGIBLE JUVENILE; PUBLIC IN-
10
STITUTION.—For purposes of subsection (a)(84) and this
11
subsection:
12
‘‘(1) JUVENILE.—The term ‘juvenile’ means an
13
individual who is—
14
‘‘(A) under 21 years of age; or
15
‘‘(B)
is
described
in
subsection
16
(a)(10)(A)(i)(IX).
17
‘‘(2) ELIGIBLE JUVENILE.—The term ‘eligible
18
juvenile’ means a juvenile who is an inmate of a
19
public institution and was eligible for medical assist-
20
ance under the State plan immediately before be-
21
coming an inmate of such a public institution or who
22
becomes eligible for such medical assistance while an
23
inmate of a public institution.
24
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‘‘(3) INMATE OF A PUBLIC INSTITUTION.—The
1
term ‘inmate of a public institution’ has the meaning
2
given such term for purposes of applying the sub-
3
division (A) following paragraph (29) of section
4
1905(a), taking into account the exception in such
5
subdivision for a patient of a medical institution.’’.
6
(b) NO CHANGE IN EXCLUSION FROM MEDICAL AS-
7
SISTANCE
FOR INMATES
OF PUBLIC INSTITUTIONS.—
8
Nothing in this section shall be construed as changing the
9
exclusion from medical assistance under the subdivision
10
(A) following paragraph (29) of section 1905(a) of the So-
11
cial Security Act (42 U.S.C. 1396d(a)), including any ap-
12
plicable restrictions on a State submitting claims for Fed-
13
eral financial participation under title XIX of such Act
14
for such assistance.
15
(c) NO CHANGE IN CONTINUITY OF ELIGIBILITY BE-
16
FORE ADJUDICATION OR SENTENCING.—Nothing in this
17
section shall be construed to mandate, encourage, or sug-
18
gest that a State suspend or terminate coverage for indi-
19
viduals before they have been adjudicated or sentenced.
20
(d) EFFECTIVE DATE.—
21
(1) IN GENERAL.—Except as provided in para-
22
graph (2), the amendments made by subsection (a)
23
shall apply to eligibility of juveniles who become in-
24
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•HR 5942 IH
mates of public institutions on or after the date that
1
is 1 year after the date of the enactment of this Act.
2
(2) RULE
FOR
CHANGES
REQUIRING
STATE
3
LEGISLATION.—In the case of a State plan for med-
4
ical assistance under title XIX of the Social Security
5
Act which the Secretary of Health and Human Serv-
6
ices determines requires State legislation (other than
7
legislation appropriating funds) in order for the plan
8
to meet the additional requirements imposed by the
9
amendments made by subsection (a), the State plan
10
shall not be regarded as failing to comply with the
11
requirements of such title solely on the basis of its
12
failure to meet these additional requirements before
13
the first day of the first calendar quarter beginning
14
after the close of the first regular session of the
15
State legislature that begins after the date of the en-
16
actment of this Act. For purposes of the previous
17
sentence, in the case of a State that has a 2-year
18
legislative session, each year of such session shall be
19
deemed to be a separate regular session of the State
20
legislature.
21
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TITLE V—IMPROVING HEALTH
1
OUTCOMES
FOR
WOMEN,
2
CHILDREN, AND FAMILIES
3
Subtitle A—In General
4
SEC. 501. GRANTS TO PROMOTE HEALTH FOR UNDER-
5
SERVED COMMUNITIES.
6
Part Q of title III of the Public Health Service Act
7
(42 U.S.C. 280g et seq.) is amended by adding at the end
8
the following:
9
‘‘SEC. 399Z–3. GRANTS TO PROMOTE HEALTH FOR UNDER-
10
SERVED COMMUNITIES.
11
‘‘(a) GRANTS AUTHORIZED.—The Secretary, in col-
12
laboration with the Administrator of the Health Resources
13
and Services Administration and other Federal officials
14
determined appropriate by the Secretary, is authorized to
15
award grants to eligible entities—
16
‘‘(1) to promote health for underserved commu-
17
nities, with preference given to projects that benefit
18
racial and ethnic minority women, racial and ethnic
19
minority children, adolescents, and lesbian, gay, bi-
20
sexual, transgender, queer, or questioning commu-
21
nities; and
22
‘‘(2) to strengthen health outreach initiatives in
23
medically underserved communities, including lin-
24
guistically isolated populations.
25
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‘‘(b) USE OF FUNDS.—Grants awarded pursuant to
1
subsection (a) may be used to support the activities of
2
community health workers, including such activities—
3
‘‘(1) to educate and provide outreach regarding
4
enrollment in health insurance including the State
5
Children’s Health Insurance Program under title
6
XXI of the Social Security Act, Medicare under title
7
XVIII of such Act, and Medicaid under title XIX of
8
such Act;
9
‘‘(2) to educate and provide outreach in a com-
10
munity setting regarding health problems prevalent
11
among underserved communities, and especially
12
among racial and ethnic minority women, racial and
13
ethnic minority children, adolescents, and lesbian,
14
gay, bisexual, transgender, queer, or questioning
15
communities;
16
‘‘(3) to educate and provide experiential learn-
17
ing opportunities and target risk factors and healthy
18
behaviors that impede or contribute to achieving
19
positive health outcomes, including—
20
‘‘(A) healthy nutrition;
21
‘‘(B) physical activity;
22
‘‘(C) overweight or obesity;
23
‘‘(D) tobacco use;
24
‘‘(E) alcohol and substance use;
25
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•HR 5942 IH
‘‘(F) injury and violence;
1
‘‘(G) sexual health;
2
‘‘(H) mental health;
3
‘‘(I) musculoskeletal health and arthritis;
4
‘‘(J) dental and oral health;
5
‘‘(K) understanding informed consent; and
6
‘‘(L) stigma;
7
‘‘(4) to promote community wellness and aware-
8
ness; and
9
‘‘(5) to educate and refer target populations to
10
appropriate health care agencies and community-
11
based programs and organizations in order to in-
12
crease access to quality health care services, includ-
13
ing preventive health services.
14
‘‘(c) APPLICATION.—
15
‘‘(1) IN
GENERAL.—Each eligible entity that
16
desires to receive a grant under subsection (a) shall
17
submit an application to the Secretary, at such time,
18
in such manner, and accompanied by such additional
19
information as the Secretary may require.
20
‘‘(2) CONTENTS.—Each application submitted
21
pursuant to paragraph (1) shall—
22
‘‘(A) describe the activities for which as-
23
sistance under this section is sought;
24
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•HR 5942 IH
‘‘(B) contain an assurance that, with re-
1
spect to each community health worker pro-
2
gram receiving funds under the grant awarded,
3
such program provides in-language training and
4
supervision to community health workers to en-
5
able such workers to provide authorized pro-
6
gram activities in (at least) the most commonly
7
used languages within a particular geographic
8
region;
9
‘‘(C) contain an assurance that the appli-
10
cant will evaluate the effectiveness of commu-
11
nity health worker programs receiving funds
12
under the grant;
13
‘‘(D) contain an assurance that each com-
14
munity health worker program receiving funds
15
under the grant will provide culturally com-
16
petent services in the linguistic context most
17
appropriate for the individuals served by the
18
program;
19
‘‘(E) contain a plan to document and dis-
20
seminate project descriptions and results to
21
other States and organizations as identified by
22
the Secretary; and
23
‘‘(F) describe plans to enhance the capac-
24
ity of individuals to utilize health services and
25
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•HR 5942 IH
health-related social services under Federal,
1
State, and local programs by—
2
‘‘(i) assisting individuals in estab-
3
lishing eligibility under the programs and
4
in receiving the services or other benefits
5
of the programs; and
6
‘‘(ii) providing other services, as the
7
Secretary determines to be appropriate,
8
which may include transportation and
9
translation services.
10
‘‘(d) PRIORITY.—In awarding grants under sub-
11
section (a), the Secretary shall give priority to those appli-
12
cants—
13
‘‘(1) who propose to target geographic areas
14
that—
15
‘‘(A)(i) have a high percentage of residents
16
who are uninsured or underinsured (if the tar-
17
geted geographic area is located in a State that
18
has elected to make medical assistance available
19
under section 1902(a)(10)(A)(i)(VIII) of the
20
Social Security Act to individuals described in
21
such section);
22
‘‘(ii) have a high percentage of under-
23
insured residents in a particular geographic
24
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•HR 5942 IH
area (if the targeted geographic area is located
1
in a State that has not so elected); or
2
‘‘(iii) have a high number of households ex-
3
periencing extreme poverty; and
4
‘‘(B) have a high percentage of families for
5
whom English is not their primary language or
6
including
smaller
limited-English-proficient
7
communities within the region that are not oth-
8
erwise reached by linguistically appropriate
9
health services;
10
‘‘(2) with experience in providing health or
11
health-related social services to individuals who are
12
underserved with respect to such services; and
13
‘‘(3) with documented community activity and
14
experience with community health workers.
15
‘‘(e) COLLABORATION WITH ACADEMIC INSTITU-
16
TIONS.—The Secretary shall encourage community health
17
worker programs receiving funds under this section to col-
18
laborate with academic institutions, including minority-
19
serving institutions. Nothing in this section shall be con-
20
strued to require such collaboration.
21
‘‘(f) QUALITY ASSURANCE AND COST EFFECTIVE-
22
NESS.—The Secretary shall establish guidelines for ensur-
23
ing the quality of the training and supervision of commu-
24
nity health workers under the programs funded under this
25
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•HR 5942 IH
section and for ensuring the cost effectiveness of such pro-
1
grams.
2
‘‘(g) MONITORING.—The Secretary shall monitor
3
community health worker programs identified in approved
4
applications and shall determine whether such programs
5
are in compliance with the guidelines established under
6
subsection (f).
7
‘‘(h) TECHNICAL ASSISTANCE.—The Secretary may
8
provide technical assistance to community health worker
9
programs identified in approved applications with respect
10
to planning, developing, and operating programs under the
11
grant.
12
‘‘(i) REPORT TO CONGRESS.—
13
‘‘(1) IN
GENERAL.—Not later than 4 years
14
after the date on which the Secretary first awards
15
grants under subsection (a), the Secretary shall sub-
16
mit to Congress a report regarding the grant
17
project.
18
‘‘(2) CONTENTS.—The report required under
19
paragraph (1) shall include the following:
20
‘‘(A) A description of the programs for
21
which grant funds were used.
22
‘‘(B) The number of individuals served.
23
‘‘(C) An evaluation of—
24
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•HR 5942 IH
‘‘(i) the effectiveness of these pro-
1
grams;
2
‘‘(ii) the cost of these programs; and
3
‘‘(iii) the impact of the project on the
4
health outcomes of the community resi-
5
dents.
6
‘‘(D) Recommendations for sustaining the
7
community health worker programs developed
8
or assisted under this section.
9
‘‘(E) Recommendations regarding training
10
to enhance career opportunities for community
11
health workers.
12
‘‘(j) DEFINITIONS.—In this section:
13
‘‘(1) COMMUNITY HEALTH WORKER.—The term
14
‘community health worker’ means an individual who
15
promotes health or nutrition within the community
16
in which the individual resides—
17
‘‘(A) by serving as a liaison between com-
18
munities and health care agencies;
19
‘‘(B) by providing guidance and social as-
20
sistance to community residents;
21
‘‘(C) by enhancing community residents’
22
ability to effectively communicate with health
23
care providers;
24
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•HR 5942 IH
‘‘(D) by providing culturally and linguis-
1
tically appropriate health or nutrition edu-
2
cation;
3
‘‘(E) by advocating for individual and com-
4
munity health, including dental, oral, mental,
5
and environmental health, or nutrition needs;
6
‘‘(F) by taking into consideration the
7
needs of the communities served, including the
8
prevalence rates of risk factors that impede
9
achieving positive healthy outcomes among
10
women and children, especially among racial
11
and ethnic minority women and children; and
12
‘‘(G) by providing referral and followup
13
services.
14
‘‘(2) COMMUNITY SETTING.—The term ‘commu-
15
nity setting’ means a home or a community organi-
16
zation that serves a population.
17
‘‘(3) ELIGIBLE ENTITY.—The term ‘eligible en-
18
tity’ means—
19
‘‘(A) a unit of State, territorial, local, or
20
Tribal government (including a federally recog-
21
nized Tribe or Alaska Native village); or
22
‘‘(B) a community-based organization.
23
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•HR 5942 IH
‘‘(4) MEDICALLY UNDERSERVED COMMUNITY.—
1
The term ‘medically underserved community’ means
2
a community—
3
‘‘(A) that has a substantial number of in-
4
dividuals who are members of a medically un-
5
derserved population, as defined by section
6
330(b)(3);
7
‘‘(B) a significant portion of which is a
8
health professional shortage area as designated
9
under section 332; and
10
‘‘(C) that includes populations that are lin-
11
guistically isolated, such as geographic areas
12
with a shortage of health professionals able to
13
provide linguistically appropriate services.
14
‘‘(5) SUPPORT.—The term ‘support’ means the
15
provision of training, supervision, and materials
16
needed to effectively deliver the services described in
17
subsection (b), reimbursement for services, and
18
other benefits.
19
‘‘(6) TARGET POPULATION.—The term ‘target
20
population means’ women of reproductive age, per-
21
sons who identify as lesbian, gay, bisexual,
22
transgender, and/or queer, and people under age 25.
23
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‘‘(k) AUTHORIZATION OF APPROPRIATIONS.—There
1
are authorized to be appropriated to carry out this section
2
$15,000,000 for each of fiscal years 2019 through 2023.’’.
3
SEC. 502. REMOVING BARRIERS TO HEALTH CARE AND NU-
4
TRITION ASSISTANCE FOR CHILDREN, PREG-
5
NANT PERSONS, AND LAWFULLY PRESENT IN-
6
DIVIDUALS.
7
(a) MEDICAID.—Section 1903(v) of the Social Secu-
8
rity Act (42 U.S.C. 1396b(v)) is amended by striking
9
paragraph (4) and inserting the following new paragraph:
10
‘‘(4)(A) Notwithstanding sections 401(a), 402(b),
11
403, and 421 of the Personal Responsibility and Work Op-
12
portunity Reconciliation Act of 1996 and paragraph (1),
13
payment shall be made to a State under this section for
14
medical assistance furnished to an alien under this title
15
(including an alien described in such paragraph) who
16
meets any of the following conditions:
17
‘‘(i) The alien is otherwise eligible for such as-
18
sistance under the State plan approved under this
19
title (other than the requirement of the receipt of
20
aid or assistance under title IV, supplemental secu-
21
rity income benefits under title XVI, or a State sup-
22
plementary payment) within either or both of the
23
following eligibility categories:
24
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•HR 5942 IH
‘‘(I) Children under 21 years of age, in-
1
cluding any optional targeted low-income child
2
(as
such
term
is
defined
in
section
3
1905(u)(2)(B)).
4
‘‘(II) Pregnant persons during pregnancy
5
and during the 60-day period beginning on the
6
last day of the pregnancy.
7
‘‘(ii) The alien is lawfully present in the United
8
States.
9
‘‘(B) No debt shall accrue under an affidavit of sup-
10
port against any sponsor of an alien who meets the condi-
11
tions specified in subparagraph (A) on the basis of the
12
provision of medical assistance to such alien under this
13
paragraph and the cost of such assistance shall not be con-
14
sidered as an unreimbursed cost.’’.
15
(b)
SCHIP.—Subparagraph
(J)
of
section
16
2107(e)(1) of the Social Security Act (42 U.S.C.
17
1397gg(e)(1)) is amended to read as follows:
18
‘‘(J) Paragraph (4) of section 1903(v) (re-
19
lating to coverage of categories of children,
20
pregnant persons, and other lawfully present in-
21
dividuals).’’.
22
(c) SUPPLEMENTAL NUTRITION ASSISTANCE.—Not-
23
withstanding sections 401(a), 402(a), and 403(a) of the
24
Personal Responsibility and Work Opportunity Reconcili-
25
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332
•HR 5942 IH
ation Act of 1996 (8 U.S.C. 1611(a); 1612(a); 1613(a))
1
and section 6(f) of the Food and Nutrition Act of 2008
2
(7 U.S.C. 2015(f)), persons who are lawfully present in
3
the United States shall be not be ineligible for benefits
4
under the supplemental nutrition assistance program on
5
the basis of their immigration status or date of entry into
6
the United States.
7
(d) ELIGIBILITY FOR FAMILIES WITH CHILDREN.—
8
Section 421(d)(3) of the Personal Responsibility and
9
Work Opportunity Reconciliation Act of 1996 (8 U.S.C.
10
1631(d)(3)) is amended by striking ‘‘to the extent that
11
a qualified alien is eligible under section 402(a)(2)(J)’’
12
and inserting, ‘‘to the extent that a child is a member of
13
a household under the supplemental nutrition assistance
14
program’’.
15
(e)
ENSURING
PROPER
SCREENING.—Section
16
11(e)(2)(B) of the Food and Nutrition Act of 2008 (7
17
U.S.C. 2020(e)(2)(B)) is amended—
18
(1) by redesignating clauses (vi) and (vii) as
19
clauses (vii) and (viii); and
20
(2) by inserting after clause (v) the following:
21
‘‘(vi) shall provide a method for imple-
22
menting section 421 of the Personal Re-
23
sponsibility and Work Opportunity Rec-
24
onciliation Act of 1996 (8 U.S.C. 1631)
25
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•HR 5942 IH
that does not require any unnecessary in-
1
formation from persons who may be ex-
2
empt from that provision;’’.
3
SEC. 503. REPEAL OF DENIAL OF BENEFITS.
4
Section 115 of the Personal Responsibility and Work
5
Opportunity Reconciliation Act of 1996 (21 U.S.C. 862a)
6
is amended—
7
(1) in subsection (a), by striking paragraph (2);
8
(2) in subsection (b), by striking paragraph (2);
9
and
10
(3) in subsection (e), by striking paragraph (2).
11
SEC. 504. BIRTH DEFECTS PREVENTION, RISK REDUCTION,
12
AND AWARENESS.
13
(a) IN GENERAL.—The Secretary shall establish and
14
implement a birth defects prevention and public awareness
15
program, consisting of the activities described in sub-
16
sections (c) and (d).
17
(b) DEFINITIONS.—In this section:
18
(1) The term ‘‘maternal’’ refers to persons who
19
are pregnant or breastfeeding of all gender identi-
20
ties.
21
(2) The term ‘‘pregnancy and breastfeeding in-
22
formation services’’ includes only—
23
(A) information services to provide accu-
24
rate, evidence-based, clinical information re-
25
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334
•HR 5942 IH
garding maternal exposures during pregnancy
1
that may be associated with birth defects or
2
other health risks, such as exposures to medica-
3
tions, chemicals, infections, foodborne patho-
4
gens, illnesses, nutrition, or lifestyle factors;
5
(B) information services to provide accu-
6
rate, evidence-based, clinical information re-
7
garding maternal exposures during breast-
8
feeding that may be associated with health risks
9
to a breast-fed infant, such as exposures to
10
medications, chemicals, infections, foodborne
11
pathogens, illnesses, nutrition, or lifestyle fac-
12
tors;
13
(C) the provision of accurate, evidence-
14
based information weighing risks of exposures
15
during breastfeeding against the benefits of
16
breastfeeding; and
17
(D) the provision of information described
18
in subparagraph (A), (B), or (C) through coun-
19
selors, Web sites, fact sheets, telephonic or elec-
20
tronic communication, community outreach ef-
21
forts, or other appropriate means.
22
(3) The term ‘‘Secretary’’ means the Secretary
23
of Health and Human Services, acting through the
24
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•HR 5942 IH
Director of the Centers for Disease Control and Pre-
1
vention.
2
(c) NATIONWIDE MEDIA CAMPAIGN.—In carrying out
3
subsection (a), the Secretary shall conduct or support a
4
nationwide media campaign to increase awareness among
5
health care providers and at-risk populations about preg-
6
nancy and breastfeeding information services.
7
(d) GRANTS FOR PREGNANCY AND BREASTFEEDING
8
INFORMATION SERVICES.—
9
(1) IN GENERAL.—In carrying out subsection
10
(a), the Secretary shall award grants to State or re-
11
gional agencies or organizations for any of the fol-
12
lowing:
13
(A) INFORMATION SERVICES.—The provi-
14
sion of, or campaigns to increase awareness
15
about, pregnancy and breastfeeding information
16
services.
17
(B) SURVEILLANCE AND RESEARCH.—The
18
conduct or support of—
19
(i) surveillance of or research on—
20
(I) maternal exposures and ma-
21
ternal health conditions that may in-
22
fluence the risk of birth defects, pre-
23
maturity, or other adverse pregnancy
24
outcomes; and
25
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•HR 5942 IH
(II) maternal exposures that may
1
influence health risks to a breastfed
2
infant; or
3
(ii) networking to facilitate surveil-
4
lance or research described in this sub-
5
paragraph.
6
(2) PREFERENCE FOR CERTAIN STATES.—The
7
Secretary, in making any grant under this sub-
8
section, shall give preference to States, otherwise
9
equally qualified, that have a pregnancy and
10
breastfeeding information service in place.
11
(3) MATCHING
FUNDS.—The Secretary may
12
only award a grant under this subsection to a State
13
or regional agency or organization that agrees, with
14
respect to the costs to be incurred in carrying out
15
the grant activities, to make available (directly or
16
through donations from public or private entities)
17
non-Federal funds toward such costs in an amount
18
equal to not less than 25 percent of the amount of
19
the grant.
20
(4) COORDINATION.—The Secretary shall en-
21
sure that activities funded through a grant under
22
this subsection are coordinated, to the maximum ex-
23
tent practicable, with other birth defects prevention
24
and environmental health activities of the Federal
25
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•HR 5942 IH
Government, including with respect to pediatric envi-
1
ronmental health specialty units and children’s envi-
2
ronmental health centers.
3
(e) EVALUATION.—In furtherance of the program
4
under subsection (a), the Secretary shall provide for an
5
evaluation of pregnancy and breastfeeding information
6
services to identify efficient and effective models of—
7
(1) providing information;
8
(2) raising awareness and increasing knowledge
9
about birth defects prevention measures and tar-
10
geting education to at-risk groups;
11
(3) modifying risk behaviors; or
12
(4) other outcome measures as determined ap-
13
propriate by the Secretary.
14
(f) AUTHORIZATION OF APPROPRIATIONS.—To carry
15
out this section, there are authorized to be appropriated
16
$5,000,000 for fiscal year 2019, $6,000,000 for fiscal year
17
2020, $7,000,000 for fiscal year 2021, $8,000,000 for fis-
18
cal year 2022, and $9,000,000 for fiscal year 2023.
19
SEC. 505. PREVENTING MATERNAL DEATHS.
20
(a) PROGRAM AUTHORIZED.—
21
(1) IN GENERAL.—The Secretary of Health and
22
Human Services, through the Director of the Cen-
23
ters for Disease Control and Prevention, shall estab-
24
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•HR 5942 IH
lish a grant program under which the Secretary may
1
make grants to States for the purpose of—
2
(A) carrying out the activities described in
3
subsection (b)(1);
4
(B) establishing and sustaining a State
5
maternal mortality review committee, in accord-
6
ance with subsection (b)(2);
7
(C) ensuring that the State department of
8
health carries out the activities described in
9
subsection (b)(3);
10
(D) disseminating the case abstraction
11
form developed under subsection (c); and
12
(E) providing for the public disclosure of
13
information, in accordance with subsection (d).
14
(2) CRITERIA.—The Secretary shall establish
15
criteria for determining eligibility for, and the
16
amount of a grant awarded to, a State under para-
17
graph (1). Such criteria shall provide that in the
18
case of a State that receives a grant under para-
19
graph (1) for a fiscal year and is determined by the
20
Secretary to have not used such grant in accordance
21
with this section, such State may not be eligible for
22
such a grant for any subsequent fiscal year.
23
(b) USE OF FUNDS.—
24
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•HR 5942 IH
(1) REVIEW
OF
PREGNANCY-RELATED
AND
1
PREGNANCY-ASSOCIATED DEATHS.—With respect to
2
a State that receives a grant under subsection
3
(a)(1), the following shall apply:
4
(A) PROCESS FOR MANDATORY REPORTING
5
OF PREGNANCY-RELATED AND PREGNANCY-AS-
6
SOCIATED DEATHS.—
7
(i) IN GENERAL.—The State, through
8
the State maternal mortality review com-
9
mittee established under subsection (a)(1),
10
shall develop a process that provides for
11
mandatory and confidential case reporting
12
to the State department of health by indi-
13
viduals and entities described in clause (ii)
14
with respect to pregnancy-related and
15
pregnancy-associated deaths.
16
(ii) INDIVIDUALS AND ENTITIES DE-
17
SCRIBED.—Individuals and entities de-
18
scribed in this clause include each of the
19
following:
20
(I) Health care professionals.
21
(II) Medical examiners.
22
(III) Medical coroners.
23
(IV) Hospitals.
24
(V) Birth centers.
25
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•HR 5942 IH
(VI) Other health care facilities.
1
(VII) Other individuals respon-
2
sible for completing death records.
3
(VIII) Other appropriate individ-
4
uals or entities specified by the Sec-
5
retary.
6
(B) PROCESS FOR VOLUNTARY REPORTING
7
OF PREGNANCY-RELATED AND PREGNANCY-AS-
8
SOCIATED
DEATHS.—The State, through the
9
State maternal mortality review committee es-
10
tablished under subsection (a)(1), shall develop
11
a process that provides for voluntary and con-
12
fidential case reporting to the State department
13
of health by family members of the deceased
14
and other individuals on possible pregnancy-re-
15
lated and pregnancy-associated deaths. Such
16
process shall include—
17
(i) making publicly available on the
18
website of the State department of health
19
a telephone number, Internet web link, and
20
email address for such reporting; and
21
(ii) publicizing to local professional or-
22
ganizations, community organizations, and
23
social services agencies the availability of
24
the telephone number, Internet web link,
25
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•HR 5942 IH
and email address made available under
1
clause (i).
2
(C) IDENTIFICATION
OF
PREGNANCY-RE-
3
LATED
AND
PREGNANCY-ASSOCIATED
DEATHS
4
BY STATE VITAL STATISTICS UNIT.—The State,
5
through the vital statistics unit of the State,
6
shall annually identify pregnancy-related and
7
pregnancy-associated deaths occurring in such
8
State in the year involved by—
9
(i) matching each death record of a
10
person in such year to a live birth certifi-
11
cate or an infant death record for the pur-
12
pose of identifying deaths of persons that
13
occurred during pregnancy and within one
14
year after the end of a pregnancy;
15
(ii) identifying each death of a person
16
reported during such year as having an un-
17
derlying or contributing cause of death re-
18
lated to pregnancy, regardless of the time
19
that has passed between the end of the
20
pregnancy and the death;
21
(iii) collecting data from medical ex-
22
aminer and coroner reports; and
23
(iv) using any other method the State
24
may devise to identify maternal deaths
25
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•HR 5942 IH
such as reviewing a random sample of re-
1
ported deaths of persons who could have
2
been pregnant to ascertain cases of preg-
3
nancy-related
and
pregnancy-associated
4
deaths that are not discernable from a re-
5
view of death records alone.
6
For purposes of effectively collecting and ob-
7
taining data on pregnancy-related and preg-
8
nancy-associated deaths, the State shall adopt
9
the most recent standardized birth and death
10
records, as issued by the National Center for
11
Vital Health Statistics, including the rec-
12
ommended checkbox section for pregnancy on
13
each death record.
14
(D) CASE INVESTIGATION AND DEVELOP-
15
MENT OF CASE SUMMARIES.—
16
(i) IN
GENERAL.—Following the re-
17
ceipt of reports by the State department of
18
health pursuant to subparagraph (A) or
19
(B) and the collection of cases of preg-
20
nancy-related
and
pregnancy-associated
21
deaths by the vital statistics unit of the
22
State under subparagraph (C), the State,
23
through the State maternal mortality re-
24
view committee established under sub-
25
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343
•HR 5942 IH
section (a)(1), shall investigate each case,
1
using the case abstraction form described
2
in subsection (c), and prepare a de-identi-
3
fied case summary for each case, which
4
shall be reviewed by the committee and in-
5
cluded in applicable reports. The State de-
6
partment of health or vital statistics unit
7
of the State, as the case may be, shall pro-
8
vide the State maternal mortality review
9
committee with access to the information
10
collected pursuant to subparagraph (A) or
11
(B), or under subparagraph (C), as nec-
12
essary to carry out this subparagraph.
13
(ii) MANDATORY DATA AND INFORMA-
14
TION.—Each case investigation under this
15
subparagraph shall, subject to availability,
16
include data and information obtained
17
through—
18
(I) medical examiner and autopsy
19
reports of the person involved;
20
(II) medical records of the per-
21
son, including such records related to
22
health care prior to pregnancy, pre-
23
natal and postnatal care, labor and
24
delivery care, emergency room care,
25
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•HR 5942 IH
hospital discharge records, and any
1
care delivered up until the time of
2
death of the person;
3
(III) oral and written interviews
4
of individuals directly involved in the
5
maternal care of the person during
6
and immediately following the preg-
7
nancy of the person, including health
8
care, mental health, and social service
9
providers, as applicable;
10
(IV) socioeconomic and other rel-
11
evant background information about
12
the person;
13
(V) any information collected
14
under subparagraph (C)(i); and
15
(VI) any other information on
16
the cause of death of the person, such
17
as social services and child welfare re-
18
ports.
19
(iii) DISCRETIONARY
DATA
AND
IN-
20
FORMATION.—Each
case
investigation
21
under this subparagraph may include data
22
and information obtained through oral or
23
written interviews of the family of the per-
24
son.
25
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•HR 5942 IH
(2) STATE
MATERNAL
MORTALITY
REVIEW
1
COMMITTEES.—
2
(A) MANDATORY
ACTIVITIES.—A State
3
maternal mortality review committee established
4
under subsection (a)(1) shall carry out the fol-
5
lowing activities:
6
(i) Develop the processes described in
7
subparagraphs (A) and (B) of paragraph
8
(1).
9
(ii) Review the data and information
10
collected by the vital statistics unit of the
11
State under paragraph (1)(C) regarding
12
pregnancy-related and pregnancy-associ-
13
ated deaths to identify trends, patterns,
14
and disparities in adverse outcomes and
15
address medical, non-medical, and system-
16
related factors that may have contributed
17
to such pregnancy-related and pregnancy-
18
associated deaths and disparities.
19
(iii) Carry out the activities described
20
in paragraph (1)(D).
21
(iv) Develop recommendations, based
22
on the case summaries prepared under
23
paragraph (1)(D) and the data and infor-
24
mation collected under paragraph (1)(C),
25
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•HR 5942 IH
to improve maternal care, social and health
1
services, and public health policy and insti-
2
tutions, including improving access to ma-
3
ternal care and social and health services
4
and identifying disparities in maternal care
5
and outcomes.
6
(B) DISCRETIONARY ACTIVITIES.—
7
(i) IN GENERAL.—A State maternal
8
mortality review committee established
9
under subsection (a)(1) may, while subject
10
to confidentiality requirements, present
11
findings and recommendations based on
12
the case summaries prepared under para-
13
graph (1)(D) directly to a health care facil-
14
ity or its local or State professional organi-
15
zation for the purpose of—
16
(I) instituting policy changes,
17
educational activities, and improve-
18
ments in the quality of care provided
19
by the facility; and
20
(II) exploring and forming re-
21
gional collaborations.
22
(ii) INVESTIGATION OF CASES OF SE-
23
VERE
MATERNAL
MORBIDITY.—A State
24
maternal mortality review committee may
25
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•HR 5942 IH
investigate cases of severe maternal mor-
1
bidity and any such investigation may in-
2
clude
data
and
information
obtained
3
through—
4
(I) identified patient registries;
5
or
6
(II) oral or written interviews of
7
the person concerned and the family
8
of such person.
9
(C) COMPOSITION
OF
STATE
MATERNAL
10
MORTALITY REVIEW COMMITTEES.—
11
(i) IN GENERAL.—A State maternal
12
mortality review committee established
13
under subsection (a)(1) shall be multidisci-
14
plinary and diverse. Membership on the
15
State maternal mortality review committee
16
shall be reviewed annually by the State de-
17
partment of health to ensure that member-
18
ship representation requirements are being
19
fulfilled in accordance with this subpara-
20
graph.
21
(ii) REQUIRED
MEMBERSHIP.—Each
22
State maternal mortality review committee
23
shall include—
24
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•HR 5942 IH
(I) representatives from medical
1
specialties providing care to pregnant
2
and postpartum patients, including
3
obstetricians
(including
generalists
4
and maternal fetal medicine special-
5
ists) and family practice physicians;
6
(II) certified nurse midwives, cer-
7
tified midwives, and advanced practice
8
nurses;
9
(III)
hospital-based
registered
10
nurses;
11
(IV) representatives of the ma-
12
ternal and child health department of
13
the State department of health;
14
(V) social service providers or so-
15
cial workers, including those with ex-
16
perience working with communities di-
17
verse with respect to race, ethnicity,
18
and limited-English proficiency;
19
(VI) chief medical examiners or
20
designees;
21
(VII)
facility
representatives,
22
such as from hospitals or birth cen-
23
ters;
24
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•HR 5942 IH
(VIII) patient advocates, commu-
1
nity maternal health organizations,
2
and minority advocacy groups that
3
represent those diverse racial and eth-
4
nic communities within the State that
5
are the most affected by pregnancy-
6
related or pregnancy-associated deaths
7
and by a lack of access to maternal
8
health care services; and
9
(IX) representatives of the de-
10
partments of health or public health
11
of major cities in the State.
12
(iii) DISCRETIONARY MEMBERSHIP.—
13
Each State maternal mortality review com-
14
mittee may also include representatives
15
from other relevant academic, health, so-
16
cial service, or policy professions or com-
17
munity organizations on an ongoing basis,
18
or as needed, as determined beneficial by
19
the committee, including—
20
(I) anesthesiologists;
21
(II) emergency physicians;
22
(III) pathologists;
23
(IV) epidemiologists;
24
(V) intensivists;
25
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(VI) nutritionists;
1
(VII) mental health professionals;
2
(VIII) substance use disorder
3
treatment specialists;
4
(IX) representatives of relevant
5
patient and provider advocacy groups;
6
(X) academics;
7
(XI) paramedics; and
8
(XII) risk management special-
9
ists.
10
(iv) STAFF.—Staff of each State ma-
11
ternal mortality review committee shall in-
12
clude—
13
(I) vital health statisticians, ma-
14
ternal child health statisticians, or
15
epidemiologists;
16
(II) a coordinator of the State
17
maternal mortality review committee,
18
to be designated by the State; and
19
(III) administrative staff.
20
(D) OPTION FOR STATES TO ESTABLISH
21
REGIONAL MATERNAL MORTALITY REVIEW COM-
22
MITTEES.—States may choose to partner with
23
one or more neighboring States to carry out the
24
activities required of a State maternal mortality
25
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•HR 5942 IH
review committee under this section. In such a
1
case, with respect to the States in such a part-
2
nership, any requirement under this section re-
3
lating to the reporting of information related to
4
such activities shall be deemed to be fulfilled by
5
each such State if a single such report is sub-
6
mitted for the partnership.
7
(E) TREATMENT AS PUBLIC HEALTH AU-
8
THORITY FOR PURPOSES OF HIPAA.—For pur-
9
poses of applying HIPAA privacy and security
10
law (as defined in section 3009(a)(2) of the
11
Public Health Service Act (42 U.S.C. 300jj–
12
19)), each State maternal mortality review com-
13
mittee and regional maternal mortality review
14
committee established under subsection (a)(1)
15
or subsection (b)(2)(D), as the case may be,
16
shall be deemed to be a public health authority
17
described in section 164.501 (and referenced in
18
section 164.512(b)(1)(i)) of title 45, Code of
19
Federal Regulations (or any successor regula-
20
tion), carrying out public health activities and
21
purposes
described
in
such
section
22
164.512(b)(1)(i) (or any such successor regula-
23
tion).
24
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(3) STATE DEPARTMENT OF HEALTH ACTIVI-
1
TIES.—With respect to a State that receives a grant
2
under subsection (a)(1), the State department of
3
health shall—
4
(A) in consultation with the State maternal
5
mortality review committee and in conjunction
6
with relevant professional organizations and pa-
7
tient advocacy organizations, develop a plan for
8
ongoing health care provider education, based
9
on the findings and recommendations of the
10
committee, in order to improve the quality of
11
maternal care; and
12
(B) take steps to widely disseminate the
13
findings and recommendations of the State ma-
14
ternal mortality review committee and imple-
15
ment the recommendations of the committee.
16
(c) CASE ABSTRACTION FORM.—
17
(1) DISSEMINATION.—The Director of the Cen-
18
ters for Disease Control and Prevention shall dis-
19
seminate a uniform case abstraction form to States
20
and State maternal mortality review committees for
21
the purpose of—
22
(A) ensuring that the data and information
23
collected and reviewed by such committees can
24
be pooled for review by the Department of
25
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•HR 5942 IH
Health and Human Services and its agencies;
1
and
2
(B) preserving the uniformity of the infor-
3
mation collected for Federal public health pur-
4
poses.
5
(2) PERMISSIBLE STATE MODIFICATION.—Each
6
State may modify the form developed under para-
7
graph (1) for implementation and use by such State
8
or by the State maternal mortality review committee
9
of such State by including on such form additional
10
information to be collected, but may not alter the
11
standard questions on such form, in order to ensure
12
that the information can be collected and reviewed
13
centrally at the Federal level.
14
(d) PUBLIC DISCLOSURE OF INFORMATION.—
15
(1) IN GENERAL.—For fiscal year 2019, or a
16
subsequent fiscal year, each State receiving a grant
17
under this section for such year shall, subject to
18
paragraph (3), provide for the public disclosure, and
19
submission to the information clearinghouse estab-
20
lished under paragraph (2), of the information in-
21
cluded in the report of the State under subsection
22
(f)(1) for such year.
23
(2) INFORMATION CLEARINGHOUSE.—The Sec-
24
retary shall establish an information clearinghouse,
25
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•HR 5942 IH
to be administered by the Director of the Centers for
1
Disease Control and Prevention, that will maintain
2
findings and recommendations submitted pursuant
3
to paragraph (1) and provide such findings and rec-
4
ommendations for public review and research pur-
5
poses by State departments of health, State mater-
6
nal mortality review committees, health providers
7
and institutions, and national patient and provider
8
advocacy groups.
9
(3) CONFIDENTIALITY
OF
INFORMATION.—In
10
no case may any individually identifiable health in-
11
formation be provided to the public, or submitted to
12
the information clearinghouse, under this subsection.
13
(e) CONFIDENTIALITY OF PROCEEDINGS OF STATE
14
MATERNAL MORTALITY REVIEW COMMITTEES.—
15
(1) IN GENERAL.—All proceedings and activi-
16
ties of a State maternal mortality review committee
17
established under subsection (a)(1), opinions of
18
members of such a committee formed as a result of
19
such proceedings and activities, and records ob-
20
tained, created, or maintained pursuant to this sec-
21
tion, including records of interviews, written reports,
22
and statements procured by the Department of
23
Health and Human Services or by any other person,
24
agency, or organization acting jointly with the De-
25
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•HR 5942 IH
partment, in connection with morbidity and mor-
1
tality reviews under this section, shall be confidential
2
and may not be subject to discovery, subpoena, or
3
introduction into evidence in any civil, criminal, leg-
4
islative, or other proceeding. Such records shall not
5
be open to public inspection.
6
(2)
TESTIMONY
OF
MEMBERS
OF
COM-
7
MITTEE.—
8
(A) IN
GENERAL.—Members of a State
9
maternal mortality review committee established
10
under subsection (a)(1) may not be questioned
11
in any civil, criminal, legislative, or other pro-
12
ceeding regarding information presented in, or
13
opinions formed as a result of, a meeting or
14
communication of the committee.
15
(B) CLARIFICATION.—Nothing in this sub-
16
section may be construed to prevent a member
17
of a State maternal mortality review committee
18
established under subsection (a)(1) from testi-
19
fying regarding information that was obtained
20
independent of such member’s participation on
21
the committee, or public information.
22
(3) AVAILABILITY OF INFORMATION FOR RE-
23
SEARCH PURPOSES.—Nothing in this subsection may
24
prohibit a State maternal mortality review com-
25
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mittee established under subsection (a)(1) or the De-
1
partment of Health and Human Services from pub-
2
lishing statistical compilations and research reports
3
that—
4
(A) are based on confidential information,
5
relating to morbidity and mortality reviews
6
under this section; and
7
(B) do not contain identifying information
8
or any other information that could be used to
9
ultimately identify the individuals concerned.
10
(f) REPORTS.—
11
(1) STATE REPORTS.—Not later than one year
12
after the end of fiscal year 2019, and each subse-
13
quent fiscal year, each State maternal mortality re-
14
view committee established under subsection (a)(1)
15
and receiving a grant under this section for such
16
year, shall submit to the Director of the Centers for
17
Disease Control and Prevention a report on the find-
18
ings and recommendations of such committee and
19
information on the implementation of such rec-
20
ommendations during such year.
21
(2) ANNUAL
REPORTS
TO
CONGRESS.—Not
22
later than 60 days after the deadline for State re-
23
ports under paragraph (1) for fiscal year 2019, and
24
each subsequent fiscal year, the Secretary of Health
25
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•HR 5942 IH
and Human Services shall submit to Congress a re-
1
port on—
2
(A) the findings, recommendations, and
3
implementation information submitted by any
4
State pursuant to paragraph (1); and
5
(B) the status of pregnancy-related and
6
pregnancy-associated deaths in the United
7
States, including recommendations on methods
8
to prevent such deaths in the United States.
9
(g) DEFINITIONS.—In this section:
10
(1) The term ‘‘pregnancy-associated death’’
11
means the death of a person while pregnant or dur-
12
ing the one-year period following the date of the end
13
of pregnancy, irrespective of the cause of such death.
14
(2) The term ‘‘pregnancy-related death’’ means
15
the death of a person while pregnant or during the
16
one-year period following the date of the end of
17
pregnancy, irrespective of the duration of the preg-
18
nancy, from any cause related to, or aggravated by,
19
the pregnancy or its management, excluding any ac-
20
cidental or incidental cause.
21
(3) The term ‘‘severe maternal morbidity’’
22
means the physical and psychological conditions that
23
result from, or are aggravated by, pregnancy and
24
have an adverse effect on the health of a person.
25
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(4) The term ‘‘State’’ means each of the 50
1
States, the District of Columbia, and each of the
2
territories.
3
(5) The term ‘‘vital statistics unit’’ means the
4
entity that is responsible for maintaining vital
5
records for a State, including official records of live
6
births, deaths, fetal deaths, marriages, divorces, and
7
annulments.
8
(h) AUTHORIZATION OF APPROPRIATIONS.—There is
9
authorized to be appropriated to carry out this section
10
$7,000,000 for each of fiscal years 2019 through 2023.
11
SEC.
506.
ELIMINATING
DISPARITIES
IN
MATERNITY
12
HEALTH OUTCOMES.
13
Part B of title III of the Public Health Service Act
14
is amended by inserting after section 317V of such Act,
15
as added, the following new section:
16
‘‘SEC. 317W. ELIMINATING DISPARITIES IN MATERNAL
17
HEALTH OUTCOMES.
18
‘‘(a) IN GENERAL.—The Secretary shall, in consulta-
19
tion with relevant national stakeholder organizations, such
20
as national medical specialty organizations, national ma-
21
ternal child health organizations, national patient advo-
22
cacy organizations, and national health disparity organiza-
23
tions, carry out the following activities to eliminate dis-
24
parities in maternal health outcomes:
25
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‘‘(1) Conduct research into the determinants
1
and the distribution of disparities in maternal care,
2
health risks, and health outcomes, and improve the
3
capacity of the performance measurement infrastruc-
4
ture to measure such disparities.
5
‘‘(2) Expand access to health care services, re-
6
sources, and information that have been dem-
7
onstrated to improve the quality and outcomes of
8
maternity care for vulnerable populations.
9
‘‘(3) Establish a demonstration project to com-
10
pare the effectiveness of interventions to reduce dis-
11
parities in maternity services and outcomes and to
12
implement and assess effective interventions.
13
‘‘(b) SCOPE AND SELECTION OF STATES FOR DEM-
14
ONSTRATION
PROJECT.—The
demonstration
project
15
under subsection (a)(3) shall be conducted in no more
16
than 8 States, which shall be selected by the Secretary
17
based on—
18
‘‘(1) applications submitted by States, which
19
specify which regions and populations the State in-
20
volved will serve under the demonstration project;
21
‘‘(2) criteria designed by the Secretary to en-
22
sure that, as a whole, the demonstration project is,
23
to the greatest extent possible, representative of the
24
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•HR 5942 IH
demographic and geographic composition of commu-
1
nities most affected by disparities;
2
‘‘(3) criteria designed by the Secretary to en-
3
sure that a variety of models are tested through the
4
demonstration project and that such models include
5
interventions that have an existing evidence base for
6
effectiveness; and
7
‘‘(4) criteria designed by the Secretary to en-
8
sure that the demonstration projects and models will
9
be carried out in consultation with local and regional
10
provider organizations, such as community health
11
centers, hospital systems, and medical societies rep-
12
resenting providers of maternity services.
13
‘‘(c) DURATION
OF DEMONSTRATION PROJECT.—
14
The demonstration project under subsection (a)(3) shall
15
begin on January 1, 2019, and end on December 31,
16
2022.
17
‘‘(d) GRANTS FOR EVALUATION AND MONITORING.—
18
The Secretary may make grants to States and health care
19
providers participating in the demonstration project under
20
subsection (a)(3) for the purpose of collecting data nec-
21
essary for the evaluation and monitoring of such project.
22
‘‘(e) REPORTS.—
23
‘‘(1) STATE REPORTS.—Each State that par-
24
ticipates in the demonstration project under sub-
25
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section (a)(3) shall report to the Secretary, in a
1
time, form, and manner specified by the Secretary,
2
the data necessary to—
3
‘‘(A) monitor the—
4
‘‘(i) outcomes of the project;
5
‘‘(ii) costs of the project; and
6
‘‘(iii) quality of maternity care pro-
7
vided under the project; and
8
‘‘(B) evaluate the rationale for the selec-
9
tion of the items and services included in any
10
bundled payment made by the State under the
11
project.
12
‘‘(2) FINAL REPORT.—Not later than December
13
31, 2022, the Secretary shall submit to Congress a
14
report on the results of the demonstration project
15
under subsection (a)(3).’’.
16
SEC. 507. DECREASING THE RISK FACTORS FOR SUDDEN
17
UNEXPECTED INFANT DEATH AND SUDDEN
18
UNEXPLAINED DEATH IN CHILDHOOD.
19
(a) ESTABLISHMENT.—The Secretary of Health and
20
Human Services, acting through the Administrator of the
21
Health Resources and Services Administration and in con-
22
sultation with the Director of the Centers for Disease Con-
23
trol and Prevention and the Director of the National Insti-
24
tutes of Health (in this section referred to as the ‘‘Sec-
25
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•HR 5942 IH
retary’’), shall establish and implement a culturally and
1
linguistically competent public health awareness and edu-
2
cation campaign to provide information that is focused on
3
decreasing the risk factors for sudden unexpected infant
4
death and sudden unexplained death in childhood, includ-
5
ing educating individuals about safe sleep environments,
6
sleep positions, and reducing exposure to smoking during
7
pregnancy and after birth.
8
(b) TARGETED POPULATIONS.—The campaign under
9
subsection (a) shall be designed to reduce health dispari-
10
ties through the targeting of populations with high rates
11
of sudden unexpected infant death and sudden unex-
12
plained death in childhood.
13
(c) CONSULTATION.—In establishing and imple-
14
menting the campaign under subsection (a), the Secretary
15
shall consult with national organizations representing
16
health care providers, including nurses and physicians,
17
parents, child care providers, children’s advocacy and safe-
18
ty organizations, maternal and child health programs, nu-
19
trition professionals focusing on women, infants, and chil-
20
dren, and other individuals and groups determined nec-
21
essary by the Secretary for such establishment and imple-
22
mentation.
23
(d) GRANTS.—
24
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(1) IN
GENERAL.—In carrying out the cam-
1
paign under subsection (a), the Secretary shall
2
award grants to national organizations, State and
3
local health departments, and community-based or-
4
ganizations for the conduct of education and out-
5
reach programs for nurses, parents, child care pro-
6
viders, public health agencies, and community orga-
7
nizations.
8
(2) APPLICATION.—To be eligible to receive a
9
grant under paragraph (1), an entity shall submit to
10
the Secretary an application at such time, in such
11
manner, and containing such information as the Sec-
12
retary may require.
13
(e) AUTHORIZATION OF APPROPRIATIONS.—There is
14
authorized to be appropriated to carry out this section
15
such sums as may be necessary for each of fiscal years
16
2019 through 2023.
17
SEC.
508.
REDUCING
UNINTENDED
TEENAGE
PREG-
18
NANCIES.
19
Title III of the Public Health Service Act (42 U.S.C.
20
241 et seq.) is amended by adding at the end the following
21
new part:
22
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‘‘PART W—YOUTH ACCESS TO SEXUAL HEALTH
1
SERVICES
2
‘‘SEC. 399OO. AUTHORIZATION OF GRANTS TO SUPPORT
3
THE ACCESS OF MARGINALIZED YOUTH TO
4
SEXUAL HEALTH SERVICES.
5
‘‘(a) GRANTS.—The Secretary of Health and Human
6
Services may award grants on a competitive basis to eligi-
7
ble entities to support the access of marginalized youth
8
to sexual health services.
9
‘‘(b) USE
OF FUNDS.—An eligible entity that is
10
awarded a grant under subsection (a) may use the funds
11
to—
12
‘‘(1) provide medically accurate and complete
13
and age-, developmentally, and culturally appro-
14
priate sexual health information to marginalized
15
youth, including information on how to access sexual
16
health services;
17
‘‘(2) promote effective communication regarding
18
sexual health among marginalized youth;
19
‘‘(3) promote and support better health, edu-
20
cation, and economic opportunities for school-age
21
parents; and
22
‘‘(4)
train
individuals
who
work
with
23
marginalized youth to promote—
24
‘‘(A) the prevention of unintended preg-
25
nancy;
26
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‘‘(B) the prevention of sexually transmitted
1
infections,
including
the
human
immuno-
2
deficiency virus (HIV);
3
‘‘(C) healthy relationships; and
4
‘‘(D) the development of safe and sup-
5
portive environments.
6
‘‘(c) APPLICATION.—To be awarded a grant under
7
subsection (a), an eligible entity shall submit an applica-
8
tion to the Secretary at such time, in such manner, and
9
containing such information as the Secretary may require.
10
‘‘(d) PRIORITY.—In awarding grants under sub-
11
section (a), the Secretary shall give priority to eligible enti-
12
ties—
13
‘‘(1) with a history of supporting the access of
14
marginalized youth to sexuality education or sexual
15
health services; and
16
‘‘(2) that plan to serve marginalized youth that
17
are not served by Federal adolescent programs for
18
the prevention of pregnancy, HIV, and other sexu-
19
ally transmitted infections.
20
‘‘(e) REQUIREMENTS.—The Secretary may not award
21
a grant under subsection (a) to an eligible entity unless—
22
‘‘(1) such eligible entity has formed a partner-
23
ship with a community organization; and
24
‘‘(2) such eligible entity agrees—
25
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‘‘(A) to employ a scientifically effective
1
strategy;
2
‘‘(B) that all information provided to
3
marginalized youth will be—
4
‘‘(i) age- and developmentally appro-
5
priate;
6
‘‘(ii) medically accurate and complete;
7
‘‘(iii) scientifically based; and
8
‘‘(iv) provided in the language and
9
cultural context that is most appropriate
10
for the individuals served by the eligible
11
entity; and
12
‘‘(C) that for each year the eligible entity
13
receives grant funds under subsection (a), the
14
eligible entity will submit to the Secretary an
15
annual report that includes—
16
‘‘(i) the use of grant funds by the eli-
17
gible entity;
18
‘‘(ii) how the use of grant funds has
19
increased the access of marginalized youth
20
to sexual health services; and
21
‘‘(iii) such other information as the
22
Secretary may require.
23
‘‘(f) PUBLICATION AND EVALUATIONS.—
24
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‘‘(1) EVALUATIONS.—Not less than once every
1
two years after the date of the enactment of this
2
Act, the Secretary shall evaluate the effectiveness of
3
whichever of the following is greater:
4
‘‘(A) Eight grants awarded under sub-
5
section (a).
6
‘‘(B) Ten percent of the grants awarded
7
under subsection (a).
8
‘‘(2) PUBLICATION.—The Secretary shall make
9
available to the public—
10
‘‘(A) the evaluations required under para-
11
graph (1); and
12
‘‘(B) the reports required under subsection
13
(e)(2)(C).
14
‘‘(g) LIMITATIONS.—No funds made available to an
15
eligible entity under this section may be used by such enti-
16
ty to provide access to sexual health services that—
17
‘‘(1) withhold sexual health-promoting or life-
18
saving information;
19
‘‘(2) are medically inaccurate or have been sci-
20
entifically shown to be ineffective;
21
‘‘(3) promote gender stereotypes;
22
‘‘(4) are insensitive or unresponsive to the
23
needs of young people, including—
24
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‘‘(A) youth with varying gender identities,
1
gender expressions, and sexual orientations;
2
‘‘(B) sexually active youth;
3
‘‘(C) pregnant or parenting youth;
4
‘‘(D) survivors of sexual abuse or assault;
5
and
6
‘‘(E) youth of all physical, developmental,
7
and mental abilities; or
8
‘‘(5) are inconsistent with the ethical impera-
9
tives of medicine and public health.
10
‘‘(h) TRANSFER OF FUNDS.—Any unobligated bal-
11
ance of funds made available under section 510(d) of the
12
Social Security Act (42 U.S.C. 710(d)) (as in effect on
13
the day before the date of the enactment of this Act) are
14
hereby transferred and made available to the Secretary to
15
carry out this Act. The amounts transferred and made
16
available to carry out this Act shall remain available until
17
expended.
18
‘‘(i) DEFINITIONS.—In this section:
19
‘‘(1) COMMUNITY
ORGANIZATION.—The term
20
‘community organization’ includes a State or local
21
health or education agency, public school, youth-fo-
22
cused organization that is faith-based and commu-
23
nity-based, juvenile justice entity, or other organiza-
24
tion that provides confidential and appropriate sexu-
25
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ality
education
or
sexual
health
services
to
1
marginalized youth.
2
‘‘(2) ELIGIBLE ENTITY.—The term ‘eligible en-
3
tity’ includes a State or local health or education
4
agency, public school, nonprofit organization, hos-
5
pital, or an Indian Tribe or Tribal organization (as
6
such terms are defined in section 4 of the Indian
7
Self-Determination and Education Assistance Act
8
(25 U.S.C. 5304)).
9
‘‘(3)
MARGINALIZED
YOUTH.—The
term
10
‘marginalized youth’ means a person under the age
11
of 26 that is disadvantaged by underlying structural
12
barriers and social inequity.
13
‘‘(4) MEDICALLY ACCURATE AND COMPLETE.—
14
The term ‘medically accurate and complete’, when
15
used with respect to information, means information
16
that—
17
‘‘(A) is supported by research and recog-
18
nized as accurate, objective, and complete by
19
leading medical, psychological, psychiatric, or
20
public health organizations and agencies; and
21
‘‘(B) does not withhold any information re-
22
lating to the effectiveness and benefits of cor-
23
rect and consistent use of condoms or other
24
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contraceptives and pregnancy prevention meth-
1
ods.
2
‘‘(5) SCIENTIFICALLY EFFECTIVE STRATEGY.—
3
The term ‘scientifically effective strategy’ means a
4
strategy that—
5
‘‘(A) is widely recognized by leading med-
6
ical and public health agencies as effective in
7
promoting sexual health awareness and healthy
8
behavior; and
9
‘‘(B) either—
10
‘‘(i) has been demonstrated to be ef-
11
fective on the basis of rigorous scientific
12
research; or
13
‘‘(ii) incorporates characteristics of ef-
14
fective programs.
15
‘‘(6) SECRETARY.—The term ‘Secretary’ means
16
the Secretary of Health and Human Services.
17
‘‘(7) SEXUAL
HEALTH
SERVICES.—The term
18
‘sexual health services’ includes—
19
‘‘(A) sexual health information, education,
20
and counseling;
21
‘‘(B) contraception;
22
‘‘(C) emergency contraception;
23
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‘‘(D) condoms and other barrier methods
1
to prevent pregnancy or sexually transmitted in-
2
fections;
3
‘‘(E) routine gynecological care, including
4
human papillomavirus (HPV) vaccines and can-
5
cer screenings;
6
‘‘(F) pre-exposure prophylaxis or post-ex-
7
posure prophylaxis;
8
‘‘(G) mental health services;
9
‘‘(H) sexual assault survivor services; and
10
‘‘(I) other prevention, care, or treatment.’’.
11
SEC. 509. GESTATIONAL DIABETES.
12
Part B of title III of the Public Health Service Act
13
(42 U.S.C. 243 et seq.) is amended by adding after section
14
317H the following:
15
‘‘SEC. 317H–1. GESTATIONAL DIABETES.
16
‘‘(a) UNDERSTANDING
AND MONITORING GESTA-
17
TIONAL DIABETES.—
18
‘‘(1) IN
GENERAL.—The Secretary, acting
19
through the Director of the Centers for Disease
20
Control and Prevention, in consultation with the Di-
21
abetes Mellitus Interagency Coordinating Committee
22
established under section 429 and representatives of
23
appropriate national health organizations, shall de-
24
velop a multisite gestational diabetes research
25
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project within the diabetes program of the Centers
1
for Disease Control and Prevention to expand and
2
enhance surveillance data and public health research
3
on gestational diabetes.
4
‘‘(2) AREAS TO BE ADDRESSED.—The research
5
project developed under paragraph (1) shall ad-
6
dress—
7
‘‘(A) procedures to establish accurate and
8
efficient systems for the collection of gestational
9
diabetes data within each State and common-
10
wealth, territory, or possession of the United
11
States;
12
‘‘(B) the progress of collaborative activities
13
with the National Vital Statistics System, the
14
National Center for Health Statistics, and
15
State health departments with respect to the
16
standard birth certificate, in order to improve
17
surveillance of gestational diabetes;
18
‘‘(C) postpartum methods of tracking indi-
19
viduals with gestational diabetes after delivery
20
as well as targeted interventions proven to
21
lower the incidence of type 2 diabetes in that
22
population;
23
‘‘(D) variations in the distribution of diag-
24
nosed and undiagnosed gestational diabetes,
25
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and of impaired fasting glucose tolerance and
1
impaired fasting glucose, within and among
2
groups of pregnant individuals; and
3
‘‘(E) factors and culturally sensitive inter-
4
ventions that influence risks and reduce the in-
5
cidence of gestational diabetes and related com-
6
plications during childbirth, including cultural,
7
behavioral, racial, ethnic, geographic, demo-
8
graphic, socioeconomic, and genetic factors.
9
‘‘(3) REPORT.—Not later than 2 years after the
10
date of the enactment of this section, and annually
11
thereafter, the Secretary shall generate a report on
12
the findings and recommendations of the research
13
project including prevalence of gestational diabetes
14
in the multisite area and disseminate the report to
15
the appropriate Federal and non-Federal agencies.
16
‘‘(b) EXPANSION OF GESTATIONAL DIABETES RE-
17
SEARCH.—
18
‘‘(1) IN GENERAL.—The Secretary shall expand
19
and intensify public health research regarding gesta-
20
tional diabetes. Such research may include—
21
‘‘(A) developing and testing novel ap-
22
proaches for improving postpartum diabetes
23
testing or screening and for preventing type 2
24
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diabetes in individuals who can become preg-
1
nant with a history of gestational diabetes; and
2
‘‘(B) conducting public health research to
3
further understanding of the epidemiologic,
4
socioenvironmental, behavioral, translation, and
5
biomedical factors and health systems that in-
6
fluence the risk of gestational diabetes and the
7
development of type 2 diabetes in individuals
8
who can become pregnant with a history of ges-
9
tational diabetes.
10
‘‘(2) AUTHORIZATION
OF
APPROPRIATIONS.—
11
There is authorized to be appropriated to carry out
12
this subsection $5,000,000 for each of fiscal years
13
2019 through 2023.
14
‘‘(c) DEMONSTRATION GRANTS TO LOWER
THE
15
RATE OF GESTATIONAL DIABETES.—
16
‘‘(1) IN
GENERAL.—The Secretary, acting
17
through the Director of the Centers for Disease
18
Control and Prevention, shall award grants, on a
19
competitive basis, to eligible entities for demonstra-
20
tion projects that implement evidence-based inter-
21
ventions to reduce the incidence of gestational diabe-
22
tes, the recurrence of gestational diabetes in subse-
23
quent pregnancies, and the development of type 2 di-
24
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abetes in individuals who can become pregnant with
1
a history of gestational diabetes.
2
‘‘(2) PRIORITY.—In making grants under this
3
subsection, the Secretary shall give priority to
4
projects focusing on—
5
‘‘(A) helping individuals who can become
6
pregnant who have 1 or more risk factors for
7
developing gestational diabetes;
8
‘‘(B) working with individuals who can be-
9
come pregnant with a history of gestational dia-
10
betes during a previous pregnancy;
11
‘‘(C) providing postpartum care for indi-
12
viduals who can become pregnant with gesta-
13
tional diabetes;
14
‘‘(D) tracking cases where individuals who
15
can become pregnant with a history of gesta-
16
tional diabetes developed type 2 diabetes;
17
‘‘(E) educating mothers with a history of
18
gestational diabetes about the increased risk of
19
their child developing diabetes;
20
‘‘(F) working to prevent gestational diabe-
21
tes and prevent or delay the development of
22
type 2 diabetes in individuals who can become
23
pregnant with a history of gestational diabetes;
24
and
25
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‘‘(G) achieving outcomes designed to assess
1
the efficacy and cost-effectiveness of interven-
2
tions that can inform decisions on long-term
3
sustainability, including third-party reimburse-
4
ment.
5
‘‘(3) APPLICATION.—An eligible entity desiring
6
to receive a grant under this subsection shall submit
7
to the Secretary—
8
‘‘(A) an application at such time, in such
9
manner, and containing such information as the
10
Secretary may require; and
11
‘‘(B) a plan to—
12
‘‘(i) lower the rate of gestational dia-
13
betes during pregnancy; or
14
‘‘(ii) develop methods of tracking indi-
15
viduals who can become pregnant with a
16
history of gestational diabetes and develop
17
effective interventions to lower the inci-
18
dence of the recurrence of gestational dia-
19
betes in subsequent pregnancies and the
20
development of type 2 diabetes.
21
‘‘(4) USES OF FUNDS.—An eligible entity re-
22
ceiving a grant under this subsection shall use the
23
grant funds to carry out demonstration projects de-
24
scribed in paragraph (1), including—
25
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‘‘(A) expanding community-based health
1
promotion education, activities, and incentives
2
focused on the prevention of gestational diabe-
3
tes and development of type 2 diabetes in indi-
4
viduals who can become pregnant with a history
5
of gestational diabetes;
6
‘‘(B) aiding State- and Tribal-based diabe-
7
tes prevention and control programs to collect,
8
analyze, disseminate, and report surveillance
9
data on individuals who can become pregnant
10
with, and at risk for, gestational diabetes, the
11
recurrence of gestational diabetes in subsequent
12
pregnancies, and, for individuals who can be-
13
come pregnant with a history of gestational dia-
14
betes, the development of type 2 diabetes; and
15
‘‘(C) training and encouraging health care
16
providers—
17
‘‘(i) to promote risk assessment, high-
18
quality care, and self-management for ges-
19
tational diabetes and the recurrence of ges-
20
tational diabetes in subsequent preg-
21
nancies; and
22
‘‘(ii) to prevent the development of
23
type 2 diabetes in individuals who can be-
24
come pregnant with a history of gesta-
25
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tional diabetes, and its complications in the
1
practice settings of the health care pro-
2
viders.
3
‘‘(5) REPORT.—Not later than 4 years after the
4
date of the enactment of this section, the Secretary
5
shall prepare and submit to the Congress a report
6
concerning the results of the demonstration projects
7
conducted through the grants awarded under this
8
subsection.
9
‘‘(6) DEFINITION
OF
ELIGIBLE
ENTITY.—In
10
this subsection, the term ‘eligible entity’ means a
11
nonprofit organization (such as a nonprofit academic
12
center or community health center) or a State, Trib-
13
al, or local health agency.
14
‘‘(7) AUTHORIZATION
OF
APPROPRIATIONS.—
15
There is authorized to be appropriated to carry out
16
this subsection $5,000,000 for each of fiscal years
17
2019 through 2023.
18
‘‘(d) POSTPARTUM FOLLOWUP REGARDING GESTA-
19
TIONAL DIABETES.—The Secretary, acting through the
20
Director of the Centers for Disease Control and Preven-
21
tion, shall work with the State- and Tribal-based diabetes
22
prevention and control programs assisted by the Centers
23
to encourage postpartum followup after gestational diabe-
24
tes, as medically appropriate, for the purpose of reducing
25
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the incidence of gestational diabetes, the recurrence of
1
gestational diabetes in subsequent pregnancies, the devel-
2
opment of type 2 diabetes in individuals with a history
3
of gestational diabetes, and related complications.’’.
4
SEC. 510. EMERGENCY CONTRACEPTION EDUCATION AND
5
INFORMATION PROGRAMS.
6
(a) EMERGENCY
CONTRACEPTION
PUBLIC
EDU-
7
CATION PROGRAM.—
8
(1)
IN
GENERAL.—The
Secretary,
acting
9
through the Director of the Centers for Disease
10
Control and Prevention, shall develop and dissemi-
11
nate to the public medically accurate and complete
12
information on emergency contraception.
13
(2) DISSEMINATION.—The Secretary may dis-
14
seminate medically accurate and complete informa-
15
tion under paragraph (1) directly or through ar-
16
rangements with nonprofit organizations, community
17
health workers including promotoras, consumer
18
groups, institutions of higher education, clinics, the
19
media, and Federal, State, and local agencies.
20
(3) INFORMATION.—The information dissemi-
21
nated under paragraph (1) shall—
22
(A) include, at a minimum, a description
23
of emergency contraception and an explanation
24
of the use, safety, efficacy, and availability of
25
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such contraception and options for no-copay ac-
1
cess through insurance; and
2
(B) be pilot tested for consumer com-
3
prehension, cultural and linguistic appropriate-
4
ness, and acceptance of the messages across
5
geographically, racially, ethnically, and linguis-
6
tically diverse populations.
7
(b) EMERGENCY
CONTRACEPTION
INFORMATION
8
PROGRAM FOR HEALTH CARE PROVIDERS.—
9
(1)
IN
GENERAL.—The
Secretary,
acting
10
through the Administrator of the Health Resources
11
and Services Administration and in consultation
12
with major medical and public health organizations,
13
shall develop and disseminate to health care pro-
14
viders information on emergency contraception.
15
(2) INFORMATION.—The information dissemi-
16
nated under paragraph (1) shall include, at a min-
17
imum—
18
(A) information describing the use, safety,
19
efficacy, availability of emergency contraception,
20
and options for no-copay access through insur-
21
ance;
22
(B) a recommendation regarding the use of
23
such contraception; and
24
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(C) information explaining how to obtain
1
copies of the information developed under sub-
2
section (a) for distribution to the patients of
3
the providers.
4
(c) DEFINITIONS.—In this section:
5
(1) EMERGENCY
CONTRACEPTION.—The term
6
‘‘emergency contraception’’ means a drug or device
7
(as the terms are defined in section 201 of the Fed-
8
eral Food, Drug, and Cosmetic Act (21 U.S.C. 321))
9
or a drug regimen that—
10
(A) is used postcoitally;
11
(B) prevents pregnancy primarily by pre-
12
venting or delaying ovulation, and does not ter-
13
minate an established pregnancy; and
14
(C) is approved by the Food and Drug Ad-
15
ministration.
16
(2) HEALTH
CARE
PROVIDER.—The term
17
‘‘health care provider’’ means an individual who is li-
18
censed or certified under State law to provide health
19
care services and who is operating within the scope
20
of such license. Such term shall include a phar-
21
macist.
22
(3) INSTITUTION OF HIGHER EDUCATION.—The
23
term ‘‘institution of higher education’’ has the same
24
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meaning given such term in section 101(a) of the
1
Higher Education Act of 1965 (20 U.S.C. 1001(a)).
2
(4) MEDICALLY ACCURATE AND COMPLETE.—
3
The term ‘‘medically accurate and complete’’ means,
4
with respect to information, activities, or services
5
verified or supported by the weight of research con-
6
ducted in compliance with accepted scientific meth-
7
ods and—
8
(A) published in peer-reviewed journals,
9
where applicable; or
10
(B) comprising information that leading
11
professional organizations and agencies with
12
relevant expertise in the field recognize as accu-
13
rate, objective, and complete.
14
(5) SECRETARY.—The term ‘‘Secretary’’ means
15
the Secretary of Health and Human Services.
16
(d) AUTHORIZATION
OF APPROPRIATIONS.—There
17
are authorized to be appropriated to carry out this section
18
such sums as may be necessary for each of the fiscal years
19
2019 through 2023.
20
SEC. 511. COMPREHENSIVE SEX EDUCATION PROGRAMS.
21
(a) PURPOSES; FINDING; SENSE OF CONGRESS.—
22
(1) PURPOSES.—The purposes of this Act are
23
to provide young people with comprehensive sex edu-
24
cation programs that—
25
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(A) promote and uphold the rights of
1
young people to information in order to make
2
healthy decisions about their sexual health;
3
(B) provide the information and skills all
4
young people need to make informed, respon-
5
sible, and healthy decisions in order to become
6
sexually healthy adults and have healthy rela-
7
tionships;
8
(C) provide information about the preven-
9
tion of unintended pregnancy, sexually trans-
10
mitted infections, including HIV, dating vio-
11
lence, sexual assault, bullying, and harassment;
12
and
13
(D) provide resources and information on
14
topics ranging from gender stereotyping and
15
gender roles and stigma and socio-cultural in-
16
fluences surrounding sex and sexuality.
17
(2) FINDING
ON
REQUIRED
RESOURCES.—In
18
order to provide the comprehensive sex education de-
19
scribed in paragraph (1), Congress finds that in-
20
creased resources are required for sex education pro-
21
grams that—
22
(A) substantially incorporate elements of
23
evidence-based programs or characteristics of
24
effective programs;
25
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(B) cover a broad range of topics, includ-
1
ing medically accurate and complete informa-
2
tion that is age and developmentally appro-
3
priate about all the aspects of sex, sexual
4
health, and sexuality;
5
(C) are gender and gender identity-sen-
6
sitive, emphasizing the importance of equality
7
and the social environment for achieving sexual
8
and reproductive health and overall well-being;
9
(D) promote educational achievement, crit-
10
ical thinking, decisionmaking, self-esteem, and
11
self-efficacy;
12
(E) help develop healthy attitudes and in-
13
sights necessary for understanding relationships
14
between oneself and others and society;
15
(F) foster leadership skills and community
16
engagement by—
17
(i) promoting principles of fairness,
18
human dignity, and respect; and
19
(ii) engaging young people as partners
20
in their communities; and
21
(G) are culturally and linguistically appro-
22
priate, reflecting the diverse circumstances and
23
realities of young people.
24
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(3) SENSE OF CONGRESS.—It is the sense of
1
Congress that—
2
(A) federally funded sex education pro-
3
grams should aim to—
4
(i) provide information about a range
5
of human sexuality topics, including—
6
(I) human development, healthy
7
relationships, personal skills;
8
(II) sexual behavior including ab-
9
stinence;
10
(III) sexual health including pre-
11
venting unintended pregnancy;
12
(IV) sexually transmitted infec-
13
tions including HIV; and
14
(V) society and culture;
15
(ii) promote safe and healthy relation-
16
ships;
17
(iii) promote gender equity;
18
(iv) use, and be informed by, the best
19
scientific information available;
20
(v) be culturally appropriate and in-
21
clusive of youth with varying gender identi-
22
ties, gender expressions, and sexual ori-
23
entations;
24
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(vi) be built on characteristics of ef-
1
fective programs;
2
(vii) expand the existing body of re-
3
search on comprehensive sex education
4
programs through program evaluation;
5
(viii) expand training programs for
6
teachers of comprehensive sex education;
7
(ix) build on programs funded under
8
section 513 of the Social Security Act (42
9
U.S.C. 713) and the Office of Adolescent
10
Health’s Teen Pregnancy Prevention Pro-
11
gram, funded under title II of the Consoli-
12
dated Appropriations Act, 2010 (Public
13
Law 111–117; 123 Stat.), and on pro-
14
grams supported through the Centers for
15
Disease Control and Prevention (CDC);
16
and
17
(x) promote and uphold the rights of
18
young people to information in order to
19
make healthy and autonomous decisions
20
about their sexual health; and
21
(B) no Federal funds should be used for
22
health education programs that—
23
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(i) withhold health-promoting or life-
1
saving information about sexuality-related
2
topics, including HIV;
3
(ii) are medically inaccurate or have
4
been scientifically shown to be ineffective;
5
(iii) promote gender or racial stereo-
6
types;
7
(iv) are insensitive and unresponsive
8
to the needs of sexually active young peo-
9
ple;
10
(v) are insensitive and unresponsive to
11
the needs of survivors of sexual violence;
12
(vi) are insensitive and unresponsive
13
to the needs of youth of all physical, devel-
14
opmental, and mental abilities;
15
(vii) are insensitive and unresponsive
16
to the needs of youth with varying gender
17
identities, gender expressions, and sexual
18
orientations; or
19
(viii) are inconsistent with the ethical
20
imperatives of medicine and public health.
21
(b) GRANTS FOR COMPREHENSIVE SEX EDUCATION
22
FOR ADOLESCENTS.—
23
(1) PROGRAM AUTHORIZED.—The Secretary of
24
Health and Human Services, in coordination with
25
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•HR 5942 IH
the Associate Commissioner of the Family and
1
Youth Services Bureau of the Administration on
2
Children, Youth, and Families of the Department of
3
Health and Human Services, the Director of the Of-
4
fice of Adolescent Health, the Director of the Divi-
5
sion of Adolescent and School Health within the
6
Centers for Disease Control and Prevention and the
7
Secretary of Education, shall award grants, on a
8
competitive basis, to eligible entities to enable such
9
eligible entities to carry out programs that provide
10
adolescents with comprehensive sex education, as de-
11
scribed in paragraph (6).
12
(2) DURATION.—Grants awarded under this
13
section shall be for a period of 5 years.
14
(3) ELIGIBLE
ENTITY.—In this section, the
15
term ‘‘eligible entity’’ means a public or private enti-
16
ty that focuses on adolescent health and education
17
or has experience working with adolescents.
18
(4) APPLICATIONS.—An eligible entity desiring
19
a grant under this section shall submit an applica-
20
tion to the Secretary at such time, in such manner,
21
and containing such information as the Secretary
22
may require, including an assurance to participate in
23
the evaluation described in subsection (e).
24
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•HR 5942 IH
(5) PRIORITY.—In awarding grants under this
1
section, the Secretary shall give priority to eligible
2
entities that—
3
(A) are State or local public entities;
4
(B) are entities not currently receiving
5
funds under—
6
(i) section 513 of the Social Security
7
Act (42 U.S.C. 713);
8
(ii) the Office of Adolescent Health’s
9
Teen
Pregnancy
Prevention
Program,
10
funded under title II of the Consolidated
11
Appropriations Act, 2010 (Public Law–
12
117; 123 Stat. 3253), or any substantially
13
similar successive program; or
14
(iii) the Centers for Disease Control
15
and Prevention’s Division of Adolescent
16
and School Health; and
17
(C) address health inequities among young
18
people that face systemic barriers resulting in
19
disproportionate rates of not less than one of
20
the following:
21
(i) Unintended pregnancies.
22
(ii) Sexually transmitted infections,
23
including HIV.
24
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•HR 5942 IH
(iii) Dating violence and sexual vio-
1
lence.
2
(6) USE OF FUNDS.—
3
(A) IN
GENERAL.—Each eligible entity
4
that receives a grant under this section shall
5
use the grant funds to carry out an education
6
program that provides adolescents with com-
7
prehensive sex education that—
8
(i) is age and developmentally appro-
9
priate;
10
(ii) is medically accurate and com-
11
plete;
12
(iii) substantially incorporates ele-
13
ments of evidence-based sex education in-
14
struction; or
15
(iv) creates a demonstration project
16
based on characteristics of effective pro-
17
grams.
18
(B) CONTENTS OF COMPREHENSIVE SEX
19
EDUCATION
PROGRAMS.—The comprehensive
20
sex education programs funded under this sec-
21
tion shall include instruction and materials that
22
address—
23
(i) the physical, social, and emotional
24
changes of human development including,
25
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•HR 5942 IH
human anatomy, reproduction, and sexual
1
development;
2
(ii) healthy relationships, including
3
friendships, within families, and society,
4
that are based on mutual respect, and the
5
ability to distinguish between healthy and
6
unhealthy relationships, including—
7
(I) effective communication, ne-
8
gotiation and refusal skills, including
9
the skills to recognize and report in-
10
appropriate or abusive sexual ad-
11
vances;
12
(II) bodily autonomy, setting and
13
respecting personal boundaries, prac-
14
ticing personal safety, and consent;
15
and
16
(III) the limitations and harm of
17
gender-role stereotypes, violence, coer-
18
cion, bullying, harassment, and intimi-
19
dation in relationships;
20
(iii)
healthy
decisionmaking
skills
21
about sexuality and relationships that in-
22
clude—
23
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•HR 5942 IH
(I) critical thinking, problem
1
solving, self-efficacy, stress-manage-
2
ment, self-care, and decisionmaking;
3
(II) individual values and atti-
4
tudes;
5
(III) the promotion of positive
6
body images;
7
(IV) developing an understanding
8
that there are a range of body types
9
and encouraging positive feeling about
10
students’ own body types;
11
(V) information on how to re-
12
spect others and ensure safety on the
13
internet and when using other forms
14
of digital communication;
15
(VI) information on local services
16
and resources where students can ob-
17
tain additional information related to
18
bullying, harassment, dating violence
19
and sexual assault, suicide prevention,
20
and other related care;
21
(VII) encouragement for youth to
22
communicate with their parents or
23
guardians, health and social service
24
professionals, and other trusted adults
25
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•HR 5942 IH
about sexuality and intimate relation-
1
ships;
2
(VIII) information on how to cre-
3
ate a safe environment for all stu-
4
dents and others in society;
5
(IX) examples of varying types of
6
relationships,
couples,
and
family
7
structures; and
8
(X) affirmative representation of
9
varying gender identities, gender ex-
10
pressions, and sexual orientations, in-
11
cluding individuals and relationships
12
between same sex couples and their
13
families;
14
(iv) abstinence, delaying age of first
15
sexual activity, the use of condoms, preven-
16
tive medication, vaccination, birth control,
17
and other sexually transmitted infection
18
prevention measures, and the options for
19
pregnancy, including parenting, adoption,
20
and abortion, including—
21
(I) the importance of effectively
22
using condoms, preventive medication,
23
and applicable vaccinations to protect
24
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•HR 5942 IH
against sexually transmitted infec-
1
tions, including HIV;
2
(II) the benefits of effective con-
3
traceptive and condom use in avoiding
4
unintended pregnancy;
5
(III) the relationship between
6
substance use and sexual health and
7
behaviors; and
8
(IV)
information
about
local
9
health services where students can ob-
10
tain additional information and serv-
11
ices related to sexual and reproductive
12
health and other related care;
13
(v) through affirmative recognition,
14
the roles that traditions, values, religion,
15
norms, gender roles, acculturation, family
16
structure, health beliefs, and political
17
power play in how students make decisions
18
that affect their sexual health, using exam-
19
ples of various types of races, ethnicities,
20
cultures, and families, including single-par-
21
ent households and young families;
22
(vi) information about gender identity,
23
gender expression, and sexual orientation
24
for all students, including—
25
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•HR 5942 IH
(I) affirmative recognition that
1
people have different gender identi-
2
ties, gender expressions, and sexual
3
orientations; and
4
(II) community resources that
5
can provide additional support for in-
6
dividuals with varying gender identi-
7
ties, gender expressions, and sexual
8
orientations; and
9
(vii) opportunities to explore the roles
10
that race, ethnicity, immigration status,
11
disability status, economic status, home-
12
lessness, foster care status, and language
13
within different communities affect sexual
14
attitudes in society and culture and how
15
this may impact student sexual health.
16
(c) GRANTS FOR COMPREHENSIVE SEX EDUCATION
17
AT INSTITUTIONS OF HIGHER EDUCATION.—
18
(1) PROGRAM AUTHORIZED.—The Secretary, in
19
coordination with the Secretary of Education, shall
20
award grants, on a competitive basis, to institutions
21
of higher education or consortia of such institutions
22
to enable such institutions to provide young people
23
with comprehensive sex education, described in para-
24
graph (5)(B).
25
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•HR 5942 IH
(2) DURATION.—Grants awarded under this
1
section shall be for a period of 5 years.
2
(3) APPLICATIONS.—An institution of higher
3
education or consortia of such institutions desiring a
4
grant under this section shall submit an application
5
to the Secretary at such time, in such manner, and
6
containing such information as the Secretary may
7
require, including an assurance to participate in the
8
evaluation described in subsection (e).
9
(4) PRIORITY.—In awarding grants under this
10
section, the Secretary shall give priority to an insti-
11
tution of higher education that—
12
(A) has an enrollment of needy students as
13
defined in section 318(b) of the Higher Edu-
14
cation Act of 1965 (20 U.S.C. 1059e(b));
15
(B) is a Hispanic-serving institution, as
16
defined in section 502(a) of such Act (20
17
U.S.C. 1101a(a));
18
(C) is a Tribal College or University, as
19
defined in section 316(b) of such Act (20
20
U.S.C. 1059c(b));
21
(D) is an Alaska Native-serving institution,
22
as defined in section 317(b) of such Act (20
23
U.S.C. 1059d(b));
24
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•HR 5942 IH
(E) is a Native Hawaiian-serving institu-
1
tion, as defined in section 317(b) of such Act
2
(20 U.S.C. 1059d(b));
3
(F) is a Predominately Black Institution,
4
as defined in section 318(b) of such Act (20
5
U.S.C. 1059e(b));
6
(G) is a Native American-serving, non-
7
tribal institution, as defined in section 319(b)
8
of such Act (20 U.S.C. 1059f(b));
9
(H) is an Asian American and Native
10
American Pacific Islander-serving institution, as
11
defined in section 320(b) of such Act (20
12
U.S.C. 1059g(b)); or
13
(I) is a minority institution, as defined in
14
section 365 of such Act (20 U.S.C. 1067k),
15
with an enrollment of needy students, as de-
16
fined in section 312 of such Act (20 U.S.C.
17
1058).
18
(5) USES OF FUNDS.—
19
(A) IN GENERAL.—An institution of higher
20
education receiving a grant under this section
21
shall use grant funds to integrate issues relat-
22
ing to comprehensive sex education into institu-
23
tion of higher education in order to reach a
24
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•HR 5942 IH
large number of students, by carrying out one
1
or more of the following activities:
2
(i) Developing or adopting educational
3
content for issues relating to comprehen-
4
sive sex education that will be incorporated
5
into student orientation, general education,
6
or core courses.
7
(ii) Developing or adopting, and im-
8
plementing schoolwide educational pro-
9
gramming outside of class that delivers ele-
10
ments of comprehensive sex education pro-
11
grams to students, faculty, and staff.
12
(iii) Developing or adopting innovative
13
technology-based approaches to deliver sex
14
education to students, faculty, and staff.
15
(iv) Developing or adopting, and im-
16
plementing peer-outreach and education
17
programs to generate discussion, educate,
18
and raise awareness among students about
19
issues relating to comprehensive sex edu-
20
cation.
21
(B) CONTENTS OF SEX EDUCATION PRO-
22
GRAMS.—Each institution of higher education’s
23
program of comprehensive sex education funded
24
under this section shall include instruction and
25
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•HR 5942 IH
materials that address the requirements under
1
paragraph 6.
2
(d) GRANTS
FOR PRE-SERVICE
AND IN-SERVICE
3
TEACHER TRAINING.—
4
(1) PROGRAM AUTHORIZED.—The Secretary, in
5
coordination with the Director of the Centers for
6
Disease Control and Prevention and the Secretary of
7
Education, shall award grants, on a competitive
8
basis, to eligible entities to enable such eligible enti-
9
ties to carry out the activities described in para-
10
graph (5).
11
(2) DURATION.—Grants awarded under this
12
section shall be for a period of 5 years.
13
(3) ELIGIBLE
ENTITY.—In this section, the
14
term ‘‘eligible entity’’ means—
15
(A) a State educational agency, as defined
16
in section 8101 of the Elementary and Sec-
17
ondary Education of 1965 (20 U.S.C. 7801);
18
(B) a local educational agency, as defined
19
in section 8101 of the Elementary and Sec-
20
ondary Education of 1965 (20 U.S.C. 7801);
21
(C) a Tribe or Tribal organization, as de-
22
fined in section 4 of the Indian Self-Determina-
23
tion and Education Assistance Act (25 U.S.C.
24
5304);
25
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•HR 5942 IH
(D) a State or local department of health;
1
(E) a State or local department of edu-
2
cation;
3
(F) an educational service agency, as de-
4
fined in section 8101 of the Elementary and
5
Secondary Education of 1965 (20 U.S.C.
6
7801);
7
(G) a nonprofit institution of higher edu-
8
cation, as defined in section 101 of the Higher
9
Education Act of 1965 (20 U.S.C. 1001);
10
(H) a national or statewide nonprofit orga-
11
nization that has as its primary purpose the im-
12
provement of provision of comprehensive sex
13
education through training and effective teach-
14
ing of comprehensive sex education; or
15
(I) a consortium of nonprofit organizations
16
that has as its primary purpose the improve-
17
ment of provision of comprehensive sex edu-
18
cation through training and effective teaching
19
of comprehensive sex education.
20
(4) APPLICATION.—An eligible entity desiring a
21
grant under this section shall submit an application
22
to the Secretary at such time, in such manner, and
23
containing such information as the Secretary may
24
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•HR 5942 IH
require, including an assurance to participate in the
1
evaluation described in subsection (e).
2
(5) AUTHORIZED ACTIVITIES.—
3
(A) REQUIRED
ACTIVITY.—Each eligible
4
entity receiving a grant under this section shall
5
use grant funds for professional development
6
and training of relevant faculty, school adminis-
7
trators, teachers, and staff, in order to increase
8
effective teaching of comprehensive sex edu-
9
cation students.
10
(B) PERMISSIBLE ACTIVITIES.—Each eligi-
11
ble entity receiving a grant under this section
12
may use grant funds to—
13
(i) provide research-based training of
14
teachers for comprehensive sex education
15
for adolescents as a means of broadening
16
student knowledge about issues related to
17
human development, healthy relationships,
18
personal skills, and sexual behavior, includ-
19
ing abstinence, sexual health, and society
20
and culture;
21
(ii) support the dissemination of infor-
22
mation on effective practices and research
23
findings concerning the teaching of com-
24
prehensive sex education;
25
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•HR 5942 IH
(iii) support research on—
1
(I) effective comprehensive sex
2
education teaching practices; and
3
(II) the development of assess-
4
ment instruments and strategies to
5
document—
6
(aa) student understanding
7
of comprehensive sex education;
8
and
9
(bb) the effects of com-
10
prehensive sex education;
11
(iv) convene national conferences on
12
comprehensive sex education, in order to
13
effectively train teachers in the provision of
14
comprehensive sex education; and
15
(v) develop and disseminate appro-
16
priate research-based materials to foster
17
comprehensive sex education.
18
(C) SUBGRANTS.—Each eligible entity re-
19
ceiving a grant under this section may award
20
subgrants to nonprofit organizations that pos-
21
sess a demonstrated record of providing train-
22
ing to faculty, school administrators, teachers,
23
and staff on comprehensive sex education to—
24
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•HR 5942 IH
(i) train teachers in comprehensive
1
sex education;
2
(ii) support Internet or distance learn-
3
ing related to comprehensive sex education;
4
(iii) promote rigorous academic stand-
5
ards and assessment techniques to guide
6
and measure student performance in com-
7
prehensive sex education;
8
(iv) encourage replication of best
9
practices and model programs to promote
10
comprehensive sex education;
11
(v) develop and disseminate effective,
12
research-based comprehensive sex edu-
13
cation learning materials;
14
(vi) develop academic courses on the
15
pedagogy of sex education at institutions
16
of higher education; or
17
(vii) convene State-based conferences
18
to train teachers in comprehensive sex edu-
19
cation and to identify strategies for im-
20
provement.
21
(e) IMPACT EVALUATION AND REPORTING.—
22
(1) MULTI-YEAR EVALUATION.—
23
(A) IN
GENERAL.—Not later than 6
24
months after the date of the enactment of this
25
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•HR 5942 IH
Act, the Secretary shall enter into a contract
1
with a nonprofit organization with experience in
2
conducting impact evaluations, to conduct a
3
multi-year evaluation on the impact of the
4
grants under subsections (b), (c), and (d), and
5
to report to Congress and the Secretary on the
6
findings of such evaluation.
7
(B) EVALUATION.—The evaluation con-
8
ducted under this subsection shall—
9
(i) be conducted in a manner con-
10
sistent with relevant, nationally recognized
11
professional
and
technical
evaluation
12
standards;
13
(ii) use sound statistical methods and
14
techniques
relating
to
the
behavioral
15
sciences, including quasi-experimental de-
16
signs, inferential statistics, and other
17
methodologies and techniques that allow
18
for conclusions to be reached;
19
(iii) be carried out by an independent
20
organization that has not received a grant
21
under subsection (b), (c), or (d); and
22
(iv) be designed to provide informa-
23
tion on—
24
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(I) output measures, such as the
1
number of individuals served under
2
the grant and the number of hours of
3
instruction;
4
(II) outcome measures, including
5
measures relating to—
6
(aa) the knowledge that in-
7
dividuals participating in the
8
grant program have gained in
9
each of the following age and de-
10
velopmentally
appropriate
11
areas—
12
(AA) growth and devel-
13
opment;
14
(BB) relationship dy-
15
namics;
16
(CC) ways to prevent
17
unintended pregnancy and
18
sexually transmitted infec-
19
tions, including HIV; and
20
(DD) sexual health;
21
(bb) the age and develop-
22
mentally appropriate skills that
23
individuals participating in the
24
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grant program have gained re-
1
garding—
2
(AA) negotiation and
3
communication;
4
(BB)
decisionmaking
5
and goal-setting;
6
(CC)
interpersonal
7
skills and healthy relation-
8
ships; and
9
(DD) condom use; and
10
(cc) the behaviors of adoles-
11
cents participating in the grant
12
program, including data about—
13
(AA) age of first inter-
14
course;
15
(BB) condom and con-
16
traceptive use at first inter-
17
course;
18
(CC)
recent
condom
19
and contraceptive use;
20
(DD) substance use;
21
(EE) dating abuse and
22
lifetime history of sexual as-
23
sault, dating violence, bul-
24
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lying, harassment, stalking;
1
and
2
(FF)
academic
per-
3
formance; and
4
(III) other measures necessary to
5
evaluate the impact of the grant pro-
6
gram.
7
(C) REPORT.—Not later than 6 years after
8
the date of enactment of this Act, the organiza-
9
tion conducting the evaluation under this sub-
10
section shall prepare and submit to the appro-
11
priate committees of Congress and the Sec-
12
retary an evaluation report. Such report shall
13
be made publicly available, including on the
14
website of the Department of Health and
15
Human Services.
16
(2) SECRETARY’S REPORT TO CONGRESS.—Not
17
later than 1 year after the date of the enactment of
18
this Act, and annually thereafter for a period of 5
19
years, the Secretary shall prepare and submit to the
20
appropriate committees of Congress a report on the
21
activities to provide adolescents and young people
22
with comprehensive sex education and pre-service
23
and in-service teacher training funded under this
24
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Act. The Secretary’s report to Congress shall in-
1
clude—
2
(A) a statement of how grants awarded by
3
the Secretary meet the purposes described in
4
subsection (a)(1); and
5
(B) information about—
6
(i) the number of eligible entities and
7
institutions of higher education that are
8
receiving grant funds under subsections
9
(b), (c), and (d);
10
(ii) the specific activities supported by
11
grant funds awarded under subsections
12
(b), (c), and (d);
13
(iii) the number of adolescents served
14
by grant programs funded under sub-
15
section (b);
16
(iv) the number of young people
17
served by grant programs funded under
18
subsection (c);
19
(v) the number of faculty, school ad-
20
ministrators, teachers, and staff trained
21
under subsection (d); and
22
(vi) the status of the evaluation re-
23
quired under paragraph (1).
24
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(f) NONDISCRIMINATION.—Programs funded under
1
this Act shall not discriminate on the basis of actual or
2
perceived sex, race, color, ethnicity, national origin, dis-
3
ability, sexual orientation, gender identity, or religion.
4
Nothing in this Act shall be construed to invalidate or
5
limit rights, remedies, procedures, or legal standards avail-
6
able under any other Federal law or any law of a State
7
or a political subdivision of a State, including the Civil
8
Rights Act of 1964 (42 U.S.C. 2000a et seq.), title IX
9
of the Education Amendments of 1972 (20 U.S.C. 1681
10
et seq.), section 504 of the Rehabilitation Act of 1973 (29
11
U.S.C. 794), the Americans with Disabilities Act of 1990
12
(42 U.S.C. 12101 et seq.), and section 1557 of the Patient
13
Protection and Affordable Care Act (42 U.S.C. 18116).
14
(g) LIMITATION.—No Federal funds provided under
15
this Act may be used for health education programs
16
that—
17
(1) withhold health-promoting or life-saving in-
18
formation about sexuality-related topics, including
19
HIV;
20
(2) are medically inaccurate or have been sci-
21
entifically shown to be ineffective;
22
(3) promote gender or racial stereotypes;
23
(4) are insensitive and unresponsive to the
24
needs of sexually active young people;
25
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(5) are insensitive and unresponsive to the
1
needs of pregnant or parenting young people;
2
(6) are insensitive and unresponsive to the
3
needs of survivors of sexual abuse or assault;
4
(7) are insensitive and unresponsive to the
5
needs of youth of all physical, developmental, or
6
mental abilities;
7
(8) are insensitive and unresponsive to individ-
8
uals with varying gender identities, gender expres-
9
sions, and sexual orientations; or
10
(9) are inconsistent with the ethical imperatives
11
of medicine and public health.
12
(h) AMENDMENTS TO OTHER LAWS.—
13
(1) AMENDMENT
TO
THE
PUBLIC
HEALTH
14
SERVICE ACT.—Section 2500 of the Public Health
15
Service Act (42 U.S.C. 300ee) is amended by strik-
16
ing subsections (b) through (d) and inserting the fol-
17
lowing:
18
‘‘(b) CONTENTS
OF PROGRAMS.—All programs of
19
education and information receiving funds under this sub-
20
chapter shall include information about the potential ef-
21
fects of intravenous substance abuse.’’.
22
(2) AMENDMENTS TO THE ELEMENTARY AND
23
SECONDARY EDUCATION ACT OF 1965.—Section 8526
24
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of the Elementary and Secondary Education Act of
1
(20 U.S.C. 7906) is amended—
2
(A) by striking paragraph (3);
3
(B) by redesignating paragraphs (4) and
4
(5) as paragraphs (3) and (4), respectively;
5
(C) in paragraph (4), by inserting ‘‘or’’
6
after the semicolon;
7
(D) in paragraph (5), by striking ‘‘; or’’
8
and inserting a period; and
9
(E) by striking paragraph (6).
10
(i) DEFINITIONS.—In this section:
11
(1) ADOLESCENTS.—The term ‘‘adolescents’’
12
means individuals who are ages 10 through 19 at
13
the time of commencement of participation in a pro-
14
gram supported under this section.
15
(2) AGE
AND
DEVELOPMENTALLY
APPRO-
16
PRIATE.—The term ‘‘age and developmentally appro-
17
priate’’ means topics, messages, and teaching meth-
18
ods suitable to particular age, age group of children
19
and adolescents, or developmental levels, based on
20
cognitive, emotional, social, and behavioral capacity
21
of most students at that age level.
22
(3)
APPROPRIATE
COMMITTEES
OF
CON-
23
GRESS.—The term ‘‘appropriate committees of Con-
24
gress’’ means the Committee on Health, Education,
25
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Labor, and Pensions of the Senate, the Committee
1
on Appropriations of the Senate, the Committee on
2
Energy and Commerce of the House of Representa-
3
tives, the Committee on Education and the Work-
4
force of the House of Representatives, and the Com-
5
mittee on Appropriations of the House of Represent-
6
atives.
7
(4) CHARACTERISTICS
OF
EFFECTIVE
PRO-
8
GRAMS.—The term ‘‘characteristics of effective pro-
9
grams’’ means the aspects of evidence-based pro-
10
grams, including development, content, and imple-
11
mentation of such programs, that—
12
(A) have been shown to be effective in
13
terms of increasing knowledge, clarifying values
14
and attitudes, increasing skills, and impacting
15
upon behavior; and
16
(B) are widely recognized by leading med-
17
ical and public health agencies to be effective in
18
changing sexual behaviors that lead to sexually
19
transmitted infections, including HIV, unin-
20
tended pregnancy, and dating violence and sex-
21
ual assault among young people.
22
(5) COMPREHENSIVE
SEX
EDUCATION.—The
23
term ‘‘comprehensive sex education’’ means instruc-
24
tional part of a comprehensive school health edu-
25
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•HR 5942 IH
cation approach which addresses the physical, men-
1
tal, emotional, and social dimensions of human sexu-
2
ality; designed to motivate and assist students to
3
maintain and improve their sexual health, prevent
4
disease and reduce sexual health-related risk behav-
5
iors; and enable and empower students to develop
6
and demonstrate age and developmentally appro-
7
priate sexuality and sexual health-related knowledge,
8
attitudes, skills, and practices.
9
(6) CONSENT.—The term ‘‘consent’’ means af-
10
firmative, conscious, and voluntary agreement to en-
11
gage in interpersonal, physical, or sexual activity.
12
(7) CULTURALLY
APPROPRIATE.—The term
13
‘‘culturally appropriate’’ means materials and in-
14
struction that respond to culturally diverse individ-
15
uals, families and communities in an inclusive, re-
16
spectful and effective manner; including materials
17
and instruction that are inclusive of race, ethnicity,
18
languages, cultural background, religion, sex, gender
19
identity, sexual orientation, and different abilities.
20
(8) EVIDENCE-BASED.—The term ‘‘evidence-
21
based’’, when used with respect to sex education in-
22
struction means a sex education program that has
23
been proven through rigorous evaluation to be effec-
24
tive in changing sexual behavior or incorporates ele-
25
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•HR 5942 IH
ments of other programs that have been proven to
1
be effective in changing sexual behavior.
2
(9) GENDER EXPRESSION.—The term ‘‘gender
3
expression’’, when used with respect to a sex edu-
4
cation program, means the expression of one’s gen-
5
der, such as through behavior, clothing, haircut, or
6
voice, and which may or may not conform to socially
7
defined behaviors and characteristics typically asso-
8
ciated with being either masculine or feminine.
9
(10) GENDER IDENTITY.—Except with respect
10
to section 7, the term ‘‘gender identity’’, when used
11
with respect to a sex education program, means the
12
gender-related identity, appearance, mannerisms, or
13
other gender-related characteristics of an individual,
14
regardless of the individual’s designated sex at birth
15
including a person’s deeply held sense or knowledge
16
of their own gender; such as male, female, both or
17
neither.
18
(11) INCLUSIVE.—The term ‘‘inclusive’’, when
19
used with respect to a sex education program, means
20
curriculum that ensures that students from histori-
21
cally marginalized communities are reflected in
22
classroom materials and lessons.
23
(12) INSTITUTION OF HIGHER EDUCATION.—
24
The term ‘‘institution of higher education’’ has the
25
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•HR 5942 IH
meaning given the term in section 101 of the Higher
1
Education Act of 1965 (20 U.S.C. 1001).
2
(13) MEDICALLY ACCURATE AND COMPLETE.—
3
The term ‘‘medically accurate and complete’’, when
4
used with respect to a sex education program, means
5
that—
6
(A) the information provided through the
7
program is verified or supported by the weight
8
of research conducted in compliance with ac-
9
cepted scientific methods and is published in
10
peer-reviewed journals, where applicable; or
11
(B)(i) the program contains information
12
that leading professional organizations and
13
agencies with relevant expertise in the field rec-
14
ognize as accurate, objective, and complete; and
15
(ii) the program does not withhold infor-
16
mation about the effectiveness and benefits of
17
correct and consistent use of condoms and
18
other contraceptives.
19
(14)
SECRETARY.—The
term
‘‘Secretary’’
20
means the Secretary of Health and Human Services.
21
(15) SEXUAL DEVELOPMENT.—The term ‘‘sex-
22
ual development’’ means the lifelong process of phys-
23
ical, behavioral, cognitive, and emotional growth and
24
change as it relates to an individual’s sexuality and
25
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•HR 5942 IH
sexual maturation, including puberty, identity devel-
1
opment, socio-cultural influences, and sexual behav-
2
iors.
3
(16) SEXUAL ORIENTATION.—Except with re-
4
spect to subsection (g), the term ‘‘sexual orienta-
5
tion’’, when used with respect to a sex education
6
program, means an individual’s attraction, including
7
physical or emotional, to the same or different gen-
8
der.
9
(17) YOUNG PEOPLE.—The term ‘‘young peo-
10
ple’’ means individuals who are ages 10 through 24
11
at the time of commencement of participation in a
12
program supported under this Act.
13
(j) FUNDING.—
14
(1) APPROPRIATION.—For the purpose of car-
15
rying
out
this
Act,
there
is
appropriated
16
$75,000,000 for each of fiscal years 2019 through
17
2024. Amounts appropriated under this subsection
18
shall remain available until expended.
19
(2) RESERVATIONS OF FUNDS.—
20
(A) The Secretary shall reserve 50 percent
21
of the amount appropriated under paragraph
22
(1) for the purposes of awarding grants for
23
comprehensive sex education for adolescents
24
under subsection (c).
25
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•HR 5942 IH
(B) The Secretary shall reserve 25 percent
1
of the amount appropriated under paragraph
2
(1) for the purposes of awarding grants for
3
comprehensive sex education at institutes of
4
higher education under subsection (d).
5
(C) The Secretary shall reserve 20 percent
6
of the amount appropriated under paragraph
7
(1) for the purposes of awarding grants for pre-
8
service and in-service teacher training under
9
subsection (e).
10
(D) The Secretary shall reserve 2 percent
11
of the amount appropriated under paragraph
12
(1) for the purpose of carrying out the impact
13
evaluation and reporting required under sub-
14
section (a).
15
(3)
SECRETARIAL
RESPONSIBILITIES.—The
16
Secretary shall reserve 3 percent of the amount ap-
17
propriated under subsection (a) for each fiscal year
18
for expenditures by the Secretary to provide, directly
19
or through a competitive grant process, research,
20
training, and technical assistance, including dissemi-
21
nation of research and information regarding effec-
22
tive and promising practices, providing consultation
23
and resources, and developing resources and mate-
24
rials to support the activities of recipients of grants.
25
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In carrying out such functions, the Secretary shall
1
collaborate with a variety of entities that have exper-
2
tise in adolescent sexual health development, edu-
3
cation, and promotion.
4
(4) REPROGRAMMING
OF
ABSTINENCE
ONLY
5
UNTIL MARRIAGE PROGRAM FUNDING.—The unobli-
6
gated balance of funds made available to carry out
7
section 510 of the Social Security Act (42 U.S.C.
8
710) (as in effect on the day before the date of en-
9
actment of this Act) are hereby transferred and shall
10
be used by the Secretary to carry out this Act. The
11
amounts transferred and made available to carry out
12
this Act shall remain available until expended.
13
(5) REPEAL OF ABSTINENCE ONLY UNTIL MAR-
14
RIAGE PROGRAM.—Section 510 of the Social Secu-
15
rity Act (42 U.S.C. 710 et seq.) is repealed.
16
SEC. 512. COMPASSIONATE ASSISTANCE FOR RAPE EMER-
17
GENCIES.
18
(a) MEDICARE.—
19
(1)
LIMITATION
ON
PAYMENT.—Section
20
1866(a)(1) of the Social Security Act (42 U.S.C.
21
1395cc(a)(1)) is amended—
22
(A) in the subparagraph (W) added by sec-
23
tion 3005(1)(C) of Public Law 111–148—
24
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•HR 5942 IH
(i) by striking the period at the end
1
and inserting a comma;
2
(ii) by moving the indentation 2 ems
3
to the left; and
4
(iii) by moving such subparagraph to
5
immediately follow subparagraph (V);
6
(B) in the subparagraph (W) added by sec-
7
tion 6406(b)(3) of Public Law 111–148—
8
(i) by striking the period at the end
9
and inserting ‘‘, and’’;
10
(ii) by moving the indentation 2 ems
11
to the left;
12
(iii) by redesignating such subpara-
13
graph as subparagraph (X); and
14
(iv) by moving such subparagraph to
15
immediately follow subparagraph (W), as
16
moved under paragraph (2)(C); and
17
(C) by inserting after the subparagraph
18
(X), as redesignated and moved under para-
19
graph (3), the following:
20
‘‘(Y) in the case of a hospital or critical ac-
21
cess hospital, to adopt and enforce a policy to
22
ensure compliance with the requirements of
23
subsection (l) and to meet the requirements of
24
such subsection.’’.
25
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•HR 5942 IH
(2) ASSISTANCE TO VICTIMS.—Section 1866 of
1
the Social Security Act (42 U.S.C. 1395cc) is
2
amended by adding at the end the following new
3
subsection:
4
‘‘(l) COMPASSIONATE ASSISTANCE FOR RAPE EMER-
5
GENCIES.—
6
‘‘(1) IN
GENERAL.—For purposes of section
7
1866(a)(1)(Y), a hospital meets the requirements of
8
this subsection if the hospital provides each of the
9
services described in paragraph (2) to each indi-
10
vidual, whether or not eligible for benefits under this
11
title or under any other form of health insurance.
12
who comes to the hospital on or after January 1,
13
2019, and—
14
‘‘(A) who states to hospital personnel that
15
they are victims of sexual assault;
16
‘‘(B) who is accompanied by an individual
17
who states to hospital personnel that the indi-
18
vidual is a victim of sexual assault; or
19
‘‘(C) whom hospital personnel, during the
20
course of treatment and care for the individual,
21
have reason to believe is a victim of sexual as-
22
sault.
23
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•HR 5942 IH
‘‘(2) REQUIRED
SERVICES
DESCRIBED.—For
1
purposes of paragraph (1), the services described in
2
this subparagraph are the following:
3
‘‘(A) Provision of medically and factually
4
accurate and unbiased written and oral infor-
5
mation about emergency contraception that—
6
‘‘(i) is written in clear and concise
7
language;
8
‘‘(ii) is readily comprehensible;
9
‘‘(iii) includes an explanation that—
10
‘‘(I) emergency contraception has
11
been approved by the Food and Drug
12
Administration as an over-the-counter
13
or prescription medication for individ-
14
uals, and is a safe and effective way
15
to prevent pregnancy after unpro-
16
tected intercourse or contraceptive
17
failure if taken in a timely manner;
18
‘‘(II) emergency contraception is
19
more effective the sooner it is taken;
20
and
21
‘‘(III) emergency contraception
22
does not cause an abortion and cannot
23
interrupt an established pregnancy;
24
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‘‘(iv) meets such conditions regarding
1
the provision of such information in lan-
2
guages other than English as the Secretary
3
may establish; and
4
‘‘(v) is provided without regard to the
5
ability of the individual or their family to
6
pay costs associated with the provision of
7
such information to the individual.
8
‘‘(B) Immediate offer to provide emergency
9
contraception to the individual at the hospital
10
and, in the case that the individual accepts such
11
offer, immediate provision to the individual of
12
such contraception on the same day it is re-
13
quested without regard to the inability of the
14
individual or their family to pay costs associ-
15
ated with the offer and provision of such con-
16
traception.
17
‘‘(C) Development and implementation of a
18
written policy to ensure that an individual is
19
present at the hospital, or on-call, who—
20
‘‘(i) has authority to dispense or pre-
21
scribe emergency contraception, independ-
22
ently, or under a protocol prepared by a
23
physician for the administration of emer-
24
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gency contraception at the hospital to a
1
victim of sexual assault; and
2
‘‘(ii) is trained to comply with the re-
3
quirements of this section.
4
‘‘(D) Provision of medically and factually
5
accurate and unbiased written and oral infor-
6
mation and counseling about post-exposure pro-
7
phylaxis (PEP) protocol for the prevention of
8
HIV.
9
‘‘(E) Immediately offer to begin PEP to
10
the individual at the hospital except in cases
11
where the medical professional’s best judgement
12
is that further evaluation is required or that
13
such a regimen will be substantially detrimental
14
to the individual’s health. Such provision shall
15
be offered regardless of the individual’s ability
16
to pay. Hospitals shall be responsible for ensur-
17
ing adequate supply of PEP medications to pro-
18
vide to patients.
19
‘‘(3) DEFINITIONS.—For purposes of this para-
20
graph:
21
‘‘(A) The term ‘emergency contraception’
22
means a drug or device (as such terms are de-
23
fined in section 201 of the Federal Food, Drug,
24
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and Cosmetic Act (21 U.S.C. 321)) or a drug
1
regimen that—
2
‘‘(i) is used postcoitally;
3
‘‘(ii) prevents pregnancy primarily by
4
preventing or delaying ovulation, and does
5
not terminate an established pregnancy;
6
and
7
‘‘(iii) is approved by the Food and
8
Drug Administration.
9
‘‘(B) The term ‘hospital’ includes a critical
10
access
hospital,
as
defined
in
section
11
1861(mm)(1).
12
‘‘(C) The term ‘sexual assault’ means co-
13
itus in which the individual involved does not
14
consent or lacks the legal capacity to consent.’’.
15
(b) LIMITATION ON PAYMENT UNDER MEDICAID.—
16
Section 1903(i) of the Social Security Act (42 U.S.C.
17
1396b(i)) is amended by inserting after paragraph (11)
18
the following new paragraph:
19
‘‘(12) with respect to any amount expended for
20
care or services furnished under the plan by a hos-
21
pital on or after January 1, 2017, unless such hos-
22
pital meets the requirements specified in section
23
1866(l) for purposes of title XVIII.’’.
24
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SEC. 513. ACCESS TO BIRTH CONTROL DUTIES OF PHAR-
1
MACIES TO ENSURE PROVISION OF FDA-AP-
2
PROVED CONTRACEPTION.
3
Part B of title II of the Public Health Service Act
4
(42 U.S.C. 238 et seq.) is amended by adding at the end
5
the following:
6
‘‘SEC. 249. DUTIES OF PHARMACIES TO ENSURE PROVISION
7
OF FDA-APPROVED CONTRACEPTION.
8
‘‘(a) IN GENERAL.—Subject to subsection (c), a
9
pharmacy that receives Food and Drug Administration-
10
approved drugs or devices in interstate commerce shall
11
maintain compliance with the following:
12
‘‘(1) If a customer requests a contraceptive, in-
13
cluding emergency contraception, that is in stock,
14
the pharmacy shall ensure that the contraceptive is
15
provided to the customer—
16
‘‘(A) without delay;
17
‘‘(B) without regard to the customer’s age,
18
gender, gender identity, or sexual orientation;
19
‘‘(C) without a requirement that identifica-
20
tion be presented; and
21
‘‘(D) despite any conflicts of employees to
22
filling a prescription and dispensing a par-
23
ticular prescription drug or device due to sin-
24
cerely held moral, philosophical, or religious be-
25
liefs.
26
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‘‘(2) If a customer requests a contraceptive that
1
is not in stock and the pharmacy in the normal
2
course of business stocks contraception, the phar-
3
macy shall immediately inform the customer that the
4
contraceptive is not in stock and without delay offer
5
the customer the following options:
6
‘‘(A) If the customer prefers to obtain the
7
contraceptive through a referral or transfer, the
8
pharmacy shall—
9
‘‘(i) locate a pharmacy of the cus-
10
tomer’s choice or the closest pharmacy
11
confirmed to have the contraceptive in
12
stock; and
13
‘‘(ii) refer the customer or transfer
14
the prescription to that pharmacy.
15
‘‘(B) If the customer prefers for the phar-
16
macy to order the contraceptive, the pharmacy
17
shall obtain the contraceptive under the phar-
18
macy’s standard procedure for expedited order-
19
ing of medication and notify the customer when
20
the contraceptive arrives.
21
‘‘(3) The pharmacy shall ensure that its em-
22
ployees do not—
23
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‘‘(A) intimidate, threaten, or harass cus-
1
tomers in the delivery of services relating to a
2
request for contraception;
3
‘‘(B) interfere with or obstruct the delivery
4
of services relating to a request for contracep-
5
tion;
6
‘‘(C) intentionally misrepresent or deceive
7
customers about the availability of contracep-
8
tion or its mechanism of action;
9
‘‘(D) breach medical confidentiality with
10
respect to a request for contraception or threat-
11
en to breach such confidentiality; or
12
‘‘(E) refuse to return a valid, lawful pre-
13
scription for contraception upon customer re-
14
quest.
15
‘‘(b)
CONTRACEPTIVES
NOT
ORDINARILY
16
STOCKED.—Nothing in subsection (a)(2) shall be con-
17
strued to require any pharmacy to comply with such sub-
18
section if the pharmacy does not ordinarily stock contra-
19
ceptives in the normal course of business.
20
‘‘(c) REFUSALS PURSUANT
TO STANDARD PHAR-
21
MACY PRACTICE.—This section does not prohibit a phar-
22
macy from refusing to provide a contraceptive to a cus-
23
tomer in accordance with any of the following:
24
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‘‘(1) If it is unlawful to dispense the contracep-
1
tive to the customer without a valid, lawful prescrip-
2
tion and no such prescription is presented.
3
‘‘(2) If the customer is unable to pay for the
4
contraceptive.
5
‘‘(3) If the employee of the pharmacy refuses to
6
provide the contraceptive on the basis of a profes-
7
sional clinical judgment.
8
‘‘(d) RULE OF CONSTRUCTION.—Nothing in this sec-
9
tion shall be construed to invalidate or limit rights, rem-
10
edies, procedures, or legal standards under title VII of the
11
Civil Rights Act of 1964.
12
‘‘(e) PREEMPTION.—This section does not preempt
13
any provision of State law or any professional obligation
14
made applicable by a State board or other entity respon-
15
sible for licensing or discipline of pharmacies or phar-
16
macists, to the extent that such State law or professional
17
obligation provides protections for customers that are
18
greater than the protections provided by this section.
19
‘‘(f) ENFORCEMENT.—
20
‘‘(1) CIVIL PENALTY.—A pharmacy that vio-
21
lates a requirement of subsection (a) is liable to the
22
United States for a civil penalty in an amount not
23
exceeding $1,000 per day of violation, not to exceed
24
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$100,000 for all violations adjudicated in a single
1
proceeding.
2
‘‘(2) PRIVATE CAUSE OF ACTION.—Any person
3
aggrieved as a result of a violation of a requirement
4
of subsection (a) may, in any court of competent ju-
5
risdiction, commence a civil action against the phar-
6
macy involved to obtain appropriate relief, including
7
actual and punitive damages, injunctive relief, and a
8
reasonable attorney’s fee and cost.
9
‘‘(3) LIMITATIONS.—A civil action under para-
10
graph (1) or (2) may not be commenced against a
11
pharmacy after the expiration of the 5-year period
12
beginning on the date on which the pharmacy alleg-
13
edly engaged in the violation involved.
14
‘‘(g) DEFINITIONS.—In this section:
15
‘‘(1) The term ‘contraception’ or ‘contraceptive’
16
means any drug or device approved by the Food and
17
Drug Administration to prevent pregnancy.
18
‘‘(2) The term ‘employee’ means a person hired,
19
by contract or any other form of an agreement, by
20
a pharmacy.
21
‘‘(3) The term ‘pharmacy’ means an entity
22
that—
23
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‘‘(A) is authorized by a State to engage in
1
the business of selling prescription drugs at re-
2
tail; and
3
‘‘(B) employs one or more employees.
4
‘‘(4) The term ‘product’ means a Food and
5
Drug Administration-approved drug or device.
6
‘‘(5) The term ‘professional clinical judgment’
7
means the use of professional knowledge and skills
8
to form a clinical judgment, in accordance with pre-
9
vailing medical standards.
10
‘‘(6) The term ‘without delay’, with respect to
11
a pharmacy providing, providing a referral for, or
12
ordering contraception, or transferring the prescrip-
13
tion for contraception, means within the usual and
14
customary timeframe at the pharmacy for providing,
15
providing a referral for, or ordering other products,
16
or transferring the prescription for other products,
17
respectively.
18
‘‘(h) EFFECTIVE DATE.—This section shall take ef-
19
fect on the 31st day after the date of the enactment of
20
this section, without regard to whether the Secretary has
21
issued any guidance or final rule regarding this section.’’.
22
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SEC. 514. ADDITIONAL FOCUS AREA FOR THE OFFICE ON
1
WOMEN’S HEALTH.
2
Section 229(b) of the Public Health Service Act (42
3
U.S.C. 237a(b)) is amended—
4
(1) in paragraph (6), at the end, by striking
5
‘‘and’’;
6
(2) in paragraph (7), at the end, by striking the
7
period and inserting a semicolon; and
8
(3) by adding at the end the following new
9
paragraph:
10
‘‘(8) facilitate policymakers, health system lead-
11
ers and providers, consumers, and other stake-
12
holders in understanding optimal maternity care and
13
support for the provision of such care, including the
14
priorities of—
15
‘‘(A) protecting, promoting, and supporting
16
the innate capacities of childbearing individuals
17
and
their
newborns
for
childbirth,
18
breastfeeding, and attachment;
19
‘‘(B) using obstetric interventions only
20
when such interventions are supported by
21
strong, high-quality evidence, and minimizing
22
overuse of maternity practices that have been
23
shown to have benefit in limited situations and
24
that can expose women, infants, or both to risk
25
of harm if used routinely and indiscriminately,
26
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including continuous electronic fetal monitoring,
1
labor induction, epidural analgesia, primary ce-
2
sarean section, and routine repeat cesarean
3
birth;
4
‘‘(C) reliably incorporating noninvasive,
5
evidence-based practices that have documented
6
correlation with considerable improvement in
7
outcomes with no detrimental side effects, such
8
as smoking cessation programs in pregnancy
9
and proven models of group prenatal care that
10
integrate health assessment, education, and
11
support into a unified program and supporting
12
evidence-based breastfeeding promotion efforts
13
with respect for a breastfeeding individual’s
14
personal decisionmaking;
15
‘‘(D) a shared understanding of the quali-
16
fications of licensed providers of maternity care
17
and the best evidence about the safety, satisfac-
18
tion, outcomes, and costs of their care, and ap-
19
propriate deployment of such caregivers within
20
the maternity care workforce to address the
21
needs of childbearing individuals and newborns
22
and the growing shortage of maternity care-
23
givers;
24
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‘‘(E) a shared understanding of the results
1
of the best available research comparing hos-
2
pital, birth center, and planned home births, in-
3
cluding information about each setting’s safety,
4
satisfaction, outcomes, and costs; and
5
‘‘(F) high-quality, evidence-based child-
6
birth education that promotes a natural,
7
healthy, and safe approach to pregnancy, child-
8
birth, and early parenting; is taught by certified
9
educators, peer counselors, and health profes-
10
sionals; and promotes informed decisionmaking
11
by childbearing individual;’’.
12
SEC. 515. INTERAGENCY COORDINATING COMMITTEE ON
13
THE PROMOTION OF OPTIMAL MATERNITY
14
OUTCOMES.
15
(a) IN GENERAL.—Part A of title II of the Public
16
Health Service Act (42 U.S.C. 202 et seq.) is amended
17
by adding at the end the following new section:
18
‘‘SEC. 229A. INTERAGENCY COORDINATING COMMITTEE ON
19
THE PROMOTION OF OPTIMAL MATERNITY
20
OUTCOMES.
21
‘‘(a) IN GENERAL.—The Secretary of Health and
22
Human Services, acting through the Deputy Assistant
23
Secretary for Women’s Health under section 229 and in
24
collaboration with the Federal officials specified in sub-
25
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section (b), shall establish the Interagency Coordinating
1
Committee on the Promotion of Optimal Maternity Out-
2
comes (referred to in this subsection as the ‘ICCPOM’).
3
‘‘(b) OTHER AGENCIES.—The officials specified in
4
this subsection are the Secretary of Labor, the Secretary
5
of Defense, the Secretary of Veterans Affairs, the Surgeon
6
General, the Director of the Centers for Disease Control
7
and Prevention, the Administrator of the Health Re-
8
sources and Services Agency, the Administrator of the
9
Centers for Medicare & Medicaid Services, the Director
10
of the Indian Health Service, the Administrator of the
11
Substance Abuse and Mental Health Services Administra-
12
tion, the Director of the National Institute on Child
13
Health and Development, the Director of the Agency for
14
Healthcare Research and Quality, the Assistant Secretary
15
for Children and Families, the Deputy Assistant Secretary
16
for Minority Health, the Director of the Office of Per-
17
sonnel Management, and such other Federal officials as
18
the Secretary of Health and Human Services determines
19
to be appropriate.
20
‘‘(c) CHAIR.—The Deputy Assistant Secretary for
21
Women’s Health shall serve as the chair of the ICCPOM.
22
‘‘(d) DUTIES.—The ICCPOM shall guide policy and
23
program development across the Federal Government with
24
respect to promotion of optimal maternity care, provided,
25
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however, that nothing in this section shall be construed
1
as transferring regulatory or program authority from an
2
agency to the ICCPOM.
3
‘‘(e) CONSULTATIONS.—The ICCPOM shall actively
4
seek the input of, and shall consult with, all appropriate
5
and interested stakeholders, including State health depart-
6
ments, public health research and interest groups, founda-
7
tions, childbearing individuals and their advocates, and
8
maternity care professional associations and organiza-
9
tions, reflecting racially, ethnically, demographically, and
10
geographically diverse communities.
11
‘‘(f) ANNUAL REPORT.—
12
‘‘(1) IN GENERAL.—The Secretary, on behalf of
13
the ICCPOM, shall annually submit to Congress a
14
report that summarizes—
15
‘‘(A) all programs and policies of Federal
16
agencies (including the Medicare Program
17
under title XVIII of the Social Security Act and
18
the Medicaid program under title XIX of such
19
Act) designed to promote optimal maternity
20
care, focusing particularly on programs and
21
policies that support the adoption of evidence
22
based maternity care, as defined by timely, sci-
23
entifically sound systematic reviews;
24
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‘‘(B) all programs and policies of Federal
1
agencies (including the Medicare Program
2
under title XVIII of the Social Security Act and
3
the Medicaid program under title XIX of such
4
Act) designed to address the problems of mater-
5
nal mortality and morbidity, infant mortality,
6
prematurity, and low birth weight, including
7
such programs and policies designed to address
8
racial and ethnic disparities with respect to
9
each of such problems;
10
‘‘(C) the extent of progress in reducing
11
maternal mortality and infant mortality, low
12
birth weight, and prematurity at State and na-
13
tional levels; and
14
‘‘(D) such other information regarding op-
15
timal maternity care as the Secretary deter-
16
mines to be appropriate.
17
The information specified in subparagraph (C) shall
18
be included in each such report in a manner that
19
disaggregates such information by race, ethnicity,
20
and indigenous status in order to determine the ex-
21
tent of progress in reducing racial and ethnic dis-
22
parities and disparities related to indigenous status.
23
‘‘(2) CERTAIN
INFORMATION.—Each report
24
under paragraph (1) shall include information
25
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(disaggregated by race, ethnicity, and indigenous
1
status, as applicable) on the following rates and
2
costs by State:
3
‘‘(A) The rate of primary cesarean deliv-
4
eries and repeat cesarean deliveries.
5
‘‘(B) The rate of vaginal births after cesar-
6
ean.
7
‘‘(C) The rate of vaginal breech births.
8
‘‘(D) The rate of induction of labor.
9
‘‘(E) The rate of freestanding birth center
10
births.
11
‘‘(F) The rate of planned and unplanned
12
home birth.
13
‘‘(G) The rate of attended births by pro-
14
vider, including by an obstetrician-gynecologist,
15
family practice physician, obstetrician-gyne-
16
cologist physician assistant, certified nurse-mid-
17
wife, certified midwife, and certified profes-
18
sional midwife.
19
‘‘(H)
The
cost
of
maternity
care
20
disaggregated by place of birth and provider of
21
care, including—
22
‘‘(i) uncomplicated vaginal birth;
23
‘‘(ii) complicated vaginal birth;
24
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‘‘(iii) uncomplicated cesarean birth;
1
and
2
‘‘(iv) complicated cesarean birth.
3
‘‘(g) AUTHORIZATION OF APPROPRIATIONS.—There
4
is authorized to be appropriated, in addition to amounts
5
authorized to be appropriated under section 229(e), to
6
carry out this section $1,000,000 for each of the fiscal
7
years 2019 through 2023.’’.
8
(b) CONFORMING AMENDMENTS.—
9
(1) INCLUSION AS DUTY OF HHS OFFICE ON
10
WOMEN’S HEALTH.—Section 229(b) of such Act (42
11
U.S.C. 237a(b)), as amended by section 514, is fur-
12
ther amended by adding at the end the following
13
new paragraph:
14
‘‘(9) establish the Interagency Coordinating
15
Committee on the Promotion of Optimal Maternity
16
Outcomes in accordance with section 229A; and’’.
17
(2) TREATMENT OF BIENNIAL REPORTS.—Sec-
18
tion 229(d) of such Act (42 U.S.C. 237a(d)) is
19
amended by inserting ‘‘(other than under subsection
20
(b)(9))’’ after ‘‘under this section’’.
21
SEC. 516. CONSUMER EDUCATION CAMPAIGN.
22
Section 229(b) of the Public Health Service Act (42
23
U.S.C. 237a(b)), as amended, is further amended by add-
24
ing at the end the following new paragraph:
25
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‘‘(10) not later than one year after the date of
1
the enactment of the Health Equity and Account-
2
ability Act of 2018, develop and implement a 4-year
3
culturally and linguistically appropriate multimedia
4
consumer education campaign that is designed to
5
promote understanding and acceptance of evidence-
6
based maternity practices and models of care for op-
7
timal maternity outcomes among individuals of
8
childbearing ages and families of such individuals
9
and that—
10
‘‘(A) highlights the importance of pro-
11
tecting, promoting, and supporting the innate
12
capacities of childbearing individuals and their
13
newborns for childbirth, breastfeeding, and at-
14
tachment;
15
‘‘(B) promotes understanding of the impor-
16
tance of using obstetric interventions when
17
medically necessary and when supported by
18
strong, high-quality evidence;
19
‘‘(C) highlights the widespread overuse of
20
maternity practices that have been shown to
21
have benefit when used appropriately in situa-
22
tions of medical necessity, but which can expose
23
pregnant individuals, infants, or both to risk of
24
harm if used routinely and indiscriminately, in-
25
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cluding continuous fetal monitoring, labor in-
1
duction, epidural anesthesia, elective primary
2
cesarean section, and repeat cesarean delivery;
3
‘‘(D) emphasizes the noninvasive maternity
4
practices that have strong proven correlation or
5
may be associated with considerable improve-
6
ment in outcomes with no detrimental side ef-
7
fects, and are significantly underused in the
8
United States, including smoking cessation pro-
9
grams in pregnancy, group model prenatal care,
10
continuous labor support, nonsupine positions
11
for birth, and external version to turn breech
12
babies at term;
13
‘‘(E) educates consumers about the quali-
14
fications of licensed providers of maternity care
15
and the best evidence about their safety, satis-
16
faction, outcomes, and costs;
17
‘‘(F) informs consumers about the best
18
available research comparing birth center
19
births, planned home births, and hospital
20
births, including information about each set-
21
ting’s safety, satisfaction, outcomes, and costs;
22
‘‘(G) fosters participation in high-quality,
23
evidence-based childbirth education that pro-
24
motes a natural, healthy, and safe approach to
25
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pregnancy, childbirth, and early parenting; is
1
taught by certified educators, peer counselors,
2
and health professionals; and promotes in-
3
formed decisionmaking by childbearing individ-
4
uals; and
5
‘‘(H) is pilot tested for consumer com-
6
prehension, cultural sensitivity, and acceptance
7
of the messages across geographically, racially,
8
ethnically, and linguistically diverse popu-
9
lations.’’.
10
SEC. 517. BIBLIOGRAPHIC DATABASE OF SYSTEMATIC RE-
11
VIEWS FOR CARE OF CHILDBEARING INDI-
12
VIDUALS AND NEWBORNS.
13
(a) IN GENERAL.—Not later than one year after the
14
date of the enactment of this Act, the Secretary of Health
15
and Human Services, through the Agency for Healthcare
16
Research and Quality, shall—
17
(1) make publicly available an online biblio-
18
graphic database identifying systematic reviews, in-
19
cluding an explanation of the level and quality of
20
evidence, for care of childbearing individuals and
21
newborns; and
22
(2) initiate regular updates that incorporate
23
newly issued and updated systematic reviews.
24
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(b) SOURCES.—To aim for a comprehensive inventory
1
of systematic reviews relevant to maternal and newborn
2
care, the database shall identify reviews from diverse
3
sources, including—
4
(1) scientific peer-reviewed journals;
5
(2) databases, including Cochrane Database of
6
Systematic Reviews, Clinical Evidence, and Data-
7
base of Abstracts of Reviews of Effects; and
8
(3) Internet Web sites of agencies and organi-
9
zations throughout the world that produce such sys-
10
tematic reviews.
11
(c) FEATURES.—The database shall—
12
(1) provide bibliographic citations for each
13
record within the database, and for each such cita-
14
tion include an explanation of the level and quality
15
of evidence;
16
(2) include abstracts, as available;
17
(3) provide reference to companion documents
18
as may exist for each review, such as evidence tables
19
and guidelines or consumer educational materials de-
20
veloped from the review;
21
(4) provide links to the source of the full review
22
and to any companion documents;
23
(5) provide links to the source of a previous
24
version or update of the review;
25
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(6) be searchable by intervention or other topic
1
of the review, reported outcomes, author, title, and
2
source; and
3
(7) offer to users periodic electronic notification
4
of database updates relating to users’ topics of inter-
5
est.
6
(d) OUTREACH.—Not later than the first date the
7
database is made publicly available and periodically there-
8
after, the Secretary of Health and Human Services shall
9
publicize the availability, features, and uses of the data-
10
base under this section to the stakeholders described in
11
subsection (e).
12
(e) CONSULTATION.—For purposes of developing the
13
database under this section and maintaining and updating
14
such database, the Secretary of Health and Human Serv-
15
ices shall convene and consult with an advisory committee
16
composed of relevant stakeholders, including—
17
(1) Federal Medicaid administrators and State
18
agencies administrating State plans under title XIX
19
of the Social Security Act pursuant to section
20
1902(a)(5) of such Act (42 U.S.C. 1396a(a)(5));
21
(2) providers of maternity and newborn care
22
from both academic and community-based settings,
23
including obstetrician-gynecologists, family physi-
24
cians, certified nurse midwives, certified midwives,
25
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certified professional midwives, physician assistants,
1
perinatal nurses, pediatricians, and nurse practi-
2
tioners;
3
(3) maternal-fetal medicine specialists;
4
(4) neonatologists;
5
(5) childbearing individuals and advocates for
6
such individuals, including childbirth educators cer-
7
tified by a nationally accredited program, rep-
8
resenting communities that are diverse in terms of
9
race, ethnicity, indigenous status, and geographic
10
area;
11
(6) employers and purchasers;
12
(7) health facility and system leaders, including
13
both hospital and birth center facilities;
14
(8) journalists; and
15
(9) bibliographic informatics specialists.
16
(f) AUTHORIZATION OF APPROPRIATIONS.—There is
17
authorized to be appropriated $2,500,000 for each of the
18
fiscal years 2019 through 2021 for the purpose of devel-
19
oping the database and such sums as may be necessary
20
for each subsequent fiscal year for updating the database
21
and providing outreach and notification to users, as de-
22
scribed in this section.
23
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SEC.
518.
MATERNITY
CARE
HEALTH
PROFESSIONAL
1
SHORTAGE AREAS.
2
Section 332 of the Public Health Service Act (42
3
U.S.C. 254e) is amended by adding at the end the fol-
4
lowing new subsection:
5
‘‘(k)(1) The Secretary, acting through the Adminis-
6
trator of the Health Resources and Services Administra-
7
tion, shall designate maternity care health professional
8
shortage areas in the States, publish a descriptive list of
9
the area’s population groups, medical facilities, and other
10
public facilities so designated, and at least annually review
11
and, as necessary, revise such designations.
12
‘‘(2) For purposes of paragraph (1), a complete de-
13
scriptive list shall be published in the Federal Register not
14
later than one year after the date of the enactment of the
15
Health Equity and Accountability Act of 2018 and annu-
16
ally thereafter.
17
‘‘(3) The provisions of subsections (b), (c), (e), (f),
18
(g), (h), (i), and (j) (other than (j)(1)(B)) of this section
19
shall apply to the designation of a maternity care health
20
professional shortage area in a similar manner and extent
21
as such provisions apply to the designation of health pro-
22
fessional shortage areas, except in applying subsection
23
(b)(3), the reference in such subsection to ‘physicians’
24
shall be deemed to be a reference to nationally certified
25
and State licensed obstetricians, family practice physicians
26
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who practice full-scope maternity care, certified nurse
1
midwives, certified midwives, certified professional mid-
2
wives, and physician’s assistants who practice full scope
3
maternity care.
4
‘‘(4) For purposes of this subsection, the term ‘ma-
5
ternity care health professional shortage area’ means—
6
‘‘(A) an area in an urban or rural area (which
7
need not conform to the geographic boundaries of a
8
political subdivision and which is a rational area for
9
the delivery of health services) which the Secretary
10
determines has a shortage of providers of maternity
11
care health services including those referenced in
12
paragraph (3) or an urban or rural area that the
13
Secretary determines has lost a significant number
14
of such providers during the 10-year period begin-
15
ning with 2004 or has no obstetrical providers li-
16
censed to provide operative obstetrical services;
17
‘‘(B) an area in an urban or rural area (which
18
need not conform to the geographic boundaries of a
19
political subdivision and which is a rational area for
20
the delivery of health services) which the Secretary
21
determines has a shortage of hospital or labor and
22
delivery units, hospital birth center units, or free-
23
standing birth centers or an area that lost a signifi-
24
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cant number of these units during the 10-year pe-
1
riod beginning with 2004; or
2
‘‘(C) a population group which the Secretary
3
determines has such a shortage of providers or fa-
4
cilities.’’.
5
SEC. 519. EXPANSION OF CDC PREVENTION RESEARCH
6
CENTERS PROGRAM TO INCLUDE CENTERS
7
ON OPTIMAL MATERNITY OUTCOMES.
8
(a) IN GENERAL.—Not later than one year after the
9
date of the enactment of this Act, the Secretary of Health
10
and Human Services, shall support the establishment of
11
additional Prevention Research Centers under the Preven-
12
tion Research Center Program administered by the Cen-
13
ters for Disease Control and Prevention. Such additional
14
centers shall each be known as a Center for Excellence
15
on Optimal Maternity Outcomes.
16
(b) RESEARCH.—Each Center for Excellence on Opti-
17
mal Maternity Outcomes shall—
18
(1) conduct at least one focused program of re-
19
search to improve maternity outcomes, including the
20
reduction of cesarean birth rates, elective inductions,
21
prematurity rates, and low birth weight rates within
22
an underserved population that has a disproportion-
23
ately large burden of suboptimal maternity out-
24
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comes, including maternal mortality and morbidity,
1
infant mortality, prematurity, or low birth weight;
2
(2) work with partners on special interest
3
projects, as specified by the Centers for Disease
4
Control and Prevention and other relevant agencies
5
within the Department of Health and Human Serv-
6
ices, and on projects funded by other sources; and
7
(3) involve a minimum of two distinct birth set-
8
ting models, such as a hospital labor and delivery
9
model and freestanding birth center model; or a hos-
10
pital labor and delivery model and planned home
11
birth model.
12
(c) INTERDISCIPLINARY PROVIDERS.—Each Center
13
for Excellence on Optimal Maternity Outcomes shall in-
14
clude the following interdisciplinary providers of maternity
15
care:
16
(1) Obstetrician-gynecologists.
17
(2) At least two of the following providers:
18
(A) Family practice physicians.
19
(B) Nurse practitioners.
20
(C) Physician assistants.
21
(D) Certified professional midwives.
22
(d) SERVICES.—Research conducted by each Center
23
for Excellence on Optimal Maternity Outcomes shall in-
24
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clude at least 2 (and preferably more) of the following sup-
1
portive provider services:
2
(1) Mental health.
3
(2) Doula labor support.
4
(3) Nutrition education.
5
(4) Childbirth education.
6
(5) Social work.
7
(6) Physical therapy or occupation therapy.
8
(7) Substance abuse services.
9
(8) Home visiting.
10
(e) COORDINATION.—The programs of research at
11
each of the two Centers of Excellence on Optimal Mater-
12
nity Outcomes shall compliment and not replicate the
13
work of the other.
14
(f) AUTHORIZATION OF APPROPRIATIONS.—There is
15
authorized to be appropriated to carry out this section
16
$2,000,000 for each of the fiscal years 2019 through
17
2023.
18
SEC. 520. EXPANDING MODELS ALLOWED TO BE TESTED BY
19
CENTER FOR MEDICARE & MEDICAID INNO-
20
VATION TO INCLUDE MATERNITY CARE MOD-
21
ELS.
22
Section 1115A(b)(2)(B) of the Social Security Act
23
(42 U.S.C. 1315a(b)(2)(B)) is amended by adding at the
24
end the following new clause:
25
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‘‘(xxv) Promoting evidence-based mod-
1
els of care that have been associated with
2
reductions in maternal and infant health
3
disparities, including incorporating the use
4
of doula and promotoras support for preg-
5
nant and childbearing individuals into evi-
6
dence-based models of prenatal care, labor
7
and delivery, and postpartum care, and
8
supporting the appropriate use of out-of-
9
hospital birth models, including births at
10
home and in freestanding birth centers.’’.
11
SEC. 521. DEVELOPMENT OF INTERPROFESSIONAL MATER-
12
NITY
CARE
EDUCATIONAL
MODELS
AND
13
TOOLS.
14
(a) IN GENERAL.—Not later than 6 months after the
15
date of the enactment of this Act, the Secretary of Health
16
and Human Services, acting in conjunction with the Ad-
17
ministrator of Health Resources and Services Administra-
18
tion, shall convene, for a 1-year period, an Interprofes-
19
sional Maternity Provider Education Commission to dis-
20
cuss and make recommendations for—
21
(1) a consensus standard physiologic maternity
22
care curriculum that takes into account the core
23
competencies for basic midwifery practice such as
24
those developed by the American College of Nurse
25
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Midwives and the North American Registry of Mid-
1
wives, and the educational objectives for physicians
2
practicing in obstetrics and gynecology as deter-
3
mined by the Council on Resident Education in Ob-
4
stetrics and Gynecology;
5
(2) suggestions for multidisciplinary use of the
6
consensus physiologic curriculum;
7
(3) strategies to integrate and coordinate edu-
8
cation across maternity care disciplines, including
9
recommendations to increase medical and midwifery
10
student exposure to out-of-hospital birth; and
11
(4) pilot demonstrations of interprofessional
12
educational models.
13
(b) PARTICIPANTS.—The Commission shall include
14
maternity care educators, curriculum developers, service
15
leaders, certification leaders, and accreditation leaders
16
from the various professions that provide maternity care
17
in this country. Such professions shall include obstetrician
18
gynecologists, certified nurse midwives or certified mid-
19
wives, family practice physicians, nurse practitioners, phy-
20
sician assistants, certified professional midwives, and
21
perinatal nurses. Additionally, the Commission shall in-
22
clude representation from maternity care consumer advo-
23
cates.
24
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(c) CURRICULUM.—The consensus standard physio-
1
logic maternity care curriculum described in subsection
2
(a)(1) shall—
3
(1) have a public health focus with a foundation
4
in health promotion and disease prevention;
5
(2) foster physiologic childbearing and woman
6
and family centered care;
7
(3) integrate strategies to reduce maternal and
8
infant morbidity and mortality;
9
(4) incorporate recommendations to ensure re-
10
spectful, safe, and seamless consultation, referral,
11
transport, and transfer of care when necessary; and
12
(5) include cultural sensitivity and strategies to
13
decrease disparities in maternity outcomes.
14
(d) REPORT.—Not later than 6 months after the final
15
meeting of the Commission, the Secretary of Health and
16
Human Services shall—
17
(1) submit to Congress a report containing the
18
recommendations made by the Commission under
19
this section; and
20
(2) make such report publicly available.
21
(e) AUTHORIZATION OF APPROPRIATIONS.—There is
22
authorized to be appropriated to carry out this section
23
$1,000,000 for each of the fiscal years 2019 and 2020,
24
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and such sums as are necessary for each of the fiscal years
1
2021 through 2023.
2
SEC. 522. INCLUDING WITHIN INPATIENT HOSPITAL SERV-
3
ICES
UNDER
MEDICARE
SERVICES
FUR-
4
NISHED BY CERTAIN STUDENTS, INTERNS,
5
AND RESIDENTS SUPERVISED BY CERTIFIED
6
NURSE MIDWIVES.
7
(a) IN GENERAL.—Section 1861(b) of the Social Se-
8
curity Act (42 U.S.C. 1395x(b)) is amended—
9
(1) in paragraph (6), by striking ‘‘; or’’ and in-
10
serting ‘‘, or in the case of services in a hospital or
11
osteopathic hospital by a student midwife or an in-
12
tern or resident-in-training under a teaching pro-
13
gram previously described in this paragraph who is
14
in the field of obstetrics and gynecology, if such stu-
15
dent midwife, intern, or resident-in-training is super-
16
vised by a certified nurse-midwife to the extent per-
17
mitted under applicable State law and as may be au-
18
thorized by the hospital;’’;
19
(2) in paragraph (7), by striking the period at
20
the end and inserting ‘‘; or’’; and
21
(3) by adding at the end the following new
22
paragraph:
23
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‘‘(8) a certified nurse-midwife where the hos-
1
pital has a teaching program approved as specified
2
in paragraph (6), if—
3
‘‘(A) the hospital elects to receive any pay-
4
ment due under this title for reasonable costs of
5
such services; and
6
‘‘(B) all certified nurse-midwives in such
7
hospital agree not to bill charges for profes-
8
sional services rendered in such hospital to indi-
9
viduals covered under the insurance program
10
established by this title.’’.
11
(b) EFFECTIVE DATE.—The amendments made by
12
subsection (a) shall apply to services furnished on or after
13
the date of the enactment of this Act.
14
SEC. 523. GRANTS TO PROFESSIONAL ORGANIZATIONS TO
15
INCREASE DIVERSITY IN MATERNAL, REPRO-
16
DUCTIVE, AND SEXUAL HEALTH PROFES-
17
SIONALS.
18
(a) IN GENERAL.—The Secretary of Health and
19
Human Services, through the Administrator of the Health
20
Resources and Services Administration, shall carry out a
21
grant program under which the Secretary may make to
22
eligible health professional organizations—
23
(1) for fiscal year 2019, planning grants de-
24
scribed in subsection (b); and
25
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(2) for the subsequent 4-year period, implemen-
1
tation grants described in subsection (c).
2
(b) PLANNING GRANTS.—
3
(1) IN GENERAL.—Planning grants described in
4
this subsection are grants for the following purposes:
5
(A) To collect data and identify any work-
6
force disparities, with respect to a health pro-
7
fession, at each of the following areas along the
8
health professional continuum:
9
(i) Pipeline availability with respect to
10
students at the high school and college or
11
university levels considering and working
12
toward entrance in the profession.
13
(ii) Entrance into the training pro-
14
gram for the profession.
15
(iii) Graduation from such training
16
program.
17
(iv) Entrance into practice.
18
(v) Retention in practice for more
19
than a 5-year period.
20
(B) To develop one or more strategies to
21
address the workforce disparities within the
22
health profession, as identified under (and in
23
response to the findings pursuant to) subpara-
24
graph (A).
25
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(2) APPLICATION.—To be eligible to receive a
1
grant under this subsection, an eligible health pro-
2
fessional organization shall submit to the Secretary
3
of Health and Human Services an application in
4
such form and manner and containing such informa-
5
tion as specified by the Secretary.
6
(3) AMOUNT.—Each grant awarded under this
7
subsection shall be for an amount not to exceed
8
$300,000.
9
(4) REPORT.—Each recipient of a grant under
10
this subsection shall submit to the Secretary of
11
Health and Human Services a report containing—
12
(A) information on the extent and distribu-
13
tion of workforce disparities identified through
14
the grant; and
15
(B) reasonable objectives and strategies
16
developed to address such disparities within a
17
5-, 10-, and 25-year period.
18
(c) IMPLEMENTATION GRANTS.—
19
(1) IN GENERAL.—Implementation grants de-
20
scribed in this subsection are grants to implement
21
one or more of the strategies developed pursuant to
22
a planning grant awarded under subsection (b).
23
(2) APPLICATION.—To be eligible to receive a
24
grant under this subsection, an eligible health pro-
25
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fessional organization shall submit to the Secretary
1
of Health and Human Services an application in
2
such form and manner as specified by the Secretary.
3
Each such application shall contain information on
4
the capability of the organization to carry out a
5
strategy described in paragraph (1), involvement of
6
partners or coalitions, plans for developing sustain-
7
ability of the efforts after the culmination of the
8
grant cycle, and any other information specified by
9
the Secretary.
10
(3) AMOUNT.—Each grant awarded under this
11
subsection shall be for an amount not to exceed
12
$500,000 each year during the 4-year period of the
13
grant.
14
(4) REPORTS.—For each of the first 3 years for
15
which an eligible health professional organization is
16
awarded a grant under this subsection, the organiza-
17
tion shall submit to the Secretary of Health and
18
Human Services a report on the activities carried
19
out by such organization through the grant during
20
such year and objectives for the subsequent year.
21
For the fourth year for which an eligible health pro-
22
fessional organization is awarded a grant under this
23
subsection, the organization shall submit to the Sec-
24
retary a report that includes an analysis of all the
25
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activities carried out by the organization through the
1
grant and a detailed plan for continuation of out-
2
reach efforts.
3
(d) ELIGIBLE HEALTH PROFESSIONAL ORGANIZA-
4
TION DEFINED.—For purposes of this section, the term
5
‘‘eligible health professional organization’’ means a profes-
6
sional
organization
representing
obstetrician-gyne-
7
cologists, certified nurse midwives, certified midwives,
8
family practice physicians, nurse practitioners whose scope
9
of practice includes maternity or sexual and reproductive
10
health care, physician assistants whose scope of practice
11
includes obstetrical or sexual and reproductive health care,
12
or certified professional midwives adolescent medicine spe-
13
cialists, and pediatricians who provide sexual and repro-
14
ductive health care.
15
(e) AUTHORIZATION OF APPROPRIATIONS.—There is
16
authorized to be appropriated to carry out this section
17
$2,000,000 for fiscal year 2019 and $3,000,000 for each
18
of the fiscal years 2020 through 2023.
19
SEC. 524. INTERAGENCY UPDATE TO THE QUALITY FAMILY
20
PLANNING GUIDELINES.
21
(a) IN GENERAL.—Not later than six months after
22
the date of enactment of this Act, the Director of the Cen-
23
ters for Disease Control and Prevention and the Office
24
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of Population Affairs shall review and expand the 2014
1
Quality Family Planning Guidelines to address—
2
(1) health disparities; and
3
(2) the importance of patient-directed contra-
4
ceptive decisionmaking.
5
(b) CONSULTATION.—In carrying out subsection (a),
6
the Director of the Centers for Disease Control and Pre-
7
vention and the Office of Population Affairs shall convene
8
a meeting, and solicit the views of, stakeholders including
9
experts on health disparities, experts on reproductive coer-
10
cion, representatives of provider organizations, patient ad-
11
vocates, reproductive justice organizations, organizations
12
that represent racial and ethnic minority communities, or-
13
ganizations that represent people with disabilities, organi-
14
zations that represent LGBTQ persons, and organizations
15
that represent people with limited-English proficiency.
16
SEC. 525. DISSEMINATION OF THE QUALITY FAMILY PLAN-
17
NING GUIDELINES.
18
(a) IN GENERAL.—Not later than six months after
19
the date of enactment of this Act, the Secretary of Health
20
and Human Services and the Director of the Centers for
21
Disease Control and Prevention shall—
22
(1) develop a plan for outreach to publicly fund-
23
ed health care providers, including federally qualified
24
health centers and branches of the Indian Health
25
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Service, about the quality family planning guidelines
1
referred to in section 524; and
2
(2) award grants to eligible entities to imple-
3
ment these guidelines for all patients seeking family
4
planning services.
5
(b) DEFINITION.—In this section, the term ‘‘eligible
6
entity’’ means a publicly funded health care provider that
7
serves persons of reproductive age.
8
Subtitle B—Pregnancy Screening
9
SEC. 531. PREGNANCY INTENTION SCREENING INITIATIVE
10
DEMONSTRATION PROGRAM.
11
Part P of title III of the Public Health Service Act
12
(42 U.S.C. 280g et seq.) is amended by adding at the end
13
the following new sections:
14
‘‘SEC. 399V–7. PREGNANCY INTENTION SCREENING INITIA-
15
TIVE DEMONSTRATION PROGRAM.
16
‘‘(a) PROGRAM ESTABLISHMENT.—The Secretary,
17
acting through the Director of the Centers for Disease
18
Control and Prevention, shall establish a demonstration
19
program to facilitate the clinical adoption of pregnancy in-
20
tention screening initiatives by health care providers.
21
‘‘(b) GRANTS.—The Secretary may carry out the
22
demonstration program through awarding grants to eligi-
23
ble entities to implement pregnancy intention screening
24
initiatives, collect data, and evaluate such initiatives.
25
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‘‘(c) ELIGIBLE ENTITIES.—
1
‘‘(1) IN
GENERAL.—An eligible entity under
2
this section is an entity described in paragraph (2)
3
that provides non-directive, comprehensive, medically
4
accurate information.
5
‘‘(2) ENTITIES DESCRIBED.—For purposes of
6
paragraph (1), an entity described in this paragraph
7
is a community-based organization, voluntary health
8
organization, public health department, community
9
health center, or other interested public or private
10
health care provider or organization.
11
‘‘(d) PREGNANCY INTENTION SCREENING INITIA-
12
TIVE.—For purposes of this section, the term ‘pregnancy
13
intention screening initiative’ means any initiative by a
14
health care provider to routinely screen women with re-
15
spect to their pregnancy intentions and goals to either pre-
16
vent unintended pregnancies or improve the likelihood of
17
healthy pregnancies, in order to better provide health care
18
that meets the contraceptive or pre-pregnancy needs of
19
such women.
20
‘‘(e) EVALUATION.—
21
‘‘(1) IN
GENERAL.—The Secretary, acting
22
through the Director of the Centers for Disease
23
Control and Prevention, shall, by grant or contract,
24
and after consultation as described in paragraph (2),
25
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conduct an evaluation of the demonstration pro-
1
gram, with respect to pregnancy intention screening
2
initiatives, conducted under this section. The evalua-
3
tion shall include:
4
‘‘(A) Assessment of the implementation of
5
pregnancy intention screening protocols among
6
a diverse group of patients and providers, in-
7
cluding collecting data on the experiences and
8
outcomes for diverse patient populations in a
9
variety of clinical settings.
10
‘‘(B) Analysis of outcome measures that
11
will facilitate effective and widespread adoption
12
of such protocols by health care providers for
13
inquiring about and responding to pregnancy
14
intentions of women with both contraceptive
15
and pre-pregnancy care.
16
‘‘(C) Consideration of health disparities
17
among the population served.
18
‘‘(D) Assessment of the equitable and vol-
19
untary application of such initiatives to minor-
20
ity and medically underserved communities.
21
‘‘(E) Assessment of the training, capacity,
22
and ongoing technical assistance needed for
23
providers to effectively implement such preg-
24
nancy intention screening protocols.
25
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‘‘(F) Assessment of whether referral sys-
1
tems for selected protocols follow evidence-based
2
standards that ensure access to comprehensive
3
health services and appropriate follow-up care.
4
‘‘(2)
INDEPENDENT,
EXPERT
ADVISORY
5
PANEL.—In conducting the evaluation under para-
6
graph (1), the Director of the Centers for Disease
7
Control and Prevention shall consult with physi-
8
cians, physician assistants, and nurses who spe-
9
cialize in women’s health, and other experts in clin-
10
ical practice, program evaluation, and research.
11
‘‘(3) REPORT.—Not later than one year after
12
the last day of the demonstration program under
13
this section, the Director of the Centers for Disease
14
Control and Prevention shall submit to Congress a
15
report on the results of the evaluation conducted
16
under paragraph (1) and shall make the report pub-
17
licly available.
18
‘‘(f) FUNDING.—
19
‘‘(1) AUTHORIZATION
OF
APPROPRIATIONS.—
20
To carry out this section, there is authorized to be
21
appropriated $5,000,000 for each of fiscal years
22
2019 through 2021.
23
‘‘(2) LIMITATION.—Not more than 25 percent
24
of funds appropriated to carry out this section pur-
25
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suant to paragraph (1) for a fiscal year may be used
1
for purposes of the evaluation under subsection
2
(e).’’.
3
TITLE VI—MENTAL HEALTH
4
SEC. 601. MENTAL HEALTH FINDINGS.
5
Congress finds the following:
6
(1) Despite the existence of effective treat-
7
ments, disparities lie in the availability, accessibility,
8
and quality of mental health services for racial and
9
ethnic minorities.
10
(2) These disparities have powerful significance
11
for minority groups and for society as a whole.
12
(3) Racial and ethnic minorities bear a greater
13
burden from unmet mental health needs and thus
14
suffer a greater loss to their overall health and pro-
15
ductivity.
16
(4) The foremost barriers include the cost of
17
care, societal stigma, and the fragmented organiza-
18
tion of services.
19
(5) African American attitudes toward mental
20
illness are another barrier to seeking mental health
21
care.
22
(6) Mental illness retains considerable stigma,
23
and seeking treatment is not always encouraged.
24
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(7) Mental illness is highly stigmatizing in
1
many Asian cultures.
2
(8) Addressing mental health stigma in commu-
3
nities will help increase utilization of mental health
4
services and reduce the burden of mental illness
5
SEC. 602. COVERAGE OF MARRIAGE AND FAMILY THERA-
6
PIST
SERVICES,
MENTAL
HEALTH
COUN-
7
SELOR SERVICES, AND SUBSTANCE ABUSE
8
COUNSELOR SERVICES UNDER PART B OF
9
THE MEDICARE PROGRAM.
10
(a) COVERAGE OF SERVICES.—
11
(1) IN
GENERAL.—Section 1861(s)(2) of the
12
Social Security Act (42 U.S.C. 1395x(s)(2)), as
13
amended by section 450, is amended—
14
(A) in subparagraph (FF), by striking
15
‘‘and’’ at the end;
16
(B) in subparagraph (GG), by inserting
17
‘‘and’’ at the end; and
18
(C) by adding at the end the following new
19
subparagraph:
20
‘‘(HH) marriage and family therapist services
21
(as defined in subsection (lll)(1)) and mental health
22
counselor services (as defined in subsection (lll)(3))
23
and substance abuse counselor services (as defined
24
in subsection (lll)(5));’’.
25
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(2) DEFINITIONS.—Section 1861 of such Act
1
(42 U.S.C. 1395x), as amended by sections 413(a)
2
and 470(a), is amended by adding at the end the
3
following new subsection:
4
‘‘Marriage and Family Therapist Services; Marriage and
5
Family Therapist; Mental Health Counselor Serv-
6
ices; Mental Health Counselor
7
‘‘(lll)(1) The term ‘marriage and family therapist
8
services’ means services performed by a marriage and
9
family therapist (as defined in paragraph (2)) for the diag-
10
nosis and treatment of mental illnesses, which the mar-
11
riage and family therapist is legally authorized to perform
12
under State law (or the State regulatory mechanism pro-
13
vided by State law) of the State in which such services
14
are performed, as would otherwise be covered if furnished
15
by a physician or as an incident to a physician’s profes-
16
sional service, but only if no facility or other provider
17
charges or is paid any amounts with respect to the fur-
18
nishing of such services.
19
‘‘(2) The term ‘marriage and family therapist’ means
20
an individual who—
21
‘‘(A) possesses a master’s or doctoral degree
22
which qualifies for licensure or certification as a
23
marriage and family therapist pursuant to State
24
law;
25
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‘‘(B) after obtaining such degree has performed
1
at least 2 years of clinical supervised experience in
2
marriage and family therapy; and
3
‘‘(C) in the case of an individual performing
4
services in a State that provides for licensure or cer-
5
tification of marriage and family therapists, is li-
6
censed or certified as a marriage and family thera-
7
pist in such State.
8
‘‘(3) The term ‘mental health counselor services’
9
means services performed by a mental health counselor (as
10
defined in paragraph (4)) for the diagnosis and treatment
11
of mental illnesses which the mental health counselor is
12
legally authorized to perform under State law (or the
13
State regulatory mechanism provided by the State law) of
14
the State in which such services are performed, as would
15
otherwise be covered if furnished by a physician or as inci-
16
dent to a physician’s professional service, but only if no
17
facility or other provider charges or is paid any amounts
18
with respect to the furnishing of such services.
19
‘‘(4) The term ‘mental health counselor’ means an
20
individual who—
21
‘‘(A) possesses a master’s or doctor’s degree in
22
mental health counseling or a related field;
23
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‘‘(B) after obtaining such a degree has per-
1
formed at least 2 years of supervised mental health
2
counselor practice; and
3
‘‘(C) in the case of an individual performing
4
services in a State that provides for licensure or cer-
5
tification of mental health counselors or professional
6
counselors, is licensed or certified as a mental health
7
counselor or professional counselor in such State.
8
‘‘(5) The term ‘substance abuse counselor services’
9
means services performed by a substance abuse counselor
10
(as defined in paragraph (6)) for the diagnosis and treat-
11
ment of substance abuse and addiction which the sub-
12
stance abuse counselor is legally authorized to perform
13
under State law (or the State regulatory mechanism pro-
14
vided by the State law) of the State in which such services
15
are performed, as would otherwise be covered if furnished
16
by a physician or as incident to a physician’s professional
17
service, but only if no facility or other provider charges
18
or is paid any amounts with respect to the furnishing of
19
such services.
20
‘‘(6) The term ‘substance abuse counselor’ means an
21
individual who—
22
‘‘(A) has performed at least 2 years of super-
23
vised substance abuse counselor practice;
24
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‘‘(B) in the case of an individual performing
1
services in a State that provides for licensure or cer-
2
tification of substance abuse counselors or profes-
3
sional counselors, is licensed or certified as a sub-
4
stance abuse counselor or professional counselor in
5
such State; or
6
‘‘(C) is a drug and alcohol counselor as defined
7
in section 40.281 of title 49, Code of Federal Regu-
8
lations.’’.
9
(3) PROVISION
FOR
PAYMENT
UNDER
PART
10
B.—Section 1832(a)(2)(B) of such Act (42 U.S.C.
11
1395k(a)(2)(B)) is amended—
12
(A) by striking ‘‘and’’ at the end of clause
13
(iv); and
14
(B) by adding at the end the following new
15
clause:
16
‘‘(v) marriage and family therapist
17
services, mental health counselor services,
18
and substance abuse counselor services;
19
and’’.
20
(4) AMOUNT OF PAYMENT.—Section 1833(a)(1)
21
of such Act (42 U.S.C. 1395l(a)(1)), as amended by
22
section 431(c)(3), is amended—
23
(A) by striking ‘‘and (AA)’’ and inserting
24
‘‘(AA)’’; and
25
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(B) by inserting before the semicolon at
1
the end the following: ‘‘, and (BB) with respect
2
to marriage and family therapist services, men-
3
tal health counselor services, and substance
4
abuse
counselor
services
under
section
5
1861(s)(2)(HH), the amounts paid shall be 80
6
percent of the lesser of the actual charge for
7
the services or 75 percent of the amount deter-
8
mined for payment of a psychologist under sub-
9
paragraph (L)’’.
10
(5) EXCLUSION
OF
MARRIAGE
AND
FAMILY
11
THERAPIST SERVICES AND MENTAL HEALTH COUN-
12
SELOR SERVICES FROM SKILLED NURSING FACILITY
13
PROSPECTIVE
PAYMENT
SYSTEM.—Section
14
1888(e)(2)(A)(ii)
of
such
Act
(42
U.S.C.
15
1395yy(e)(2)(A)(ii)) is amended by inserting ‘‘mar-
16
riage and family therapist services (as defined in
17
section 1861(lll)(1)), mental health counselor serv-
18
ices (as defined in section 1861(lll)(3)),’’ after
19
‘‘qualified psychologist services,’’.
20
(6) INCLUSION
OF
MARRIAGE
AND
FAMILY
21
THERAPISTS, MENTAL HEALTH COUNSELORS, AND
22
SUBSTANCE ABUSE COUNSELORS AS PRACTITIONERS
23
FOR
ASSIGNMENT
OF
CLAIMS.—Section
24
1842(b)(18)(C)
of
such
Act
(42
U.S.C.
25
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1395u(b)(18)(C)) is amended by adding at the end
1
the following new clauses:
2
‘‘(vii) A marriage and family therapist (as de-
3
fined in section 1861(lll)(2)).
4
‘‘(viii) A mental health counselor (as defined in
5
section 1861(lll)(4)).
6
‘‘(ix) A substance abuse counselor (as defined
7
in section 1861 (lll)(6)).’’.
8
(b) COVERAGE OF CERTAIN MENTAL HEALTH SERV-
9
ICES PROVIDED IN CERTAIN SETTINGS.—
10
(1) RURAL HEALTH CLINICS AND FEDERALLY
11
QUALIFIED
HEALTH
CENTERS.—Section
12
1861(aa)(1)(B) of the Social Security Act (42
13
U.S.C. 1395x(aa)(1)(B)) is amended by striking ‘‘or
14
by a clinical social worker (as defined in subsection
15
(hh)(1)),’’ and inserting ‘‘, by a clinical social worker
16
(as defined in subsection (hh)(1)), by a marriage
17
and family therapist (as defined in subsection
18
(lll)(2)), or by a mental health counselor (as defined
19
in subsection (lll)(4)), or by a substance abuse coun-
20
selor (as defined in section 1861 (lll)(6)).’’.
21
(2)
HOSPICE
PROGRAMS.—Section
22
1861(dd)(2)(B)(i)(III) of such Act (42 U.S.C.
23
1395x(dd)(2)(B)(i)(III)) is amended by inserting ‘‘or
24
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•HR 5942 IH
one marriage and family therapist (as defined in
1
subsection (lll)(2))’’ after ‘‘social worker’’.
2
(c) AUTHORIZATION
OF MARRIAGE
AND FAMILY
3
THERAPISTS
TO
DEVELOP
DISCHARGE
PLANS
FOR
4
POSTHOSPITAL SERVICES.—Section 1861(ee)(2)(G) of
5
the Social Security Act (42 U.S.C. 1395x(ee)(2)(G)) is
6
amended by inserting ‘‘marriage and family therapist (as
7
defined in subsection (lll)(2)),’’ after ‘‘social worker,’’.
8
(d) EFFECTIVE DATE.—The amendments made by
9
this section shall apply with respect to services furnished
10
on or after January 1, 2019.
11
SEC. 603. INTEGRATED HEALTH CARE DEMONSTRATION
12
PROGRAM.
13
Part D of title V of the Public Health Service Act
14
(42 U.S.C. 290dd et seq.) is amended by adding at the
15
end the following:
16
‘‘SEC. 550. INTERPROFESSIONAL HEALTH CARE TEAMS FOR
17
PROVISION OF BEHAVIORAL HEALTH CARE
18
IN PRIMARY CARE SETTINGS.
19
‘‘(a) GRANTS.—The Secretary, acting through the
20
Assistant Secretary for Mental Health and Substance
21
Abuse, shall award grants to eligible entities for the pur-
22
pose of establishing interprofessional health care teams
23
that provide behavioral health care.
24
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‘‘(b) ELIGIBLE ENTITIES.—To be eligible to receive
1
a grant under this section, an entity shall be a federally
2
qualified health center (as defined in section 1861(aa) of
3
the Social Security Act), rural health clinic, or behavioral
4
health program, serving a high proportion of individuals
5
from racial and ethnic minority groups (as defined in sec-
6
tion 1707(g)).
7
‘‘(c) SCIENTIFICALLY
BASED.—Integrated health
8
care funded through this section shall be scientifically
9
based, taking into consideration the results of the most
10
recent peer-reviewed research available.
11
‘‘(d) AUTHORIZATION
OF
APPROPRIATIONS.—To
12
carry out this section, there is authorized to be appro-
13
priated $20,000,000 for each of fiscal years 2019 through
14
2024.’’.
15
SEC. 604. ADDRESSING RACIAL AND ETHNIC MINORITY
16
MENTAL HEALTH DISPARITIES RESEARCH
17
GAPS.
18
Not later than 6 months after the date of the enact-
19
ment of this Act, the Director of the National Institute
20
on Minority Health and Health Disparities shall enter into
21
an arrangement with the National Academy of Sciences
22
(or, if the National Academy of Sciences declines to enter
23
into such an arrangement, an arrangement with the Insti-
24
tute of Medicine, the Patient Centered Outcomes Research
25
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Institute, the Agency for Healthcare Quality, or another
1
appropriate entity)—
2
(1) to conduct a study with respect to mental
3
health disparities in racial and ethnic minority
4
groups (as defined in section 1707(g) of the Public
5
Health Service Act (42 U.S.C. 300u–6(g)); and
6
(2) to submit to the Congress a report on the
7
results of such study, including—
8
(A) a compilation of information on the dy-
9
namics of mental disorders in such racial and
10
ethnic minority groups; and
11
(B) a compilation of information on the
12
impact of exposure to community violence, ad-
13
verse childhood experiences, and other psycho-
14
logical traumas on mental disorders in such ra-
15
cial and minority groups.
16
SEC. 605. HEALTH PROFESSIONS COMPETENCIES TO AD-
17
DRESS RACIAL AND ETHNIC MINORITY MEN-
18
TAL HEALTH DISPARITIES.
19
(a) IN GENERAL.—The Secretary of Health and
20
Human Services, acting through the Assistant Secretary
21
for Mental Health and Substance Use, shall award grants
22
to qualified national organizations for the purposes of—
23
(1) developing, and disseminating to health pro-
24
fessional educational programs curricula or core
25
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competencies addressing mental health disparities
1
among racial and ethnic minority groups for use in
2
the training of students in the professions of social
3
work, psychology, psychiatry, marriage and family
4
therapy, mental health counseling, and substance
5
abuse counseling; and
6
(2) certifying community health workers and
7
peer wellness specialists with respect to such cur-
8
ricula and core competencies and integrating and ex-
9
panding the use of such workers and specialists into
10
health care to address mental health disparities
11
among racial and ethnic minority groups.
12
(b) CURRICULA; CORE COMPETENCIES.—Organiza-
13
tions receiving funds under subsection (a) may use the
14
funds to engage in the following activities related to the
15
development and dissemination of curricula or core com-
16
petencies described in subsection (a)(1):
17
(1) Formation of committees or working groups
18
comprised of experts from accredited health profes-
19
sions schools to identify core competencies relating
20
to mental health disparities among racial and ethnic
21
minority groups.
22
(2) Planning of workshops in national fora to
23
allow for public input into the educational needs as-
24
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sociated with mental health disparities among racial
1
and ethnic minority groups.
2
(3) Dissemination and promotion of the use of
3
curricula or core competencies in undergraduate and
4
graduate health professions training programs na-
5
tionwide.
6
(4) Establishing external stakeholder advisory
7
boards to provide meaningful input into policy and
8
program development and best practices to reduce
9
mental health disparities among racial and ethnic
10
minority groups.
11
(c) DEFINITIONS.—In this section:
12
(1) QUALIFIED NATIONAL ORGANIZATION.—The
13
term ‘‘qualified national organization’’ means a na-
14
tional organization that focuses on the education of
15
students in programs of social work, psychology,
16
psychiatry, and marriage and family therapy.
17
(2) RACIAL AND ETHNIC MINORITY GROUP.—
18
The term ‘‘racial and ethnic minority group’’ has the
19
meaning given to such term in section 1707(g) of
20
the Public Health Service Act (42 U.S.C. 300u–
21
6(g)).
22
(d) AUTHORIZATION
OF APPROPRIATIONS.—There
23
are authorized to be appropriated to carry out this section
24
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such sums as may be necessary for each of fiscal years
1
2019 through 2024.
2
SEC. 606. ASIAN AMERICAN, NATIVE HAWAIIAN, AND PA-
3
CIFIC ISLANDER BEHAVIORAL AND MENTAL
4
HEALTH OUTREACH AND EDUCATION STRAT-
5
EGIES.
6
Part D of title V of the Public Health Service Act
7
(42 U.S.C. 290dd et seq.) is amended by adding at the
8
end the following new section:
9
‘‘SEC. 544. BEHAVIORAL AND MENTAL HEALTH OUTREACH
10
AND EDUCATION STRATEGIES.
11
‘‘(a) IN GENERAL.—The Secretary, acting through
12
the Administrator of the Substance Abuse and Mental
13
Health Services Administration, shall, in coordination with
14
advocacy and behavioral and mental health organizations
15
serving populations of Asian American, Native Hawaiian,
16
and Pacific Islander individuals or communities, develop
17
and implement an outreach and education strategy to pro-
18
mote behavioral and mental health and reduce stigma as-
19
sociated with mental health conditions and substance
20
abuse among the Asian American, Native Hawaiian, and
21
Pacific Islander populations. Such strategy shall—
22
‘‘(1) be designed to—
23
‘‘(A) meet the diverse cultural and lan-
24
guage needs of the various Asian American,
25
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Native Hawaiian, and Pacific Islander popu-
1
lations; and
2
‘‘(B) ensure such strategies are develop-
3
mentally and age appropriate;
4
‘‘(2) increase awareness of symptoms of mental
5
illnesses common among such populations, taking
6
into account differences within subgroups, such as
7
gender, gender identity, age, sexual orientation, or
8
ethnicity, of such populations;
9
‘‘(3) provide information on evidence-based, cul-
10
turally and linguistically appropriate and adapted
11
interventions and treatments;
12
‘‘(4) ensure full participation of, and engage,
13
both consumers and community members in the de-
14
velopment and implementation of materials; and
15
‘‘(5) seek to broaden the perspective among
16
both individuals in these communities and stake-
17
holders serving these communities to use a com-
18
prehensive public health approach to promoting be-
19
havioral health that addresses a holistic view of
20
health by focusing on the intersection between be-
21
havioral and physical health.
22
‘‘(b) AUTHORIZATION OF APPROPRIATIONS.—There
23
is authorized to be appropriated to carry out this section
24
$300,000 for fiscal year 2019.’’.
25
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SEC. 607. MENTAL HEALTH IN SCHOOLS.
1
(a) PURPOSE.—It is the purpose of this section to—
2
(1) revise, increase funding for, and expand the
3
scope of the Project AWARE State Educational
4
Agency Grant Program carried out by the Secretary
5
of Health and Human Services, in order to provide
6
access to more comprehensive school-based mental
7
health services and supports;
8
(2) provide for comprehensive staff development
9
for school and community service personnel working
10
in the school; and
11
(3) provide for comprehensive training for chil-
12
dren with mental health disorders, for parents, sib-
13
lings, and other family members of such children,
14
and for concerned members of the community.
15
(b) TECHNICAL AMENDMENTS.—The second part G
16
(relating to services provided through religious organiza-
17
tions) of title V of the Public Health Service Act (42
18
U.S.C. 290kk et seq.) is amended—
19
(1) by redesignating such part as part J; and
20
(2) by redesignating sections 581 through 584
21
as sections 596 through 596C, respectively.
22
(c) SCHOOL-BASED MENTAL HEALTH AND CHIL-
23
DREN AND VIOLENCE.—Section 581 of the Public Health
24
Service Act (42 U.S.C. 290hh) is amended to read as fol-
25
lows:
26
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‘‘SEC. 581. SCHOOL-BASED MENTAL HEALTH AND CHIL-
1
DREN AND VIOLENCE.
2
‘‘(a) IN GENERAL.—The Secretary, in collaboration
3
with the Secretary of Education and in consultation with
4
the Attorney General, shall, directly or through grants,
5
contracts, or cooperative agreements awarded to eligible
6
entities described in subsection (c), assist local commu-
7
nities and schools (including schools funded by the Bureau
8
of Indian Education) in applying a public health approach
9
to mental health services both in schools and in the com-
10
munity. Such approach should provide comprehensive age
11
appropriate services and supports, be linguistically and
12
culturally appropriate, be trauma-informed, and incor-
13
porate age appropriate strategies of positive behavioral
14
interventions and supports. A comprehensive school men-
15
tal health program funded under this section shall assist
16
children in dealing with trauma and violence.
17
‘‘(b) ACTIVITIES.—Under the program under sub-
18
section (a), the Secretary may—
19
‘‘(1) provide financial support to enable local
20
communities to implement a comprehensive cul-
21
turally and linguistically appropriate, trauma-in-
22
formed, and age-appropriate, school-based mental
23
health program that—
24
‘‘(A) builds awareness of trauma;
25
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‘‘(B) trains appropriate staff to identify
1
signs of trauma or mental health disorders; and
2
‘‘(C) incorporates positive behavioral inter-
3
ventions, family engagement, student treatment,
4
and multi-generational supports to foster the
5
health and development of children;
6
‘‘(2) provide technical assistance to local com-
7
munities with respect to the development of pro-
8
grams described in paragraph (1);
9
‘‘(3) provide assistance to local communities in
10
the development of policies to address child and ado-
11
lescent trauma and mental health issues and violence
12
when and if it occurs;
13
‘‘(4) facilitate community partnerships among
14
families, students, law enforcement agencies, edu-
15
cation systems, mental health and substance use dis-
16
order service systems, family-based mental health
17
service systems, child welfare agencies, health care
18
service systems (including primary care physicians),
19
faith-based programs, trauma networks, and other
20
community-based systems; and
21
‘‘(5) establish mechanisms for children and ado-
22
lescents to report incidents of violence or plans by
23
other children, adolescents, or adults to commit vio-
24
lence.
25
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‘‘(c) REQUIREMENTS.—
1
‘‘(1) IN GENERAL.—To be eligible for a grant,
2
contract, or cooperative agreement under subsection
3
(a), an entity shall—
4
‘‘(A) be a partnership that—
5
‘‘(i) shall include a State educational
6
agency and one or more local educational
7
agencies, with a local educational agency
8
serving as the lead partner; and
9
‘‘(ii) may include, in accordance with
10
paragraph (2)(A)(i), appropriate public or
11
private entities that use evidence-based
12
interventions, as defined in section 8101 of
13
the Elementary and Secondary Education
14
Act of 1965 (20 U.S.C. 7801); and
15
‘‘(B) submit an application, that is en-
16
dorsed by all members of the partnership, that
17
contains the assurances described in paragraph
18
(2).
19
‘‘(2) REQUIRED ASSURANCES.—An application
20
under paragraph (1) shall contain assurances as fol-
21
lows:
22
‘‘(A) That the eligible entity will ensure
23
that, in carrying out activities under this sec-
24
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tion, the eligible entity will enter into a memo-
1
randum of understanding—
2
‘‘(i) with at least 1 public or private
3
mental health entity, health care entity,
4
law enforcement or juvenile justice entity,
5
child welfare agency, family-based mental
6
health entity, trauma network, or other
7
community-based entity; and
8
‘‘(ii) that clearly states—
9
‘‘(I) the responsibilities of each
10
partner with respect to the activities
11
to be carried out, including how fam-
12
ily engagement will be incorporated in
13
the activities;
14
‘‘(II) how school-employed and
15
school-based mental health profes-
16
sionals will be utilized for carrying out
17
such responsibilities;
18
‘‘(III) how each such partner will
19
be accountable for carrying out such
20
responsibilities; and
21
‘‘(IV) the amount of non-Federal
22
funding or in-kind contributions that
23
each such partner will contribute in
24
order to sustain the program.
25
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‘‘(B) That the comprehensive school-based
1
mental health program carried out under this
2
section supports the flexible use of funds to ad-
3
dress—
4
‘‘(i) the promotion of the social, emo-
5
tional, and behavioral health of all students
6
in an environment that is conducive to
7
learning;
8
‘‘(ii) the reduction in the likelihood of
9
at risk students developing social, emo-
10
tional, behavioral health problems, or sub-
11
stance use disorders;
12
‘‘(iii) the early identification of social,
13
emotional, behavioral problems, or sub-
14
stance use disorders and the provision of
15
early intervention services;
16
‘‘(iv) the treatment or referral for
17
treatment of students with existing social,
18
emotional, behavioral health problems, or
19
substance use disorders; and
20
‘‘(v) the development and implementa-
21
tion of programs to assist children in deal-
22
ing with trauma and violence, including
23
program curricula, school supports, and
24
after-school programs.
25
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‘‘(C) That the comprehensive school-based
1
mental health program carried out under this
2
section will provide for in-service training of all
3
school personnel, including ancillary staff and
4
volunteers, in—
5
‘‘(i) the techniques and supports need-
6
ed to identify early children with trauma
7
histories and children with, or at risk of,
8
mental illness;
9
‘‘(ii) the use of referral mechanisms
10
that effectively link such children to appro-
11
priate treatment and intervention services
12
in the school and in the community and to
13
follow-up when services are not available;
14
‘‘(iii) strategies that promote a school-
15
wide positive environment;
16
‘‘(iv) strategies for promoting the so-
17
cial, emotional, mental, and behavioral
18
health of all students; and
19
‘‘(v) strategies to increase the knowl-
20
edge and skills of school and community
21
leaders about the impact of trauma and vi-
22
olence and on the application of a public
23
health approach to comprehensive school-
24
based mental health programs.
25
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‘‘(D) That the comprehensive school-based
1
mental health program carried out under this
2
section will include comprehensive training for
3
parents, siblings, and other family members of
4
children with mental health disorders, and for
5
concerned members of the community in—
6
‘‘(i) the techniques and supports need-
7
ed to identify early children with trauma
8
histories, and children with, or at risk of,
9
mental illness;
10
‘‘(ii) the use of referral mechanisms
11
that effectively link such children to appro-
12
priate treatment and intervention services
13
in the school and in the community and
14
follow-up when such services are not avail-
15
able; and
16
‘‘(iii) strategies that promote a school-
17
wide positive environment.
18
‘‘(E) That the comprehensive school-based
19
mental health program carried out under this
20
section will demonstrate the measures to be
21
taken to sustain the program after funding
22
under this section terminates (which may in-
23
clude seeking funding for the program under a
24
State Medicaid plan under title XIX of the So-
25
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cial Security Act (42 U.S.C. 1396 et seq.) or a
1
waiver of such a plan).
2
‘‘(F) That the eligible entity is supported
3
by the State agency with primary responsibility
4
for behavioral health to ensure that the sustain-
5
ability of the programs is established after
6
funding under this section terminates.
7
‘‘(G) That the comprehensive school-based
8
mental health program carried out under this
9
section will be based on trauma-informed and
10
evidence-based practices.
11
‘‘(H) That the comprehensive school-based
12
mental health program carried out under this
13
section will be coordinated with early inter-
14
vening activities carried out under the Individ-
15
uals with Disabilities Education Act.
16
‘‘(I) That the comprehensive school-based
17
mental health program carried out under this
18
section will be trauma-informed and culturally
19
and linguistically appropriate.
20
‘‘(J) That the comprehensive school-based
21
mental health program carried out under this
22
section will include a broad needs assessment of
23
youth who drop out of school due to policies of
24
‘zero tolerance’ with respect to drugs, alcohol,
25
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or weapons and an inability to obtain appro-
1
priate services.
2
‘‘(K) That the mental health services pro-
3
vided through the comprehensive school-based
4
mental health program carried out under this
5
section will be provided by qualified mental and
6
behavioral health professionals who are certified
7
or licensed by the State involved and practicing
8
within their area of expertise.
9
‘‘(3) COORDINATOR.—Any entity that is a
10
member of a partnership described in paragraph
11
(1)(A) may serve as the coordinator of funding and
12
activities under the grant if all members of the part-
13
nership agree.
14
‘‘(4) COMPLIANCE
WITH
HIPAA.—A grantee
15
under this section shall be deemed to be a covered
16
entity for purposes of compliance with the regula-
17
tions promulgated under section 264(c) of the
18
Health Insurance Portability and Accountability Act
19
of 1996 with respect to any patient records devel-
20
oped through activities under the grant.
21
‘‘(d) GEOGRAPHICAL DISTRIBUTION.—The Secretary
22
shall ensure that grants, contracts, or cooperative agree-
23
ments under subsection (a) will be distributed equitably
24
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among the regions of the country and among urban and
1
rural areas.
2
‘‘(e) DURATION
OF AWARDS.—With respect to a
3
grant, contract, or cooperative agreement under sub-
4
section (a), the period during which payments under such
5
an award will be made to the recipient shall be 5 years.
6
An eligible entity described in subsection (c) may receive
7
only one award under this section, except that an eligible
8
entity that is providing services and supports on a regional
9
basis may receive additional funding after the expiration
10
of the preceding grant period.
11
‘‘(f) EVALUATION AND MEASURES OF OUTCOMES.—
12
‘‘(1) DEVELOPMENT
OF
PROCESS.—The Ad-
13
ministrator shall develop a fiscally appropriate proc-
14
ess for evaluating activities carried out under this
15
section. Such process shall include—
16
‘‘(A) the development of guidelines for the
17
submission of program data by grant, contract,
18
or cooperative agreement recipients;
19
‘‘(B) the development of measures of out-
20
comes (in accordance with paragraph (2)) to be
21
applied by such recipients in evaluating pro-
22
grams carried out under this section; and
23
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‘‘(C) the submission of annual reports by
1
such recipients concerning the effectiveness of
2
programs carried out under this section.
3
‘‘(2) MEASURES OF OUTCOMES.—
4
‘‘(A) IN
GENERAL.—The Administrator
5
shall develop measures of outcomes to be ap-
6
plied by recipients of assistance under this sec-
7
tion, and the Administrator, in evaluating the
8
effectiveness of programs carried out under this
9
section. Such measures shall include student
10
and family measures as provided for in sub-
11
paragraph (B) and local educational measures
12
as provided for under subparagraph (C).
13
‘‘(B) STUDENT AND FAMILY MEASURES OF
14
OUTCOMES.—The measures of outcomes devel-
15
oped under paragraph (1)(B) relating to stu-
16
dents and families shall, with respect to activi-
17
ties carried out under a program under this
18
section, at a minimum include provisions to
19
evaluate whether the program is effective in—
20
‘‘(i) increasing social and emotional
21
competency;
22
‘‘(ii) increasing academic competency
23
(as defined by the Secretary);
24
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‘‘(iii) reducing disruptive and aggres-
1
sive behaviors;
2
‘‘(iv) improving child functioning;
3
‘‘(v) reducing substance use disorders;
4
‘‘(vi) reducing suspensions, truancy,
5
expulsions, and violence;
6
‘‘(vii) increasing high school gradua-
7
tion rates, calculated using the four-year
8
adjusted cohort graduation rate or the ex-
9
tended-year adjusted cohort graduation
10
rate (as such terms are defined in section
11
8101 of the Elementary and Secondary
12
Education Act of 1965 (20 U.S.C. 7801));
13
and
14
‘‘(viii) improving access to care for
15
mental health disorders.
16
‘‘(C) LOCAL EDUCATIONAL OUTCOMES.—
17
The outcome measures developed under para-
18
graph (1)(B) relating to local educational sys-
19
tems shall, with respect to activities carried out
20
under a program under this section, at a min-
21
imum include provisions to evaluate—
22
‘‘(i) the effectiveness of comprehensive
23
school mental health programs established
24
under this section;
25
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‘‘(ii) the effectiveness of formal part-
1
nership linkages among child and family
2
serving institutions, community support
3
systems, and the educational system;
4
‘‘(iii) the progress made in sustaining
5
the program once funding under the grant
6
has expired;
7
‘‘(iv) the effectiveness of training and
8
professional development programs for all
9
school personnel that incorporate indica-
10
tors that measure cultural and linguistic
11
competencies under the program in a man-
12
ner that incorporates appropriate cultural
13
and linguistic training;
14
‘‘(v) the improvement in perception of
15
a safe and supportive learning environment
16
among school staff, students, and parents;
17
‘‘(vi) the improvement in case-finding
18
of students in need of more intensive serv-
19
ices and referral of identified students to
20
early intervention and clinical services;
21
‘‘(vii) the improvement in the imme-
22
diate availability of clinical assessment and
23
treatment services within the context of
24
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the local community to students posing a
1
danger to themselves or others;
2
‘‘(viii) the increased successful matric-
3
ulation to postsecondary school; and
4
‘‘(ix) reduced referrals to juvenile jus-
5
tice.
6
‘‘(3) SUBMISSION OF ANNUAL DATA.—An eligi-
7
ble entity described in subsection (c) that receives a
8
grant, contract, or cooperative agreement under this
9
section shall annually submit to the Administrator a
10
report that includes data to evaluate the success of
11
the program carried out by the entity based on
12
whether such program is achieving the purposes of
13
the program. Such reports shall utilize the measures
14
of outcomes under paragraph (2) in a reasonable
15
manner to demonstrate the progress of the program
16
in achieving such purposes.
17
‘‘(4) EVALUATION BY ADMINISTRATOR.—Based
18
on the data submitted under paragraph (3), the Ad-
19
ministrator shall annually submit to Congress a re-
20
port concerning the results and effectiveness of the
21
programs carried out with assistance received under
22
this section.
23
‘‘(5) LIMITATION.—An eligible entity shall use
24
not more than 10 percent of amounts received under
25
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a grant under this section to carry out evaluation
1
activities under this subsection.
2
‘‘(g) INFORMATION
AND
EDUCATION.—The Sec-
3
retary shall establish comprehensive information and edu-
4
cation programs to disseminate the findings of the knowl-
5
edge development and application under this section to the
6
general public and to health care professionals.
7
‘‘(h) AMOUNT OF GRANTS AND AUTHORIZATION OF
8
APPROPRIATIONS.—
9
‘‘(1) AMOUNT OF GRANTS.—A grant under this
10
section shall be in an amount that is not more than
11
$2,000,000 for each of fiscal years 2019 through
12
2023. The Secretary shall determine the amount of
13
each such grant based on the population of children
14
up to age 21 of the area to be served under the
15
grant.
16
‘‘(2) AUTHORIZATION
OF
APPROPRIATIONS.—
17
There is authorized to be appropriated to carry out
18
this section, $200,000,000 for each of fiscal years
19
2019 through 2023.’’.
20
(d) CONFORMING AMENDMENT.—Part G of title V
21
of the Public Health Service Act (42 U.S.C. 290hh et
22
seq.), as amended by this section, is further amended by
23
striking the part heading and inserting the following:
24
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‘‘PART G—SCHOOL-BASED MENTAL HEALTH’’.
1
SEC. 608. GEO-ACCESS STUDY.
2
The Administrator of the Substance Abuse and Men-
3
tal Health Services Administration shall—
4
(1) conduct a study to—
5
(A) determine which geographic areas of
6
the United States have shortages of specialty
7
mental health providers; and
8
(B) assess the preparedness of speciality
9
mental health providers to deliver culturally and
10
linguistically appropriate, affordable, and acces-
11
sible services; and
12
(2) submit a report to the Congress on the re-
13
sults of such study.
14
TITLE VII—ADDRESSING HIGH
15
IMPACT MINORITY DISEASES
16
Subtitle A—Cancer
17
SEC. 701. LUNG CANCER MORTALITY REDUCTION.
18
(a) SHORT TITLE.—This section may be cited as the
19
‘‘Lung Cancer Mortality Reduction Act of 2018’’.
20
(b) FINDINGS.—Congress makes the following find-
21
ings:
22
(1) Lung cancer is the leading cause of cancer
23
death for both men and women, accounting for 28
24
percent of all cancer deaths.
25
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(2) Lung cancer kills more people annually
1
than breast cancer, prostate cancer, colon cancer,
2
liver cancer, melanoma, and kidney cancer combined.
3
(3) Since the National Cancer Act of 1971
4
(Public Law 92–218; 85 Stat. 778), coordinated and
5
comprehensive research has raised the 5-year sur-
6
vival rates for breast cancer to 88 percent, for pros-
7
tate cancer to 99 percent, and for colon cancer to
8
64 percent.
9
(4) The 5-year survival rate for lung cancer is
10
still only 15 percent, and a similar coordinated and
11
comprehensive research effort is required to achieve
12
increases in lung cancer survivability rates.
13
(5) Sixty percent of lung cancer cases are now
14
diagnosed as nonsmokers or former smokers.
15
(6) Two-thirds of nonsmokers diagnosed with
16
lung cancer are women.
17
(7) Certain minority populations, such as Afri-
18
can American males, have disproportionately high
19
rates of lung cancer incidence and mortality, not-
20
withstanding their similar smoking rate.
21
(8) Members of the baby boomer generation are
22
entering their sixties, the most common age at which
23
people develop lung cancer.
24
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(9) Tobacco addiction and exposure to other
1
lung cancer carcinogens such as Agent Orange and
2
other herbicides and battlefield emissions are serious
3
problems among military personnel and war vet-
4
erans.
5
(10) Significant and rapid improvements in
6
lung cancer mortality can be expected through great-
7
er use and access to lung cancer screening tests for
8
at-risk individuals.
9
(11) Recent research has shown that screening
10
with low-dose computed tomography (CT) scan im-
11
proved lung cancer death mortality by 20 percent for
12
those with a high risk of lung cancer through early
13
detection. The Centers for Medicare & Medicaid
14
Services supports annual lung cancer screening for
15
high-risk patients with low-dose computed tomog-
16
raphy.
17
(12) Additional strategies are necessary to fur-
18
ther enhance the existing tests and therapies avail-
19
able to diagnose and treat lung cancer in the future.
20
(13) The August 2001 Report of the Lung
21
Cancer Progress Review Group of the National Can-
22
cer Institute stated that funding for lung cancer re-
23
search was ‘‘far below the levels characterized for
24
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other common malignancies and far out of propor-
1
tion to its massive health impact’’.
2
(14) The Report of the Lung Cancer Progress
3
Review Group identified as its ‘‘highest priority’’ the
4
creation of integrated, multidisciplinary, multi-insti-
5
tutional research consortia organized around the
6
problem of lung cancer rather than around specific
7
research disciplines.
8
(15) The United States must enhance its re-
9
sponse to the issues raised in the Report of the
10
Lung Cancer Progress Review Group, and this can
11
be accomplished through the establishment of a co-
12
ordinated effort designed to reduce the lung cancer
13
mortality rate by 50 percent by 2020 and targeted
14
funding to support this coordinated effort.
15
(c) SENSE OF CONGRESS CONCERNING INVESTMENT
16
IN LUNG CANCER RESEARCH.—It is the sense of the Con-
17
gress that—
18
(1) lung cancer mortality reduction should be
19
made a national public health priority; and
20
(2) a comprehensive mortality reduction pro-
21
gram coordinated by the Secretary of Health and
22
Human Services is justified and necessary to ade-
23
quately address and reduce lung cancer mortality.
24
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(d) LUNG CANCER MORTALITY REDUCTION PRO-
1
GRAM.—
2
(1) IN GENERAL.—Subpart 1 of part C of title
3
IV of the Public Health Service Act (42 U.S.C. 285
4
et seq.) is amended by adding at the end the fol-
5
lowing:
6
‘‘SEC. 417H. LUNG CANCER MORTALITY REDUCTION PRO-
7
GRAM.
8
‘‘(a) IN GENERAL.—Not later than 6 months after
9
the date of the enactment of this section, the Secretary,
10
in consultation with the Secretary of Defense, the Sec-
11
retary of Veterans Affairs, the Director of the National
12
Institutes of Health, the Director of the Centers for Dis-
13
ease Control and Prevention, the Commissioner of Food
14
and Drugs, the Administrator of the Centers for Medicare
15
& Medicaid Services, the Director of the National Institute
16
on Minority Health and Health Disparities, and other
17
members of the Lung Cancer Advisory Board established
18
under section 701 of the Health Equity and Accountability
19
Act of 2018, shall implement a comprehensive program,
20
to be known as the Lung Cancer Mortality Reduction Pro-
21
gram, to achieve a reduction of at least 25 percent in the
22
mortality rate of lung cancer by 2020.
23
‘‘(b) REQUIREMENTS.—The Program shall include at
24
least the following:
25
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‘‘(1) With respect to the National Institutes of
1
Health—
2
‘‘(A) a strategic review and prioritization
3
by the National Cancer Institute of research
4
grants to achieve the goal of the Lung Cancer
5
Mortality Reduction Program in reducing lung
6
cancer mortality;
7
‘‘(B) the provision of funds to enable the
8
Airway Biology and Disease Branch of the Na-
9
tional Heart, Lung, and Blood Institute to ex-
10
pand its research programs to include pre-
11
dispositions to lung cancer, the interrelationship
12
between lung cancer and other pulmonary and
13
cardiac disease, and the diagnosis and treat-
14
ment of these interrelationships;
15
‘‘(C) the provision of funds to enable the
16
National Institute of Biomedical Imaging and
17
Bioengineering to expedite the development of
18
computer-assisted diagnostic, surgical, treat-
19
ment, and drug-testing innovations to reduce
20
lung cancer mortality, such as through expan-
21
sion of the Institute’s Quantum Grant Program
22
and Image-Guided Interventions programs; and
23
‘‘(D) the provision of funds to enable the
24
National Institute of Environmental Health
25
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Sciences to implement research programs rel-
1
ative to the lung cancer incidence.
2
‘‘(2) With respect to the Food and Drug Ad-
3
ministration—
4
‘‘(A) activities under section 530 of the
5
Federal Food, Drug, and Cosmetic Act; and
6
‘‘(B) activities under section 561 of the
7
Federal Food, Drug, and Cosmetic Act to ex-
8
pand access to investigational drugs and devices
9
for the diagnosis, monitoring, or treatment of
10
lung cancer.
11
‘‘(3) With respect to the Centers for Disease
12
Control and Prevention, the establishment of an
13
early disease research and management program
14
under section 1511.
15
‘‘(4) With respect to the Agency for Healthcare
16
Research and Quality, the conduct of a biannual re-
17
view of lung cancer screening, diagnostic, and treat-
18
ment protocols, and the issuance of updated guide-
19
lines.
20
‘‘(5) The promotion (including education) of
21
lung cancer screening within minority and rural pop-
22
ulations and the study of the effectiveness of efforts
23
to increase such screening.
24
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‘‘(6) The cooperation and coordination of all
1
minority and health disparity programs within the
2
Department of Health and Human Services to en-
3
sure that all aspects of the Lung Cancer Mortality
4
Reduction Program under this section adequately
5
address the burden of lung cancer on minority and
6
rural populations.
7
‘‘(7) The cooperation and coordination of all to-
8
bacco control and cessation programs within agen-
9
cies of the Department of Health and Human Serv-
10
ices to achieve the goals of the Lung Cancer Mor-
11
tality Reduction Program under this section with
12
particular emphasis on the coordination of drug and
13
other cessation treatments with early detection pro-
14
tocols.’’.
15
(2) FEDERAL
FOOD, DRUG, AND
COSMETIC
16
ACT.—Subchapter B of chapter V of the Federal
17
Food, Drug, and Cosmetic Act (21 U.S.C. 360aaa et
18
seq.) is amended by adding at the end the following:
19
‘‘DRUGS RELATING TO LUNG CANCER
20
‘‘SEC. 530. (a) IN GENERAL.—The provisions of this
21
subchapter shall apply to a drug described in subsection
22
(b) to the same extent and in the same manner as such
23
provisions apply to a drug for a rare disease or condition.
24
‘‘(b) QUALIFIED DRUGS.—A drug described in this
25
subsection is—
26
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‘‘(1) a chemoprevention drug for precancerous
1
conditions of the lung;
2
‘‘(2) a drug for targeted therapeutic treat-
3
ments, including any vaccine, for lung cancer; and
4
‘‘(3) a drug to curtail or prevent nicotine addic-
5
tion.
6
‘‘(c) BOARD.—The Board established under the
7
Health Equity and Accountability Act of 2018 shall mon-
8
itor the program implemented under this section.’’.
9
(3) ACCESS TO UNAPPROVED THERAPIES.—Sec-
10
tion 561(e) of the Federal Food, Drug, and Cos-
11
metic Act (21 U.S.C. 360bbb(e)) is amended by in-
12
serting before the period the following: ‘‘and shall
13
include expanding access to drugs under section
14
530, with substantial consideration being given to
15
whether the totality of information available to the
16
Secretary regarding the safety and effectiveness of
17
an investigational drug, as compared to the risk of
18
morbidity and death from the disease, indicates that
19
a patient may obtain more benefit than risk if treat-
20
ed with the drug’’.
21
(4) CDC.—Title XV of the Public Health Serv-
22
ice Act (42 U.S.C. 300k et seq.) is amended by add-
23
ing at the end the following:
24
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‘‘SEC. 1511. EARLY DISEASE RESEARCH AND MANAGEMENT
1
PROGRAM.
2
‘‘The Secretary shall establish and implement an
3
early disease research and management program targeted
4
at the high incidence and mortality rates of lung cancer
5
among minority and low-income populations.’’.
6
(e) DEPARTMENT OF DEFENSE AND THE DEPART-
7
MENT OF VETERANS AFFAIRS.—The Secretary of Defense
8
and the Secretary of Veterans Affairs shall coordinate
9
with the Secretary of Health and Human Services—
10
(1) in the development of the Lung Cancer
11
Mortality Reduction Program under section 417H;
12
(2) in the implementation within the Depart-
13
ment of Defense and the Department of Veterans
14
Affairs of an early detection and disease manage-
15
ment research program for military personnel and
16
veterans whose smoking history and exposure to car-
17
cinogens during active duty service has increased
18
their risk for lung cancer; and
19
(3) in the implementation of coordinated care
20
programs for military personnel and veterans diag-
21
nosed with lung cancer.
22
(f) LUNG CANCER ADVISORY BOARD.—
23
(1) IN GENERAL.—The Secretary of Health and
24
Human Services shall convene a Lung Cancer Advi-
25
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sory Board (referred to in this section as the
1
‘‘Board’’)—
2
(A) to monitor the programs established
3
under this section (and the amendments made
4
by this section); and
5
(B) to provide annual reports to the Con-
6
gress concerning benchmarks, expenditures,
7
lung cancer statistics, and the public health im-
8
pact of such programs.
9
(2) COMPOSITION.—The Board shall be com-
10
posed of—
11
(A) the Secretary of Health and Human
12
Services;
13
(B) the Secretary of Defense;
14
(C) the Secretary of Veterans Affairs; and
15
(D) two representatives each from the
16
fields of clinical medicine focused on lung can-
17
cer, lung cancer research, imaging, drug devel-
18
opment, and lung cancer advocacy, to be ap-
19
pointed by the Secretary of Health and Human
20
Services.
21
(g) AUTHORIZATION OF APPROPRIATIONS.—
22
(1) IN
GENERAL.—To carry out this section
23
(and the amendments made by this section), there
24
are authorized to be appropriated such sums as may
25
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be necessary for each of fiscal years 2019 through
1
2023.
2
(2) LUNG CANCER MORTALITY REDUCTION PRO-
3
GRAM.—Of the amounts authorized to be appro-
4
priated by subsection (a), there are authorized to be
5
appropriated—
6
(A) $25,000,000 for fiscal year 2019, and
7
such sums as may be necessary for each of fis-
8
cal years 2020 through 2023, for the activities
9
described in section 417H(b)(1)(B) of the Pub-
10
lic Health Service Act, as added by subsection
11
(d)(1);
12
(B) $25,000,000 for fiscal year 2019, and
13
such sums as may be necessary for each of fis-
14
cal years 2020 through 2023, for the activities
15
described in section 417H(b)(1)(C) of such Act;
16
(C) $10,000,000 for fiscal year 2019, and
17
such sums as may be necessary for each of fis-
18
cal years 2020 through 2023, for the activities
19
described in section 417H(b)(1)(D) of such Act;
20
and
21
(D) $15,000,000 for fiscal year 2019, and
22
such sums as may be necessary for each of fis-
23
cal years 2020 through 2023, for the activities
24
described in section 417H(b)(3) of such Act.
25
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SEC. 702. EXPANDING PROSTATE CANCER RESEARCH, OUT-
1
REACH, SCREENING, TESTING, ACCESS, AND
2
TREATMENT EFFECTIVENESS.
3
(a) SHORT TITLE.—This section may be cited as the
4
‘‘Prostate Research, Outreach, Screening, Testing, Access,
5
and Treatment Effectiveness Act of 2018’’ or the ‘‘PROS-
6
TATE Act’’.
7
(b) FINDINGS.—Congress makes the following find-
8
ings:
9
(1) Prostate cancer is the second leading cause
10
of cancer death among men.
11
(2) In 2010, more than 217,730 new patients
12
were diagnosed with prostate cancer and more than
13
32,000 men died from this disease.
14
(3) Roughly 2,000,000 Americans are living
15
with a diagnosis of prostate cancer and its con-
16
sequences.
17
(4) While prostate cancer generally affects older
18
individuals, younger men are also at risk for the dis-
19
ease, and when prostate cancer appears in early
20
middle age, it frequently takes on a more aggressive
21
form.
22
(5) There are significant racial and ethnic dis-
23
parities that demand attention, namely African
24
Americans have prostate cancer mortality rates that
25
are more than double those in the White population.
26
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(6) Underserved rural populations have higher
1
rates of mortality compared to their urban counter-
2
parts, and innovative and cost-efficient methods to
3
improve rural access to high-quality care should take
4
advantage of advances in telehealth to diagnose and
5
treat prostate cancer when appropriate.
6
(7) Certain veterans populations may have
7
nearly twice the incidence of prostate cancer as the
8
general population of the United States.
9
(8) Urologists may constitute the specialists
10
who diagnose and treat the vast majority of prostate
11
cancer patients.
12
(9) Although much basic and translational re-
13
search has been completed and much is currently
14
known, there are still many unanswered questions.
15
For example, it is not fully understood how much of
16
known disparities are attributable to disease eti-
17
ology, access to care, or education and awareness in
18
the community.
19
(10) Causes of prostate cancer are not known.
20
There is not good information regarding how to dif-
21
ferentiate accurately, early on, between aggressive
22
and indolent forms of the disease. As a result, there
23
is significant overtreatment in prostate cancer.
24
There are no treatments that can durably arrest
25
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growth or cure prostate cancer once it has metasta-
1
sized.
2
(11) A significant proportion (roughly 23 to 54
3
percent) of cases may be clinically indolent and
4
‘‘overdiagnosed’’, resulting in significant overtreat-
5
ment. More accurate tests will allow men and their
6
families to face less physical, psychological, financial,
7
and emotional trauma, and billions of dollars could
8
be saved in private and public health care systems
9
in an area that has been identified by the Medicare
10
Program as one of eight high-volume, high-cost
11
areas in the Resource Utilization Report Program
12
authorized by Congress under the Medicare Im-
13
provements for Patients and Providers Act of 2008.
14
(12) Prostate cancer research and health care
15
programs across Federal agencies should be coordi-
16
nated to improve accountability and actively encour-
17
age the translation of research into practice, to iden-
18
tify and implement best practices, in order to foster
19
an integrated and consistent focus on effective pre-
20
vention, diagnosis, and treatment of this disease.
21
(c) PROSTATE CANCER COORDINATION AND EDU-
22
CATION.—
23
(1) INTERAGENCY PROSTATE CANCER COORDI-
24
NATION AND EDUCATION TASK FORCE.—Not later
25
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than 180 days after the date of the enactment of
1
this section, the Secretary of Veterans Affairs, in co-
2
operation with the Secretary of Defense and the Sec-
3
retary of Health and Human Services, shall estab-
4
lish an Interagency Prostate Cancer Coordination
5
and Education Task Force (in this section referred
6
to as the ‘‘Prostate Cancer Task Force’’).
7
(2) DUTIES.—The Prostate Cancer Task Force
8
shall—
9
(A) develop a summary of advances in
10
prostate cancer research supported or con-
11
ducted by Federal agencies relevant to the diag-
12
nosis, prevention, and treatment of prostate
13
cancer, including psychosocial impairments re-
14
lated to prostate cancer treatment, and compile
15
a list of best practices that warrant broader
16
adoption in health care programs;
17
(B) consider establishing, and advocating
18
for, a guidance to enable physicians to allow
19
screening of men who are over age 74, on a
20
case-by-case basis, taking into account quality
21
of life and family history of prostate cancer;
22
(C) share and coordinate information on
23
Federal research and health care program ac-
24
tivities, including activities related to—
25
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(i) determining how to improve re-
1
search and health care programs, including
2
psychosocial impairments related to pros-
3
tate cancer treatment;
4
(ii) identifying any gaps in the overall
5
research inventory and in health care pro-
6
grams;
7
(iii) identifying opportunities to pro-
8
mote translation of research into practice;
9
and
10
(iv) maximizing the effects of Federal
11
efforts by identifying opportunities for col-
12
laboration and leveraging of resources in
13
research and health care programs that
14
serve those susceptible to or diagnosed
15
with prostate cancer;
16
(D) develop a comprehensive interagency
17
strategy and advise relevant Federal agencies in
18
the solicitation of proposals for collaborative,
19
multidisciplinary research and health care pro-
20
grams, including proposals to evaluate factors
21
that may be related to the etiology of prostate
22
cancer, that would—
23
(i) result in innovative approaches to
24
study emerging scientific opportunities or
25
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eliminate knowledge gaps in research to
1
improve the prostate cancer research port-
2
folio of the Federal Government;
3
(ii) outline key research questions,
4
methodologies, and knowledge gaps; and
5
(iii) ensure consistent action, as out-
6
lined by section 402(b) of the Public
7
Health Service Act;
8
(E) develop a coordinated message related
9
to screening and treatment for prostate cancer
10
to be reflected in educational and beneficiary
11
materials for Federal health programs as such
12
documents are updated; and
13
(F) not later than 2 years after the date
14
of the establishment of the Prostate Cancer
15
Task Force, submit to the Expert Advisory
16
Panel to be reviewed and returned within 30
17
days, and then within 90 days submitted to
18
Congress recommendations—
19
(i) regarding any appropriate changes
20
to research and health care programs, in-
21
cluding recommendations to improve the
22
research portfolio of the Department of
23
Veterans Affairs, the Department of De-
24
fense, National Institutes of Health, and
25
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other Federal agencies to ensure that sci-
1
entifically based strategic planning is im-
2
plemented in support of research and
3
health care program priorities;
4
(ii) designed to ensure that the re-
5
search and health care programs and ac-
6
tivities of the Department of Veterans Af-
7
fairs, the Department of Defense, the De-
8
partment of Health and Human Services,
9
and other Federal agencies are free of un-
10
necessary duplication;
11
(iii) regarding public participation in
12
decisions relating to prostate cancer re-
13
search and health care programs to in-
14
crease the involvement of patient advo-
15
cates, community organizations, and med-
16
ical associations representing a broad geo-
17
graphical area;
18
(iv) on how to best disseminate infor-
19
mation on prostate cancer research and
20
progress achieved by health care programs;
21
(v) about how to expand partnerships
22
between public entities, including Federal
23
agencies, and private entities to encourage
24
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collaborative, cross-cutting research and
1
health care delivery;
2
(vi) assessing any cost savings and ef-
3
ficiencies realized through the efforts iden-
4
tified and supported in this section and
5
recommending expansion of those efforts
6
that have proved most promising while also
7
ensuring against any conflicts in directives
8
from other congressional or statutory man-
9
dates or enabling statutes;
10
(vii) identifying key priority action
11
items from among the recommendations;
12
and
13
(viii) with respect to the level of fund-
14
ing needed by each agency to implement
15
the recommendations contained in the re-
16
port.
17
(3) MEMBERS OF THE PROSTATE CANCER TASK
18
FORCE.—The Prostate Cancer Task Force described
19
in this subsection shall be composed of representa-
20
tives from such Federal agencies, as each Secretary
21
determines necessary, to coordinate a uniform mes-
22
sage relating to prostate cancer screening and treat-
23
ment where appropriate, including representatives of
24
the following:
25
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(A) The Department of Veterans Affairs,
1
including representatives of each relevant pro-
2
gram area of the Department of Veterans Af-
3
fairs.
4
(B) The Prostate Cancer Research Pro-
5
gram of the Congressionally Directed Medical
6
Research Program of the Department of De-
7
fense.
8
(C) The Department of Health and
9
Human Services, including at a minimum rep-
10
resentatives of the following:
11
(i) The National Institutes of Health.
12
(ii) National research institutes and
13
centers, including the National Cancer In-
14
stitute, the National Institute of Allergy
15
and Infectious Diseases, and the Office of
16
Minority Health.
17
(iii) The Centers for Medicare & Med-
18
icaid Services.
19
(iv) The Food and Drug Administra-
20
tion.
21
(v) The Centers for Disease Control
22
and Prevention.
23
(vi) The Agency for Healthcare Re-
24
search and Quality.
25
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(vii) The Health Resources and Serv-
1
ices Administration.
2
(4) APPOINTING EXPERT ADVISORY PANELS.—
3
The Prostate Cancer Task Force shall appoint ex-
4
pert advisory panels, as determined appropriate, to
5
provide input and concurrence from individuals and
6
organizations from the medical, prostate cancer pa-
7
tient and advocate, research, and delivery commu-
8
nities with expertise in prostate cancer diagnosis,
9
treatment, and research, including practicing urolo-
10
gists, primary care providers, and others and indi-
11
viduals with expertise in education and outreach to
12
underserved populations affected by prostate cancer.
13
(5) MEETINGS.—The Prostate Cancer Task
14
Force shall convene not less than twice a year, or
15
more frequently as the Secretary determines to be
16
appropriate.
17
(6) FEDERAL ADVISORY COMMITTEE ACT.—
18
(A) IN GENERAL.—Except as provided in
19
subparagraph (B), the Federal Advisory Com-
20
mittee Act (5 U.S.C. App.) shall apply to the
21
Prostate Cancer Task Force.
22
(B) EXCEPTION.—Section 14(a)(2)(B) of
23
such Act (relating to the termination of advi-
24
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sory committees) shall not apply to the Prostate
1
Cancer Task Force.
2
(7) SUNSET DATE.—The Prostate Cancer Task
3
Force shall terminate at the end of fiscal year 2021.
4
(d) PROSTATE CANCER RESEARCH.—
5
(1) RESEARCH COORDINATION.—The Secretary
6
of Veterans Affairs, in coordination with the Secre-
7
taries of Defense and of Health and Human Serv-
8
ices, shall establish and carry out a program to co-
9
ordinate and intensify prostate cancer research as
10
needed. Specifically, such research program shall—
11
(A) develop advances in diagnostic and
12
prognostic methods and tests, including bio-
13
markers and an improved prostate cancer
14
screening blood test, including improvements or
15
alternatives to the prostate specific antigen test
16
and additional tests to distinguish indolent from
17
aggressive disease;
18
(B) better understand the etiology of the
19
disease (including an analysis of lifestyle factors
20
proven to be involved in higher rates of prostate
21
cancer, such as obesity and diet, and in dif-
22
ferent ethnic, racial, and socioeconomic groups,
23
such as the African-American, Latino or His-
24
panic, and American Indian populations and
25
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men with a family history of prostate cancer) to
1
improve prevention efforts;
2
(C) expand basic research into prostate
3
cancer, including studies of fundamental molec-
4
ular and cellular mechanisms;
5
(D) identify and provide clinical testing of
6
novel agents for the prevention and treatment
7
of prostate cancer;
8
(E) establish clinical registries for prostate
9
cancer;
10
(F) use the National Institute of Bio-
11
medical Imaging and Bioengineering and the
12
National Cancer Institute for assessment of ap-
13
propriate imaging modalities; and
14
(G) address such other matters relating to
15
prostate cancer research as may be identified by
16
the Federal agencies participating in the pro-
17
gram under this section.
18
(2) PROSTATE
CANCER
ADVISORY
BOARD.—
19
There is established in the Office of the Chief Sci-
20
entist of the Food and Drug Administration a Pros-
21
tate Cancer Scientific Advisory Board. Such board
22
shall be responsible for accelerating real-time shar-
23
ing of the latest research data and accelerating
24
movement of new medicines to patients.
25
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(3) UNDERSERVED
MINORITY
GRANT
PRO-
1
GRAM.—In carrying out such program, the Secretary
2
shall—
3
(A) award grants to eligible entities to
4
carry out components of the research outlined
5
in paragraph (1);
6
(B) integrate and build upon existing
7
knowledge gained from comparative effective-
8
ness research; and
9
(C) recognize and address—
10
(i) the racial and ethnic disparities in
11
the incidence and mortality rates of pros-
12
tate cancer and men with a family history
13
of prostate cancer;
14
(ii) any barriers in access to care and
15
participation in clinical trials that are spe-
16
cific to racial, ethnic, and other under-
17
served minorities and men with a family
18
history of prostate cancer;
19
(iii) needed outreach and educational
20
efforts to raise awareness in these commu-
21
nities; and
22
(iv) appropriate access and utilization
23
of imaging modalities.
24
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(e) TELEHEALTH
AND
RURAL
ACCESS
PILOT
1
PROJECTS.—
2
(1) IN GENERAL.—The Secretary of Veterans
3
Affairs, the Secretary of Defense, and the Secretary
4
of Health and Human Services (in this section re-
5
ferred to as the ‘‘Secretaries’’) shall establish 4-year
6
telehealth pilot projects for the purpose of analyzing
7
the clinical outcomes and cost-effectiveness associ-
8
ated with telehealth services in a variety of geo-
9
graphic areas that contain high proportions of medi-
10
cally underserved populations, including African
11
Americans, Latinos or Hispanics, American Indians
12
or Alaska Natives, and those in rural areas. Such
13
projects shall promote efficient use of specialist care
14
through better coordination of primary care and
15
physician extender teams in underserved areas and
16
more effectively employ tumor boards to better coun-
17
sel patients.
18
(2) ELIGIBLE ENTITIES.—
19
(A) IN
GENERAL.—The Secretaries shall
20
select eligible entities to participate in the pilot
21
projects under this section.
22
(B) PRIORITY.—In selecting eligible enti-
23
ties to participate in the pilot projects under
24
this section, the Secretaries shall give priority
25
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to such entities located in medically under-
1
served areas, particularly those that include Af-
2
rican Americans, Latinos and Hispanics, and
3
facilities of the Indian Health Service, including
4
Indian Health Service-operated facilities, trib-
5
ally operated facilities, and Urban Indian Clin-
6
ics, and those in rural areas.
7
(3)
EVALUATION.—The
Secretaries
shall,
8
through the pilot projects, evaluate—
9
(A) the effective and economic delivery of
10
care in diagnosing and treating prostate cancer
11
with the use of telehealth services in medically
12
underserved and Tribal areas including collabo-
13
rative uses of health professionals and integra-
14
tion of the range of telehealth and other tech-
15
nologies;
16
(B) the effectiveness of improving the ca-
17
pacity of nonmedical providers and nonspecial-
18
ized medical providers to provide health services
19
for prostate cancer in medically underserved
20
and Tribal areas, including the exploration of
21
innovative medical home models with collabora-
22
tion between urologists, other relevant medical
23
specialists, including oncologists, radiologists,
24
and primary care teams and coordination of
25
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care through the efficient use of primary care
1
teams and physician extenders; and
2
(C) the effectiveness of using telehealth
3
services to provide prostate cancer treatment in
4
medically underserved areas, including the use
5
of tumor boards to facilitate better patient
6
counseling.
7
(4) REPORT.—Not later than 12 months after
8
the completion of the pilot projects under this sub-
9
section, the Secretaries shall submit to Congress a
10
report describing the outcomes of such pilot projects,
11
including any cost savings and efficiencies realized,
12
and providing recommendations, if any, for expand-
13
ing the use of telehealth services.
14
(f) EDUCATION AND AWARENESS.—
15
(1) IN GENERAL.—The Secretary of Veterans
16
Affairs shall develop a national education campaign
17
for prostate cancer. Such campaign shall involve the
18
use of written educational materials and public serv-
19
ice announcements consistent with the findings of
20
the Prostate Cancer Task Force under subsection
21
(c), that are intended to encourage men to seek
22
prostate cancer screening when appropriate.
23
(2) RACIAL DISPARITIES AND THE POPULATION
24
OF
MEN
WITH
A
FAMILY
HISTORY
OF
PROSTATE
25
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CANCER.—In developing the national campaign
1
under paragraph (1), the Secretary shall ensure that
2
such educational materials and public service an-
3
nouncements are more readily available in commu-
4
nities experiencing racial disparities in the incidence
5
and mortality rates of prostate cancer and by men
6
of any race classification with a family history of
7
prostate cancer.
8
(3) GRANTS.—In carrying out the national
9
campaign under this section, the Secretary shall
10
award grants to nonprofit private entities to enable
11
such entities to test alternative outreach and edu-
12
cation strategies.
13
(g) AUTHORIZATION OF APPROPRIATIONS.—
14
(1) IN GENERAL.—There is authorized to be
15
appropriated to carry out this section for the period
16
of fiscal years 2019 through 2023 an amount equal
17
to the savings described in paragraph (2).
18
(2)
CORRESPONDING
REDUCTION.—The
19
amount authorized to be appropriated by provisions
20
of law other than this section for the period of fiscal
21
years 2019 through 2023 for Federal research and
22
health care program activities related to prostate
23
cancer is reduced by the amount of Federal savings
24
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projected to be achieved over such period by imple-
1
mentation of this section.
2
SEC. 703. IMPROVED MEDICAID COVERAGE FOR CERTAIN
3
BREAST AND CERVICAL CANCER PATIENTS
4
IN THE TERRITORIES.
5
(a) ELIMINATION OF FUNDING LIMITATIONS.—
6
(1) IN GENERAL.—Section 1108(g)(4) of the
7
Social Security Act (42 U.S.C. 1308(g)(4)) is
8
amended by adding at the end the following: ‘‘With
9
respect to fiscal years beginning with fiscal year
10
2019, payment for medical assistance for individuals
11
who are eligible for such assistance only on the basis
12
of section 1902(a)(10)(A)(ii)(XVIII) shall not be
13
taken into account in applying subsection (f) (as in-
14
creased in accordance with paragraphs (1), (2), (3),
15
and (5) of this subsection) to such commonwealth or
16
territory for such fiscal year.’’.
17
(2) TECHNICAL AMENDMENT.—Such section is
18
further amended by striking ‘‘(3), and (4)’’ and in-
19
serting ‘‘(3), and (5)’’.
20
(b) APPLICATION OF ENHANCED FMAP FOR HIGH-
21
EST STATE.—Section 1905(b) of such Act (42 U.S.C.
22
1396d(b)) is amended by adding at the end the following:
23
‘‘Notwithstanding the first sentence of this subsection,
24
with respect to medical assistance described in clause (4)
25
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of such sentence that is furnished in Puerto Rico, the
1
United States Virgin Islands, Guam, the Commonwealth
2
of the Northern Mariana Islands, or American Samoa in
3
a fiscal year, the Federal medical assistance percentage
4
is equal to the highest such percentage applied under such
5
clause for such fiscal year for any of the 50 States or the
6
District of Columbia that provides such medical assistance
7
for any portion of such fiscal year.’’
8
(c) EFFECTIVE DATE.—The amendments made by
9
this section shall apply to payment for medical assistance
10
for items and services furnished on or after October 1,
11
2016.
12
SEC. 704. CANCER PREVENTION AND TREATMENT DEM-
13
ONSTRATION FOR ETHNIC AND RACIAL MI-
14
NORITIES.
15
(a) DEMONSTRATION.—
16
(1) IN GENERAL.—The Secretary of Health and
17
Human Services (in this section referred to as the
18
‘‘Secretary’’) shall conduct demonstration projects
19
(in this section referred to as ‘‘demonstration
20
projects’’) for the purpose of developing models and
21
evaluating methods that—
22
(A) improve the quality of items and serv-
23
ices provided to target individuals in order to
24
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facilitate reduced disparities in early detection
1
and treatment of cancer;
2
(B) improve clinical outcomes, satisfaction,
3
quality of life, appropriate use of items and
4
services covered under the Medicare Program
5
under title XVIII of the Social Security Act (42
6
U.S.C. 1395 et seq.), and referral patterns with
7
respect to target individuals with cancer;
8
(C) eliminate disparities in the rate of pre-
9
ventive cancer screening measures, such as Pap
10
smears, prostate cancer screenings, colon cancer
11
screenings, breast cancer screenings, and com-
12
puted tomography (CT) scans, for lung cancer
13
among target individuals;
14
(D) promote collaboration with community-
15
based organizations to ensure cultural com-
16
petency of health care professionals and lin-
17
guistic access for target individuals who are
18
persons with limited-English proficiency; and
19
(E) encourage the incorporation of commu-
20
nity health workers to increase the efficiency
21
and appropriateness of cancer screening pro-
22
grams.
23
(2) COMMUNITY HEALTH WORKER DEFINED.—
24
In this section, the term ‘‘community health worker’’
25
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includes a community health advocate, a lay health
1
worker, a community health representative, a peer
2
health promoter, a community health outreach work-
3
er, and a promotore de salud, who promotes health
4
or nutrition within the community in which the indi-
5
vidual resides.
6
(3) TARGET
INDIVIDUAL
DEFINED.—In this
7
section, the term ‘‘target individual’’ means an indi-
8
vidual of a racial and ethnic minority group, as de-
9
fined in section 1707(g)(1) of the Public Health
10
Service Act (42 U.S.C. 300u–6(g)(1)), who is enti-
11
tled to benefits under part A, and enrolled under
12
part B, of title XVIII of the Social Security Act.
13
(b) PROGRAM DESIGN.—
14
(1) INITIAL DESIGN.—Not later than 1 year
15
after the date of the enactment of this Act, the Sec-
16
retary shall evaluate best practices in the private
17
sector, community programs, and academic research
18
of methods that reduce disparities among individuals
19
of racial and ethnic minority groups in the preven-
20
tion and treatment of cancer and shall design the
21
demonstration projects based on such evaluation.
22
(2) NUMBER AND PROJECT AREAS.—Not later
23
than 2 years after the date of the enactment of this
24
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Act, the Secretary shall implement at least nine
1
demonstration projects, including the following:
2
(A) Two projects, each of which shall tar-
3
get different ethnic subpopulations, for each of
4
the four following major racial and ethnic mi-
5
nority groups:
6
(i) American Indians and Alaska Na-
7
tives, Eskimos and Aleuts.
8
(ii) Asian Americans.
9
(iii) Blacks/African Americans.
10
(iv) Latinos or Hispanics.
11
(v) Native Hawaiians and other Pa-
12
cific Islanders.
13
(B) One project within the Pacific Islands
14
or United States insular areas.
15
(C) At least one project each in a rural
16
area and inner-city area.
17
(3) EXPANSION
OF
PROJECTS; IMPLEMENTA-
18
TION
OF
DEMONSTRATION
PROJECT
RESULTS.—If
19
the initial report under subsection (c) contains an
20
evaluation that demonstration projects—
21
(A) reduce expenditures under the Medi-
22
care Program under title XVIII of the Social
23
Security Act (42 U.S.C. 1395 et seq.); or
24
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(B) do not increase expenditures under the
1
Medicare Program and reduce racial and ethnic
2
health disparities in the quality of health care
3
services provided to target individuals and in-
4
crease satisfaction of Medicare beneficiaries and
5
health care providers;
6
the Secretary shall continue the existing demonstra-
7
tion projects and may expand the number of dem-
8
onstration projects.
9
(c) REPORT TO CONGRESS.—
10
(1) IN GENERAL.—Not later than 2 years after
11
the date the Secretary implements the initial dem-
12
onstration projects, and biannually thereafter, the
13
Secretary shall submit to Congress a report regard-
14
ing the demonstration projects.
15
(2) CONTENTS OF REPORT.—Each report under
16
paragraph (1) shall include the following:
17
(A) A description of the demonstration
18
projects.
19
(B) An evaluation of—
20
(i) the cost-effectiveness of the dem-
21
onstration projects;
22
(ii) the quality of the health care serv-
23
ices provided to target individuals under
24
the demonstration projects; and
25
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(iii) beneficiary and health care pro-
1
vider satisfaction under the demonstration
2
projects.
3
(C) Any other information regarding the
4
demonstration projects that the Secretary de-
5
termines to be appropriate.
6
(d) WAIVER AUTHORITY.—The Secretary shall waive
7
compliance with the requirements of title XVIII of the So-
8
cial Security Act (42 U.S.C. 1395 et seq.) to such extent
9
and for such period as the Secretary determines is nec-
10
essary to conduct demonstration projects.
11
SEC. 705. REDUCING CANCER DISPARITIES WITHIN MEDI-
12
CARE.
13
(a) DEVELOPMENT OF MEASURES OF DISPARITIES
14
IN QUALITY OF CANCER CARE.—
15
(1) DEVELOPMENT OF MEASURES.—The Sec-
16
retary of Health and Human Services (in this sec-
17
tion referred to as the ‘‘Secretary’’) shall enter into
18
an agreement with an entity that specializes in de-
19
veloping quality measures for cancer care under
20
which the entity shall develop a uniform set of meas-
21
ures to evaluate disparities in the quality of cancer
22
care and annually update such set of measures.
23
(2) MEASURES TO BE INCLUDED.—Such set of
24
measures shall include, with respect to the treatment
25
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of cancer, measures of patient outcomes, the process
1
for delivering medical care related to such treat-
2
ment, patient counseling and engagement in deci-
3
sionmaking, patient experience of care, resource use,
4
and practice capabilities, such as care coordination.
5
(b) ESTABLISHMENT OF REPORTING PROCESS.—
6
(1) IN GENERAL.—The Secretary shall establish
7
a reporting process that requires and provides for a
8
method for health care providers specified under
9
paragraph (2) to submit to the Secretary and make
10
public data on the performance of such providers
11
during each reporting period through use of the
12
measures developed pursuant to subsection (a). Such
13
data shall be submitted in a form and manner and
14
at a time specified by the Secretary.
15
(2) SPECIFICATION OF PROVIDERS TO REPORT
16
ON
MEASURES.—The Secretary shall specify the
17
classes of Medicare providers of services and sup-
18
pliers, including hospitals, cancer centers, physi-
19
cians, primary care providers, and specialty pro-
20
viders, that will be required under such process to
21
publicly report on the measures specified under sub-
22
section (a).
23
(3) ASSESSMENT
OF
CHANGES.—Under such
24
reporting process, the Secretary shall establish a for-
25
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mat that assesses changes in both the absolute and
1
relative disparities in cancer care over time. These
2
measures shall be presented in an easily comprehen-
3
sible format, such as those presented in the final
4
publications relating to Healthy People 2010 or the
5
National Healthcare Disparities Report.
6
(4) INITIAL IMPLEMENTATION.—The Secretary
7
shall implement the reporting process under this
8
subsection for reporting periods beginning not later
9
than 6 months after the date that measures are first
10
established under subsection (a).
11
Subtitle
B—Viral
Hepatitis
and
12
Liver Cancer Control and Pre-
13
vention
14
SEC. 711. VIRAL HEPATITIS AND LIVER CANCER CONTROL
15
AND PREVENTION.
16
(a) SHORT TITLE.—This subtitle may be cited as the
17
‘‘Viral Hepatitis and Liver Cancer Control and Prevention
18
Act of 2018’’.
19
(b) FINDINGS.—Congress finds the following:
20
(1) In the United States, as many as 4,400,000
21
persons are living with the hepatitis B virus (re-
22
ferred to in this section as ‘‘HBV’’) or the hepatitis
23
C virus (referred to in this section as ‘‘HCV’’).
24
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(2) In the United States, chronic HBV and
1
HCV are the most common cause of liver cancer,
2
one of the most lethal and fastest growing cancers
3
in this country. It is the most common cause of
4
chronic liver disease, liver cirrhosis, and the most
5
common indication for liver transplantation. At least
6
21,000 deaths per year in the United States can be
7
attributed to chronic HBV and HCV. Chronic HCV
8
is also a leading cause of death in Americans living
9
with HIV/AIDS; many of those living with HIV/
10
AIDS are coinfected with chronic HBV, chronic
11
HCV, or both.
12
(3) According to the Centers for Disease Con-
13
trol and Prevention (referred to in this section as
14
the ‘‘CDC’’), approximately 2 percent of the popu-
15
lation of the United States is living with chronic
16
HBV, chronic HCV, or both. The CDC has recog-
17
nized HCV as the Nation’s most common chronic
18
bloodborne virus infection and HBV as the deadliest
19
vaccine-preventable disease.
20
(4) HBV is easily transmitted and is 100 times
21
more infectious than HIV. According to the CDC,
22
HBV is transmitted through contact with infectious
23
blood, semen, or other body fluids. HCV is trans-
24
mitted by contact with infectious blood, particularly
25
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through percutaneous exposures (i.e. puncture
1
through the skin).
2
(5) The CDC estimates that in 2015, approxi-
3
mately 33,900 Americans were newly infected with
4
HCV and approximately 21,900 Americans were
5
newly infected with HBV. These estimates could be
6
much higher due to many reasons, including lack of
7
screening education and awareness, and perceived
8
marginalization of the populations at risk.
9
(6) In 2012, CDC released new guidelines rec-
10
ommending every person born between 1945 and
11
1965 receive a one-time test. Among the estimated
12
102 million (1.6 million chronically HCV-infected)
13
eligible for screening, birth-cohort screening leads to
14
84,000 fewer cases of decompensated cirrhosis,
15
46,000 fewer cases of hepatocellular carcinoma,
16
10,000 fewer liver transplants, and 78,000 fewer
17
HCV-related deaths gained versus risk-based screen-
18
ing.
19
(7) In 2013, the United States Preventive Serv-
20
ices Task Force (USPSTF) issued a Grade B rating
21
for screening for the hepatitis C virus (HCV) infec-
22
tion in persons at high risk for infection and adults
23
born between 1945 and 1965. In 2014, the
24
USPSTF issued a Grade B for screening for the
25
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hepatitis B virus (HBV) in persons at high-risk of
1
hepatitis B infection. In 2009, the USPSTF issued
2
a Grade A for screening pregnant women for the
3
hepatitis B virus (HBV) during their first prenatal
4
visit.
5
(8) There were 59 outbreaks (24 of HBV and
6
36 of HCV, including one of both HBV and HCV)
7
reported to CDC for investigation from 2008
8
through 2016 related to healthcare-associated infec-
9
tion of HBV and HCV, 56 of which occurred in non-
10
hospital settings. There were more than 115,983 pa-
11
tients potentially exposed to one of the viruses.
12
(9) Chronic HBV and chronic HCV usually do
13
not cause symptoms early in the course of the dis-
14
ease, but after many years of a clinically ‘‘silent’’
15
phase, CDC estimates show more than 33 percent of
16
infected individuals will develop cirrhosis, end-stage
17
liver disease, or liver cancer. Since most individuals
18
with chronic HBV, HCV, or both are unaware of
19
their infection, they do not know to take precautions
20
to prevent the spread of their infection and can un-
21
knowingly exacerbate their own disease progression.
22
(10) HBV and HCV disproportionately affect
23
certain populations in the United States. Although
24
representing only about 5 percent of the population,
25
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Asian Americans and Pacific Islanders account for
1
over half of all chronic HBV cases in the United
2
States. Baby boomers (those born between 1945 and
3
1965) account for approximately 75 percent of do-
4
mestic chronic hepatitis C cases. In addition, African
5
Americans, Latinos (Latinas), and American Indian/
6
Native Alaskans are among the groups which have
7
disproportionately high rates of HBV and/or HCV
8
infections in the United States.
9
(11) For both chronic HBV and chronic HCV,
10
behavioral changes can slow disease progression if
11
diagnosis is made early. Early diagnosis, which is
12
determined through simple blood tests, can reduce
13
the risk of transmission and disease progression
14
through education and vaccination of household
15
members and other susceptible persons at risk.
16
(12) Advancements have led to the development
17
of improved diagnostic tests for viral hepatitis.
18
These tests, including rapid, point of care testing
19
and others in development, can facilitate testing, no-
20
tification of results and post-test counseling, and re-
21
ferral to care at the time of the testing visit. In par-
22
ticular, these tests are also advantageous because
23
they can be used simultaneously with HIV rapid
24
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testing for persons at risk for both HCV and HIV
1
infections.
2
(13) For those chronically infected with HBV
3
or HCV, regular monitoring can lead to the early de-
4
tection of liver cancer at a stage where a cure is still
5
possible. Liver cancer is the second deadliest cancer
6
in the United States; however, liver cancer has re-
7
ceived little funding for research, prevention, or
8
treatment.
9
(14) Treatment for chronic HCV can eradicate
10
the disease in approximately 90 percent of those cur-
11
rently treated. The treatment of chronic HBV can
12
effectively suppress viral replication in the over-
13
whelming majority (over 80 percent) of those treat-
14
ed, thereby reducing the risk of transmission and
15
progression to liver scarring or liver cancer, even
16
though a complete cure is much less common than
17
for HCV.
18
(15) To combat the viral hepatitis epidemic in
19
the United States, in February 2017, the Depart-
20
ment of Health and Human Services released its
21
‘‘National Viral Hepatitis Action Plan 2017–2020’’
22
(hereafter referred to as the ‘‘HHS Action Plan’’).
23
In March 2017, the National Academies of Sciences,
24
Engineering, and Medicine (NASEM) released ‘‘A
25
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National Strategy for the Elimination of Hepatitis B
1
and C: Phase Two Report’’, recommending specific
2
actions to eliminate viral hepatitis as public health
3
problems in the United States by 2030.
4
(16) The annual health care costs attributable
5
to HBV and HCV in the United States are signifi-
6
cant. For HBV, it is estimated to be approximately
7
$2,500,000,000 ($2,000 per infected person). In
8
2000, the lifetime cost of HBV—before the avail-
9
ability of most current therapies—was approximately
10
$80,000 per chronically infected person, totaling
11
more than $100,000,000,000. For HCV, medical
12
costs for patients are expected to increase from
13
$30,000,000,000 in 2009 to over $85,000,000,000
14
in 2024. Avoiding these costs by screening and diag-
15
nosing individuals earlier—and connecting them to
16
appropriate treatment and care, will save lives and
17
critical health care dollars. Currently, without a
18
comprehensive screening, testing, and diagnosis pro-
19
gram, most patients are diagnosed too late when
20
they need a liver transplant costing at least
21
$314,000 for uncomplicated cases or when they have
22
liver cancer or end-stage liver disease which costs
23
$30,980 to $110,576 per hospital admission. As
24
health care costs continue to grow, it is critical that
25
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the Federal Government invests in effective mecha-
1
nisms to avoid documented cost drivers.
2
(17) According to the IOM report in 2010,
3
chronic HBV and HCV infections cause substantial
4
morbidity and mortality despite being preventable
5
and treatable. Deficiencies in the implementation of
6
established guidelines for the prevention, diagnosis,
7
and medical management of chronic HBV and HCV
8
infections perpetuate personal and economic bur-
9
dens. Existing grants are not sufficient for the scale
10
of the health burden presented by HBV and HCV.
11
(18) Screening and testing for HBV and HCV
12
is aligned with the Healthy People 2020 goal to in-
13
crease immunization rates and reduce preventable
14
infectious diseases. Awareness of disease and access
15
to prevention and treatment remain essential compo-
16
nents for reducing infectious disease transmission.
17
(19) Federal support is necessary to increase
18
knowledge and awareness of HBV and HCV and to
19
assist State and local prevention and control efforts
20
in reducing the morbidity and mortality of these
21
epidemics.
22
(20) The Secretary of Health and Human Serv-
23
ices has the discretion to carry out this Act directly
24
and through whichever of the agencies of the Public
25
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Health Service the Secretary determines to be ap-
1
propriate, which may (in the Secretary’s discretion)
2
include the Centers for Disease Control and Preven-
3
tion, the Health Resources and Services Administra-
4
tion, the Substance Abuse and Mental Health Serv-
5
ices Administration, the National Institutes of
6
Health (including the National Institute on Minority
7
Health and Health Disparities), and other agencies
8
of such Service.
9
(21) The Centers for Disease Control and Pre-
10
vention reported a 151 percent increase in hepatitis
11
C cases from 2010–2013, stemming from the opioid,
12
heroin, and overdose epidemics affecting commu-
13
nities nationwide. For the first time since 2006, the
14
number of reported cases of acute hepatitis B infec-
15
tion in the United States is rising; it increased by
16
20.7 percent in 2015 alone, which is also largely due
17
to the opioid epidemic.
18
(c) BIENNIAL ASSESSMENT OF HHS HEPATITIS B
19
AND HEPATITIS C PREVENTION, EDUCATION, RESEARCH,
20
AND MEDICAL MANAGEMENT PLAN.—Title III of the
21
Public Health Service Act (42 U.S.C. 241 et seq.) is
22
amended—
23
(1) by striking section 317N (42 U.S.C. 247b–
24
15); and
25
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(2) by adding at the end the following:
1
‘‘PART X—BIENNIAL ASSESSMENT OF HHS HEPA-
2
TITIS B AND HEPATITIS C PREVENTION, EDU-
3
CATION, RESEARCH, AND MEDICAL MANAGE-
4
MENT PLAN
5
‘‘SEC. 399PP. BIENNIAL UPDATE OF THE PLAN.
6
‘‘(a) IN GENERAL.—The Secretary shall conduct a bi-
7
ennial assessment of the Secretary’s plan for the preven-
8
tion, control, and medical management of, and education
9
and research relating to, hepatitis B and hepatitis C, for
10
the purposes of—
11
‘‘(1) incorporating into such plan new knowl-
12
edge or observations relating to hepatitis B and hep-
13
atitis C (such as knowledge and observations that
14
may be derived from clinical, laboratory, and epide-
15
miological research and disease detection, preven-
16
tion, and surveillance outcomes);
17
‘‘(2) addressing gaps in the coverage or effec-
18
tiveness of the plan; and
19
‘‘(3) evaluating and, if appropriate, updating
20
recommendations, guidelines, or educational mate-
21
rials of the Centers for Disease Control and Preven-
22
tion or the National Institutes of Health for health
23
care providers or the public on viral hepatitis in
24
order to be consistent with the plan.
25
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‘‘(b) PUBLICATION OF NOTICE OF ASSESSMENTS.—
1
Not later than October 1 of the first even-numbered year
2
beginning after the date of the enactment of this part,
3
and October 1 of each even-numbered year thereafter, the
4
Secretary shall publish in the Federal Register a notice
5
of the results of the assessments conducted under para-
6
graph (1). Such notice shall include—
7
‘‘(1) a description of any revisions to the plan
8
referred to in subsection (a) as a result of the as-
9
sessment;
10
‘‘(2) an explanation of the basis for any such
11
revisions, including the ways in which such revisions
12
can reasonably be expected to further promote the
13
original goals and objectives of the plan; and
14
‘‘(3) in the case of a determination by the Sec-
15
retary that the plan does not need revision, an expla-
16
nation of the basis for such determination.
17
‘‘SEC. 399PP–1. ELEMENTS OF PROGRAM.
18
‘‘(a) EDUCATION AND AWARENESS PROGRAMS.—The
19
Secretary, acting through the Director of the Centers for
20
Disease Control and Prevention, the Administrator of the
21
Health Resources and Services Administration, and the
22
Administrator of the Substance Abuse and Mental Health
23
Services Administration, and in accordance with the plan
24
referred to in section 399PP(a), shall implement programs
25
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to increase awareness and enhance knowledge and under-
1
standing of hepatitis B and hepatitis C. Such programs
2
shall include—
3
‘‘(1) the conduct of culturally and language ap-
4
propriate health education in primary and secondary
5
schools, college campuses, public awareness cam-
6
paigns, and community outreach activities (especially
7
to the ethnic communities with high rates of chronic
8
hepatitis B and chronic hepatitis C and other high-
9
risk groups) to promote public awareness and knowl-
10
edge about the value of hepatitis A and hepatitis B
11
immunization, risk factors, the transmission and
12
prevention of hepatitis B and hepatitis C, the value
13
of screening for the early detection of hepatitis B
14
and hepatitis C, and options available for the treat-
15
ment of chronic hepatitis B and chronic hepatitis C;
16
‘‘(2) the promotion of immunization programs
17
that increase awareness and access to hepatitis A
18
and hepatitis B vaccines for susceptible adults and
19
children;
20
‘‘(3) the training of health care professionals
21
regarding the importance of vaccinating individuals
22
infected with hepatitis C and individuals who are at
23
risk for hepatitis C infection against hepatitis A and
24
hepatitis B;
25
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‘‘(4) the training of health care professionals
1
regarding the importance of vaccinating individuals
2
chronically infected with hepatitis B and individuals
3
who are at risk for chronic hepatitis B infection
4
against the hepatitis A virus;
5
‘‘(5) the training of health care professionals
6
and health educators to make them aware of the
7
high rates of chronic hepatitis B and chronic hepa-
8
titis C in certain adult ethnic populations, and the
9
importance of prevention, detection, and medical
10
management of hepatitis B and hepatitis C and of
11
liver cancer screening;
12
‘‘(6) the development and distribution of health
13
education curricula (including information relating
14
to the special needs of individuals infected with hep-
15
atitis B and hepatitis C, such as the importance of
16
prevention and early intervention, regular moni-
17
toring, the recognition of psychosocial needs, appro-
18
priate treatment, and liver cancer screening) for in-
19
dividuals providing hepatitis B and hepatitis C coun-
20
seling; and
21
‘‘(7) support for the implementation curricula
22
described in paragraph (6) by State and local public
23
health agencies.
24
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‘‘(b) IMMUNIZATION, PREVENTION, AND CONTROL
1
PROGRAMS.—
2
‘‘(1) IN
GENERAL.—The Secretary, acting
3
through the Director of the Centers for Disease
4
Control and Prevention, shall support the integra-
5
tion of activities described in paragraph (3) into ex-
6
isting clinical and public health programs at State,
7
local, territorial, and Tribal levels (including commu-
8
nity health clinics, programs for the prevention and
9
treatment of HIV/AIDS, sexually transmitted infec-
10
tions, and substance abuse, and programs for indi-
11
viduals in correctional settings).
12
‘‘(2) COORDINATION
OF
DEVELOPMENT
OF
13
FEDERAL SCREENING GUIDELINES.—
14
‘‘(A) REFERENCES.—For purposes of this
15
subsection, the term ‘CDC Director’ means the
16
Director of the Centers for Disease Control and
17
Prevention, and the term ‘AHRQ Director’
18
means
the
Director
of
the
Agency
for
19
Healthcare Research and Quality.
20
‘‘(B) AGENCY
FOR
HEALTHCARE
RE-
21
SEARCH
AND
QUALITY.—Due to the rapidly
22
evolving standard of care associated with diag-
23
nosing and treating viral hepatitis infection, the
24
AHRQ Director shall convene the Preventive
25
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Services Task Force under section 915(a) of
1
the Public Health Service Act to review its rec-
2
ommendation for screening for HBV and HCV
3
infection every 3 years.
4
‘‘(3) ACTIVITIES.—
5
‘‘(A) VOLUNTARY TESTING PROGRAMS.—
6
‘‘(i) IN
GENERAL.—The Secretary
7
shall establish a mechanism by which to
8
support and promote the development of
9
State, local, territorial, and Tribal vol-
10
untary hepatitis B and hepatitis C testing
11
programs to screen the high-prevalence
12
populations to aid in the early identifica-
13
tion of chronically infected individuals.
14
‘‘(ii) CONFIDENTIALITY OF THE TEST
15
RESULTS.—The Secretary shall prohibit
16
the use of the results of a hepatitis B or
17
hepatitis C test conducted by a testing pro-
18
gram developed or supported under this
19
subparagraph for any of the following:
20
‘‘(I) Issues relating to health in-
21
surance.
22
‘‘(II) To screen or determine
23
suitability for employment.
24
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‘‘(III) To discharge a person
1
from employment.
2
‘‘(B) COUNSELING REGARDING VIRAL HEP-
3
ATITIS.—The Secretary shall support State,
4
local, territorial, and Tribal programs in a wide
5
variety of settings, including those providing
6
primary and specialty health care services in
7
nonprofit private and public sectors, to—
8
‘‘(i) provide individuals with ongoing
9
risk factors for hepatitis B and hepatitis C
10
infection with client-centered education
11
and counseling which concentrates on—
12
‘‘(I) promoting testing of individ-
13
uals that have been exposed to their
14
blood, family members, and their sex-
15
ual partners; and
16
‘‘(II) changing behaviors that
17
place individuals at risk for infection;
18
‘‘(ii) provide individuals chronically in-
19
fected with hepatitis B or hepatitis C with
20
education, health information, and coun-
21
seling to reduce their risk of—
22
‘‘(I) dying from end-stage liver
23
disease and liver cancer; and
24
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‘‘(II) transmitting viral hepatitis
1
to others; and
2
‘‘(iii) provide women chronically in-
3
fected with hepatitis B or hepatitis C who
4
are pregnant or of childbearing age with
5
culturally and linguistically appropriate
6
health information, such as how to prevent
7
hepatitis B perinatal infection, and to al-
8
leviate fears associated with pregnancy or
9
raising a family.
10
‘‘(C) IMMUNIZATION.—The Secretary shall
11
support State, local, territorial, and Tribal ef-
12
forts to expand the current vaccination pro-
13
grams to protect every child in the country and
14
all susceptible adults, particularly those infected
15
with hepatitis C and high-prevalence ethnic
16
populations and other high-risk groups, from
17
the risks of acute and chronic hepatitis B infec-
18
tion by—
19
‘‘(i) ensuring continued funding for
20
hepatitis B vaccination for all children 19
21
years of age or younger through the Vac-
22
cines for Children Program;
23
‘‘(ii) ensuring that the recommenda-
24
tions of the Advisory Committee on Immu-
25
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nization Practices are followed regarding
1
the birth dose of hepatitis B vaccinations
2
for newborns;
3
‘‘(iii) requiring proof of hepatitis B
4
vaccination for entry into public or private
5
daycare, preschool, elementary school, sec-
6
ondary school, and institutions of higher
7
education;
8
‘‘(iv) expanding the availability of
9
hepatitis B vaccination for all susceptible
10
adults to protect them from becoming
11
acutely or chronically infected, including
12
ethnic and other populations with high
13
prevalence rates of chronic hepatitis B in-
14
fection;
15
‘‘(v) expanding the availability of hep-
16
atitis B vaccination for all susceptible
17
adults, particularly those in their reproduc-
18
tive age (women and men less than 45
19
years of age), to protect them from the
20
risk of hepatitis B infection;
21
‘‘(vi) ensuring the vaccination of indi-
22
viduals infected, or at risk for infection,
23
with hepatitis C against hepatitis A, hepa-
24
titis B, and other infectious diseases, as
25
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appropriate, for which such individuals
1
may be at increased risk; and
2
‘‘(vii) ensuring the vaccination of indi-
3
viduals infected, or at risk for infection,
4
with hepatitis B against hepatitis A virus
5
and other infectious diseases, as appro-
6
priate, for which such individuals may be
7
at increased risk.
8
‘‘(D) MEDICAL REFERRAL.—The Secretary
9
shall support State, local, territorial, and Tribal
10
programs that support—
11
‘‘(i) referral of persons chronically in-
12
fected with hepatitis B or hepatitis C—
13
‘‘(I) for medical evaluation to de-
14
termine
the
appropriateness
for
15
antiviral treatment to reduce the risk
16
of progression to cirrhosis and liver
17
cancer; and
18
‘‘(II) for ongoing medical man-
19
agement including regular monitoring
20
of liver function and screening for
21
liver cancer; and
22
‘‘(ii) referral of persons infected with
23
acute or chronic hepatitis B infection or
24
acute or chronic hepatitis C infection for
25
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drug and alcohol abuse treatment where
1
appropriate.
2
‘‘(4) INCREASED SUPPORT FOR ADULT VIRAL
3
HEPATITIS PREVENTION COORDINATORS.—The Sec-
4
retary, acting through the Director of the Centers
5
for Disease Control and Prevention, shall provide in-
6
creased support to adult viral hepatitis prevention
7
coordinators in State, local, territorial, and Tribal
8
health departments in order to enhance the addi-
9
tional management, networking, and technical exper-
10
tise needed to ensure successful integration of hepa-
11
titis B and hepatitis C prevention and control activi-
12
ties into existing public health programs.
13
‘‘(c) EPIDEMIOLOGICAL SURVEILLANCE.—
14
‘‘(1) IN
GENERAL.—The Secretary, acting
15
through the Director of the Centers for Disease
16
Control and Prevention, shall support the establish-
17
ment and maintenance of a national chronic and
18
acute hepatitis B and hepatitis C surveillance pro-
19
gram, in order to identify—
20
‘‘(A) trends in the incidence of acute and
21
chronic hepatitis B and acute and chronic hepa-
22
titis C;
23
‘‘(B) trends in the prevalence of acute and
24
chronic hepatitis B and acute and chronic hepa-
25
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titis C infection among groups that may be dis-
1
proportionately affected; and
2
‘‘(C) trends in liver cancer and end-stage
3
liver disease incidence and deaths, caused by
4
chronic hepatitis B and chronic hepatitis C in
5
the high-risk ethnic populations.
6
‘‘(2) SEROPREVALENCE
AND
LIVER
CANCER
7
STUDIES.—The Secretary, acting through the Direc-
8
tor of the Centers for Disease Control and Preven-
9
tion, shall prepare a report outlining the population-
10
based seroprevalence studies currently underway, fu-
11
ture planned studies, the criteria involved in deter-
12
mining which seroprevalence studies to conduct,
13
defer, or suspend, and the scope of those studies, the
14
economic and clinical impact of hepatitis B and hep-
15
atitis C, and the impact of chronic hepatitis B and
16
chronic hepatitis C infections on the quality of life.
17
Not later than one year after the date of the enact-
18
ment of this part, the Secretary shall submit the re-
19
port to the Committee on Energy and Commerce of
20
the House of Representatives and the Committee on
21
Health, Education, Labor, and Pensions of the Sen-
22
ate.
23
‘‘(3) CONFIDENTIALITY.—The Secretary shall
24
not disclose any individually identifiable information
25
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identified under paragraph (1) or derived through
1
studies under paragraph (2).
2
‘‘(d) RESEARCH.—The Secretary, acting through the
3
Director of the Centers for Disease Control and Preven-
4
tion, the Director of the National Cancer Institute, and
5
the Director of the National Institutes of Health, shall—
6
‘‘(1) conduct epidemiologic and community-
7
based research to develop, implement, and evaluate
8
best practices for hepatitis B and hepatitis C pre-
9
vention especially in the ethnic populations with high
10
rates of chronic hepatitis B and chronic hepatitis C
11
and other high-risk groups;
12
‘‘(2) conduct research on hepatitis B and hepa-
13
titis C natural history, pathophysiology, improved
14
treatments and prevention (such as the hepatitis C
15
vaccine), and noninvasive tests that help to predict
16
the risk of progression to liver cirrhosis and liver
17
cancer;
18
‘‘(3) conduct research that will lead to better
19
noninvasive or blood tests to screen for liver cancer,
20
and more effective treatments of liver cancer caused
21
by chronic hepatitis B and chronic hepatitis C; and
22
‘‘(4) conduct research comparing the effective-
23
ness of screening, diagnostic, management, and
24
treatment approaches for chronic hepatitis B, chron-
25
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•HR 5942 IH
ic hepatitis C, and liver cancer in the affected com-
1
munities.
2
‘‘(e) UNDERSERVED AND DISPROPORTIONATELY AF-
3
FECTED POPULATIONS.—In carrying out this section, the
4
Secretary shall provide expanded support for individuals
5
with limited access to health education, testing, and health
6
care services and groups that may be disproportionately
7
affected by hepatitis B and hepatitis C.
8
‘‘(f) EVALUATION
OF PROGRAM.—The Secretary
9
shall develop benchmarks for evaluating the effectiveness
10
of the programs and activities conducted under this sec-
11
tion and make determinations as to whether such bench-
12
marks have been achieved.
13
‘‘SEC. 399PP–2. GRANTS.
14
‘‘(a) IN GENERAL.—The Secretary may award grants
15
to, or enter into contracts or cooperative agreements with,
16
States, political subdivisions of States, territories, Indian
17
Tribes, or nonprofit entities that have special expertise re-
18
lating to hepatitis B, hepatitis C, or both, to carry out
19
activities under this part.
20
‘‘(b) APPLICATION.—To be eligible for a grant, con-
21
tract, or cooperative agreement under subsection (a), an
22
entity shall prepare and submit to the Secretary an appli-
23
cation at such time, in such manner, and containing such
24
information as the Secretary may require.
25
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‘‘SEC. 399PP–3. AUTHORIZATION OF APPROPRIATIONS.
1
‘‘There are authorized to be appropriated to carry out
2
this part $90,000,000 for fiscal year 2019, $90,000,000
3
for fiscal year 2020, $110,000,000 for fiscal year 2021,
4
$130,000,000 for fiscal year 2022, and $150,000,000 for
5
fiscal year 2023.’’.
6
Subtitle C—Acquired Bone Marrow
7
Failure Diseases
8
SEC. 721. ACQUIRED BONE MARROW FAILURE DISEASES.
9
(a) SHORT TITLE.—This subtitle may be cited as the
10
‘‘Bone Marrow Failure Disease Research and Treatment
11
Act of 2018’’.
12
(b) FINDINGS.—The Congress finds the following:
13
(1) Between 20,000 and 30,000 Americans are
14
diagnosed each year with myelodysplastic syndromes,
15
aplastic
anemia,
paroxysmal
nocturnal
hemo-
16
globinuria, and other acquired bone marrow failure
17
diseases.
18
(2) Acquired bone marrow failure diseases have
19
a debilitating and often fatal impact on those diag-
20
nosed with these diseases.
21
(3) While some treatments for acquired bone
22
marrow failure diseases can prolong and improve the
23
quality of patients’ lives, there is no single cure for
24
these diseases.
25
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(4) The prevalence of acquired bone marrow
1
failure diseases in the United States will continue to
2
grow as the general public ages.
3
(5) Evidence exists suggesting that acquired
4
bone marrow failure diseases occur more often in
5
minority populations, particularly in Asian-American
6
and Latino or Hispanic populations.
7
(6) The National Heart, Lung, and Blood Insti-
8
tute and the National Cancer Institute have con-
9
ducted important research into the causes of and
10
treatments for acquired bone marrow failure dis-
11
eases.
12
(7) The National Marrow Donor Program Reg-
13
istry has made significant contributions to the fight
14
against bone marrow failure diseases by connecting
15
millions of potential marrow donors with individuals
16
and families suffering from these conditions.
17
(8) Despite these advances, a more comprehen-
18
sive Federal strategic effort among numerous Fed-
19
eral agencies is needed to discover a cure for ac-
20
quired bone marrow failure disorders.
21
(9) Greater Federal surveillance of acquired
22
bone marrow failure diseases is needed to gain a bet-
23
ter understanding of the causes of acquired bone
24
marrow failure diseases.
25
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(10) The Federal Government should increase
1
its research support for and engage with public and
2
private organizations in developing a comprehensive
3
approach to combat and cure acquired bone marrow
4
failure diseases.
5
(c) NATIONAL ACQUIRED BONE MARROW FAILURE
6
DISEASE REGISTRY.—Part B of the Public Health Service
7
Act (42 U.S.C. 311 et seq.) is amended by inserting after
8
section 317W, as added, the following:
9
‘‘SEC. 317X. NATIONAL ACQUIRED BONE MARROW FAILURE
10
DISEASE REGISTRY.
11
‘‘(a) ESTABLISHMENT OF REGISTRY.—
12
‘‘(1) IN GENERAL.—Not later than 6 months
13
after the date of the enactment of this section, the
14
Secretary, acting through the Director of the Cen-
15
ters for Disease Control and Prevention, shall—
16
‘‘(A) develop a system to collect data on
17
acquired bone marrow failure diseases; and
18
‘‘(B) establish and maintain a national and
19
publicly available registry, to be known as the
20
National Acquired Bone Marrow Failure Dis-
21
ease Registry, in accordance with paragraph
22
(3).
23
‘‘(2) RECOMMENDATIONS
OF
ADVISORY
COM-
24
MITTEE.—In carrying out this subsection, the Sec-
25
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retary shall take into consideration the recommenda-
1
tions of the Advisory Committee on Acquired Bone
2
Marrow Failure Diseases established under sub-
3
section (b).
4
‘‘(3) PURPOSES OF REGISTRY.—The National
5
Acquired Bone Marrow Failure Disease Registry—
6
‘‘(A) shall identify the incidence and preva-
7
lence of acquired bone marrow failure diseases
8
in the United States;
9
‘‘(B) shall be used to collect and store data
10
on acquired bone marrow failure diseases, in-
11
cluding data concerning—
12
‘‘(i) the age, race or ethnicity, general
13
geographic location, sex, and family history
14
of individuals who are diagnosed with ac-
15
quired bone marrow failure diseases, and
16
any other characteristics of such individ-
17
uals determined appropriate by the Sec-
18
retary;
19
‘‘(ii) the genetic and environmental
20
factors that may be associated with devel-
21
oping acquired bone marrow failure dis-
22
eases;
23
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‘‘(iii) treatment approaches for deal-
1
ing with acquired bone marrow failure dis-
2
eases;
3
‘‘(iv) outcomes for individuals treated
4
for acquired bone marrow failure diseases,
5
including outcomes for recipients of stem
6
cell therapeutic products as contained in
7
the database established pursuant to sec-
8
tion 379A; and
9
‘‘(v) any other factors pertaining to
10
acquired bone marrow failure diseases de-
11
termined appropriate by the Secretary; and
12
‘‘(C) shall be made available—
13
‘‘(i) to the general public; and
14
‘‘(ii) to researchers to facilitate fur-
15
ther research into the causes of, and treat-
16
ments for, acquired bone marrow failure
17
diseases in accordance with standard prac-
18
tices of the Centers for Disease Control
19
and Preventions.
20
‘‘(b) ADVISORY COMMITTEE.—
21
‘‘(1) ESTABLISHMENT.—Not later than 6
22
months after the date of the enactment of this sec-
23
tion, the Secretary, acting through the Director of
24
the Centers for Disease Control and Prevention,
25
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shall establish an advisory committee, to be known
1
as the Advisory Committee on Acquired Bone Mar-
2
row Failure Diseases.
3
‘‘(2) MEMBERS.—The members of the Advisory
4
Committee on Acquired Bone Marrow Failure Dis-
5
eases shall be appointed by the Secretary, acting
6
through the Director of the Centers for Disease
7
Control and Prevention, and shall include at least
8
one representative from each of the following:
9
‘‘(A) A national patient advocacy organiza-
10
tion with experience advocating on behalf of pa-
11
tients suffering from acquired bone marrow
12
failure diseases.
13
‘‘(B) The National Institutes of Health, in-
14
cluding at least one representative from each
15
of—
16
‘‘(i) the National Cancer Institute;
17
‘‘(ii) the National Heart, Lung, and
18
Blood Institute; and
19
‘‘(iii) the Office of Rare Diseases.
20
‘‘(C) The Centers for Disease Control and
21
Prevention.
22
‘‘(D) Clinicians with experience in—
23
‘‘(i) diagnosing or treating acquired
24
bone marrow failure diseases; and
25
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‘‘(ii) medical data registries.
1
‘‘(E) Epidemiologists who have experience
2
with data registries.
3
‘‘(F) Publicly or privately funded research-
4
ers who have experience researching acquired
5
bone marrow failure diseases.
6
‘‘(G) The entity operating the C.W. Bill
7
Young Cell Transplantation Program estab-
8
lished pursuant to section 379 and the entity
9
operating the C.W. Bill Young Cell Transplan-
10
tation Program Outcomes Database.
11
‘‘(3) RESPONSIBILITIES.—The Advisory Com-
12
mittee on Acquired Bone Marrow Failure Diseases
13
shall provide recommendations to the Secretary on
14
the establishment and maintenance of the National
15
Acquired Bone Marrow Failure Disease Registry, in-
16
cluding recommendations on the collection, mainte-
17
nance, and dissemination of data.
18
‘‘(4) PUBLIC
AVAILABILITY.—The Secretary
19
shall make the recommendations of the Advisory
20
Committee on Acquired Bone Marrow Failure Dis-
21
ease publicly available.
22
‘‘(c) GRANTS.—The Secretary, acting through the
23
Director of the Centers for Disease Control and Preven-
24
tion, may award grants to, and enter into contracts and
25
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cooperative agreements with, public or private nonprofit
1
entities for the management of, as well as the collection,
2
analysis, and reporting of data to be included in, the Na-
3
tional Acquired Bone Marrow Failure Disease Registry.
4
‘‘(d) DEFINITION.—In this section, the term ‘ac-
5
quired bone marrow failure disease’ means—
6
‘‘(1) myelodysplastic syndromes (MDS);
7
‘‘(2) aplastic anemia;
8
‘‘(3)
paroxysmal
nocturnal
hemoglobinuria
9
(PNH);
10
‘‘(4) pure red cell aplasia;
11
‘‘(5) acute myeloid leukemia that has pro-
12
gressed from myelodysplastic syndromes; or
13
‘‘(6) large granular lymphocytic leukemia.
14
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—There
15
is authorized to be appropriated to carry out this section
16
$3,000,000 for each of fiscal years 2019 through 2023.’’.
17
(d) PILOT STUDIES THROUGH THE AGENCY FOR
18
TOXIC SUBSTANCES AND DISEASE REGISTRY.—
19
(1) PILOT STUDIES.—The Secretary of Health
20
and Human Services, acting through the Adminis-
21
trator of the Agency for Toxic Substances and Dis-
22
ease Registry, shall conduct pilot studies to deter-
23
mine which environmental factors, including expo-
24
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sure to toxins, may cause acquired bone marrow fail-
1
ure diseases.
2
(2) COLLABORATION WITH THE RADIATION IN-
3
JURY TREATMENT NETWORK.—In carrying out the
4
directives of this section, the Secretary may collabo-
5
rate with the Radiation Injury Treatment Network
6
of the C.W. Bill Young Cell Transplantation Pro-
7
gram established pursuant to section 379 of the
8
Public Health Service Act (42 U.S.C. 274j) to—
9
(A) augment data for the pilot studies au-
10
thorized by this section;
11
(B) access technical assistance that may be
12
provided by the Radiation Injury Treatment
13
Network; or
14
(C) perform joint research projects.
15
(3) AUTHORIZATION
OF
APPROPRIATIONS.—
16
There is authorized to be appropriated to carry out
17
this section $1,000,000 for each of fiscal years 2019
18
through 2023.
19
(e) MINORITY-FOCUSED PROGRAMS ON ACQUIRED
20
BONE MARROW FAILURE DISEASES.—Title XVII of the
21
Public Health Service Act (42 U.S.C. 300u et seq.) is
22
amended by inserting after section 1707A the following:
23
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‘‘MINORITY-FOCUSED PROGRAMS ON ACQUIRED BONE
1
MARROW FAILURE DISEASES
2
‘‘SEC. 1707B. (a) INFORMATION
AND REFERRAL
3
SERVICES.—
4
‘‘(1) IN GENERAL.—Not later than 6 months
5
after the date of the enactment of this section, the
6
Secretary, acting through the Deputy Assistant Sec-
7
retary for Minority Health, shall establish and co-
8
ordinate outreach and informational programs tar-
9
geted to minority populations affected by acquired
10
bone marrow failure diseases.
11
‘‘(2) PROGRAM
REQUIREMENTS.—Minority-fo-
12
cused outreach and informational programs author-
13
ized by this section—
14
‘‘(A) shall make information about treat-
15
ment options and clinical trials for acquired
16
bone marrow failure diseases publicly available;
17
and
18
‘‘(B) shall provide referral services for
19
treatment options and clinical trials;
20
at the National Minority Health Resource Center
21
supported under section 1707(b)(8) (including by
22
means of the Center’s website, through appropriate
23
locations such as the Center’s knowledge center, and
24
through appropriate programs such as the Center’s
25
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resource persons network) and through minority
1
health consultants located at each Department of
2
Health and Human Services regional office.
3
‘‘(b) HISPANIC AND ASIAN-AMERICAN AND PACIFIC
4
ISLANDER OUTREACH.—
5
‘‘(1) IN
GENERAL.—The Secretary, acting
6
through the Deputy Assistant Secretary for Minority
7
Health, shall undertake a coordinated outreach ef-
8
fort to connect Hispanic, Asian-American, and Pa-
9
cific Islander communities with comprehensive serv-
10
ices focused on treatment of, and information about,
11
acquired bone marrow failure diseases.
12
‘‘(2) COLLABORATION.—In carrying out this
13
subsection, the Secretary may collaborate with public
14
health agencies, nonprofit organizations, community
15
groups, and online entities to disseminate informa-
16
tion about treatment options and clinical trials for
17
acquired bone marrow failure diseases.
18
‘‘(c) GRANTS AND COOPERATIVE AGREEMENTS.—
19
‘‘(1) IN GENERAL.—Not later than 6 months
20
after the date of the enactment of this section, the
21
Secretary, acting through the Deputy Assistant Sec-
22
retary for Minority Health, shall award grants to, or
23
enter into cooperative agreements with, entities to
24
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perform research on acquired bone marrow failure
1
diseases.
2
‘‘(2) REQUIREMENT.—Grants and cooperative
3
agreements authorized by this subsection shall be
4
awarded or entered into on a competitive, peer-re-
5
viewed basis.
6
‘‘(3) SCOPE OF RESEARCH.—Research funded
7
under this section shall examine factors affecting the
8
incidence of acquired bone marrow failure diseases
9
in minority populations.
10
‘‘(d) DEFINITION.—In this section, the term ‘ac-
11
quired bone marrow failure disease’ has the meaning given
12
to such term in section 317X(d).
13
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—There
14
is authorized to be appropriated to carry out this section
15
$2,000,000 for each of fiscal years 2019 through 2023.’’.
16
(f) DIAGNOSIS
AND QUALITY
OF CARE
FOR AC-
17
QUIRED BONE MARROW FAILURE DISEASES.—
18
(1) GRANTS.—The Secretary of Health and
19
Human Services, acting through the Director of the
20
Agency for Healthcare Research and Quality, shall
21
award grants to entities to improve diagnostic prac-
22
tices and quality of care with respect to patients
23
with acquired bone marrow failure diseases.
24
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(2) AUTHORIZATION
OF
APPROPRIATIONS.—
1
There is authorized to be appropriated to carry out
2
this section $2,000,000 for each of fiscal years 2019
3
through 2023.
4
(g) DEFINITION.—In this section, the term ‘‘acquired
5
bone marrow failure disease’’ means—
6
(1) myelodysplastic syndromes (MDS);
7
(2) aplastic anemia;
8
(3)
paroxysmal
nocturnal
hemoglobinuria
9
(PNH);
10
(4) pure red cell aplasia;
11
(5) acute myeloid leukemia that progressed
12
from myelodysplastic syndromes; or
13
(6) large granular lymphocytic leukemia.
14
Subtitle
D—Cardiovascular
Dis-
15
ease,
Chronic
Disease,
and
16
Other Disease Issues
17
SEC. 731. GUIDELINES FOR DISEASE SCREENING FOR MI-
18
NORITY PATIENTS.
19
(a) IN GENERAL.—The Secretary, acting through the
20
Director of the Agency for Healthcare Research and Qual-
21
ity, shall convene a series of meetings to develop guidelines
22
for disease screening for minority patient populations
23
which have a higher than average risk for many chronic
24
diseases and cancers.
25
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(b) PARTICIPANTS.—In convening meetings under
1
subsection (a), the Secretary shall ensure that meeting
2
participants include representatives of—
3
(1) professional societies and associations;
4
(2) minority health organizations;
5
(3) health care researchers and providers, in-
6
cluding those with expertise in minority health;
7
(4) Federal health agencies, including the Of-
8
fice of Minority Health, the National Institute on
9
Minority Health and Health Disparities, and the
10
National Institutes of Health; and
11
(5) other experts determined appropriate by the
12
Secretary.
13
(c) DISEASES.—Screening guidelines for minority
14
populations shall be developed as appropriate under sub-
15
section (a) for—
16
(1) hypertension;
17
(2) hypercholesterolemia;
18
(3) diabetes;
19
(4) cardiovascular disease;
20
(5) cancers, including breast, prostate, colon,
21
cervical, and lung cancer;
22
(6) other pulmonary problems including sleep
23
apnea;
24
(7) asthma;
25
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(8) diabetes;
1
(9) kidney diseases;
2
(10) eye diseases and disorders, including glau-
3
coma;
4
(11) HIV/AIDS and sexually transmitted infec-
5
tions;
6
(12) uterine fibroids;
7
(13) autoimmune disease;
8
(14) mental health conditions;
9
(15) dental health conditions and oral diseases,
10
including oral cancer;
11
(16) environmental and related health illnesses
12
and conditions;
13
(17) sickle cell disease and sickle cell trait;
14
(18) violence and injury prevention and control;
15
(19) genetic and related conditions;
16
(20) heart disease and stroke;
17
(21) tuberculosis;
18
(22) chronic obstructive pulmonary disease;
19
(23) musculoskeletal diseases, arthritis, and
20
obesity; and
21
(24) other diseases determined appropriate by
22
the Secretary.
23
(d) DISSEMINATION.—Not later than 24 months
24
after the date of enactment of this title, the Secretary
25
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shall publish and disseminate to health care provider orga-
1
nizations the guidelines developed under subsection (a).
2
(e) AUTHORIZATION
OF APPROPRIATIONS.—There
3
are authorized to be appropriated to carry out this section
4
such sums as may be necessary for each of fiscal years
5
2019 through 2023.
6
SEC. 732. CDC WISEWOMAN SCREENING PROGRAM.
7
Section 1509 of the Public Health Service Act (42
8
U.S.C. 300n–4a) is amended—
9
(1) in subsection (a)—
10
(A) by striking the heading and inserting
11
‘‘IN GENERAL.—’’; and
12
(B) in the matter preceding paragraph (1),
13
by striking ‘‘may make grants’’ and all that fol-
14
lows through ‘‘purpose’’ and inserting the fol-
15
lowing: ‘‘may make grants to such States for
16
the purpose’’; and
17
(2) in subsection (d)(1), by striking ‘‘there are
18
authorized’’ and all that follows through the period
19
and inserting ‘‘there are authorized to be appro-
20
priated
$23,000,000
for
fiscal
year
2019,
21
$25,300,000 for fiscal year 2020, $27,800,000 for
22
fiscal year 2021, $30,800,000 for fiscal year 2022,
23
and $34,000,000 for fiscal year 2023.’’.
24
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SEC. 733. REPORT ON CARDIOVASCULAR CARE FOR WOMEN
1
AND MINORITIES.
2
Part P of title III of the Public Health Service Act
3
(42 U.S.C. 280g et seq.), as amended, is further amended
4
by adding at the end the following:
5
‘‘SEC. 399V–8. REPORT ON CARDIOVASCULAR CARE FOR
6
WOMEN AND MINORITIES.
7
‘‘Not later than September 30, 2019, and annually
8
thereafter, the Secretary shall prepare and submit to the
9
Congress a report on the quality of and access to care
10
for women and minorities with heart disease, stroke, and
11
other cardiovascular diseases. The report shall contain rec-
12
ommendations for eliminating disparities in, and improv-
13
ing the treatment of, heart disease, stroke, and other car-
14
diovascular diseases in women, racial and ethnic minori-
15
ties, those for whom English is not their primary lan-
16
guage, and individuals with disabilities.’’.
17
SEC. 734. COVERAGE OF COMPREHENSIVE TOBACCO CES-
18
SATION SERVICES IN MEDICAID AND PRI-
19
VATE HEALTH INSURANCE.
20
(a) REQUIRING MEDICAID COVERAGE
OF COUN-
21
SELING AND PHARMACOTHERAPY FOR CESSATION OF TO-
22
BACCO USE.—Section 1905 of the Social Security Act (42
23
U.S.C. 1396d) is amended—
24
(1) in subsection (a)(4)(D), by striking ‘‘by
25
pregnant women’’; and
26
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(2) in subsection (bb)—
1
(A) by striking ‘‘by pregnant women’’ each
2
place it appears;
3
(B) in paragraph (1), in the matter before
4
subparagraph (A), by inserting ‘‘by individuals’’
5
before ‘‘who use tobacco’’; and
6
(C) in paragraph (2)(A), by striking ‘‘with
7
respect to pregnant women’’.
8
(b) EXCEPTION
FROM
OPTIONAL
RESTRICTION
9
UNDER MEDICAID PRESCRIPTION DRUG COVERAGE.—
10
Section 1927(d)(2)(F) of the Social Security Act (42
11
U.S.C. 1396r–8(d)(2)(F)) is amended—
12
(1) by striking ‘‘in the case of pregnant
13
women’’; and
14
(2) by striking ‘‘under the over-the-counter
15
monograph process’’.
16
(c) STATE MONITORING AND PROMOTING OF COM-
17
PREHENSIVE TOBACCO CESSATION SERVICES UNDER
18
MEDICAID.—Section 1902(a) of the Social Security Act
19
(42 U.S.C. 1396a(a)), as amended by section 450(c), is
20
amended—
21
(1) by striking ‘‘and’’ at the end of paragraph
22
(82);
23
(2) by striking the period at the end of para-
24
graph (83) and inserting ‘‘; and’’; and
25
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(3) by inserting after paragraph (83) the fol-
1
lowing new paragraph:
2
‘‘(84) provide for the State to monitor and pro-
3
mote the use of comprehensive tobacco cessation
4
services under the State plan, including conducting
5
an outreach campaign to increase awareness of, and
6
the benefits of using, such services among—
7
‘‘(A) individuals entitled to medical assist-
8
ance under the State plan who use tobacco
9
products; and
10
‘‘(B) clinicians and others who provide
11
services to individuals entitled to medical assist-
12
ance under the State plan.’’.
13
(d) FEDERAL REIMBURSEMENT FOR MEDICAID OUT-
14
REACH CAMPAIGN TO INCREASE AWARENESS.—Section
15
1903(a) of the Social Security Act (42 U.S.C. 1396b(a))
16
is amended—
17
(1) by striking the period at the end of para-
18
graph (7) and inserting ‘‘; plus’’; and
19
(2) by inserting after paragraph (7) the fol-
20
lowing new paragraph:
21
‘‘(8) an amount equal to 90 percent of the
22
sums expended during each quarter which are attrib-
23
utable to the development, implementation, and eval-
24
uation of an outreach campaign to—
25
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‘‘(A) increase awareness of comprehensive
1
tobacco cessation services covered in the State
2
plan among—
3
‘‘(i) individuals who are likely to be el-
4
igible for medical assistance under the
5
State plan; and
6
‘‘(ii) clinicians and others who provide
7
services to individuals who are likely to be
8
eligible for medical assistance under the
9
State plan; and
10
‘‘(B) increase awareness of the benefits of
11
using comprehensive tobacco cessation services
12
covered in the State plan among—
13
‘‘(i) individuals who are likely to be el-
14
igible for medical assistance under the
15
State plan; and
16
‘‘(ii) clinicians and others who provide
17
services to individuals who are likely to be
18
eligible for medical assistance under the
19
State plan about the benefits of using com-
20
prehensive tobacco cessation services.’’.
21
(e) REMOVAL OF COST SHARING FOR COUNSELING
22
AND PHARMACOTHERAPY FOR CESSATION OF TOBACCO
23
USE UNDER MEDICAID.—
24
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(1) GENERAL COST SHARING LIMITATIONS.—
1
Section 1916 of the Social Security Act (42 U.S.C.
2
1396o) is amended—
3
(A) in subsections (a)(2)(B) and (b)(2)(B),
4
by
striking
‘‘and
counseling
and
5
pharmacotherapy for cessation of tobacco use
6
by pregnant women (as defined in section
7
1396d(bb) of this title) and covered outpatient
8
drugs (as defined in subsection (k)(2) of section
9
1396r–8 of this title and including nonprescrip-
10
tion drugs described in subsection (d)(2) of
11
such section) that are prescribed for purposes
12
of promoting, and when used to promote, to-
13
bacco cessation by pregnant women in accord-
14
ance with the Guideline referred to in section
15
1396d(bb)(2)(A) of this title’’ each place it ap-
16
pears; and
17
(B) in each of subsections (a)(2)(D) and
18
(b)(2)(D) by inserting ‘‘and counseling and
19
pharmacotherapy for cessation of tobacco use
20
(as defined in section 1396d(bb) of this title)
21
and covered outpatient drugs (as defined in
22
subsection (k)(2) of section 1396r–8 of this
23
title and including nonprescription drugs de-
24
scribed in subsection (d)(2) of such section)
25
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that are prescribed for purposes of promoting,
1
and when used to promote, tobacco cessation in
2
accordance with the Guideline referred to in
3
section 1396d(bb)(2)(A) of this title,’’ after
4
‘‘(or at the option of the State, any services fur-
5
nished to pregnant women’’.
6
(2) APPLICATION TO ALTERNATIVE COST SHAR-
7
ING.—Section 1916A(b)(3)(B) of such Act (42
8
U.S.C. 1396o–1(b)(3)(B)) is amended—
9
(A) in clause (iii), by striking ‘‘, and coun-
10
seling and pharmacotherapy for cessation of to-
11
bacco use by pregnant women (as defined in
12
section 1396d of this title)’’; and
13
(B) by adding at the end the following:
14
‘‘(xi)
Counseling
and
15
pharmacotherapy for cessation of tobacco
16
use (as defined in section 1905(bb)) and
17
covered outpatient drugs (as defined in
18
subsection (k)(2) of section 1396r–8 of
19
this title and including nonprescription
20
drugs described in subsection (d)(2) of
21
such section) that are prescribed for pur-
22
poses of promoting, and when used to pro-
23
mote, tobacco cessation in accordance with
24
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the Guideline referred to in section 1396d
1
(bb)(2)(A) of this title.’’.
2
(f) NO PRIOR AUTHORIZATION FOR TOBACCO CES-
3
SATION DRUGS UNDER MEDICAID.—Section 1927(d) of
4
the Social Security Act (42 U.S.C. 1396r–8) is amended—
5
(1) by striking in paragraph (1)(A) ‘‘A State’’
6
and inserting ‘‘Except as otherwise provided in para-
7
graph (6), a State’’;
8
(2) by inserting after paragraph (5) the fol-
9
lowing new paragraph:
10
‘‘(6) NO PRIOR AUTHORIZATION PROGRAMS FOR
11
TOBACCO CESSATION DRUGS.—A State plan under
12
this subchapter shall not require, as a condition of
13
coverage or payment for a covered outpatient drug
14
for which Federal financial participation is available
15
in accordance with this section, the approval of an
16
agent when used to promote smoking cessation, in-
17
cluding agents approved by the Food and Drug Ad-
18
ministration for the purposes of promoting, and
19
when used to promote, tobacco cessation.’’.
20
(3) by redesignating paragraphs (6) and (7) as
21
paragraphs (7) and (8).
22
(g) COMPREHENSIVE COVERAGE OF TOBACCO CES-
23
SATION COVERAGE IN PRIVATE HEALTH INSURANCE.—
24
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(1) NO PRIOR AUTHORIZATION FOR TOBACCO
1
CESSATION COVERAGE.—Section 2713 of the Public
2
Health Service Act (42 U.S.C. 300gg–3) is amended
3
by inserting after subsection (c) a new subsection:
4
‘‘(d) NO PRIOR AUTHORIZATION.—A group health
5
plan and a health insurance issuer offering group or indi-
6
vidual health insurance coverage shall not impose any
7
prior authorization requirement for tobacco cessation
8
counseling and pharmacotherapy that has in effect a rat-
9
ing of ‘A’ or ‘B’ in the current recommendations of the
10
United States Preventive Services Task Force.’’.
11
(2) NO COST SHARING.—Section 1302(c) of the
12
Patient Protection and Affordable Care Act (42
13
U.S.C. 18022(c)) is amended by inserting after
14
paragraph (1) the following new paragraph:
15
‘‘(2) NO COST SHARING OR PRIOR AUTHORIZA-
16
TION
FOR
COMPREHENSIVE
TOBACCO
CESSATION
17
COVERAGE.—There shall be no cost sharing or prior
18
authorization requirement imposed with respect to
19
services described in subsection (b)(1)(K).’’.
20
(h) EFFECTIVE DATE.—The amendments made by
21
this section shall apply to items and services furnished on
22
or after January 1, 2019.
23
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SEC.
735.
CLINICAL
RESEARCH
FUNDING
FOR
ORAL
1
HEALTH.
2
(a) IN GENERAL.—The Secretary of Health and
3
Human Services shall expand and intensify the conduct
4
and support of the research activities of the National In-
5
stitutes of Health and the National Institute of Dental
6
and Craniofacial Research to improve the oral health of
7
the population through the prevention and management
8
of oral diseases and conditions.
9
(b) INCLUDED RESEARCH ACTIVITIES.—Research
10
activities under subsection (a) shall include—
11
(1) comparative effectiveness research and clin-
12
ical disease management research addressing early
13
childhood caries and oral cancer; and
14
(2) awarding of grants and contracts to support
15
the training and development of health services re-
16
searchers, comparative effectiveness researchers, and
17
clinical researchers whose research improves the oral
18
health of the population.
19
SEC. 736. PARTICIPATION BY MEDICAID BENEFICIARIES IN
20
APPROVED CLINICAL TRIALS.
21
(a) IN GENERAL.—Title XIX of the Social Security
22
Act (42 U.S.C. 1396 et seq.) is amended by inserting after
23
section 1943 the following new section:
24
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‘‘SEC. 1944. PARTICIPATION IN AN APPROVED CLINICAL
1
TRIAL.
2
‘‘(a) COVERAGE OF ROUTINE PATIENT COSTS ASSO-
3
CIATED WITH APPROVED CLINICAL TRIALS.—
4
‘‘(1) INCLUSION.—Subject to paragraph (2),
5
routine patient costs shall include all items and serv-
6
ices consistent with the medical assistance provided
7
under the State plan that would otherwise be pro-
8
vided to the individual under such State plan if such
9
individual was not enrolled in an approved clinical
10
trial, including any items or services related to the
11
prevention, detection, and treatment of any medical
12
complications that arise as a result of participation
13
in the approved clinical trial.
14
‘‘(2) EXCLUSION.—For purposes of paragraph
15
(1), routine patient costs does not include—
16
‘‘(A) the investigational item, device, or
17
service itself;
18
‘‘(B) items and services that are provided
19
solely to satisfy data collection and analysis
20
needs and that are not used in the direct clin-
21
ical management of the patient; or
22
‘‘(C) a service that is clearly inconsistent
23
with widely accepted and established standards
24
of care for a particular diagnosis.
25
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‘‘(3)
INFORMATION
CONCERNING
CLINICAL
1
TRIALS.—
2
‘‘(A) IN
GENERAL.—Subject to subpara-
3
graph (B), the Secretary, in consultation with
4
relevant stakeholders, shall develop a single
5
standardized electronic form for use by the indi-
6
vidual or the referring health care provider to
7
submit to the State agency administering the
8
State plan in order to verify that the clinical
9
trial meets the conditions established for an ap-
10
proved clinical trial (as defined in subsection
11
(c)).
12
‘‘(B) EXCLUDED INFORMATION.—For pur-
13
poses of subparagraph (A) or any such request
14
by the State agency for information regarding
15
a clinical trial, an individual or referring health
16
care provider shall not be required to submit—
17
‘‘(i) the clinical protocol document for
18
the clinical trial; or
19
‘‘(ii) subject to subparagraph (C), any
20
additional information other than such in-
21
formation as is required pursuant to the
22
form described in subparagraph (A).
23
‘‘(C) OPTIONAL INFORMATION.—For pur-
24
poses of subparagraphs (A) and (B)(ii), the
25
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form may include a requirement that the refer-
1
ring health care provider attest that the indi-
2
vidual is eligible to participate in the clinical
3
trial pursuant to the trial protocol and that in-
4
dividual participation in such trial would be ap-
5
propriate.
6
‘‘(D) REVIEW OF INFORMATION.—
7
‘‘(i) IN
GENERAL.—A State plan
8
under this title shall establish a process for
9
timely review by the State agency of the
10
form and information submitted pursuant
11
to subparagraph (A) and, not later than
12
48 hours after receipt of such form, con-
13
firmation that the information provided in
14
such form satisfies the requirements estab-
15
lished under such subparagraph, with such
16
process to include establishment and oper-
17
ation of a 24-hour, toll-free telephone num-
18
ber and email address to provide for expe-
19
dited communication.
20
‘‘(ii) FAILURE
TO
RESPOND.—If an
21
individual or the referring health care pro-
22
vider does not receive a response or re-
23
quest for additional information from the
24
State agency following the 48-hour period
25
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described in clause (i), the information
1
provided in the form may be presumed to
2
satisfy the requirements established under
3
this paragraph.
4
‘‘(b) ENCOURAGEMENT OF PARTICIPATION IN AP-
5
PROVED CLINICAL TRIALS.—
6
‘‘(1) REASONABLY
ACCESSIBLE
PROVIDER.—
7
For purposes of participation in an approved clinical
8
trial by an individual eligible for medical assistance
9
under this title, the State agency administering the
10
State plan shall make reasonable efforts to ensure
11
that the individual is provided with access to a pro-
12
vider who is—
13
‘‘(A) participating in the approved clinical
14
trial;
15
‘‘(B) located not more than 25 miles from
16
the residence of the individual (or, if no such
17
provider is available, as close as possible to the
18
residence of the individual); and
19
‘‘(C) a participating provider under the
20
State plan or has been deemed to be a partici-
21
pating provider under the State plan for pur-
22
poses of providing medical assistance to the in-
23
dividual during their participation in the ap-
24
proved clinical trial.
25
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‘‘(2) INFORMATIONAL MATERIALS.—The State
1
agency administering the plan approved under this
2
title shall develop informational materials and pro-
3
grams to encourage participating providers to make
4
appropriate referrals to physicians and other appro-
5
priate health care professionals who can provide in-
6
dividuals with access to approved clinical trials.
7
‘‘(c) DEFINITION OF APPROVED CLINICAL TRIAL.—
8
The term ‘approved clinical trial’ has the same meaning
9
as provided under section 2709(d) of the Public Health
10
Service Act.’’.
11
(b) CONFORMING AMENDMENT.—Section 1902(a) of
12
the Social Security Act (42 U.S.C. 1396a(a)) is amended
13
by inserting after paragraph (77) the following new para-
14
graph:
15
‘‘(78) provide that participation in an approved
16
clinical trial and coverage of routine patient costs
17
associated with such trial for an individual eligible
18
for medical assistance under this title is conducted
19
in accordance with the requirements under section
20
1944;’’.
21
(c) EFFECTIVE DATE.—
22
(1) IN GENERAL.—Except as provided in para-
23
graph (2), the amendments made by this section
24
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shall apply to calendar quarters beginning on or
1
after October 1, 2018.
2
(2) DELAY
PERMITTED
FOR
STATE
PLAN
3
AMENDMENT.—In the case of a State plan for med-
4
ical assistance under title XIX of the Social Security
5
Act which the Secretary of Health and Human Serv-
6
ices determines requires State legislation (other than
7
legislation appropriating funds) in order for the plan
8
to meet the additional requirements imposed by the
9
amendments made by this section, the State plan
10
shall not be regarded as failing to comply with the
11
requirements of such title solely on the basis of its
12
failure to meet these additional requirements before
13
the first day of the first calendar quarter beginning
14
after the close of the first regular session of the
15
State legislature that begins after the date of enact-
16
ment of this Act. For purposes of the previous sen-
17
tence, in the case of a State that has a 2-year legis-
18
lative session, each year of such session shall be
19
deemed to be a separate regular session of the State
20
legislature.
21
Subtitle E—HIV/AIDS
22
SEC. 741. STATEMENT OF POLICY.
23
It is the policy of the United States to achieve an
24
AIDS-free generation, and to—
25
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(1) expand access to lifesaving antiretroviral
1
therapy for people living with HIV/AIDS and imme-
2
diately link people to continuous and coordinated
3
high-quality care when they learn they are infected
4
with HIV;
5
(2) expand targeted efforts to prevent HIV in-
6
fection using a combination of effective, evidence-
7
based approaches, including routine HIV screening,
8
and universal access to HIV prevention tools in the
9
communities where HIV/AIDS is most heavily con-
10
centrated, particularly communities of color;
11
(3) ensure laws, policies, and regulations do not
12
impede access to prevention, treatment, and care for
13
people living with HIV/AIDS or at risk for acquiring
14
HIV;
15
(4) accelerate research for more efficacious HIV
16
prevention and treatments tools, a cure, and a vac-
17
cine; and
18
(5) respect the human rights and dignity of
19
persons living with HIV/AIDS.
20
SEC. 742. FINDINGS.
21
The Congress finds the following:
22
(1) Over one million people are estimated to be
23
living with HIV in the United States according to
24
the Centers for Disease Control and Prevention, 15
25
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percent of whom are unaware of their HIV-positive
1
status.
2
(2) Annually there are about 37,600 new HIV
3
infections and 20,000 deaths in people with an HIV
4
diagnoses in 50 States and 6 dependent areas of the
5
United States.
6
(3) The Centers for Disease Control and Pre-
7
vention estimates that, in 2015, there were approxi-
8
mately 37,600 people newly diagnosed with HIV.
9
The estimated number of annual new HIV infections
10
declined 10 percent from 2010 to 2014. However,
11
the number of new infections is increasing among
12
certain populations, such as Latino gay and bisexual
13
men, where annual infections increase 14 percent.
14
New infections among Black gay or bisexual men
15
are remaining stable.
16
(4) HIV disproportionately affects certain popu-
17
lations in the United States. Though African Ameri-
18
cans represent approximately 12 percent of the pop-
19
ulation, African Americans account for almost half
20
(45 percent) of all people living with HIV in the
21
United States. Men who have sex with men (MSM)
22
account for 67 percent of all new HIV infections and
23
are the only risk group in which HIV infections con-
24
tinue to increase.
25
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(5) Disparities exist among Latinos/Hispanics;
1
they make up 18 percent of the United States popu-
2
lation and 24 percent of new infections (2015).
3
(6) Though the rate of new infections among
4
American Indians/Alaska Native (AI/AN) is propor-
5
tional to their population size, from 2005 to 2014,
6
the annual number of HIV diagnoses increased 19
7
percent among AIs/ANs overall and 63 percent
8
among AI/AN gay and bisexual men.
9
(7) Asian Americans account for about 2 per-
10
cent of new HIV infections, but in 2013, 22 percent
11
were undiagnosed, the highest rate of undiagnosed
12
HIV among any race/ethnicity.
13
(8) The latest data from the CDC (2015) indi-
14
cate that new infections among women declined 20
15
percent.
16
(9) The history of HIV shows that culturally
17
relevant and gender-responsive supportive services,
18
including psychosocial support, treatment literacy,
19
case management, and transportation are necessary
20
strategies to reach and engage women and girls in
21
medical care.
22
(10) The limited data available on transgender
23
individuals point to a disproportionate burden of
24
HIV infection.
25
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(11) Stigma and discrimination contribute to
1
these disparities.
2
(12) The Centers for Disease Control and Pre-
3
vention has determined that increasing the propor-
4
tion of people who know their HIV status is an es-
5
sential component of comprehensive HIV/AIDS
6
treatment and prevention efforts and that early di-
7
agnosis is critical in order for people with HIV/
8
AIDS to receive life-extending therapy. Additionally,
9
the Centers for Disease Control and Prevention rec-
10
ommend routine HIV screening in health care set-
11
tings for all patients aged 13 to 64, regardless of
12
risk.
13
(13) In 1998, Congress created the National
14
Minority AIDS Initiative to provide technical assist-
15
ance, build capacity, and strengthen outreach efforts
16
among local institutions and community-based orga-
17
nizations that serve racial and ethnic minorities liv-
18
ing with or vulnerable to HIV/AIDS.
19
(14) To combat the HIV epidemic in the United
20
States, the National HIV/AIDS Strategy (NHAS)
21
provides a framework of increasing access to care,
22
reducing new infections, and eliminating HIV-re-
23
lated health disparities. The vision of NHAS is ‘‘The
24
United States will become a place where new HIV
25
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infections are rare and when they do occur, every
1
person, regardless of age, gender, race/ethnicity,
2
gender identity, or socioeconomic circumstance, will
3
have unfettered access to high quality, life-extending
4
care, free from stigma and discrimination.’’.
5
(15) At present, many States and United
6
States territories have criminal statutes based on
7
‘‘exposure’’ to HIV. Most of these laws were adopted
8
before the availability of effective antiretroviral
9
treatment for HIV/AIDS.
10
(16) Research shows that stable housing leads
11
to better health outcomes for those living with HIV.
12
Inadequate or unstable housing is not only a barrier
13
to effective treatment, but also increases the likeli-
14
hood of engaging in risky behaviors leading to HIV
15
infection. Insecure housing puts people with HIV/
16
AIDS at risk of premature death from exposure to
17
other diseases, poor nutrition, and lack of medical
18
care.
19
(17) Due to advances in treatment, many peo-
20
ple living with HIV/AIDS (PLWHA) today are liv-
21
ing healthy lives and have the ability and desire to
22
fully participate in all aspects of community life, in-
23
cluding employment. Research associates being em-
24
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ployed with tremendous economic, social, and health
1
benefits for many people living with HIV/AIDS.
2
(18) The common benefits associated with em-
3
ployment include income, autonomy, productivity,
4
and status within society, daily structure, making a
5
contribution to one’s community, and increased skills
6
and self-esteem. Research also indicates that many
7
people with disabilities, including PLWHA, report
8
perceiving themselves as being less disabled or not
9
disabled at all, when working. Furthermore, some
10
studies link working with better physical and mental
11
health outcomes for PLWHA when compared to
12
those who are not working. Preliminary data also
13
suggest that transitioning to employment is associ-
14
ated with reduced HIV-related health risk behavior
15
for many people.
16
(19) On July 16, 2012, the Food and Drug Ad-
17
ministration approved the first drug to reduce the
18
risk of HIV infection in uninfected individuals who
19
are at high risk of HIV infection and who may en-
20
gage in sexual activity with HIV-infected partners.
21
(20) Syringe service programs (SSPs) have
22
been associated with lowered HIV infections, lower
23
hepatitis C infections, and increased linkage to sub-
24
stance use treatment.
25
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(21) There is now conclusive scientific evidence
1
that a person living with HIV who is on
2
antiretroviral therapy (ART) and is durably virally
3
suppressed (defined as having a consistent viral load
4
of less than 200 copies/ml) does not sexually trans-
5
mit HIV. The conclusive evidence about the highly
6
effective preventative benefits of ART provides an
7
unprecedented opportunity to improve the lives of
8
people living with HIV, improve treatment uptake
9
and adherence, and advocate for expanded access to
10
treatment and care.
11
SEC. 743. ADDITIONAL FUNDING FOR AIDS DRUG ASSIST-
12
ANCE PROGRAM TREATMENTS.
13
Section 2623 of the Public Health Service Act (42
14
U.S.C. 300ff–31b) is amended by adding at the end the
15
following:
16
‘‘(c) ADDITIONAL FUNDING FOR AIDS DRUG AS-
17
SISTANCE
PROGRAM
TREATMENTS.—In addition to
18
amounts otherwise authorized to be appropriated for car-
19
rying out this subpart, there are authorized to be appro-
20
priated such sums as may be necessary to carry out sec-
21
tions 2612(b)(3)(B) and 2616 for each of fiscal years
22
2019 through 2022.’’.
23
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SEC. 744. ENHANCING THE NATIONAL HIV SURVEILLANCE
1
SYSTEM.
2
(a) GRANTS.—The Secretary of Health and Human
3
Services, acting through the Director of the Centers for
4
Disease Control and Prevention, shall make grants to
5
States to support integration of public health surveillance
6
systems into all electronic health records in order to allow
7
rapid communications between the clinical setting and
8
health departments, by means that include—
9
(1) providing technical assistance and policy
10
guidance to State and local health departments, clin-
11
ical providers, and other agencies serving individuals
12
with HIV to improve the interoperability of data sys-
13
tems relevant to monitoring HIV care and sup-
14
portive services;
15
(2) capturing longitudinal data pertaining to
16
the initiation and ongoing prescription or dispensing
17
of antiretroviral therapy for individuals diagnosed
18
with HIV (such as through pharmacy-based report-
19
ing);
20
(3) obtaining information—
21
(A) on a voluntary basis, on sexual orienta-
22
tion and gender identity; and
23
(B) on sources of coverage (or the lack
24
thereof) for medical treatment (including cov-
25
erage through Medicaid, Medicare, the program
26
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under title XXVI of the Public Health Service
1
Act (42 U.S.C. 300ff–11 et seq.; commonly re-
2
ferred to as the ‘‘Ryan White HIV/AIDS Pro-
3
gram’’), other public funding, private insurance,
4
and health maintenance organizations); and
5
(4) obtaining and using current geographic
6
markers of residence (such as current address, zip
7
code, partial zip code, and census block).
8
(b) PRIVACY AND SECURITY SAFEGUARDS.—In car-
9
rying out this section, the Secretary of Health and Human
10
Services shall ensure that appropriate privacy and security
11
safeguards are met to prevent unauthorized disclosure of
12
protected health information and compliance with the
13
HIPAA privacy and security law (as defined in section
14
3009 of the Public Health Service Act (42 U.S.C. 300jj–
15
19)) and other relevant laws and regulations.
16
(c) PROHIBITION
AGAINST
IMPROPER
USE
OF
17
DATA.—No grant under this section may be used to allow
18
or facilitate the collection or use of surveillance or clinical
19
data or records—
20
(1) for punitive measures of any kind, civil or
21
criminal, against the subject of such data or records;
22
or
23
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(2) for imposing any requirement or restriction
1
with respect to an individual without the individual’s
2
written consent.
3
(d) AUTHORIZATION OF APPROPRIATIONS.—To carry
4
out this section, there are authorized to be appropriated
5
such sums as may be necessary for each of fiscal years
6
2019 through 2023.
7
SEC. 745. EVIDENCE-BASED STRATEGIES FOR IMPROVING
8
LINKAGE TO AND RETENTION IN APPRO-
9
PRIATE CARE.
10
(a) STRATEGIES.—The Secretary of Health and
11
Human Services, in collaboration with the Director of the
12
Centers for Disease Control and Prevention, the Adminis-
13
trator of the Substance Abuse and Mental Health Services
14
Administration, the Director of the Office of AIDS Re-
15
search, the Administrator of the Health Resources and
16
Services Administration, and the Administrator of the
17
Centers for Medicare & Medicaid Services, shall—
18
(1) identify evidence-based strategies most ef-
19
fective at addressing the multifaceted issues that im-
20
pede disease status awareness and linkage to and re-
21
tention in appropriate care, taking into consideration
22
health care systems issues, clinic and provider
23
issues, and individual psychosocial, environmental,
24
and other contextual factors;
25
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(2) support the wide-scale implementation of
1
the evidence-based strategies identified pursuant to
2
paragraph (1), including through incorporating such
3
strategies into health care coverage supported by the
4
Medicaid program under title XIX of the Social Se-
5
curity Act (42 U.S.C. 1396 et seq.), the program
6
under title XXVI of the Public Health Service Act
7
(42 U.S.C. 300ff–11 et seq.; commonly referred to
8
as the ‘‘Ryan White HIV/AIDS Program’’), and
9
health plans purchased through an American Health
10
Benefit Exchange established pursuant to section
11
1311 of the Patient Protection and Affordable Care
12
Act (42 U.S.C. 18031); and
13
(3) not later than 12 months after the date of
14
the enactment of this Act, submit a report to the
15
Congress on the status of activities under para-
16
graphs (1) and (2).
17
(b) AUTHORIZATION OF APPROPRIATIONS.—To carry
18
out this section, there are authorized to be appropriated
19
such sums as may be necessary for fiscal years 2019
20
through 2023.
21
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SEC. 746. IMPROVING ENTRY INTO AND RETENTION IN
1
CARE AND ANTIRETROVIRAL ADHERENCE
2
FOR PERSONS WITH HIV.
3
(a) SENSE OF CONGRESS.—It is the sense of the Con-
4
gress that AIDS research has led to scientific advance-
5
ments that have—
6
(1) saved the lives of millions of people with
7
HIV/AIDS;
8
(2) prevented millions of people from being in-
9
fected; and
10
(3) had broad benefits that extend far beyond
11
helping people at risk for or living with HIV.
12
(b) IN GENERAL.—The Secretary of Health and
13
Human Services, acting through the Director of the Na-
14
tional Institutes of Health, shall expand, intensify, and co-
15
ordinate operational and translational research and other
16
activities of the National Institutes of Health regarding
17
methods—
18
(1) to increase adoption of evidence-based ad-
19
herence strategies within HIV care and treatment
20
programs;
21
(2) to increase HIV testing and case detection
22
rates;
23
(3) to reduce HIV-related health disparities;
24
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(4) to ensure that research to improve adher-
1
ence to HIV care and treatment programs address
2
the unique concerns of women;
3
(5) to integrate HIV/AIDS prevention and care
4
services with mental health and substance use pre-
5
vention and treatment delivery systems;
6
(6) to increase knowledge on the implementa-
7
tion of preexposure prophylaxis (PrEP), including
8
with respect to—
9
(A) who can benefit most from PrEP;
10
(B) how to provide PrEP safely and effi-
11
ciently;
12
(C) how to integrate PrEP with other es-
13
sential prevention methods such as condoms;
14
and
15
(D) how to ensure high levels of adherence;
16
and
17
(7) to increase knowledge of Undetectable =
18
Untransmittable (U=U) a person living with HIV
19
who is on antiretroviral therapy (ART) and is dura-
20
bly virally suppressed (defined as having a consistent
21
viral load of less than 200 copies/ml) cannot sexually
22
transmit HIV.
23
(c) AUTHORIZATION OF APPROPRIATIONS.—To carry
24
out this section, there are authorized to be appropriated
25
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such sums as may be necessary for fiscal years 2019
1
through 2023.
2
SEC. 747. SERVICES TO REDUCE HIV/AIDS IN RACIAL AND
3
ETHNIC MINORITY COMMUNITIES.
4
(a) IN GENERAL.—For the purpose of reducing HIV/
5
AIDS in racial and ethnic minority communities, the Sec-
6
retary, acting through the Deputy Assistant Secretary for
7
Minority Health, may make grants to public health agen-
8
cies and faith-based organizations to conduct—
9
(1) outreach activities related to HIV/AIDS
10
prevention and testing activities;
11
(2) HIV/AIDS prevention activities; and
12
(3) HIV/AIDS testing activities.
13
(b) AUTHORIZATION OF APPROPRIATIONS.—To carry
14
out this section, there are authorized to be appropriated
15
such sums as may be necessary for fiscal years 2019
16
through 2023.
17
SEC. 748. MINORITY AIDS INITIATIVE.
18
(a) EXPANDED FUNDING.—The Secretary, in col-
19
laboration with the Deputy Assistant Secretary for Minor-
20
ity Health, the Director of the Centers for Disease Control
21
and Prevention, the Administrator of the Health Re-
22
sources and Services Administration, and the Adminis-
23
trator of the Substance Abuse and Mental Health Services
24
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Administration, shall provide funds and carry out activi-
1
ties to expand the Minority HIV/AIDS Initiative.
2
(b) USE OF FUNDS.—The additional funds made
3
available under this section may be used, through the Mi-
4
nority AIDS Initiative, to support the following activities:
5
(1) Providing technical assistance and infra-
6
structure support to reduce HIV/AIDS in minority
7
populations.
8
(2) Increasing minority populations’ access to
9
HIV/AIDS prevention and care services.
10
(3) Building strong community programs and
11
partnerships to address HIV prevention and the
12
health care needs of specific racial and ethnic minor-
13
ity populations.
14
(c) PRIORITY INTERVENTIONS.—Within the racial
15
and ethnic minority populations referred to in subsection
16
(b), priority in conducting intervention services shall be
17
given to—
18
(1) men who have sex with men;
19
(2) youth;
20
(3) persons who engage in intravenous drug
21
abuse;
22
(4) women;
23
(5) homeless individuals; and
24
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(6) individuals incarcerated or in the penal sys-
1
tem.
2
(d) AUTHORIZATION OF APPROPRIATIONS.—For car-
3
rying out this section, there are authorized to be appro-
4
priated $610,000,000 for fiscal year 2019 and such sums
5
as may be necessary for each of fiscal years 2020 through
6
2023.
7
SEC. 749. HEALTH CARE PROFESSIONALS TREATING INDI-
8
VIDUALS WITH HIV/AIDS.
9
(a) IN GENERAL.—The Secretary of Health and
10
Human Services, acting through the Administrator of the
11
Health Resources and Services Administration, shall ex-
12
pand, intensify, and coordinate workforce initiatives of the
13
Health Resources and Services Administration to increase
14
the capacity of the health workforce focusing primarily on
15
HIV/AIDS to meet the demand for culturally competent
16
care, and may award grants for any of the following:
17
(1) Development of curricula for training pri-
18
mary care providers in HIV/AIDS prevention and
19
care, including routine HIV testing.
20
(2) Support to expand access to culturally and
21
linguistically accessible benefits counselors, trained
22
peer navigators, and mental and behavioral health
23
professionals with expertise in HIV/AIDS.
24
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(3) Training health care professionals to pro-
1
vide care to individuals with HIV/AIDS.
2
(4) Development by grant recipients under title
3
XXVI of the Public Health Service Act (42 U.S.C.
4
300ff–11 et seq.; commonly referred to as the ‘‘Ryan
5
White HIV/AIDS Program’’) and other persons, of
6
policies for providing culturally relevant and sen-
7
sitive treatment to individuals with HIV/AIDS, with
8
particular emphasis on treatment to racial and eth-
9
nic minorities, men who have sex with men, and
10
women, young people, and children with HIV/AIDS.
11
(5) Development and implementation of pro-
12
grams to increase the use of telehealth to respond to
13
HIV/AIDS-specific health care needs in rural and
14
minority communities, with particular emphasis
15
given to medically underserved communities and in-
16
sular areas.
17
(6) Evaluating interdisciplinary medical pro-
18
vider care team models that promote high-quality
19
care, with particular emphasis on care to racial and
20
ethnic minorities.
21
(7) Training health care professionals to make
22
them aware of the high rates of chronic hepatitis B
23
and chronic hepatitis C in adult racial and ethnic
24
populations, and the importance of prevention, de-
25
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tection, and medical management of hepatitis B and
1
hepatitis C and of liver cancer screening.
2
(8) Development of curricula for training pri-
3
mary care providers that HIV/AIDS and tuber-
4
culosis are significant mutual comorbidities, and
5
that a patient who tests positive for one disease
6
should be offered and encouraged to receive testing
7
for the other.
8
(b) AUTHORIZATION OF APPROPRIATIONS.—To carry
9
out this section, there are authorized to be appropriated
10
such sums as may be necessary for fiscal years 2019
11
through 2023.
12
SEC. 750. HIV/AIDS PROVIDER LOAN REPAYMENT PRO-
13
GRAM.
14
(a) IN GENERAL.—The Secretary may enter into an
15
agreement with any physician, nurse practitioner, or phy-
16
sician assistant under which—
17
(1) the physician, nurse practitioner, or physi-
18
cian assistant agrees to serve as a medical provider
19
for a period of not less than 2 years—
20
(A) at a Ryan White-funded or title X-
21
funded facility with a critical shortage of doc-
22
tors (as determined by the Secretary); or
23
(B) in an area with a high incidence of
24
HIV/AIDS; and
25
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(2) the Secretary agrees to make payments in
1
accordance with subsection (b) on the professional
2
education loans of the physician, nurse practitioner,
3
or physician assistant.
4
(b) MANNER
OF PAYMENTS.—The payments de-
5
scribed in subsection (a) shall be made by the Secretary
6
as follows:
7
(1) Upon completion by the physician, nurse
8
practitioner, or physician assistant for whom the
9
payments are to be made of the first year of the
10
service specified in the agreement entered into with
11
the Secretary under subsection (a), the Secretary
12
shall pay 30 percent of the principal of and the in-
13
terest on the individual’s professional education
14
loans.
15
(2) Upon completion by the physician, nurse
16
practitioner, or physician assistant of the second
17
year of such service, the Secretary shall pay another
18
30 percent of the principal of and the interest on
19
such loans.
20
(3) Upon completion by that individual of a
21
third year of such service, the Secretary shall pay
22
another 25 percent of the principal of and the inter-
23
est on such loans.
24
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(c) APPLICABILITY OF CERTAIN PROVISIONS.—The
1
provisions of subpart III of part D of title III of the Public
2
Health Service Act (42 U.S.C. 254l et seq.) shall, except
3
as inconsistent with this section, apply to the program car-
4
ried out under this section in the same manner and to
5
the same extent as such provisions apply to the National
6
Health Service Corps Loan Repayment Program.
7
(d) REPORTS.—Not later than 18 months after the
8
date of the enactment of this Act, and annually thereafter,
9
the Secretary shall prepare and submit to the Congress
10
a report describing the program carried out under this sec-
11
tion, including statements regarding the following:
12
(1) The number of physicians, nurse practi-
13
tioners, and physician assistants enrolled in the pro-
14
gram.
15
(2) The number and amount of loan repay-
16
ments.
17
(3) The placement location of loan repayment
18
recipients at facilities described in subsection (a)(1).
19
(4) The default rate and actions required.
20
(5) The amount of outstanding default funds.
21
(6) To the extent that it can be determined, the
22
reason for the default.
23
(7) The demographics of individuals partici-
24
pating in the program.
25
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(8) An evaluation of the overall costs and bene-
1
fits of the program.
2
(e) DEFINITIONS.—In this section:
3
(1) HIV/AIDS.—The term ‘‘HIV/AIDS’’ means
4
human immunodeficiency virus and acquired im-
5
mune deficiency syndrome.
6
(2) NURSE PRACTITIONER.—The term ‘‘nurse
7
practitioner’’ means a registered nurse who has com-
8
pleted an accredited graduate degree program in ad-
9
vanced nurse practice and has successfully passed a
10
national certification exam.
11
(3) PHYSICIAN.—The term ‘‘physician’’ means
12
a graduate of a school of medicine who has com-
13
pleted postgraduate training in general or pediatric
14
medicine.
15
(4) PHYSICIAN ASSISTANT.—The term ‘‘physi-
16
cian assistant’’ means a medical provider who com-
17
pleted an accredited physician assistant training pro-
18
gram and successfully passed the Physician Assist-
19
ant National Certifying Examination.
20
(5) PROFESSIONAL
EDUCATION
LOAN.—The
21
term ‘‘professional education loan’’—
22
(A) means a loan that is incurred for the
23
cost of attendance (including tuition, other rea-
24
sonable educational expenses, and reasonable
25
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living costs) at a school of medicine, nursing, or
1
physician assistant training program; and
2
(B) includes only the portion of the loan
3
that is outstanding on the date the physician,
4
nurse practitioner, or physician assistant in-
5
volved begins the service specified in the agree-
6
ment under subsection (a).
7
(6) RYAN WHITE-FUNDED.—The term ‘‘Ryan
8
White-funded’’ means, with respect to a facility, re-
9
ceiving funds under title XXVI of the Public Health
10
Service Act (42 U.S.C. 300ff–11 et seq.).
11
(7) SECRETARY.—The term ‘‘Secretary’’ means
12
the Secretary of Health and Human Services.
13
(8) SCHOOL OF MEDICINE.—The term ‘‘school
14
of medicine’’ has the meaning given to that term in
15
section 799B of the Public Health Service Act (42
16
U.S.C. 295p).
17
(9) TITLE X-FUNDED.—The term ‘‘title X-fund-
18
ed’’ means, with respect to a facility, receiving funds
19
under title X of the Public Health Service Act (42
20
U.S.C. 300 et seq.).
21
(f) AUTHORIZATION OF APPROPRIATIONS.—To carry
22
out this section, there are authorized to be appropriated
23
such sums as may be necessary for fiscal years 2019
24
through 2023.
25
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SEC. 751. DENTAL EDUCATION LOAN REPAYMENT PRO-
1
GRAM.
2
(a) IN GENERAL.—The Secretary of Health and
3
Human Services may enter into an agreement with any
4
dentist under which—
5
(1) the dentist agrees to serve as a dentist for
6
a period of not less than 2 years at a facility with
7
a critical shortage of dentists (as determined by the
8
Secretary) in an area with a high incidence of HIV/
9
AIDS; and
10
(2) the Secretary agrees to make payments in
11
accordance with subsection (b) on the dental edu-
12
cation loans of the dentist.
13
(b) MANNER
OF PAYMENTS.—The payments de-
14
scribed in subsection (a) shall be made by the Secretary
15
as follows:
16
(1) Upon completion by the dentist for whom
17
the payments are to be made of the first year of the
18
service specified in the agreement entered into with
19
the Secretary under subsection (a), the Secretary
20
shall pay 30 percent of the principal of and the in-
21
terest on the dental education loans of the dentist.
22
(2) Upon completion by the dentist of the sec-
23
ond year of such service, the Secretary shall pay an-
24
other 30 percent of the principal of and the interest
25
on such loans.
26
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(3) Upon completion by that individual of a
1
third year of such service, the Secretary shall pay
2
another 25 percent of the principal of and the inter-
3
est on such loans.
4
(c) APPLICABILITY OF CERTAIN PROVISIONS.—The
5
provisions of subpart III of part D of title III of the Public
6
Health Service Act (42 U.S.C. 254l et seq.) shall, except
7
as inconsistent with this section, apply to the program car-
8
ried out under this section in the same manner and to
9
the same extent as such provisions apply to the National
10
Health Service Corps Loan Repayment Program.
11
(d) REPORTS.—Not later than 18 months after the
12
date of the enactment of this Act, and annually thereafter,
13
the Secretary shall prepare and submit to the Congress
14
a report describing the program carried out under this sec-
15
tion, including statements regarding the following:
16
(1) The number of dentists enrolled in the pro-
17
gram.
18
(2) The number and amount of loan repay-
19
ments.
20
(3) The placement location of loan repayment
21
recipients at facilities described in subsection (a)(1).
22
(4) The default rate and actions required.
23
(5) The amount of outstanding default funds.
24
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(6) To the extent that it can be determined, the
1
reason for the default.
2
(7) The demographics of individuals partici-
3
pating in the program.
4
(8) An evaluation of the overall costs and bene-
5
fits of the program.
6
(e) DEFINITIONS.—In this section:
7
(1) DENTAL
EDUCATION
LOAN.—The term
8
‘‘dental education loan’’—
9
(A) means a loan that is incurred for the
10
cost of attendance (including tuition, other rea-
11
sonable educational expenses, and reasonable
12
living costs) at a school of dentistry; and
13
(B) includes only the portion of the loan
14
that is outstanding on the date the dentist in-
15
volved begins the service specified in the agree-
16
ment under subsection (a).
17
(2) DENTIST.—The term ‘‘dentist’’ means a
18
graduate of a school of dentistry who has completed
19
postgraduate training in general or pediatric den-
20
tistry.
21
(3) HIV/AIDS.—The term ‘‘HIV/AIDS’’ means
22
human immunodeficiency virus and acquired im-
23
mune deficiency syndrome.
24
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(4) SCHOOL OF DENTISTRY.—The term ‘‘school
1
of dentistry’’ has the meaning given to that term in
2
section 799B of the Public Health Service Act (42
3
U.S.C. 295p).
4
(5) SECRETARY.—The term ‘‘Secretary’’ means
5
the Secretary of Health and Human Services.
6
(f) AUTHORIZATION OF APPROPRIATIONS.—To carry
7
out this section, there are authorized to be appropriated
8
such sums as may be necessary for each of fiscal years
9
2019 through 2023.
10
SEC. 752. REDUCING NEW HIV INFECTIONS AMONG INJECT-
11
ING DRUG USERS.
12
(a) SENSE OF CONGRESS.—It is the sense of the Con-
13
gress that providing sterile syringes and sterilized equip-
14
ment to injecting drug users substantially reduces risk of
15
HIV infection, increases the probability that they will ini-
16
tiate drug treatment, and does not increase drug use.
17
(b) IN GENERAL.—The Secretary of Health and
18
Human Services may provide grants and technical assist-
19
ance for the purpose of reducing the rate of HIV infections
20
among injecting drug users through a comprehensive
21
package of services for such users, including the provision
22
of sterile syringes, education and outreach, access to infec-
23
tious disease testing, overdose prevention, and treatment
24
for drug dependence.
25
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(c) AUTHORIZATION OF APPROPRIATIONS.—To carry
1
out this section, there are authorized to be appropriated
2
such sums as may be necessary for fiscal years 2019
3
through 2023.
4
SEC. 753. REPORT ON IMPACT OF HIV/AIDS IN VULNERABLE
5
POPULATIONS.
6
(a) IN GENERAL.—The Secretary shall submit to the
7
Congress and the President an annual report on the im-
8
pact of HIV/AIDS for racial and ethnic minority commu-
9
nities, women, and youth aged 24 and younger.
10
(b) CONTENTS.—The report under subsection (a)
11
shall include information on the—
12
(1) progress that has been made in reducing
13
the impact of HIV/AIDS in such communities;
14
(2) opportunities that exist to make additional
15
progress in reducing the impact of HIV/AIDS in
16
such communities;
17
(3) challenges that may impede such additional
18
progress; and
19
(4) Federal funding necessary to achieve sub-
20
stantial reductions in HIV/AIDS in racial and ethnic
21
minority communities.
22
SEC. 754. NATIONAL HIV/AIDS OBSERVANCE DAYS.
23
(a) NATIONAL OBSERVANCE DAYS.—It is the sense
24
of the Congress that national observance days highlighting
25
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the impact of HIV/AIDS on communities of color include
1
the following:
2
(1) National Black HIV/AIDS Awareness Day.
3
(2) National Latino AIDS Awareness Day.
4
(3) National Asian and Pacific Islander HIV/
5
AIDS Awareness Day.
6
(4) National Native American HIV/AIDS
7
Awareness Day.
8
(5) National Youth HIV/AIDS Awareness Day.
9
(b) CALL TO ACTION.—It is the sense of the Con-
10
gress that the President should call on members of com-
11
munities of color—
12
(1) to become involved at the local community
13
level in HIV/AIDS testing, policy, and advocacy;
14
(2) to become aware, engaged, and empowered
15
on the HIV/AIDS epidemic within their commu-
16
nities; and
17
(3) to urge members of their communities to re-
18
duce risk factors, practice safe sex and other preven-
19
tive measures, be tested for HIV/AIDS, and seek
20
care when appropriate.
21
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SEC. 755. REVIEW OF ALL FEDERAL AND STATE LAWS,
1
POLICIES, AND REGULATIONS REGARDING
2
THE CRIMINAL PROSECUTION OF INDIVID-
3
UALS FOR HIV-RELATED OFFENSES.
4
(a) DEFINITIONS.—
5
(1) HIV AND HIV/AIDS.—The terms ‘‘HIV’’ and
6
‘‘HIV/AIDS’’ have the meanings given to such terms
7
in section 2689 of the Public Health Service Act (42
8
U.S.C. 300ff–88).
9
(2) STATE.—The term ‘‘State’’ includes the
10
District of Columbia, American Samoa, the Com-
11
monwealth of the Northern Mariana Islands, Guam,
12
Puerto Rico, and the United States Virgin Islands.
13
(b) SENSE OF CONGRESS REGARDING LAWS OR REG-
14
ULATIONS DIRECTED AT PEOPLE LIVING WITH HIV/
15
AIDS.—It is the sense of the Congress that Federal and
16
State laws, policies, and regulations regarding people liv-
17
ing with HIV/AIDS—
18
(1) should not place unique or additional bur-
19
dens on such individuals solely as a result of their
20
HIV status; and
21
(2) should instead demonstrate a public health-
22
oriented, evidence-based, medically accurate, and
23
contemporary understanding of—
24
(A) the multiple factors that lead to HIV
25
transmission;
26
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(B) the relative risk of HIV transmission
1
routes;
2
(C) the current health implications of liv-
3
ing with HIV;
4
(D) the associated benefits of treatment
5
and support services for people living with HIV;
6
and
7
(E) the impact of punitive HIV-specific
8
laws and policies on public health, on people liv-
9
ing with or affected by HIV, and on their fami-
10
lies and communities.
11
(c) REVIEW OF ALL FEDERAL AND STATE LAWS,
12
POLICIES, AND REGULATIONS REGARDING THE CRIMINAL
13
PROSECUTION OF INDIVIDUALS FOR HIV-RELATED OF-
14
FENSES.—
15
(1) REVIEW OF FEDERAL AND STATE LAWS.—
16
(A) IN GENERAL.—No later than 90 days
17
after the date of the enactment of this Act, the
18
Attorney General, the Secretary of Health and
19
Human Services, and the Secretary of Defense
20
acting jointly (in this paragraph and paragraph
21
(2) referred to as the ‘‘designated officials’’)
22
shall initiate a national review of Federal and
23
State laws, policies, regulations, and judicial
24
precedents and decisions regarding criminal and
25
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related civil commitment cases involving people
1
living with HIV/AIDS, including in regards to
2
the Uniform Code of Military Justice.
3
(B) CONSULTATION.—In carrying out the
4
review under subparagraph (A), the designated
5
officials shall ensure diverse participation and
6
consultation from each State, including with—
7
(i) State attorneys general (or their
8
representatives);
9
(ii) State public health officials (or
10
their representatives);
11
(iii) State judicial and court system
12
officers, including judges, district attor-
13
neys, prosecutors, defense attorneys, law
14
enforcement, and correctional officers;
15
(iv) members of the United States
16
Armed Forces, including members of other
17
Federal services subject to the Uniform
18
Code of Military Justice;
19
(v) people living with HIV/AIDS, par-
20
ticularly those who have been subject to
21
HIV-related prosecution or who are from
22
communities whose members have been
23
disproportionately subject to HIV-specific
24
arrests and prosecutions;
25
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•HR 5942 IH
(vi) legal advocacy and HIV/AIDS
1
service organizations that work with people
2
living with HIV/AIDS;
3
(vii) nongovernmental health organi-
4
zations that work on behalf of people living
5
with HIV/AIDS; and
6
(viii) trade organizations or associa-
7
tions representing persons or entities de-
8
scribed in clauses (i) through (vii).
9
(C) RELATION
TO
OTHER
REVIEWS.—In
10
carrying out the review under subparagraph
11
(A), the designated officials may utilize other
12
existing reviews of criminal and related civil
13
commitment cases involving people living with
14
HIV/AIDS, including any such review con-
15
ducted by any Federal or State agency or any
16
public health, legal advocacy, or trade organiza-
17
tion or association if the designated officials de-
18
termine that such reviews were conducted in ac-
19
cordance with the principles set forth in sub-
20
section (b).
21
(2) REPORT.—No later than 180 days after ini-
22
tiating the review required by paragraph (1), the At-
23
torney General shall transmit to the Congress and
24
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•HR 5942 IH
make publicly available a report containing the re-
1
sults of the review, which includes the following:
2
(A) For each State and for the Uniform
3
Code of Military Justice, a summary of the rel-
4
evant laws, policies, regulations, and judicial
5
precedents and decisions regarding criminal
6
cases involving people living with HIV/AIDS,
7
including, if applicable, the following:
8
(i) A determination of whether such
9
laws, policies, regulations, and judicial
10
precedents and decisions place any unique
11
or additional burdens upon people living
12
with HIV/AIDS.
13
(ii) A determination of whether such
14
laws, policies, regulations, and judicial
15
precedents and decisions demonstrate a
16
public
health-oriented,
evidence-based,
17
medically accurate, and contemporary un-
18
derstanding of—
19
(I) the multiple factors that lead
20
to HIV transmission;
21
(II) the relative risk of HIV
22
transmission routes;
23
(III) the current health implica-
24
tions of living with HIV;
25
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619
•HR 5942 IH
(IV) the associated benefits of
1
treatment and support services for
2
people living with HIV; and
3
(V) the impact of punitive HIV-
4
specific laws and policies on public
5
health, on people living with or af-
6
fected by HIV, and on their families
7
and communities.
8
(iii) An analysis of the public health
9
and legal implications of such laws, poli-
10
cies, regulations, and judicial precedents,
11
including an analysis of the consequences
12
of having a similar penal scheme applied to
13
comparable situations involving other com-
14
municable diseases.
15
(iv) An analysis of the proportionality
16
of punishments imposed under HIV-spe-
17
cific laws, policies, regulations, and judicial
18
precedents, taking into consideration pen-
19
alties attached to violation of State laws
20
against similar degrees of endangerment or
21
harm, such as driving while intoxicated
22
(DWI) or transmission of other commu-
23
nicable diseases, or more serious harms,
24
such as vehicular manslaughter offenses.
25
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•HR 5942 IH
(B) An analysis of common elements
1
shared among State laws, policies, regulations,
2
and judicial precedents.
3
(C) A set of best practice recommendations
4
directed to State governments, including State
5
attorneys general, public health officials, and
6
judicial officers, in order to ensure that laws,
7
policies, regulations, and judicial precedents re-
8
garding people living with HIV/AIDS are in ac-
9
cordance with the principles set forth in sub-
10
section (b).
11
(D) Recommendations for adjustments to
12
the Uniform Code of Military Justice, as may
13
be necessary, in order to ensure that laws, poli-
14
cies, regulations, and judicial precedents re-
15
garding people living with HIV/AIDS are in ac-
16
cordance with the principles set forth in sub-
17
section (b).
18
(3) GUIDANCE.—Within 90 days of the release
19
of the report required by paragraph (2), the Attor-
20
ney General and the Secretary of Health and
21
Human Services, acting jointly, shall develop and
22
publicly release updated guidance for States based
23
on the set of best practice recommendations required
24
by paragraph (2)(C) in order to assist States dealing
25
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621
•HR 5942 IH
with criminal and related civil commitment cases re-
1
garding people living with HIV/AIDS.
2
(4) MONITORING AND EVALUATION SYSTEM.—
3
Within 60 days of the release of the guidance re-
4
quired by paragraph (3), the Attorney General and
5
the Secretary of Health and Human Services, acting
6
jointly, shall establish an integrated monitoring and
7
evaluation system which includes, where appropriate,
8
objective and quantifiable performance goals and in-
9
dicators to measure progress toward statewide im-
10
plementation in each State of the best practice rec-
11
ommendations required in paragraph (2)(C), includ-
12
ing to monitor, track, and evaluate the effectiveness
13
of assistance provided pursuant to subsection (d).
14
(5) ADJUSTMENTS TO FEDERAL LAWS, POLI-
15
CIES, OR REGULATIONS.—Within 90 days of the re-
16
lease of the report required by paragraph (2), the
17
Attorney General, the Secretary of Health and
18
Human Services, and the Secretary of Defense, act-
19
ing jointly, shall develop and transmit to the Presi-
20
dent and the Congress, and make publicly available,
21
such proposals as may be necessary to implement
22
adjustments to Federal laws, policies, or regulations,
23
including to the Uniform Code of Military Justice,
24
based on the recommendations required by para-
25
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622
•HR 5942 IH
graph (2)(D), either through Executive order or
1
through changes to statutory law.
2
(6) AUTHORIZATION OF APPROPRIATIONS.—
3
(A) IN GENERAL.—There are authorized to
4
be appropriated such sums as may be necessary
5
for the purpose of carrying out this subsection.
6
Amounts authorized to be appropriated by the
7
preceding sentence are in addition to amounts
8
otherwise authorized to be appropriated for
9
such purpose.
10
(B) AVAILABILITY
OF
FUNDS.—Amounts
11
appropriated pursuant to the authorization of
12
appropriations in subparagraph (A) are author-
13
ized to remain available until expended.
14
(d) AUTHORIZATION TO PROVIDE GRANTS.—
15
(1) GRANTS BY ATTORNEY GENERAL.—
16
(A) IN GENERAL.—The Attorney General
17
may provide assistance to eligible State and
18
local entities and eligible nongovernmental orga-
19
nizations for the purpose of incorporating the
20
best practice recommendations developed under
21
subsection (c)(2)(C) within relevant State laws,
22
policies, regulations, and judicial decisions re-
23
garding people living with HIV/AIDS.
24
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623
•HR 5942 IH
(B) AUTHORIZED ACTIVITIES.—The assist-
1
ance authorized by subparagraph (A) may in-
2
clude—
3
(i) direct technical assistance to eligi-
4
ble State and local entities in order to de-
5
velop, disseminate, or implement State
6
laws, policies, regulations, or judicial deci-
7
sions that conform with the best practice
8
recommendations developed under sub-
9
section (c)(2)(C);
10
(ii) direct technical assistance to eligi-
11
ble nongovernmental organizations in order
12
to provide education and training, includ-
13
ing through classes, conferences, meetings,
14
and other educational activities, to eligible
15
State and local entities; and
16
(iii) subcontracting authority to allow
17
eligible State and local entities and eligible
18
nongovernmental organizations to seek
19
technical assistance from legal and public
20
health experts with a demonstrated under-
21
standing of the principles underlying the
22
best practice recommendations developed
23
under subsection (c)(2)(C).
24
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624
•HR 5942 IH
(2) GRANTS BY SECRETARY OF HEALTH AND
1
HUMAN SERVICES.—
2
(A)
IN
GENERAL.—The
Secretary
of
3
Health and Human Services, acting through the
4
Director of the Centers for Disease Control and
5
Prevention, may provide assistance to State and
6
local public health departments and eligible
7
nongovernmental organizations for the purpose
8
of supporting eligible State and local entities to
9
incorporate the best practice recommendations
10
developed under subsection (c)(2)(C) within rel-
11
evant State laws, policies, regulations, and judi-
12
cial decisions regarding people living with HIV/
13
AIDS.
14
(B) AUTHORIZED ACTIVITIES.—The assist-
15
ance authorized by subparagraph (A) may in-
16
clude—
17
(i) direct technical assistance to State
18
and local public health departments in
19
order to support the development, dissemi-
20
nation, or implementation of State laws,
21
policies, regulations, or judicial decisions
22
that conform with the set of best practice
23
recommendations developed under sub-
24
section (c)(2)(C);
25
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625
•HR 5942 IH
(ii) direct technical assistance to eligi-
1
ble nongovernmental organizations in order
2
to provide education and training, includ-
3
ing through classes, conferences, meetings,
4
and other educational activities, to State
5
and local public health departments; and
6
(iii) subcontracting authority to allow
7
State and local public health departments
8
and eligible nongovernmental organizations
9
to seek technical assistance from legal and
10
public health experts with a demonstrated
11
understanding of the principles underlying
12
the best practice recommendations devel-
13
oped under subsection (c)(2)(C).
14
(3) LIMITATION.—As a condition of receiving
15
assistance through this subsection, eligible State and
16
local entities, State and local public health depart-
17
ments, and eligible nongovernmental organizations
18
shall agree—
19
(A) not to place any unique or additional
20
burdens on people living with HIV/AIDS solely
21
as a result of their HIV status; and
22
(B) that if the entity, department, or orga-
23
nization promulgates any laws, policies, regula-
24
tions, or judicial decisions regarding people liv-
25
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626
•HR 5942 IH
ing with HIV/AIDS, such actions shall dem-
1
onstrate a public health-oriented, evidence-
2
based, medically accurate, and contemporary
3
understanding of—
4
(i) the multiple factors that lead to
5
HIV transmission;
6
(ii) the relative risk of HIV trans-
7
mission routes;
8
(iii) the current health implications of
9
living with HIV;
10
(iv) the associated benefits of treat-
11
ment and support services for people living
12
with HIV; and
13
(v) the impact of punitive HIV-spe-
14
cific laws and policies on public health, on
15
people living with or affected by HIV, and
16
on their families and communities.
17
(4) REPORT.—No later than 1 year after the
18
date of the enactment of this Act, and annually
19
thereafter, the Attorney General and the Secretary
20
of Health and Human Services, acting jointly, shall
21
transmit to Congress and make publicly available a
22
report describing, for each State, the impact and ef-
23
fectiveness of the assistance provided through this
24
Act. Each such report shall include—
25
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627
•HR 5942 IH
(A) a detailed description of the progress
1
each State has made, if any, in implementing
2
the best practice recommendations developed
3
under subsection (c)(2)(C) as a result of the as-
4
sistance provided under this subsection, and
5
based on the performance goals and indicators
6
established as part of the monitoring and eval-
7
uation system in subsection (c)(4);
8
(B) a brief summary of any outreach ef-
9
forts undertaken during the prior year by the
10
Attorney General and the Secretary of Health
11
and Human Services to encourage States to
12
seek assistance under this subsection in order
13
to implement the best practice recommenda-
14
tions developed under subsection (c)(2)(C);
15
(C) a summary of how assistance provided
16
through this subsection is being utilized by eli-
17
gible State and local entities, State and local
18
public health departments, and eligible non-
19
governmental organizations and, if applicable,
20
any contractors, including with respect to non-
21
governmental organizations, the type of tech-
22
nical assistance provided, and an evaluation of
23
the impact of such assistance on eligible State
24
and local entities; and
25
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628
•HR 5942 IH
(D) a summary and description of eligible
1
State and local entities, State and local public
2
health departments, and eligible nongovern-
3
mental
organizations
receiving
assistance
4
through this subsection, including if applicable,
5
a summary and description of any contractors
6
selected to assist in implementing such assist-
7
ance.
8
(5) DEFINITIONS.—For the purposes of this
9
subsection:
10
(A) ELIGIBLE
STATE
AND
LOCAL
ENTI-
11
TIES.—The term ‘‘eligible State and local enti-
12
ties’’ means the relevant individuals, offices, or
13
organizations that directly participate in the de-
14
velopment, dissemination, or implementation of
15
State laws, policies, regulations, or judicial deci-
16
sions, including—
17
(i) State governments, including State
18
attorneys general, State departments of
19
justice, and State National Guards, or
20
their equivalents;
21
(ii) State judicial and court systems,
22
including trial courts, appellate courts,
23
State supreme courts and courts of appeal,
24
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629
•HR 5942 IH
and State correctional facilities, or their
1
equivalents; and
2
(iii) local governments, including city
3
and county governments, district attorneys,
4
and local law enforcement departments, or
5
their equivalents.
6
(B) STATE AND LOCAL PUBLIC HEALTH
7
DEPARTMENTS.—The term ‘‘State and local
8
public health departments’’ means the fol-
9
lowing:
10
(i) State public health departments, or
11
their equivalents, including the chief officer
12
of such departments and infectious disease
13
and communicable disease specialists with-
14
in such departments.
15
(ii) Local public health departments,
16
or their equivalents, including city and
17
county public health departments, the chief
18
officer of such departments, and infectious
19
disease and communicable disease special-
20
ists within such departments.
21
(iii) Public health departments or offi-
22
cials, or their equivalents, within State or
23
local correctional facilities.
24
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•HR 5942 IH
(iv) Public health departments or offi-
1
cials, or their equivalents, within State Na-
2
tional Guards.
3
(v) Any other recognized State or
4
local public health organization or entity
5
charged with carrying out official State or
6
local public health duties.
7
(C) ELIGIBLE NONGOVERNMENTAL ORGA-
8
NIZATIONS.—The term ‘‘eligible nongovern-
9
mental organizations’’ means the following:
10
(i) Nongovernmental organizations,
11
including trade organizations or associa-
12
tions that represent—
13
(I) State attorneys general, or
14
their equivalents;
15
(II) State public health officials,
16
or their equivalents;
17
(III) State judicial and court offi-
18
cers, including judges, district attor-
19
neys, prosecutors, defense attorneys,
20
law enforcement, and correctional offi-
21
cers;
22
(IV) State National Guards;
23
(V) people living with HIV/AIDS;
24
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631
•HR 5942 IH
(VI) legal advocacy and HIV/
1
AIDS service organizations that work
2
with people living with HIV/AIDS;
3
and
4
(VII) nongovernmental health or-
5
ganizations that work on behalf of
6
people living with HIV/AIDS.
7
(ii) Nongovernmental organizations,
8
including trade organizations or associa-
9
tions that demonstrate a public-health ori-
10
ented, evidence-based, medically accurate,
11
and contemporary understanding of—
12
(I) the multiple factors that lead
13
to HIV transmission;
14
(II) the relative risk of HIV
15
transmission routes;
16
(III) the current health implica-
17
tions of living with HIV;
18
(IV) the associated benefits of
19
treatment and support services for
20
people living with HIV; and
21
(V) the impact of punitive HIV-
22
specific laws and policies on public
23
health, on people living with or af-
24
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•HR 5942 IH
fected by HIV, and on their families
1
and communities.
2
(6) AUTHORIZATION OF APPROPRIATIONS.—
3
(A) IN GENERAL.—In addition to amounts
4
otherwise made available, there are authorized
5
to be appropriated to the Attorney General and
6
the Secretary of Health and Human Services
7
such sums as may be necessary to carry out
8
this subsection for each of the fiscal years 2019
9
through 2023.
10
(B) AVAILABILITY
OF
FUNDS.—Amounts
11
appropriated pursuant to the authorizations of
12
appropriations in subparagraph (A) are author-
13
ized to remain available until expended.
14
SEC. 756. EXPANDING SUPPORT FOR CONDOMS IN PRIS-
15
ONS.
16
(a) AUTHORITY TO ALLOW COMMUNITY ORGANIZA-
17
TIONS TO PROVIDE STI COUNSELING, STI PREVENTION
18
EDUCATION, AND SEXUAL BARRIER PROTECTION DE-
19
VICES IN FEDERAL CORRECTIONAL FACILITIES.—
20
(1) DIRECTIVE TO ATTORNEY GENERAL.—Not
21
later than 30 days after the date of enactment of
22
this Act, the Attorney General shall direct the Bu-
23
reau of Prisons to allow community organizations to
24
distribute sexual barrier protection devices and to
25
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•HR 5942 IH
engage in STI counseling and STI prevention edu-
1
cation in Federal correctional facilities. These activi-
2
ties shall be subject to all relevant Federal laws and
3
regulations which govern visitation in correctional
4
facilities.
5
(2) INFORMATION
REQUIREMENT.—Any com-
6
munity organization permitted to distribute sexual
7
barrier protection devices under paragraph (1) shall
8
ensure that the persons to whom the devices are dis-
9
tributed are informed about the proper use and dis-
10
posal of sexual barrier protection devices in accord-
11
ance with established public health practices. Any
12
community organization conducting STI counseling
13
or STI prevention education under paragraph (1)
14
shall offer comprehensive sexuality education.
15
(3) POSSESSION OF DEVICE PROTECTED.—No
16
Federal correctional facility may, because of the pos-
17
session or use of a sexual barrier protection device—
18
(A) take adverse action against an incar-
19
cerated person; or
20
(B) consider possession or use as evidence
21
of prohibited activity for the purpose of any
22
Federal correctional facility administrative pro-
23
ceeding.
24
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•HR 5942 IH
(4) IMPLEMENTATION.—The Attorney General
1
and Bureau of Prisons shall implement this section
2
according to established public health practices in a
3
manner that protects the health, safety, and privacy
4
of incarcerated persons and of correctional facility
5
staff.
6
(b) SENSE OF CONGRESS REGARDING DISTRIBUTION
7
OF SEXUAL BARRIER PROTECTION DEVICES IN STATE
8
PRISON SYSTEMS.—It is the sense of the Congress that
9
States should allow for the legal distribution of sexual bar-
10
rier protection devices in State correctional facilities to re-
11
duce the prevalence and spread of STIs in those facilities.
12
(c) SURVEY OF AND REPORT ON CORRECTIONAL FA-
13
CILITY PROGRAMS AIMED AT REDUCING THE SPREAD OF
14
STIS.—
15
(1) SURVEY.—The Attorney General, after con-
16
sulting with the Secretary of Health and Human
17
Services, State officials, and community organiza-
18
tions, shall, to the maximum extent practicable, con-
19
duct a survey of all Federal and State correctional
20
facilities, not later than 180 days after the date of
21
enactment of this Act and annually thereafter for 5
22
years, to determine the following:
23
(A) COUNSELING, TREATMENT, AND SUP-
24
PORTIVE SERVICES.—Whether the correctional
25
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•HR 5942 IH
facility requires incarcerated persons to partici-
1
pate in counseling, treatment, and supportive
2
services related to STIs, or whether it offers
3
such programs to incarcerated persons.
4
(B) ACCESS TO SEXUAL BARRIER PROTEC-
5
TION DEVICES.—Whether incarcerated persons
6
can—
7
(i) possess sexual barrier protection
8
devices;
9
(ii) purchase sexual barrier protection
10
devices;
11
(iii) purchase sexual barrier protection
12
devices at a reduced cost; and
13
(iv) obtain sexual barrier protection
14
devices without cost.
15
(C) INCIDENCE OF SEXUAL VIOLENCE.—
16
The incidence of sexual violence and assault
17
committed by incarcerated persons and by cor-
18
rectional facility staff.
19
(D) PREVENTION EDUCATION OFFERED.—
20
The type of prevention education, information,
21
or training offered to incarcerated persons and
22
correctional facility staff regarding sexual vio-
23
lence and the spread of STIs, including whether
24
such education, information, or training—
25
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(i) constitutes comprehensive sexuality
1
education;
2
(ii) is compulsory for new incarcerated
3
persons and for new staff; and
4
(iii) is offered on an ongoing basis.
5
(E) STI TESTING.—Whether the correc-
6
tional facility tests incarcerated persons for
7
STIs or gives them the option to undergo such
8
testing—
9
(i) at intake;
10
(ii) on a regular basis; and
11
(iii) prior to release.
12
(F) STI TEST RESULTS.—The number of
13
incarcerated persons who are tested for STIs
14
and the outcome of such tests at each correc-
15
tional facility, disaggregated to include results
16
for—
17
(i) the type of sexually transmitted in-
18
fection tested for;
19
(ii) the race and/or ethnicity of indi-
20
viduals tested;
21
(iii) the age of individuals tested; and
22
(iv) the gender of individuals tested.
23
(G) PRERELEASE
REFERRAL
POLICY.—
24
Whether incarcerated persons are informed
25
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prior to release about STI-related services or
1
other health services in their communities, in-
2
cluding free and low-cost counseling and treat-
3
ment options.
4
(H) PRERELEASE
REFERRALS
MADE.—
5
The number of referrals to community-based
6
organizations or public health facilities offering
7
STI-related or other health services provided to
8
incarcerated persons prior to release, and the
9
type of counseling or treatment for which the
10
referral was made.
11
(I) REINSTATEMENT OF MEDICAID BENE-
12
FITS.—Whether the correctional facility assists
13
incarcerated persons that were enrolled in the
14
State Medicaid program prior to their incarcer-
15
ation, in reinstating their enrollment upon re-
16
lease and whether such individuals receive refer-
17
rals as provided by subparagraph (G) to entities
18
that accept the State Medicaid program, includ-
19
ing if applicable—
20
(i) the number of such individuals, in-
21
cluding those diagnosed with the human
22
immunodeficiency virus, that have been re-
23
instated;
24
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(ii) a list of obstacles to reinstating
1
enrollment or to making determinations of
2
eligibility for reinstatement, if any; and
3
(iii) the number of individuals denied
4
enrollment.
5
(J) OTHER ACTIONS TAKEN.—Whether the
6
correctional facility has taken any other action,
7
in conjunction with community organizations or
8
otherwise, to reduce the prevalence and spread
9
of STIs in that facility.
10
(2) PRIVACY.—In conducting the survey, the
11
Attorney General shall not request or retain the
12
identity of any person who has sought or been of-
13
fered counseling, treatment, testing, or prevention
14
education information regarding an STI (including
15
information about sexual barrier protection devices),
16
or who has tested positive for an STI.
17
(3) REPORT.—The Attorney General shall
18
transmit to Congress and make publicly available
19
the results of the survey required under paragraph
20
(1), both for the Nation as a whole and
21
disaggregated as to each State and each correctional
22
facility. To the maximum extent possible, the Attor-
23
ney General shall issue the first report no later than
24
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1 year after the date of enactment of this Act and
1
shall issue reports annually thereafter for 5 years.
2
(d) STRATEGY.—
3
(1) DIRECTIVE TO ATTORNEY GENERAL.—The
4
Attorney General, in consultation with the Secretary
5
of Health and Human Services, State officials, and
6
community organizations, shall develop and imple-
7
ment a 5-year strategy to reduce the prevalence and
8
spread of STIs in Federal and State correctional fa-
9
cilities. To the maximum extent possible, the strat-
10
egy shall be developed, transmitted to Congress, and
11
made publicly available no later than 180 days after
12
the transmission of the first report required under
13
subsection (c)(3).
14
(2) CONTENTS
OF
STRATEGY.—The strategy
15
shall include the following:
16
(A) PREVENTION EDUCATION.—A plan for
17
improving prevention education, information,
18
and training offered to incarcerated persons
19
and correctional facility staff, including infor-
20
mation and training on sexual violence and the
21
spread of STIs, and comprehensive sexuality
22
education.
23
(B) SEXUAL BARRIER PROTECTION DEVICE
24
ACCESS.—A plan for expanding access to sexual
25
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barrier protection devices in correctional facili-
1
ties.
2
(C) SEXUAL
VIOLENCE
REDUCTION.—A
3
plan for reducing the incidence of sexual vio-
4
lence among incarcerated persons and correc-
5
tional facility staff, developed in consultation
6
with the National Prison Rape Elimination
7
Commission.
8
(D) COUNSELING AND SUPPORTIVE SERV-
9
ICES.—A plan for expanding access to coun-
10
seling and supportive services related to STIs in
11
correctional facilities.
12
(E) TESTING.—A plan for testing incarcer-
13
ated persons for STIs during intake, during
14
regular health exams, and prior to release, and
15
that—
16
(i) is conducted in accordance with
17
guidelines established by the Centers for
18
Disease Control and Prevention;
19
(ii) includes pretest counseling;
20
(iii) requires that incarcerated persons
21
are notified of their option to decline test-
22
ing at any time;
23
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(iv) requires that incarcerated persons
1
are confidentially notified of their test re-
2
sults in a timely manner; and
3
(v) ensures that incarcerated persons
4
testing positive for STIs receive post-test
5
counseling, care, treatment, and supportive
6
services.
7
(F) TREATMENT.—A plan for ensuring
8
that correctional facilities have the necessary
9
medicine and equipment to treat and monitor
10
STIs and for ensuring that incarcerated per-
11
sons living with or testing positive for STIs re-
12
ceive and have access to care and treatment
13
services.
14
(G)
STRATEGIES
FOR
DEMOGRAPHIC
15
GROUPS.—A plan for developing and imple-
16
menting culturally appropriate, sensitive, and
17
specific strategies to reduce the spread of STIs
18
among demographic groups heavily impacted by
19
STIs.
20
(H) LINKAGES
WITH
COMMUNITIES
AND
21
FACILITIES.—A plan for establishing and
22
strengthening linkages to local communities and
23
health facilities that—
24
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(i) provide counseling, testing, care,
1
and treatment services;
2
(ii) may receive persons recently re-
3
leased from incarceration who are living
4
with STIs; and
5
(iii) accept payment through the State
6
Medicaid program.
7
(I) ENROLLMENT
IN
STATE
MEDICAID
8
PROGRAMS.—Plans to ensure that incarcerated
9
persons who were—
10
(i) enrolled in their State Medicaid
11
program prior to incarceration in a correc-
12
tional facility are automatically reenrolled
13
in such program upon their release; and
14
(ii) not enrolled in their State Med-
15
icaid program prior to incarceration, but
16
who are diagnosed with the human im-
17
munodeficiency virus while incarcerated in
18
a correctional facility, are automatically
19
enrolled in such program upon their re-
20
lease.
21
(J) OTHER PLANS.—Any other plans de-
22
veloped by the Attorney General for reducing
23
the spread of STIs or improving the quality of
24
health care in correctional facilities.
25
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(K) MONITORING SYSTEM.—A monitoring
1
system that establishes performance goals re-
2
lated to reducing the prevalence and spread of
3
STIs in correctional facilities and which, where
4
feasible, expresses such goals in quantifiable
5
form.
6
(L) MONITORING
SYSTEM
PERFORMANCE
7
INDICATORS.—Performance
indicators
that
8
measure or assess the achievement of the per-
9
formance goals described in subparagraph (K).
10
(M) COST ESTIMATE.—A detailed estimate
11
of the funding necessary to implement the
12
strategy at the Federal and State levels for all
13
5 years, including the amount of funds required
14
by community organizations to implement the
15
parts of the strategy in which they take part.
16
(3) REPORT.—The Attorney General shall
17
transmit to Congress and make publicly available an
18
annual progress report regarding the implementation
19
and effectiveness of the strategy described in para-
20
graph (1). The progress report shall include an eval-
21
uation of the implementation of the strategy using
22
the monitoring system and performance indicators
23
provided for in subparagraphs (K) and (L) of para-
24
graph (2).
25
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(e) AUTHORIZATION OF APPROPRIATIONS.—
1
(1) IN GENERAL.—There are authorized to be
2
appropriated such sums as may be necessary to
3
carry out this section for each of fiscal years 2019
4
through 2023.
5
(2) AVAILABILITY OF FUNDS.—Amounts made
6
available under paragraph (1) are authorized to re-
7
main available until expended.
8
(f) DEFINITIONS.—For the purposes of this section:
9
(1) COMMUNITY
ORGANIZATION.—The term
10
‘‘community organization’’ means a public health
11
care facility or a nonprofit organization which pro-
12
vides health- or STI-related services according to es-
13
tablished public health standards.
14
(2) COMPREHENSIVE SEXUALITY EDUCATION.—
15
The term ‘‘comprehensive sexuality education’’
16
means sexuality education that includes information
17
about abstinence and about the proper use and dis-
18
posal of sexual barrier protection devices and which
19
is—
20
(A) evidence-based;
21
(B) medically accurate;
22
(C) age and developmentally appropriate;
23
(D) gender and identity sensitive;
24
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•HR 5942 IH
(E) culturally and linguistically appro-
1
priate; and
2
(F) structured to promote critical thinking,
3
self-esteem, respect for others, and the develop-
4
ment of healthy attitudes and relationships.
5
(3) CORRECTIONAL FACILITY.—The term ‘‘cor-
6
rectional facility’’ means any prison, penitentiary,
7
adult detention facility, juvenile detention facility,
8
jail, or other facility to which persons may be sent
9
after conviction of a crime or act of juvenile delin-
10
quency within the United States.
11
(4) INCARCERATED PERSON.—The term ‘‘incar-
12
cerated person’’ means any person who is serving a
13
sentence in a correctional facility after conviction of
14
a crime.
15
(5) SEXUALLY TRANSMITTED INFECTION.—The
16
term ‘‘sexually transmitted infection’’ or ‘‘STI’’
17
means any disease or infection that is commonly
18
transmitted through sexual activity, including HIV/
19
AIDS, gonorrhea, chlamydia, syphilis, genital her-
20
pes, viral hepatitis, and human papillomavirus.
21
(6) SEXUAL BARRIER PROTECTION DEVICE.—
22
The term ‘‘sexual barrier protection device’’ means
23
any FDA-approved physical device which has not
24
been tampered with and which reduces the prob-
25
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ability of STI transmission or infection between sex-
1
ual partners, including female condoms, male
2
condoms, and dental dams.
3
(7) STATE.—The term ‘‘State’’ includes the
4
District of Columbia, American Samoa, the Com-
5
monwealth of the Northern Mariana Islands, Guam,
6
Puerto Rico, and the United States Virgin Islands.
7
SEC. 757. AUTOMATIC REINSTATEMENT OR ENROLLMENT
8
IN MEDICAID FOR PEOPLE WHO TEST POSI-
9
TIVE FOR HIV BEFORE REENTERING COMMU-
10
NITIES.
11
(a) IN GENERAL.—Section 1902(e) of the Social Se-
12
curity Act (42 U.S.C. 1396a(e)) is amended by adding at
13
the end the following:
14
‘‘(15) ENROLLMENT OF EX-OFFENDERS.—
15
‘‘(A) AUTOMATIC ENROLLMENT OR REIN-
16
STATEMENT.—
17
‘‘(i) IN
GENERAL.—The State plan
18
shall provide for the automatic enrollment
19
or reinstatement of enrollment of an eligi-
20
ble individual—
21
‘‘(I) if such individual is sched-
22
uled to be released from a public insti-
23
tution due to the completion of sen-
24
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•HR 5942 IH
tence, not less than 30 days prior to
1
the scheduled date of the release; and
2
‘‘(II) if such individual is to be
3
released from a public institution on
4
parole or on probation, as soon as
5
possible after the date on which the
6
determination to release such indi-
7
vidual was made, and before the date
8
such individual is released.
9
‘‘(ii) EXCEPTION.—If a State makes a
10
determination that an individual is not eli-
11
gible to be enrolled under the State plan—
12
‘‘(I) on or before the date by
13
which the individual would be enrolled
14
under clause (i), such clause shall not
15
apply to such individual; or
16
‘‘(II) after such date, the State
17
may terminate the enrollment of such
18
individual.
19
‘‘(B) RELATIONSHIP OF ENROLLMENT TO
20
PAYMENT FOR SERVICES.—
21
‘‘(i) IN
GENERAL.—Subject to sub-
22
paragraph (A)(ii), an eligible individual
23
who is enrolled, or whose enrollment is re-
24
instated, under subparagraph (A) shall be
25
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eligible for medical assistance that is pro-
1
vided after the date that the eligible indi-
2
vidual is released from the public institu-
3
tion.
4
‘‘(ii) RELATIONSHIP
TO
PAYMENT
5
PROHIBITION FOR INMATES.—No provision
6
of this paragraph may be construed to per-
7
mit payment for care or services for which
8
payment
is
excluded
under
section
9
1905(a)(3)(A).
10
‘‘(C) TREATMENT OF CONTINUOUS ELIGI-
11
BILITY.—
12
‘‘(i) SUSPENSION FOR INMATES.—Any
13
period of continuous eligibility under this
14
title shall be suspended on the date an in-
15
dividual enrolled under this title becomes
16
an inmate of a public institution (except as
17
a patient of a medical institution).
18
‘‘(ii) DETERMINATION OF REMAINING
19
PERIOD.—Notwithstanding any changes to
20
State law related to continuous eligibility
21
during the time that an individual is an in-
22
mate of a public institution (except as a
23
patient of a medical institution), subject to
24
clause (iii), with respect to an eligible indi-
25
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vidual who was subject to a suspension
1
under clause (i), on the date that such in-
2
dividual is released from a public institu-
3
tion the suspension of continuous eligibility
4
under such clause shall be lifted for a pe-
5
riod that is equal to the time remaining in
6
the period of continuous eligibility for such
7
individual on the date that such period was
8
suspended under such clause.
9
‘‘(iii) EXCEPTION.—If a State makes
10
a determination that an individual is not
11
eligible to be enrolled under the State
12
plan—
13
‘‘(I) on or before the date that
14
the suspension of continuous eligibility
15
is lifted under clause (ii), such clause
16
shall not apply to such individual; or
17
‘‘(II) after such date, the State
18
may terminate the enrollment of such
19
individual.
20
‘‘(D) AUTOMATIC ENROLLMENT OR REIN-
21
STATEMENT OF ENROLLMENT DEFINED.—For
22
purposes of this paragraph, the term ‘automatic
23
enrollment or reinstatement of enrollment’
24
means that the State determines eligibility for
25
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•HR 5942 IH
medical assistance under the State plan without
1
a program application from, or on behalf of, the
2
eligible individual, but an individual can only be
3
automatically enrolled in the State Medicaid
4
plan if the individual affirmatively consents to
5
being enrolled through affirmation in writing,
6
by telephone, orally, through electronic signa-
7
ture, or through any other means specified by
8
the Secretary.
9
‘‘(E) ELIGIBLE
INDIVIDUAL
DEFINED.—
10
For purposes of this paragraph, the term ‘eligi-
11
ble individual’ means an individual who is an
12
inmate of a public institution (except as a pa-
13
tient in a medical institution)—
14
‘‘(i) who was enrolled under the State
15
plan for medical assistance immediately be-
16
fore becoming an inmate of such an insti-
17
tution; or
18
‘‘(ii) who is diagnosed with human im-
19
munodeficiency virus.’’.
20
(b) SUPPLEMENTAL FUNDING FOR STATE IMPLE-
21
MENTATION OF AUTOMATIC REINSTATEMENT OF MED-
22
ICAID BENEFITS.—
23
(1) IN GENERAL.—Subject to paragraph (6),
24
for each State for which the Secretary of Health and
25
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•HR 5942 IH
Human Services has approved an application under
1
paragraph (3), the Federal matching payments (in-
2
cluding payments based on the Federal medical as-
3
sistance percentage) made to such State under sec-
4
tion 1903 of the Social Security Act (42 U.S.C.
5
1396b) shall be increased by 5.0 percentage points
6
for payments to the State for the activities per-
7
mitted under paragraph (2) or a period of one year.
8
(2) USE OF FUNDS.—A State may only use in-
9
creased matching payments authorized under para-
10
graph (1)—
11
(A) to strengthen the State’s enrollment
12
and administrative resources for the purpose of
13
improving processes for enrolling (or reinstating
14
the enrollment of) eligible individuals (as such
15
term is defined in subparagraph (E) of para-
16
graph (15) of section 1902(e) of the Social Se-
17
curity Act (as amended by subsection (a))); and
18
(B) for medical assistance (as such term is
19
defined in section 1905(a) of the Social Secu-
20
rity Act) provided to such eligible individuals.
21
(3) APPLICATION AND AGREEMENT.—The Sec-
22
retary may only make payments to a State in the in-
23
creased amount if—
24
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652
•HR 5942 IH
(A) the State has amended the State plan
1
under section 1902(e) of the Social Security
2
Act to incorporate the requirements of para-
3
graph (15) of such section (as added by sub-
4
section (a));
5
(B) the State has submitted an application
6
to the Secretary that includes a plan for imple-
7
menting
the
requirements
of
section
8
1902(e)(15) of the Social Security Act under
9
the State’s amended State plan before the end
10
of the 90-day period beginning on the date that
11
the State receives increased matching payments
12
under paragraph (1);
13
(C) the State’s application meets the satis-
14
faction of the Secretary; and
15
(D) the State enters an agreement with
16
the Secretary that states that—
17
(i) the State will only use the in-
18
creased matching funds for the uses per-
19
mitted under paragraph (2); and
20
(ii) at the end of the period under
21
paragraph (1), the State will submit to the
22
Secretary, and make publicly available, a
23
report that contains the information re-
24
quired under paragraph (4).
25
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(4) REQUIRED REPORT INFORMATION.—The in-
1
formation that is required in the report under para-
2
graph (3)(D)(ii) includes—
3
(A) the results of an evaluation of the im-
4
pact of the implementation of the requirements
5
of section 1902(e)(15) of the Social Security
6
Act on improving the State’s processes for en-
7
rolling of individuals who are released from
8
public institutions into the Medicaid program;
9
(B) the number of individuals who were
10
automatically enrolled (or whose enrollment is
11
reinstated) under such section 1902(e)(15) dur-
12
ing the period under paragraph (1); and
13
(C) any other information that is required
14
by the Secretary.
15
(5) INCREASE IN CAP ON MEDICAID PAYMENTS
16
TO
TERRITORIES.—Subject to paragraph (6), the
17
amounts otherwise determined for Puerto Rico, the
18
United States Virgin Islands, Guam, the Northern
19
Mariana Islands, and American Samoa under sub-
20
sections (f) and (g) of section 1108 of the Social Se-
21
curity Act (42 U.S.C. 1308) shall each be increased
22
by the necessary amount to allow for the increase in
23
the Federal matching payments under paragraph
24
(1), but only for the period under such paragraph
25
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for such State. In the case of such an increase for
1
a territory, subsection (a)(1) of such section 1108
2
shall be applied without regard to any increase in
3
payment made to the territory under part E of title
4
IV of such Act that is attributable to the increase
5
in Federal medical assistance percentage effected
6
under paragraph (1) for the territory.
7
(6) LIMITATIONS.—
8
(A) TIMING.—With respect to a State, at
9
the end of the period under paragraph (1), no
10
increased matching payments may be made to
11
such State under this subsection.
12
(B) MAINTENANCE OF ELIGIBILITY.—
13
(i) IN
GENERAL.—Subject to clause
14
(ii), a State is not eligible for an increase
15
in its Federal matching payments under
16
paragraph (1), or an increase in a cap
17
amount under paragraph (5), if eligibility
18
standards, methodologies, or procedures
19
under its State plan under title XIX of the
20
Social Security Act (including any waiver
21
under such title or under section 1115 of
22
such Act (42 U.S.C. 1315)) are more re-
23
strictive than the eligibility standards,
24
methodologies, or procedures, respectively,
25
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under such plan (or waiver) as in effect on
1
the date of enactment of this Act.
2
(ii) STATE REINSTATEMENT OF ELIGI-
3
BILITY PERMITTED.—A State that has re-
4
stricted eligibility standards, methodolo-
5
gies, or procedures under its State plan
6
under title XIX of the Social Security Act
7
(including any waiver under such title or
8
under section 1115 of such Act (42 U.S.C.
9
1315)) after the date of enactment of this
10
Act, is no longer ineligible under subpara-
11
graph (A) beginning with the first calendar
12
quarter in which the State has reinstated
13
eligibility standards, methodologies, or pro-
14
cedures that are no more restrictive than
15
the eligibility standards, methodologies, or
16
procedures, respectively, under such plan
17
(or waiver) as in effect on such date.
18
(C) NO
WAIVER
AUTHORITY.—The Sec-
19
retary may not waive the application of this
20
subsection under section 1115 of the Social Se-
21
curity Act or otherwise.
22
(D) LIMITATION OF MATCHING PAYMENTS
23
TO 100 PERCENT.—In no case shall an increase
24
in Federal matching payments under this sub-
25
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section result in Federal matching payments
1
that exceed 100 percent.
2
(c) EFFECTIVE DATE.—
3
(1) IN GENERAL.—Except as provided in para-
4
graph (2), the amendments made by subsection (a)
5
shall take effect 180 days after the date of the en-
6
actment of this Act and shall apply to services fur-
7
nished on or after such date.
8
(2) RULE
FOR
CHANGES
REQUIRING
STATE
9
LEGISLATION.—In the case of a State plan for med-
10
ical assistance under title XIX of the Social Security
11
Act which the Secretary of Health and Human Serv-
12
ices determines requires State legislation (other than
13
legislation appropriating funds) in order for the plan
14
to meet the additional requirement imposed by the
15
amendments made by this section, the State plan
16
shall not be regarded as failing to comply with the
17
requirements of such title solely on the basis of its
18
failure to meet this additional requirement before
19
the first day of the first calendar quarter beginning
20
after the close of the first regular session of the
21
State legislature that begins after the date of the en-
22
actment of this Act. For purposes of the previous
23
sentence, in the case of a State that has a 2-year
24
legislative session, each year of such session shall be
25
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deemed to be a separate regular session of the State
1
legislature.
2
SEC. 758. STOP AIDS IN PRISON.
3
(a) SHORT TITLE.—This section may be cited as the
4
‘‘Stop AIDS in Prison Act’’.
5
(b) IN GENERAL.—The Bureau of Prisons (herein-
6
after in this section referred to as the ‘‘Bureau’’) shall
7
develop a comprehensive policy to provide HIV testing,
8
treatment, and prevention for inmates within the correc-
9
tional setting and upon reentry.
10
(c) PURPOSE.—The purposes of this policy shall be
11
as follows:
12
(1) To stop the spread of HIV/AIDS among in-
13
mates.
14
(2) To protect prison guards and other per-
15
sonnel from HIV/AIDS infection.
16
(3) To provide comprehensive medical treat-
17
ment to inmates who are living with HIV/AIDS.
18
(4) To promote HIV/AIDS awareness and pre-
19
vention among inmates.
20
(5) To encourage inmates to take personal re-
21
sponsibility for their health.
22
(6) To reduce the risk that inmates will trans-
23
mit HIV/AIDS to other persons in the community
24
following their release from prison.
25
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(d) CONSULTATION.—The Bureau shall consult with
1
appropriate officials of the Department of Health and
2
Human Services, the Office of National Drug Control Pol-
3
icy, the Office of National AIDS Policy, and the Centers
4
for Disease Control and Prevention regarding the develop-
5
ment of this policy.
6
(e) TIME LIMIT.—The Bureau shall draft appro-
7
priate regulations to implement this policy not later than
8
1 year after the date of the enactment of this Act.
9
(f) REQUIREMENTS FOR POLICY.—The policy created
10
under subsection (b) shall provide for the following:
11
(1) TESTING
AND
COUNSELING
UPON
IN-
12
TAKE.—
13
(A) Health care personnel shall provide
14
routine HIV testing to all inmates as a part of
15
a comprehensive medical examination imme-
16
diately following admission to a facility. Health
17
care personnel need not provide routine HIV
18
testing to an inmate who is transferred to a fa-
19
cility from another facility if the inmate’s med-
20
ical records are transferred with the inmate and
21
indicate that the inmate has been tested pre-
22
viously.
23
(B) To all inmates admitted to a facility
24
prior to the effective date of this policy, health
25
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care personnel shall provide routine HIV testing
1
within no more than 6 months. HIV testing for
2
these inmates may be performed in conjunction
3
with other health services provided to these in-
4
mates by health care personnel.
5
(C) All HIV tests under this paragraph
6
shall comply with the opt-out provision.
7
(2) PRE-TEST AND POST-TEST COUNSELING.—
8
Health care personnel shall provide confidential pre-
9
test and post-test counseling to all inmates who are
10
tested for HIV. Counseling may be included with
11
other general health counseling provided to inmates
12
by health care personnel.
13
(3) HIV/AIDS PREVENTION EDUCATION.—
14
(A) Health care personnel shall improve
15
HIV/AIDS awareness through frequent edu-
16
cational programs for all inmates. HIV/AIDS
17
educational programs may be provided by com-
18
munity-based organizations, local health depart-
19
ments, and inmate peer educators.
20
(B) HIV/AIDS educational materials shall
21
be made available to all inmates at orientation,
22
at health care clinics, at regular educational
23
programs, and prior to release. Both written
24
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and audiovisual materials shall be made avail-
1
able to all inmates.
2
(C)(i) The HIV/AIDS educational pro-
3
grams and materials under this paragraph shall
4
include information on—
5
(I) modes of transmission, including
6
transmission through tattooing, sexual con-
7
tact, and intravenous drug use;
8
(II) prevention methods;
9
(III) treatment; and
10
(IV) disease progression.
11
(ii) The programs and materials shall be
12
culturally sensitive, written or designed for low-
13
literacy levels, available in a variety of lan-
14
guages, and present scientifically accurate in-
15
formation in a clear and understandable man-
16
ner.
17
(4) HIV TESTING UPON REQUEST.—
18
(A) Health care personnel shall allow in-
19
mates to obtain HIV tests upon request once
20
per year or whenever an inmate has a reason to
21
believe the inmate may have been exposed to
22
HIV. Health care personnel shall, both orally
23
and in writing, inform inmates, during orienta-
24
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tion and periodically throughout incarceration,
1
of their right to obtain HIV tests.
2
(B) Health care personnel shall encourage
3
inmates to request HIV tests if the inmate is
4
sexually active, has been raped, uses intra-
5
venous drugs, receives a tattoo, or if the inmate
6
is concerned that the inmate may have been ex-
7
posed to HIV/AIDS.
8
(C) An inmate’s request for an HIV test
9
shall not be considered an indication that the
10
inmate has put him/herself at risk of infection
11
and/or committed a violation of prison rules.
12
(5) HIV TESTING OF PREGNANT WOMAN.—
13
(A) Health care personnel shall provide
14
routine HIV testing to all inmates who become
15
pregnant.
16
(B) All HIV tests under this paragraph
17
shall comply with the opt-out provision.
18
(6) COMPREHENSIVE TREATMENT.—
19
(A) Health care personnel shall provide all
20
inmates who test positive for HIV—
21
(i)
timely,
comprehensive
medical
22
treatment;
23
(ii) confidential counseling on man-
24
aging their medical condition and pre-
25
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venting its transmission to other persons;
1
and
2
(iii) voluntary partner notification
3
services.
4
(B) Health care provided under this para-
5
graph shall be consistent with current Depart-
6
ment of Health and Human Services guidelines
7
and standard medical practice. Health care per-
8
sonnel shall discuss treatment options, the im-
9
portance of adherence to antiretroviral therapy,
10
and the side effects of medications with inmates
11
receiving treatment.
12
(C) Health care personnel and pharmacy
13
personnel shall ensure that the facility for-
14
mulary contains all Food and Drug Administra-
15
tion-approved medications necessary to provide
16
comprehensive treatment for inmates living with
17
HIV/AIDS, and that the facility maintains ade-
18
quate supplies of such medications to meet in-
19
mates’ medical needs. Health care personnel
20
and pharmacy personnel shall also develop and
21
implement automatic renewal systems for these
22
medications to prevent interruptions in care.
23
(D) Correctional staff, health care per-
24
sonnel, and pharmacy personnel shall develop
25
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and implement distribution procedures to en-
1
sure timely and confidential access to medica-
2
tions.
3
(7) PROTECTION OF CONFIDENTIALITY.—
4
(A) Health care personnel shall develop
5
and implement procedures to ensure the con-
6
fidentiality of inmate tests, diagnoses, and
7
treatment. Health care personnel and correc-
8
tional staff shall receive regular training on the
9
implementation of these procedures. Penalties
10
for violations of inmate confidentiality by health
11
care personnel or correctional staff shall be
12
specified and strictly enforced.
13
(B) HIV testing, counseling, and treat-
14
ment shall be provided in a confidential setting
15
where other routine health services are provided
16
and in a manner that allows the inmate to re-
17
quest and obtain these services as routine med-
18
ical services.
19
(8) TESTING, COUNSELING, AND
REFERRAL
20
PRIOR TO REENTRY.—
21
(A) Health care personnel shall provide
22
routine HIV testing to all inmates no more
23
than 3 months prior to their release and re-
24
entry into the community. Inmates who are al-
25
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664
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ready known to be infected need not be tested
1
again. This requirement may be waived if an in-
2
mate’s release occurs without sufficient notice
3
to the Bureau to allow health care personnel to
4
perform a routine HIV test and notify the in-
5
mate of the results.
6
(B) All HIV tests under this paragraph
7
shall comply with the opt-out provision.
8
(C) To all inmates who test positive for
9
HIV and all inmates who already are known to
10
have HIV/AIDS, health care personnel shall
11
provide—
12
(i) confidential prerelease counseling
13
on managing their medical condition in the
14
community, accessing appropriate treat-
15
ment and services in the community, and
16
preventing the transmission of their condi-
17
tion to family members and other persons
18
in the community;
19
(ii) referrals to appropriate health
20
care providers and social service agencies
21
in the community that meet the inmate’s
22
individual needs, including voluntary part-
23
ner notification services and prevention
24
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counseling services for people living with
1
HIV/AIDS; and
2
(iii) a 30-day supply of any medically
3
necessary medications the inmate is cur-
4
rently receiving.
5
(9) OPT-OUT PROVISION.—Inmates shall have
6
the right to refuse routine HIV testing. Inmates
7
shall be informed both orally and in writing of this
8
right. Oral and written disclosure of this right may
9
be included with other general health information
10
and counseling provided to inmates by health care
11
personnel. If an inmate refuses a routine test for
12
HIV, health care personnel shall make a note of the
13
inmate’s refusal in the inmate’s confidential medical
14
records. However, the inmate’s refusal shall not be
15
considered a violation of prison rules or result in dis-
16
ciplinary action. Any reference in this section to the
17
‘‘opt-out provision’’ shall be deemed a reference to
18
the requirement of this paragraph.
19
(10) EXCLUSION OF TESTS PERFORMED UNDER
20
SECTION 4014(b) FROM THE DEFINITION OF ROU-
21
TINE
HIV
TESTING.—HIV testing of an inmate
22
under section 4014(b) of title 18, United States
23
Code, is not routine HIV testing for the purposes of
24
the opt-out provision. Health care personnel shall
25
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666
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document the reason for testing under section
1
4014(b) of title 18, United States Code, in the in-
2
mate’s confidential medical records.
3
(11) TIMELY
NOTIFICATION
OF
TEST
RE-
4
SULTS.—Health care personnel shall provide timely
5
notification to inmates of the results of HIV tests.
6
(g) CHANGES IN EXISTING LAW.—
7
(1) SCREENING IN GENERAL.—Section 4014(a)
8
of title 18, United States Code, is amended—
9
(A) by striking ‘‘for a period of 6 months
10
or more’’;
11
(B) by striking ‘‘, as appropriate,’’; and
12
(C) by striking ‘‘if such individual is deter-
13
mined to be at risk for infection with such virus
14
in accordance with the guidelines issued by the
15
Bureau of Prisons relating to infectious disease
16
management’’ and inserting ‘‘unless the indi-
17
vidual declines. The Attorney General shall also
18
cause such individual to be so tested before re-
19
lease unless the individual declines.’’.
20
(2) INADMISSIBILITY OF HIV TEST RESULTS IN
21
CIVIL
AND
CRIMINAL
PROCEEDINGS.—Section
22
4014(d) of title 18, United States Code, is amended
23
by inserting ‘‘or under the Stop AIDS in Prison
24
Act’’ after ‘‘under this section’’.
25
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(3) SCREENING AS PART OF ROUTINE SCREEN-
1
ING.—Section 4014(e) of title 18, United States
2
Code, is amended by adding at the end the fol-
3
lowing: ‘‘Such rules shall also provide that the initial
4
test under this section be performed as part of the
5
routine health screening conducted at intake.’’.
6
(h) REPORTING REQUIREMENTS.—
7
(1) REPORT ON HEPATITIS, LIVER, AND OTHER
8
DISEASES.—Not later than 1 year after the date of
9
the enactment of this Act, the Bureau shall provide
10
a report to the Congress on Bureau policies and pro-
11
cedures to provide testing, treatment, and prevention
12
education programs for hepatitis, liver failure, and
13
other liver-related diseases transmitted through sex-
14
ual activity, intravenous drug use, or other means.
15
The Bureau shall consult with appropriate officials
16
of the Department of Health and Human Services,
17
the Office of National Drug Control Policy, the Of-
18
fice of National AIDS Policy, and the Centers for
19
Disease Control and Prevention regarding the devel-
20
opment of this report.
21
(2) ANNUAL REPORTS.—
22
(A) GENERALLY.—Not later than 2 years
23
after the date of the enactment of this Act, and
24
then annually thereafter, the Bureau shall re-
25
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668
•HR 5942 IH
port to Congress on the incidence among in-
1
mates of diseases transmitted through sexual
2
activity and intravenous drug use.
3
(B) MATTERS
PERTAINING
TO
VARIOUS
4
DISEASES.—Reports under paragraph (1) shall
5
discuss—
6
(i) the incidence among inmates of
7
HIV/AIDS, hepatitis, and other diseases
8
transmitted through sexual activity and in-
9
travenous drug use; and
10
(ii) updates on Bureau testing, treat-
11
ment, and prevention education programs
12
for these diseases.
13
(C) MATTERS
PERTAINING
TO
HIV/AIDS
14
ONLY.—Reports under paragraph (1) shall also
15
include—
16
(i) the number of inmates who tested
17
positive for HIV upon intake;
18
(ii) the number of inmates who tested
19
positive prior to reentry;
20
(iii) the number of inmates who were
21
not tested prior to reentry because they
22
were released without sufficient notice;
23
(iv) the number of inmates who opted-
24
out of taking the test;
25
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(v) the number of inmates who were
1
tested under section 4014(b) of title 18,
2
United States Code; and
3
(vi) the number of inmates under
4
treatment for HIV/AIDS.
5
(D) CONSULTATION.—The Bureau shall
6
consult with appropriate officials of the Depart-
7
ment of Health and Human Services, the Office
8
of National Drug Control Policy, the Office of
9
National AIDS Policy, and the Centers for Dis-
10
ease Control and Prevention regarding the de-
11
velopment of reports under paragraph (1).
12
SEC. 759. SUPPORT DATA SYSTEM REVIEW AND INDICA-
13
TORS FOR MONITORING HIV CARE.
14
The Secretary of Health and Human Services, in col-
15
laboration with the Assistant Secretary for Health, the Di-
16
rector of the Office of HIV/AIDS and Infectious Disease
17
Policy, the Director of the Centers for Disease Control and
18
Prevention, the Administrator of the Substance Abuse and
19
Mental Health Services Administration, the Director of
20
the Department of Housing and Urban Development, the
21
Director of the Office of AIDS Research, the Adminis-
22
trator of the Health Resources and Services Administra-
23
tion, and the Administrator of the Centers for Medicare
24
& Medicaid Services, shall expand and coordinate efforts
25
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•HR 5942 IH
to align metrics across agencies and modify Federal data
1
systems, to—
2
(1) adopt the Institute of Medicine’s clinical
3
HIV care indicators as the core metrics for moni-
4
toring the quality of HIV care, mental health, sub-
5
stance abuse, and supportive services;
6
(2) better enable assessment of the impact of
7
the National HIV/AIDS Strategy and the Patient
8
Protection and Affordable Care Act on improving
9
HIV/AIDS care and access to supportive services for
10
individuals with HIV;
11
(3) expand the demographic data elements to be
12
captured by Federal data systems relevant to HIV
13
care to permit calculation of the indicators for sub-
14
groups of the population of people with diagnosed
15
HIV infection, including—
16
(A) age;
17
(B) race;
18
(C) ethnicity;
19
(D) sex (assigned at birth);
20
(E) gender identity;
21
(F) sexual orientation;
22
(G) current geographic marker of resi-
23
dence;
24
(H) income or poverty level; and
25
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•HR 5942 IH
(I) primary means of reimbursement for
1
medical services (including Medicaid, Medicare,
2
the Ryan White HIV/AIDS Program, private
3
insurance, health maintenance organizations,
4
and no coverage); and
5
(4) streamline data collection and systematically
6
review all existing reporting requirements for feder-
7
ally funded HIV/AIDS programs to ensure that only
8
essential data are collected.
9
SEC. 760. TRANSFER OF FUNDS FOR IMPLEMENTATION OF
10
NATIONAL HIV/AIDS STRATEGY.
11
Title II of the Public Health Service Act (42 U.S.C.
12
202 et seq.) is amended by inserting after section 241 the
13
following:
14
‘‘SEC. 241A. TRANSFER OF FUNDS FOR IMPLEMENTATION
15
OF NATIONAL HIV/AIDS STRATEGY.
16
‘‘(a) TRANSFER AUTHORIZATION.—Of the discre-
17
tionary appropriations made available to the Department
18
of Health and Human Services for any fiscal year for pro-
19
grams and activities that, as determined by the Secretary
20
of Health and Human Services, pertain to HIV/AIDS, the
21
Secretary, in coordination with the Director of the Office
22
of National HIV/AIDS Policy, may transfer up to 1 per-
23
cent of such appropriations to the Office of the Assistant
24
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Secretary for Health for implementation of the National
1
HIV/AIDS Strategy.
2
‘‘(b) CONGRESSIONAL NOTIFICATION.—Not less than
3
30 days before making any transfer under this section,
4
the Secretary shall give notice of the transfer to the Con-
5
gress.
6
‘‘(c) DEFINITIONS.—In this section:
7
‘‘(1) HIV/AIDS.—The term ‘HIV/AIDS’ has
8
the meaning given to such term in section 2689.
9
‘‘(2)
NATIONAL
HIV/AIDS
STRATEGY.—The
10
term ‘National HIV/AIDS Strategy’ means the Na-
11
tional HIV/AIDS Strategy for the United States
12
issued by the President in July 2010 and includes
13
any subsequent revisions to such Strategy.’’.
14
SEC. 761. REPORT ON THE IMPLEMENTATION OF GOAL 4
15
(IMPROVED COORDINATION) OF THE NA-
16
TIONAL HIV/AIDS STRATEGY.
17
(a) REPORT REQUIRED.—The President, in consulta-
18
tion with the heads of all relevant Federal departments
19
and agencies including the Department of Education, the
20
Department of Health and Human Services, the Depart-
21
ment of Housing and Urban Development, the Depart-
22
ment of Justice, the Department of Labor, the Depart-
23
ment of Veteran Affairs, and the Social Security Adminis-
24
tration, shall transmit to the Congress and make publicly
25
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available a report on the status of implementation of Goal
1
4 of the National HIV/AIDS Strategy.
2
(b) CONTENTS.—The report required by subsection
3
(a) shall include a description, an analysis, and an evalua-
4
tion of—
5
(1) the extent to which the National HIV/AIDS
6
Strategy has improved coordination of efforts, en-
7
hanced capacity, and strengthened infrastructure in
8
order to maximize the effective delivery of HIV/
9
AIDS prevention, care, and treatment services at the
10
community level, including coordination—
11
(A) within and among Federal agencies
12
and departments;
13
(B) between the Federal Government and
14
State and local governments and health depart-
15
ments;
16
(C) between the Federal Government and
17
nonprofit foundations and civil society organiza-
18
tions, including community- and faith-based or-
19
ganizations focused on addressing the issue of
20
HIV/AIDS; and
21
(D) between the Federal Government and
22
private businesses; and
23
(2) efforts by the Federal Government to edu-
24
cate, involve, and establish and strengthen partner-
25
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ships with civil society organizations, including
1
community- and faith-based organizations, in order
2
to implement the National HIV/AIDS Strategy and
3
achieve its goals.
4
(c) DEFINITION.—In this section, the term ‘‘National
5
HIV/AIDS Strategy’’ means the National HIV/AIDS
6
Strategy for the United States issued by the President in
7
July 2010, the revision to such Strategy issued in July
8
2015, and any subsequent revisions to such Strategy.
9
Subtitle F—Diabetes
10
SEC. 771. RESEARCH, TREATMENT, AND EDUCATION.
11
Subpart 3 of part C of title IV of the Public Health
12
Service Act (42 U.S.C. 285c et seq.) is amended by adding
13
at the end the following new section:
14
‘‘SEC. 434B. DIABETES IN MINORITY POPULATIONS.
15
‘‘(a) IN GENERAL.—The Director of NIH shall ex-
16
pand, intensify, and support ongoing research and other
17
activities with respect to prediabetes and diabetes, particu-
18
larly type 2, in minority populations.
19
‘‘(b) RESEARCH.—
20
‘‘(1) DESCRIPTION.—Research under subsection
21
(a) shall include investigation into—
22
‘‘(A) the causes of diabetes, including so-
23
cioeconomic, geographic, clinical, environmental,
24
genetic, and other factors that may contribute
25
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to increased rates of diabetes in minority popu-
1
lations; and
2
‘‘(B) the causes of increased incidence of
3
diabetes complications in minority populations,
4
and possible interventions to decrease such inci-
5
dence.
6
‘‘(2) INCLUSION OF MINORITY PARTICIPANTS.—
7
In conducting and supporting research described in
8
subsection (a), the Director of NIH shall seek to in-
9
clude minority participants as study subjects in clin-
10
ical trials.
11
‘‘(c) REPORT; COMPREHENSIVE PLAN.—
12
‘‘(1) IN
GENERAL.—The Diabetes Mellitus
13
Interagency Coordinating Committee shall—
14
‘‘(A) prepare and submit to the Congress,
15
not later than 6 months after the date of enact-
16
ment of this section, a report on Federal re-
17
search and public health activities with respect
18
to prediabetes and diabetes in minority popu-
19
lations; and
20
‘‘(B) develop and submit to the Congress,
21
not later than 1 year after the date of enact-
22
ment of this section, an effective and com-
23
prehensive Federal plan (including all appro-
24
priate Federal health programs) to address
25
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prediabetes and diabetes in minority popu-
1
lations.
2
‘‘(2) CONTENTS.—The report under paragraph
3
(1)(A) shall at minimum address each of the fol-
4
lowing:
5
‘‘(A) Research on diabetes and prediabetes
6
in minority populations, including such research
7
on—
8
‘‘(i) genetic, behavioral, and environ-
9
mental factors; and
10
‘‘(ii) prevention and complications
11
among individuals within these populations
12
who have already developed diabetes.
13
‘‘(B) Surveillance and data collection on
14
diabetes and prediabetes in minority popu-
15
lations, including with respect to—
16
‘‘(i) efforts to better determine the
17
prevalence of diabetes among Asian-Amer-
18
ican and Pacific Islander subgroups; and
19
‘‘(ii) efforts to coordinate data collec-
20
tion on the American Indian population.
21
‘‘(C) Community-based interventions to ad-
22
dress diabetes and prediabetes targeting minor-
23
ity populations, including—
24
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‘‘(i) the evidence base for such inter-
1
ventions;
2
‘‘(ii) the cultural appropriateness of
3
such interventions; and
4
‘‘(iii) efforts to educate the public on
5
the causes and consequences of diabetes.
6
‘‘(D) Education and training programs for
7
health
professionals
(including
community
8
health workers) on the prevention and manage-
9
ment of diabetes and its related complications
10
that is supported by the Health Resources and
11
Services Administration, including such pro-
12
grams supported by—
13
‘‘(i) the National Health Service
14
Corps; or
15
‘‘(ii) the community health centers
16
program under section 330.
17
‘‘(d) EDUCATION.—The Director of NIH shall—
18
‘‘(1) through the National Institute on Minority
19
Health and Health Disparities and the National Di-
20
abetes Education Program—
21
‘‘(A) make grants to programs funded
22
under section 464z–4 (relating to centers of ex-
23
cellence) for the purpose of establishing a men-
24
toring program for health care professionals to
25
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be more involved in weight counseling, obesity
1
research, and nutrition; and
2
‘‘(B) provide for the participation of mi-
3
nority health professionals in diabetes-focused
4
research programs; and
5
‘‘(2) make grants for programs to establish a
6
pipeline from high school to professional school that
7
will increase minority representation in diabetes-fo-
8
cused health fields by expanding Minority Access to
9
Research Careers (MARC) program internships and
10
mentoring opportunities for recruitment.
11
‘‘(e) DEFINITIONS.—For purposes of this section:
12
‘‘(1) DIABETES
MELLITUS
INTERAGENCY
CO-
13
ORDINATING
COMMITTEE.—The ‘Diabetes Mellitus
14
Interagency Coordinating Committee’ means the Di-
15
abetes Mellitus Interagency Coordinating Committee
16
established under section 429.
17
‘‘(2) MINORITY POPULATION.—The term ‘mi-
18
nority population’ means a racial and ethnic minor-
19
ity group, as defined in section 1707.’’.
20
SEC. 772. RESEARCH, EDUCATION, AND OTHER ACTIVITIES.
21
Part B of title III of the Public Health Service Act
22
(42 U.S.C. 243 et seq.) is amended by inserting after sec-
23
tion 317X of such Act, as added, the following section:
24
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‘‘SEC. 317Y. DIABETES IN MINORITY POPULATIONS.
1
‘‘(a) RESEARCH AND OTHER ACTIVITIES.—
2
‘‘(1) IN
GENERAL.—The Secretary, acting
3
through the Director of the Centers for Disease
4
Control and Prevention, shall conduct and support
5
research and public health activities with respect to
6
diabetes in minority populations.
7
‘‘(2) CERTAIN
ACTIVITIES.—Activities under
8
paragraph (1) regarding diabetes in minority popu-
9
lations shall include the following:
10
‘‘(A) Further enhancing the National
11
Health and Nutrition Examination Survey by
12
oversampling Asian American, Native Hawai-
13
ian, and Pacific Islanders in appropriate geo-
14
graphic areas to better determine the preva-
15
lence of diabetes in such populations as well as
16
to improve the data collection of diabetes pene-
17
tration disaggregated into major ethnic groups
18
within such populations. The Secretary shall en-
19
sure that any such oversampling does not re-
20
duce the oversampling of other minority popu-
21
lations including African-American and Latino
22
populations.
23
‘‘(B) Through the Division of Diabetes
24
Translation—
25
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‘‘(i) providing for prevention research
1
to better understand how to influence
2
health care systems changes to improve
3
quality of care being delivered to such pop-
4
ulations;
5
‘‘(ii) carrying out model demonstra-
6
tion projects to design, implement, and
7
evaluate effective diabetes prevention and
8
control interventions for minority popu-
9
lations, including culturally appropriate
10
community-based interventions;
11
‘‘(iii) developing and implementing a
12
strategic plan to reduce diabetes in minor-
13
ity populations through applied research to
14
reduce disparities and culturally and lin-
15
guistically appropriate community-based
16
interventions;
17
‘‘(iv) supporting, through the national
18
diabetes prevention program under section
19
399V–3, diabetes prevention program sites
20
in underserved regions highly impacted by
21
diabetes; and
22
‘‘(v) implementing, through the na-
23
tional diabetes prevention program under
24
section 399V–3, a demonstration program
25
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developing new metrics measuring health
1
outcomes related to diabetes that can be
2
stratified by specific minority populations.
3
‘‘(b) EDUCATION.—The Secretary, acting through
4
the Director of the Centers for Disease Control and Pre-
5
vention, shall direct the Division of Diabetes Translation
6
to conduct and support both programs to educate the pub-
7
lic on diabetes in minority populations and programs to
8
educate minority populations about the causes and effects
9
of diabetes.
10
‘‘(c) DIABETES; HEALTH PROMOTION, PREVENTION
11
ACTIVITIES, AND ACCESS.—The Secretary, acting through
12
the Director of the Centers for Disease Control and Pre-
13
vention and the National Diabetes Education Program,
14
shall conduct and support programs to educate specific
15
minority populations through culturally appropriate and
16
linguistically appropriate information campaigns about
17
prevention of, and managing, diabetes.
18
‘‘(d) DEFINITION.—For purposes of this section, the
19
term ‘minority population’ means a racial and ethnic mi-
20
nority group, as defined in section 1707.’’.
21
SEC. 773. RESEARCH, EDUCATION, AND OTHER ACTIVITIES.
22
Part P of title III of the Public Health Service Act
23
(42 U.S.C. 280g et seq.), as amended, is further amended
24
by adding at the end the following new section:
25
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‘‘SEC. 399V–9. PROGRAMS TO EDUCATE HEALTH PRO-
1
VIDERS ON THE CAUSES AND EFFECTS OF DI-
2
ABETES IN MINORITY POPULATIONS.
3
‘‘(a) IN GENERAL.—The Secretary, acting through
4
the Director of the Health Resources and Services Admin-
5
istration, shall conduct and support programs described
6
in subsection (b) to educate health professionals on the
7
causes and effects of diabetes in minority populations.
8
‘‘(b) PROGRAMS.—Programs described in this sub-
9
section, with respect to education on diabetes in minority
10
populations, shall include the following:
11
‘‘(1) Giving priority, under the primary care
12
training and enhancement program under section
13
747—
14
‘‘(A) to awarding grants to focus on or ad-
15
dress diabetes; and
16
‘‘(B) to adding minority populations to the
17
list of vulnerable populations that should be
18
served by such grants.
19
‘‘(2) Providing additional funds for the Health
20
Careers Opportunity Program, the Centers for Ex-
21
cellence, and the Minority Faculty Fellowship Pro-
22
gram to partner with the Office of Minority Health
23
under section 1707 and the National Institutes of
24
Health to strengthen programs for career opportuni-
25
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ties focused on diabetes treatment and care within
1
underserved regions highly impacted by diabetes.
2
‘‘(3) Developing a diabetes focus within, and
3
providing additional funds for, the National Health
4
Service Corps Scholarship Program—
5
‘‘(A) to place individuals in areas that are
6
disproportionately affected by diabetes and to
7
provide diabetes treatment and care in such
8
areas; and
9
‘‘(B) to provide such individuals continuing
10
medical education specific to diabetes care.’’.
11
SEC. 774. RESEARCH, EDUCATION, AND OTHER ACTIVITIES.
12
Part P of title III of the Public Health Service Act
13
(42 U.S.C. 280g et seq.), as amended, is further amended
14
by adding at the end the following section:
15
‘‘SEC. 399V–10. RESEARCH, EDUCATION, AND OTHER ACTIVI-
16
TIES REGARDING DIABETES IN AMERICAN IN-
17
DIAN POPULATIONS.
18
‘‘In addition to activities under sections 399V–6 and
19
434B, the Secretary, acting through the Indian Health
20
Service and in collaboration with other appropriate Fed-
21
eral agencies, shall—
22
‘‘(1) conduct and support research and other
23
activities with respect to diabetes; and
24
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‘‘(2) coordinate the collection of data on clini-
1
cally and culturally appropriate diabetes treatment,
2
care, prevention, and services by health care profes-
3
sionals to the American Indian population.’’.
4
SEC. 775. UPDATED REPORT ON HEALTH DISPARITIES.
5
The Secretary of Health and Human Services shall
6
seek to enter into an arrangement with the Institute of
7
Medicine under which the Institute will—
8
(1) not later than 1 year after the date of en-
9
actment of this Act, submit to the Congress an up-
10
dated version of the Institute’s 2002 report entitled
11
‘‘Unequal Treatment: Confronting Racial and Ethnic
12
Disparities in Health Care’’; and
13
(2) in such updated version, address how racial
14
and ethnic health disparities have changed since the
15
publication of the original report.
16
Subtitle G—Lung Disease
17
SEC. 776. EXPANSION OF THE NATIONAL ASTHMA EDU-
18
CATION AND PREVENTION PROGRAM.
19
(a) FINDINGS.—The Congress finds as follows:
20
(1) The prevalence of asthma has increased
21
since 1980 and affects 25 million Americans.
22
(2) Significant disparities in asthma morbidity
23
and mortality exist for both adults and children par-
24
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ticularly for low-income and minority populations,
1
particularly African Americans and Puerto Ricans.
2
(3) African-American children are twice as like-
3
ly to have asthma as White children.
4
(4) In 2010, almost 4.5 million non-Hispanic
5
African Americans reported having asthma. African
6
Americans with asthma are three times as likely to
7
visit the emergency department and twice as likely
8
to get hospitalized as White patients with asthma.
9
(5) Puerto Ricans are 3.4 times as likely to die
10
from asthma compared with all other Hispanic or
11
Latino groups. Overall Hispanic Americans are 30
12
percent more likely to be hospitalized for asthma
13
than non-Hispanic Whites.
14
(6) More than 65 percent of adults with asthma
15
are women.
16
(b) IN GENERAL.—Not later than 2 years after the
17
date of the enactment of this Act, the Secretary of Health
18
and Human Services shall convene a working group com-
19
prised of patient groups, nonprofit organizations, medical
20
societies, and other relevant governmental and nongovern-
21
mental entities, including those that participate in the Na-
22
tional Asthma Education and Prevention Program, to de-
23
velop a report to Congress that—
24
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(1) catalogs, with respect to asthma prevention,
1
management, and surveillance—
2
(A) the activities of the Federal Govern-
3
ment, including identifying all Federal pro-
4
grams that carry out asthma-related activities,
5
as well as assessment of the progress of the
6
Federal Government and States, with respect to
7
achieving the goals of the Healthy People 2020
8
initiative; and
9
(B) the activities of other entities that par-
10
ticipate in the program, including nonprofit or-
11
ganizations, patient advocacy groups, and med-
12
ical societies; and
13
(2) makes recommendations for the future di-
14
rection of asthma activities, in consultation with re-
15
searchers from the National Institutes of Health and
16
other member bodies of the National Asthma Edu-
17
cation and Prevention Program who are qualified to
18
review and analyze data and evaluate interventions,
19
including—
20
(A) a description of how the Federal Gov-
21
ernment may better coordinate and improve its
22
response to asthma including identifying any
23
barriers that may exist;
24
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(B) a description of how the Federal Gov-
1
ernment may continue, expand, and improve its
2
private-public partnerships with respect to asth-
3
ma including identifying any barriers that may
4
exist;
5
(C) identification of steps that may be
6
taken to reduce the—
7
(i) morbidity, mortality, and overall
8
prevalence of asthma;
9
(ii) financial burden of asthma on so-
10
ciety;
11
(iii) burden of asthma on dispropor-
12
tionately affected areas, particularly those
13
in medically underserved populations (as
14
defined in section 330(b)(3) of the Public
15
Health
Service
Act
(42
U.S.C.
16
254b(b)(3))); and
17
(iv) burden of asthma as a chronic
18
disease;
19
(D) identification of programs and policies
20
that have achieved the steps described in sub-
21
paragraph (C), and steps that may be taken to
22
expand such programs and policies to benefit
23
larger populations; and
24
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(E) recommendations for future research
1
and interventions.
2
(c) REPORT TO CONGRESS.—At the end of the 5-year
3
period following the submission of the report under this
4
section, the National Asthma Education and Prevention
5
Program shall evaluate the analyses and recommendations
6
under such report and determine whether a new report
7
to the Congress is necessary, and make appropriate rec-
8
ommendations to the Congress.
9
SEC. 777. ASTHMA-RELATED ACTIVITIES OF THE CENTERS
10
FOR DISEASE CONTROL AND PREVENTION.
11
Section 317I of the Public Health Service Act (42
12
U.S.C. 247b–10) is amended to read as follows:
13
‘‘SEC. 317I. ASTHMA-RELATED ACTIVITIES OF THE CENTERS
14
FOR DISEASE CONTROL AND PREVENTION.
15
‘‘(a) PROGRAM FOR PROVIDING INFORMATION AND
16
EDUCATION
TO
THE PUBLIC.—The Secretary, acting
17
through the Director of the Centers for Disease Control
18
and Prevention, shall collaborate with State and local
19
health departments to conduct activities, including the
20
provision of information and education to the public re-
21
garding asthma including—
22
‘‘(1) deterring the harmful consequences of un-
23
controlled asthma; and
24
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‘‘(2) disseminating health education and infor-
1
mation regarding prevention of asthma episodes and
2
strategies for managing asthma.
3
‘‘(b) DEVELOPMENT OF STATE ASTHMA PLANS.—
4
The Secretary, acting through the Director of the Centers
5
for Disease Control and Prevention, shall collaborate with
6
State and local health departments to develop State plans
7
incorporating public health responses to reduce the burden
8
of asthma, particularly regarding disproportionately af-
9
fected populations.
10
‘‘(c) COMPILATION OF DATA.—The Secretary, acting
11
through the Director of the Centers for Disease Control
12
and Prevention, shall, in cooperation with State and local
13
public health officials—
14
‘‘(1) conduct asthma surveillance activities to
15
collect data on the prevalence and severity of asth-
16
ma, the effectiveness of public health asthma inter-
17
ventions, and the quality of asthma management, in-
18
cluding—
19
‘‘(A) collection of household data on the
20
local burden of asthma;
21
‘‘(B) surveillance of health care facilities;
22
and
23
‘‘(C) collection of data not containing indi-
24
vidually identifiable information from electronic
25
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health records or other electronic communica-
1
tions;
2
‘‘(2) compile and annually publish data regard-
3
ing the prevalence and incidence of childhood asth-
4
ma, the child mortality rate, and the number of hos-
5
pital admissions and emergency department visits by
6
children associated with asthma nationally and in
7
each State and at the county level by age, sex, race,
8
and ethnicity, as well as lifetime and current preva-
9
lence; and
10
‘‘(3) compile and annually publish data regard-
11
ing the prevalence and incidence of adult asthma,
12
the adult mortality rate, and the number of hospital
13
admissions and emergency department visits by
14
adults associated with asthma nationally and in each
15
State and at the county level by age, sex, race, eth-
16
nicity, industry, and occupation, as well as lifetime
17
and current prevalence.
18
‘‘(d) COORDINATION OF DATA COLLECTION.—The
19
Director of the Centers for Disease Control and Preven-
20
tion, in conjunction with State and local health depart-
21
ments, shall coordinate data collection activities under
22
subsection (c)(2) so as to maximize comparability of re-
23
sults.
24
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‘‘(e) COLLABORATION.—The Centers for Disease
1
Control and Prevention are encouraged to collaborate with
2
national, State, and local nonprofit organizations to pro-
3
vide information and education about asthma, and to
4
strengthen such collaborations when possible.
5
‘‘(f) ADDITIONAL FUNDING.—In addition to any
6
other authorization of appropriations that is available to
7
the Centers for Disease Control and Prevention for the
8
purpose of carrying out this section, there are authorized
9
to be appropriated to such Centers such sums as may be
10
necessary for each of fiscal years 2019 through 2023 for
11
the purpose of carrying out this section.’’.
12
SEC. 778. INFLUENZA AND PNEUMONIA VACCINATION CAM-
13
PAIGN.
14
(a) IN GENERAL.—The Secretary of Health and
15
Human Services shall—
16
(1) enhance the annual campaign by the De-
17
partment of Health and Human Services to increase
18
the number of people vaccinated each year for influ-
19
enza and pneumonia; and
20
(2) include in such campaign the use of written
21
educational materials, public service announcements,
22
physician education, and any other means which the
23
Secretary deems effective.
24
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(b) MATERIALS AND ANNOUNCEMENTS.—In carrying
1
out the annual campaign described in subsection (a), the
2
Secretary of Health and Human Services shall ensure
3
that—
4
(1) educational materials and public service an-
5
nouncements are readily and widely available in
6
communities experiencing disparities in the incidence
7
and mortality rates of influenza and pneumonia; and
8
(2) the campaign uses targeted, culturally ap-
9
propriate messages and messengers to reach under-
10
served communities.
11
(c) AUTHORIZATION
OF APPROPRIATIONS.—There
12
are authorized to be appropriated to carry out this section
13
such sums as may be necessary for each of fiscal years
14
2019 through 2023.
15
SEC. 779. CHRONIC OBSTRUCTIVE PULMONARY DISEASE
16
ACTION PLAN.
17
(a) FINDINGS.—The Congress finds as follows:
18
(1) Chronic obstructive pulmonary disease
19
(‘‘COPD’’) refers to chronic bronchitis and emphy-
20
sema, incurable diseases that make it difficult to ex-
21
hale all the air from one’s lungs, and that can cause
22
persistent coughing, shortness of breath, and spu-
23
tum.
24
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(2) COPD exacerbations—episodes of acute dif-
1
ficulty breathing and moderate to severe fatigue—
2
are dangerous, and their treatment often requires
3
hospitalization.
4
(3) While smoking is the primary risk factor for
5
COPD, other risk factors include air pollution, occu-
6
pational exposures, heredity, a history of childhood
7
respiratory infections, and socioeconomic status.
8
(4) Over 13.5 million United States adults are
9
estimated to have COPD.
10
(5) COPD is the third-leading cause of death in
11
America, claiming over 134,000 lives in 2010.
12
(6) Since 2000, deaths for women with COPD
13
have exceeded deaths in men.
14
(7) Although African Americans have a lower
15
prevalence of COPD in the United States, research-
16
ers have shown that African Americans may be
17
underdiagnosed. Furthermore, research has shown
18
that African Americans develop COPD with less cu-
19
mulative smoke exposure and at a younger age.
20
(b) IN GENERAL.—The Director of the Centers for
21
Disease Control and Prevention shall conduct, support,
22
and expand public health strategies, prevention, diagnosis,
23
surveillance, and public and professional awareness activi-
24
ties regarding chronic obstructive pulmonary disease.
25
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(c) NATIONAL ACTION PLAN.—
1
(1) DEVELOPMENT.—Not later than 2 years
2
after the date of the enactment of this Act, the Di-
3
rector of the National Heart, Lung, and Blood Insti-
4
tute, in consultation with the Director of the Centers
5
for Disease Control and Prevention, shall develop a
6
national action plan to address chronic obstructive
7
pulmonary disease in the United States with partici-
8
pation from patients, caregivers, health profes-
9
sionals, patient advocacy organizations, researchers,
10
providers, public health professionals, and other
11
stakeholders.
12
(2) CONTENTS.—At a minimum, such plan
13
shall include recommendations for—
14
(A) public health interventions for the pur-
15
pose of implementation of the national plan;
16
(B) biomedical, health services, and public
17
health research on chronic obstructive pul-
18
monary disease; and
19
(C) inclusion of chronic obstructive pul-
20
monary disease in the health data collections of
21
all Federal agencies.
22
(3) CONSIDERATION.—In developing such plan,
23
the Director of the National Heart, Lung, and Blood
24
Institute shall consider the recommendations and
25
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findings of the Institute of Medicine in the report
1
entitled ‘‘A Nationwide Framework for Surveillance
2
of Cardiovascular and Chronic Lung Diseases’’ (July
3
22, 2011).
4
(d) CHRONIC DISEASE PREVENTION PROGRAMS.—
5
The Director of the National Heart, Lung, and Blood In-
6
stitute shall carry out the following:
7
(1) Conduct public education and awareness ac-
8
tivities with patient and professional organizations
9
to stimulate earlier diagnosis and improve patient
10
outcomes from treatment of chronic obstructive pul-
11
monary disease. To the extent known and relevant,
12
such public education and awareness activities shall
13
reflect differences in chronic obstructive pulmonary
14
disease by cause (tobacco, environmental, occupa-
15
tional, biological, and genetic) and include a focus
16
on outreach to undiagnosed and, as appropriate, mi-
17
nority populations.
18
(2) Supplement and expand upon the activities
19
of the National Heart, Lung, and Blood Institute by
20
making grants to nonprofit organizations, State and
21
local jurisdictions, and Indian Tribes for the purpose
22
of reducing the burden of chronic obstructive pul-
23
monary disease, especially in disproportionately im-
24
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pacted communities, through public health interven-
1
tions and related activities.
2
(3) Coordinate with the Centers for Disease
3
Control and Prevention, the Indian Health Service,
4
the Health Resources and Services Administration,
5
and the Department of Veterans Affairs to develop
6
pilot programs to demonstrate best practices for the
7
diagnosis and management of chronic obstructive
8
pulmonary disease.
9
(4) Develop improved techniques and identify
10
best practices, in coordination with the Secretary of
11
Veterans Affairs, for assisting chronic obstructive
12
pulmonary disease patients to successfully stop
13
smoking, including identification of subpopulations
14
with different needs. Initiatives under this para-
15
graph may include research to determine whether
16
successful smoking cessation strategies are different
17
for chronic obstructive pulmonary disease patients
18
compared to such strategies for patients with other
19
chronic diseases.
20
(e) ENVIRONMENTAL AND OCCUPATIONAL HEALTH
21
PROGRAMS.—The Director of the Centers for Disease
22
Control and Prevention shall—
23
(1) support research into the environmental and
24
occupational causes and biological mechanisms that
25
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contribute to chronic obstructive pulmonary disease;
1
and
2
(2) develop and disseminate public health inter-
3
ventions that will lessen the impact of environmental
4
and occupational causes of chronic obstructive pul-
5
monary disease.
6
(f) DATA COLLECTION.—Not later than 180 days
7
after the enactment of this Act, the Director of the Na-
8
tional Heart, Lung, and Blood Institute and the Director
9
of the Centers for Disease Control and Prevention, acting
10
jointly, shall assess the depth and quality of information
11
on chronic obstructive pulmonary disease that is collected
12
in surveys and population studies conducted by the Cen-
13
ters for Disease Control and Prevention, including wheth-
14
er there are additional opportunities for information to be
15
collected in the National Health and Nutrition Examina-
16
tion Survey, the National Health Interview Survey, and
17
the Behavioral Risk Factors Surveillance System surveys.
18
The Director of the National Heart, Lung, and Blood In-
19
stitute shall include the results of such assessment in the
20
national action plan under subsection (b).
21
(g) AUTHORIZATION
OF APPROPRIATIONS.—There
22
are authorized to be appropriated to carry out this section
23
such sums as may be necessary for each of fiscal years
24
2019 through 2023.
25
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Subtitle H—Tuberculosis
1
SEC. 781. ELIMINATION OF ALL FORMS OF TUBERCULOSIS.
2
(a) SHORT TITLE.—This subtitle be cited as the
3
‘‘End Tuberculosis Act’’.
4
(b) FINDINGS.—The Congress makes the following
5
findings:
6
(1) In the United States, 9,272 people were di-
7
agnosed with tuberculosis (referred to in this section
8
as ‘‘TB’’) in 2016.
9
(2) Disparities in TB exist and significantly im-
10
pact minority communities in the United States. The
11
Centers for Disease Control and Prevention (re-
12
ferred to in this section as ‘‘CDC’’) finds that 87
13
percent of people diagnosed with TB in 2016 self-
14
identified as racial and ethnic minorities.
15
(3) African Americans comprised 21 percent of
16
people diagnosed with TB during 2016. The popu-
17
lation-adjusted rate of TB among African Americans
18
is 1.7 times higher than the national total, and 8.2
19
times higher than among Whites.
20
(4) Asian Americans, Native Hawaiians, and
21
other Pacific Islanders comprised 35 percent of peo-
22
ple diagnosed with TB during 2016. The population-
23
adjusted rate of TB among Asian Americans is 6.2
24
times higher than the national total, and 30 times
25
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higher than among Whites. The population-adjusted
1
rate of TB among Native Hawaiians and other Pa-
2
cific Islanders is 4.8 times higher than the national
3
total, and 23.2 times higher than among Whites.
4
(5) Hispanics and Latinos comprised 28 per-
5
cent of people diagnosed with TB during 2016. The
6
population-adjusted rate of TB among Hispanics
7
and Latinos is 1.6 times higher than the national
8
total, and 7.5 times higher than among Whites.
9
(6) TB is both preventable and curable, but the
10
current rate of decline of TB in the United States
11
remains too slow to achieve TB elimination in this
12
century.
13
(7) TB is transmitted through the air when a
14
person who has TB disease in their lungs coughs or
15
sneezes. People who are in close proximity to the
16
person with TB can breathe in the TB bacteria, and
17
the bacteria will initially settle in their lungs. With-
18
out proper and timely diagnosis and access to treat-
19
ment, the TB bacteria may grow and spread to
20
other parts of their body.
21
(8) As many as 13,000,000 people in the
22
United States may have Latent TB Infection (re-
23
ferred to in this section as ‘‘LTBI’’). People with
24
LTBI have TB bacteria in their bodies, but their
25
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immune system is containing the bacteria, and they
1
are not sick, nor do they have any current risk of
2
spreading TB to others. LTBI can activate into in-
3
fectious, life-threatening TB if not treated. Modeling
4
has shown that eliminating TB is not possible with-
5
out addressing LTBI.
6
(9) Comorbidities associated with TB include
7
cancer, diabetes mellitus, and HIV. People with
8
these medical conditions and compromised immune
9
systems are more likely to develop active TB disease
10
and to have worse outcomes from TB.
11
(10) Forms of active TB that do not show drug
12
resistance are classified as Drug-susceptible TB (re-
13
ferred to in this section as ‘‘DS–TB’’). Drug-resist-
14
ant TB (referred to in this section as ‘‘DR–TB’’) is
15
a rising threat to the public health of the United
16
States. DR–TB that exhibits resistance to two or
17
more first-line drugs is referred to as multi-drug re-
18
sistant TB (referred to in this section as ‘‘MDR–
19
TB’’). MDR–TB that also is resistant to at least
20
one injectable second-line medication and at least
21
one fluoroquinolone is classified as extensively drug-
22
resistant TB (referred to in this section as ‘‘XDR–
23
TB’’).
24
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(11) Approximately 78 people in the United
1
States were diagnosed with MDR–TB in 2016. One
2
person was diagnosed with XDR–TB in the same
3
year.
4
(12) In the United States, direct treatment
5
costs average $17,000 to treat a patient with DS–
6
TB, $150,000 to treat a patient with MDR–TB, and
7
$482,000 to treat a patient with XDR–TB. When
8
factoring in productivity losses during treatment,
9
DS–TB averages $46,000, MDR–TB averages
10
$294,000 and XDR–TB averages $694,000. Treat-
11
ment is often difficult, with daily complex multi-pill
12
regimens and injections, with side-effects ranging
13
from hearing and vision loss to mental health issues.
14
(13) Recognizing the public health, economic
15
and societal costs to the threat of MDR–TB, the
16
National Action Plan to Combat MDR–TB (NAP)
17
was developed by the White House to provide the
18
United States with a comprehensive three-pronged
19
strategy to address MDR–TB by strengthening do-
20
mestic capacity to combat MDR–TB; improve inter-
21
national capacity and cooperation to combat MDR–
22
TB; accelerate basic and applied research and devel-
23
opment for new therapies, diagnostics and preven-
24
tion strategies to combat MDR–TB.
25
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(14) Additional Federal support is necessary to
1
expand TB control efforts in case finding and treat-
2
ment to address LTBI in a national prevention ini-
3
tiative. Key policy and research breakthroughs in-
4
crease the success of a TB prevention initiative: the
5
U.S. Preventative Services Task Force recommenda-
6
tion’s ‘‘B’’ rating, screening for LTBI among high-
7
risk adults as a covered service increases the likeli-
8
hood that impacted racial and ethnic minority
9
groups can get tested for TB; a new, shorter course
10
treatment regimen (3HP) reduces the length of
11
treatment for LTBI from every day for 6 to 9
12
months to one dose per week for 12 weeks, increas-
13
ing likelihood of treatment completion; and the use
14
of blood-based diagnostic tests, Interferon-gamma
15
release assays or IGRAs, increases ability to detect
16
LTBI among patients in affected communities.
17
SEC. 782. ADDITIONAL FUNDING FOR STATES IN COM-
18
BATING AND ELIMINATING TUBERCULOSIS.
19
Section 317E(f) of the Public Health Act (42 U.S.C.
20
247b6(f)) is amended by adding at the end the following:
21
‘‘(3) ADDITIONAL
FUNDING
FOR
STATES
IN
22
COMBATING AND ELIMINATING TUBERCULOSIS.—In
23
addition to amounts otherwise authorized to be ap-
24
propriated to carry out this section, there are au-
25
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thorized to be appropriated such sums as may be
1
necessary to carry out sections 247–b(1)(2)(3) for
2
each of fiscal years 2019 through 2021.’’.
3
SEC. 783. STRENGTHENING CLINICAL RESEARCH FUNDING
4
FOR TUBERCULOSIS.
5
(a) IN GENERAL.—The Secretary of Health and
6
Human Services shall expand and intensify support for
7
current and prospective research activities of the National
8
Institutes of Health, the Biomedical Advanced Research
9
and Development Authority, and the Centers for Disease
10
Control and Prevention Division of Tuberculosis Elimi-
11
nation to develop new therapeutics, diagnostics, vaccines,
12
and other prevention modalities in addressing all forms
13
of tuberculosis (in this section referred to as ‘‘TB’’).
14
(b) INCLUDED RESEARCH ACTIVITIES.—Research
15
activities under subsection (a) shall include—
16
(1) research to develop novel, safe drugs and
17
drug regimens for the treatment of TB, including in
18
adolescent and pediatric populations and in pregnant
19
and lactating women;
20
(2) research to develop rapid diagnostic tests
21
for all forms of TB, including diagnostics that can
22
be used for pediatric populations and people living
23
with HIV, diagnostics that can detect extra pul-
24
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monary TB and drug resistance, and diagnostics
1
that can be used at the point of care;
2
(3) research to advance basic knowledge of the
3
pathogenesis of TB and its major comorbidities, in-
4
cluding HIV and diabetes mellitus;
5
(4) research to improve knowledge and under-
6
standings of the role of latency in TB and the fac-
7
tors that increase the risk of latent TB infection
8
progressing to active, symptomatic TB disease;
9
(5) awarding grants and contracts to specifi-
10
cally develop new and needed vaccines to address
11
TB;
12
(6) awarding grants and contracts to support
13
the training and development of clinical researchers
14
whose research improves the landscape of tools to
15
combat TB; and
16
(7) awarding grants and contracts to support
17
capacity-building and develop clinical trial site infra-
18
structure in the United States and in TB endemic
19
countries to support the aforementioned research ac-
20
tivities.
21
Subtitle I—Osteoarthritis and
22
Musculoskeletal Diseases
23
SEC. 785. FINDINGS.
24
The Congress finds as follows:
25
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(1) Eighty percent of African-American women
1
and nearly 74 percent of Hispanic men are either
2
overweight or obese, speeding the onset and progres-
3
sion of arthritis.
4
(2) Arthritis affects 46 million Americans, and
5
that number will rise to 67 million by the year 2030.
6
(3) Twenty-seven million Americans suffer from
7
osteoarthritis, the most common form of arthritis,
8
making it the leading cause of disability in the
9
United States. Osteoarthritis is sometimes referred
10
to as degenerative joint disease.
11
(4) Obesity accelerates the onset of arthritis: 70
12
percent of obese adults with mild osteoarthritis of
13
the knee at age 60 will develop advanced end-stage
14
disease by age 80. In contrast, just 43 percent of
15
nonobese adults will have end-stage disease over the
16
same time period.
17
(5) Arthritis affects one in five Americans, and
18
is the single greatest cause of chronic pain and dis-
19
ability in the United States.
20
(6) Women, African Americans, and Hispanics
21
have more severe arthritis and functional limitations.
22
These same individuals are more likely to be obese,
23
diabetic, and have higher incidence of heart dis-
24
ease—medical conditions that can be improved with
25
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physical activity. Instead of moving; however, these
1
groups have an inactivity rate of 40 to 50 percent,
2
which continues to increase.
3
(7) Arthritis costs $128 billion a year, including
4
$81 billion in direct costs (medical) and $47 billion
5
in indirect costs (lost earnings). Each year, $309 bil-
6
lion in direct and indirect costs is lost due to dis-
7
parities in osteoarthritis and musculoskeletal dis-
8
eases.
9
(8) Obesity and other chronic health conditions
10
exacerbate the debilitating impact of arthritis, lead-
11
ing to inactivity, loss of independence, and a per-
12
petual cycle of comorbid chronic conditions.
13
(9) Sixty-one percent of arthritis sufferers are
14
women, and women represent 64 percent of an esti-
15
mated 43 million annual visits to physicians’ offices
16
and outpatient clinics where arthritis was the pri-
17
mary diagnosis. Women also represented 60 percent
18
of approximately 1 million hospitalizations that oc-
19
curred in 2003 for which arthritis was the primary
20
diagnosis.
21
(10) Women ages 65 and older have up to 21⁄2
22
times more disabilities than men of the same age.
23
Higher rates of obesity and arthritis among this
24
group explained up to 48 percent of the gender gap
25
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in disability, above all other common chronic health
1
conditions.
2
(11) The primary indication for total knee
3
arthroplasty (TKA), also known as knee replace-
4
ment, is relief of significant, disabling pain caused
5
by severe arthritis.
6
(12) Knee replacement is surgery for people
7
with severe knee damage. Knee replacement can re-
8
lieve pain and allow you to be more active. When
9
you have a total knee replacement, the surgeon re-
10
moves damaged cartilage and bone from the surface
11
of your knee joint and replaces them with a man-
12
made surface of metal and plastic. In a partial knee
13
replacement, the surgeon only replaces one part of
14
your knee joint.
15
(13) Total hip replacement, also called total hip
16
arthroplasty (THA), is used if your hip pain inter-
17
feres with daily activities and more conservative
18
treatments have not helped. Arthritis damage is the
19
most common reason to need hip replacement.
20
(14) The odds of a family practice physician
21
recommending TKA to a male patient with moderate
22
arthritis are twice that of a female patient, while the
23
odds of an orthopaedic surgeon recommending TKA
24
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to a male patient with moderate arthritis are 22
1
times that of a female patient.
2
(15) African Americans with doctor-diagnosed
3
arthritis have a higher prevalence of severe pain at-
4
tributable to arthritis, compared with Whites (34.0
5
percent versus 22.6 percent). African Americans,
6
compared to Whites, report a higher proportion of
7
work limitations (39.5 percent versus 28.0 percent)
8
and a higher prevalence of arthritis-attributable
9
work limitation (6.6 percent versus 4.6 percent).
10
(16) Hispanics are 50 percent more likely than
11
non-Hispanic Whites to report needing assistance
12
with at least one instrumental activity of daily living
13
and to have difficulty walking.
14
(17) African Americans and Hispanics were 1.3
15
times more likely to have activity limitation, 1.6
16
times more likely to have work limitations, and 1.9
17
times more likely to have severe joint pain than
18
Whites.
19
(18) In 2003, the Institute of Medicine reported
20
that the rates of TKA and THA among African-
21
American and Hispanic patients are significantly
22
lower than for Whites—even for those with equitable
23
health care coverage such as through Medicare or
24
the Department of Veterans Affairs.
25
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(19) According to the Centers for Disease Con-
1
trol and Prevention, in 2000, African-American
2
Medicare enrollees were 37 percent less likely than
3
White Medicare enrollees to undergo total knee re-
4
placements. In 2006, the disparity increased to 39
5
percent.
6
(20) Even after adjusting for insurance and
7
health access, Hispanics and African Americans are
8
almost 50 percent less likely to undergo total knee
9
replacement than Whites.
10
SEC.
786.
OSTEOARTHRITIS
AND
OTHER
MUSCULO-
11
SKELETAL HEALTH-RELATED ACTIVITIES OF
12
THE CENTERS FOR DISEASE CONTROL AND
13
PREVENTION.
14
(a) EDUCATION AND AWARENESS ACTIVITIES.—The
15
Secretary of Health and Human Services, acting through
16
the Director of the Centers for Disease Control and Pre-
17
vention, shall direct the National Center for Chronic Dis-
18
ease Prevention and Health Promotion to conduct and ex-
19
pand the Health Community Program and Arthritis Pro-
20
gram to educate the public on—
21
(1) the causes of, preventive health actions for,
22
and effects of arthritis and other musculoskeletal
23
conditions in minority patient populations; and
24
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(2) the effects of such conditions on other
1
comorbidities including obesity, hypertension, and
2
cardiovascular disease.
3
(b) PROGRAMS
ON
ARTHRITIS
AND
MUSCULO-
4
SKELETAL CONDITIONS.—Education and awareness pro-
5
grams of the Centers for Disease Control and Prevention
6
on arthritis and other musculoskeletal conditions in minor-
7
ity communities shall—
8
(1) be culturally and linguistically appropriate
9
to minority patients, targeting musculoskeletal
10
health promotion and prevention programs of each
11
major ethnic group, including—
12
(A) Native Americans and Alaska Natives;
13
(B) Asian Americans;
14
(C) African Americans/Blacks;
15
(D) Hispanic/Latino Americans; and
16
(E) Native Hawaiians and Pacific Island-
17
ers; and
18
(2) include public awareness campaigns directed
19
toward these patient populations that emphasize the
20
importance of musculoskeletal health, physical activ-
21
ity, diet and healthy lifestyle, and weight reduction
22
for overweight and obese patients.
23
(c) AUTHORIZATION OF APPROPRIATIONS.—To carry
24
out this section, there are authorized to be appropriated
25
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such sums as are necessary for fiscal year 2019 and each
1
subsequent fiscal year.
2
SEC. 787. GRANTS FOR COMPREHENSIVE OSTEOARTHRITIS
3
AND MUSCULOSKELETAL DISEASE HEALTH
4
EDUCATION WITHIN HEALTH PROFESSIONS
5
SCHOOLS.
6
(a) PROGRAM
AUTHORIZED.—The Secretary of
7
Health and Human Services (in this section referred to
8
as the ‘‘Secretary’’), in coordination with the Secretary of
9
Education, shall award grants, on a competitive basis, to
10
academic health science centers, health professions
11
schools, and other institutions of higher education to en-
12
able such institutions to provide people with comprehen-
13
sive education on arthritis and musculoskeletal health,
14
particularly—
15
(1) obesity-related musculoskeletal diseases;
16
(2) arthritis and osteoarthritis;
17
(3) arthritis and musculoskeletal health dispari-
18
ties; and
19
(4) the relationship between arthritis and mus-
20
culoskeletal diseases and metabolic activity, psycho-
21
logical health, and comorbidities such as diabetes,
22
cardiovascular disease, and hypertension.
23
(b) DURATION.—Grants awarded under this section
24
shall be for a period of 5 years.
25
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(c) APPLICATIONS.—An academic health science cen-
1
ter, health professions school, or other institution of high-
2
er education seeking a grant under this section shall sub-
3
mit an application to the Secretary at such time, in such
4
manner, and containing such information as the Secretary
5
may require.
6
(d) PRIORITY.—In awarding grants under this sec-
7
tion, the Secretary shall give priority to an institution of
8
higher education that—
9
(1) has an enrollment of needy students, as de-
10
fined in section 318(b) of the Higher Education Act
11
of 1965 (20 U.S.C. 1059e(b));
12
(2) is a Hispanic-serving institution, as defined
13
in section 502(a) of such Act (20 U.S.C. 1101a(a));
14
(3) is a Tribal College or University, as defined
15
in section 316(b) of such Act (20 U.S.C. 1059c(b));
16
(4) is an Alaska Native-serving institution, as
17
defined in section 317(b) of such Act (20 U.S.C.
18
1059d(b));
19
(5) is a Native Hawaiian-serving institution, as
20
defined in section 317(b) of such Act (20 U.S.C.
21
1059d(b));
22
(6) is a Predominately Black Institution, as de-
23
fined in section 318(b) of such Act (20 U.S.C.
24
1059e(b));
25
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(7) is a Native American-serving, non-Tribal in-
1
stitution, as defined in section 319(b) of such Act
2
(20 U.S.C. 1059f(b));
3
(8) is an Asian-American and Native American
4
Pacific Islander-serving institution, as defined in
5
section 320(b) of such Act (20 U.S.C. 1059g(b)); or
6
(9) is a minority institution, as defined in sec-
7
tion 365 of such Act (20 U.S.C. 1067k), with an en-
8
rollment of needy students, as defined in section 312
9
of such Act (20 U.S.C. 1058).
10
(e) USES OF FUNDS.—An institution of higher edu-
11
cation receiving a grant under this section may use grant
12
funds to integrate issues relating to comprehensive arthri-
13
tis and musculoskeletal health into the academic or sup-
14
port sectors of the institution in order to reach a large
15
number of students, by carrying out 1 or more of the fol-
16
lowing activities:
17
(1) Developing educational content for issues
18
relating to comprehensive arthritis and musculo-
19
skeletal health education that will be incorporated
20
into first-year orientation or core courses.
21
(2) Creating innovative technology-based ap-
22
proaches to deliver arthritis and musculoskeletal
23
health education to students, faculty, and staff.
24
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(3) Developing and employing peer-outreach
1
and education programs to generate discussion, edu-
2
cate, and raise awareness among students about
3
issues relating to arthritis and musculoskeletal
4
health disorders, and their relationship to diabetes,
5
hypertension, cardiovascular disease, psychological
6
health, and other comorbid conditions.
7
(f) REPORT TO CONGRESS.—
8
(1) IN GENERAL.—Not later than 1 year after
9
the date of the enactment of this Act, and annually
10
thereafter for a period of 5 years, the Secretary shall
11
prepare and submit to the appropriate committees of
12
Congress a report on the activities to provide health
13
professions students with comprehensive arthritis
14
and musculoskeletal health education funded under
15
this section.
16
(2) REPORT ELEMENTS.—The report described
17
in paragraph (1) shall include information about—
18
(A) the number of entities that are receiv-
19
ing grant funds;
20
(B) the specific activities supported by
21
grant funds;
22
(C) the number of students served by
23
grant programs; and
24
(D) the status of program evaluations.
25
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Subtitle J—Sleep and Circadian
1
Rhythm Disorders
2
SEC. 791. SHORT TITLE; FINDINGS.
3
(a) SHORT TITLE.—This subtitle may be cited as the
4
‘‘Sleep and Circadian Rhythm Disorders Health Dispari-
5
ties Act’’.
6
(b) FINDINGS.—The Congress finds the following:
7
(1) Decrements in sleep health such as sleep
8
apnea, insufficient sleep time, and insomnia, affect
9
50–70 million United States adults. Twelve to eight-
10
een million United States adults have sleep apnea, a
11
chronic disorder characterized by one or more
12
pauses in breathing which can last from a few sec-
13
onds to minutes. They may occur 30 times or more
14
an hour, disrupting sleep and resulting in excessive
15
daytime sleepiness and loss in productivity.
16
(2) Seventy percent of high school students are
17
not getting enough sleep on school nights, while 33
18
percent of Americans get fewer than 7 hours of sleep
19
per night, and roughly 6,000 fatal motor vehicle
20
crashes are caused by drowsy drivers.
21
(3) Insufficient sleep and insomnia are more
22
prevalent in women. Women who are pregnant and
23
have sleep apnea are at an increased risk of cardio-
24
vascular complications during pregnancy. The im-
25
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pact of disparities in sleep health is associated with
1
a growing number of health problems, including the
2
following:
3
(A) Hypertension.
4
(B) Cancer.
5
(C) Stroke.
6
(D) Cardiac arrhythmia.
7
(E) Chronic heart failure and heart dis-
8
ease.
9
(F) Diabetes.
10
(G) Cognitive functioning and behavior.
11
(H) Depression and bipolar disorder.
12
(I) Substance abuse.
13
(4) A ‘‘sleep disparity’’ exists in that poor sleep
14
quality is strongly associated with poverty and race.
15
Factors such as employment, education, and health
16
status, amongst others, significantly mediated this
17
effect only in poor subjects, suggesting a differential
18
vulnerability to these factors in poor relative to
19
nonpoor individuals in the context of sleep quality.
20
(5) African Americans sleep worse than Cauca-
21
sian Americans. African Americans take longer to
22
fall asleep, report poorer sleep quality, have more
23
light and less deep sleep, and nap more often and
24
longer.
25
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(6) African Americans and individuals in lower
1
socioeconomic status groups may be at an increased
2
risk for sleep disturbances and associated health
3
consequences.
4
(7) Among young African Americans, the likeli-
5
hood of having sleep disordered breathing and exhib-
6
iting risk factors for poor sleep is twice that in
7
young Caucasians. Frequent snoring is more com-
8
mon among African American and Hispanic women
9
and Hispanic men compared to non-Hispanic Cauca-
10
sians, independent of other factors including obesity.
11
(8) African Americans with sleep-disordered
12
breathing develop symptoms at a younger age than
13
Caucasians but appear less likely to be diagnosed
14
and treated in a timely manner. This delay may at
15
least in part be due to reduced access to care.
16
(9) Sleep loss contributes to increased risk for
17
chronic conditions such as obesity, diabetes, and hy-
18
pertension, all of which have increased prevalence in
19
underserved, underrepresented minorities. Racial
20
and ethnic disparities related to obesity may also
21
contribute to disparities in health outcomes related
22
to sleep-disordered breathing.
23
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(10) Non-Caucasian adults report an insomnia
1
rate of 12.9 percent compared to only 6.6 percent
2
for Caucasians.
3
(11) African-American women have a higher in-
4
cidence of insomnia than African-American men,
5
perhaps related in part to higher risk for chronic
6
persisting symptoms.
7
SEC. 792. SLEEP AND CIRCADIAN RHYTHM DISORDERS RE-
8
SEARCH ACTIVITIES OF THE NATIONAL IN-
9
STITUTES OF HEALTH.
10
(a) IN GENERAL.—The Director of the National In-
11
stitutes of Health, acting through the Director of the Na-
12
tional Heart, Lung, and Blood Institute, shall—
13
(1) continue to expand research activities ad-
14
dressing sleep health disparities; and
15
(2) continue implementation of the ‘‘NIH Sleep
16
Disorders Research Plan’’ across all institutes and
17
centers of the National Institutes of Health to im-
18
prove treatment and prevention of sleep health dis-
19
parities.
20
(b) REQUIRED
RESEARCH
ACTIVITIES.—In con-
21
ducting or supporting research relating to sleep and circa-
22
dian rhythm, the Director of the National Heart, Lung,
23
and Blood Institute shall—
24
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(1) advance epidemiology and clinical research
1
to achieve a more complete understanding of dispari-
2
ties in domains of sleep health and across population
3
subgroups for which cardiovascular and metabolic
4
health disparities exist, including—
5
(A) prevalence and severity of sleep apnea;
6
(B) habitual sleep duration;
7
(C) sleep timing and regularity; and
8
(D) insomnia;
9
(2) develop study designs and analytical ap-
10
proaches to explain and predict multilevel and life-
11
course determinants of sleep health and to elucidate
12
the sleep-related causes of cardiovascular and meta-
13
bolic health disparities across the age spectrum, in-
14
cluding such determinants and causes that are—
15
(A) environmental;
16
(B) biological or genetic;
17
(C) psychosocial;
18
(D) societal;
19
(E) political; or
20
(F) economic;
21
(3) determine the contribution of sleep impair-
22
ments such as sleep apnea, insufficient sleep dura-
23
tion, irregular sleep schedules, and insomnia to un-
24
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explained disparities in cardiovascular and metabolic
1
risk and disease outcomes;
2
(4) develop study designs, data sampling and
3
collection tools, and analytical approaches to opti-
4
mize understanding of mediating and moderating
5
factors, and feedback mechanisms coupling sleep to
6
cardiovascular and metabolic health disparities;
7
(5) advance research to understand cultural
8
and linguistic barriers (on the person, provider, or
9
system level) to access to care, medical diagnosis,
10
and treatment of sleep disorders in diverse popu-
11
lation groups;
12
(6) develop and test multilevel interventions (in-
13
cluding sleep health education in diverse commu-
14
nities) to reduce disparities in sleep health that will
15
impact ability to improve disparities in cardio-
16
vascular and metabolic risk or disease;
17
(7) create opportunities to integrate sleep and
18
health disparity science by strategically utilizing re-
19
sources (existing or anticipated cohorts), exchanging
20
scientific data and ideas (cross-over into scientific
21
meetings), and develop multidisciplinary investi-
22
gator-initiated grant applications; and
23
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(8) enhance the diversity and foster career de-
1
velopment of young investigators involved in sleep
2
and health disparities science.
3
(c) AUTHORIZATION OF APPROPRIATIONS.—To carry
4
out this section, there are authorized to be appropriated
5
such sums as may be necessary for fiscal year 2019 and
6
each subsequent fiscal year.
7
SEC. 793. SLEEP AND CIRCADIAN RHYTHM HEALTH DIS-
8
PARITIES-RELATED ACTIVITIES OF THE CEN-
9
TERS FOR DISEASE CONTROL AND PREVEN-
10
TION.
11
(a) IN GENERAL.—The Director of the Centers for
12
Disease Control and Prevention shall conduct, support,
13
and expand public health strategies and prevention, diag-
14
nosis, surveillance, and public and professional awareness
15
activities regarding sleep and circadian rhythm disorders.
16
(b) FINDINGS.—The Congress finds as follows:
17
(1) Sleep disorders and sleep deficiency unre-
18
lated to a primary sleep disorder are underdiagnosed
19
and are increasingly detrimental to health status.
20
(2) The consequences to society include addi-
21
tional diseases, motor vehicle accidents, decreased
22
longevity, elevated direct medical costs, and indirect
23
costs related to work absenteeism and property dam-
24
age.
25
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(c) REQUIRED
SURVEILLANCE
AND
EDUCATION
1
AWARENESS ACTIVITIES.—In conducting or supporting
2
research relating to sleep and circadian rhythm disorders
3
surveillance and education awareness activities, the Direc-
4
tor of the Centers for Disease Control and Prevention
5
shall—
6
(1) ensure that such activities are culturally
7
and linguistically appropriate to minority patients,
8
targeting sleep and circadian rhythm health pro-
9
motion and prevention programs of each major eth-
10
nic group, including—
11
(A) Native Americans and Alaska Natives;
12
(B) Asian Americans;
13
(C) African Americans/Blacks;
14
(D) Hispanic/Latino-Americans; and
15
(E) Native Hawaiians and Pacific Island-
16
ers;
17
(2) collect and compile national and State sur-
18
veillance data on sleep disorders health disparities;
19
(3) continue to develop and implement new
20
sleep questions in public health surveillance systems
21
to increase public awareness of sleep health and
22
sleep disorders and their impact on health;
23
(4) publish monthly reports highlighting geo-
24
graphic, racial, and ethnic disparities in sleep health,
25
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as well as relationships between insufficient sleep
1
and chronic disease, health risk behaviors, and other
2
outcomes as determined necessary by the Director;
3
and
4
(5) include public awareness campaigns that in-
5
form patient populations from major ethnic groups
6
about the prevalence of sleep and circadian rhythm
7
disorders and emphasize the importance of sleep
8
health.
9
(d) AUTHORIZATION OF APPROPRIATIONS.—To carry
10
out this section, there are authorized to be appropriated
11
such sums as may be necessary for fiscal year 2019 and
12
each subsequent fiscal year.
13
SEC. 794. GRANTS FOR COMPREHENSIVE SLEEP AND CIR-
14
CADIAN
HEALTH
EDUCATION
WITHIN
15
HEALTH PROFESSIONS SCHOOLS.
16
(a) PROGRAM
AUTHORIZED.—The Secretary of
17
Health and Human Services (in this section referred to
18
as the ‘‘Secretary’’), in coordination with the Secretary of
19
Education, shall award grants, on a competitive basis, to
20
academic health science centers, health professions
21
schools, and other institutions of higher education to en-
22
able such institutions to provide people with comprehen-
23
sive education on sleep and circadian health, particu-
24
larly—
25
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(1) poor sleep health;
1
(2) sleep disorders;
2
(3) sleep health disparities; and
3
(4) the relationship between sleep and circadian
4
health on metabolic activity, neurological activity,
5
comorbidities, and other diseases.
6
(b) DURATION.—Grants awarded under this section
7
shall be for a period of 5 years.
8
(c) APPLICATIONS.—Any academic health science
9
center, health professions school, or other institutions of
10
higher education seeking a grant under this section shall
11
submit an application to the Secretary at such time, in
12
such manner, and containing such information as the Sec-
13
retary may require.
14
(d) PRIORITY.—In awarding grants under this sec-
15
tion, the Secretary shall give priority to an institution
16
that—
17
(1) has an enrollment of needy students, as de-
18
fined in section 318(b) of the Higher Education Act
19
of 1965 (20 U.S.C. 1059e(b));
20
(2) is a Hispanic-serving institution, as defined
21
in section 502(a) of such Act (20 U.S.C. 1101a(a));
22
(3) is a Tribal College or University, as defined
23
in section 316(b) of such Act (20 U.S.C. 1059c(b));
24
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(4) is an Alaska Native-serving institution, as
1
defined in section 317(b) of such Act (20 U.S.C.
2
1059d(b));
3
(5) is a Native Hawaiian-serving institution, as
4
defined in section 317(b) of such Act (20 U.S.C.
5
1059d(b));
6
(6) is a Predominately Black Institution, as de-
7
fined in section 318(b) of such Act (20 U.S.C.
8
1059e(b));
9
(7) is a Native American-serving, nontribal in-
10
stitution, as defined in section 319(b) of such Act
11
(20 U.S.C. 1059f(b));
12
(8) is an Asian-American and Native American
13
Pacific Islander-serving institution, as defined in
14
section 320(b) of such Act (20 U.S.C. 1059g(b)); or
15
(9) is a minority institution, as defined in sec-
16
tion 365 of such Act (20 U.S.C. 1067k), with an en-
17
rollment of needy students, as defined in section 312
18
of such Act (20 U.S.C. 1058).
19
(e) USES OF FUNDS.—An institution of higher edu-
20
cation receiving a grant under this section may use grant
21
funds to integrate issues relating to comprehensive sleep
22
and circadian health into the academic or support sectors
23
of the institution in order to reach a large number of stu-
24
dents, by carrying out 1 or more of the following activities:
25
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(1) Developing educational content for issues
1
relating to comprehensive sleep and circadian health
2
education that will be incorporated into first-year
3
orientation or core courses.
4
(2) Creating innovative technology-based ap-
5
proaches to deliver sleep health education to stu-
6
dents, faculty, and staff.
7
(3) Developing and employing peer-outreach
8
and education programs to generate discussion, edu-
9
cate, and raise awareness among students about
10
issues relating to poor quality sleep, sleep and circa-
11
dian disorders, and the role sleep health plays in
12
other diseases and comorbidities.
13
(f) REPORT TO CONGRESS.—
14
(1) IN GENERAL.—Not later than 1 year after
15
the date of the enactment of this Act, and annually
16
thereafter for a period of 5 years, the Secretary shall
17
prepare and submit to the appropriate committees of
18
Congress a report on the activities to provide health
19
professions students with comprehensive sleep and
20
circadian health education funded under this section.
21
(2) REPORT ELEMENTS.—The report described
22
in paragraph (1) shall include information about—
23
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(A) the number of eligible entities and in-
1
stitutions of higher education that are receiving
2
grant funds;
3
(B) the specific activities supported by
4
grant funds;
5
(C) the number of students served by
6
grant programs; and
7
(D) the status of program evaluations.
8
SEC. 795. REPORT ON IMPACT OF SLEEP AND CIRCADIAN
9
HEALTH DISORDERS IN VULNERABLE AND
10
RACIAL/ETHNIC POPULATIONS.
11
(a) IN GENERAL.—Not later than 1 year after the
12
date of enactment of this Act, the Secretary of Health and
13
Human Services shall submit to the Congress and the
14
President a report on the impact of sleep and circadian
15
health disorders for racial and ethnic minority commu-
16
nities and other vulnerable populations.
17
(b) CONTENTS.—The report under subsection (a)
18
shall include information on the—
19
(1) progress that has been made in reducing
20
the impact of sleep and circadian health disorders in
21
such communities and populations;
22
(2) opportunities that exist to make additional
23
progress in reducing the impact of sleep and circa-
24
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dian health disorders in such communities and popu-
1
lations;
2
(3) challenges that may impede such additional
3
progress; and
4
(4) Federal funding necessary to achieve sub-
5
stantial reductions in sleep and circadian health dis-
6
orders in racial and ethnic minority communities.
7
Subtitle K—Sickle Cell Disease Re-
8
search,
Surveillance,
Preven-
9
tion, and Treatment
10
SEC. 796. SHORT TITLE.
11
This subtitle may be cited as the ‘‘Sickle Cell Disease
12
Research, Surveillance, Prevention, and Treatment Act of
13
2018’’.
14
SEC. 796A. SICKLE CELL DISEASE RESEARCH.
15
Part P of title III of the Public Health Service Act
16
(42 U.S.C. 280g et seq.), as amended, is further amended
17
by adding at the end the following:
18
‘‘SEC. 399V–11. NATIONAL SICKLE CELL DISEASE RE-
19
SEARCH, SURVEILLANCE, PREVENTION, AND
20
TREATMENT PROGRAM.
21
‘‘(a) RESEARCH.—The Secretary may conduct or
22
support research to expand the understanding of the cause
23
of, and to find a cure for, sickle cell disease.’’.
24
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SEC. 796B. SICKLE CELL DISEASE SURVEILLANCE.
1
Section 399V–11 of the Public Health Service Act,
2
as added by section 796A, is amended by adding at the
3
end the following:
4
‘‘(b) SURVEILLANCE.—
5
‘‘(1) GRANTS.—The Secretary may, for each
6
fiscal year for which appropriations are available to
7
carry out this subsection, make grants—
8
‘‘(A) to conduct surveillance and maintain
9
data on the prevalence and distribution of sickle
10
cell disease and its associated health outcomes,
11
complications, and treatments;
12
‘‘(B) to conduct public health initiatives
13
with respect to sickle cell disease, including—
14
‘‘(i) increasing efforts to improve ac-
15
cess to, and receipt of, high-quality sickle
16
cell disease-related health care, including
17
the use of treatments approved under sec-
18
tion 505 of the Federal Food, Drug, and
19
Cosmetic Act or licensed under section 351
20
of this Act;
21
‘‘(ii) working with partners to improve
22
health outcomes of people with sickle cell
23
disease over their lifespan by promoting
24
guidelines for sickle cell disease screening,
25
prevention, and treatment, including man-
26
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agement of sickle cell disease complica-
1
tions;
2
‘‘(iii) providing support to community-
3
based organizations and State and local
4
health departments in conducting sickle
5
cell disease education and training activi-
6
ties for patients, communities, and health
7
care providers; and
8
‘‘(iv) supporting and training State
9
health departments and regional labora-
10
tories in comprehensive testing to identify
11
specific forms of sickle cell disease in peo-
12
ple of all ages; and
13
‘‘(C) to identify and evaluate promising
14
strategies for prevention and treatment of sickle
15
cell disease complications, including through—
16
‘‘(i) improving estimates of the na-
17
tional incidence and prevalence of sickle
18
cell disease, including estimates about the
19
specific types of sickle cell disease;
20
‘‘(ii) identifying health disparities re-
21
lated to sickle cell disease;
22
‘‘(iii) assessing the utilization of
23
therapies and strategies to prevent com-
24
plications related to sickle cell disease; and
25
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‘‘(iv) evaluating the impact of genetic,
1
environmental, behavioral, and other risk
2
factors that may affect sickle cell disease
3
health outcomes.
4
‘‘(2) POPULATION INCLUDED.—The Secretary
5
shall, to the extent practicable, award grants under
6
this subsection to States, academic institutions, or
7
nonprofit organizations across the United States so
8
as to include data on the majority of the United
9
States population with sickle cell disease.
10
‘‘(3) APPLICATION.—To seek a grant under this
11
subsection, a State, academic institution, or non-
12
profit organization shall submit an application to the
13
Secretary at such time, in such manner, and con-
14
taining such information as the Secretary may re-
15
quire.
16
‘‘(4) DEFINITIONS.—In this subsection:
17
‘‘(A) SECRETARY.—The term ‘Secretary’
18
means the Secretary of Health and Human
19
Services, acting through the Director of the Na-
20
tional Center on Birth Defects and Develop-
21
mental Disabilities.
22
‘‘(B) STATE.—The term ‘State’ includes
23
the 50 States, the District of Columbia, the
24
Commonwealth of Puerto Rico, the United
25
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States Virgin Islands, the Commonwealth of the
1
Northern Mariana Islands, American Samoa,
2
Guam, the Federated States of Micronesia, the
3
Republic of the Marshall Islands, and the Re-
4
public of Palau.’’.
5
SEC. 796C. SICKLE CELL DISEASE PREVENTION AND
6
TREATMENT.
7
(a) REAUTHORIZATION.—Section 712(c) of the
8
American Jobs Creation Act of 2004 (Public Law 108–
9
357; 42 U.S.C. 300b–1 note) is amended—
10
(1) by striking ‘‘Sickle Cell Disease’’ each place
11
it appears and inserting ‘‘sickle cell disease’’;
12
(2) in paragraph (1)(A), by striking ‘‘grants to
13
up to 40 eligible entities for each fiscal year in which
14
the program is conducted under this section for the
15
purpose of developing and establishing systemic
16
mechanisms to improve the prevention and treat-
17
ment of Sickle Cell Disease’’ and inserting ‘‘grants
18
to up to 25 eligible entities for each fiscal year in
19
which the program is conducted under this section
20
for the purpose of developing and establishing sys-
21
temic mechanisms to improve the prevention and
22
treatment of sickle cell disease in populations with
23
a high density of sickle cell disease patients’’;
24
(3) in paragraph (1)(B)—
25
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(A) by striking clause (ii) (relating to pri-
1
ority); and
2
(B) by striking ‘‘GRANT AWARD REQUIRE-
3
MENTS’’ and all that follows through ‘‘the ad-
4
ministrator shall’’ and inserting ‘‘GEOGRAPHIC
5
DIVERSITY.—The Administrator shall’’;
6
(4) in paragraph (2), by adding the following
7
new subparagraph at the end:
8
‘‘(E) To expand, coordinate, and imple-
9
ment transition services for adolescents with
10
sickle cell disease making the transition to adult
11
health care.’’; and
12
(5) in paragraph (6), by striking ‘‘$10,000,000
13
for each of fiscal years 2005 through 2009’’ and in-
14
serting ‘‘$4,455,000 for each of fiscal years 2019
15
through 2023’’.
16
(b) TECHNICAL CHANGES.—Subsection (c) of section
17
712 of the American Jobs Creation Act of 2004 (Public
18
Law 108–357; 42 U.S.C. 300b–1 note), as amended by
19
subsection (a), is—
20
(1) transferred to the Public Health Service Act
21
(42 U.S.C. 201 et seq.); and
22
(2) inserted at the end of section 399V–11 of
23
such Act, as added and amended by sections 796A
24
and 796B.
25
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SEC. 796D. COLLABORATION WITH COMMUNITY-BASED EN-
1
TITIES.
2
Section 399V–11 of the Public Health Service Act,
3
as amended by section 796C, is further amended by add-
4
ing at the end the following:
5
‘‘(d) COLLABORATION WITH COMMUNITY-BASED EN-
6
TITIES.—To be eligible to receive a grant or other assist-
7
ance under subsection (b) or (c), an entity must have in
8
effect a collaborative agreement with a community-based
9
organization with 5 or more years of experience in pro-
10
viding services to sickle cell disease patients.’’.
11
TITLE VIII—HEALTH
12
INFORMATION TECHNOLOGY
13
SEC. 800. DEFINITIONS.
14
In this title:
15
(1) CERTIFIED ELECTRONIC HEALTH RECORD
16
TECHNOLOGY.—The
term
‘‘Certified
Electronic
17
Health Record Technology’’ has the meaning given
18
to that term in section 3000 of the Public Health
19
Service Act (42 U.S.C. 300jj).
20
(2) EHR.—The term ‘‘EHR’’ means an elec-
21
tronic health record.
22
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Subtitle A—Reducing Health
1
Disparities Through Health IT
2
SEC. 801. HRSA ASSISTANCE TO HEALTH CENTERS FOR
3
PROMOTION OF HEALTH IT.
4
The Secretary of Health and Human Services, acting
5
through the Administrator of the Health Resources and
6
Services Administration, shall expand and intensify the
7
programs and activities of the Administration (directly or
8
through grants or contracts) to provide technical assist-
9
ance and resources to health centers (as defined in section
10
330(a) of the Public Health Service Act (42 U.S.C.
11
254b(a)) to adopt and meaningfully use Certified Elec-
12
tronic Health Record Technology for the management of
13
chronic diseases and health conditions and reduction of
14
health disparities.
15
SEC. 802. ASSESSMENT OF IMPACT OF HEALTH IT ON RA-
16
CIAL AND ETHNIC MINORITY COMMUNITIES;
17
OUTREACH AND ADOPTION OF HEALTH IT IN
18
SUCH COMMUNITIES.
19
(a) NATIONAL COORDINATOR FOR HEALTH INFOR-
20
MATION TECHNOLOGY.—
21
(1) IN
GENERAL.—The National Coordinator
22
for Health Information Technology shall conduct an
23
evaluation of the level of use and accessibility of
24
electronic health records in racial and ethnic minor-
25
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ity communities focusing on whether patients in
1
those communities have providers with electronic
2
health records, stratified by providers participating
3
in Medicare and Medicaid programs, and whether
4
such providers have received EHR incentive pay-
5
ments under the HITECH Act, and by providers
6
participating in the Merit-Based Incentive Payment
7
System (MIPS) under the Quality Payment Pro-
8
gram (QPP) established by the Medicare Access and
9
CHIP Reauthorization Act of 2015 (MACRA).
10
(2) CONTENT.—In conducting the evaluation
11
under paragraph (1), the National Coordinator shall
12
publish the results of a study regarding the 100,000
13
providers recruited by the Regional Extension Cen-
14
ter established under section 3012 of the Public
15
Health Service Act (42 U.S.C. 300jj–32), including
16
the race and ethnicity of such providers and the pop-
17
ulations served by such providers, with the popu-
18
lations stratified by providers participating in Medi-
19
care and Medicaid programs, and whether such pro-
20
viders have received EHR incentive payments under
21
the HITECH Act, and by providers participating in
22
the MIPS.
23
(b) NATIONAL CENTER FOR HEALTH STATISTICS.—
24
As soon as practicable after the date of enactment of this
25
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Act, the Director of the National Center for Health Statis-
1
tics shall provide to Congress a more detailed analysis of
2
the data presented in NCHS Data Brief No. 236, Adop-
3
tion of Certified Electronic Health Record Systems and
4
Electronic Information Sharing in Physician Offices:
5
United States, 2013 and 2014 the Data Brief 79.
6
(c) CENTERS FOR MEDICARE & MEDICAID SERV-
7
ICES.—
8
(1) IN GENERAL.—As part of the process of
9
collecting information, with respect to a provider, at
10
registration and attestation for purposes of the
11
Medicare and Medicaid Electronic Health Records
12
Incentive Programs and MIPS, the Secretary of
13
Health and Human Services shall collect the race
14
and ethnicity of such provider.
15
(2) MEDICARE
AND
MEDICAID
ELECTRONIC
16
HEALTH
RECORDS
INCENTIVE
PROGRAMS
DE-
17
FINED.—For purposes of paragraph (1), the term
18
‘‘Medicare and Medicaid Electronic Health Records
19
Incentive Programs’’ means the incentive programs
20
under section 1814(l)(3), subsections (a)(7) and (o)
21
of section 1848, subsections (l) and (m) of section
22
1853, subsections (b)(3)(B)(ix)(I) and (n) of section
23
1886, and subsections (a)(3)(F) and (t) of section
24
1903 of the Social Security Act (42 U.S.C.
25
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1395f(l)(3), 1395w–4, 1395w–23, 1395ww, and
1
1396b).
2
(d) NATIONAL COORDINATOR’S ASSESSMENT OF IM-
3
PACT
OF HIT.—Section 3001(c)(6)(C) of the Public
4
Health Service Act (42 U.S.C. 300jj–11(c)(6)(C)) is
5
amended—
6
(1) in the heading by inserting ‘‘, RACIAL AND
7
ETHNIC MINORITY COMMUNITIES,’’ after ‘‘HEALTH
8
DISPARITIES’’;
9
(2) by inserting ‘‘, in communities with a high
10
proportion of individuals from racial and ethnic mi-
11
nority groups (as defined in section 1707(g)), in-
12
cluding people with disabilities in these groups,’’
13
after ‘‘communities with health disparities’’; and
14
(3) by adding at the end the following new sen-
15
tence: ‘‘In any publication under the previous sen-
16
tence, the National Coordinator shall include best
17
practices for encouraging partnerships between the
18
Federal Government, States, and private entities to
19
expand outreach for and the adoption of certified
20
EHR technology in communities with a high propor-
21
tion of individuals from racial and ethnic minority
22
groups (as so defined), while also maintaining the
23
accessibility requirements of section 508 of the Re-
24
habilitation Act to encourage patient involvement in
25
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patient health care. The National Coordinator
1
shall—
2
‘‘(i) not later than 6 months after the
3
submission to the Congress of the report
4
required by section 822 of the Health Eq-
5
uity and Accountability Act of 2018, estab-
6
lish criteria for evaluating the impact of
7
health information technology on commu-
8
nities with a high proportion of individuals
9
from racial and ethnic minority groups (as
10
so defined) taking into account the find-
11
ings in such report; and
12
‘‘(ii) not later than 12 months after
13
the submission to the Congress of such re-
14
ports, conduct and publish the results of
15
an evaluation of such impact.’’.
16
Subtitle
B—Modifications
To
17
Achieve Parity in Existing Pro-
18
grams
19
SEC. 811. EXTENDING FUNDING TO STRENGTHEN THE
20
HEALTH IT INFRASTRUCTURE IN RACIAL
21
AND ETHNIC MINORITY COMMUNITIES.
22
Section 3011 of the Public Health Service Act (42
23
U.S.C. 300jj–31) is amended—
24
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(1) in subsection (a), by adding at the end the
1
following new paragraph:
2
‘‘(8) Activities described in the previous para-
3
graphs of this subsection with respect to commu-
4
nities with a high proportion of individuals from ra-
5
cial and ethnic minority groups (as defined in sec-
6
tion 1707(g)).’’; and
7
(2) by adding at the end the following new sub-
8
section:
9
‘‘(e) ANNUAL REPORT
ON EXPENDITURES.—The
10
National Coordinator shall report annually to the Con-
11
gress on activities and expenditures under this section.’’.
12
SEC. 812. EXTENDING COMPETITIVE GRANTS FOR THE DE-
13
VELOPMENT OF LOAN PROGRAMS TO FACILI-
14
TATE ADOPTION OF CERTIFIED ELECTRONIC
15
HEALTH RECORD TECHNOLOGY BY PRO-
16
VIDERS SERVING RACIAL AND ETHNIC MI-
17
NORITY GROUPS.
18
Section 3014(e) of the Public Health Service Act (42
19
U.S.C. 300jj–34(e)) is amended—
20
(1) in paragraph (3), by striking at the end
21
‘‘or’’;
22
(2) in paragraph (4), by striking the period at
23
the end and inserting ‘‘; or’’; and
24
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(3) by adding at the end the following new
1
paragraph:
2
‘‘(5) carry out any of the activities described in
3
a previous paragraph of this subsection with respect
4
to communities with a high proportion of individuals
5
from racial and ethnic minority groups (as defined
6
in section 1707(g)).’’.
7
SEC. 813. AUTHORIZATION OF APPROPRIATIONS.
8
Section 3018 of the Public Health Service Act (42
9
U.S.C. 300jj–38) is amended by striking ‘‘fiscal years
10
2009 through 2013’’ and inserting ‘‘fiscal years 2019
11
through 2024’’.
12
Subtitle C—Additional Research
13
and Studies
14
SEC. 821. DATA COLLECTION AND ASSESSMENTS CON-
15
DUCTED IN COORDINATION WITH MINORITY-
16
SERVING INSTITUTIONS.
17
Section 3001(c)(6) of the Public Health Service Act
18
(42 U.S.C. 300jj–11(c)(6)) is amended by adding at the
19
end the following new subparagraph:
20
‘‘(F) DATA
COLLECTION
AND
ASSESS-
21
MENTS
CONDUCTED
IN
COORDINATION
WITH
22
MINORITY-SERVING INSTITUTIONS.—
23
‘‘(i) IN
GENERAL.—In carrying out
24
subparagraph (C) with respect to commu-
25
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nities with a high proportion of individuals
1
from racial and ethnic minority groups (as
2
defined in section 1707(g)), the National
3
Coordinator shall, to the greatest extent
4
possible, coordinate with an entity de-
5
scribed in clause (ii).
6
‘‘(ii)
MINORITY-SERVING
INSTITU-
7
TIONS.—For purposes of clause (i), an en-
8
tity described in this clause is a historically
9
Black college or university, a Hispanic-
10
serving institution, a Tribal college or uni-
11
versity, or an Asian-American-, Native
12
American-, Pacific Islander-serving institu-
13
tion with an accredited public health,
14
health policy, or health services research
15
program.’’.
16
SEC. 822. STUDY OF HEALTH INFORMATION TECHNOLOGY
17
IN
MEDICALLY
UNDERSERVED
COMMU-
18
NITIES.
19
(a) IN GENERAL.—Not later than 24 months after
20
the date of enactment of this Act, the Secretary of Health
21
and Human Services shall—
22
(1) enter into an agreement with the National
23
Academies of Sciences, Engineering, and Medicine to
24
conduct a study on the development, implementa-
25
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tion, and effectiveness of health information tech-
1
nology within medically underserved areas (as de-
2
scribed in subsection (c)); and
3
(2) submit a report to Congress describing the
4
results of such study, including any recommenda-
5
tions for legislative or administrative action.
6
(b) STUDY.—The study described in subsection
7
(a)(1) shall—
8
(1) identify barriers to successful implementa-
9
tion of health information technology in medically
10
underserved areas;
11
(2) examine the impact of health information
12
technology on providing quality care and reducing
13
the cost of care to individuals in such areas, includ-
14
ing the impact of such technology on improved
15
health outcomes for individuals, including which
16
technology worked for which population and how it
17
improved health outcomes for that population;
18
(3) examine the impact of health information
19
technology on improving health care-related deci-
20
sions by both patients and providers in such areas;
21
(4) identify specific best practices for using
22
health information technology to foster the con-
23
sistent provision of physical accessibility and reason-
24
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able policy accommodations in health care to individ-
1
uals with disabilities in such areas;
2
(5) assess the feasibility and costs associated
3
with the use of health information technology in
4
such areas;
5
(6) evaluate whether the adoption and use of
6
qualified electronic health records (as described in
7
section 3000(13) of the Public Health Service Act
8
(42 U.S.C. 300jj(13)) is effective in reducing health
9
disparities, including analysis of clinical quality
10
measures reported by Medicare and Medicaid pro-
11
viders pursuant to programs to encourage the adop-
12
tion and use of Certified Electronic Health Record
13
Technology;
14
(7) identify providers in medically underserved
15
areas that are not electing to adopt and use elec-
16
tronic health records and determine what barriers
17
are preventing those providers from adopting and
18
using such records; and
19
(8) examine urban and rural community health
20
systems and determine the impact that health infor-
21
mation technology may have on the capacity of pri-
22
mary health providers in those systems.
23
(c) MEDICALLY UNDERSERVED AREA.—The term
24
‘‘medically underserved area’’ means—
25
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(1) a population that has been designated as a
1
medically underserved population under section
2
330(b)(3) of the Public Health Service Act (42
3
U.S.C. 254b(b)(3));
4
(2) an area that has been designated as a
5
health professional shortage area under section 332
6
of the Public Health Service Act (42 U.S.C. 254e);
7
(3) an area or population that has been des-
8
ignated as a medically underserved community under
9
section 799B(6) of the Public Health Service Act
10
(42 U.S.C. 295p(6)); or
11
(4) an area or population that—
12
(A) is not described in paragraphs (1)
13
through (3) of this subsection;
14
(B) experiences significant barriers to ac-
15
cessing quality health services; and
16
(C) has a high prevalence of diseases or
17
conditions described in title VII of this Act,
18
with such diseases or conditions having a dis-
19
proportionate impact on racial and ethnic mi-
20
nority groups (as defined in section 1707(g) of
21
the Public Health Service Act (42 U.S.C.
22
300u–6(g))) or a subgroup of people with dis-
23
abilities who have specific functional impair-
24
ments.
25
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Subtitle D—Closing Gaps in
1
Funding To Adopt Certified EHRs
2
SEC. 831. EXTENDING MEDICAID EHR INCENTIVE PAY-
3
MENTS
TO
REHABILITATION
FACILITIES,
4
LONG-TERM CARE FACILITIES, AND HOME
5
HEALTH AGENCIES.
6
Section 1903(t)(2)(B) of the Social Security Act (42
7
U.S.C. 1396b(t)(2)(B)) is amended—
8
(1) in clause (i), by striking ‘‘, or’’ and insert-
9
ing a semicolon;
10
(2) in clause (ii), by striking the period at the
11
end and inserting a semicolon; and
12
(3) by inserting after clause (ii) the following
13
new clauses:
14
‘‘(iii) a rehabilitation facility (as defined in sec-
15
tion 1886(j)(1)) that furnishes acute or subacute re-
16
habilitation services;
17
‘‘(iv) a long-term care hospital (as defined in
18
section 1886(d)(1)(B)(iv)(I)); or
19
‘‘(v) a home health agency (as defined in sec-
20
tion 1861(o)).’’.
21
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SEC. 832. EXTENDING PHYSICIAN ASSISTANT ELIGIBILITY
1
FOR
MEDICAID
ELECTRONIC
HEALTH
2
RECORD INCENTIVE PAYMENTS.
3
(a) IN GENERAL.—Section 1903(t)(3)(B)(v) of the
4
Social Security Act (42 U.S.C. 1396b(t)(3)(B)(v)) is
5
amended to read as follows:
6
‘‘(v) physician assistant.’’.
7
(b) EFFECTIVE DATE.—The amendment made by
8
subsection (a) shall apply with respect to amounts ex-
9
pended under section 1903(a)(3)(F) of the Social Security
10
Act (42 U.S.C. 1396b(a)(3)(F)) for calendar quarters be-
11
ginning on or after the date of the enactment of this Act.
12
TITLE IX—ACCOUNTABILITY
13
AND EVALUATION
14
SEC. 901. PROHIBITION ON DISCRIMINATION IN FEDERAL
15
ASSISTED HEALTH CARE SERVICES AND RE-
16
SEARCH PROGRAMS ON THE BASIS OF SEX,
17
RACE, COLOR, NATIONAL ORIGIN, MARITAL
18
STATUS, FAMILIAL STATUS, SEXUAL ORI-
19
ENTATION,
GENDER
IDENTITY,
OR
DIS-
20
ABILITY STATUS.
21
(a) IN GENERAL.—No person in the United States
22
shall, on the basis of sex, race, color, national origin, mar-
23
ital status, familial status, sexual orientation, gender iden-
24
tity, or disability status, be excluded from participation
25
in, be denied the benefits of, or be subjected to discrimina-
26
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tion under any health program or activity, including any
1
health research program or activity, receiving Federal fi-
2
nancial assistance.
3
(b) DEFINITION.—In this section, the term ‘‘familial
4
status’’ means, with respect to one or more individuals—
5
(1) being domiciled with any individual related
6
by blood or affinity whose close association with the
7
individual is the equivalent of a family relationship;
8
(2) being in the process of securing legal cus-
9
tody of any individual; or
10
(3) being pregnant.
11
SEC. 902. TREATMENT OF MEDICARE PAYMENTS UNDER
12
TITLE VI OF THE CIVIL RIGHTS ACT OF 1964.
13
A payment to a provider of services, physician, or
14
other supplier under part B, C, or D of title XVIII of
15
the Social Security Act shall be deemed a grant, and not
16
a contract of insurance or guaranty, for the purposes of
17
title VI of the Civil Rights Act of 1964.
18
SEC. 903. ACCOUNTABILITY AND TRANSPARENCY WITHIN
19
THE DEPARTMENT OF HEALTH AND HUMAN
20
SERVICES.
21
Title XXXIV of the Public Health Service Act, as
22
amended by titles I, II, and III of this Act, is further
23
amended by inserting after subtitle B the following:
24
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‘‘Subtitle C—Strengthening
1
Accountability
2
‘‘SEC. 3441. ELEVATION OF THE OFFICE OF CIVIL RIGHTS.
3
‘‘(a) IN GENERAL.—The Secretary shall establish
4
within the Office for Civil Rights an Office of Health Dis-
5
parities, which shall be headed by a director to be ap-
6
pointed by the Secretary.
7
‘‘(b) PURPOSE.—The Office of Health Disparities
8
shall ensure that the health programs, activities, and oper-
9
ations of health entities which receive Federal financial as-
10
sistance are in compliance with title VI of the Civil Rights
11
Act, which prohibits discrimination on the basis of race,
12
color, or national origin. The activities of the Office shall
13
include the following:
14
‘‘(1) The development and implementation of
15
an action plan to address racial and ethnic health
16
care disparities, which shall address concerns relat-
17
ing to the Office for Civil Rights as released by the
18
United States Commission on Civil Rights in the re-
19
port entitled ‘Health Care Challenge: Acknowledging
20
Disparity, Confronting Discrimination, and Ensur-
21
ing Equity’ (September 1999) in conjunction with
22
the reports by the Institute of Medicine entitled ‘Un-
23
equal Treatment: Confronting Racial and Ethnic
24
Disparities in Health Care’, ‘Crossing the Quality
25
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Chasm: A New Health System for the 21st Cen-
1
tury’, ‘In the Nation’s Compelling Interest: Ensur-
2
ing Diversity in the Health Care Workforce’, ‘The
3
National Partnership for Action to End Health Dis-
4
parities’, and ‘The Health of Lesbian, Gay, Bisexual,
5
and Transgender People’, and other related reports
6
by the Institute of Medicine. This plan shall be pub-
7
licly disclosed for review and comment and the final
8
plan shall address any comments or concerns that
9
are received by the Office.
10
‘‘(2) Investigative and enforcement actions
11
against intentional discrimination and policies and
12
practices that have a disparate impact on minorities.
13
‘‘(3) The review of racial, ethnic, gender iden-
14
tity, sexual orientation, sex, disability status, socio-
15
economic status, and primary language health data
16
collected by Federal health agencies to assess health
17
care disparities related to intentional discrimination
18
and policies and practices that have a disparate im-
19
pact on minorities.
20
‘‘(4) Outreach and education activities relating
21
to compliance with title VI of the Civil Rights Act.
22
‘‘(5) The provision of technical assistance for
23
health entities to facilitate compliance with title VI
24
of the Civil Rights Act.
25
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‘‘(6) Coordination and oversight of activities of
1
the civil rights compliance offices established under
2
section 3442.
3
‘‘(7) Ensuring—
4
‘‘(A) at a minimum, compliance with the
5
1997 Office of Management and Budget Stand-
6
ards for Maintaining, Collecting, and Pre-
7
senting Federal Data on Race and Ethnicity;
8
and
9
‘‘(B) consideration of available data and
10
language standards such as—
11
‘‘(i) the standards for collecting and
12
reporting data under section 3101; and
13
‘‘(ii) the National Standards on Cul-
14
turally
and
Linguistically
Appropriate
15
Services of the Office of Minority Health
16
within the Department of Health and
17
Human Services.
18
‘‘(c) FUNDING AND STAFF.—The Secretary shall en-
19
sure the effectiveness of the Office of Health Disparities
20
by ensuring that the Office is provided with—
21
‘‘(1) adequate funding to enable the Office to
22
carry out its duties under this section; and
23
‘‘(2) staff with expertise in—
24
‘‘(A) epidemiology;
25
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‘‘(B) statistics;
1
‘‘(C) health quality assurance;
2
‘‘(D) minority health and health dispari-
3
ties;
4
‘‘(E) cultural and linguistic competency;
5
‘‘(F) civil rights; and
6
‘‘(G) social, behavioral, and economic de-
7
terminants of health.
8
‘‘(d) REPORT.—Not later than December 31, 2019,
9
and annually thereafter, the Secretary, in collaboration
10
with the Director of the Office for Civil Rights and the
11
Deputy Assistant Secretary for Minority Health, shall
12
submit a report to the Committee on Health, Education,
13
Labor, and Pensions of the Senate and the Committee on
14
Energy and Commerce of the House of Representatives
15
that includes—
16
‘‘(1) the number of cases filed, broken down by
17
category;
18
‘‘(2) the number of cases investigated and
19
closed by the office;
20
‘‘(3) the outcomes of cases investigated;
21
‘‘(4) the staffing levels of the office including
22
staff credentials;
23
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‘‘(5) the number of other lingering and emerg-
1
ing cases in which civil rights inequities can be dem-
2
onstrated; and
3
‘‘(6) the number of cases remaining open and
4
an explanation for their open status.
5
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—There
6
are authorized to be appropriated to carry out this section
7
such sums as may be necessary for each of fiscal years
8
2019 through 2024.
9
‘‘SEC. 3442. ESTABLISHMENT OF HEALTH PROGRAM OF-
10
FICES FOR CIVIL RIGHTS WITHIN FEDERAL
11
HEALTH AND HUMAN SERVICES AGENCIES.
12
‘‘(a) IN GENERAL.—The Secretary shall establish
13
civil rights compliance offices in each agency within the
14
Department of Health and Human Services that admin-
15
isters health programs.
16
‘‘(b) PURPOSE OF OFFICES.—Each office established
17
under subsection (a) shall ensure that recipients of Fed-
18
eral financial assistance under Federal health programs
19
administer their programs, services, and activities in a
20
manner that—
21
‘‘(1) does not discriminate, either intentionally
22
or in effect, on the basis of race, national origin, lan-
23
guage, ethnicity, sex, age, disability, sexual orienta-
24
tion, and gender identity; and
25
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‘‘(2) promotes the reduction and elimination of
1
disparities in health and health care based on race,
2
national origin, language, ethnicity, sex, age, dis-
3
ability, sexual orientation, and gender identity.
4
‘‘(c) POWERS AND DUTIES.—The offices established
5
in subsection (a) shall have the following powers and du-
6
ties:
7
‘‘(1) The establishment of compliance and pro-
8
gram participation standards for recipients of Fed-
9
eral financial assistance under each program admin-
10
istered by an agency within the Department of
11
Health and Human Services including the establish-
12
ment of disparity reduction standards to encompass
13
disparities in health and health care related to race,
14
national origin, language, ethnicity, sex, age, dis-
15
ability, sexual orientation, and gender identity.
16
‘‘(2) The development and implementation of
17
program-specific guidelines that interpret and apply
18
Department of Health and Human Services guid-
19
ance under title VI of the Civil Rights Act of 1964
20
and section 1557 of the Patient Protection and Af-
21
fordable Care Act to each Federal health program
22
administered by the agency.
23
‘‘(3) The development of a disparity-reduction
24
impact analysis methodology that shall be applied to
25
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every rule issued by the agency and published as
1
part of the formal rulemaking process under sections
2
555, 556, and 557 of title 5, United States Code.
3
‘‘(4) Oversight of data collection, analysis, and
4
publication requirements for all recipients of Federal
5
financial assistance under each Federal health pro-
6
gram administered by the agency; compliance with,
7
at a minimum, the 1997 Office of Management and
8
Budget Standards for Maintaining, Collecting, and
9
Presenting Federal Data on Race and Ethnicity; and
10
consideration of available data and language stand-
11
ards such as—
12
‘‘(A) the standards for collecting and re-
13
porting data under section 3101; and
14
‘‘(B) the National Standards on Culturally
15
and Linguistically Appropriate Services of the
16
Office of Minority Health within the Depart-
17
ment of Health and Human Services.
18
‘‘(5) The conduct of publicly available studies
19
regarding discrimination within Federal health pro-
20
grams administered by the agency as well as dis-
21
parity reduction initiatives by recipients of Federal
22
financial assistance under Federal health programs.
23
‘‘(6) Annual reports to the Committee on
24
Health, Education, Labor, and Pensions and the
25
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Committee on Finance of the Senate and the Com-
1
mittee on Energy and Commerce and the Committee
2
on Ways and Means of the House of Representatives
3
on the progress in reducing disparities in health and
4
health care through the Federal programs adminis-
5
tered by the agency.
6
‘‘(d) RELATIONSHIP TO OFFICE FOR CIVIL RIGHTS
7
IN THE DEPARTMENT OF JUSTICE.—
8
‘‘(1) DEPARTMENT
OF
HEALTH
AND
HUMAN
9
SERVICES.—The Office for Civil Rights in the De-
10
partment of Health and Human Services shall pro-
11
vide standard-setting and compliance review inves-
12
tigation support services to the Civil Rights Compli-
13
ance Office for each agency.
14
‘‘(2) DEPARTMENT
OF
JUSTICE.—The Office
15
for Civil Rights in the Department of Justice shall
16
continue to maintain the power to institute formal
17
proceedings when an agency Office for Civil Rights
18
determines that a recipient of Federal financial as-
19
sistance is not in compliance with the disparity re-
20
duction standards of the agency.
21
‘‘(e) DEFINITION.—In this section, the term ‘Federal
22
health programs’ mean programs—
23
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‘‘(1) under the Social Security Act (42 U.S.C.
1
301 et seq.) that pay for health care and services;
2
and
3
‘‘(2) under this Act that provide Federal finan-
4
cial assistance for health care, biomedical research,
5
health services research, and programs designed to
6
improve the public’s health, including health service
7
programs.’’.
8
SEC. 904. UNITED STATES COMMISSION ON CIVIL RIGHTS.
9
(a) COORDINATION WITHIN DEPARTMENT OF JUS-
10
TICE
OF
ACTIVITIES
REGARDING
HEALTH
DISPARI-
11
TIES.—Section 3(a) of the Civil Rights Commission Act
12
of 1983 (42 U.S.C. 1975a(a)) is amended—
13
(1) in paragraph (1), by striking ‘‘and’’ at the
14
end;
15
(2) in paragraph (2), by striking the period at
16
the end and inserting ‘‘; and’’; and
17
(3) by adding at the end the following:
18
‘‘(3) shall, with respect to activities carried out
19
in health care and correctional facilities toward the
20
goal of eliminating health disparities between the
21
general population and members of racial or ethnic
22
minority groups, coordinate such activities of—
23
‘‘(A) the Office for Civil Rights within the
24
Department of Justice;
25
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‘‘(B) the Office of Justice Programs within
1
the Department of Justice;
2
‘‘(C) the Office for Civil Rights within the
3
Department of Health and Human Services;
4
and
5
‘‘(D) the Office of Minority Health within
6
the Department of Health and Human Services
7
(headed by the Deputy Assistant Secretary for
8
Minority Health).’’.
9
(b) AUTHORIZATION OF APPROPRIATIONS.—Section
10
5 of the Civil Rights Commission Act of 1983 (42 U.S.C.
11
1975c) is amended by striking the first sentence and in-
12
serting the following: ‘‘For the purpose of carrying out
13
this Act, there are authorized to be appropriated
14
$30,000,000 for fiscal year 2019, and such sums as may
15
be necessary for each of the fiscal years 2020 through
16
2024.’’.
17
SEC. 905. SENSE OF CONGRESS CONCERNING FULL FUND-
18
ING OF ACTIVITIES TO ELIMINATE RACIAL
19
AND ETHNIC HEALTH DISPARITIES.
20
(a) FINDINGS.—Congress makes the following find-
21
ings:
22
(1) The health status of the American populace
23
is declining and the United States currently ranks
24
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below most industrialized nations in health status
1
measured by longevity, sickness, and mortality.
2
(2) Racial and ethnic minority populations tend
3
have the poorest health status and face substantial
4
cultural, social, and economic barriers to obtaining
5
quality health care.
6
(3) Lesbian, gay, bisexual, transgender, queer,
7
and questioning (LGBTQ) populations experience
8
significant personal and structural barriers to ob-
9
taining high-quality health care.
10
(4) Efforts to improve minority health have
11
been limited by inadequate resources (funding, staff-
12
ing, and stewardship) and lack of accountability.
13
(b) SENSE OF CONGRESS.—It is the sense of Con-
14
gress that—
15
(1) health disparities negatively impact out-
16
comes for health and human security of the Nation;
17
(2) reducing racial, ethnic, sexual, and gender
18
disparities in prevention and treatment are unique
19
civil and human rights challenges and as such Fed-
20
eral agencies and health care entities and systems
21
receiving Federal funds must be accountable for
22
their role in causing disparities and inequity;
23
(3) funding should be doubled by fiscal year
24
2020 for the National Institute for Minority Health
25
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Disparities, the Office of Civil Rights in the Depart-
1
ment of Health and Human Services, the National
2
Institute of Nursing Research, and the Office of Mi-
3
nority Health;
4
(4) adequate funding by fiscal year 2020, and
5
subsequent funding increases, should be provided for
6
health and human service professions training pro-
7
grams, the Racial and Ethnic Approaches to Com-
8
munity Health (REACH) Initiative at the Centers
9
for Disease Control and Prevention, the Minority
10
HIV/AIDS Initiative, and the Excellence Centers to
11
Eliminate Ethnic/Racial Disparities (EXCEED)
12
Program at the Agency for Healthcare Research and
13
Quality;
14
(5) funding should be fully restored to the Ra-
15
cial and Ethnic Approaches to Community Health
16
(REACH) Initiative at the Centers for Disease Con-
17
trol and Prevention, which has been a successful
18
program at the community health level, and efforts
19
should continue to place a strong emphasis on build-
20
ing community capacity to secure financial resources
21
and technical assistance to eliminate health dispari-
22
ties;
23
(6) adequate funding for fiscal year 2020 and
24
increased funding for future years should be pro-
25
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vided for the REACH Initiative’s United States Risk
1
Factor Survey to ensure adequate data collection to
2
track health disparities, and there should be appro-
3
priate avenues provided to disseminate findings to
4
the general public;
5
(7) current and newly created health disparity
6
elimination incentives, programs, agencies, and de-
7
partments under this Act (and the amendments
8
made by this Act) should receive adequate staffing
9
and funding by fiscal year 2020; and
10
(8) stewardship and accountability should be
11
provided to the Congress and the President for
12
measurable and sustainable progress toward health
13
disparity elimination.
14
SEC. 906. GAO AND NIH REPORTS.
15
(a) GAO REPORT ON NIH GRANT RACIAL AND ETH-
16
NIC DIVERSITY.—
17
(1) IN GENERAL.—The Comptroller General of
18
the United States shall conduct a study on the racial
19
and ethnic diversity among the following groups:
20
(A) All applicants for grants, contracts,
21
and cooperative agreements awarded by the Na-
22
tional Institutes of Health during the period be-
23
ginning on January 1, 2006, and ending De-
24
cember 31, 2017.
25
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(B) All recipients of such grants, con-
1
tracts, and cooperative agreements.
2
(C) All members of the peer review panels
3
of such applicants and recipients, respectively.
4
(2) REPORT.—Not later than six months after
5
the date of the enactment of this Act, the Comp-
6
troller General shall complete the study under para-
7
graph (1) and submit to Congress a report con-
8
taining the results of such study.
9
(b) NIH REPORT ON CERTAIN AUTHORITY OF NA-
10
TIONAL INSTITUTE ON MINORITY HEALTH AND HEALTH
11
DISPARITIES.—Not later than six months after the date
12
of the enactment of this Act, and biennially thereafter, the
13
Director of the National Institutes of Health, in collabora-
14
tion with the Director of the National Institute on Minor-
15
ity Health and Health Disparities, shall submit to Con-
16
gress a report that details and evaluates—
17
(1) the steps taken during the applicable report
18
period by the Director of the National Institutes of
19
Health to enforce the expanded planning, coordina-
20
tion, review, and evaluation authority provided the
21
National Institute on Minority Health and Health
22
Disparities under section 464z–3(h) of the Public
23
Health Service Act (42 U.S.C. 285(h)), as added by
24
section 10334(c) of the Patient Protection and Af-
25
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fordable Care Act, over all minority health and
1
health disparity research that is conducted or sup-
2
ported by the Institutes and Centers at the National
3
Institutes of Health; and
4
(2) the outcomes of such steps.
5
(c) GAO REPORT RELATED
TO RECIPIENTS
OF
6
PPACA FUNDING.—Not later than one year after the
7
date of the enactment of this Act and biennially thereafter
8
until 2022, the Comptroller General of the United States
9
shall submit to Congress a report that identifies—
10
(1) the racial and ethnic diversity of commu-
11
nity-based organizations that applied for Federal en-
12
rollment funding provided pursuant to the provisions
13
of (and amendments made by) the Patient Protec-
14
tion and Affordable Care Act;
15
(2) the percentage of such organizations that
16
were awarded such funding; and
17
(3) the impact of such community-based organi-
18
zations’ enrollment efforts on the insurance status of
19
their communities.
20
(d) ANNUAL REPORT ON ACTIVITIES OF NATIONAL
21
INSTITUTE ON MINORITY HEALTH AND HEALTH DIS-
22
PARITIES.—The Director of the National Institute on Mi-
23
nority Health and Health Disparities shall prepare an an-
24
nual report on the activities carried out or to be carried
25
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out by the Institute, and shall submit each such report
1
to the Committee on Health, Education, Labor, and Pen-
2
sions of the Senate, the Committee on Energy and Com-
3
merce of the House of Representatives, the Secretary of
4
Health and Human Services, and the Director of the Na-
5
tional Institutes of Health. With respect to the fiscal year
6
involved, the report shall—
7
(1) describe and evaluate the progress made in
8
health disparities research conducted or supported
9
by institutes and centers of the National Institutes
10
of Health;
11
(2) summarize and analyze expenditures made
12
for activities with respect to health disparities re-
13
search conducted or supported by the National Insti-
14
tutes of Health;
15
(3) include a separate statement applying the
16
requirements of paragraphs (1) and (2) specifically
17
to minority health disparities research; and
18
(4) contain such recommendations as the Direc-
19
tor of the Institute considers appropriate.
20
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TITLE X—ADDRESSING SOCIAL
1
DETERMINANTS
AND
IM-
2
PROVING
ENVIRONMENTAL
3
JUSTICE
4
Subtitle A—In General
5
SEC. 1001. DEFINITIONS.
6
(a) DETERMINANTS OF HEALTH.—The term ‘‘deter-
7
minants of health’’—
8
(1) refers to the range of personal, social, eco-
9
nomic, and environmental factors that influence
10
health status; and
11
(2) includes social determinants of health
12
(which are sometimes referred to as ‘‘social and eco-
13
nomic determinants of health’’ or ‘‘socioeconomic de-
14
terminants of health’’), environmental determinants
15
of health, and personal determinants of health.
16
(b)
ENVIRONMENTAL
DETERMINANTS
OF
17
HEALTH.—The term ‘‘environmental determinants of
18
health’’ refers to the broad physical, psychological, social,
19
and aesthetic environment.
20
(c) PERSONAL DETERMINANTS OF HEALTH.—The
21
term ‘‘personal determinants of health’’ refers to an indi-
22
vidual’s behavior, biology, and genetics.
23
(d) SOCIAL DETERMINANTS OF HEALTH.—The term
24
‘‘social determinants of health’’ refers to a subset of deter-
25
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minants of the health of individuals and environments
1
(such as communities, neighborhoods, and societies) that
2
describe people’s social identity, describe the social and
3
economic resources to which people have access, and de-
4
scribe the conditions in which people work, live, and play.
5
SEC. 1002. FINDINGS.
6
The Congress finds as follows:
7
(1) There are more opportunities to improve
8
health for everyone when we understand that health
9
starts, first, not in a medical setting, but in our
10
families, in our schools and workplaces, in our
11
neighborhoods, and in the air we breathe and water
12
we drink.
13
(2) The social determinants of health are the
14
largest predictors of health outcomes.
15
(3) Healthy People 2020 identifies health and
16
health care quality as a function of not only access
17
to health care, but also the social determinants of
18
health, categorized into the following: neighborhoods
19
and the built environment; social and community
20
context; education; and economic stability. The fol-
21
lowing examples illustrate the nexus between the un-
22
equal distribution of the social determinants of
23
health and health disparities:
24
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(A) The built environment influences resi-
1
dents’ level of physical activity. Neighborhoods
2
with high levels of poverty are significantly less
3
likely to have places where children can be
4
physically active, such as parks, green spaces,
5
and bike paths and lanes. Neighborhoods and
6
communities can provide opportunities for phys-
7
ical activity and support active lifestyles
8
through accessible and safe parks and open
9
spaces and through land use policy, zoning, and
10
healthy community design.
11
(B) Emotional and physical health and
12
well-being are directly impacted by perceived
13
levels of safety, such as unlit streets at night.
14
Community members have expressed that safety
15
is not only a barrier to accessing programs and
16
services that increase quality of life but they
17
are also not able to access physical activity in
18
their community through the built environment.
19
(C) In many workplace environments, toxic
20
chemicals have lasting detrimental effects on
21
employees’ health. The hazardous compounds
22
found in most nail salon products affect the
23
respiratory system, reproductive system, and
24
central nervous system, and also cause kidney
25
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and liver damage. Recognizing the importance
1
of addressing occupational hazards as a matter
2
of public health, especially for Asian-American
3
women who constitute 40 percent of nail salon
4
technicians—with Vietnamese-American women
5
accounting for 37 percent of this—the White
6
House Initiative on Asian American Pacific Is-
7
landers has created an interagency working
8
group to coordinate efforts by the Environ-
9
mental Protection Agency, Occupational and
10
Safety Health Administration, Food and Drug
11
Administration, and other Federal agencies to
12
create programming, draft regulations, and con-
13
duct more outreach on educating workers on
14
health and safety issues.
15
(D) Historical and institutional discrimina-
16
tion against certain racial groups in the United
17
States has shaped the way in which social and
18
economic resources and exposure to health pro-
19
moting environments are distributed. Income,
20
education, occupation, neighborhood conditions,
21
schools, workplaces, the use of and health and
22
social services, and experiences with the crimi-
23
nal justice system are all highly patterned by
24
race, with racial minorities (compared to
25
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Whites) experiencing more that is health harm-
1
ing. Finding ways to uncouple the link between
2
race and access to resources and healthy envi-
3
ronments is a principal means of reducing
4
health disparities. Additionally, the anticipation
5
of racism itself causes higher psychological and
6
cardiovascular stress levels that are linked to
7
poor health outcomes. Remedying discrimina-
8
tory practices at the individual and systemic
9
levels will likely reduce health disparities caused
10
by this unequal distribution of stress.
11
(E) Poor health among Native Americans
12
has largely been driven by post-colonial oppres-
13
sion and historical trauma. The expropriation of
14
native lands and territories to the American
15
state had severe consequences on Native Amer-
16
ican health. This resulted in the deprivation of
17
traditional food sources—and nutrients—for
18
Native Americans and also the destruction of
19
traditional economies and community organiza-
20
tion. Today, Native Americans have twice the
21
rate of diabetes than non-Hispanic Whites. Rec-
22
ognition of the origins of the diabetes as having
23
a social and community context, rather than
24
just individual responsibility and genetic pre-
25
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disposition, will shape better policy to provide
1
food security.
2
(F) In the context of prisons, overcrowding
3
has led to the deterioration of the physical and
4
mental health of individuals after they leave
5
prison. In particular, the mass incarceration of
6
African-American males as a result of unequal
7
contact with and treatment in the criminal jus-
8
tice system has contributed to an overburdening
9
of certain infectious diseases within the African-
10
American community. As a social institution,
11
incarceration amplifies existing adverse health
12
conditions by concentrating diseases and harm
13
health behaviors such as tobacco use, drug use,
14
and violence.
15
(G) Educational attainment is the strong-
16
est predictor of adult mortality. It is a basic
17
component of socioeconomic status by shaping
18
earning potential to access resources that pro-
19
mote health. People with more education are
20
less likely to report that they are in poor health,
21
and are also less likely to have diabetes and
22
other chronic diseases.
23
(H) Similarly, reading ability is a strong
24
predictor of adult health status and is often
25
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correlated with other child health issues, such
1
as developmental problems, vision and hearing
2
impairments, and frequent school absence due
3
to illness.
4
(I) Individuals with lower levels of edu-
5
cational attainment are much more likely to re-
6
port to be current smokers. In 2015, smoking
7
prevalence was 34.1 percent among adults with
8
a GED diploma, 24.2 percent with less than a
9
high school diploma, and 19.8 percent with a
10
high school diploma, while dropping signifi-
11
cantly to 7.4 percent among adults with an un-
12
dergraduate college degree and 3.6 percent with
13
a postgraduate college degree.
14
(J) Social class differences account for a
15
large part of health disparities. For example,
16
children living in poverty experience poorer
17
housing conditions, increased exposure to in-
18
door allergens and toxins (such as pesticides,
19
lead, mercury, radon, air pollution, and carcino-
20
gens), and more psychological stress. These ex-
21
periences culminate in worse adult health as
22
compared with children with higher socio-
23
economic status. Specifically, children living in
24
socioeconomic neighborhoods have higher rates
25
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of asthma due to higher rates of psychological
1
stress resulting from higher rates of violence.
2
(K) Lesbian, gay, bisexual, transgender,
3
queer, questioning, questioning and intersex
4
(LGBTQIA) individuals face health disparities
5
linked to societal stigma, discrimination, and
6
denial of their civil and human rights. Discrimi-
7
nation against LGBTQIA individuals has been
8
associated with high rates of psychiatric dis-
9
orders, substance abuse, and suicide. Experi-
10
ences of violence and victimization are frequent
11
for LGBTQIA individuals, and have long-last-
12
ing effects on the individual and the commu-
13
nity. Personal, family, and social acceptance of
14
sexual orientation and gender identity affects
15
the mental health and personal safety of
16
LGBTQIA individuals.
17
(L) Individuals in older and cheaper hous-
18
ing are at higher risks to be exposed to lead,
19
particularly in housing built prior to 1960. The
20
threat of lead poisoning disproportionally af-
21
fects vulnerable populations, with children living
22
in poverty (5.6 percent) and Black children
23
(5.6) experiencing the highest rates. According
24
to the Department of Housing and Urban De-
25
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velopment, about 3.6 million homes nationwide
1
that house young children have lead hazards
2
such as peeling paint, contaminated dust, or
3
toxic soil. The combined cost of medical treat-
4
ment and special education for lead poisoned
5
children averages about $5,600 per child per
6
year, and lead poisoning costs the United
7
States an estimated $50 billion annually.
8
(4) Laws and regulations that improve opportu-
9
nities to live in safe neighborhoods, with more social
10
cohesion, attain higher education, sustain stable em-
11
ployment, and bridge class differences help foster
12
the health and safety of individuals.
13
(5) The global public health community has
14
reached consensus through the Rio Political Declara-
15
tion of Social Determinants of Health that
16
‘‘[c]ollaboration in coordinated and intersectoral pol-
17
icy actions has proven to be effective. Health in All
18
Policies, together with intersectoral cooperation and
19
action, is one promising approach to enhance ac-
20
countability in other sectors of health, as well as the
21
promotion of health equity and more inclusive and
22
productive societies.’’.
23
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SEC. 1003. HEALTH IMPACT ASSESSMENTS.
1
(a) FINDINGS.—Congress makes the following find-
2
ings:
3
(1) Health Impact Assessment is a tool to help
4
planners, health officials, decisionmakers, and the
5
public make more informed decisions about the po-
6
tential health effects of proposed plans, policies, pro-
7
grams, and projects in order to maximize health
8
benefits and minimize harms.
9
(2) Health Impact Assessments can be done at
10
a fraction of the cost and time typically required for
11
other planning and permitting reviews.
12
(3) Health Impact Assessments can build com-
13
munity support and reduce opposition to a project or
14
policy, thereby facilitating economic growth by aid-
15
ing the development of consensus regarding new de-
16
velopment proposals.
17
(4) Health Impact Assessments facilitate col-
18
laboration across sectors.
19
(b) PURPOSES.—It is the purpose of this section to—
20
(1) provide more information about the poten-
21
tial human health effects of policy decisions and the
22
distribution of those effects;
23
(2) improve how health is considered in plan-
24
ning and decisionmaking processes; and
25
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(3)
build
stronger,
healthier
communities
1
through the use of Health Impact Assessment.
2
(c) HEALTH IMPACT ASSESSMENTS.—Part P of title
3
III of the Public Health Service Act (42 U.S.C. 280g et
4
seq.), as amended, is further amended by adding at the
5
end the following:
6
‘‘SEC. 399V–12. HEALTH IMPACT ASSESSMENTS.
7
‘‘(a) DEFINITIONS.—In this section and section
8
399V–13:
9
‘‘(1) ADMINISTRATOR.—The term ‘Adminis-
10
trator’ means the Administrator of the Environ-
11
mental Protection Agency.
12
‘‘(2) BUILT
ENVIRONMENT.—The term ‘built
13
environment’ means the components of the environ-
14
ment, and the location of these components in a geo-
15
graphically defined space, that are created or modi-
16
fied by individuals to form the physical and social
17
characteristics of a community or enhance quality of
18
human life, including—
19
‘‘(A) homes, schools, and places of work
20
and worship;
21
‘‘(B) parks, recreation areas, and green-
22
ways;
23
‘‘(C) transportation systems;
24
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‘‘(D) business, industry, and agriculture;
1
and
2
‘‘(E) land-use plans, projects, and policies
3
that impact the physical or social characteris-
4
tics of a community, including access to services
5
and amenities.
6
‘‘(3) DIRECTOR.—The term ‘Director’ means
7
the Director of the Centers for Disease Control and
8
Prevention.
9
‘‘(4) ELIGIBLE ENTITY.—The term ‘eligible en-
10
tity’ means a unit of State or Tribal government the
11
jurisdiction of which includes individuals or popu-
12
lations the health of which are, or will be, affected
13
by an activity or a proposed activity.
14
‘‘(5) ELIGIBLE INSTITUTION.—The term ‘eligi-
15
ble institution’ means a public agency or private
16
nonprofit institution that submits to the Secretary,
17
in consultation with the Administrator, an applica-
18
tion for a grant authorized under such section at
19
such time, in such manner, and containing such
20
agreements, assurances, and information as the Sec-
21
retary and Administrator may require.
22
‘‘(6) HEALTH IMPACT ASSESSMENT.—The term
23
‘Health Impact Assessment’ means a systematic
24
process that uses an array of data sources and ana-
25
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lytic methods and considers input from stakeholders
1
to determine the potential effects of a proposed pol-
2
icy, plan, program, or project on the health of a pop-
3
ulation and the distribution of those effects within
4
the population. Such term includes identifying and
5
recommending appropriate actions on monitoring
6
and maximizing potential benefits and minimizing
7
the potential harms.
8
‘‘(7) HEALTH DISPARITIES.—The term ‘health
9
disparities’ are a particular type of health dif-
10
ferences that are closely linked with social, economic,
11
and/or environmental disadvantage. Health dispari-
12
ties adversely affect groups of people who have sys-
13
tematically experienced greater obstacles to health
14
based on their racial or ethnic group; religion; socio-
15
economic status; gender; age; mental health; cog-
16
nitive, sensory, or physical disability; sexual orienta-
17
tion or gender identity; geographic location; or other
18
characteristics historically linked to discrimination
19
or exclusion.
20
‘‘(8) PROPOSED ACTIVITY.—The term ‘proposed
21
activity’ means a proposed policy, program, plan, or
22
project currently under consideration by a local,
23
State, Tribal, or Federal agency or government.
24
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‘‘(b)
ESTABLISHMENT.—The
Secretary,
acting
1
through the Director and in collaboration with the Admin-
2
istrator, shall carry out the following:
3
‘‘(1) Establish a program at the National Cen-
4
ter for Environmental Health at the Centers for Dis-
5
ease Control and Prevention focused on advancing
6
the field of Health Impact Assessment. In devel-
7
oping and implementing the program, the Director
8
of the National Center for Environmental Health
9
shall consult with the Director of the National Cen-
10
ter for Chronic Disease Prevention and Health Pro-
11
motion as well as relevant offices within the Depart-
12
ment of Housing and Urban Development, the De-
13
partment of Transportation, and the Department of
14
Agriculture. The program shall include—
15
‘‘(A) collecting and disseminating best
16
practices;
17
‘‘(B)
administering
capacity
building
18
grants to States to support grantees in initi-
19
ating Health Impact Assessments, in accord-
20
ance with subsection (d);
21
‘‘(C) providing technical assistance;
22
‘‘(D) developing training tools and pro-
23
viding training on conducting Health Impact
24
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Assessment and the implementation of built en-
1
vironment and health indicators;
2
‘‘(E) making information available, as ap-
3
propriate, regarding the existence of other com-
4
munity healthy living tools, checklists, and indi-
5
ces that help connect public health to other sec-
6
tors, and tools to help examine the effect of the
7
indoor built environment and building codes on
8
population health;
9
‘‘(F) conducting research and evaluations
10
of Health Impact Assessments; and
11
‘‘(G) awarding competitive extramural re-
12
search grants.
13
‘‘(2) In accordance with subsection (c), develop
14
guidance and guidelines to conduct Health Impact
15
Assessments.
16
‘‘(3) In accordance with subsection (d), estab-
17
lish a grant program to allow States to fund eligible
18
entities to conduct Health Impact Assessments.
19
‘‘(c) GUIDANCE.—The Director, in consultation with
20
the Director of the National Center for Environmental
21
Health and, the Director of the National Center for
22
Chronic Disease Prevention and Health Promotion, and
23
relevant offices within the Department of Housing and
24
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Urban Development, the Department of Transportation,
1
and the Department of Agriculture, shall—
2
‘‘(1) develop guidance for conducting Health
3
Impact Assessment, including—
4
‘‘(A) background on national and inter-
5
national efforts to bridge urban planning and
6
public health institutions and disciplines, in-
7
cluding a review of Health Impact Assessment
8
best practices internationally;
9
‘‘(B) evidence-based direct and indirect
10
pathways that link land-use planning, transpor-
11
tation, and housing policy and objectives to
12
human health outcomes;
13
‘‘(C) data resources and quantitative and
14
qualitative forecasting methods to evaluate both
15
the status of health determinants and health ef-
16
fects, including identification of existing pro-
17
grams that can disseminate these resources;
18
‘‘(D) best practices for inclusive public in-
19
volvement in conducting Health Impact Assess-
20
ments; and
21
‘‘(E) technical assistance for other agen-
22
cies seeking to develop their own guidelines and
23
procedures for Health Impact Assessment;
24
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‘‘(2) in developing the guidance, consider avail-
1
able international Health Impact Assessment guid-
2
ance, North American Health Impact Assessment
3
Practice Standards, and recommendations from the
4
National Academy of Science; and
5
‘‘(3) not later than 1 year after the date of en-
6
actment of this section, publish the guidance.
7
‘‘(d) GRANT
PROGRAM.—The Secretary, acting
8
through the Director and in collaboration with the Admin-
9
istrator, shall establish a program under which the Sec-
10
retary shall award grants to States to fund eligible entities
11
for capacity building or to prepare Health Impact Assess-
12
ments, and shall ensure that States receiving a grant
13
under this subsection further support training and tech-
14
nical assistance for grantees under the program by fund-
15
ing and overseeing appropriate local, State, Tribal, Fed-
16
eral, university, or nonprofit Health Impact Assessment
17
experts to provide technical assistance. Such assessments
18
shall—
19
‘‘(1) ensure that appropriate health factors are
20
taken into consideration as early as practicable dur-
21
ing the planning, review, or decisionmaking proc-
22
esses;
23
‘‘(2) assess the effect on the health of individ-
24
uals and populations of proposed policies, projects,
25
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or plans that result in modifications to the built en-
1
vironment; and
2
‘‘(3) assess the distribution of health effects
3
across various factors, such as race, income, eth-
4
nicity, age, disability status, gender, and geography.
5
‘‘(e) APPLICATIONS.—
6
‘‘(1) IN GENERAL.—To be eligible to receive a
7
grant under this section, an eligible entity shall sub-
8
mit to the Secretary an application in accordance
9
with this subsection, at such time, in such manner,
10
and containing such additional information as the
11
Secretary may require.
12
‘‘(2) INCLUSION.—An application under this
13
subsection shall include a list of proposed activities
14
that require or would benefit from conducting a
15
Health Impact Assessment within six months of
16
awarding funds. The list should be accompanied by
17
supporting documentation, including letters of sup-
18
port, from potential conductors of Health Impact
19
Assessments for the listed proposed activities. Each
20
application should also include an assessment by the
21
eligible entity of the health of the population of its
22
jurisdiction and describe potential adverse or positive
23
effects on health that the proposed activities may
24
create.
25
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‘‘(3) PREFERENCE.—Preference in awarding
1
funds under this section may be given to eligible en-
2
tities that demonstrate the potential to significantly
3
improve population health or lower health care costs
4
as a result of potential Health Impact Assessment
5
work.
6
‘‘(f) USE OF FUNDS.—
7
‘‘(1) IN GENERAL.—An eligible entity shall use
8
amounts provided under a grant under this section
9
to conduct Health Impact Assessment capacity
10
building or to conduct or fund subgrantees to con-
11
duct a Health Impact Assessment for a proposed ac-
12
tivity in accordance with this subsection.
13
‘‘(2) PURPOSES.—The purposes of a Health
14
Impact Assessment under this subsection are—
15
‘‘(A) to facilitate the involvement of Tribal,
16
State, and local public health officials in com-
17
munity planning, transportation, housing, and
18
land use decisions and other decisions affecting
19
the built environment to identify any potential
20
health concern or health benefit relating to an
21
activity or proposed activity;
22
‘‘(B) to provide for an investigation of any
23
health-related issue of concern raised in a plan-
24
ning process, an environmental impact assess-
25
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ment process, or policy appraisal relating to a
1
proposed activity;
2
‘‘(C) to describe and compare alternatives
3
(including no-action alternatives) to a proposed
4
activity to provide clarification with respect to
5
the potential health outcomes associated with
6
the proposed activity and, where appropriate, to
7
the related benefit-cost or cost-effectiveness of
8
the proposed activity and alternatives;
9
‘‘(D) to contribute, when applicable, to the
10
findings of a planning process, policy appraisal,
11
or an environmental impact statement with re-
12
spect to the terms and conditions of imple-
13
menting a proposed activity or related mitiga-
14
tion recommendations, as necessary;
15
‘‘(E) to ensure that the disproportionate
16
distribution of negative impacts among vulner-
17
able populations is minimized as much as pos-
18
sible;
19
‘‘(F) to engage affected community mem-
20
bers and ensure adequate opportunity for public
21
comment on all stages of the Health Impact As-
22
sessment;
23
‘‘(G) where appropriate, to consult with
24
local and county health departments and appro-
25
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priate organizations, including planning, trans-
1
portation, and housing organizations and pro-
2
viding them with information and tools regard-
3
ing how to conduct and integrate Health Im-
4
pact Assessment into their work; and
5
‘‘(H) to inspect homes, water systems, and
6
other elements that pose risks to lead exposure,
7
with an emphasis on areas that pose a higher
8
risk to children.
9
‘‘(3) ELIGIBLE ACTIVITIES.—
10
‘‘(A) IN GENERAL.—Eligible entities fund-
11
ed under this subsection shall conduct an eval-
12
uation of any proposed activity to determine
13
whether it will have a significant adverse or
14
positive effect on the health of the affected pop-
15
ulation in the jurisdiction of the eligible entity,
16
based on the criteria described in subparagraph
17
(B).
18
‘‘(B) CRITERIA.—The criteria described in
19
this subparagraph include, as applicable to the
20
proposed activity, the following:
21
‘‘(i) Any substantial adverse effect or
22
significant health benefit on health out-
23
comes or factors known to influence health,
24
including the following:
25
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‘‘(I) Physical activity.
1
‘‘(II) Injury.
2
‘‘(III) Mental health.
3
‘‘(IV) Accessibility to health-pro-
4
moting goods and services.
5
‘‘(V) Respiratory health.
6
‘‘(VI) Chronic disease.
7
‘‘(VII) Nutrition.
8
‘‘(VIII) Land use changes that
9
promote
local,
sustainable
food
10
sources.
11
‘‘(IX) Infectious disease.
12
‘‘(X) Health disparities.
13
‘‘(XI)
Existing
air
quality,
14
ground or surface water quality or
15
quantity, or noise levels.
16
‘‘(XII) Lead exposure.
17
‘‘(ii) Other factors that may be con-
18
sidered, including—
19
‘‘(I) the potential for a proposed
20
activity to result in systems failure
21
that leads to a public health emer-
22
gency;
23
‘‘(II) the probability that the pro-
24
posed activity will result in a signifi-
25
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cant increase in tourism, economic de-
1
velopment, or employment in the ju-
2
risdiction of the eligible entity;
3
‘‘(III) any other significant po-
4
tential hazard or enhancement to
5
human health, as determined by the
6
eligible entity; or
7
‘‘(IV) whether the evaluation of a
8
proposed activity would duplicate an-
9
other analysis or study being under-
10
taken in conjunction with the pro-
11
posed activity.
12
‘‘(C) FACTORS FOR CONSIDERATION.—In
13
evaluating a proposed activity under subpara-
14
graph (A), an eligible entity may take into con-
15
sideration any reasonable, direct, indirect, or
16
cumulative effect that can be clearly related to
17
potential health effects and that is related to
18
the proposed activity, including the effect of
19
any action that is—
20
‘‘(i) included in the long-range plan
21
relating to the proposed activity;
22
‘‘(ii) likely to be carried out in coordi-
23
nation with the proposed activity;
24
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‘‘(iii) dependent on the occurrence of
1
the proposed activity; or
2
‘‘(iv) likely to have a disproportionate
3
impact on high-risk or vulnerable popu-
4
lations.
5
‘‘(4) REQUIREMENTS.—A Health Impact As-
6
sessment prepared with funds awarded under this
7
subsection shall incorporate the following, after con-
8
ducting the screening phase (identifying projects or
9
policies for which a Health Impact Assessment
10
would be valuable and feasible) through the applica-
11
tion process:
12
‘‘(A) SCOPING.—Identifying which health
13
effects to consider and the research methods to
14
be utilized.
15
‘‘(B) ASSESSING RISKS AND BENEFITS.—
16
Assessing the baseline health status and factors
17
known to influence the health status in the af-
18
fected community, which may include aggre-
19
gating and synthesizing existing health assess-
20
ment evidence and data from the community.
21
‘‘(C) DEVELOPING RECOMMENDATIONS.—
22
Suggesting changes to proposals to promote
23
positive or mitigate adverse health effects.
24
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‘‘(D) REPORTING.—Synthesizing the as-
1
sessment and recommendations and commu-
2
nicating the results to decisionmakers.
3
‘‘(E) MONITORING
AND
EVALUATING.—
4
Tracking the decision and implementation effect
5
on health determinants and health status.
6
‘‘(5) PLAN.—An eligible entity that is awarded
7
a grant under this section shall develop and imple-
8
ment a plan, to be approved by the Director, for
9
meaningful and inclusive stakeholder involvement in
10
all phases of the Health Impact Assessment. Stake-
11
holders may include community-based organizations,
12
youth-serving organizations, planners, public health
13
experts, State and local public health departments
14
and officials, health care experts or officials, housing
15
experts or officials, and transportation experts or of-
16
ficials.
17
‘‘(6) SUBMISSION
OF
FINDINGS.—An eligible
18
entity that is awarded a grant under this section
19
shall submit the findings of any funded Health Im-
20
pact Assessment activities to the Secretary and
21
make these findings publicly available.
22
‘‘(7) ASSESSMENT OF IMPACTS.—An eligible en-
23
tity that is awarded a grant under this section shall
24
ensure the assessment of the distribution of health
25
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impacts (related to the proposed activity) across
1
race, ethnicity, income, age, gender, disability status,
2
and geography.
3
‘‘(8) CONDUCT OF ASSESSMENT.—To the great-
4
est extent feasible, a Health Impact Assessment
5
shall be conducted under this section in a manner
6
that respects the needs and timing of the decision-
7
making process it evaluates.
8
‘‘(9) METHODOLOGY.—In preparing a Health
9
Impact Assessment under this subsection, an eligible
10
entity or partner shall follow the guidance published
11
under subsection (c).
12
‘‘(g) HEALTH IMPACT ASSESSMENT DATABASE.—
13
The Secretary, acting through the Director and in collabo-
14
ration with the Administrator, shall establish, maintain,
15
and make publicly available a Health Impact Assessment
16
database, including—
17
‘‘(1) a catalog of Health Impact Assessments
18
received under this section;
19
‘‘(2) an inventory of tools used by eligible enti-
20
ties to conduct Health Impact Assessments; and
21
‘‘(3) guidance for eligible entities with respect
22
to the selection of appropriate tools described in
23
paragraph (2).
24
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‘‘(h) EVALUATION OF GRANTEE ACTIVITIES.—The
1
Secretary shall award competitive grants to Prevention
2
Research Centers, or nonprofit organizations or academic
3
institutions with expertise in Health Impact Assessments
4
to—
5
‘‘(1) assist grantees with the provision of train-
6
ing and technical assistance in the conducting of
7
Health Impact Assessments;
8
‘‘(2) evaluate the activities carried out with
9
grants under subsection (d); and
10
‘‘(3) assist the Secretary in disseminating evi-
11
dence, best practices, and lessons learned from
12
grantees.
13
‘‘(i) REPORT TO CONGRESS.—Not later than 1 year
14
after the date of enactment of this section, the Secretary
15
shall submit to Congress a report concerning the evalua-
16
tion of the programs under this section, including rec-
17
ommendations as to how lessons learned from such pro-
18
grams can be incorporated into future guidance docu-
19
ments developed and provided by the Secretary and other
20
Federal agencies, as appropriate.
21
‘‘(j) AUTHORIZATION OF APPROPRIATIONS.—There
22
are authorized to be appropriated to carry out this section
23
such sums as may be necessary.
24
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‘‘SEC. 399V–13. IMPLEMENTATION OF RESEARCH FINDINGS
1
TO IMPROVE HEALTH OUTCOMES THROUGH
2
THE BUILT ENVIRONMENT.
3
‘‘(a) RESEARCH GRANT PROGRAM.—
4
‘‘(1) GRANTS.—The Secretary, in collaboration
5
with the Administrator, shall award grants to eligi-
6
ble institutions to implement evidence-based pro-
7
gramming to improve the built environment and sub-
8
sequently human health. Factors that influence
9
health that may be considered include—
10
‘‘(A) levels of physical activity;
11
‘‘(B) consumption of nutritional foods;
12
‘‘(C) rates of crime;
13
‘‘(D) air, water, and soil quality;
14
‘‘(E) risk or rate of injury;
15
‘‘(F)
accessibility
to
health-promoting
16
goods and services;
17
‘‘(G) chronic disease rates;
18
‘‘(H) community design;
19
‘‘(I) housing; and
20
‘‘(J) other indicators as determined appro-
21
priate by the Secretary.
22
‘‘(2) RESEARCH.—The Secretary, in consulta-
23
tion with the Administrator, shall support research
24
under this section that—
25
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‘‘(A) uses evidence-based research to im-
1
prove the built environment and human health;
2
‘‘(B) examines—
3
‘‘(i) the scope and intensity of the im-
4
pact that the built environment (including
5
the various characteristics of the built en-
6
vironment) has on the human health; or
7
‘‘(ii) the distribution of such impacts
8
by—
9
‘‘(I) location; and
10
‘‘(II) population subgroup;
11
‘‘(C) is used to develop—
12
‘‘(i) measures and indicators to ad-
13
dress health impacts and the connection of
14
health to the built environment;
15
‘‘(ii) efforts to link the measures to
16
transportation, land use, and health data-
17
bases; and
18
‘‘(iii) efforts to enhance the collection
19
of built environment surveillance data;
20
‘‘(D) distinguishes carefully between per-
21
sonal attitudes and choices and external influ-
22
ences on behavior to determine how much the
23
association between the built environment and
24
the health of residents, versus the lifestyle pref-
25
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erences of the people that choose to live in the
1
neighborhood, reflects the physical characteris-
2
tics of the neighborhood; and
3
‘‘(E)(i) identifies or develops effective
4
intervention strategies focusing on enhance-
5
ments to the built environment that promote in-
6
creased use physical activity, access to nutri-
7
tious foods, or other health-promoting activities
8
by residents; and
9
‘‘(ii) in developing the intervention strate-
10
gies under clause (i), ensures that the interven-
11
tion strategies will reach out to high-risk or vul-
12
nerable populations, including low-income urban
13
and rural communities and aging populations,
14
in addition to the general population.
15
‘‘(3) SURVEYS.—The Secretary may use funds
16
appropriated under this section to support the ex-
17
pansion of national surveys and data tracking sys-
18
tems to provide more detailed information about the
19
connection between the built environment and
20
health.
21
‘‘(4) PRIORITY.—In providing assistance under
22
the grant program under this section, the Secretary
23
and the Administrator shall give priority to pro-
24
gramming that incorporates—
25
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‘‘(A) interdisciplinary approaches; or
1
‘‘(B) the expertise of the public health,
2
physical activity, urban planning, land use, and
3
transportation research communities in the
4
United States and abroad.
5
‘‘(b) AUTHORIZATION OF APPROPRIATIONS.—There
6
are authorized to be appropriated such sums as may be
7
necessary to carry out this section. Not to exceed 20 per-
8
cent of amounts appropriated for each fiscal year under
9
this subsection may be used for the research component
10
of the program under this section.’’.
11
SEC. 1004. IMPLEMENTATION OF RECOMMENDATIONS BY
12
ENVIRONMENTAL PROTECTION AGENCY.
13
(a) INSPECTOR GENERAL RECOMMENDATIONS.—The
14
Administrator of the Environmental Protection Agency
15
shall, as promptly as practicable, carry out each of the
16
following recommendations of the Inspector General of the
17
Agency as set forth in Report No. 2006–P–00034 entitled
18
‘‘EPA needs to conduct environmental justice reviews of
19
its programs, policies and activities’’:
20
(1) The recommendation that the Agency’s pro-
21
gram and regional offices identify which programs,
22
policies, and activities need environmental justice re-
23
views and require these offices to establish a plan to
24
complete the necessary reviews.
25
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(2) The recommendation that the Administrator
1
of the Agency ensure that these reviews determine
2
whether the programs, policies, and activities may
3
have a disproportionately high and adverse health or
4
environmental impact on minority and low-income
5
populations.
6
(3) The recommendation that each program
7
and regional office develop specific environmental
8
justice review guidance for conducting environmental
9
justice reviews.
10
(4) The recommendation that the Administrator
11
designate a responsible office to compile results of
12
environmental justice reviews and recommend appro-
13
priate actions.
14
(b) GAO RECOMMENDATIONS.—In developing rules
15
under laws administered by the Environmental Protection
16
Agency, the Administrator of the Agency shall, as prompt-
17
ly as practicable, carry out each of the following rec-
18
ommendations of the Comptroller General of the United
19
States as set forth in GAO Report numbered GAO–05–
20
289 entitled ‘‘EPA Should Devote More Attention to En-
21
vironmental Justice when Developing Clean Air Rules’’:
22
(1) The recommendation that the Administrator
23
ensure that workgroups involved in developing a rule
24
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devote attention to environmental justice while draft-
1
ing and finalizing the rule.
2
(2) The recommendation that the Administrator
3
enhance the ability of such workgroups to identify
4
potential environmental justice issues through such
5
steps as providing workgroup members with guid-
6
ance and training to help them identify potential en-
7
vironmental justice problems and involving environ-
8
mental justice coordinators in the workgroups when
9
appropriate.
10
(3) The recommendation that the Administrator
11
improve assessments of potential environmental jus-
12
tice impacts in economic reviews by identifying the
13
data and developing the modeling techniques needed
14
to assess such impacts.
15
(4) The recommendation that the Administrator
16
direct appropriate Agency officers and employees to
17
respond fully when feasible to public comments on
18
environmental justice, including improving the Agen-
19
cy’s explanation of the basis for its conclusions, to-
20
gether with supporting data.
21
(c) 2004 INSPECTOR GENERAL REPORT.—The Ad-
22
ministrator of the Environmental Protection Agency shall,
23
as promptly as practicable, carry out each of the following
24
recommendations of the Inspector General of the Agency
25
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as set forth in the report entitled ‘‘EPA Needs to Consist-
1
ently Implement the Intent of the Executive Order on En-
2
vironmental Justice’’ (Report No. 2004–P–00007):
3
(1) The recommendation that the Agency clear-
4
ly define the mission of the Office of Environmental
5
Justice (OEJ) and provide Agency staff with an un-
6
derstanding of the roles and responsibilities of the
7
Office.
8
(2) The recommendation that the Agency estab-
9
lish (through issuing guidance or a policy statement
10
from the Administrator) specific timeframes for the
11
development of definitions, goals, and measurements
12
regarding environmental justice and provide the re-
13
gions and program offices a standard and consistent
14
definition for a minority and low-income community,
15
with instructions on how the Agency will implement
16
and put into operation environmental justice in the
17
Agency’s daily activities.
18
(3) The recommendation that the Agency en-
19
sure the comprehensive training program currently
20
under development includes standard and consistent
21
definitions of the key environmental justice concepts
22
(such as ‘‘low-income’’, ‘‘minority’’, and ‘‘dispropor-
23
tionately impacted’’) and instructions for implemen-
24
tation of those concepts.
25
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The Administrator shall submit an initial report to Con-
1
gress within 6 months after the enactment of this Act re-
2
garding the Administrator’s strategy for implementing the
3
recommendations referred to in paragraphs (1), (2), and
4
(3). Thereafter, the Administrator shall provide semi-
5
annual reports to Congress regarding the Administrator’s
6
progress in implementing such recommendations and
7
modifying the Administrator’s emergency management
8
procedures to incorporate environmental justice in the
9
Agency’s Incident Command Structure (in accordance
10
with the December 18, 2006, letter from the Deputy Ad-
11
ministrator to the Acting Inspector General of the Agen-
12
cy).
13
(d) FEDERAL ACTION PLAN
FOR SAVING LIVES,
14
PROTECTING
PEOPLE
AND
THEIR
FAMILIES
FROM
15
RADON.—
16
(1) IN GENERAL.—Because radon is a naturally
17
occurring radioactive gas that is recognized as the
18
leading cause of lung cancer among nonsmokers and
19
is a particular environmental threat for low-income
20
and minority individuals because of the lack of infor-
21
mation about radon levels in their own homes, the
22
Administrator of the Environmental Protection
23
Agency shall within 6 months after the date of the
24
enactment of this Act, implement the action plan en-
25
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titled ‘‘Protecting People and Families from Radon:
1
A Federal Action Plan for Saving Lives’’ (June 20,
2
2011), working with the Secretary of Health and
3
Human Services acting through the Director of the
4
Centers for Disease Control and Prevention, and
5
with the other Federal agencies mentioned in and as
6
set forth in the action plan.
7
(2) SPECIFIC
STEPS.—In carrying out para-
8
graph (1), the Administrator shall take steps to
9
achieve each of the following:
10
(A)
The
recommendation
that
the
11
workgroup comprised of the Federal agencies
12
participating in the development of the action
13
plan referred to in paragraph (1) implement
14
specific steps within the current authority and
15
activities of each Federal agency to reduce ex-
16
posure to radon.
17
(B)
The
recommendation
that
such
18
workgroup meet on the 1-year anniversary of
19
the plan to assess and recognize achievements
20
of the plan.
21
(3) REPORT.—The Administrator shall report
22
to the Congress on the 1-year assessment of the
23
plan’s implementation, including the challenges re-
24
maining and the progress in reducing radon expo-
25
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sure particularly to low-income and minority fami-
1
lies.
2
(e) FEDERAL
ACTION
PLAN
FOR
PREVENTING
3
CHILDHOOD LEAD POISONING.—
4
(1) FINDINGS.—The Congress finds the fol-
5
lowing:
6
(A) The effects of lead poisoning are irre-
7
versible and cost the United States millions an-
8
nually in medical and education costs.
9
(B) The cognitive effects suffered by lead
10
exposed children result in a lifetime of health
11
and behavioral problems, which makes preven-
12
tion efforts more critical.
13
(C) The risk is especially high for vulner-
14
able minority populations who are more likely
15
to live in older homes, where lead-based paint
16
is more likely to be present.
17
(2) ACTION PLAN.—The Administrator of the
18
Environmental Protection Agency shall, not later
19
than 6 months after the date of the enactment of
20
this Act, develop an action plan, working with the
21
Secretary of Health and Human Services acting
22
through the Director of the Centers for Disease
23
Control and Prevention, and other Federal agencies
24
as necessary.
25
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(3) SPECIFIC
STEPS.—In carrying out para-
1
graph (2), the Administrator of the Environmental
2
Protection Agency shall take steps to achieve each of
3
the following:
4
(A) The establishment of a working group,
5
comprised of representatives of the Federal
6
agencies participating in the development of the
7
action plan referred to in paragraph (2), to
8
make recommendations for implementation of
9
specific steps within the existing authority and
10
activities of each Federal agency to reduce ex-
11
posure to lead.
12
(B) The development by Federal agencies
13
of materials on the hazards of lead-based paint
14
aimed at educating tenants and landlords, and
15
how to both recognize potential causes for expo-
16
sure and how to remediate them.
17
SEC. 1005. GRANT PROGRAM TO CONDUCT ENVIRON-
18
MENTAL HEALTH IMPROVEMENT ACTIVITIES
19
AND TO IMPROVE SOCIAL DETERMINANTS OF
20
HEALTH.
21
(a) DEFINITIONS.—In this section:
22
(1) DIRECTOR.—The term ‘‘Director’’ means
23
the Director of the Centers for Disease Control and
24
Prevention, acting in collaboration with the Adminis-
25
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trator of the Environmental Protection Agency and
1
the Director of the National Institute of Environ-
2
mental Health Sciences.
3
(2) ELIGIBLE ENTITY.—The term ‘‘eligible enti-
4
ty’’ means a State or local community that—
5
(A) bears a disproportionate burden of ex-
6
posure to environmental health hazards;
7
(B) bears a disproportionate burden of ex-
8
posure to unhealthy living conditions, low
9
standard housing conditions, low socioeconomic
10
status, poor nutrition, less opportunity for edu-
11
cational attainment, disproportionate unemploy-
12
ment rates, or lower literacy levels;
13
(C) has established a coalition—
14
(i) with not less than 1 community-
15
based organization or demonstration pro-
16
gram; and
17
(ii) with not less than 1—
18
(I) public health entity;
19
(II) health care provider organi-
20
zation;
21
(III) academic institution, includ-
22
ing any minority-serving institution
23
(including a Hispanic-serving institu-
24
tion, a historically Black college or
25
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university, and a Tribal college or uni-
1
versity);
2
(IV) child-serving institution; or
3
(V) landlord or housing provider
4
working on lead remediation;
5
(D) ensures planned activities and funding
6
streams are coordinated to improve community
7
health; and
8
(E) submits an application in accordance
9
with subsection (c).
10
(b) ESTABLISHMENT.—The Director shall establish a
11
grant program under which eligible entities shall receive
12
grants to conduct environmental health improvement ac-
13
tivities and to improve social determinants of health.
14
(c) APPLICATION.—To receive a grant under this sec-
15
tion, an eligible entity shall submit an application to the
16
Director at such time, in such manner, and accompanied
17
by such information as the Director may require.
18
(d) COOPERATIVE AGREEMENTS.—An eligible entity
19
may use a grant under this section—
20
(1) to promote environmental health;
21
(2) to address environmental health disparities
22
among all populations, including children; and
23
(3) to address racial and ethnic disparities in
24
social determinants of health.
25
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(e) AMOUNT OF COOPERATIVE AGREEMENT.—
1
(1) IN
GENERAL.—The Director shall award
2
grants to eligible entities at the 3 different funding
3
levels described in this subsection.
4
(2) LEVEL 1 COOPERATIVE AGREEMENTS.—
5
(A) IN
GENERAL.—An eligible entity
6
awarded a grant under this paragraph shall use
7
the funds to identify environmental health prob-
8
lems and solutions by—
9
(i)
establishing
a
planning
and
10
prioritizing council in accordance with sub-
11
paragraph (B); and
12
(ii)
conducting
an
environmental
13
health assessment in accordance with sub-
14
paragraph (C).
15
(B) PLANNING AND PRIORITIZING COUN-
16
CIL.—
17
(i) IN GENERAL.—A prioritizing and
18
planning council established under sub-
19
paragraph (A)(i) (referred to in this para-
20
graph as a ‘‘PPC’’) shall assist the envi-
21
ronmental health assessment process and
22
environmental health promotion activities
23
of the eligible entity.
24
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(ii) MEMBERSHIP.—Membership of a
1
PPC shall consist of representatives from
2
various organizations within public health,
3
planning, development, and environmental
4
services and shall include stakeholders
5
from vulnerable groups such as children,
6
the elderly, disabled, and minority ethnic
7
groups that are often not actively involved
8
in democratic or decisionmaking processes.
9
(iii) DUTIES.—A PPC shall—
10
(I) identify key stakeholders and
11
engage and coordinate potential part-
12
ners in the planning process;
13
(II) establish a formal advisory
14
group to plan for the establishment of
15
services;
16
(III) conduct an in-depth review
17
of the nature and extent of the need
18
for an environmental health assess-
19
ment, including a local epidemiological
20
profile, an evaluation of the service
21
provider capacity of the community,
22
and a profile of any target popu-
23
lations; and
24
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(IV) define the components of
1
care and form essential programmatic
2
linkages with related providers in the
3
community.
4
(C) ENVIRONMENTAL
HEALTH
ASSESS-
5
MENT.—
6
(i) IN GENERAL.—A PPC shall carry
7
out an environmental health assessment to
8
identify environmental health concerns.
9
(ii)
ASSESSMENT
PROCESS.—The
10
PPC shall—
11
(I) define the goals of the assess-
12
ment;
13
(II) generate the environmental
14
health issue list;
15
(III) analyze issues with a sys-
16
tems framework;
17
(IV) develop appropriate commu-
18
nity environmental health indicators;
19
(V)
rank
the
environmental
20
health issues;
21
(VI) set priorities for action;
22
(VII) develop an action plan;
23
(VIII) implement the plan; and
24
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(IX) evaluate progress and plan-
1
ning for the future.
2
(D) EVALUATION.—Each eligible entity
3
that receives a grant under this paragraph shall
4
evaluate, report, and disseminate program find-
5
ings and outcomes.
6
(E) TECHNICAL ASSISTANCE.—The Direc-
7
tor may provide such technical and other non-
8
financial assistance to eligible entities as the
9
Director determines to be necessary.
10
(3) LEVEL 2 COOPERATIVE AGREEMENTS.—
11
(A) ELIGIBILITY.—
12
(i) IN GENERAL.—The Director shall
13
award grants under this paragraph to eli-
14
gible entities that have already—
15
(I) established broad-based col-
16
laborative partnerships; and
17
(II) completed environmental as-
18
sessments.
19
(ii) NO LEVEL 1 REQUIREMENT.—To
20
be eligible to receive a grant under this
21
paragraph, an eligible entity is not re-
22
quired to have successfully completed a
23
Level 1 Cooperative Agreement (as de-
24
scribed in paragraph (2)).
25
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(B) USE OF GRANT FUNDS.—An eligible
1
entity awarded a grant under this paragraph
2
shall use the funds to further activities to carry
3
out environmental health improvement activi-
4
ties, including—
5
(i) addressing community environ-
6
mental health priorities in accordance with
7
paragraph (2)(C)(ii), including—
8
(I) geography;
9
(II) the built environment;
10
(III) air quality;
11
(IV) water quality;
12
(V) land use;
13
(VI) solid waste;
14
(VII) housing;
15
(VIII) crime;
16
(IX) socioeconomic status;
17
(X) ethnicity, social construct
18
and language preference;
19
(XI) educational attainment;
20
(XII) employment;
21
(XIII) food safety;
22
(XIV) nutrition;
23
(XV) health care services; and
24
(XVI) injuries;
25
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(ii) building partnerships between
1
planning, public health, and other sectors,
2
including child-serving institutions, to ad-
3
dress how the built environment impacts
4
food availability and access and physical
5
activity to promote healthy behaviors and
6
lifestyles and reduce overweight and obe-
7
sity, musculoskeletal diseases, respiratory
8
conditions, dental, oral and mental health
9
conditions,
poverty,
and
related
co-
10
morbidities;
11
(iii) establishing programs to ad-
12
dress—
13
(I) how environmental and social
14
conditions of work and living choices
15
influence physical activity and dietary
16
intake; or
17
(II) how those conditions influ-
18
ence the concerns and needs of people
19
who have impaired mobility and use
20
assistance devices, including wheel-
21
chairs, lower limb prostheses, and hip,
22
knee, and other joint replacements;
23
and
24
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(iv) convening intervention and dem-
1
onstration programs that examine the role
2
of the social environment in connection
3
with the physical and chemical environ-
4
ment in—
5
(I) determining access to nutri-
6
tional food;
7
(II) improving physical activity to
8
reduce overweight, obesity, and co-
9
morbidities and increase quality of
10
life; and
11
(III) location and access to med-
12
ical facilities.
13
(4) LEVEL 3 COOPERATIVE AGREEMENTS.—
14
(A) IN
GENERAL.—An eligible entity
15
awarded a grant under this paragraph shall use
16
the funds to identify and address racial and
17
ethnic disparities in social determinants of
18
health by creating demonstration programs that
19
assess the feasibility of establishing a federally
20
funded comprehensive program and describe
21
key outcomes that address racial and ethnic dis-
22
parities in social determinants of health.
23
(B) PROGRAM DESIGN.—
24
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(i) EVALUATION.—No later than 1
1
year after enactment of this Act, the Di-
2
rector shall evaluate the best practices of
3
existing programs from the private, public,
4
community based, and academically sup-
5
ported initiatives focused on reducing dis-
6
parities in the social determinants of
7
health for racial and ethnic populations.
8
(ii)
DEMONSTRATION
PROJECTS.—
9
Not later than two years after the date of
10
enactment of this Act, the Director shall
11
implement at least ten demonstration
12
projects including at least one project for
13
each major racial and ethnic minority
14
group, each of which is unique to the cul-
15
tural and linguistic needs of each of the
16
following groups:
17
(I) Native Americans and Alaska
18
Natives.
19
(II) Asian Americans.
20
(III) African Americans/Blacks.
21
(IV) Hispanic/Latino-Americans.
22
(V) Native Hawaiians and Pacific
23
Islanders.
24
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(iii) REPORT TO CONGRESS.—No later
1
than 2 years after the implementation of
2
the initial demonstration projects, the Di-
3
rector shall submit to Congress a report
4
which includes—
5
(I) a description of each dem-
6
onstration project and design;
7
(II) an evaluation of the cost-ef-
8
fectiveness of each project’s preven-
9
tion and treatment efforts;
10
(III) an evaluation of the cultural
11
and linguistic appropriateness of each
12
project by racial and ethnic group;
13
and
14
(IV) an evaluation of the bene-
15
ficiary’s health status improvement
16
under the demonstration project.
17
(iv)
ANY
OTHER
INFORMATION
18
DEEMED
APPROPRIATE
BY
THE
DIREC-
19
TOR.—The Director shall require any other
20
information deemed appropriate to be
21
shared by or developed by eligible entities
22
awarded a grant under this paragraph, in-
23
cluding the following:
24
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(I) Developing models and evalu-
1
ating methods that improve the cul-
2
tural and linguistically appropriate
3
services provided through the Centers
4
for Disease Control and Prevention to
5
target individuals impacted by health
6
disparities based on their race, eth-
7
nicity, and gender.
8
(II) Promoting the collaboration
9
between primary and specialty care
10
health care providers and patients, to
11
ensure patients impacted by health
12
disparities based on race, ethnicity,
13
and gender are receiving comprehen-
14
sive and organized treatment and
15
care.
16
(III) Educating health care pro-
17
fessionals on the causes and effects of
18
disparities in the social determinants
19
of health as it relates to minority and
20
racial and ethnic communities and the
21
need for culturally and linguistically
22
appropriate care in the prevention and
23
treatment of high-impact diseases.
24
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(IV) Encouraging collaboration
1
among community and patient-based
2
organizations which work to address
3
disparities in the social determinants
4
of health as it relates to high-impact
5
diseases in minority and racial and
6
ethnic populations.
7
(f) AUTHORIZATION
OF APPROPRIATIONS.—There
8
are authorized to be appropriated to carry out this sec-
9
tion—
10
(1) $25,000,000 for fiscal year 2019; and
11
(2) such sums as may be necessary for fiscal
12
years 2020 through 2022.
13
SEC. 1006. ADDITIONAL RESEARCH ON THE RELATIONSHIP
14
BETWEEN THE BUILT ENVIRONMENT AND
15
THE HEALTH OF COMMUNITY RESIDENTS.
16
(a) DEFINITION OF ELIGIBLE INSTITUTION.—In this
17
section, the term ‘‘eligible institution’’ means a public or
18
private nonprofit institution that submits to the Secretary
19
of Health and Human Services (in this section referred
20
to as the ‘‘Secretary’’) and the Administrator of the Envi-
21
ronmental Protection Agency (in this section referred to
22
as the ‘‘Administrator’’) an application for a grant under
23
the grant program authorized under subsection (b)(2) at
24
such time, in such manner, and containing such agree-
25
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•HR 5942 IH
ments, assurances, and information as the Secretary and
1
Administrator may require.
2
(b) RESEARCH GRANT PROGRAM.—
3
(1) DEFINITION OF HEALTH.—In this section,
4
the term ‘‘health’’ includes—
5
(A) levels of physical activity;
6
(B) degree of mobility due to factors such
7
as musculoskeletal diseases, arthritis, and obe-
8
sity;
9
(C) consumption of nutritional foods;
10
(D) rates of crime;
11
(E) air, water, and soil quality;
12
(F) risk of injury;
13
(G) accessibility to health care services;
14
(H) levels of educational attainment; and
15
(I) other indicators as determined appro-
16
priate by the Secretary.
17
(2) GRANTS.—The Secretary, in collaboration
18
with the Administrator, shall provide grants to eligi-
19
ble institutions to conduct and coordinate research
20
on the built environment and its influence on indi-
21
vidual and population-based health.
22
(3) RESEARCH.—The Secretary shall support
23
research that—
24
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(A) investigates and defines the causal
1
links between all aspects of the built environ-
2
ment and the health of residents;
3
(B) examines—
4
(i) the extent of the impact of the
5
built environment (including the various
6
characteristics of the built environment) on
7
the health of residents;
8
(ii) the variance in the health of resi-
9
dents by—
10
(I) location (such as inner cities,
11
inner suburbs, and outer suburbs);
12
and
13
(II) population subgroup (includ-
14
ing children, the elderly, the disadvan-
15
taged); or
16
(iii) the importance of the built envi-
17
ronment to the total health of residents,
18
which is the primary variable of interest
19
from a public health perspective;
20
(C) is used to develop—
21
(i) measures to address health and the
22
connection of health to the built environ-
23
ment; and
24
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(ii) efforts to link the measures to
1
travel and health databases;
2
(D) distinguishes carefully between per-
3
sonal attitudes and choices and external influ-
4
ences on observed behavior to determine how
5
much an observed association between the built
6
environment and the health of residents, versus
7
the lifestyle preferences of the people that
8
choose to live in the neighborhood, reflects the
9
physical characteristics of the neighborhood;
10
and
11
(E)(i) identifies or develops effective inter-
12
vention strategies to promote better health
13
among residents with a focus on behavioral
14
interventions and enhancements of the built en-
15
vironment that promote increased use by resi-
16
dents; and
17
(ii) in developing the intervention strate-
18
gies under clause (i), ensures that the interven-
19
tion strategies will reach out to high-risk popu-
20
lations, including racial and ethnic minorities,
21
low-income urban and rural communities, and
22
children.
23
(4) PRIORITY.—In providing assistance under
24
the grant program authorized under paragraph (2),
25
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the Secretary and the Administrator shall give pri-
1
ority to research that incorporates—
2
(A) minority-serving institutions as grant-
3
ees;
4
(B) interdisciplinary approaches; or
5
(C) the expertise of the public health,
6
physical activity, nutrition and health care (in-
7
cluding child health), urban planning, and
8
transportation research communities in the
9
United States and abroad.
10
SEC. 1007. ENVIRONMENT AND PUBLIC HEALTH RESTORA-
11
TION.
12
(a) FINDINGS.—
13
(1) GENERAL FINDINGS.—The Congress finds
14
as follows:
15
(A) As human beings, we share our envi-
16
ronment with a wide variety of habitats and
17
ecosystems that nurture and sustain a diversity
18
of species.
19
(B) The abundance of natural resources in
20
our environment forms the basis for our econ-
21
omy and has greatly contributed to human de-
22
velopment throughout history.
23
(C) The accelerated pace of human devel-
24
opment over the last several hundred years has
25
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significantly impacted our natural environment
1
and its resources, the health and diversity of
2
plant and animal wildlife, the availability of
3
critical habitats, the quality of our air and our
4
water, and our global climate.
5
(D) The intervention of the Federal Gov-
6
ernment is necessary to minimize and mitigate
7
human impact on the environment for the ben-
8
efit of public health, to maintain air quality and
9
water quality, to sustain the diversity of plants
10
and animals, to combat global climate change,
11
and to protect the environment.
12
(E) Laws and regulations in the United
13
States have been created and promulgated to
14
minimize and mitigate human impact on the en-
15
vironment for the benefit of public health, to
16
maintain air quality and water quality, to sus-
17
tain wildlife, and to protect the environment.
18
(F) Such laws include the Antiquities Act
19
of 1906 (16 U.S.C. 431 et seq.) initiated by
20
President Theodore Roosevelt to create the na-
21
tional park system, the National Environmental
22
Policy Act of 1969 (42 U.S.C. 4321 et seq.),
23
the Clean Air Act (42 U.S.C. 7401 et seq.), the
24
Federal Water Pollution Control Act (33 U.S.C.
25
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•HR 5942 IH
1251 et seq.), the Comprehensive Environ-
1
mental Response, Compensation, and Liability
2
Act of 1980 (42 U.S.C. 9601 et seq.), the En-
3
dangered Species Act of 1973 (Public Law 93–
4
205), and the National Forest Management Act
5
of 1976 (Public Law 94–588).
6
(G) Attempts to repeal or weaken key envi-
7
ronmental safeguards pose dangers to the pub-
8
lic health, air quality, water quality, wildlife,
9
and the environment.
10
(2) FINDINGS
ON
CHANGES
AND
PROPOSED
11
CHANGES IN LAW.—The Congress finds that, since
12
2001, the following changes and proposed changes
13
to existing law or regulations have negatively im-
14
pacted or will negatively impact the environment and
15
public health:
16
(A) CLEAN WATER.—
17
(i) On May 9, 2002, the Environ-
18
mental Protection Agency (EPA) and the
19
Army Corps of Engineers put forth a final
20
rule that reconciled regulations imple-
21
menting section 404 of the Federal Water
22
Pollution Control Act by redefining the
23
term ‘‘fill material’’ and amending the def-
24
inition of the term ‘‘discharge of fill mate-
25
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rial’’, reversing a 25-year-old regulation.
1
The new rule fails to restrict the dumping
2
of hardrock mining waste, construction de-
3
bris, and other industrial wastes into riv-
4
ers, streams, lakes, and wetlands. The rule
5
further allows destructive mountaintop re-
6
moval coal mining companies to dump
7
waste into streams and lakes, polluting the
8
surrounding natural habitat and poisoning
9
plants and animals that depend on those
10
water sources.
11
(ii) On February 12, 2003, the Envi-
12
ronmental Protection Agency published the
13
rule ‘‘National Pollutant Discharge Elimi-
14
nation System Permit Regulation and Ef-
15
fluent Limitation Guidelines and Stand-
16
ards for Concentrated Animal Feeding Op-
17
erations’’, new livestock waste regulations
18
that aimed to control factory farm pollu-
19
tion but which would severely undermine
20
existing protections under the Federal
21
Water Pollution Control Act. This regula-
22
tion allows large-scale animal factories to
23
foul the Nation’s waters with animal
24
waste, allows livestock owners to draft
25
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•HR 5942 IH
their own pollution-management plans and
1
avoid ground water monitoring, legalizes
2
the discharge of contaminated runoff water
3
rich in nitrogen, phosphorus, bacteria, and
4
metals, and ensures that large factory
5
farms are not held liable for the environ-
6
mental damage they cause. In a 2005 Fed-
7
eral court decision (‘‘Waterkeeper Alliance,
8
et al. v. Environmental Protection Agen-
9
cy’’, 399 F.3d 486 (2nd Cir. 2005)), major
10
parts of the rule were upheld, others va-
11
cated, and still others remanded back to
12
the EPA. On November 20, 2008, the En-
13
vironmental Protection Agency published a
14
revised final rule which undermines envi-
15
ronmental protection provisions by remov-
16
ing mandatory permitting requirements
17
and allowing large animal farms to self-
18
certify the absence of pollutant discharge
19
activity.
20
(iii) On March 19, 2003, the Environ-
21
mental Protection Agency published a new
22
rule regarding the Total Maximum Daily
23
Load program of the Federal Water Pollu-
24
tion Control Act that regulates the max-
25
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•HR 5942 IH
imum amount of a particular pollutant
1
that can be present in a body of water and
2
still meet water quality standards. The new
3
rule withdrew the existing regulation put
4
forth on July 13, 2000, and halted mo-
5
mentum in cleaning up polluted waterways
6
throughout the Nation. By abandoning the
7
existing rule, the Environmental Protection
8
Agency is undermining the effectiveness of
9
cleanup plans and is allowing States to
10
avoid cleaning polluted waters entirely by
11
dropping them from their cleanup lists.
12
Waterways play a crucial role in the lives
13
of the people of the United States and are
14
critical to the livelihood of fish and wildlife.
15
The result of dropping the July 2000 rule
16
is that the restoration of polluted rivers,
17
shorelines, and lakes will be delayed, harm-
18
ing more fish and wildlife and worsening
19
the quality of drinking water.
20
(iv) On December 2, 2008, the Envi-
21
ronmental Protection Agency and the
22
Army Corps of Engineers jointly issued a
23
guidance document in the form of a legal
24
memorandum, titled ‘‘Clean Water Act Ju-
25
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•HR 5942 IH
risdiction Following the U.S. Supreme
1
Court’s Decision in Rapanos v. United
2
States & Carabell v. United States’’. This
3
new guidance dictates enforcement actions
4
under the Federal Water Pollution Control
5
Act and calls for a complicated ‘‘case-by-
6
case’’ analysis to determine jurisdiction for
7
waterways that do not flow all year. Such
8
actions endanger small streams and wet-
9
lands that serve as important habitats for
10
aquatic life, which play a fundamental role
11
in safeguarding sources of clean drinking
12
water and mitigate the risks and effects of
13
floods and droughts. Further, the defini-
14
tion provided therein for ‘‘waters of the
15
United States’’ is applicable to the Federal
16
Water Pollution Control Act as a whole,
17
potentially affecting programs that control
18
industrial pollution and sewage levels, pre-
19
vent oil spills, and set water quality stand-
20
ards for all waters in the United States
21
protected under the Federal Water Pollu-
22
tion Control Act.
23
(B) FORESTS AND LAND MANAGEMENT.—
24
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•HR 5942 IH
(i) On December 3, 2003, the Presi-
1
dent signed into law the Healthy Forests
2
Restoration Act of 2003 (Public Law 108–
3
148; 16 U.S.C. 6501 et seq.). Although the
4
law attempts to reduce the risk of cata-
5
strophic forest fires, it provides a boon to
6
timber companies by accelerating the ag-
7
gressive thinning of backcountry forests
8
that are far from at-risk communities. The
9
law allows for increased logging of large,
10
fire-resistant trees that are not in close
11
proximity of homes and communities; it
12
undermines critical protections for endan-
13
gered species by exempting Federal land
14
management agencies from consulting with
15
the United States Fish and Wildlife Serv-
16
ice before approving any action that could
17
harm endangered plants or wildlife; and it
18
limits public participation by reducing the
19
number of environmental project reviews.
20
(ii) On April 21, 2008, the Depart-
21
ment of Agriculture issued a Final Plan-
22
ning Rule and Record of Decision for Na-
23
tional Forest System Land Management
24
Planning. Similar to rules enacted by the
25
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•HR 5942 IH
Administration on January 5, 2005, later
1
remanded back to the agency in Federal
2
district court for violating the National
3
Environmental Policy Act of 1969, the En-
4
dangered Species Act of 1973, and the Ad-
5
ministrative Procedure Act (‘‘Citizens for
6
Better Forestry v. United States Depart-
7
ment of Agriculture’’, 481 F. Supp. 2d
8
1059 (N.D. Cal. 2007)), this revised rule
9
eliminates strict forest planning standards
10
established in 1982, and opens millions of
11
acres of public lands to damaging and
12
invasive logging, mining, and drilling oper-
13
ations. These regulations would reverse
14
more than 20 years of protection for wild-
15
life and national forests by removing the
16
overall goal of ensuring ecological sustain-
17
ability in managing the national forest sys-
18
tem, weakening the National Forest Man-
19
agement Act of 1976, and effectively end-
20
ing the review of forest management plans
21
under the National Environmental Policy
22
Act of 1969.
23
(iii) On September 20, 2006, the Dis-
24
trict Court for the Northern District of
25
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California vacated the Protection of Inven-
1
toried Roadless Areas rule, enacted on May
2
13, 2005, which gave State Governors 18
3
months to petition the Federal Government
4
to either restore the previous rule for their
5
States, or submit a new management and
6
development plan for national forest areas
7
inventoried under the rule. Despite the
8
enjoinment of the Administration’s 2005
9
rule, and the subsequent restoration of the
10
original Roadless Area Conservation Rule,
11
the United States Forest Service has con-
12
tinued to allow States to petition for a spe-
13
cial rule under the authority of the Admin-
14
istrative Procedure Act, publishing a final
15
special rule for Idaho on October 16, 2008.
16
As a result, 58.5 million acres of wild na-
17
tional forests are still vulnerable to log-
18
ging, road building, and other develop-
19
ments that may fragment natural habitats
20
and negatively impact fish and wildlife.
21
(iv) On November 17, 2008, the De-
22
partment of the Interior’s Bureau of Land
23
Management (BLM) signed the Record of
24
Decision (ROD) amending 12 resource
25
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•HR 5942 IH
management plans in Colorado, Utah, and
1
Wyoming, opening 2,000,000 acres of pub-
2
lic lands to commercial tar sands and oil
3
shale exploration and development. On No-
4
vember 18, 2008, the BLM published a
5
final rule for Oil Shale Management set-
6
ting the policies and procedures for a com-
7
mercial leasing program for the manage-
8
ment of federally owned oil shale in those
9
three States. Previously barred by a con-
10
gressional moratorium on the commercial
11
leasing regulations for oil shale until Sep-
12
tember 30, 2008, the development of oil
13
shale on public lands poses a serious threat
14
to land conservation, endangered and
15
threatened species, and critical habitat.
16
Domestic shale oil production allowed by
17
these regulations is highly water and en-
18
ergy intensive, the impacts of which will in-
19
tensify existing water scarcity in the arid
20
Western Region and potentially degrade
21
air and water quality for surrounding pop-
22
ulations.
23
(C) SCIENTIFIC
REVIEW.—On December
24
16, 2008, the United States Fish and Wildlife
25
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•HR 5942 IH
Service of the Department of the Interior and
1
the National Oceanic and Atmospheric Admin-
2
istration of the Department of Commerce joint-
3
ly issued a new rule amending regulations gov-
4
erning interagency cooperation under section 7
5
of the Endangered Species Act of 1973 (ESA).
6
This rule undermines the intention of the ESA
7
to protect species and the ecosystems upon
8
which they depend by allowing Federal agencies
9
to carry out, permit, or fund an action without
10
proper environmental review and expert third-
11
party consultation from Federal wildlife ex-
12
perts. Under this new rule, Federal agencies
13
can unilaterally circumvent the formal review
14
process, eliminating longstanding and scientif-
15
ically grounded safeguards that serve to protect
16
the biodiversity of our Nation’s ecosystems and
17
avert harm to thousands of endangered and
18
threatened species.
19
(b) STATEMENT OF POLICY.—It is the policy of the
20
United States Government to work in conjunction with
21
States, territories, Tribal governments, international orga-
22
nizations, and foreign governments in order to act as a
23
steward of the environment for the benefit of public
24
health, to maintain air quality and water quality, to sus-
25
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•HR 5942 IH
tain the diversity of plant and animal species, to combat
1
global climate change, and to protect the environment for
2
future generations to enjoy.
3
(c) STUDY AND REPORT ON PUBLIC HEALTH OR EN-
4
VIRONMENTAL IMPACT
OF REVISED RULES, REGULA-
5
TIONS, LAWS, OR PROPOSED LAWS.—
6
(1) STUDY.—Not later than 30 days after the
7
date of enactment of this Act, the President shall
8
enter into an arrangement under which the National
9
Academy of Sciences will conduct a study to deter-
10
mine the impact on public health, air quality, water
11
quality, wildlife, and the environment of the fol-
12
lowing regulations, laws, and proposed laws:
13
(A) CLEAN WATER.—
14
(i) Final revisions to the Federal
15
Water Pollution Control Act regulatory
16
definitions of ‘‘fill material’’ and ‘‘dis-
17
charge of fill material’’, finalized and pub-
18
lished in the Federal Register on May 9,
19
2002 (67 Fed. Reg. 31129), amending
20
part 232 of title 40, Code of Federal Regu-
21
lations.
22
(ii) Revised National Pollutant Dis-
23
charge Elimination System Permit Regula-
24
tion and Effluent Limitation Guidelines
25
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•HR 5942 IH
and Standards for Concentrated Animal
1
Feeding Operations in response to the
2
‘‘Waterkeeper Alliance, et al. v. Environ-
3
mental Protection Agency’’ decision, final-
4
ized and published in the Federal Register
5
on November 20, 2008 (73 Fed. Reg.
6
225), amending parts 9, 122, and 412 of
7
title 40, Code of Federal Regulations.
8
(iii) A March 19, 2003, rule published
9
in the Federal Register (68 Fed. Reg.
10
13608) withdrawing a July 13, 2000, rule
11
revising the Total Maximum Daily Load
12
program of the Federal Water Pollution
13
Control Act (65 Fed. Reg. 43586), amend-
14
ing parts 9, 122, 123, 124, and 130 of
15
title 40, Code of Federal Regulations.
16
(iv)
Official
Guidance
Document,
17
‘‘Clean Water Act Jurisdiction Following
18
the United States Supreme Court’s Deci-
19
sion in Rapanos v. United States &
20
Carabell v. United States’’, issued on De-
21
cember 2, 2008, relating to jurisdiction
22
under section 404 of the Federal Water
23
Pollution Control Act.
24
(B) FORESTS AND LAND MANAGEMENT.—
25
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•HR 5942 IH
(i) Healthy Forests Restoration Act of
1
2003, signed into law on December 3,
2
2003 (Public Law 108–148; 16 U.S.C.
3
6501 et seq.).
4
(ii) National Forest System Land
5
Management Planning Rule, finalized and
6
published in the Federal Register on April
7
21, 2008 (73 Fed. Reg. 21468), replacing
8
the 2005 final rule (70 Fed. Reg. 1022,
9
Jan. 5, 2005), as amended March 3, 2006
10
(71 Fed. Reg. 10837), and the 2000 final
11
rule adopted on November 9, 2000 (65
12
Fed. Reg. 67514), as amended on Sep-
13
tember 29, 2004 (69 Fed. Reg. 58055),
14
amending title 36, Code of Federal Regula-
15
tions, part 219.
16
(iii) The application of the Adminis-
17
trative Procedure Act (5 U.S.C. 551 to
18
559, 701 to 706, et seq.), such that States
19
may petition for a special rule for the
20
roadless areas in all or part of said State.
21
(iv) Record of Decision, ‘‘Oil Shale
22
and Tar Sands Resources Resource Man-
23
agement Plan Amendments’’, issued on
24
November 17, 2008, along with the Final
25
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•HR 5942 IH
Rule, Oil Shale Management-General, pub-
1
lished in the Federal Register on Novem-
2
ber 18, 2008 (73 Fed. Reg. 223), amend-
3
ing title 43, Code of Federal Regulations,
4
parts 3900, 3910, 3920, and 3930.
5
(C) SCIENTIFIC
REVIEW.—Final Rule,
6
Interagency Cooperation Under the Endangered
7
Species Act, published in the Federal Register
8
on December 16, 2008, amending title 50, Code
9
of Federal Regulations, part 402.
10
(2) METHOD.—In conducting the study under
11
paragraph (1), the National Academy of Sciences
12
may utilize and compare existing scientific studies
13
regarding the regulations, laws, and proposed laws
14
listed in paragraph (1).
15
(3) REPORT.—Under the arrangement entered
16
into under paragraph (1), not later than 270 days
17
after the date on which such arrangement is entered
18
into, the National Academy of Sciences shall make
19
publicly available and shall submit to the Congress
20
and to the head of each department and agency of
21
the Federal Government that issued, implements, or
22
would implement a regulation, law, or proposed law
23
listed in paragraph (1), a report containing—
24
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(A) a description of the impact of all such
1
regulations, laws, and proposed laws on public
2
health, air quality, water quality, wildlife, and
3
the environment, compared to the impact of
4
preexisting regulations, or laws in effect, includ-
5
ing—
6
(i) any negative impacts to air quality
7
or water quality;
8
(ii) any negative impacts to wildlife;
9
(iii) any delays in hazardous waste
10
cleanup that are projected to be hazardous
11
to public health; and
12
(iv) any other negative impact on pub-
13
lic health or the environment; and
14
(B) any recommendations that the Na-
15
tional Academy of Sciences considers appro-
16
priate to maintain, restore, or improve in whole
17
or in part protections for public health, air
18
quality, water quality, wildlife, and the environ-
19
ment for each of the regulations, laws, and pro-
20
posed laws listed in paragraph (1), which may
21
include recommendations for the adoption of
22
any regulation or law in place or proposed prior
23
to January 1, 2001.
24
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(d) DEPARTMENT AND AGENCY REVISION OF EXIST-
1
ING RULES, REGULATIONS, OR LAWS.—Not later than
2
180 days after the date on which the report is submitted
3
pursuant to subsection (c)(3), the head of each depart-
4
ment and agency that has issued or implemented a regula-
5
tion or law listed in subsection (c)(1) shall submit to the
6
Congress a plan describing the steps such department or
7
such agency will take, or has taken, to restore or improve
8
protections for public health and the environment in whole
9
or in part that were in existence prior to the issuance of
10
such regulation or law.
11
SEC. 1008. GAO REPORT ON HEALTH EFFECTS OF DEEP-
12
WATER HORIZON OIL RIG EXPLOSION IN THE
13
GULF COAST.
14
(a) STUDY.—The Comptroller General of the United
15
States shall conduct a study on the type and scope of
16
health care services administered through the Department
17
of Health and Human Services addressing the provision
18
of health care to racial and ethnic minorities, including
19
residents, cleanup workers, and volunteers, affected by the
20
explosion of the mobile offshore drilling unit Deepwater
21
Horizon that occurred on April 20, 2010.
22
(b) SPECIFIC COMPONENTS; REPORTING.—In car-
23
rying out subsection (a), the Comptroller General shall—
24
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(1) assess the type, size, and scope of programs
1
administered by the Department of Health and
2
Human Services that focus on provision of health
3
care to communities in the Gulf Coast;
4
(2) identify the merits and disadvantages asso-
5
ciated with each the programs;
6
(3) perform an analysis of the costs and bene-
7
fits of the programs;
8
(4) determine whether there is any duplication
9
of programs; and
10
(5) not later than 180 days after the date of
11
the enactment of this Act, submit to Congress a re-
12
port containing—
13
(A) the findings of the study conducted
14
under this section; and
15
(B) recommendations for improving access
16
to health care for racial and ethnic minorities.
17
Subtitle B—Gun Violence
18
SEC. 1011. FINDINGS.
19
Congress finds as follows:
20
(1) On average, 86 Americans are killed by
21
guns each day.
22
(2) An estimated 15,549 people were killed by
23
guns in 2017, not including suicides.
24
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•HR 5942 IH
(3) Gun violence disproportionately affects com-
1
munities of color, especially African Americans (who
2
comprise around 14 percent of the United States
3
population but account for more than half the coun-
4
try’s gun homicide victims).
5
(4) On average, there is more than one mass
6
shooting each day in the United States.
7
SEC. 1012. REAFFIRMING RESEARCH AUTHORITY OF THE
8
CENTERS FOR DISEASE CONTROL AND PRE-
9
VENTION.
10
(a) IN GENERAL.—Section 391 of the Public Health
11
Service Act (42 U.S.C. 280b) is amended—
12
(1) in subsection (a)(1), by striking ‘‘research
13
relating to the causes, mechanisms, prevention, diag-
14
nosis, treatment of injuries, and rehabilitation from
15
injuries;’’ and inserting ‘‘research, including data
16
collection, relating to—
17
‘‘(A) the causes, mechanisms, prevention,
18
diagnosis, and treatment of injuries, including
19
with respect to gun violence; and
20
‘‘(B) rehabilitation from such injuries;’’;
21
and
22
(2) by adding at the end the following new sub-
23
section:
24
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‘‘(c) NO ADVOCACY OR PROMOTION OF GUN CON-
1
TROL.—Nothing in this section shall be construed to—
2
‘‘(1) authorize the Secretary to give assistance,
3
make grants, or enter into cooperative agreements or
4
contracts for the purpose of advocating or promoting
5
gun control; or
6
‘‘(2) permit a recipient of any assistance, grant,
7
cooperative agreement, or contract under this section
8
to use such assistance, grant, agreement, or contract
9
for the purpose of advocating or promoting gun con-
10
trol.’’.
11
SEC. 1013. NATIONAL VIOLENT DEATH REPORTING SYSTEM.
12
The Secretary of Health and Human Services, acting
13
through the Director of the Centers for Disease Control
14
and Prevention, shall improve, particularly through the in-
15
clusion of additional States, the National Violent Death
16
Reporting System, as authorized by title III of the Public
17
Health Service Act (42 U.S.C. 241 et seq.). Participation
18
in the system by the States shall be voluntary.
19
SEC. 1014. REPORT ON EFFECTS OF GUN VIOLENCE ON
20
PUBLIC HEALTH.
21
Not later than one year after the date of the enact-
22
ment of this Act, and annually thereafter, the Surgeon
23
General of the Public Health Service shall submit to Con-
24
gress a report on the effects on public health, including
25
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•HR 5942 IH
mental health, of gun violence in the United States during
1
the preceding year, and the status of actions taken to ad-
2
dress such effects.
3
SEC. 1015. REPORT ON EFFECTS OF GUN VIOLENCE ON
4
MENTAL
HEALTH
IN
MINORITY
COMMU-
5
NITIES.
6
Not later than one year after the date of the enact-
7
ment of this Act, the Deputy Assistant Secretary for Mi-
8
nority Health in the Office of the Secretary of Health and
9
Human Services shall submit to the Congress a report on
10
the effects of gun violence on public health, including men-
11
tal health, in minority communities in the United States,
12
and the status of actions taken to address such effects.
13
Æ
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